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Hearing for Communication and Resident Engagement (HearCARE), Pennsylvania, 2021-2023 (ICPSR 39345)

Released/updated on: 2026-03-30
Geographic coverage: United States, Pennsylvania
Time period: 2021-06-01--2023-09-30

Amplification is an evidence-based front-line treatment for those with impaired communication secondary to Age Related Hearing Loss (ARHL). ARHL is the most prevalent cause of communication impairment among older adults and multiple existing evidence-based care models exist to address it. This study compared the two most common models of care (defined below) for ARHL provided to adults in assisted living/personal care communities.

  • The Consult Model (i.e., usual care) was an acute care strategy, relying on a monthly Audiologist visit to the facility.
  • The Engage Model was a chronic care approach to supportive hearing loss self-management of ARHL. Engage includes (a) hearing screening for all residents, (b) an individualized communication plan for those with an identified hearing loss (e.g., one-to-one, group, telephone, television plans, hearing aid trouble shooting, communication strategies, etc.), (c) provision of simple, non-custom amplifiers, (d) referral to audiology if needed, and (e) ongoing support provided by trained personnel (Communication Facilitator) under the supervision of the audiologist.

This study included three separate sample populations at 10 medical facilities. The staff at the medical facilities were selected to measure job satisfaction (DS1). Residents of the medical facilities were sampled to collect measures related to the impact of hearing on an individual's life and general demographics (DS2 and DS3). And the family of the residents were sampled to measure caregiver burden (DS4).

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Evaluation of Better Jobs Better Care: Clinical Manager Survey, 2004-2007 [Iowa, North Carolina, Oregon, Pennsylvania, and Vermont] (ICPSR 29063)

Released/updated on: 2024-02-14
Geographic coverage: North Carolina, Oregon, Vermont, Iowa, United States, Pennsylvania
Time period: 2004-01-01--2007-12-31

Funded by the Robert Wood Johnson Foundation and The Atlantic Philanthropies, Better Jobs Better Care (BJBC) was a demonstration program that sought to bring about changes in public policy and management practice that would lead to improved recruitment and retention of high-quality paraprofessional direct care workers (DCW) in nursing homes as well as in home- and community-based settings. This was to be accomplished by implementing both policy and management practice goals. Policy goals included developing initiatives related to wages and benefits, incentives for job redesign, curriculum and credentialing, professional associations, and promotion of public awareness and policies. Practice goals involved interventions related to caregiving skill development, peer mentoring, team building, top management training, supervisor training, and provider-specific interventions. The program established demonstration projects in Iowa, North Carolina, Oregon, Pennsylvania, and Vermont which enrolled long-term care establishments across the spectrum of long-term care settings: skilled nursing facilities, assisted living facilities, home care agencies, and adult day service providers.

Conducted as part of the BJBC evaluation, which used a before-after design to assess the implementation of the interventions and their impact, this survey of the top clinical manager at each participating long-term care provider explored the establishments' organizational characteristics and management practices. One version of the survey was administered at the beginning of the demonstration (Time1), and a second version, toward the end of the demonstration (Time 2). Organizational characteristics covered by the survey include nonprofit/for-profit status, whether the establishment was free standing or part of a chain, number of competing establishments, whether the DCWs were unionized, and the type and amount of services provided. Management practices investigated by the survey include participation in care planning, communication about tasks, feedback, DCW training, management communication, organizational readiness for change, professional development, and work design practices. The survey also collected information about the racial and Hispanic origin composition of DCWs and patients/residents/clients.

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Evaluation of Better Jobs Better Care: Direct Care Worker Survey, 2004-2007 [Iowa, North Carolina, Oregon, Pennsylvania, Vermont] (ICPSR 29064)

Released/updated on: 2024-02-14
Geographic coverage: North Carolina, Oregon, Vermont, Iowa, United States, Pennsylvania
Time period: 2004-01-01--2007-12-31

Funded by the Robert Wood Johnson Foundation and The Atlantic Philanthropies, Better Jobs Better Care (BJBC) was a demonstration program that sought to bring about changes in public policy and management practice that would lead to improved recruitment and retention of high-quality paraprofessional direct care workers (DCW) in nursing homes as well as in home- and community-based settings. This was to be accomplished by implementing both policy and management practice goals. Policy goals included developing initiatives related to wages and benefits, incentives for job redesign, curriculum and credentialing, professional associations, and promotion of public awareness and policies. Practice goals involved interventions related to caregiving skill development, peer mentoring, team building, top management training, supervisor training, and provider-specific interventions. The program established demonstration projects in Iowa, North Carolina, Oregon, Pennsylvania, and Vermont which enrolled long-term care establishments across the spectrum of long-term care settings: skilled nursing facilities, assisted living facilities, home care agencies, and adult day service providers.

