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Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988 (ICPSR 9795) RSS

Principal Investigator(s):

Summary:

The Infant Health and Development Program was a collaborative, randomized, longitudinal, multisite clinical trial designed to evaluate the efficacy of comprehensive early intervention in reducing the developmental and health problems of low birth weight, premature infants. An intensive intervention extending from hospital discharge to 36 months corrected age was administered between 1985 and 1988 at eight different sites. The study sample of infants was stratified by birth weight (2,000 grams or less, 2,001-2,500 grams) and randomized to the Intervention Group or the Follow-Up Group. The Intervention Group received home visits, attendance at a special child development center, and pediatric follow-up. The Follow-Up Group received only the pediatric follow-up component of the program. Measures of cognitive development, behavioral status, health status, and other variables were collected from both groups at predetermined time points. Cognitive development was assessed by the Stanford-Binet Intelligence Scale, the Bayley Mental and Motor Scales, the Peabody Picture Vocabulary Test--Revised, and the Beery-Buktenica Developmental Test of Visual Motor Integration. Behavior problems were measured using the Richman-Graham Behavior Checklist and Achenbach's Child Behavior Checklist. Health status was evaluated through the dimensions of morbidity (defined as the presence or absence of health conditions), functional status (defined by limitations in activities of daily living due to health problems), changes in physical growth, and maternal perception of the child's health. The many other variables and indices in the data collection include site, pregnancy complications, child's birth weight and gestation age, birth order, child's gender, household composition, day care arrangements, source of health care, quality of the home environment, parents' race and ethnicity, and maternal age, education, IQ, and employment.

Access Notes

  • One or more data files in this study are set up in a non-standard format, such as card image format. Users may need help converting these files before they can be used for analysis.

  • These data are freely available.

Dataset(s)

WARNING: This study is over 150MB in size and may take several minutes to download on a typical internet connection.

