Aligning Forces for Quality Evaluation: Consumer Survey Round 1, 2007-2008 and 2010 (ICPSR 35259)
Version Date: Feb 14, 2024 View help for published
Principal Investigator(s): View help for Principal Investigator(s)
Dennis Scanlon, Pennsylvania State University
https://doi.org/10.3886/ICPSR35259.v2
Version V2 (see more versions)
Summary View help for Summary
This survey was conducted as part of the evaluation of the Aligning Forces for Quality (AF4Q) initiative, the Robert Wood Johnson Foundation's signature effort to lift the overall quality of health care in 17 targeted communities, reduce racial and ethnic disparities and provide models of national reform. The survey was administered to adults with one or more of five chronic illnesses -- diabetes, hypertension, heart disease, asthma and depression -- in the AF4Q communities and a national sample residing in non-AF4Q communities to provide a basis for comparison between the AF4Q communities and the rest of the United States. Survey questions focused on patient activation; consumer knowledge of publicly available performance reports that highlight quality differences among physicians, hospitals, and health plans; the ability to be an effective consumer in the context of a physician visit; patient knowledge about her/his illness; skills and willingness to self-manage one's illness; the impact of insurance and payment models; and the relationship between out-of-pocket costs and health care utilization.
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Restrictions View help for Restrictions
As explained in the ICPSR Processing Notes in the codebook, ICPSR restricted many variables from general dissemination for reasons of confidentiality. Users interested in obtaining the restricted data must complete an Agreement for the Use of Confidential Data, specify the reasons for the request, and obtain IRB approval or notice of exemption for their research. Apply for access to the restricted data through the ICPSR restricted data contract portal, which can be accessed via the study home page.
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Data Collection Notes View help for Data Collection Notes
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Additional information about Aligning Forces for Quality is available on the AF4Q website.
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The survey instrument is copyrighted. The instrument includes the Patient Activation Measure (PAM) module which is copyrighted separately. PAM is a commercial product which assesses an individual's knowledge, skill and confidence for managing one's health and healthcare. Use of the PAM module requires a license provided by Insignia Health. Users may examine the copy of the survey instrument and PAM module provided in the codebook without obtaining a license.
Sample View help for Sample
The survey was administered in 14 AF4Q communities and the national comparison sample in 2007-2008 (Round 1.1) and three additional AF4Q cities in 2010 (Round 1.2). The Round 1.1 communities are Greater Cincinnati; Cleveland, Ohio; Detroit, Michigan; Humboldt County, California; Kansas City, Missouri; the State of Maine; Memphis, Tennessee; the State of Minnesota; Puget Sound, Washington; Willamette Valley, Oregon; Western Michigan; Western New York State; the State of Wisconsin; and York County, Pennsylvania. The Round 1.2 cities are Albuquerque, New Mexico; Boston, Massachusetts; and Indianapolis, Indiana. Respondents were sampled using random digit dialing and directory listed samples. Asians, African-Americans, and Hispanics were oversampled. Round 1.1 covered only landline phones while Round 1.2 covered both landline and cell phones.
Universe View help for Universe
Adults 18 years of age or older with one or more of five chronic conditions -- diabetes, hypertension, heart disease, asthma and depression -- and had seen a health care provider for that condition within two years prior to the interview date.
Data Type(s) View help for Data Type(s)
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Response Rates View help for Response Rates
The response rates in the AF4Q markets and national comparison sample were 21-41 percent (American Association of Public Opinion Research Response Rate 4).
Presence of Common Scales View help for Presence of Common Scales
Patient Activation Measure
HideOriginal Release Date View help for Original Release Date
2016-08-22
Version History View help for Version History
2024-02-14 Online variable search capabilities have been added for this study.
2018-02-15 The citation of this study may have changed due to the new version control system that has been implemented. The previous citation was:
- Scanlon, Dennis. Aligning Forces for Quality Evaluation: Consumer Survey Round 1, 2007-2008 and 2010. ICPSR35259-v2. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2024-02-14. http://doi.org/10.3886/ICPSR35259.v2
2016-08-22 ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:
- Checked for undocumented or out-of-range codes.
B. Including yourself, how many people in your household are 18 years old or older?
B1A. Can you please tell me, how long ago were you told that you had Diabetes or high blood sugar?
B1B. Can you please tell me, how long ago were you told that you had Hypertension or high blood pressure?
B1C. Can you please tell me, how long ago were you told that you had heart disease?
B1D. Can you please tell me, how long ago were you told that you had Asthma?