Conducted as part of the BJBC evaluation, this survey interviewed DCWs at two points during the demonstration. The Time 1 interview was fielded as soon as establishments enrolled in the demonstration and provided a list of their DCWs (July 2004 to December 2006), and the Time 2 interviews were completed 12 to 28 months after the Time 1 interviews (April 2006 to June 2007). Both rounds of the survey used the same self-administered questionnaire which included questions about length of employment, job satisfaction, job rewards and problems, supervision, perceptions of quality of care, job confidence, training, intent to quit, and demographic characteristics. The survey also elicited recommendations for improving DCWs' jobs by asking the open-ended question "What is the single most important thing your employer could do to improve your job as a direct care worker?"

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Examination of Resident Abuse in Assisted Living Facilities in the United States, 2011 (ICPSR 34575)

Released/updated on: 2016-05-20
Geographic coverage: United States
Time period: 2011-01-01--2011-12-31

These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.

The purpose of the study was to:

  • Examine resident abuse from staff report by direct care workers in a nationally representative sample of assisted living settings;
  • Expand the scope of our understanding of resident abuse by including medication abuse in assisted living settings; and
  • Use the data collected to examine: a. rates of abuse; b. the association of external organizational, and internal factors with resident abuse; c. direct care worker characteristics associated with abuse; d. resident characteristics associated with abuse; e. leadership characteristics associated with abuse; f. the inter-correlations of different types of abuse; and, g. resident-to-resident abuse.

For the purposes of this research, an assisted living facility is defined as a long term care setting that typically provides residents for activities of daily living and instrumental activities of daily living. Using state listings from websites, researchers identified approximately 21,000 of assisting living facilities. A random sample of approximately seven percent (n=1,500) of these eligible assisted living facilities were selected from all 50 states. Administrators of assisted living facilities were asked if they were willing to complete the questionnaire (n=1,376). Administrators were also asked if they would be willing to distribute the questionnaire to direct care workers (n=12,555). Researchers requested that they distribute the survey to all full-time and part-time direct care workers on all shifts. Follow up reminder mailings and emails were used for the administrators.

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Survey of Consumer Attitudes and Behavior, February 2011 (ICPSR 35442)

Released/updated on: 2015-07-16
Geographic coverage: United States
Time period: 2011-01-01--2011-02-28
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2011 focused on topics such as evaluations and expectations about personal finances, employment, interest rates, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Also explored in this survey respondents' financial investments, home value, loan use, family income, health care, aging, assisted living for seniors, retirement, and neighborhood characteristics such as location and safety. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information includes ethnic origin, sex, age, marital status, household composition, and education.
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National Home and Hospice Care Survey, 2007 (ICPSR 28961)

Released/updated on: 2010-09-01
Geographic coverage: United States
Time period: 2007-08-01--2008-02-29, 2007-09-01--2008-04-30

The National Home and Hospice Care Survey (NHHCS) was reintroduced into the field in 2007 after a 7-year break. During that time, the survey was redesigned and expanded to include a computer-assisted personal interviewing (CAPI) system, many new data items, and larger sample sizes of current home health patients and hospice discharges. All agencies that participated in the survey were either certified by Medicare and/or Medicaid or were licensed by a state to provide home health and/or hospice services and currently or recently served home health and/or hospice patients. Agencies that provided only homemaker services or housekeeping services, assistance with instrumental activities of daily living (IADLs), or durable medical equipment and supplies were excluded from the survey. The 2007 NHHCS included a supplemental survey of home health aides employed by home health and/or hospice agencies, called the National Home Health Aide Survey (NHHAS). The 2007 NHHCS data were collected through in-person interviews with agency directors and their designated staffs; no interviews were conducted directly with patients or their families and/or friends. Agency data collected, available in agency administrative records, included information on the year an agency was established, the types of services an agency provided, referral sources, specialty programs, and staffing characteristics. Data collected on home health patients and hospice discharges, available in medical records, included age, sex, race and ethnicity, services received, length of time since admission, diagnoses, medications taken, advance directives, and many other items.

The National Home Health Aide Survey (NHHAS), the first national probability survey of home health aides, was designed to provide national estimates of home health aides employed by agencies that provide home health and/or hospice care. The NHHAS survey instrument included sections on recruitment, training, job history, family life, management and supervision, client relations, organizational commitment and job satisfaction, workplace environment, work-related injuries, and demographics.

