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Showing 1 – 42 of 42 results.
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Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults, 2008 [United States] (ICPSR 27181)

Released/updated on: 2024-02-14
Geographic coverage: United States, Texas, Massachusetts, Hawaii, California, Georgia, New York (state), Wisconsin
Time period: 2008-01-01--2009-01-01

This is the second round of the Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults. Like the first round, which was fielded in 2002 and released as ICPSR 4301 (Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002), the second round was conducted as part of the evaluation of the CPFOA Program, an initiative of the Robert Wood Johnson Foundation (RWJF) aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private partnerships. The 2002 survey was conducted in the 13 communities in which partnerships received development grants from RWJF, and, in 2008, the survey was repeated in the eight of them in which partnerships received implementation grants from the Foundation. The goal of the survey was to improve understanding of the characteristics of older adults, their knowledge and perceptions about issues related to long-term care, and their use of long-term care services and support. In addition, the data collected by the survey enabled the communities to target the partnership's activities in the most effective way.

The second round was based on the 2002 survey instrument. Changes to the instrument were minimized so that the data from the 2002 and 2008 rounds would be comparable. The instrument was modified to delete questions that had low item response in 2002, to add questions requested by the partnerships, to add questions for decision-makers, or to modify questions that were outdated. As in 2002, the 2008 survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.

Curated
Partially restricted

Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002 [United States] (ICPSR 4301)

Released/updated on: 2024-02-14
Geographic coverage: Vermont, United States, Hawaii, California, New York (state), Maui, Arkansas, Michigan, Texas, Massachusetts, Georgia, Wisconsin, Boston
This survey is one component of the evaluation of the Community Partnerships for Older Adults (CPOA) Program, an initiative of the Robert Wood Johnson Foundation aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private community partnerships. The survey interviewed a representative sample of older adults aged 50 and over in 13 communities that were awarded development grants by the program. Designed to obtain baseline data about each community's population and to provide information to target the CPOA's activities in the most effective way, the survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.
Curated

Danish 1905 Cohort Study, 1998 (ICPSR 3960)

Released/updated on: 2016-08-22
Geographic coverage: Denmark, Global
Time period: 1905-01-01--1998-01-01
This data collection provides information on individuals born in Denmark in 1905 and who were still living in Denmark in 1998. The overall goal of the study was to establish a genetic-epidemiological database to shed light on the aging process among the extremely old. The data focus on their physical and cognitive functioning. Respondents were asked if they had been previously diagnosed with diseases such as diabetes, arthritis, asthma, migraine, cancer, stroke, heart attack, or depression, and if they were experiencing such ailments as cough, body pains, and bone fracture and were taking medication for them. Questions probed respondents' feelings about their health, life, and future. To assess respondents' general health and functioning, they were asked if they needed assistance with toileting, bathing, dressing, and mobility around the house; how often they needed to use the bathroom during the night; and if they used physical aids such as wheelchairs, eyeglasses, crutches, catheters, or diapers. They were also tested for memory and cognition, mobility, vision, speech, hearing, and lung functioning. Information was also elicited on respondents' mental state and awareness, energy level, menopause, frequency of visits with children and family, visits from a nurse, use of home care services, sleeping patterns, smoking and drinking habits, weight gain or loss, exercises, social activities, hobbies, reading habits, television viewing, and recent deaths in the family. Demographic information includes age, education, and marital status.
Curated

Detroit Area Study, 1988: Perspectives on the Care of the Elderly (ICPSR 6411)

Released/updated on: 1995-10-12
Geographic coverage: Detroit, United States, Michigan

The 1988 Detroit Area Study addressed attitudes toward issues such as retirement age, Social Security, funding for the care of the elderly, perceptions of the elderly, and personal experiences with care of the elderly. Respondents were also asked about their views regarding government spending on elderly assistance, health care, welfare, and job programs. Demographic characteristics of respondents include employment status, years of residency in the Detroit area, education, religion, age, sex, race, and income.

Curated

Euro-Barometer 37.2: Elderly Europeans, April-May 1992 (ICPSR 9958)

Released/updated on: 2008-06-04
Geographic coverage: United Kingdom, Portugal, Global, Spain, Greece, Netherlands, Belgium, Luxembourg, Ireland, Denmark, Italy, France, Germany
Time period: 1992-04-20--1992-05-19
This round of Euro-Barometer surveys queried respondents on standard Euro-Barometer measures such as public awareness of and attitudes toward the Common Market and the European Community (EC), and also focused on the elderly and their activities, finances, and health care. Respondents were asked what sorts of things in life were of interest to them, whether they were treated with more respect as they grew older, the extent to which they agreed with several popular conceptions about being older, and whether they felt as though they were treated as second-class citizens by public institutions, certain professions, service providers, or their families. Other questions queried respondents about the amount of free time they had in their daily routines, what activities they had pursued during the past week, how often they saw their families, how much contact they had with young people and whether they would like to have more, and how often they felt lonely. Respondents were also asked whether they were members of voluntary organizations or charity groups and whether they would join a political party formed to further the interests of the elderly. Financial questions included whether the respondent preferred a pension for the elderly to spend as they wished or reduced prices and concessions for the elderly, how they would describe their current financial situation, whether their financial situation was secure, and what made them feel financially secure or insecure. Respondents were also asked a series of health-related questions, including whether they had any long-standing illness, disability, or infirmity that limited their activities in any way, whether anyone gave them regular help or assistance with personal care or household tasks, who gave this care, and whom they would turn to should they need extra help or assistance. Demographic and other background information was gathered on life satisfaction, number of people residing in the home, size of locality, home ownership, and region of residence, as well as the respondent's age, sex, marital status, number of children, education, employment status, occupation, work sector, age of retirement or expected age of retirement, religiosity, subjective social class, and left-right political self-placement.
Curated