DS1:  INVNTRY: Analysis Group Infant Inventory - Download All Files (0.1 MB)
Data:
DS2:  SAS Control Cards for INVNTRY: Analysis Group Infant Inventory - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS3:  PADS: Primary Analysis Dataset - Download All Files (0.7 MB)
Data:
DS4:  SAS Control Cards for PADS: Primary Analysis Dataset - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS5:  SUMSCORE: Summary Score Dataset - Download All Files (0.5 MB)
Data:
DS6:  SAS Control Cards for SUMSCORE: Summary Score Dataset - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS7:  F3A: Birth Registration, Part A - Download All Files (0.2 MB)
Data:
DS8:  SAS Control Cards for F3A: Birth Registration, Part A - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS9:  F3B: Birth Registration, Part B - Download All Files (0.1 MB)
Data:
DS10:  SAS Control Cards for F3B: Birth Registration, Part B - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS11:  F6A: Neonatal Health Summary, Part A - Download All Files (0.2 MB)
Data:
DS12:  SAS Control Cards for F6A: Neonatal Health Summary, Part A - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS13:  F6B: Neonatal Health Summary, Part B - Download All Files (0.2 MB)
Data:
DS14:  SAS Control Cards for F6B: Neonatal Health Summary, Part B - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS15:  F7: 40-Week Family Interview - Download All Files (1 MB)
Data:
DS16:  SAS Control Cards for F7: 40-Week Family Interview - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS17:  F8: 40-Week Neurodevelopmental Exam - Download All Files (0.1 MB)
Data:
DS18:  SAS Control Cards for F8: 40-Week Neurodevelopmental Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS19:  F9: 40-Week Health Summary Exam - Download All Files (0.4 MB)
Data:
DS20:  SAS Control Cards for F9: 40-Week Health Summary Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS21:  F11: 4-Month Family Interview - Download All Files (0.3 MB)
Data:
DS22:  SAS Control Cards for F11: 4-Month Family Interview - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS23:  F12: 4-Month Neurodevelopmental Exam - Download All Files (0.2 MB)
Data:
DS24:  SAS Control Cards for F12: 4-Month Neurodevelopmental Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS25:  F13: 4-Month Health Summary Exam - Download All Files (0.7 MB)
Data:
DS26:  SAS Control Cards for F13: 4-Month Health Summary Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS27:  F14: 8-Month Family Interview - Download All Files (0.2 MB)
Data:
DS28:  SAS Control Cards for F14: 8-Month Family Interview - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS29:  F15: 8-Month Neurodevelopmental Exam - Download All Files (0.2 MB)
Data:
DS30:  SAS Control Cards for F15: 8-Month Neurodevelopmental Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS31:  F16: 8-Month Health Summary Exam - Download All Files (0.3 MB)
Data:
DS32:  SAS Control Cards for F16: 8-Month Health Summary Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS33:  F17: 8-Month Health Exam - Download All Files (0.3 MB)
Data:
DS34:  SAS Control Cards for F17: 8-Month Health Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS35:  F18: 12-Month Family Interview - Download All Files (0.7 MB)
Data:
DS36:  SAS Control Cards for F18: 12-Month Family Interview - Download All Files (0 MB)
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ASCII + SAS Setup
DS37:  F19: 12-Month Neurodevelopmental Exam - Download All Files (0.2 MB)
Data:
DS38:  SAS Control Cards for F19: 12-Month Neurodevelopmental Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS39:  F20: 12-Month Interval Health Interview - Download All Files (0.4 MB)
Data:
DS40:  SAS Control Cards for F20: 12-Month Interval Health Interview - Download All Files (0 MB)
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ASCII + SAS Setup
DS41:  F21: 12-Month Health Exam - Download All Files (0.3 MB)
Data:
DS42:  SAS Control Cards for F21: 12-Month Health Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS43:  F22: 12-Month Home Assessment - Download All Files (0.3 MB)
Data:
DS44:  SAS Control Cards for F22: 12-Month Home Assessment - Download All Files (0 MB)
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ASCII + SAS Setup
DS45:  F23: 12-Month Bayley Mental Scale - Download All Files (0.3 MB)
Data:
DS46:  SAS Control Cards for F23: 12-Month Bayley Mental Scale - Download All Files (0 MB)
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ASCII + SAS Setup
DS47:  F24: 12-Month Bayley Motor Scale - Download All Files (0.2 MB)
Data:
DS48:  SAS Control Cards for F24: 12-Month Bayley Motor Scale - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS49:  F25: 12-Month Bayley Test Session Summary - Download All Files (0.2 MB)
Data:
DS50:  SAS Control Cards for F25: 12-Month Bayley Test Session Summary - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS51:  F28: 18-Month Family Interview - Download All Files (0.3 MB)
Data:
DS52:  SAS Control Cards for F28: 18-Month Family Interview - Download All Files (0 MB)
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ASCII + SAS Setup
DS53:  F29: 18-Month Neurodevelopmental Exam - Download All Files (0.2 MB)
Data:
DS54:  SAS Control Cards for F29: 18-Month Neurodevelopmental Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS55:  F30: 18-Month Interval Health Interview - Download All Files (0.4 MB)
Data:
DS56:  SAS Control Cards for F30: 18-Month Interval Health Interview - Download All Files (0 MB)
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ASCII + SAS Setup
DS57:  F31: 18-Month Health Exam - Download All Files (0.4 MB)
Data:
DS58:  SAS Control Cards for F31: 18-Month Health Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS59:  F33: 18-Month Peabody Picture Vocabulary Test--Revised Summary - Download All Files (0.1 MB)
Data:
DS60:  SAS Control Cards for F33: 18-Month Peabody Picture Vocabulary Test--Revised Summary - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS61:  F34: 24-Month Family Interview - Download All Files (0.9 MB)
Data:
DS62:  SAS Control Cards for F34: 24-Month Family Interview - Download All Files (0 MB)
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ASCII + SAS Setup
DS63:  F35: 24-Month Neurodevelopmental Exam - Download All Files (0.2 MB)
Data:
DS64:  SAS Control Cards for F35: 24-Month Neurodevelopmental Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS65:  F36: 24-Month Interval Health Interview - Download All Files (0.5 MB)
Data:
DS66:  SAS Control Cards for F36: 24-Month Interval Health Interview - Download All Files (0 MB)
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ASCII + SAS Setup
DS67:  F37: 24-Month Health Exam - Download All Files (0.4 MB)
Data:
DS68:  SAS Control Cards for F37: 24-Month Health Exam - Download All Files (0 MB)
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ASCII + SAS Setup
DS69:  F38: 24-Month Child Behavior Interview - Download All Files (0.2 MB)
Data:
DS70:  SAS Control Cards for F38: 24-Month Child Behavior Interview - Download All Files (0 MB)
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ASCII + SAS Setup
