Addiction Health Evaluation and Disease (AHEAD) Management Study in Boston, Massachusetts, 2006-2010 (ICPSR 33581)
Substance dependence (SD) is a chronic disease that requires specialty drug and alcohol treatment, primary care (PC), and management of related problems. Although patients with SD may be linked with specialty care and PC, their health care often remains episodic and fragmented, rather than longitudinal, comprehensive, integrated, and coordinated. As a result, adults with SD often enter addiction treatment later and require acute medical care, rather than entering the system earlier when interventions of lower intensity but longer duration might prevent catastrophes. Chronic disease management (CDM) is a collaborative, longitudinal approach to treatment of certain chronic medical illnesses proven to be more effective than routine care. CDM addresses individual patient and health systems barriers to receipt of needed treatment. However, the effectiveness of CDM for SD has not been tested. The objective of this Addiction Health Evaluation and Disease management (AHEAD) study, was to test the effectiveness of CDM for SD in PC.
Subject identification and recruitment occurred primarily at a local detoxification center, as well as by self and physician referral from the Boston Medical Center primary and ambulatory care clinics, emergency department, urgent care center, inpatient settings, and the community. The study enrolled 320 adults with drug dependence and 320 adults with alcohol dependence who were not in SD treatment, and randomized them to a SD CDM program (the AHEAD Clinic) integrated into a real-world PC clinic or to referral to standard PC. All subjects were assessed regarding SD diagnosis, substance use and problems, readiness to change, health-related quality of life, and medical and drug treatment utilization. Subjects were evaluated 3, 6, and 12 months later, and health services utilization data were collected for 2 years from a statewide database. Additionally, in order to better understand and explain the implementation and fidelity of the AHEAD Clinic, the primary care providers (PCPs) of AHEAD Clinic patients were surveyed. Each PCP was presented with a letter from the Principal Investigator explaining the purpose of the survey, the reason why s/he was being asked to complete the survey, compensation for completing the survey, and details about confidentiality and anonymity. The survey itself consisted of questions asking providers about their satisfaction and their attitudes towards caring for patients with alcohol and drug problems, their knowledge of services that the AHEAD Clinic provides, and their experience working with the AHEAD Clinic.
Primary outcomes were illicit drug use, alcohol use, substance-related problems, emergency department visits, and hospitalizations. The proposal's hypothesis was that compared with standard care, a health services delivery intervention (CDM for SD integrated in PC) would decrease alcohol and illicit drug use and related problems, and improve health care utilization patterns. Improved outcomes using the AHEAD approach would support the adoption of a health services delivery strategy, CDM, to better care for patients with SD.
- Dataset 1: 844 variables; 563 cases
- Dataset 2: 607 variables; 500 cases
- Dataset 3: 607 variables; 487 cases
- Dataset 4: 713 variables; 532 cases
- Dataset 5: 80 variables; 549 cases
- Dataset 6: 59 variables; 1,435 cases
- Dataset 7: 25 variables; 87 cases
- Dataset 8: 25 variables; 87 cases
- Dataset 9: 41 variables; 73 cases
- Dataset 10: 9 variables; 11,018 cases
- Dataset 11: 5 variables; 511 cases
Arrestee Drug Abuse Monitoring Program II in the United States, 2007 (ICPSR 25821)
Arrestee Drug Abuse Monitoring Program II in the United States, 2008 (ICPSR 27221)
Assessment of a Program of Public Information on Health Care Reform, 1992-1993: [Wichita, Kansas, and Des Moines, Iowa] (ICPSR 6066)
Developmental Pathways of Teen Dating Violence in a High-Risk Sample, Erie County, New York, 2013-2015 (ICPSR 36430)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
This study examined etiological pathways to teen dating violence (TDV) in a sample of adolescents who had been followed since infancy and were at high-risk due to parental alcohol problems. Adolescents (M=17.68 years of age) who had been participating, along with their parents, in a longitudinal study of the effects of parental alcohol problems on child development completed an additional wave of survey data in 11-12th grades. Families (N=227) were initially recruited from county birth records when the child was 12 months of age and had been previously assessed at 12-, 18-, 24-, 36-months, kindergarten, 4th, 6th, and 8th grades. For the current wave of data collection, adolescent participants (n=185) used computer-assisted interviewing to complete questionnaires assessing their individual characteristics, family and peer relationships, substance use, dating behaviors and involvement in TDV as a victim or perpetrator.
Effect of Prison Based Alcohol Treatment: Treatment and Recidivism Data from Montana, Ohio, and Texas, 2006-2012 (ICPSR 34928)
This study evaluated program design, quality of treatment delivery, and program effectiveness of three separate state sponsored alcohol specific treatment programs in prisons located in Montana, Ohio, and Texas from 2006 to 2012.