Functional Independence in Children at a Pediatric Clinic in Guanajuato, Mexico, 2004-2013 (ICPSR 37068)

Released/updated on: 2018-07-09
Geographic coverage: Mexico, Guanajuato
Time period: 2004-01-26--2013-05-13

This study sought to evaluate the functional independence in children at a Centers for Pediatric Rehabilitation Teleton (CRIT) facility in Guanajuato, Mexico through the use of the WeeFIM Instrument (0-3 Module). The dataset in this collection was generated in May 2013 from electronic health records for secondary analysis of de-identified data. The goal of CRIT, that this research sought to evaluate, was to improve social integration for children with disabilities in Mexico through comprehensive rehabilitation services, including physical therapy, occupational therapy, neurotherapy, speech therapy, physical and rehabilitation medicine, psychology, social integration, and school for parents.

The collection includes one dataset (35 variables, 5,993 cases). Demographic variables included in the collection: Age, gender, and city of residence.

Curated

Hearing for Communication and Resident Engagement (HearCARE), Pennsylvania, 2021-2023 (ICPSR 39345)

Released/updated on: 2026-03-30
Geographic coverage: United States, Pennsylvania
Time period: 2021-06-01--2023-09-30

Amplification is an evidence-based front-line treatment for those with impaired communication secondary to Age Related Hearing Loss (ARHL). ARHL is the most prevalent cause of communication impairment among older adults and multiple existing evidence-based care models exist to address it. This study compared the two most common models of care (defined below) for ARHL provided to adults in assisted living/personal care communities.

  • The Consult Model (i.e., usual care) was an acute care strategy, relying on a monthly Audiologist visit to the facility.
  • The Engage Model was a chronic care approach to supportive hearing loss self-management of ARHL. Engage includes (a) hearing screening for all residents, (b) an individualized communication plan for those with an identified hearing loss (e.g., one-to-one, group, telephone, television plans, hearing aid trouble shooting, communication strategies, etc.), (c) provision of simple, non-custom amplifiers, (d) referral to audiology if needed, and (e) ongoing support provided by trained personnel (Communication Facilitator) under the supervision of the audiologist.

This study included three separate sample populations at 10 medical facilities. The staff at the medical facilities were selected to measure job satisfaction (DS1). Residents of the medical facilities were sampled to collect measures related to the impact of hearing on an individual's life and general demographics (DS2 and DS3). And the family of the residents were sampled to measure caregiver burden (DS4).

Curated

Longitudinal Study of Aging Danish Twins, 1995 (ICPSR 21041)

Released/updated on: 2009-06-09
Geographic coverage: Denmark, Global
Time period: 1995-02-01--1995-04-01
The focus of the "Longitudinal Study of Aging Danish Twins (LSADT)" was on elucidating the causes of variation in survival, health, diseases, loss of abilities, and cognitive functions among the elderly and oldest-old. The LSADT was conducted every two years between 1995 and 2005 and consists of six waves. The study is comprised of interviews of elderly Danish twins aged 75 years and older (later 70 years and older). At each interview wave, the interview assessment was based on the interview used in the previous waves, which covers health, physical functioning, cognitive functioning, depression symptomatology, social factors, lifestyle characteristics, and quality of life. The self-report interview assessments were supplemented with objective indicators of physical strength and agility, behavioral speed, and pulmonary peak-flow. Biological material was also collected from the participants for future DNA analysis.
Curated

Master Facility Inventory: Nursing and Residential Care Homes, 1982 (ICPSR 8652)

Released/updated on: 1992-02-16
Geographic coverage: United States
This National Master Facility Inventory data file is intended to provide a comprehensive list of nursing homes and related care homes in the United States in 1982. The criteria for inclusion were that a home maintained three or more inpatient beds and provided one or more personal care services (such as help with eating, walking, correspondence, dressing, bathing, or using the toilet) or supervisory care. The file contains the names and addresses of 26,817 such facilities along with characteristics such as total beds set up and staffed for use, number of beds certified by Medicare or Medicaid as skilled and intermediate beds, total residents, and type of ownership. Facilities that only provided services to the mentally ill or the mentally retarded are not included in this file. Each facility has a unique identification number that incorporates the Federal Information Processing Standards state and county codes for sorting and selection by state, county, city, or zip code.
Curated

National Health Interview Survey, 1990: Assistive Devices Supplement (ICPSR 6139)

