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21st Century School Study Neighborhood Audit Data, Baltimore, Maryland, 2016 (ICPSR 37515)

Released/updated on: 2022-10-27
Geographic coverage: Baltimore, United States, Maryland

Over half of public school buildings across the country fail to provide adequate conditions for students to learn and school staff to work. Prior research has established an evidence base of associations between high-quality school building facilities and student, staff, school, and community health and education outcomes. Recognizing this research and the need for facility improvements, Maryland has approved the 21st Century School Buildings Program, which is paid for by Baltimore City Public Schools (City Schools), the State of Maryland, and the City of Baltimore. The program will invest close to $1 billion to renovate or replace over two dozen school buildings. City Schools, with support from the Fund for Educational Excellence, selected the RAND Corporation to study the impact of new school buildings on student, staff, school, and community outcomes.

The goal of this first phase was to collect data prior to the start of the Baltimore 21st Century Building Program and conduct initial exploratory analyses of data from treatment schools (i.e., schools slated for renovation or rebuilding) and comparison schools (i.e., schools with similar student and school characteristics but not slated for renovation or rebuilding). The data compiled here are audits of the street segments immediately surrounding those target schools. These observations from Spring 2016 were collected in an effort to document the conditions and features of the neighborhoods prior to school building renovations.

This data collection describes baseline neighborhood characteristics prior to the 21st Century Buildings School Program. For more information about the Baltimore City Schools and the 21st Century School Building Program, please visit the 21st Century Schools website.

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Active for Life: Translation of Physical Activity Programs for Mid-Life and Older Adults, 2003-2007 [United States] (ICPSR 24723)

Released/updated on: 2024-02-14
Geographic coverage: North Carolina, District of Columbia, United States, Tennessee, California, Michigan, Pennsylvania, Illinois, Texas, Missouri, Ohio, Virginia, Maryland
Time period: 2003-01-01--2007-01-01

Sponsored by the Robert Wood Johnson Foundation, the Active for Life (AFL) initiative investigated how two physical activity programs for adults aged 50 and older, Active Choices (AC) and Active Living Every Day (ALED), worked in community settings. Created by researchers at Stanford University, Active Choices used lifestyle counseling and personalized telephone support to encourage older adults to be physically active. In AFL, this was a 6-month program delivered through one face-to-face meeting followed by up to eight one-on-one telephone counseling calls. Active Living Every Day, which was created by the Cooper Institute and Human Kinetics Inc., also provided lifestyle counseling to promote physical activity, but in a classroom and workbook format. During the first three years of the four-year AFL initiative, ALED was delivered as a 20-week program where participants attended weekly small group meetings, but in the last year it was shortened to 12 weekly meetings. Nine organizations received AFL grants to implement the programs during 2003-2006. Four grantees implemented the one-on-one AC model, while five implemented the group-based ALED model.

Data were collected from the AC and ALED sites for both a process and outcomes evaluation. The primary aims of the process evaluation were to (1) monitor the extent to which the grantees demonstrated fidelity to the AC and ALED models in their program implementation, (2) assess staff experiences implementing the programs, and (3) assess participants' impressions of the programs. A quasi-experimental, pre-post study design was used to assess outcomes. Primary aims of the outcomes evaluation were to evaluate the impact of AC and ALED on self-reported physical activity, and to evaluate the impact of the programs on self-reported stress, depressive symptoms, and satisfaction with body function and appearance. Secondary aims of the outcome evaluation were to (1) evaluate the impact of the programs on measures of functional fitness, (2) examine whether changes in self-reported physical activity and functional fitness were moderated by participant characteristics, including age, gender, race, baseline physical activity self-efficacy, and baseline physical activity social support, and (3) examine whether changes in self-reported physical activity were consistent with a mediation model for physical activity self-efficacy and physical activity social support.

The collection has 14 data files (datasets). Datasets 1-7 constitute the process evaluation data, and Datasets 8-14 the outcomes evaluation data:

Dataset 1 (AC Initial Face-to-Face Sessions Data) contains information about the initial face-to-face AC session: the format, date, and length of the session, whether the 8 steps required in the face-to-face session were completed, what was discussed between the health educator and the participant related to physical activity plans, interests, benefits, and barriers, and the health educator's progress notes. The file contains one record for each AC participant.

