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Aligning Forces for Quality Evaluation: Consumer Survey Round 1, 2007-2008 and 2010 (ICPSR 35259)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2007-06-01--2008-08-01, 2010-01-01--2010-05-01
This survey was conducted as part of the evaluation of the Aligning Forces for Quality (AF4Q) initiative, the Robert Wood Johnson Foundation's signature effort to lift the overall quality of health care in 17 targeted communities, reduce racial and ethnic disparities and provide models of national reform. The survey was administered to adults with one or more of five chronic illnesses -- diabetes, hypertension, heart disease, asthma and depression -- in the AF4Q communities and a national sample residing in non-AF4Q communities to provide a basis for comparison between the AF4Q communities and the rest of the United States. Survey questions focused on patient activation; consumer knowledge of publicly available performance reports that highlight quality differences among physicians, hospitals, and health plans; the ability to be an effective consumer in the context of a physician visit; patient knowledge about her/his illness; skills and willingness to self-manage one's illness; the impact of insurance and payment models; and the relationship between out-of-pocket costs and health care utilization.
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Simple Crosstabs

Aligning Forces for Quality Evaluation: Consumer Survey Round 2, 2011-2012 (ICPSR 37220)

Released/updated on: 2019-10-14
Geographic coverage: United States
Time period: 2011-01-01--2012-01-01
This survey was conducted as part of the evaluation of the Aligning Forces for Quality (AF4Q) initiative, which is the Robert Wood Johnson Foundation's effort to lift the overall quality of health care in 17 targeted communities, reduce racial and ethnic disparities, and provide models of national reform. The survey was administered to adults with one or more of five chronic illnesses, diabetes, hypertension, heart disease, asthma and depression, in the AF4Q communities and a national sample residing in non-AF4Q communities to provide a basis for comparison between the AF4Q communities and the rest of the United States. Survey questions focused on patient activation; consumer knowledge of publicly available performance reports that highlight quality differences among physicians, hospitals, and health plans; the ability to be an effective consumer in the context of a physician visit; patient knowledge about her/his illness; skills and willingness to self-manage one's illness; the impact of insurance and payment models; and the relationship between out-of-pocket costs and health care utilization. In 2011 the AF4Q evaluation team contracted with RTI International (RTI) to conduct the Aligning Forces for Quality Consumer Survey 2.0 (AF4Q 2.0).
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Simple Crosstabs

American Housing Survey, 2015 Metropolitan Data, Including an Arts and Culture Module (ICPSR 36805)

Released/updated on: 2019-03-05
Geographic coverage: United States

The 2015 American Housing Survey marks the first release of a newly integrated national sample and independent metropolitan area samples. The 2015 release features many variable name revisions, as well as the integration of an AHS Codebook Interactive Tool available on the U.S. Census Bureau Web site. This data collection provides information on representative samples of each of the 15 largest metropolitan areas across the United States, which are also included in the integrated national sample (available as ICPSR 36801). The metropolitan area sample also features representative samples of 10 additional metropolitan areas that are not present in the national sample. The U.S. Department of Housing and Urban Development (HUD) and the U.S. Census Bureau intend to survey the 15 largest metropolitan areas once every 2 years.

To ensure the sample was representative of all housing units within each metro area, the U.S. Census Bureau stratified all housing units into one of the following categories: (1) A HUD-assisted unit (as of 2013); (2) Trailer or mobile home; (3) Owner-occupied and one unit in structure; (4) Owner-occupied and two or more units in structure; (5) Renter-occupied and one unit in structure; (6) Renter-occupied and two or more units in structure; (7) Vacant and one unit in structure; (8) Vacant and two or more units in structure; and (9) Other units, such as houseboats and recreational vehicles.

The data are presented in three separate parts: Part 1, Household Record (Main Record); Part 2, Person Record; and Part 3, Project Record. Household Record data includes questions about household occupancy and tenure, household exterior and interior structural features, household equipment and appliances, housing problems, housing costs, home improvement, neighborhood features, recent moving information, income, and basic demographic information. The Household Record data also features four rotating topical modules: Arts and Culture, Food Security, Housing Counseling, and Healthy Homes. Person Record data includes questions about personal disabilities, income, and basic demographic information. Finally, Project Record data includes questions about home improvement projects. Specific questions were asked about the types of projects, costs, funding sources, and year of completion.