Released/updated on: 1993-12-18
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The 1990 Assistive Devices Supplement includes variables from the core Person File (see NATIONAL HEALTH INTERVIEW SURVEY, 1990 [ICPSR 9839]), including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. Variables unique to this supplement include questions about braces, special equipment for getting around, such as crutches, canes, walkers, and wheelchairs, assistive devices for hearing and vision, artificial limbs, and communication aids. Additional questions covered where devices were used and how often, how they were paid for, whether or not the home was equipped with special devices and what those devices were, and any equipment the respondent needed but did not have.
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National Health Interview Survey, 1994: Second Supplement on Aging (ICPSR 2563)

Released/updated on: 2007-02-12
Geographic coverage: United States
The National Health Interview Survey, 1994: Second Supplement on Aging (SOA II), conducted approximately 10 years after the original SOA (see NATIONAL HEALTH INTERVIEW SURVEY, 1984 [ICPSR 8659], Parts 6 and 7), had four specific aims. The first was to provide a replication of the first SOA to determine whether changes had occurred in the level of disability among older persons between 1984 and the mid-1990s. The second aim was to elicit information on the causes and correlates of changes in health and functioning in older Americans, including background demographic characteristics, health behaviors, and attitudes, pre-existing illness, and social and environmental support. The third was to describe the sequence and consequences of health events, including utilization of health care and services for assisted community living, on the physiological consequences of disability such as pain and fatigue, on social consequences such as changes in social activities, living arrangements, social support, and use of community services, and on the deployment of assisted living strategies and accessibility of technological and environmental adaptations. The final aim was to serve as the baseline for another national longitudinal study focusing on older Americans, the SECOND LONGITUDINAL STUDY OF AGING (LSOA II) (for the first LSOA see NATIONAL HEALTH INTERVIEW SURVEY: LONGITUDINAL STUDY OF AGING, 70 YEARS AND OVER, 1984-1990 [ICPSR 8719]).
Curated

National Health Interview Survey: Longitudinal Study of Aging, 70 Years and Over, 1984-1990 (ICPSR 8719)

Released/updated on: 2011-08-18
Geographic coverage: United States
Time period: 1984-01-01--1990-01-01
This study, commonly known as the Longitudinal Study of Aging (LSOA), was conducted by the National Center for Health Statistics (NCHS) in collaboration with the National Institute on Aging (NIA) and designed to (1) provide mortality rates by demographic, social, economic, and health characteristics that are not available from the vital statistics system, (2) measure change in the functional status and living arrangements of older people, and (3) provide measures of health care use. It was also designed to describe the continuum from functionally independent living in the community through dependence, possible institutionalization, and finally death. The LSOA is an extension of the National Health Interview Survey (NHIS) of 1984, following its sample of 16,148 noninstitutionalized elderly people (55 years and over) living in the United States, with a special focus on those who were 70 years and over in 1984. This release of the LSOA contains data on those respondents who had been 70 years and older at the time of their 1984 interviews. The data include 1986, 1988, and 1990 reinterviews, National Death Index matches from 1984-1989, and 1987 interviews with contact persons named by decedents, as well as selected variables from the 1984 NHIS core questionnaire and its two supplements, Health Insurance and the Supplement on Aging (SOA). Two Medicare files are also included: Part 2, Medicare Hospital Records, and Part 3, Other Medicare Use Records (which covers home health care, hospice, and outpatient use). Links also are provided to allow merging of additional variables from the NATIONAL HEALTH INTERVIEW SURVEY, 1984 (ICPSR 8659).
Curated

National Health Interview Survey on Disability, 1994: Phase II, Adult Followback (ICPSR 2568)

Released/updated on: 1998-12-07
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The National Health Interview Survey on Disability (NHIS-D), first administered in 1994, was designed to collect data that can be used to understand disability and develop public policy. Another goal of this survey was to find a balance among medical, administrative, and social issues involved in disability measurement. The 1994 NHIS-D was conducted in two phases. Phase I was administered at the same time as the 1994 NHIS core. The Phase I Disability questionnaire elicited information on disability and was used as a screening device for Phase II. Phase II has two parts, a Child file and an Adult file. The Adult Followback file includes questions on housing and long-term care services, transportation, social activity, work history/employment, vocational rehabilitation, assistive devices and technologies, health insurance, assistance with key activities, other services, self-direction, family structure, relationships, living arrangements, conditions and impairments, health opinions and behaviors, community services, and proxy status. This file can be linked to the 1994 NHIS core data (ICPSR 6724). In addition, it can be linked to NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1994: PHASE I, PERSON AND CONDITION DATA (ICPSR 2562), NATIONAL HEALTH INTERVIEW SURVEY, 1994: ACCESS TO CARE SUPPLEMENT (ICPSR 6874), and NATIONAL HEALTH INTERVIEW SURVEY, 1994: HEALTH INSURANCE SUPPLEMENT (ICPSR 6873).
Curated

National Health Interview Survey on Disability, 1994: Phase II, Child Followback (ICPSR 2567)

