Description & Citation--Study No. 9681
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Study No.: |
09681 |
Title: |
National Long-Term Care Survey: 1982, 1984, 1989, 1994, 1999, and 2004 |
Principal Investigator(s): |
Manton, Kenneth G., Duke University
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Funding: |
United States Department of Health and Human Services. National Institutes of Health. National Institute on Aging
(N2 U01 AG0007198)
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Bibliographic Citation: |
Manton, Kenneth G. National Long-Term Care Survey: 1982, 1984, 1989, 1994, 1999, and 2004. ICPSR09681-v5. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2010-06-21. doi:10.3886/ICPSR09681.v5 |
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Summary: |
The National Long-Term Care Survey (NLTCS) has completed
six waves, nominally at five-year intervals, 1982, 1984, 1989, 1994,
1999, and 2004. The NLTCS is a nationally-representative sample both
of the community and of institutionalized populations and is longitudinal
in that sample persons join the survey once they reach 65 years of age and stay
in the survey until they either die or are lost to follow-up. At each
wave, a screener questionnaire is administered to the sample which
divides the sample into three parts: the non-disabled (frequently
called screen-outs), the disabled but living in the community, and the
disabled living in an institution. About 5,000 people die between
waves and are replaced by a sample of about that size of people who
have become age 65 since the prior wave. Because of budget
considerations it usually has not been possible to continue the entire
non-disabled sample into the next wave. Instead a sample of the
non-disabled is drawn to keep the total sample size for a wave at
about 20,000. One of the interesting and useful features of the NLTCS
is that data are collected on help that the sample person receives
from informal caregivers.
The NLTCS is a very data-rich resource with many components,
including disability measures, medical conditions, attained education
levels, and income. Numerous papers have used it as a source of data
addressing a wide variety of topics related to aging and
disability.
Ancillary surveys have been added to measure other characteristics
of the 65 and older population, to include a Caregiver Survey to
acquire data on informal caregivers themselves (done in 1989, 1999,
and 2004) and Next-of-Kin (NOK) surveys administered to sample persons
who had died between 1982 and 1984 and again between 1994 and
1999. The sample has been frequently supplemented to compensate for
low representation in some survey components, in particular the 75 years and older
and 95 years and older components. In 1999 physical specimens were drawn from a
sample of persons who responded to the survey. These physical
specimens (blood where possible, alternatively a buccal wash) are
subject to a genetic analysis and, in the case of blood, to a panel
of proteins believed to be particularly important to health.
NLTCS Survey Data
Survey data are available in ASCII and SAS format.
The Analytic Data File, a file of derived variables for all waves
of the survey incorporates correction factors and consistency
checking. The Analytic Data File covers all waves of the survey and is
available in both ASCII and SAS formats. Final versions of data for
all waves, up to and including 1999 and a beta version for 2004, have
been released and are supported by documentation.
NLTCS Linked Data
There are currently two linked files available from the Center for
Medicare and Medicaid Services (CMS):
A Vital Statistics file containing survey participants' dates
of birth and death which was removed from the public use files for reasons
of confidentiality. A Medicare (Parts A and B) Service Use file containing
Medicare records of those surveyed, with identifying information
deleted and replaced with an anonymous sequence number linking the
file to the corresponding NLTCS record.
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Subject Terms: |
activities of daily living,
aging,
caregivers,
diet,
family relations,
health care services,
health services utilization,
health status,
life satisfaction,
live expectancy,
living arrangements,
marriage rates,
medical conditions,
Medicare,
older adults,
perceptions,
quality of life
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Geographic Coverage: |
United States
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Time Period: |
- 1982
- 1984
- 1989
- 1994
- 1999
- 2004
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Data Collection Notes: |
The data are available only on CD-ROM, and can be obtained by following the instructions in the Data Use Agreement. If the user
cannot work with the CD-ROM they may contact User Support to make
other arrangements.
All documentation files are now publicly available for this study. In addition, the crosswalk which is in an Excel file (.xlsx) for all years is also publicly available.
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Note: |
Detailed file-level information (such as record length, case count, and variable count) is listed
in the file manifest. |
Original ICPSR Release: |
2004-12-21 |
Restrictions: |
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Version History: |
2010-06-21 Documentation for the Crosswalk has been added. 2010-06-08 Text edits were made to the metadata record. 2010-05-26 The data are restricted, but the documentation is available for download. 2010-05-25 All documentation files are now available for download.
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Dataset(s): |
- DS1: 1982
- DS2: 1984
- DS3: 1989
- DS4: 1994
- DS5: 1999
- DS6: 2004
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