Adolescent Substance Abuse Prevention Study (ASAPS), 2001-2006 [Detroit, Houston, Los Angeles, Newark, New Orleans, St. Louis] (ICPSR 28641)
The Adolescent Substance Abuse Prevention Study (ASAPS) was a randomized field trial designed to test the effectiveness of a new school-based substance abuse prevention program called Take Charge of Your Life (TCYL). The program consisted of two curricula, one for middle schools and the other for high schools, which were delivered through the Drug Abuse Resistance Education network of law enforcement officers (D.A.R.E.). TCYL was developed building on existing D.A.R.E. seventh/eighth grade and tenth/eleventh grade curricula and applied principles and strategies suggested by published literature on effective drug abuse prevention programming and effective middle and high school curricula design. ASAPS was conducted among a 2001-2002 multi-site cohort of seventh graders who were followed for five years until the 2005-2006 school year when they were in the eleventh grade. The first TCYL curriculum was delivered in the treatment schools when the students were in seventh grade and the second was delivered when they were in the ninth grade.
Over the five-year study period, the treatment and control students responded to seven self-administered surveys: (1) at baseline in the seventh grade, (2) post-intervention in the seventh grade, (3) in the eighth grade, (4) pre-intervention in the ninth grade, (5) post-intervention in the ninth grade, (6) in the tenth grade, and (7) in the eleventh grade. Topics covered by the surveys include normative beliefs, social skills, attitudes toward drug use, and self-reported use of alcohol, tobacco, marijuana, and other illicit drugs. The ASAPS data also include measures of implementation fidelity of the seventh and ninth grade TCYL curricula, which were obtained from trained observers who rated the D.A.R.E. officers' delivery in the classroom. The fidelity measures encompass content coverage and instructional strategy.
This data collection comprises two data files, both with public- and restricted-use versions. The first (the Main Data File) contains the students' survey responses and the seventh grade curriculum fidelity measures, while the second (the 9th Grade Officer Observations Data) contains the ninth grade curriculum fidelity measures.
American Health Values Survey (AHVS): Sentinel Communities Segmentation, 5 American communities, 2016-2017 (ICPSR 37910)
The American Health Values Survey (AHVS) was conducted by the National Opinion Research Center (NORC) at the University of Chicago in order to develop a typology of Americans based on their health values and beliefs. The survey, of more than 10,000 adults from five individual communities, examined values and beliefs related to health at both the individual as well as societal levels. The community surveys sought to compare differences between the local typologies, but also to investigate any similarities with national typology groups. The survey assessed the importance of health in:
- day-to-day personal life (i.e. the amount of effort spent on disease prevention as well as appropriate seeking of medical care);
- equity, the value placed on the opportunity to succeed generally in life as well as on health equity;
- social solidarity, the importance of taking into account the needs of others as well as personal needs;
- health care disparities, views about how easy/hard it is for African Americans, Latinos and low-income Americans to get quality health care;
- and, the importance of the social determinants of health.
In addition, the survey also explored views about how active government should be in health; collective efficacy, the ease of affecting positive community change by working with others; and health-related civic engagement e.g. the support of health charities and organizations working on health issues.
There are public-use and restricted-use versions of the data provided for each of the five sentinel communities participating in this study. Although each site differs on the number of respondents as listed below, each data file contains the same 143 variables for each site and version of the data. The only difference between the public-use versus restricted-use versions of the data is the variable ZIP, which was MASKED in the public-use version.
- DS1 and DS2 - Baltimore, Maryland: 2,139
- DS3 and DS4 - Maricopa County, Arizona: 2,247
- DS5 and DS6 - Stockton, California: 2,127
- DS7 and DS8 - Mobile, Alabama: 1,821
- DS9 and DS10 - North Central counties in Nebraska: 2,846
American Health Values Survey II, [United States], 2019-2020 (ICPSR 38818)
The Robert Wood Johnson Foundation (RWJF) has a vision to build a Culture of Health (CoH) by making health a shared national priority, one valued and advanced by multiple stakeholders across all sectors of society. This vision embraces a very broadly integrated and comprehensive approach to health, one where well-being lies at the center of every aspect of American life. In 2014, the RWJF commissioned NORC at the University of Chicago to plan and conduct the first American Health Values Survey (AHVS) to understand the extent to which United States adults held views consistent with this vision. The idea was to explore which types of United States adults were more supportive and less supportive of the goal and what the differences were between the more and less supportive groups. To aid in the understanding of these differences, NORC developed a typology of United States adults based on their values and beliefs related to the CoH vision.
Using a large-scale national survey fielded in late 2015 and early 2016, NORC identified six major segments of the population of adults in the United States based on their differing health values and beliefs and developed detailed profiles of each segment that described their pattern of values and beliefs as well as their demographic, political and other characteristics. NORC subsequently replicated the typology development work in five RWJF Sentinel Communities across the nation and also developed a typology of rural America. The same segments, or similar ones, were common across various geographic areas of the United States. Four years have since passed, in which changes occurred in the country. RWJF in 2019 commissioned NORC to conduct a second national, cross-sectional survey (AHVS II) in late 2019 and early 2020.