Released/updated on: 1998-12-10
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The National Health Interview Survey on Disability (NHIS-D), first administered in 1994, was designed to collect data that can be used to understand disability and develop public policy. Another goal of this survey was to find a balance between medical, administrative, and social issues involved in disability measurement. The 1994 NHIS-D was conducted in two phases. Phase I was administered at the same time as the 1994 NHIS core. The Phase I Disability questionnaire elicited information on disability and was used as a screening device for Phase II. Phase II has two parts, a Child file and an Adult file. The Child Followback file includes questions on services needed by the child, the impact of the child's disability on the family, child care, and emotional and psychological adjustment. This file can be linked to the 1994 NHIS core data (ICPSR 6724). In addition, it can be linked to NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1994: PHASE I, PERSON AND CONDITION DATA (ICPSR 2562), NATIONAL HEALTH INTERVIEW SURVEY, 1994: ACCESS TO CARE SUPPLEMENT (ICPSR 6874), and NATIONAL HEALTH INTERVIEW SURVEY, 1994: HEALTH INSURANCE SUPPLEMENT (ICPSR 6873).
Curated

National Health Interview Survey on Disability, 1995: Phase II, Adult Followback (ICPSR 2578)

Released/updated on: 1999-04-26
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The National Health Interview Survey on Disability (NHIS-D), first administered in 1994, was designed to collect data that can be used to understand disability and develop public policy. Another goal of this survey was to find a balance among medical, administrative, and social issues involved in disability measurement. The 1995 NHIS-D was conducted in two phases. Phase I was administered at the same time as the 1995 NHIS core. The Phase I Disability questionnaire elicited information on disability and was used as a screening device for Phase II. Phase II has two parts, a Child file and an Adult file. The Adult Followback file includes questions on housing and long-term care services, transportation, social activity, work history/employment, vocational rehabilitation, assistive devices and technologies, health insurance, assistance with key activities, self-direction, family structure, relationships, living arrangements, conditions and impairments, health opinions and behaviors, community services, and proxy status. This file can be linked to the 1995 NHIS core data (ICPSR 2533). In addition, it can be linked to NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1995: PHASE I, PERSON AND CONDITION DATA (ICPSR 2562), NATIONAL HEALTH INTERVIEW SURVEY, 1995: ACCESS TO CARE SUPPLEMENT (ICPSR 2525), and NATIONAL HEALTH INTERVIEW SURVEY, 1995: HEALTH INSURANCE SUPPLEMENT (ICPSR 2530).
Curated

National Health Interview Survey On Disability, 1995: Phase II, Child Followback (ICPSR 2577)

Released/updated on: 1999-04-30
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The National Health Interview Survey on Disability (NHIS-D), first administered in 1994, was designed to collect data that can be used to understand disability and develop public policy. Another goal of this survey was to find a balance among medical, administrative, and social issues involved in disability measurement. The 1995 NHIS-D was conducted in two phases. Phase I was administered at the same time as the 1995 NHIS core. The Phase I Disability questionnaire elicited information on disability and was used as a screening device for Phase II. Phase II has two parts, a Child file and an Adult file. The Child Followback file includes questions on services needed by the child, the impact of the child's disability on the family, child care, and emotional and psychological adjustment. This file can be linked to the 1995 NHIS core data (ICPSR 2533). In addition, it can be linked to NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1995: PHASE I, PERSON AND CONDITION DATA (ICPSR 2562), NATIONAL HEALTH INTERVIEW SURVEY, 1995: ACCESS TO CARE SUPPLEMENT (ICPSR 2525), and NATIONAL HEALTH INTERVIEW SURVEY, 1995: HEALTH INSURANCE SUPPLEMENT (ICPSR 2530).
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National Home and Hospice Care Survey, 1992 (ICPSR 6536)

Released/updated on: 2006-01-12
Geographic coverage: United States
The National Home and Hospice Care Survey (NHHCS) for 1992 is the first annual survey of home health agencies and hospices and their patients and discharges. The survey was designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff personnel, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff people most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes service provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
Curated

National Home and Hospice Care Survey, 1993 (ICPSR 6664)

Released/updated on: 2006-01-12
Geographic coverage: United States
The National Home and Hospice Care Survey (NHHCS) for 1993 is the second annual survey of home health agencies and hospices and their current patients and discharges. This survey was designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff personnel, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes service provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, Hispanic origin, race, and marital status.
Curated

National Home and Hospice Care Survey, 1994 (ICPSR 6733)

Released/updated on: 2006-01-12
Geographic coverage: United States
The National Home and Hospice Care Survey (NHHCS) for 1994 is the third annual survey of home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff personnel, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
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National Home and Hospice Care Survey, 1996 (ICPSR 2707)

Released/updated on: 2006-01-18
Geographic coverage: United States
The National Home and Hospice Care Survey (NHHCS) for 1996 is the fourth survey of home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff personnel, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
Curated

National Home and Hospice Care Survey, 1998 (ICPSR 3763)

Released/updated on: 2006-01-18
Geographic coverage: United States
The National Home and Hospice Care Survey (NHHCS) for 1998 examines home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
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National Home and Hospice Care Survey, 2000 (ICPSR 3791)