Dataset 2 (AC Completed Calls Data) comprises information about the completed AC calls, but does not cover the topics discussed on the calls. Recorded information about each call includes the date and length of the call, the health educator's progress notes, and whether the participant was assessed for injury, light activity, moderate activity, exercise goals, or exercise intentions. Each call is represented by a separate record in the data file and, typically, there are multiple records per participant.

Dataset 3 (AC Topics Discussed on Completed Calls ) contains information about the topics discussed on each completed AC call, e.g., exercise barriers/benefits, previous exercise experiences, goal setting, long term goals, injury prevention, rewards/reinforcement, social support, progress tracking, and relapse prevention. Each record in the file represents one topic and there are often multiple records per call for each participant.

Dataset 4 (AC Aggregate Call Data) aggregates the call data across calls for each AC participant. For example, for a given participant, this dataset shows the total number of calls completed, the number of calls where injury/health problems were assessed, etc. The file contains one record per participant.

Dataset 5 (ALED Sessions Data) contains information about each class session for every ALED group, including the session date, start time, and end time, learning activities covered in the session, participant evaluations of the session and the facilitator, facilitator progress notes, the number of participants who were in various stages of readiness for moderate exercise, and the number of participants who tracked physical activity and thoughts about physical activity. This file has one record for each session of every ALED group.

Dataset 6 (ALED Attendance and Tracking Data (Years 2-4)) consists of participant-level attendance and tracking data for every ALED session during the second to fourth years of the evaluation, including the participant's attendance at the session, whether the participant's stage of readiness was assessed, and whether the participant tracked thoughts about physical activity or actual physical activity. There is no participant-level ALED data for the first year. Each participant has a separate record for each session. Thus, the file contains 20 records per participant in the years 2-3, and 12 records per participant in year 4.

Dataset 7 (ALED Aggregate Attendance and Tracking Data (Years 2-4)) contains ALED attendance and tracking data for each participant in years 2-4, aggregated across the sessions. The data file has one record for each participant.

Dataset 8 (Demographics) comprises program information (e.g., program status, start date, end date, site, etc.), demographic information (e.g., age, gender, race, Hispanic origin, employment status, income, and the participant's state and ZIP code of residence), and responses to the Physical Activity Readiness Questionnaire (PAR-Q), a screening tool that was used to assess possible risks of exercising based on answers to specific health history questions. The file contains one record for each AFL participant, except for those with a status of "nonstarter" or "repeater."

Datasets 9 (Pretest Survey Data) and 10 (Posttest Survey Data) contain data from the Pretest and Posttest Surveys. The Pretest Survey was administered at the beginning of the AC and ALED programs, while the Posttest Survey was administered at their end. Topics covered by the surveys include social and recreational activities, activities undertaken for exercise, perceived stress, depressive symptoms, satisfaction with body appearance and function, social support for physical activity, self-efficacy for physical activity, neighborhood environment, health conditions, health-related quality of life, caregiving, and self-reported height and weight. Both surveys included items from the Community Health Activities Model Program for Seniors Physical Activity Questionnaire (CHAMPS), the Center for Epidemiological Studies Depression Questionnaire (CES-D), the Behavioral Risk Factor Surveillance System Questionnaires (BRFSS), and the International Physical Activity Prevalence Study Environmental Module. These data files each have one record for each participant who submitted a questionnaire.

Dataset 11 (ALED Week 12 Survey Data (Year 4)) contains responses to the ALED Week 12 Posttest Survey, which was used to evaluate the 12-week adaptation of ALED in Year 4. (In Year 4, ALED participants completed both a 12- and 20-week posttest survey). There is one record for each participant who returned this survey.

Dataset 12 (Six-Month Posttest Follow-Up Survey Data (Years 3-4)) comprises data from a special 6-month follow-up survey which was administered in years 3-4 in six of the ALED sites and one of the AC sites. Participants were questioned about their current physical activities, weight, health-related quality of life, satisfaction with bodily function, and other topics. As with Datasets 9-11, the data file contains one record for each participant who returned a questionnaire.