DS71:  F39: 24-Month Bayley Mental Scale - Download All Files (0.3 MB)
Data:
DS72:  SAS Control Cards for F39: 24-Month Bayley Mental Scale - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS73:  F40: 24-Month Bayley Motor Scale - Download All Files (0.2 MB)
Data:
DS74:  SAS Control Cards for F40: 24-Month Bayley Motor Scale - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS75:  F41: 24-Month Bayley Test Session Summary - Download All Files (0.2 MB)
Data:
DS76:  SAS Control Cards for F41: 24-Month Bayley Test Session Summary - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS77:  F43A: 24-Month Child Behavior Interview, A - Download All Files (0 MB)
Data:
DS78:  SAS Control Cards for F43A: 24-Month Child Behavior Interview, A - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS79:  F43B: 24-Month Child Behavior Interview, B - Download All Files (0 MB)
Data:
DS80:  SAS Control Cards for F43B: 24-Month Child Behavior Interview, B - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS81:  F47: 30-Month Family Interview - Download All Files (0.3 MB)
Data:
DS82:  SAS Control Cards for F47: 30-Month Family Interview - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS83:  F48: 30-Month Neurodevelopmental Exam - Download All Files (0.2 MB)
Data:
DS84:  SAS Control Cards for F48: 30-Month Neurodevelopmental Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS85:  F49: 30-Month Interval Health Interview - Download All Files (0.3 MB)
Data:
DS86:  SAS Control Cards for F49: 30-Month Interval Health Interview - Download All Files (0 MB)
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ASCII + SAS Setup
DS87:  F50: 30-Month Health Exam - Download All Files (0.4 MB)
Data:
DS88:  SAS Control Cards for F50: 30-Month Health Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS89:  F52: 36-Month Family Interview - Download All Files (1.2 MB)
Data:
DS90:  SAS Control Cards for F52: 36-Month Family Interview - Download All Files (0 MB)
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ASCII + SAS Setup
DS91:  F53: 36-Month Neurodevelopmental Exam - Download All Files (0.2 MB)
Data:
DS92:  SAS Control Cards for F53: 36-Month Neurodevelopmental Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS93:  F54: 36-Month Interval Health Interview - Download All Files (0.5 MB)
Data:
DS94:  SAS Control Cards for F54: 36-Month Interval Health Interview - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS95:  F55: 36-Month Health Exam - Download All Files (0.3 MB)
Data:
DS96:  SAS Control Cards for F55: 36-Month Health Exam - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS97:  F56: 36-Month Home Assessment - Download All Files (0.6 MB)
Data:
DS98:  SAS Control Cards for F56: 36-Month Home Assessment - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS99:  F57: 36-Month Stanford-Binet IQ Scale - Download All Files (0.3 MB)
Data:
DS100:  SAS Control Cards for F57: 36-Month Stanford-Binet IQ Scale - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS101:  F58: 36-Month Peabody Picture Vocabulary Test-Revised - Download All Files (0.3 MB)
Data:
DS102:  SAS Control Cards for F58: 36-Month Peabody Picture Vocabulary Test-Revised - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS103:  F59: 36-Month Visual Motor Integration Test - Download All Files (0.1 MB)
Data:
DS104:  SAS Control Cards for F59: 36-Month Visual Motor Integration Test - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS105:  F61: 36-Month Child Behavior Interview - Download All Files (0.2 MB)
Data:
DS106:  SAS Control Cards for F61: 36-Month Child Behavior Interview - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS107:  F62: 36-Month Test Session Summary - Download All Files (0.2 MB)
Data:
DS108:  SAS Control Cards for F62: 36-Month Test Session Summary - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS109:  F63: 36-Month Growth Data Summary - Download All Files (0.2 MB)
Data:
DS110:  SAS Control Cards for F63: 36-Month Growth Data Summary - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS111:  F66A: 36-Month Child Behavior Questionnaire, A - Download All Files (0.1 MB)
Data:
DS112:  SAS Control Cards for F66A: 36-Month Child Behavior Questionnaire, A - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS113:  F66B: 36-Month Child Behavior Questionnaire, B - Download All Files (0.1 MB)
Data:
DS114:  SAS Control Cards for F66B: 36-Month Child Behavior Questionnaire, B - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS115:  F71: Twin Zygosity Record - Download All Files (0 MB)
Data:
DS116:  SAS Control Cards for F71: Twin Zygosity Record - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS117:  F85: Supplemental Health Conditions Codes - Download All Files (0.3 MB)
Data:
DS118:  SAS Control Cards for F85: Supplemental Health Conditions Codes - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS119:  SUMBCR18: 18-Month Daily Classroom Summary - Download All Files (0 MB)
Data:
DS120:  SAS Control Cards for SUMBCR18: 18-Month Daily Classroom Summary - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS121:  SUMBCR24: 24-Month Daily Classroom Summary - Download All Files (0 MB)
Data:
DS122:  SAS Control Cards for SUMBCR24: 24-Month Daily Classroom Summary - Download All Files (0 MB)
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ASCII + SAS Setup
DS123:  SUMBCR30: 30-Month Daily Classroom Summary - Download All Files (0 MB)
Data:
DS124:  SAS Control Cards for SUMBCR30: 30-Month Daily Classroom Summary - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS125:  SUMBCR36: 36-Month Daily Classroom Summary - Download All Files (0 MB)
Data:
DS126:  SAS Control Cards for SUMBCR36: 36-Month Daily Classroom Summary - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS127:  SUMBHV04: 4-Month Home Visit Report - Download All Files (0 MB)
Data:
DS128:  SAS Control Cards for SUMBHV04: 4-Month Home Visit Report - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS129:  SUMBHV08: 8-Month Home Visit Report - Download All Files (0 MB)
Data:
DS130:  SAS Control Cards for SUMBHV08: 8-Month Home Visit Report - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS131:  SUMBHV12: 12-Month Home Visit Report - Download All Files (0 MB)
Data:
DS132:  SAS Control Cards for SUMBHV12: 12-Month Home Visit Report - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS133:  SUMBHV18: 18-Month Home Visit Report - Download All Files (0 MB)
Data:
DS134:  SAS Control Cards for SUMBHV18: 18-Month Home Visit Report - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS135:  SUMBHV24: 24-Month Home Visit Report - Download All Files (0 MB)
Data:
DS136:  SAS Control Cards for SUMBHV24: 24-Month Home Visit Report - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS137:  SUMBHV30: 30-Month Home Visit Report - Download All Files (0 MB)
Data:
DS138:  SAS Control Cards for SUMBHV30: 30-Month Home Visit Report - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS139:  SUMBHV36: 36-Month Home Visit Report - Download All Files (0 MB)
Data:
DS140:  SAS Control Cards for SUMBHV36: 36-Month Home Visit Report - Download All Files (0 MB)
Data:

