Spinal Cord Injury Rehabilitation Study, United States, 2007-2010 (ICPSR 36724)

Version Date: May 3, 2018

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Principal Investigator(s):
Gale G. Whiteneck, Craig Hospital (Englewood, Colo.)

https://doi.org/10.3886/ICPSR36724.v1

Version V1

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Alternate Title

SCIRehab

Summary

The SCIRehab study collected data about 1,376 people with spinal cord injury across 7 disciplines at 6 facilities in the United States between 2007 and 2009 and followed for one year (until 2010). The 7 disciplines included in the study are Physical Therapy, and Occupational Therapy, Psychology, Therapeutic Recreation, Social Work, Nursing, and Speech Language Pathology. These data include information gathered during 462,455 timed rehabilitation interventions in 282,999 treatment sessions provided by 1,094 clinicians. This study seeks to understand the relationship between rehabilitation and outcomes and used practice-based evidence methods to relate the details of the rehabilitation process to outcomes after controlling for individual demographic and injury characteristics. The 13 key outcomes include function and residence at discharge, 6 months and 1 year post injury, rehospitalization in the first year, 4 dimensions of societal participation, work or school attendance, depression, presence of pressure ulcers, and life satisfaction at 6 months and 1 year post injury.

Citation

Whiteneck, Gale G. Spinal Cord Injury Rehabilitation Study, United States, 2007-2010 . Inter-university Consortium for Political and Social Research [distributor], 2018-05-03. https://doi.org/10.3886/ICPSR36724.v1

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Funding

United States Department of Health and Human Services. Administration for Community Living. National Institute on Disability, Independent Living, and Rehabilitation Research (H133A060103, H133N060005)

Subject Terms

Geographic Coverage

Distributor(s)

Inter-university Consortium for Political and Social Research
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Time Period(s)

2007 -- 2010

Date of Collection

2007 -- 2010

Data Collection Notes

  1. To protect the confidentiality of respondents, all variables that could be used to identify individuals have been eliminated, collapsed, or recoded in the public use files. These modifications should not affect analytic uses of the public use files.

  2. For additional information on the Spinal Cord Injury Rehabilitation study, please visit the SCIRehab Web site.

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Study Purpose

In an effort to understand the relationship between the rehabilitation process and outcomes, the SCIRehab study collected data about rehabilitation interventions across 7 disciplines during the inpatient rehabilitation of 1,376 people with spinal cord injury (SCI). This study used practice-based evidence methods to relate the details of the rehabilitation process to outcomes after controlling for individual demographic and injury characteristics.

Sample

Patients 12 years of age and older with new traumatic SCI at one of 6 participating centers. Data collected during admission, inpatient rehabilitation, discharge, and outcome data abstracted from medical records and patient and/or caregiver interviews at 6 and 12 months post-injury.

Time Method

Longitudinal: Cohort / Event-based

Universe

1376 individuals aged 12 and over with spinal cord injury undergoing inpatient rehabilitation at 6 facilities in the United States between 2007-2009 and followed for one year.

Unit(s) of Observation

Individual treatments, Individual patient

Data Type(s)

Mode of Data Collection

Response Rates

100% of consented cases (90% of eligible cases)

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Original Release Date

2018-05-03

Version History

2018-05-03 ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:

  • Created variable labels and/or value labels.
  • Checked for undocumented or out-of-range codes.
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Notes

  • The public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.

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This study is maintained and distributed by Advancing Research on Disability.