Released/updated on: 2006-06-22
Geographic coverage: United States
The National Home and Hospice Care Survey (NHHCS) for 2000 examines home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
Curated

National Home and Hospice Care Survey, 2007 (ICPSR 28961)

Released/updated on: 2010-09-01
Geographic coverage: United States
Time period: 2007-08-01--2008-02-01, 2007-09-01--2008-04-01

The National Home and Hospice Care Survey (NHHCS) was reintroduced into the field in 2007 after a 7-year break. During that time, the survey was redesigned and expanded to include a computer-assisted personal interviewing (CAPI) system, many new data items, and larger sample sizes of current home health patients and hospice discharges. All agencies that participated in the survey were either certified by Medicare and/or Medicaid or were licensed by a state to provide home health and/or hospice services and currently or recently served home health and/or hospice patients. Agencies that provided only homemaker services or housekeeping services, assistance with instrumental activities of daily living (IADLs), or durable medical equipment and supplies were excluded from the survey. The 2007 NHHCS included a supplemental survey of home health aides employed by home health and/or hospice agencies, called the National Home Health Aide Survey (NHHAS). The 2007 NHHCS data were collected through in-person interviews with agency directors and their designated staffs; no interviews were conducted directly with patients or their families and/or friends. Agency data collected, available in agency administrative records, included information on the year an agency was established, the types of services an agency provided, referral sources, specialty programs, and staffing characteristics. Data collected on home health patients and hospice discharges, available in medical records, included age, sex, race and ethnicity, services received, length of time since admission, diagnoses, medications taken, advance directives, and many other items.

The National Home Health Aide Survey (NHHAS), the first national probability survey of home health aides, was designed to provide national estimates of home health aides employed by agencies that provide home health and/or hospice care. The NHHAS survey instrument included sections on recruitment, training, job history, family life, management and supervision, client relations, organizational commitment and job satisfaction, workplace environment, work-related injuries, and demographics.

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National Long Term Care Channeling Evaluation, 1982-1984 (ICPSR 8683)

Released/updated on: 1992-02-16
Geographic coverage: United States
Time period: 1982-01-01--1984-01-01
The United States Department of Health and Human Services initiated this survey to demonstrate and evaluate the cost savings and effectiveness of applying a case management approach to community-based long term care services for the frail elderly. The goal of case management is to coordinate and direct community, medical, and informal long term care services to the frail elderly as an alternative to institutionalization. The four main areas of evaluation are: 1) the use of hospitals, nursing homes, and other formal medical services, 2) public and private expenditures on formal community services including case-management, housing, and income transfers, 3) informal care by family and friends, and 4) individual outcomes, including quality of life, physical functioning, unmet service needs, and mortality of the elderly sample members.
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National Nursing Home Survey, 1969 (ICPSR 9780)

Released/updated on: 2006-01-18
Geographic coverage: United States
This data collection is one of the earlier "resident places" surveys in the National Nursing Home Survey series. Basic information about nursing homes and their residents and discharges is included in this survey. The Facility Questionnaire contains variables on number of patients, number receiving nursing care, inpatient days of care, admissions, live discharges, place of discharge, deceased discharges, number of beds, total number of employees, and services provided. The Resident Questionnaire includes information about the resident's age, sex, race, marital status, date of admission, diagnoses, services received, aids used, mobility, hearing, vision, charges for care, and sources of payment.
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National Nursing Home Survey, 1973-1974 (ICPSR 9725)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1973-01-01--1974-01-01
This dataset provides information gathered in 1973 from facilities providing nursing care to their residents. Nursing homes, their staff, and residents were surveyed. Data from the facility questionnaire include services offered, type of ownership, total number of beds, total number of residents, whether facility participated in Medicare and Medicaid, 1972 admissions, discharges, and deaths, number of patients receiving specific services and treatments, number of physicians, staff hours and payroll, and expenses. The resident questionnaire generated information on each resident's age, race, marital status, date of admission, prior living arrangements, reason for admission, diagnosis, chronic conditions, services received, medication, assistance with daily activities, frequency of doctor visits, and source of payment. The staff questionnaire data include sex, race, occupation, hours worked per week, salary, and education.
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National Nursing Home Survey, 1977 (ICPSR 7946)

Released/updated on: 1992-02-16
Geographic coverage: United States
Data for the 1977 National Nursing Home Survey were collected in a nationwide sample of nursing homes, personal care homes (with or without nursing), and domicilary care homes. Information on staff, residents, and discharges was collected via a combination of personal interviews and self-enumerated forms. Four files are contained within this data collection. Part 1, Facility-Expense File, contains information on type of facility, certification, bed size, services and therapy routinely provided to residents or non-residents, regular and temporary admissions, vacant staff positions, facility income, and expenditures. Parts 2 and 3, Current and Discharged Resident Files, supply data on residents regarding admissions, impairments, conditions, behavioral problems, visits to a physician, services, therapy or treatments received, use of aids or need of assistance, level of care received, total charges for care, and sources and amount of payments. Part 4, Staff File, contains information on employees' job experience, services performed, hours worked, educational background, non-degree training, salaries, and benefits.
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National Nursing Home Survey, 1985 (ICPSR 8914)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1984-08-01--1986-01-01
The 1985 National Nursing Home Survey was designed to gather a variety of data on all types of nursing homes providing nursing care in the United States. In this collection data are available on nursing and related care facilities, services provided by the facilities, residents of the nursing homes, and discharges. Nursing home care is examined from the perspectives of both the recipients and the providers of services. Information about patients, both current and discharged, includes basic demographic characteristics, marital status, place of residence prior to admission, health status, services received, and, for discharges, the outcomes of care. A family member of both current and discharged patients was contacted by telephone to obtain data on socioeconomic status and prior episodes of health care. Facility-level data include basic characteristics such as size, ownership, Medicare/Medicaid certification, occupancy rate, and days of care provided.
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National Nursing Home Survey, 1995 (ICPSR 6998)

Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1995-07-01--1995-12-01
The National Nursing Home Survey (NNHS) is a survey of nursing homes and related care facilities in the United States. Between July and December 1995, information regarding facility and financial characteristics was gathered from 1,409 facilities, along with current resident information for 8,056 residents. For Part 1, Facility Questionnaire Data, personal interviews with facility administrators provided information on topics such as certification, availability of beds, and kinds of services provided, including dental, hospice, and nutrition. Through interviews with staff persons, current residents provided information on their age, race, marital status, level of care, and use of aids such as walkers, hearing aids, and crutches. These data are contained in Part 2, Current Resident Questionnaire Data. Financial data for facilities in Part 3, Expense Questionnaire Data, were supplied by accountants and bookkeepers using self-enumerated questionnaires pertaining to payroll expenses, drug costs, total revenues, and Medicare/Medicaid payments.
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National Nursing Home Survey, 1997 (ICPSR 2855)

Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1997-07-01--1997-12-01
The National Nursing Home Survey (NNHS) is a survey of nursing homes and related care facilities in the United States. Between July and December 1997, information regarding facility and financial characteristics was gathered from 1,406 facilities, along with current resident information for 8,138 residents. For Part 1, Facility Questionnaire Data, personal interviews with facility administrators provided information on topics such as certification, availability of beds, and kinds of services provided, including dental, hospice, and nutrition. Part 2, Current Resident Questionnaire Data, provides information on age, race, marital status, level of care, and use of aids such as walkers, hearing aids, and crutches. Part 3, Discharged Resident Questionnaire Data, includes date of admission, reason for discharge, admission diagnosis, discharge diagnosis, assistive devices used, help needed with daily activities, services provided (health, mental health, transportation, social, educational), and payment sources.
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National Nursing Home Survey, 1999 (ICPSR 3268)

Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1999-07-01--1999-12-01
The National Nursing Home Survey (NNHS) is a survey of nursing homes and related care facilities in the United States. Between July and December 1999, information regarding facility and financial characteristics was gathered from 1,423 facilities, along with current resident information for 8,215 residents. For Part 1, Facility Questionnaire Data, personal interviews with facility administrators provided information on topics such as certification, availability of beds, and kinds of services provided, including dental, hospice, and nutrition. Part 2, Current Resident Questionnaire Data, provides information on age, race, marital status, level of care, and use of aids such as walkers, hearing aids, and crutches. Part 3, Discharged Resident Questionnaire Data, includes date of admission, reason for discharge, admission diagnosis, discharge diagnosis, assistive devices used, help needed with daily activities, services provided (health, mental health, transportation, social, educational), and payment sources.
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National Nursing Home Survey, 2004 (ICPSR 4651)

Released/updated on: 2007-03-23
Geographic coverage: United States
Time period: 2004-08-01--2004-12-01
The National Nursing Home Survey (NNHS) is a survey of nursing homes and related care facilities in the United States. During 2004, information regarding facility and financial characteristics was gathered from 1,174 facilities, along with current resident information for 13,507 residents, with additional information from 3,017 Nursing Assistants. The 2004 NNHS, conducted between August and December of 2004, was reintroduced into the field after a five-year break, during which time the survey was redesigned and expanded to collect many new data items using the National Nursing Assistant Survey (NNAS), which was sponsored by the Office of the Assistant Secretary for Planning and Evaluation (APSE) and is the first national study of nursing assistants working in nursing facilities in the United States. Facilities (DS 1) information was gathered through personal interviews with facility administrators and provided information on topics such as certification, availability of beds, and kinds of services provided, including dental, hospice, and nutrition. Current Residents (DS 2) information includes questions regarding age, race, marital status, level of care, and use of aids such as walkers, hearing aids, and crutches. Nursing Assistants (Part 3) information looked at the important role of nursing assistants in providing long-term care services for the growing population of the elderly and chronically ill. The NNAS gathered information regarding recruitment, education, training and licensure, job history, and family life, along with client relations, job satisfaction, and workplace environment.
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National Nursing Home Survey Follow-up: Mortality Data, 1984-1990 (ICPSR 6435)