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Evaluation of Better Jobs, Better Care: Frontline Supervisor Survey, 2005-2007 [Iowa, North Carolina, Oregon, Pennsylvania, Vermont] (ICPSR 23000)

Released/updated on: 2008-09-26
Geographic coverage: North Carolina, Oregon, Vermont, Iowa, United States, Pennsylvania
Time period: 2005-01-01--2007-12-31

In long-term care, frontline supervisors play a central role in direct care workers' (DCW) job quality and turnover and are critical to the implementation of management changes. To better understand supervisors' perceptions of management practices, the quality of supervision, and the effect on DCW turnover and job quality, the Office of the Assistant Secretary for Planning and Evaluation in the United States Department of Health and Human Services contracted with Pennsylvania State University to conduct this survey of supervisors participating in the Better Jobs, Better Care (BJBC) demonstration. Funded by the Robert Wood Johnson Foundation and The Atlantic Philanthropies, the BJBC demonstration -- which took place in Iowa, North Carolina, Oregon, Pennsylvania, and Vermont -- tested innovative policy and practice models designed to improve the quality of DCW jobs in an effort to improve recruitment and retention of these workers and strengthen capacity to meet future demand for long-term care.

Frontline supervisors were interviewed from the four types of facilities and agencies that participated in the demonstration: skilled nursing facilities, assisted living facilities, home care agencies, and adult day service providers. The survey explored the supervisors' job responsibilities, formal training, job satisfaction, and thoughts about quitting. It investigated the culture of the organizations in which the supervisors worked, probed for problems with the supervisors' jobs, assessed how rewarding the supervisors felt their jobs were, inquired as to whether the supervisors felt respected by their clients, DCWs, and managers, gauged the supervisors' assessments of the overall competency level of the DCWs in their organizations, and explored the supervisors' beliefs about managerial support for the BJBC project, how well the BJBC programs were executed, and whether the overall impact of the project was positive.

In addition, the respondents were queried about management practices (e.g., rotation of assignments to different services or units, mechanisms to handle employee concerns, and approaches used to handle poor performance or negative behaviors among employees). They were also asked about DCW training, mentoring, and career ladder programs, DCW participation in patient/resident/client care plans, and communication among DCWs and between DCWs and their supervisors. Respondents were also asked what was the most important thing that their employer could do both to improve the jobs of DCWs and to improve their own ability to do their jobs as supervisors of DCWs. Additional information collected by the survey includes the supervisors' age, sex, race, Hispanic origin, educational attainment, nursing degree or license (LPN, RN, Diploma RN, BSN, MSN, or Advanced Practice Nurse), wages, and health insurance coverage.

This collection comprises three data files: (1) Supervisor Identification Instrument Data, (2) Supervisor Survey Data, and (3) Clinical Managers Who Are Also Supervisors Data. The first file contains information collected by the Supervisor Identification Instrument that was submitted to the clinical manager at each BJBC provider organization. This instrument instructed clinical managers to name all of the supervisors in their organization and to indicate which supervisory responsibilities each one performed. The second data file contains the responses to the Supervisor Survey questionnaire.The third data file contains the responses of clinical managers who also functioned as supervisors in their organization. These clinical managers responded to the same questions in the Supervisor Survey questionnaire, except for ten questions that were worded somewhat differently.

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National Nursing Home Survey, 2004 (ICPSR 4651)

Released/updated on: 2007-03-23
Geographic coverage: United States
Time period: 2004-08-01--2004-12-31
The National Nursing Home Survey (NNHS) is a survey of nursing homes and related care facilities in the United States. During 2004, information regarding facility and financial characteristics was gathered from 1,174 facilities, along with current resident information for 13,507 residents, with additional information from 3,017 Nursing Assistants. The 2004 NNHS, conducted between August and December of 2004, was reintroduced into the field after a five-year break, during which time the survey was redesigned and expanded to collect many new data items using the National Nursing Assistant Survey (NNAS), which was sponsored by the Office of the Assistant Secretary for Planning and Evaluation (APSE) and is the first national study of nursing assistants working in nursing facilities in the United States. Facilities (DS 1) information was gathered through personal interviews with facility administrators and provided information on topics such as certification, availability of beds, and kinds of services provided, including dental, hospice, and nutrition. Current Residents (DS 2) information includes questions regarding age, race, marital status, level of care, and use of aids such as walkers, hearing aids, and crutches. Nursing Assistants (Part 3) information looked at the important role of nursing assistants in providing long-term care services for the growing population of the elderly and chronically ill. The NNAS gathered information regarding recruitment, education, training and licensure, job history, and family life, along with client relations, job satisfaction, and workplace environment.
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National Home and Hospice Care Survey, 2000 (ICPSR 3791)

Released/updated on: 2006-06-22
Geographic coverage: United States
Time period: 2000-01-01--2000-12-31
The National Home and Hospice Care Survey (NHHCS) for 2000 examines home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
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National Medical Expenditure Survey, 1987: Institutional Population Component (ICPSR 9280)

Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
This survey was designed to yield national estimates of the use of and expenditures for care during 1987 by persons who resided in nursing homes or facilities for the mentally retarded. The Facility Questionnaire was completed by administrators of 1,501 participating facilities (810 nursing homes and 691 facilities for the mentally retarded). Data records contain bed size, type of ownership, facility certification, services routinely provided, average cost, and other information. Weights, which must be used to generate nationally representative facility-level estimates, are provided. The Baseline Questionnaire file contains data collected from institutional caregivers and next of kin of 6,965 randomly sampled persons who were living in the sampled facilities on January 1, 1987. Data include sociodemographic information such as age, race, and sex. Information on residences prior to admission, measures of functional limitations and chronic conditions, and the work history of persons in facilities for the mentally retarded is also provided. Person level records can be linked to facility records and include person weights for obtaining national estimates. The documentation file includes an overview of the entire 1987 National Medical Expenditure Survey (NMES), which is expected to produce 15 files of data. The documentation provides frequencies, questionnaires, and technical information on sample design, weights, and variance estimation.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Facility Use and Expenditure Data for Nursing and Personal Care Home Residents [Public Use Tape 17] (ICPSR 6158)

Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The Institutional Population Component (IPC) is a survey of nursing and personal care homes and facilities for the mentally retarded and residents admitted to those facilities. Information was collected on facilities and their residents at several points during 1987. Use and expenditure estimates for institutionalized persons can be combined with those from the Household component for composite estimates covering most of the civilian population. Information on facilities and residents was collected from facility administrators and caregivers, with additional information collected from next of kin or other knowledgeable respondents. These data were supplemented by Medicare claims information for covered sample persons. Public Use Tape 17 is the first release of expenditure and use data from the IPC. It provides demographic information such as race, age, sex, education, veteran status, medical history, income, family, date of admission, vital status, residence history, use of long-term care, insurance coverage, and home ownership. Additional information covers the respondent's institutional stays in 1987, dates and lengths of stays, and characteristics of the institution, including size, type, ownership, and certification status. Also provided are data on expenses and sources of payments for services rendered in nursing and personal care homes.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Linked MADRS Data for Medicare Beneficiaries Sampled in Nursing and Personal Care Homes and Facilities for Persons With Mental Retardation [Research File 36R] (ICPSR 6586)

Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The Institutional Population Component (IPC) is a survey of nursing and personal care homes and facilities for the mentally retarded and residents admitted to those facilities. Information was collected on facilities and their residents at several points during 1987. Use and expenditure estimates for institutionalized persons can be combined with those from the Household Component for composite estimates covering most of the civilian population. Information on facilities and residents was collected from facility administrators and caregivers, with additional information collected from next-of-kin or other knowledgeable respondents. These data were supplemented by Medicare claims information for covered sample persons. Research File 36 provides information from the Medicare Automated Data Retrieval System (MADRS) for a subset of persons from File 1 of NATIONAL MEDICAL EXPENDITURE SURVEY, 1987: INSTITUTIONAL POPULATION COMPONENT, FACILITY USE AND EXPENDITURE DATA FOR NURSING AND PERSONAL CARE HOME RESIDENTS [PUBLIC USE TAPE 17] (ICPSR 6158) and a subset of persons from File 1 of NATIONAL MEDICAL EXPENDITURE SURVEY, 1987: INSTITUTIONAL POPULATION COMPONENT, FACILITY USE AND EXPENDITURE DATA FOR RESIDENTS OF FACILITIES FOR PERSONS WITH MENTAL RETARDATION [RESEARCH FILE 22R] (ICPSR 6467). Six data files are provided for Research File 36R, all of which contain demographic data such as age, sex, and race. Other variables common to all parts are facility type, person number, sample person identifier, reimbursement amount by Medicare, and total charges reported by provider. Parts 1-6 cover, respectively, Part B Payment Records, Part B Outpatient Bill Records, Part B Home Health Bill Records, Part A Inpatient/Skilled Nursing Facilities Bill Records, Part A Home Health Bill Records, and Part A Hospice Bill Records.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Personal History Questionnaire for Residents of Nursing and Personal Care Homes and End-of-Year Questionnaire for Residents of Nursing and Personal Care Homes and Facilities for Persons With Mental Retardation [Research File 19r] (ICPSR 6632)

Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The Institutional Population Component (IPC) is a survey of nursing and personal care homes and facilities for the mentally retarded and residents admitted to those facilities. Information was collected on facilities and their residents at several points during 1987. Use and expenditure estimates for institutionalized persons can be combined with those from the Household Component for composite estimates covering most of the civilian population. Information on facilities and residents was collected from facility administrators and caregivers, with additional information collected from next-of-kin or other knowledgeable respondents. These data were supplemented by Medicare claims information for covered sample persons. Research File 19R provides information collected from two IPC questionnaires, the Personal History Questionnaire (PHQ) and the End-of-Year Questionnaire (EYQ). The PHQ was administered once as part of the surveys of next-of-kin. These data are primarily concerned with the characteristics of the sample person just prior to admission. The EYQ was administered once in either the surveys of next-of-kin or the surveys of institutions and focuses on health status. Research File 19R also includes items from the Baseline Questionnaire and the Baseline Questionnaire Supplement. Data from these questionnaires were released on NMES Public Use Tapes 8, 17, and 22R (ICPSR 9677, 6158, and 6467). Part 1 of this collection, Summary Data, includes demographic characteristics such as age, race, sex, date of admission to sampled facility, and vital status. Part 2, 1987 Personal History Questionnaire (PHQ) Data, supplies information on condition prior to admission to facility, chronic disease history, whether respondent needed help with activities of daily living (ADLs) and/or instrumental activities of daily living (IADLs), usage of assistive technology, and behavioral history. Part 3, End-of-Year Questionnaire (EYQ) Data, includes characteristics of the sample person, limitations and help with ADLs and IADLs, health and behavioral history, and condition codes reported by either the respondent or the facility medical records.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Health Care Provider Utilization Data from the Institutional Use and Expenditure Questionnaire for Residents of Nursing and Personal Care Homes and Facilities for Persons with Mental Retardation [Research File 28R] (ICPSR 6732)

Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The Institutional Population Component (IPC) is a survey of nursing and personal care homes and facilities for the mentally retarded and residents admitted to those facilities. Information was collected on facilities and their residents at several points during 1987. Use and expenditure estimates for institutionalized persons can be combined with those from the Household component for composite estimates covering most of the civilian population. Information on facilities and residents was collected from facility administrators and caregivers, with additional information collected from next of kin or other knowledgeable respondents. These data were supplemented by Medicare claims information for covered sample persons. Research File 28R provides information collected in the Institutional Use and Expenditure Questionnaire (IUEQ) regarding health care providers, including Medicaid providers. The IUEQ was administered during each round of the IPC to eligible facilities in which sample persons had one or more stays. Part 1, Summary Data, includes demographic characteristics such as age, race, sex, date of admission to sampled facility, and vital status. Part 2, IUEQ Administration and Medical Provider Probes Data, supplies information on what types of medical providers were seen, frequency of any private duty nursing or attendant care services received, and whether the provider of that service was an employee or contractor of the facility, as well as frequency of emergency room and outpatient department visits. Part 3, Medical Provider Utilization Data, includes information about the type of provider, the number of times the provider was seen in total and the number of times in the facility, the number of times the sample person was seen by a provider paid by the facility, and whether that provider was an employee or a contractor of the facility.
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National Medical Expenditure Survey, 1987: Household Survey, Long-Term Care Supplement [Public Use Tape 10] (ICPSR 9675)

Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1987-01-01--1988-12-31
The Long-Term Care (LTC) Supplement contains data on the functional status of persons responding to Rounds 1 and 4 of the Household Survey of the 1987 National Medical Expenditure Survey (NMES). The series of questions on functional status includes items on Activities of Daily Living (ADL) and instrumental ADL (IADL), continence, and use of special equipment. For those persons having at least one ADL or IADL difficulty, questions were asked about use of community services such as adult day care, senior centers, home-delivered and congregate meals, special transportation, and telephone assurance. Information was also sought on prior nursing home stays, and financial help from someone outside of the household. The Demographics and Sampling Weights file contains person-level data for individuals who responded for their entire period of NMES eligibility (Rounds 1, 2, 3, and 4). Each record contains person identifiers, selected characteristics including age, sex, race/ethnicity, and census region, dates of interview, a response-per-round indicator for the LTC Supplements, imputation flags for ADL/IADL, and sampling weight variables. The LTC Supplement population represented in File 2 is a subset of persons in File 1. File 2 is composed of separate records for LTC data collected during Round 1 (N=33,971) and during Round 4 (N=33,986).
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National Nursing Home Survey, 1969 (ICPSR 9780)

Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1969-01-01--1969-12-31
This data collection is one of the earlier "resident places" surveys in the National Nursing Home Survey series. Basic information about nursing homes and their residents and discharges is included in this survey. The Facility Questionnaire contains variables on number of patients, number receiving nursing care, inpatient days of care, admissions, live discharges, place of discharge, deceased discharges, number of beds, total number of employees, and services provided. The Resident Questionnaire includes information about the resident's age, sex, race, marital status, date of admission, diagnoses, services received, aids used, mobility, hearing, vision, charges for care, and sources of payment.
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National Nursing Home Survey, 1999 (ICPSR 3268)

Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1999-07-01--1999-12-31
The National Nursing Home Survey (NNHS) is a survey of nursing homes and related care facilities in the United States. Between July and December 1999, information regarding facility and financial characteristics was gathered from 1,423 facilities, along with current resident information for 8,215 residents. For Part 1, Facility Questionnaire Data, personal interviews with facility administrators provided information on topics such as certification, availability of beds, and kinds of services provided, including dental, hospice, and nutrition. Part 2, Current Resident Questionnaire Data, provides information on age, race, marital status, level of care, and use of aids such as walkers, hearing aids, and crutches. Part 3, Discharged Resident Questionnaire Data, includes date of admission, reason for discharge, admission diagnosis, discharge diagnosis, assistive devices used, help needed with daily activities, services provided (health, mental health, transportation, social, educational), and payment sources.
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National Nursing Home Survey, 1997 (ICPSR 2855)

Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1997-07-01--1997-12-31
The National Nursing Home Survey (NNHS) is a survey of nursing homes and related care facilities in the United States. Between July and December 1997, information regarding facility and financial characteristics was gathered from 1,406 facilities, along with current resident information for 8,138 residents. For Part 1, Facility Questionnaire Data, personal interviews with facility administrators provided information on topics such as certification, availability of beds, and kinds of services provided, including dental, hospice, and nutrition. Part 2, Current Resident Questionnaire Data, provides information on age, race, marital status, level of care, and use of aids such as walkers, hearing aids, and crutches. Part 3, Discharged Resident Questionnaire Data, includes date of admission, reason for discharge, admission diagnosis, discharge diagnosis, assistive devices used, help needed with daily activities, services provided (health, mental health, transportation, social, educational), and payment sources.
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National Nursing Home Survey, 1995 (ICPSR 6998)

Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1995-07-01--1995-12-31
The National Nursing Home Survey (NNHS) is a survey of nursing homes and related care facilities in the United States. Between July and December 1995, information regarding facility and financial characteristics was gathered from 1,409 facilities, along with current resident information for 8,056 residents. For Part 1, Facility Questionnaire Data, personal interviews with facility administrators provided information on topics such as certification, availability of beds, and kinds of services provided, including dental, hospice, and nutrition. Through interviews with staff persons, current residents provided information on their age, race, marital status, level of care, and use of aids such as walkers, hearing aids, and crutches. These data are contained in Part 2, Current Resident Questionnaire Data. Financial data for facilities in Part 3, Expense Questionnaire Data, were supplied by accountants and bookkeepers using self-enumerated questionnaires pertaining to payroll expenses, drug costs, total revenues, and Medicare/Medicaid payments.
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National Nursing Home Survey, 1973-1974 (ICPSR 9725)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1973-01-01--1974-12-31
This dataset provides information gathered in 1973 from facilities providing nursing care to their residents. Nursing homes, their staff, and residents were surveyed. Data from the facility questionnaire include services offered, type of ownership, total number of beds, total number of residents, whether facility participated in Medicare and Medicaid, 1972 admissions, discharges, and deaths, number of patients receiving specific services and treatments, number of physicians, staff hours and payroll, and expenses. The resident questionnaire generated information on each resident's age, race, marital status, date of admission, prior living arrangements, reason for admission, diagnosis, chronic conditions, services received, medication, assistance with daily activities, frequency of doctor visits, and source of payment. The staff questionnaire data include sex, race, occupation, hours worked per week, salary, and education.
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National Nursing Home Survey, 1985 (ICPSR 8914)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1984-08-01--1986-01-31
The 1985 National Nursing Home Survey was designed to gather a variety of data on all types of nursing homes providing nursing care in the United States. In this collection data are available on nursing and related care facilities, services provided by the facilities, residents of the nursing homes, and discharges. Nursing home care is examined from the perspectives of both the recipients and the providers of services. Information about patients, both current and discharged, includes basic demographic characteristics, marital status, place of residence prior to admission, health status, services received, and, for discharges, the outcomes of care. A family member of both current and discharged patients was contacted by telephone to obtain data on socioeconomic status and prior episodes of health care. Facility-level data include basic characteristics such as size, ownership, Medicare/Medicaid certification, occupancy rate, and days of care provided.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Facility Use and Expenditure Data for Residents of Facilities for Persons with Mental Retardation [Research File 22r] (ICPSR 6467)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The NMES Research File 22R contains use and expenditure data on a nationally representative sample of persons who spent any time in facilities for persons with mental retardation during 1987. These data are from the NATIONAL MEDICAL EXPENDITURE SURVEY, 1987: INSTITUTIONAL POPULATION COMPONENT (ICPSR 9280), which is a survey of nursing/personal care homes and facilities for the mentally retarded and residents admitted to those facilities. Variables from the person-level data include demographic characteristics (age, race, sex), admission dates, vital status during 1987 (living or deceased), residence history, spouse characteristics (age, health), insurance coverage, income, and medical conditions (epilepsy, mental retardation, schizophrenia). The institutional stay data contain one record per stay for stays associated with a formal admission and/or discharge. Variables include information on episodes of institutional care, dates of stays (beginning date and ending date), and institutional characteristics such as size, ownership, and certification status. The expenditures and sources of payment billing data contain one record per bill for each eligible facility.
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National Nursing Home Survey Follow-up: Mortality Data, 1984-1990 (ICPSR 6435)