Euro-Barometer 32: The Single European Market, Drugs, Alcohol, and Cancer, November 1989 (ICPSR 9519)
The Great Smoky Mountains Study (GSMS): Alcohol, Cannabis, Depression Disorders, North Carolina, 1992-2003 (ICPSR 37221)
The Great Smoky Mountain Study (GSMS) is a longitudinal epidemiological study of 1,420 children begun in 1992 in 11 rural counties in western North Carolina. Originally, the study had three aims: 1) to estimate the prevalence of common psychiatric disorders; 2) to study their development over time; and 3) to determine the level of mental health service use. The study expanded over time to include correlates and predictors of substance abuse and psychiatric problems. The study continued for over 20 years, with the original participants assessed up to 11 times from ages 9 to 30 (over 11,000 assessments total).
This collection includes data from study modules related to alcohol, cannabis, and depressive disorders in addition to core data on participants. This core data includes demographic variables related to age, sex, socioeconomic status, and race.
Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 9, 2016 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 39038)
The Hispanic EPESE provides data on risk factors for mortality and morbidity in older Mexican Americans in order to contrast how these factors operate differently than in non-Hispanic Whites, African Americans, and other major ethnic groups.
The Wave 9 dataset comprises the eighth follow-up of the baseline Hispanic Established Populations for the Epidemiologic Studies of the Elderly, 1993-1994: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 2851). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five Southwestern states of Arizona, California, Colorado, New Mexico, and Texas.
The public-use data covers demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health behaviors, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups allow examination of the predictors of mortality, changes in health outcomes, institutionalization, changes in living arrangements, as well as changes in life situations and quality of life.
During this 9th Wave (Dataset 1), 2016, 480 re-interviews were conducted either in person or by proxy, with 283 of the original respondents interviewed in 1993-1994. This Wave also includes 197 re-interviews from the 902 new respondents added at Wave 5 in 2004-2005. All respondents were aged 85 and over at Wave 9.
The Wave 9 Informant Interviews dataset (Dataset 2) includes data from interviews with 460 respondents who provided information on themselves as well as the older respondents. The older respondents were asked to provide the name and contact information of the person they are "closer to" or they "depend on the most for help." These INFORMANTS, many of whom provide caregiving support to the older respondents, were contacted, and interviewed regarding the health, function, social situation, finances, and general well-being of the older Hispanic EPESE respondents. Information was also collected on the informant's health, function, and caregiver responsibilities and burden. This dataset includes information from the 460 informants, more than two-thirds of whom were children of the respective respondents. Thus, there are 460 respondent-informant dyads that provide opportunities for caregiving research.
The Iowa Adoption Studies, 1975-2008 (ICPSR 34369)
The Iowa Adoption Studies were conducted between 1975 and 2008. The group of studies consist of 5 independent waves of data collection each of which examined genetic (biological) and environmental influences on psychopathology. The adoption paradigm allowed separation of genetic and environmental influences on behavior, as well as joint influences due to gene x environment interaction. Adoptees were interviewed about lifetime psychopathology including substance abuse and dependence, antisocial personality, and mood disorders. A follow-up study was conducted from 2000-2004 that recruited all previous participants and natural offspring of the adoptive parents when available. Standardized psychiatric assessments were administered along with measures of personality disorders and traits, retrospective reports on childhood experiences with adoptive parents, and current symptomatology. An extensive neurocognitive assessment was conducted on a subset of participants who had standardized school achievement scores. The goal of this last wave of assessment was to evaluate the influence of substance use on mid-life cognition and health.
The respondents were assessed using a number of different surveys over the study period. The following describes the notable variables as well as descriptions of the surveys included in the dataset.
The first variables in the dataset identify sibling pairs and provides data on whether the respondents' biological parents suffered from mental health or substance abuse issues. Next birth records are provided that give basic information about the health of the person when he or she was born. This information is followed by the survey results of "The Schedule for Nonadaptive and Adaptive Personality" (SNAP) as well as variables that reflect the diagnosis of personality disorders and nonadaptive personality traits based on the SNAP survey responses.
The next section includes responses from "The Iowa Personality Disorder Screen," a quick personality disorder screen developed in 1999 intended for use in clinical and research settings.
Next, responses to Pearson Assessments "Brief symptoms inventory" are included as well as the scores calculated based on these survey responses. The results of this survey assess the mental state of the patient including scales on Somatization, Obsessive-Compulsive, Interpersonal Sensitivity, Depression, Anxiety, Hostility, Phobic Anxiety, Paranoid Ideation and Psychoticism.
