Description & Citation--Study No. 25963
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Study No.: |
25963 |
Title: |
Study of Dementia in Swedish Twins, 1990-1999 |
Principal Investigator(s): |
Gatz, Margaret, University of Southern California, and Karolinska Institutet (Stockholm)
Pedersen, Nancy, Karolinska Institutet (Stockholm)
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Funding: |
United States Department of Health and Human Services. National Institutes of Health. National Institute on Aging
(R01 AG08724)
Swedish Research Council
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Bibliographic Citation: |
Gatz, Margaret, and Nancy Pedersen. Study of Dementia in Swedish Twins, 1990-1999. ICPSR25963-v2. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2010-06-04. doi:10.3886/ICPSR25963.v2 |
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Summary: |
The Study of Dementia in Swedish Twins was designed to study the relative influence of genetic and environmental factors for Alzheimer's disease and other types of dementia and to test the role of specific environmental exposures that might constitute risk or protective factors for dementia. The first seven years of the Study of Dementia in Swedish Twins was based on the population from the SWEDISH ADOPTION/TWIN STUDY OF AGING (SATSA), 1984, 1987, 1990, and 1993 (ICPSR 3843). SATSA consists of a subset of 3,838 same-sex twins from the population-based Swedish Twin Registry; however, the baseline sample for the Study of Dementia in Swedish Twins consists of 2,394 individuals who were alive and born in 1935 or earlier. The Study of Dementia in Swedish Twins data cover background information (sex, zygosity, rearing status, ages at each data collection point, age at death), cognitive screening (which took place in conjunction with each SATSA wave of data collection), clinical dementia diagnoses for those who received a complete dementia workup (both baseline and longitudinal), cognitive test results (both baseline and longitudinal), medical history and medical risk factors (medical examination; blood pressure; laboratory results; history of neurologic, coronary, mental, and other diseases; smell test; history of head injury, anaesthesia, fevers, medications, dietary history with respect to fish, raw meat, and acidic foods prepared in aluminum pans), residential, occupational, and leisure activities history (including exposure related to welding, hairdressing, agriculture, medical settings, painting and other sources of organic solvents, crystal, carbon monoxide, radiation, raw meat and game; participation in contact sports; antiperspirant containing aluminum; history of smoking; history of use of alcohol), family history of dementia, and APOE genotype. SATSA is archived separately at ICPSR, see ICPSR 3843. The SATSA and the Study of Dementia in Swedish Twins files contain a common ID number that can be used to create a crosswalk between the files.
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Subject Terms: |
aging,
Alzheimers disease,
dementia,
older adults,
risk factors,
twins
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Geographic Coverage: |
Global,
Sweden
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Time Period: |
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Date of Collection: |
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Universe: |
All pairs of same-sex twins from the Swedish Adoption/Twin Study of Aging sample from the Swedish Twin Registry born in 1935 and earlier.
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Data Types: |
clinical data,
survey data
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Data Collection Notes: |
Selected documentation and the Data Use Agreement are available for download from the ICPSR website; however, the data and other selected documentation are restricted from public release and will be distributed only upon completion and receipt of the Data Use Agreement
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Sample: |
The Study of Dementia in Swedish Twins population is derived from the SATSA study. SATSA consists of a subset of 3,838 same-sex twins from the population-based Swedish Twin Registry, specifically, all pairs from the twin registry who indicated having been reared apart, and a matched sample of pairs who were reared together, drawn from the twin registry to correspond in sex, year of birth, and county of birth to the reared apart twins. At baseline in 1984, 2,845 of these individuals were alive (1,223 pairs and 399 singletons), defining the SATSA population. Dementia-related data collection by the Study of Dementia in Swedish Twins entailed the following sample: Individuals were included if they were alive in 1987 and if they were in the SATSA sample as originally drawn, whether or not they had ever responded to any SATSA data collection effort, and whether or not their twin sibling was alive. Due to the low prevalence of dementia in middle age, only individuals born in 1935 or earlier were included in the dementia study. The resulting base sample for the Study of Dementia in Swedish Twins consisted of 2,394 individuals.
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Mode of Data Collection: |
record abstracts,
cognitive assessment test,
face-to-face interview,
mail questionnaire,
paper and pencil interview (PAPI),
on-site questionnaire
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Response Rates: |
80.1 percent
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Extent of Processing: |
All archived data undergo a confidentiality review and are altered when necessary to limit the risk of
disclosure. The archive also routinely creates ready-to-go data files along with setups in the major
statistical software formats as well as standard codebooks to accompany the data. In addition to
these procedures, the archive performed the following processing steps for this data collection:
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Created variable labels and/or value labels.
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Note: |
Detailed file-level information (such as record length, case count, and variable count) is listed
in the file manifest. |
Original ICPSR Release: |
2010-05-06 |
Restrictions: |
Users interested in obtaining these data from NACDA must request and complete the Study of Dementia in Swedish Twins, 1990-1999, Restricted Data Use Agreement form. Users can download this form from the download page associated with this dataset. A copy of this form can also be obtained by contacting ICPSR User Support (734-647-2200). Completed forms with original signature(s) should be mailed to: Director, National Archive of Computerized Data on Aging, Inter-university Consortium for Political and Social Research, Institute for Social Research, P.O. Box 1248, University of Michigan, Ann Arbor, MI 48106-1248.
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Version History: |
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Dataset(s): |
- DS1: Admin-Adsal
- DS2: Admin-Inflist
- DS3: Admin-Navliden
- DS4: Admin-Outscreen
- DS5: Mobile Assessment Team-Kodlista
- DS6: Mobile Assessment Team-Kodlist_inf
- DS7: Mobile Assessment Team-Newmatv5
- DS8: Mobile Assessment Team-Parrsk
- DS9: Mobile Assessment Team-Drugs
- DS10: Mobile Assessment Team-Famhx
- DS11: Mobile Assessment Team-Medrisk
- DS12: Mobile Assessment Team-Medrisk_inf
- DS13: Mobile Assessment Team-Livrisk
- DS14: Mobile Assessment Team-Livrisk_inf
- DS15: Mobile Assessment Team-Work_hobby
- DS16: Mobile Assessment Team-Work_hobby_inf
- DS17: Longitudinal Follow_Up-Matlong
- DS18: Longitudinal Follow_Up-Ipt4
- DS19: Longitudinal Follow_Up-Ipt4_inf
- DS20: Prospective-Epilog
- DS21: Prospective-Ipt3a
- DS22: Prospective-Ipt3risk
- DS23: Prospective-Ipt3q
- DS24: Prospective-Q4
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