Dataset 13 (Functional Fitness Tests Data) contains the results of pretest and posttest functional fitness tests which were administered by one ALED grantee. Four tests were adminstered: (1) the 30-Foot Walk Test, (2) the 30-Second Chair Stand, (3) 8-Foot Up and Go, and (4) the Chair Sit and Reach Test. This participant-level data file also includes pretest height measurements plus pretest and posttest weight measurements.

Dataset 14 (Participants' Impressions of the Programs (Years 1, 3, and 4)) contains data collected by the last sections of the Posttest Survey, ALED Week 12 survey, and 6-Month Follow-up Survey. The topics it covers include the participants' impressions of the programs, participation in physical activities, and changes (compared to before they started the AFL program) in motivation to be physically active, actual level of physical activity, medical and health conditions, overall pain, flexibility/limberness, level of stress, happiness, and enjoyment of life. The file has a separate record for each survey completed by the participants. Thus, there are 1-3 records per participant.

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Adolescent Substance Abuse Prevention Study (ASAPS), 2001-2006 [Detroit, Houston, Los Angeles, Newark, New Orleans, St. Louis] (ICPSR 28641)

Released/updated on: 2012-02-29
Geographic coverage: Detroit, United States, New Orleans, Los Angeles, Newark, St. Louis, Houston
Time period: 2001-01-01--2006-01-01

The Adolescent Substance Abuse Prevention Study (ASAPS) was a randomized field trial designed to test the effectiveness of a new school-based substance abuse prevention program called Take Charge of Your Life (TCYL). The program consisted of two curricula, one for middle schools and the other for high schools, which were delivered through the Drug Abuse Resistance Education network of law enforcement officers (D.A.R.E.). TCYL was developed building on existing D.A.R.E. seventh/eighth grade and tenth/eleventh grade curricula and applied principles and strategies suggested by published literature on effective drug abuse prevention programming and effective middle and high school curricula design. ASAPS was conducted among a 2001-2002 multi-site cohort of seventh graders who were followed for five years until the 2005-2006 school year when they were in the eleventh grade. The first TCYL curriculum was delivered in the treatment schools when the students were in seventh grade and the second was delivered when they were in the ninth grade.

Over the five-year study period, the treatment and control students responded to seven self-administered surveys: (1) at baseline in the seventh grade, (2) post-intervention in the seventh grade, (3) in the eighth grade, (4) pre-intervention in the ninth grade, (5) post-intervention in the ninth grade, (6) in the tenth grade, and (7) in the eleventh grade. Topics covered by the surveys include normative beliefs, social skills, attitudes toward drug use, and self-reported use of alcohol, tobacco, marijuana, and other illicit drugs. The ASAPS data also include measures of implementation fidelity of the seventh and ninth grade TCYL curricula, which were obtained from trained observers who rated the D.A.R.E. officers' delivery in the classroom. The fidelity measures encompass content coverage and instructional strategy.

This data collection comprises two data files, both with public- and restricted-use versions. The first (the Main Data File) contains the students' survey responses and the seventh grade curriculum fidelity measures, while the second (the 9th Grade Officer Observations Data) contains the ninth grade curriculum fidelity measures.

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Adult Respite Care Funded or Provided by State Governments, 1992: [United States] (ICPSR 6584)

Released/updated on: 2006-01-12
Time period: 1992-08-01--1992-12-01
This study surveyed state government agencies in the United States to determine the nature and extent of adult respite care delivered by these agencies or supported under their auspices. Officials of state agencies were queried on the types of respite care services offered, components of care, eligibility and service limitations, total number of people served, number of people with Alzheimer's disease served, how their programs were created, the cost of respite care to the state, and the funding mechanisms used to support respite care. The data include the name of each surveyed state agency, the name of its respite care program, and contact information for the agency.
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Aligning Forces for Quality Evaluation: Consumer Survey Round 1, 2007-2008 and 2010 (ICPSR 35259)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2007-06-01--2008-08-01, 2010-01-01--2010-05-01
This survey was conducted as part of the evaluation of the Aligning Forces for Quality (AF4Q) initiative, the Robert Wood Johnson Foundation's signature effort to lift the overall quality of health care in 17 targeted communities, reduce racial and ethnic disparities and provide models of national reform. The survey was administered to adults with one or more of five chronic illnesses -- diabetes, hypertension, heart disease, asthma and depression -- in the AF4Q communities and a national sample residing in non-AF4Q communities to provide a basis for comparison between the AF4Q communities and the rest of the United States. Survey questions focused on patient activation; consumer knowledge of publicly available performance reports that highlight quality differences among physicians, hospitals, and health plans; the ability to be an effective consumer in the context of a physician visit; patient knowledge about her/his illness; skills and willingness to self-manage one's illness; the impact of insurance and payment models; and the relationship between out-of-pocket costs and health care utilization.
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Aligning Forces for Quality Evaluation: Consumer Survey Round 2, 2011-2012 (ICPSR 37220)

