National Survey of Self-Care and Aging: Follow-Up, 1994 (ICPSR 2592)

Principal Investigator(s): DeFriese, Gordon H.; Norburn, Jean E. Kincade


This follow-up to the NATIONAL SURVEY OF SELF-CARE AND AGING: BASELINE, 1990-1991 (ICPSR 6718) was conducted in 1994 to continue examination of the health status and self-care practices of individuals aged 65 or older who were interviewed at baseline during 1991. Telephone interviews (Part 1) were conducted with individuals who were interviewed at baseline. A proxy was interviewed if the subject was too ill or cognitively unable to respond. Included were questions about the type and extent of self-care behaviors for activities of daily living, management of chronic conditions (through self-care activities, equipment use, and environmental modifications), and medical self-care for acute conditions, along with questions regarding change in health status since baseline, health service utilization, nursing home visits, and sociodemographic/economic status. For subjects who had been institutionalized since baseline (Part 2), interviews were conducted with proxies. Information was gathered regarding demographic status, living arrangements prior to institutionalization, and reasons for institutionalization. For subjects who had died since baseline (Part 3), information was again gathered through interviews with proxies. Questions covered nursing home admissions and date and place of death. Part 4 consists of data from interviews conducted at baseline (ICPSR 6718) merged with interviews conducted at this follow-up.

Access Notes

  • The public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.


DS0:  Study-Level Files
DS1:  Telephone Interview Data - Download All Files (5.642 MB)
ASCII + SAS Setup    SPSS Setup   
DS2:  Institutionalized Interview Data - Download All Files (4.245 MB)
SAS    SPSS    Stata    ASCII   
ASCII + SAS Setup    SPSS Setup    Stata Setup   
DS3:  Decedent Interview Data - Download All Files (4.723 MB)
SAS    SPSS    Stata    ASCII   
ASCII + SAS Setup    SPSS Setup    Stata Setup   
DS4:  Combined Baseline and Follow-Up Data - Download All Files (11.341 MB)
ASCII + SAS Setup    SPSS Setup   
Analyze Online:

Study Description


DeFriese, Gordon H., and Jean E. Kincade Norburn. National Survey of Self-Care and Aging: Follow-Up, 1994. ICPSR02592-v2. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 1999.

Persistent URL:

Export Citation:

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This study was funded by:

  • United States Department of Health and Human Services. National Institutes of Health. National Institute on Aging (AG07929-3)

Scope of Study

Subject Terms:    activities of daily living, aging, assisted living, assistive devices, chronic illnesses, health services utilization, health status, institutional care, living arrangements, older adults, quality of life, self medication

Geographic Coverage:    United States

Time Period:   

  • 1994

Date of Collection:   

  • 1994

Universe:    Noninstitutionalized Medicare beneficiaries 65 years of age and older in 1990.

Data Type(s):    survey data

Data Collection Notes:

The data and SAS and SPSS data definition statements were extracted from SAS transport files.

Data from this follow-up has been linked with the baseline data (ICPSR 6718) using the variable ARCHIVID.


Sample:    The stratified random sample of noninstitutionalized Medicare beneficiaries 65 years of age and older was drawn from 50 primary sampling units (PSUs), 38 urban and 12 rural. Stratification was by gender and three age groups (65-74, 75-84, 85 or older).

Data Source:

telephone interviews

Extent of Processing:   ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:

  • Created online analysis version with question text.


Original ICPSR Release:   1999-01-21

Version History:

  • 2006-03-30 File CB2592.ALL.PDF was removed from any previous datasets and flagged as a study-level file, so that it will accompany all downloads.
  • 2005-11-04 On 2005-03-14 new files were added to one or more datasets. These files included additional setup files as well as one or more of the following: SAS program, SAS transport, SPSS portable, and Stata system files. The metadata record was revised 2005-11-04 to reflect these additions.
  • 1999-10-07 Part 4, Combined Baseline and Follow-Up Data, has been added, and the codebook and SAS and SPSS data definition statements have been revised accordingly.

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