Released/updated on: 1996-01-16
Geographic coverage: United States
Time period: 1984-01-01--1990-12-31
The NATIONAL NURSING HOME SURVEY FOLLOW-UP (NNHSF) (WAVE I, 1987 [ICPSR 9813], WAVE II, 1988 [ICPSR 9838], and WAVE III, 1990 [ICPSR 6142]) is a longitudinal study that followed the cohort of current and discharged residents sampled in the NATIONAL NURSING HOME SURVEY, 1985 (NNHS) (ICPSR 8914). To generate the mortality data for this collection, 12,348 NNHSF records were matched to the National Death Index (NDI) to determine whether the NNHSF subjects who were alive at the last contact had died or if dates of death obtained during the follow-up waves were accurate. Of the 12,348 records sent to NDI for matching, 6,507 matches were found to be true or highly probable matches based on a scoring algorithm developed to determine the quality of the NDI match. These 6,507 records were then matched to the National Center for Health Statistics' Multiple Cause of Death files. Mortality data variables include the residence, marital status, education, race, and age of the decedent and the place and date of death, as well as the underlying cause of death and multiple conditions of death.
Curated

National Nursing Home Survey Follow-Up: Wave III, 1990 (ICPSR 6142)

Released/updated on: 1993-10-11
Geographic coverage: United States
Time period: 1990-01-01--1990-12-31
The 1990 National Nursing Home Survey Follow-Up (NNHSF) is part of a longitudinal study that followed the cohort of current residents and discharged residents sampled in the NATIONAL NURSING HOME SURVEY, 1985 (ICPSR 8914). The NNHSF extends the period of observation of these utilization patterns by approximately five years after the baseline nursing home interview. The primary purpose is to provide data on the flow of persons in and out of long-term care facilities and hospitals. The NNHSF was conducted in three waves. Wave I (ICPSR 9813) was conducted between August and December 1987, Wave II (ICPSR 9838) between July and November 1988, and Wave III between January and April 1990. For Wave III, information was collected on vital status, nursing home and hospital utilization since the last contact, current living arrangements, Medicare number, and source of payment. Information concerning the disposition of the subject's home was collected in Section J. Since these questions were only asked in Wave III, the information is not available for subjects who were known to be deceased at the time of the facility contact, the Next Of Kin survey, or Wave I or II of the follow-up. Those eligible for Section J represent a very select subgroup of the original cohort. In addition, 187 residents who were eligible for Section J did not receive the questionnaire because an appropriate respondent could not be identified.
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National Nursing Home Survey Follow-Up: Wave I, 1987 (ICPSR 9813)

Released/updated on: 1993-02-12
Geographic coverage: United States
Time period: 1984-01-01--1987-12-31
The National Nursing Home Survey Follow-Up (NNHSF) is a longitudinal study that followed the cohort of current residents and discharged residents sampled in the NATIONAL NURSING HOME SURVEY, 1985 (ICPSR 8914). The NNHSF extends the period of observation of these utilization patterns by approximately five years after the baseline nursing home interview. The primary purpose is to provide data on the flow of persons in and out of long-term care facilities and hospitals. The NNHSF was conducted in three waves. Wave I was administered between August and December 1987, Wave II between July and November 1988 (ICPSR 9838), and Wave III between February and April 1990. Data are available on the subject's vital status, living arrangements, nursing home stays, hospital stays, and source of payment for hospital and nursing home stays.
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National Nursing Home Survey Follow-Up: Wave II, 1988 (ICPSR 9838)

Released/updated on: 1993-02-12
Geographic coverage: United States
Time period: 1987-01-01--1988-12-31
The National Nursing Home Survey Follow-Up (NNHSF) is a longitudinal study that followed the cohort of current residents and discharged residents sampled in the NATIONAL NURSING HOME SURVEY, 1985 (ICPSR 8914). The NNHSF extends the period of observation of these utilization patterns by approximately five years after the baseline nursing home interview. The primary purpose is to provide data on the flow of persons in and out of long-term care facilities and hospitals. The NNHSF was conducted in three waves. Wave I was administered between August and December 1987 (ICPSR 9813), Wave II between July and November 1988, and Wave III between February and April 1990. Data are available on the subject's vital status, living arrangements, nursing home stays, hospital stays, and source of payment for hospital and nursing home stays occurring between the Wave I and Wave II interviews.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Facility Questionnaire Weight Update [Public Use Tape 6] (ICPSR 9676)