American Health Values Survey, [United States], 2015-2016 (ICPSR 37403)
Culturally Focused Psychiatric Consultation Service For Massachusetts General Hospital's Asian American and Latino American Primary Care Patients with Depression, 2009-2011 (ICPSR 34495)
This randomized controlled trial evaluated a culturally appropriate intervention to improve the recognition and treatment of depression among Asian and Latino American primary care patients at Massachusetts General Hospital (MGH), using a culturally focused psychiatric (CFP) consultation with a team of mental health providers who were bilingual/bicultural, trained in culturally competent techniques, and familiar with the cultures and languages of the patients served. Targeted minority patients who screened positive for clinical depression were eligible to participate in the trial. The intervention patients were offered the CFP consultation at baseline and, if eligible, received the CFP patient toolkit as part of their treatment. The toolkit provided psychoeducation and tools for managing depression as well as information on community resources. The usual care patients were offered standard referrals to MGH mental health resources.
Questionnaires were administered to the patients at screening, baseline, two-week follow-up, and six month follow-up. The screening questionnaires included the two-item Public Health Questionnaire (PHQ-2) and demographic questions. Assessment measures administered to the intervention patients at baseline included the Mini International Neuropsychiatric Interview (MINI), Quick Inventory of Depressive Symptomatology-Self Rated Scale (QIDS-SR 16), Global Assessment of Functioning (GAF), Schwartz Outcome Scale (SOS-10), and a demographic questionnaire and resource utilization questionnaire. At six month follow-up, the intervention arm was administered a resource utilization questionnaire, patient satisfaction questionnaire (Treatment Satisfaction Scale), qualitative interview, and the QIDS-SR 16 and SOS-10. The SOS-10 was also administered to the intervention patients at two-week follow-up. In the usual care arm, the QIDS-SR 16 and resource utilization questionnaire was administered at baseline and six months, the qualitative interview at six months, and the demographic questionnaire at baseline or six-months. There was no two-week assessment for the usual care patients. Electronic medical record review was used for both arms at baseline and six months, as needed. In addition, qualitative interviews were conducted with project and practice staff at the end of the study.
The data file includes the responses to the questionnaires and variables describing the CFP consultation assessment (DSM-IV Axis I, II, III, IV, and V diagnoses), treatment recommendations made to the patients' primary care physicians (PCPs) after the CFP consultation, and study staff contacts with the patients' PCPs and mental health providers. ICPSR did not receive the data from the qualitative interviews or electronic medical record reviews.
Evaluation of Better Jobs Better Care: Direct Care Worker Survey, 2004-2007 [Iowa, North Carolina, Oregon, Pennsylvania, Vermont] (ICPSR 29064)
Funded by the Robert Wood Johnson Foundation and The Atlantic Philanthropies, Better Jobs Better Care (BJBC) was a demonstration program that sought to bring about changes in public policy and management practice that would lead to improved recruitment and retention of high-quality paraprofessional direct care workers (DCW) in nursing homes as well as in home- and community-based settings. This was to be accomplished by implementing both policy and management practice goals. Policy goals included developing initiatives related to wages and benefits, incentives for job redesign, curriculum and credentialing, professional associations, and promotion of public awareness and policies. Practice goals involved interventions related to caregiving skill development, peer mentoring, team building, top management training, supervisor training, and provider-specific interventions. The program established demonstration projects in Iowa, North Carolina, Oregon, Pennsylvania, and Vermont which enrolled long-term care establishments across the spectrum of long-term care settings: skilled nursing facilities, assisted living facilities, home care agencies, and adult day service providers.
Conducted as part of the BJBC evaluation, this survey interviewed DCWs at two points during the demonstration. The Time 1 interview was fielded as soon as establishments enrolled in the demonstration and provided a list of their DCWs (July 2004 to December 2006), and the Time 2 interviews were completed 12 to 28 months after the Time 1 interviews (April 2006 to June 2007). Both rounds of the survey used the same self-administered questionnaire which included questions about length of employment, job satisfaction, job rewards and problems, supervision, perceptions of quality of care, job confidence, training, intent to quit, and demographic characteristics. The survey also elicited recommendations for improving DCWs' jobs by asking the open-ended question "What is the single most important thing your employer could do to improve your job as a direct care worker?"