Released/updated on: 1996-01-16
Geographic coverage: United States
Time period: 1984-01-01--1990-01-01
The NATIONAL NURSING HOME SURVEY FOLLOW-UP (NNHSF) (WAVE I, 1987 [ICPSR 9813], WAVE II, 1988 [ICPSR 9838], and WAVE III, 1990 [ICPSR 6142]) is a longitudinal study that followed the cohort of current and discharged residents sampled in the NATIONAL NURSING HOME SURVEY, 1985 (NNHS) (ICPSR 8914). To generate the mortality data for this collection, 12,348 NNHSF records were matched to the National Death Index (NDI) to determine whether the NNHSF subjects who were alive at the last contact had died or if dates of death obtained during the follow-up waves were accurate. Of the 12,348 records sent to NDI for matching, 6,507 matches were found to be true or highly probable matches based on a scoring algorithm developed to determine the quality of the NDI match. These 6,507 records were then matched to the National Center for Health Statistics' Multiple Cause of Death files. Mortality data variables include the residence, marital status, education, race, and age of the decedent and the place and date of death, as well as the underlying cause of death and multiple conditions of death.
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National Nursing Home Survey Follow-Up: Wave I, 1987 (ICPSR 9813)

Released/updated on: 1993-02-12
Geographic coverage: United States
Time period: 1984-01-01--1987-01-01
The National Nursing Home Survey Follow-Up (NNHSF) is a longitudinal study that followed the cohort of current residents and discharged residents sampled in the NATIONAL NURSING HOME SURVEY, 1985 (ICPSR 8914). The NNHSF extends the period of observation of these utilization patterns by approximately five years after the baseline nursing home interview. The primary purpose is to provide data on the flow of persons in and out of long-term care facilities and hospitals. The NNHSF was conducted in three waves. Wave I was administered between August and December 1987, Wave II between July and November 1988 (ICPSR 9838), and Wave III between February and April 1990. Data are available on the subject's vital status, living arrangements, nursing home stays, hospital stays, and source of payment for hospital and nursing home stays.
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National Nursing Home Survey Follow-Up: Wave II, 1988 (ICPSR 9838)

Released/updated on: 1993-02-12
Geographic coverage: United States
Time period: 1987-01-01--1988-01-01
The National Nursing Home Survey Follow-Up (NNHSF) is a longitudinal study that followed the cohort of current residents and discharged residents sampled in the NATIONAL NURSING HOME SURVEY, 1985 (ICPSR 8914). The NNHSF extends the period of observation of these utilization patterns by approximately five years after the baseline nursing home interview. The primary purpose is to provide data on the flow of persons in and out of long-term care facilities and hospitals. The NNHSF was conducted in three waves. Wave I was administered between August and December 1987 (ICPSR 9813), Wave II between July and November 1988, and Wave III between February and April 1990. Data are available on the subject's vital status, living arrangements, nursing home stays, hospital stays, and source of payment for hospital and nursing home stays occurring between the Wave I and Wave II interviews.
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National Nursing Home Survey Follow-Up: Wave III, 1990 (ICPSR 6142)

Released/updated on: 1993-10-11
Geographic coverage: United States
The 1990 National Nursing Home Survey Follow-Up (NNHSF) is part of a longitudinal study that followed the cohort of current residents and discharged residents sampled in the NATIONAL NURSING HOME SURVEY, 1985 (ICPSR 8914). The NNHSF extends the period of observation of these utilization patterns by approximately five years after the baseline nursing home interview. The primary purpose is to provide data on the flow of persons in and out of long-term care facilities and hospitals. The NNHSF was conducted in three waves. Wave I (ICPSR 9813) was conducted between August and December 1987, Wave II (ICPSR 9838) between July and November 1988, and Wave III between January and April 1990. For Wave III, information was collected on vital status, nursing home and hospital utilization since the last contact, current living arrangements, Medicare number, and source of payment. Information concerning the disposition of the subject's home was collected in Section J. Since these questions were only asked in Wave III, the information is not available for subjects who were known to be deceased at the time of the facility contact, the Next Of Kin survey, or Wave I or II of the follow-up. Those eligible for Section J represent a very select subgroup of the original cohort. In addition, 187 residents who were eligible for Section J did not receive the questionnaire because an appropriate respondent could not be identified.
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National Survey of Self-Care and Aging: Follow-Up, 1994 (ICPSR 2592)

Released/updated on: 2006-03-30
Geographic coverage: United States
This follow-up to the NATIONAL SURVEY OF SELF-CARE AND AGING: BASELINE, 1990-1991 (ICPSR 6718) was conducted in 1994 to continue examination of the health status and self-care practices of individuals aged 65 or older who were interviewed at baseline during 1991. Telephone interviews (Part 1) were conducted with individuals who were interviewed at baseline. A proxy was interviewed if the subject was too ill or cognitively unable to respond. Included were questions about the type and extent of self-care behaviors for activities of daily living, management of chronic conditions (through self-care activities, equipment use, and environmental modifications), and medical self-care for acute conditions, along with questions regarding change in health status since baseline, health service utilization, nursing home visits, and sociodemographic/economic status. For subjects who had been institutionalized since baseline (Part 2), interviews were conducted with proxies. Information was gathered regarding demographic status, living arrangements prior to institutionalization, and reasons for institutionalization. For subjects who had died since baseline (Part 3), information was again gathered through interviews with proxies. Questions covered nursing home admissions and date and place of death. Part 4 consists of data from interviews conducted at baseline (ICPSR 6718) merged with interviews conducted at this follow-up.
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Pediatric Home Care: Results of a National Evaluation of Programs for Ventilator-Assisted Children, 1974-1983 (ICPSR 8948)