Released/updated on: 2019-10-14
Geographic coverage: United States
Time period: 2011-01-01--2012-01-01
This survey was conducted as part of the evaluation of the Aligning Forces for Quality (AF4Q) initiative, which is the Robert Wood Johnson Foundation's effort to lift the overall quality of health care in 17 targeted communities, reduce racial and ethnic disparities, and provide models of national reform. The survey was administered to adults with one or more of five chronic illnesses, diabetes, hypertension, heart disease, asthma and depression, in the AF4Q communities and a national sample residing in non-AF4Q communities to provide a basis for comparison between the AF4Q communities and the rest of the United States. Survey questions focused on patient activation; consumer knowledge of publicly available performance reports that highlight quality differences among physicians, hospitals, and health plans; the ability to be an effective consumer in the context of a physician visit; patient knowledge about her/his illness; skills and willingness to self-manage one's illness; the impact of insurance and payment models; and the relationship between out-of-pocket costs and health care utilization. In 2011 the AF4Q evaluation team contracted with RTI International (RTI) to conduct the Aligning Forces for Quality Consumer Survey 2.0 (AF4Q 2.0).
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American Communities Project, United States, 2023-2024 (ICPSR 39419)

Released/updated on: 2025-09-08
Geographic coverage: United States
Time period: 2020-01-01--2024-01-01
These are data files from the American Communities Project's study of American Fragmentation. These surveys asked people in 15 different types of communities about their attitudes on a variety of issues and concerns with the goal of identifying where there are commonalities and differences among them. For most of the types, 13 of 15, the surveys were conducted with a probability-based online panel. For two of the communities, where the populations are particularly sparse, the surveys were conducted via RDD (Random Digit Dialing). Those types are the Aging Farmlands and Native American Lands. Because of the cost of RDD, those types were not included on some questions.
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American Health Values Survey (AHVS): Sentinel Communities Segmentation, 5 American communities, 2016-2017 (ICPSR 37910)

Released/updated on: 2021-11-22
Geographic coverage: Baltimore, United States, Phoenix, California, Alabama, Maryland, Mobile, Arizona, Stockton, Nebraska
Time period: 2016-01-01--2017-01-01

The American Health Values Survey (AHVS) was conducted by the National Opinion Research Center (NORC) at the University of Chicago in order to develop a typology of Americans based on their health values and beliefs. The survey, of more than 10,000 adults from five individual communities, examined values and beliefs related to health at both the individual as well as societal levels. The community surveys sought to compare differences between the local typologies, but also to investigate any similarities with national typology groups. The survey assessed the importance of health in:

  • day-to-day personal life (i.e. the amount of effort spent on disease prevention as well as appropriate seeking of medical care);
  • equity, the value placed on the opportunity to succeed generally in life as well as on health equity;
  • social solidarity, the importance of taking into account the needs of others as well as personal needs;
  • health care disparities, views about how easy/hard it is for African Americans, Latinos and low-income Americans to get quality health care;
  • and, the importance of the social determinants of health.

In addition, the survey also explored views about how active government should be in health; collective efficacy, the ease of affecting positive community change by working with others; and health-related civic engagement e.g. the support of health charities and organizations working on health issues.

There are public-use and restricted-use versions of the data provided for each of the five sentinel communities participating in this study. Although each site differs on the number of respondents as listed below, each data file contains the same 143 variables for each site and version of the data. The only difference between the public-use versus restricted-use versions of the data is the variable ZIP, which was MASKED in the public-use version.