Evaluation of the Balance Calories Initiative, 2016 Baseline, Alabama and Mississippi (ICPSR 37110)
The Evaluation of the Balance Calories Initiative collection includes datasets consisting of intercept interviews of adults and adolescents regarding their beverage consumption. This data was collected as part of an evaluation of the Balance Calories Initiative (BCI) campaign. The BCI is a campaign launched by the top three American beverage companies (Coca-Cola, Dr Pepper, and Pepsi) to help Americans reduce their consumption of sugar from beverages, especially through increasing interest in low- and no-calorie beverages. The BCI began in 2015, and was introduced to the Mississippi Delta region and Montgomery, Alabama in 2016. Researchers conducted point-of-purchase interviews in the South Delta and Montgomery communities to study the BCI campaign progress in predominantly low-income neighborhoods. Two non-BCI comparison communities matched by population and socio-demographic composition in the region, the North Delta of Mississippi and Birmingham, AL, were also included. Participants were recruited outside of retail food outlets, primarily grocery stores and big box stores, but also restaurants and convenience stores.
Demographic information in this collection include sex, age, race, education level, employment status, marital status, and categorical income.
Helping Young Smokers Quit: Identifying Best Practices for Tobacco Cessation, Phase II National Program Evaluation, 2003-2006 (ICPSR 33161)
The Helping Young Smokers Quit (HYSQ) initiative was a multi-phase project that addressed the critical need to disseminate effective, developmentally appropriate cessation programs for young smokers. Phase I identified and described tobacco treatment programs available for youth in the United States, Phase II evaluated smoking secession programs tailored for youth to help understand what works, and Phase III identified factors associated with program sustainability. Phase II collected data from five sources: (1) program participants, (2) program providers, (3) program curricula, (4) organizational leaders, and (5) community leaders and community ordinances.
Program participants were interviewed at baseline, end-of program, 6-month follow-up, and 12-month follow-up. Topics covered by the interviews include age, gender, race, Hispanic origin, language spoken at home, employment, income, religiosity, school enrollment, education level, school grades, height, weight, extracurricular activities, recreation, sports, exercise, aspirations after high school, psychological well-being, alcohol consumption, cigarette use and use of other tobacco products, attitudes about smoking, plans to stop/continue smoking, attempts to quit smoking, reasons for participating in the program, topics/issues covered by the program, opinions about the program, and smoking experience since the beginning of the program. In addition, for each follow-up survey, the participants provided a breath sample for carbon monoxide analysis to validate self-reported quit status.
After the last session of each program delivery, the program providers, such as program leaders and cessation counselors, were interviewed about the content and delivery of the program and the reactions of the participants and themselves to the program as delivered. The program providers also kept attendance records.
Curriculum content was abstracted from program manuals and other materials used in each program.
Organizational leaders of the organizations that offered the programs were surveyed about various aspects of each organization, including the organization's smoking cessation program and the organization's mission, general operations, and smoking-related policies and practices.
Community-level information was collected in two ways: (1) interviews of community leaders representing local health departments, school boards, and juvenile justice offices, and (2) archival research of public ordinances relevant to tobacco and control policies.
Nine data files/datasets constitute the data. Datasets 1-4 contain the participant questionnaire data, carbon monoxide measurement data, and program attendance data. Dataset 5 comprises information about each program and its curriculum, some information about the community in which the program was located, and summary data about enforcement of tobacco-related ordinances. Dataset 6 contains information about about the program providers and each program delivery, including recruitment, logistics, content, and the reactions of providers and participants. Dataset 7 covers administrative aspects of the smoking cessation programs and each offering organization's mission, general operations, and smoking-related policies and norms. Dataset 8 contains information about local and state-level tobacco-related ordinances for every state and local jurisdiction where each program was located, and Dataset 9 condenses the information in Dataset 8 into one summary record for each community. The unit of observation for Datasets 1-4 is the participant, for Datasets 5 and 7 the smoking cessation program/offering organization, for Dataset 6 the program delivery/program cohort, for Dataset 8 the ordinance, and for Dataset 9 the community.
National Longitudinal Survey of Public Health Systems (NALSYS), [United States], 1998-2023 (ICPSR 23420)
Obtaining a better understanding of the organizational and operational attributes of public health delivery systems is a critical step in elucidating pathways for improving public health services. This survey of local governmental public health agencies was conducted to that end, as part of a larger study designed to classify the structural characteristics of local public health delivery systems and to examine variation and change in these characteristics over time. In 1998 and again in 2006, 2012, 2014, 2016, 2018, and 2023 local governmental public health agencies serving populations of 100,000 residents or more were surveyed about 20 core public health activities devoted to public health assessment, policy development, and assurance.
For each activity, the survey instrument asked agency directors to report whether the activity was performed at all in the agency's jurisdiction and if so, which types of organizations were involved in performing the activity. Response options for the second item consisted of a pre-defined list of organization types, including hospitals, physician practices, health insurers, community health centers, educational institutions, community-based and faith-based organizations, state and local government agencies, and private businesses/employers. The instrument also asked what proportion of the total community effort for each activity was contributed by the local public health agency and asked how effectively the activity was performed.