ASCII + SAS Setup
DS141:  Transport Format SAS Library Containing the 59 Evaluation Data Files - Download All Files (27.9 MB)
Data:
SAS
DS142:  Transport Format SAS Library Containing the 11 Implementation Data Files - Download All Files (1.1 MB)
Data:
SAS
DS143:  Codebook, Volume I (Introduction to the Archives...Volumes I and II)
Documentation:
Download:
No downloadable data files available.
DS144:  Codebook, Volume II (Evaluation Data Documentation, Volumes I and II)
Documentation:
Download:
No downloadable data files available.
DS145:  Codebook, Volume III (Evaluation Data Documentation, Volumes III and IV)
Documentation:
Download:
No downloadable data files available.
DS146:  Codebook, Volume IV (Evaluation Data Documentation Volume V)
Documentation:
Download:
No downloadable data files available.
DS147:  Codebook, Volume V (Implementation Data Documentation, ICPSR Data Maps for Implementation Data)
Documentation:
Download:
No downloadable data files available.
DS148:  Codebook, Volume VI (Manual of Operations, Volume I)
Documentation:
Download:
No downloadable data files available.
DS149:  Codebook, Volume VII (Manual of Operations, Volumes II and III)
Documentation:
Download:
No downloadable data files available.
DS150:  Codebook, Volume VIII (Measures Documentation Notebook, Dropped Variables Documentation Report)
Documentation:
Download:
No downloadable data files available.
DS151:  Codebook, Volume IX (Infant Assessor Manual, et al.)
Documentation:
Download:
No downloadable data files available.