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Simple Crosstabs

American Housing Survey, 2015 National Data, Including an Arts and Culture Module (ICPSR 36801)

Released/updated on: 2019-03-05
Geographic coverage: United States

The 2015 American Housing Survey marks the first release of a newly integrated national sample and independent metropolitan area samples. The 2015 release features many variable name revisions, as well as the integration of an AHS Codebook Interactive Tool available on the U.S. Census Bureau We site. This data collection provides information on the characteristics of a national sample of housing units in 2015, including apartments, single-family homes, mobile homes, and vacant housing units. Data from the 15 largest metropolitan areas in the United States are included in the national sample survey (the AHS 2015 Metropolitan Data are also available as ICPSR 36805). The data are presented in three separate parts: Part 1, Household Record (Main Record), Part 2, Person Record, and Part 3, Project Record.

Household Record data includes questions about household occupancy and tenure, household exterior and interior structural features, household equipment and appliances, housing problems, housing costs, home improvement, neighborhood features, recent moving information, income, and basic demographic information. The household record data also features four rotating topical modules: Arts and Culture, Food Security, Housing Counseling, and Healthy Homes.

Person Record data includes questions about personal disabilities, income, and basic demographic information. Finally, the Project Record data includes questions about home improvement projects. Specific questions were asked about the types of projects, costs, funding sources, and year of completion.

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Behavioral Risk Factor Surveillance System (BRFSS) Asthma Call-Back Survey, 2009 (ICPSR 34300)

Released/updated on: 2012-08-09
Geographic coverage: North Carolina, Oregon, Vermont, Puerto Rico, Indiana, United States, Oklahoma, Maine, Utah, Washington, Nebraska, West Virginia, Massachusetts, North Dakota, Wisconsin, Arizona, Nevada, District of Columbia, Rhode Island, Montana, Hawaii, California, Kansas, Florida, New York (state), New Jersey, Michigan, Iowa, New Mexico, Illinois, Texas, Connecticut, New Hampshire, Louisiana, Ohio, Georgia, Virginia, Maryland

Asthma is one of the nation's most common and costly chronic conditions, affecting over 38 million Americans at some time in their lives. Managing asthma requires a long term, multifaceted approach, including patient education, behavior changes, asthma trigger avoidance, pharmacological therapy, and frequent medical follow-up. This study provides asthma data available at the state and local level to direct and evaluate interventions undertaken by asthma control programs located in the state health departments. Improved tracking for asthma is critical for planning and evaluating efforts to reduce the health burden from the disease.

The Behavioral Risk Factor Surveillance System (BRFSS) is a state-based system of health surveys that collects information on health risk behaviors, preventive health practices, and health care access primarily related to chronic disease and injury. For many states, the BRFSS is the only available source of timely, accurate data on health-related behaviors. BRFSS was established in 1984 by the Centers for Disease Control and Prevention (CDC); currently data are collected monthly in all 50 states, the District of Columbia, Puerto Rico, the United States Virgin Islands, and Guam. More than 350,000 adults are interviewed each year, making the BRFSS the largest telephone health survey in the world. States use BRFSS data to identify emerging health problems, establish and track health objectives, and develop and evaluate public health policies and programs. The BRFSS is a cross-sectional telephone survey conducted by state health departments with technical and methodological assistance provided by CDC. States conduct monthly telephone surveillance using a standardized questionnaire to determine the distribution of risk behaviors and health practices among adults. Responses are forwarded to CDC, where the monthly data are aggregated for each state, returned with standard tabulations, and published at the year's end by each state. The BRFSS questionnaire was developed jointly by CDC's Behavioral Surveillance Branch (BSB) and the states. Data derived from the questionnaire provide health departments, public health officials, and policymakers with necessary behavioral information. When combined with mortality and morbidity statistics, these data enable public health officials to establish policies and priorities and to initiate and assess health promotion strategies. Demographic variables include race, age, sex, education level, marital status, employment status, and income level.