The respondents also completed the "Buss-Durkee Hostility Questionnaire" and were assessed on measure regarding the following hostility traits: negativism, resentment, indirect hostility, assault, suspicion, irritability and verbal hostility.
Reponses to the "The Social Provisions Scale" survey are also included. The purpose of this survey is to assess the relationship the respondents have to other people. The 6 social provisions assessed include: guidance, reliable alliance, reassurance of worth, attachment, social integration, and opportunity for nurturance.
"The Parental Bonding Instrument" instrument was utilized to assess the respondents' relationships to their mothers and fathers.
A series of cognitive tests were administered to respondents. ICPSR is unable to provide the survey instruments used in the cognitive test due to copy write issues. These tests include:
Controlled Oral Word Association Test (COWAT)
North American Adult Reading Test (NAART)
Rey Figure and Rey Complex Figure Test and Recognition Trial (RCFT)
Shipley Institute of Living Scale (SILS)
Stroop Color and Word Test (SCWT)
Tower of Hanoi (TofH)
Comprehensive Trailmaking Test (CTMT)
Weschler Adult Intelligence Test (WAIS)
Weschler Memory Test (WMS)
The dataset also includes respondents' results of the Comprehensive Performance Test (CPT) and the Iowa Gambling Task (IGT)
Scores from the "Iowa Test of Basic Skills," a test of academic achievement that evaluates students knowledge in subjects including, mathematics, reading comprehension, and science, are included in the dataset. Respondents are evaluated in grades 4, 8 and 11.
The final section of the dataset includes two waves of the "Semi Structured Assessment for the Genetics of Alcoholism," a survey intended to assess the physical, psychological, and social manifestations of alcohol abuse. These survey responses make up the bulk of the dataset and include variables on a variety of topics including: demographics, medical history, substance use, eating disorders, depression, dysthymia, mania, ASP, suicide, PTSD, generalized anxiety disorder, OCD, social phobia, agoraphobia, panic disorder, home environment, gambling, and ADHD. Substances use investigated includes alcohol, tobacco, marijuana, sedatives, stimulants, cocaine, opiates, solvents, hallucinogens, and other drugs.
This dataset includes 934 cases and 9,370 variables.
Los Angeles Metropolitan Area Surveys [LAMAS] 7, 1973 (ICPSR 36604)
The Los Angeles Metropolitan Area Surveys [LAMAS] 7, 1973 collection reflects data gathered in 1973 as part of the Los Angeles Metropolitan Area Studies (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.
The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey cover respondents' attitudes toward the following topics: community and public services, local government politics, political efficacy, residential mobility, and integration of their neighborhood. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional question topics include: travel time to work, number of vehicles, means of transportation, and alcohol use, as well as drinking and driving.
Demographic variables in this collection include sex, age, race, ethnicity, education, occupation, income, religion, marital status, birth place, and housing type.
Los Angeles Metropolitan Area Surveys [LAMAS] 8, 1974 (ICPSR 36614)
The Los Angeles Metropolitan Area Surveys [LAMAS] 8, 1974 collection reflects data gathered in 1974 as part of the Los Angeles Metropolitan Area Surveys (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.
The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey cover respondents' attitudes toward the following topics: commute times, means of transportation, and trust in government. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional topics include: mental health and psychological factors, access to medical care, alcoholism, the energy crisis, and attitudes towards black-owned businesses.
Demographic variables in this dataset include age, sex, marital status, ethnicity, education, income, occupation, political party affiliation, and language.
Project on Human Development in Chicago Neighborhoods (PHDCN): Alcohol Use Follow-Up, Wave 3, 2000-2002 (ICPSR 13677)
Project on Human Development in Chicago Neighborhoods (PHDCN): Alcohol Use, Wave 3, 2000-2002 (ICPSR 13673)
Project on Human Development in Chicago Neighborhoods (PHDCN): Short Michigan Alcohol Screening Test, Wave 2, 1997-2000 (ICPSR 13657)
Relationship of Mental Disorder to Violent Behavior in the United States, 1983-1984 (ICPSR 9973)
Traditional Healers in South Africa, 2014-2015 (ICPSR 37030)
This study contains data from a combination of 27 in-depth interviews and 133 surveys from a randomly-selected sample of traditional healers living and working in rural, northeastern South Africa. Participating healers were primarily female (77%), older in age (median: 58.0 years) with very little formal education (median: 3.7 years) and had practiced traditional medicine for many years (median: 17 years).
The interviews were conducted to identify treatment practices of mental, neurological, and substance abuse (MNS) disorders.