  • DS1 and DS2 - Baltimore, Maryland: 2,139
  • DS3 and DS4 - Maricopa County, Arizona: 2,247
  • DS5 and DS6 - Stockton, California: 2,127
  • DS7 and DS8 - Mobile, Alabama: 1,821
  • DS9 and DS10 - North Central counties in Nebraska: 2,846
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American Health Values Survey II, [United States], 2019-2020 (ICPSR 38818)

Released/updated on: 2025-03-05
Geographic coverage: United States
Time period: 2019-01-01--2020-01-01

The Robert Wood Johnson Foundation (RWJF) has a vision to build a Culture of Health (CoH) by making health a shared national priority, one valued and advanced by multiple stakeholders across all sectors of society. This vision embraces a very broadly integrated and comprehensive approach to health, one where well-being lies at the center of every aspect of American life. In 2014, the RWJF commissioned NORC at the University of Chicago to plan and conduct the first American Health Values Survey (AHVS) to understand the extent to which United States adults held views consistent with this vision. The idea was to explore which types of United States adults were more supportive and less supportive of the goal and what the differences were between the more and less supportive groups. To aid in the understanding of these differences, NORC developed a typology of United States adults based on their values and beliefs related to the CoH vision.

Using a large-scale national survey fielded in late 2015 and early 2016, NORC identified six major segments of the population of adults in the United States based on their differing health values and beliefs and developed detailed profiles of each segment that described their pattern of values and beliefs as well as their demographic, political and other characteristics. NORC subsequently replicated the typology development work in five RWJF Sentinel Communities across the nation and also developed a typology of rural America. The same segments, or similar ones, were common across various geographic areas of the United States. Four years have since passed, in which changes occurred in the country. RWJF in 2019 commissioned NORC to conduct a second national, cross-sectional survey (AHVS II) in late 2019 and early 2020.

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American Health Values Survey, [United States], 2015-2016 (ICPSR 37403)

Released/updated on: 2021-12-07
Geographic coverage: United States
The American Health Values Survey was conducted by the National Opinion Research Center (NORC) at the University of Chicago in order to develop a typology of Americans based on their health values and beliefs. The survey examined values and beliefs related to health at both the individual as well as societal levels. The survey assessed the importance of health in day-to-day personal life (i.e. the amount of effort spent on disease prevention as well as appropriate seeking of medical care); equity, the value placed on the opportunity to succeed generally in life as well as on health equity; social solidarity, the importance of taking into account the needs of others as well as personal needs; health care disparities, views about how easy/hard it is for African Americans, Latinos and low-income Americans to get quality health care; and, the importance of the social determinants of health. In addition, the survey also explored views about how active government should be in health; collective efficacy, the ease of affecting positive community change by working with others; and health-related civic engagement e.g. the support of health charities and organizations working on health issues.
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American Life Panel (ALP) (ICPSR 39382)

Released/updated on: 2025-04-11
Geographic coverage: United States
The RAND American Life Panel (ALP) is a nationally representative panel of 11,000 members ages 18 and older who speak English or Spanish. The ALP has expanded from about 800 members in 2003 to its current size. ALP surveys are conducted online to provide quick, affordable, and high-quality results. To enhance the representativeness of the panel, RAND provides internet services and computers to members that would otherwise not be able to participate. ALP members are primarily recruited through probability-based methods. Once in the ALP, participants tend to remain indefinitely, resulting in relatively low attrition rates. ALP panel members are responsive, with survey completion rates generally in the 70%-80% range. All respondent data collected with the American Life Panel are accompanied by demographic information about each respondent. This set of demographics is collected three times a year through a household information survey. The content collected from the household information survey is patterned after the Current Population Survey (CPS) to aid in weighting the data. Files from different studies can be merged using a unique identifier for each panel member. The ALP has conducted more than 450 surveys covering diverse topics, such as financial decision-making, the effect of political events on self-reported well-being, inflation expectations, joint retirement decisions, retirement preferences, health decision-making, Social Security knowledge and expectations, measurement of health utility, and numeracy. All public data are available for free to researchers. Restricted data for the ALP is available to approved researchers at a cost.
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Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)