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Collaborative National Network Examining Comparative Effectiveness Trials (CoNNECT) in 12 U.S. States, August 2010-July 2012 (ICPSR 34672)

Released/updated on: 2013-09-08
Geographic coverage: North Carolina, Vermont, United States, Minnesota, New York (state), Arkansas, New Jersey, Pennsylvania, Illinois, Texas, Colorado, Missouri, Virginia
Time period: 2010-08-01--2012-07-01

Purpose. The CoNNECT Project enables comparative effectiveness research on mental health, behavioral health, and substance use in primary care. CoNNECT tracked two main elements: (1) the number of patients identified with a comorbid mental health and physical health diagnosis; (2) the number of patients who initiate treatment secondary to a mental health diagnosis. CoNNECT created the capacity to build a base for mental health in primary care comparative effectiveness research using electronic connectivity to generate retrospective and in time prospective clinical data.

Data Access. CoNNECT data are not available from ICPSR. The data from this study are hosted at DARTNet.

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National Study of Physician Organizations and the Management of Chronic Illness II (NSPO2), 2006-2007 (ICPSR 29801)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2006-01-01--2007-01-01

The National Study of Physician Organizations and the Management of Chronic Illness (NSPO) was designed to improve understanding of evidence-based care management processes (CMPs) as they relate to physician organizations (POs), that is, independent practice associations (IPAs) and medical groups. Since the first NSPO survey of physician organizations in 2000-2001 (NSPO1, archived as ICPSR 4455), considerable investments have been made by a number of different sources, including the Robert Wood Johnson Foundation, the California Healthcare Foundation, and The Commonwealth Fund, to bring about improved care for the chronically ill. This survey, the second NSPO survey of IPAs and medical groups (NSPO2), examined the extent to which the investments in quality improvement were translated into action. NSPO2 assessed the status of CMPs and preventive services use as well as their key drivers in 2006-2007 and the extent to which these factors have changed over time. As in the first NSPO survey, NSPO2 focused on the treatment of four chronic diseases: asthma, congestive heart failure (CHF), depression, and diabetes. Topics covered by the survey include practice type, size, age, ownership, and number of locations; clinical information systems; care management and clinical practice; activities of health insurance plans in chronic illness care; performance incentives; preventative care and health promotion; and organizational culture.

This collection has two data files. The first file contains the NSPO2 survey data, while the second contains a crosswalk between the NSPO1 and NSPO2 case identification numbers which can be used to link the data of the POs that responded to both surveys. Altogether, 369 of the 1,104 POs that responded to NSPO1 also responded to NSPO2.

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National Study of Physician Organizations and the Management of Chronic Illness (NSPO), 2000-2001 (ICPSR 4455)

Released/updated on: 2006-05-30
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
The National Study of Physician Organizations and the Management of Chronic Illness (NSPO) examined relationships among physician organization characteristics and the implementation of care management processes (CMP) aimed at improving outcomes and reducing costs for the treatment of four chronic diseases: asthma, congestive heart failure (CHF), depression, and diabetes. To that end, NSPO conducted this national survey of medical groups and independent practice associations (IPA) with 20 or more physicians. An IPA is defined as an organization through which physicians contract with managed care plans. Examples of CMPs include evidence-based clinical practice guidelines, protocols and pathways, case and care management systems, and disease management, demand management, and health promotion programs. Interviews were conducted with the medical director, president, or chief executive officer of each surveyed physician organization. The survey collected data on (1) practice type, size, age, location, and ownership, (2) governance, management, and use of computerized data systems, (3) revenue and overall financial position, (4) physician compensation models, (5) relationships with health plans and degree of risk assumption, and (6) care management and clinical practice -- particularly in regard to asthma, CHF, depression, and diabetes.
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National Survey of Small and Medium-Sized Physician Practices (NSSMPP), 2007-2009 (ICPSR 36113)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2007-01-01--2009-01-01

Funded by the Robert Wood Johnson Foundation, the National Study of Small and Medium-sized Physician Practices (NSSMPP) was designed to provide information about physician practices with 1-19 physicians. The survey focused on the use of information technology and care management processes for four major chronic illnesses: asthma, congestive heart failure, depression, and diabetes. Other topics covered by the survey include practice type, size, ownership and the breakdown of patients by race and Hispanic origin; clinical preventative services and health promotion; health insurance plan activities in preventative care and care for patients with chronic illness; performance reporting and incentives; revenue sources and compensation methods; and organizational culture.