B1E. Can you please tell me, how long ago were you told that you had Depression?
B29_13. In the past 12 months, did your doctor or nurse arrange for you to see or attend any of the following for help to improve your health?
B29_14. In the past 12 months, did your doctor or nurse arrange for you to see or attend any of the following for help to improve your health?
BMI
BMI category
C1. Now thinking about your telephone use, is there at least one telephone INSIDE your home that is currently working and is not a cell phone?
C2. Of all the telephone calls that you and the other people in your household receive, are (READ ITEMS)?
Design Weight
Email. Do you have an email address that we could use to contact you?
Email: Do you have an email address that we could use to contact you?
Employed
Final weight variable for 2010 survey (balanced to sample size)
Final weight variable for 2010 survey (projected to the population)
Has at least one chronic condition
Height (m)
How old were you when you arrived USA?
I23_10. Why did you not use the information?
I25. Do you use the Internet at any location?
I26. How often do you use the Internet?
I27a. Now, we'd like to ask if you've looked for information ONLINE about certain health or medical issues. In the past 12 months, have you looked ONLINE for Information about a specific disease or medical problem
I27b. Now, we'd like to ask if you've looked for information ONLINE about certain health or medical issues. In the past 12 months, have you looked ONLINE for Information about a certain medical treatment or procedure
I27c. Now, we'd like to ask if you've looked for information ONLINE about certain health or medical issues. In the past 12 months, have you looked ONLINE for Information about diet, nutrition, vitamins, or nutritional supplements
I27d. Now, we'd like to ask if you've looked for information ONLINE about certain health or medical issues. In the past 12 months, have you looked ONLINE for Information about exercise or fitness
I27e. Now, we'd like to ask if you've looked for information ONLINE about certain health or medical issues. In the past 12 months, have you looked ONLINE for Information about prescription or over the counter drugs
I27f. Now, we'd like to ask if you've looked for information ONLINE about certain health or medical issues. In the past 12 months, have you looked ONLINE for Information about immunizations or vaccinations
I27g. Now, we'd like to ask if you've looked for information ONLINE about certain health or medical issues. In the past 12 months, have you looked ONLINE for Information about how to quit smoking
I27h. Now, we'd like to ask if you've looked for information ONLINE about certain health or medical issues. In the past 12 months, have you looked ONLINE for Information about a particular doctor
I27i. Now, we'd like to ask if you've looked for information ONLINE about certain health or medical issues. In the past 12 months, have you looked ONLINE for Information about a particular hospital
I27j. Now, we'd like to ask if you've looked for information ONLINE about certain health or medical issues. In the past 12 months, have you looked ONLINE for Information related to health insurance
In National Sample (1=yes)
J1. Last week were you employed full-time, part-time, going to school, retired, keeping house, or something else? OTHER (SPECIFY)
J11a_11. Earlier you said you are Hispanic or Latino/a. What specific ethnic group are you, such as Mexican, Puerto Rican, Cuban, Dominican, Salvadoran? If you are more than one, tell me all of them.
J11a_12. Earlier you said you are Hispanic or Latino/a. What specific ethnic group are you, such as Mexican, Puerto Rican, Cuban, Dominican, Salvadoran? If you are more than one, tell me all of them.
J12_7. Earlier you said you are Asian. What specific ethnic group are you, such as Chinese, Filipino, Vietnamese? If you are more than one, tell me all of them.
J12_8. Earlier you said you are Asian. What specific ethnic group are you, such as Chinese, Filipino, Vietnamese? If you are more than one, tell me all of them.
J12_9. Earlier you said you are Asian. What specific ethnic group are you, such as Chinese, Filipino, Vietnamese? If you are more than one, tell me all of them.
J3. Including all jobs, how many hours do you typically work each week? 998 Don't know 999 Refused
J7. (ENTER WEIGHT RANGE, 31kg - 182kg)
J7. (ENTER WEIGHT, RANGE 70lbs - 400lbs)
J8A. (RECORD CENTIMETERS, RANGE 0cm - 99cm)
J8A. (RECORD METERS, RANGE 1m - 3m)
L1. How would you rate your ability to speak and understand English?
L1. Thinking about your telephone use. Does anyone in your household, including yourself, have a working cell phone?
L2. What language do you feel most comfortable speaking with your doctor or nurse?
L2. Of all the telephone calls that you and the other people in your household receive, are (READ ITEMS)?
Notes
The public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.
One or more files in this data collection have special restrictions. Restricted data files are not available for direct download from the website; click on the Restricted Data button to learn more.