Released/updated on: 1992-02-16
Geographic coverage: United States
Time period: 1974-01-01--1983-01-01
This collection examines three programs designed to facilitate the discharge of ventilator-assisted children to the home or a homelike alternative. Program personnel, advisory board members, and the primary caregivers of the children were interviewed as part of the evaluation. This study is the first comprehensive and systematic effort of its kind to develop a conceptual and methodological approach to gathering data on this new population of technology-assisted children. The ultimate outcomes examined were the ventilator-assisted child's quality of life, the stress and adaptation experienced by the care- giver(s) and family unit, and the cost-effectiveness of the alternative home care arrangements relative to traditional inpatient care.
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Robert Wood Johnson Foundation Supportive Services for Older Persons Program, 1988-1991: [United States] (ICPSR 9946)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1988-01-01--1991-01-01
This data collection was undertaken to evaluate a Robert Wood Johnson Foundation-funded program that provided nontraditional health and health-related services to the elderly. These services included housekeeping, home maintenance/repair, yard work, snow removal, meal preparation/home-delivered meals, health insurance claims assistance, health education, private-duty nursing, and other caregiver services. The collection comprises data from four sources: (1) administrative data collected upon each client's entry into the program (Intake File, Part 1), (2) administrative data describing the services provided to each client (Service Encounter Files, Parts 2-6), (3) data from a survey of the clients of the program (Client Survey, Part 7), and (4) data from a survey of low-income clients of the program who received help from the state Administration on Aging (AOA) (AOA Client Survey, Part 8). The Intake File includes information on living arrangements, household income, date of birth, health status, activity limitations, and whether assistance with household and personal chores was provided by friends, relatives, or organizations. Service Encounter Files contain data on the cost and type of each service rendered by the program. The Client Survey and the AOA Client Survey assess the impact of the program on the quality of clients' lives. Clients were queried regarding their use of program services, the impacts of the services used, and their use of services from alternative suppliers.
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Robert Wood Johnson Foundation Supportive Services Program in Senior Housing, Tenant Characteristics and Service Use, 1990-1991: [United States] (ICPSR 6013)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1990-05-01--1991-10-01
These data describe tenants of subsidized elderly housing who used services provided by the Robert Wood Johnson Foundation Supportive Services Program in Senior Housing (RWJF SSPSH), and document use of these services. Services provided by the RWJF SSPSH program included housekeeping, transportation, meals, running errands, assistance with forms, personal care, and home health care. Three types of data comprise this collection: (1) participant information taken at first service delivery (Part 1), (2) administrative logs describing services delivered to each client (Parts 2-7), and (3) information on each site participating in the program (Part 8). Information about the participants includes age, gender, living arrangements, monthly income, health status, ability to do light and heavy tasks, and ability to do personal tasks. Information on service delivery includes the type and amount of each service delivered, whether the tenant paid for the service, how the service was funded, and the quarter in which the service was delivered. Site information includes subsidy type, building start date, type of location (urban, suburban, or rural), and whether the site had a full- or part-time service coordinator.
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Partially restricted

Springfield [Massachusetts] Study of Populations with Disabilities, 1993-1997 (ICPSR 2623)

Released/updated on: 2024-02-14
Geographic coverage: United States, Massachusetts, Springfield
This two-wave longitudinal survey of persons with disabilities in Springfield, Massachusetts, had four research objectives: (1) to determine levels of formal and informal service use among people with disabilities in Springfield, (2) to determine the prevalence and consequences of unmet needs for assistance with activities of daily living (ADLs) and instrumental activities of daily living (IADLs), (3) to test the hypothesis that residents reporting unmet needs for assistance with daily living activities at baseline would have higher levels of emergency room use and hospitalization over the follow-up period than respondents not reporting such needs, and (4) to assess respondents' satisfaction with access to and quality of their health care and health care providers. Conducted in 1993-1994 and 1996-1997, the survey gathered information on health, health service utilization, satisfaction with health services, assistance with ADLs (eating, dressing, bathing, toileting, transferring in and out of bed/chair, and moving around indoors) and IADLs (preparing meals, shopping for groceries and household supplies, housekeeping, transportation, and financial management), social and physical activity, social support, health care coverage, and sociodemographic characteristics such as income, year of birth, marital status, race, Hispanic origin, religion, education, and employment.
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Simple Crosstabs

Survey of Consumer Attitudes and Behavior, October 2009 (ICPSR 35426)

Released/updated on: 2016-01-06
Geographic coverage: United States
Time period: 2009-09-01--2009-10-01
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2009 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Also explored in this survey were savings and financial investments, loan use, family income, retirement planning, health care, general feelings and mental health, senior living, and mortgages. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.