NSSMPP was also designed to assist the RWJF-funded Aligning Forces for Quality (AF4Q) project by providing baseline data about small and medium sized practices in the AF4Q sites. AF4Q was a national program that aimed to lift the quality of health care in 16 targeted communities, reduce racial and ethnic disparities in those communities and provide models for national reform.

NSSMPP built on two previous studies -- the National Study of Physician Organizations and the Management of Chronic Illness (NSPO), 2000-2001 (ICPSR 4455) and the National Study of Physician Organizations and the Management of Chronic Illness II (NSPO2), 2006-2007 (ICPSR 29801) -- which collected information about medical groups and independent practice associations (IPAs) with 20 or more physicians.

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Patient Empowered Strategy to Reduce Asthma Morbidity in Highly Impacted Populations (PESRAMHIP), United States, 2017-2021 (ICPSR 38664)

Released/updated on: 2023-10-26
Geographic coverage: Puerto Rico, United States
Time period: 2017-11-01--2021-04-30

Black and Latinx patients bear a disproportionate burden of asthma. Efforts to reduce the disproportionate morbidity have been mostly unsuccessful, and guideline recommendations have not been based on studies in these populations. PREPARE (PESRAMHIP) is a pragmatic, open-label trial of 1201 randomly assigned African American/Black and Hispanic/Latinx adults with moderate-to-severe asthma to use a patient-activated, reliever-triggered inhaled corticosteroid strategy (PARTICS) plus usual care (intervention) or to continue usual care.

Participants had one in-person visit to consent, randomize and collect baseline data followed by 15 monthly questionnaires. The primary end point of this study was the annualized rate of severe asthma exacerbations. Secondary end points included monthly asthma control as measured with the Asthma Control Test (ACT; range, 5 [poor] to 25 [complete control]), quality of life as measured with the Asthma Symptom Utility Index (ASUI; range, 0 to 1, with lower scores indicating greater impairment), and participant-reported missed days of work, school, or usual activities. Safety was also assessed.

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Project HealthDesign: BreathEasy - A Personal Health Record Application For Adults With Asthma, 2011-2012 (ICPSR 36027)

Released/updated on: 2024-02-14
Geographic coverage: Virginia, Richmond
Time period: 2011-01-01--2012-01-01
Asthma is a chronic illness that affects more than 23 million adults in the United States. In addition to respiratory symptoms associated with the disease, individuals with asthma are also more likely to experience depression and anxiety. The BreathEasy team designed a mobile application built on the latest clinical guidelines for treatment and self-monitoring for patients with asthma. Patients with asthma used the application on smartphones to capture and report observations of daily living (ODLs) such as use of controller and rescue medications, asthma symptoms (including peak flow rates), depression and anxiety symptoms, encounters with asthma triggers, physical activity levels (including accelerometer based data), sleeping problems, and smoking. Clinicians used a web based dashboard with simple analysis and visualization tools that allowed them to quickly view the patients' data, evaluate their health statuses, and communicate changes in treatment or monitoring. This data collection contains the ODL data recorded by the patients.
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Project on Human Development in Chicago Neighborhoods (PHDCN): Asthma History, Wave 3, 2000-2002 (ICPSR 13675)

Released/updated on: 2007-02-05
Geographic coverage: United States, Chicago, Illinois
Time period: 2000-01-01--2002-01-01
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One such measure was the Asthma History instrument. It asked a set of questions related to asthma and allergies. It was administered to subjects' primary caregivers in Cohorts 0, 3, 6, and 9.