Released/updated on: 1992-02-17
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The 1987 National Medical Expenditure Survey (NMES) Public Use Tape 6 contains data from a survey of two kinds of long-term care facilities: those for the mentally retarded, and nursing and personal care homes. The Facility Questionnaire was completed by administrators or designated staff of the participating facilities. The items include number of beds, type of ownership, facility certification, services routinely provided, staffing, average cost, sources of payment for residents, and levels of basic costs. Additional variables were collected on the facilities for the mentally retarded: education and habilitation services, licensure and accreditation, and sources of revenue in addition to direct client fees. Public Use Tape 6 differs from the data in the Facility Questionnaire file of Public Use Tape 2, National Medical Expenditure Survey, 1987: Institutional Population Component (ICPSR 9280) only in the provision of a revised sampling weight variable. The new sampling weight includes adjustment not only for different probabilities of a facility being selected, nonresponse, and stratification measures, but also for duplication in the sampling frame.
Curated

National Medical Expenditure Survey, 1987: Institutional Population Component, Baseline Questionnaire Data [Public Use Tape 8] (ICPSR 9677)

Released/updated on: 1992-02-17
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The 1987 National Medical Expenditure Survey (NMES) Public Use Tape 8 contains full-year data from the Baseline Questionnaire of the Institutional Population Component. It updates data in the January 1, 1987, Resident File of Public Use Tape 2, NATIONAL MEDICAL EXPENDITURE SURVEY, 1987: INSTITUTIONAL POPULATION COMPONENT (ICPSR 9280), with the addition of data on admissions to the facilities throughout 1987, as well as a revised sampling weight that adjusts for sampling frame duplication between the two kinds of facilities. The Baseline Questionnaire was administered to the sample residents' primary caregiver(s) in the facility. Other information on the sample residents' health and living experiences was gathered from next-of-kin, case managers, or other staff members. The items covered include residence history for up to five previous admissions, demographic characteristics and family composition of the sampled residents, health and functional status, medical conditions from the medical records, information on facility respondents, and, for the mentally retarded aged 18 and over, employment and training history.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Facility Questionnaire Supplement [Public Use Tape 5] (ICPSR 9678)

Released/updated on: 1992-02-17
Geographic coverage: United States
Time period: 1988-01-01--1988-12-31
The 1987 National Medical Expenditure Survey (NMES) Public Use Tape 5 contains data from the Facility Questionnaire Supplement, which was administered during Phase 3 (early 1988) of the Survey in Institutions, a major part of the Institutional Population Component of the NMES. The Facility Questionnaire Supplement (FQS) included questions on the existence of any special Alzheimer's units in nursing homes and characteristics of these units, such as their capacity and plans for future expansion. The FQS also included some questions on nursing homes that had been asked previously only of facilities for the mentally retarded. These questions included accreditation status of the facility and provision of training for residents.
Curated

Master Facility Inventory: Nursing Homes and Other Health Care Facilities, 1976 (ICPSR 7631)

Released/updated on: 1992-02-16
Time period: 1976-01-01--1976-12-31
The Master Facility Inventory data collection provides a comprehensive list of nursing, personal care, and domiciliary care facilities in the United States in 1976. The criteria for inclusion were that a facility provided medical, nursing, personal, or custodial care to groups of unrelated persons on an inpatient basis. The survey was conducted by the National Center for Health Statistics in order to update its Master Facility Inventory on the number and kinds of such facilities in the United States and the changes to the list since the last MFI survey. Information gathered is for the previous calendar year and includes facility identification information, ownership and type of facility, capacity and type of beds (i.e., total beds set up and staffed for use and number of beds certified by Medicare or Medicaid as skilled and intermediate), acceptance criteria, and total number of male and female residents (or patients) for 26,748 institutions.
Curated

National Nursing Home Survey, 1977 (ICPSR 7946)

Released/updated on: 1992-02-16
Geographic coverage: United States
Time period: 1977-01-01--1977-12-31
Data for the 1977 National Nursing Home Survey were collected in a nationwide sample of nursing homes, personal care homes (with or without nursing), and domicilary care homes. Information on staff, residents, and discharges was collected via a combination of personal interviews and self-enumerated forms. Four files are contained within this data collection. Part 1, Facility-Expense File, contains information on type of facility, certification, bed size, services and therapy routinely provided to residents or non-residents, regular and temporary admissions, vacant staff positions, facility income, and expenditures. Parts 2 and 3, Current and Discharged Resident Files, supply data on residents regarding admissions, impairments, conditions, behavioral problems, visits to a physician, services, therapy or treatments received, use of aids or need of assistance, level of care received, total charges for care, and sources and amount of payments. Part 4, Staff File, contains information on employees' job experience, services performed, hours worked, educational background, non-degree training, salaries, and benefits.
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