Functional Independence in Children at a Pediatric Clinic in Guanajuato, Mexico, 2004-2013 (ICPSR 37068)

Version Date: Jul 9, 2018 View help for published

Principal Investigator(s): View help for Principal Investigator(s)
Samuel Bucior, University of Pittsburgh; Maria Luisa Toro Hernández, Universidad CES; Jon Pearlman, University of Pittsburgh; David J. Dausey, Mercyhurst University

Series:

https://doi.org/10.3886/ICPSR37068.v1

Version V1

This study sought to evaluate the functional independence in children at a Centers for Pediatric Rehabilitation Teleton (CRIT) facility in Guanajuato, Mexico through the use of the WeeFIM Instrument (0-3 Module). The dataset in this collection was generated in May 2013 from electronic health records for secondary analysis of de-identified data. The goal of CRIT, that this research sought to evaluate, was to improve social integration for children with disabilities in Mexico through comprehensive rehabilitation services, including physical therapy, occupational therapy, neurotherapy, speech therapy, physical and rehabilitation medicine, psychology, social integration, and school for parents.

The collection includes one dataset (35 variables, 5,993 cases). Demographic variables included in the collection: Age, gender, and city of residence.

Bucior, Samuel, Toro Hernández, Maria Luisa, Pearlman, Jon, and Dausey, David J. Functional Independence in Children at a Pediatric Clinic in Guanajuato, Mexico, 2004-2013. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2018-07-09. https://doi.org/10.3886/ICPSR37068.v1

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Access to these data is restricted. Users interested in obtaining these data must complete a Restricted Data Use Agreement, specify the reason for the request, and obtain IRB approval or notice of exemption for their research.

Inter-university Consortium for Political and Social Research
2004-01-26 -- 2013-05-13
2013-05-01 -- 2013-05-31
This study is associated with the International Society of Wheelchair Professionals (ISWP). For more information, please see the ISWP website.

Some of the data in this collection is provided in Spanish. No additional information has been provided.

The purpose of this retrospective study was to evaluate the functional independence in Children at a Centers for Pediatric Rehabilitation Teleton (CRIT) facility in Guanajuato, Mexico through the use of the WeeFIM Instrument (0-3 Module). The study objective was to compare the characteristics of children who use wheelchairs, walkers, prosthetics and orthotics (collectively referred to hereafter as assistive technology or AT) with children who do not use AT. The researchers also sought to determine what factors were related to the functional independence of children with disabilities.

The WeeFIM System allows credentialed clinicians across the United States and around the world to measure and document functional performance in infants (0-3 years old), children, and adolescents with either acquired or congenital disease in a consistent manner.

De-identified patient entries with complete functional independence measure for children (WeeFIM) scores and diagnosis category information (n=2651) were used for analysis. Patients were mostly male (58.5% n=1552) had low socioeconomic status and had a median age of 3.10 (IQR: 6.52) years at first evaluation and 5.68 (7.26) years at final evaluation.

Sampling consisted of a cross-sectional, convenience sample of patients at a pediatric rehabilitation facility in Guanajuato, Mexico.

Cross-sectional

Clients of a pediatric rehabilitation facility in Guanajuato, Mexico

Individuals
administrative records data, clinical data, medical records

The data contains a combination of variables related to administrative and clinical records regarding the rehabilitation interventions, outcomes, and demographics for clients of the Centers for Pediatric Rehabilitation Teleton (CRIT) facility in Guanajuato, Mexico. Additionally, the dataset includes variables related to patient WeeFIM Instrument scores that measured the functional performance in three domains: self-care, mobility, and cognition.

The WeeFIM instrument utilized in this research includes a 7-level ordinal scale:

  • 1 = Total Assistance (Child performs >25% of tasks)
  • 2 = Maximal Assistance (25-49%)
  • 3 = Moderate Assistance (50-74%)
  • 4 = Minimal Assistance (Less than 75%)
  • 5 = Supervision/Setup
  • 6 = Modified Independence
  • 7 = Complete Independence

2018-07-09

2018-07-09 ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:

  • Performed consistency checks.
  • Performed recodes and/or calculated derived variables.
  • Checked for undocumented or out-of-range codes.

Notes

  • The public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.

  • One or more files in this data collection have special restrictions. Restricted data files are not available for direct download from the website; click on the Restricted Data button to learn more.

  • The citation of this study may have changed due to the new version control system that has been implemented.
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This study is maintained and distributed by Advancing Research on Disability.