Study Description

Citation

Gross, Ruth T., et al. Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988. ICPSR09795-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 1992. http://doi.org/10.3886/ICPSR09795.v1

Persistent URL:

Export Citation:

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Funding

This study was funded by:

  • Robert Wood Johnson Foundation (Robert Wood Johnson Foundation: 7887, 9013, 9407, 10207, 11146, 12257, 13218, 9367, 10887, 11078, 12255, 9528, 11125, 9532, 11124, 9524, 11126, 9526, 11128, 9523, 11127, 9531, 11129, 9525, 11130,9527, and 11131. )
  • Pew Charitable Trusts (Pew Charitable Trusts: 84-01587)
  • United States Department of Health and Human Services. Health Resources and Services Administration. Maternal and Child Health Bureau ( MCJ060515)
  • United States Department of Health and Human Services. National Institutes of Health. Eunice Kennedy Shriver National Institute of Child Health and Human Development

Scope of Study

Subject Terms:   child development, health status, infants, medical care, mental health, physical condition, premature births

Geographic Coverage:   United States

Time Period:  

  • 1985--1988

Date of Collection:  

  • 1985--1988

Universe:   All low birth weight (2,500 grams or less), premature (37 weeks gestational age or less) infants born at eight sites (University of Arkansas for Medical Sciences, Albert Einstein College of Medicine, Harvard Medical School, University of Miami School of Medicine, University of Pennsylvania School of Medicine, University of Texas Health Science Center at Dallas, University of Washington School of Medicine, and Yale University School of Medicine) between November 1984 and August 1985. All study infants reached 40 weeks post-conceptual age between January 7, 1985, and October 9, 1985.

Data Types:   clinical data

Data Collection Notes:

The data is grouped in two parts: 59 Evaluation files (odd-numbered parts, 1-117) and 11 Implementation files (odd-numbered parts, 119-139).

Methodology

Sample:   After all eligibility criteria were applied during the screening procedure, 1302 of the 4551 infants born at the eight sites during the recruitment period were determined eligible. After consent and acceptance of assignment to study group were considered, 1,090 were enrolled in the study. This number included a total of 103 twin pairs and 2 cousin pairs.

Data Source:

Medical exams by physicians and nurse practitioners in clinics, personal interviews by social workers and nurse practitioners in clinics, development assessments by "blinded" assessors in clinics, home visit reports by "blinded" assessors, and reports by teachers in child development centers

Version(s)

Original ICPSR Release:  

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