Released/updated on: 2024-12-12
Geographic coverage: United States
Time period: 1986-01-01--2021-01-01

The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

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Annenberg Tobacco Risk Study, 1999: [United States] (ICPSR 3049)

Released/updated on: 2001-03-09
Geographic coverage: United States
The aim of this survey was to understand how well young people in the United States appreciate the many risks of smoking tobacco. To this end, 14 to 22-year-olds were interviewed about their views and practices concerning smoking. The survey elicited opinions on the health risks of smoking, including heart disease, lung cancer, shortened life spans, adverse birth outcomes caused by smoking during pregnancy, and the dangers of secondhand smoke. Respondents were asked if they thought tobacco was addictive, helped keep one's weight down, made it easier to relax and have a good time with friends, and if one should be allowed to smoke as a matter of personal choice. Smokers were asked how long and how much they smoked, which brand of cigarettes they smoked most, and if they considered themselves addicted to tobacco. The survey also gathered information on age, sex, education, race, and Hispanic origin.
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Assessment of a Program of Public Information on Health Care Reform, 1992-1993: [Wichita, Kansas, and Des Moines, Iowa] (ICPSR 6066)

Released/updated on: 1998-04-20
Geographic coverage: Des Moines, Wichita, Iowa, United States, Kansas
Time period: 1992-10-17--1993-01-28
The purpose of this data collection was to assess the impact on public opinion of an informational program on health care reform in the United States. This educational campaign, designed and carried out by the Public Agenda Foundation with the cooperation of various media and community organizations, was intended to inform the public in targeted communities about the condition of the United States health care system, particularly regarding cost and accessibility of health care, and various reform initiatives being debated by policymakers. A pre- and post-treatment survey design with controls was used. Surveys were conducted in Wichita, Kansas (the treatment community) before and after the program was administered in that city. Parallel surveys were conducted in Des Moines, Iowa (the control community), where the program was not introduced. In both cities, respondents were asked their opinions about the cost of health care, access to health care, and health care reform, including willingness to pay more taxes for health care. In addition, respondents were queried about the status of health insurance coverage for themselves and their families, and how satisfied they were with the health care services that they and their families had received in the last few years. The surveys also solicited opinions concerning other issues, such as crime and drug abuse, the economy and unemployment, race relations, the quality of public school education, pollution and the environment, alcoholism, and homelessness. Background information on respondents includes age, sex, marital status, education, employment, and family income.
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Associated Press Health Care Reform Survey, by Stanford University with the Robert Wood Johnson Foundation, August-September 2010 [United States] (ICPSR 30422)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2010-08-31--2010-09-07
Conducted by Knowledge Networks, this survey measured public opinion about the health care overhaul that was passed by the United States Congress in March 2010. It measured support and opposition to certain general goals of the overhaul, as well as support and opposition to specific parts of the legislation. It had a particular focus on what people knew about the bill and what misperceptions they may have about what was and wasn't in the legislation. In addition, the survey investigated beliefs about the consequences of the legislation on future taxes, health insurance costs, access to health care, and the quality of health care. Other topics investigated by the survey include health status, health insurance status, trust in the federal government, approval/disapproval of the Obama Administration's performance, political ideology, religion, religiosity, and sources of news. The data file also includes demographic information collected by Knowledge Networks' initial KnowledgePanel(R) profile survey, such as age, gender, education, household size and composition, income, marital status, employment status, and ZIP code.
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Associated Press Poll on the Health Care Overhaul, by Stanford University With the Robert Wood Johnson Foundation, October-November 2009 [United States] (ICPSR 30421)

Released/updated on: 2024-02-14
Geographic coverage: United States
This poll was intended to measure public opinion about the proposed health care overhaul that was being considered by the United States Congress while the survey was in the field. It measured support and opposition to certain general goals for the overhaul, as well as support and opposition to specific policy proposals. Other topics investigated by the survey include health status, health insurance status, health care system experience, general perceptions of the health care system, political ideology, and approval/disapproval of the Obama Administration's performance. Demographic characteristics covered by the survey include marital status, employment status, year of birth, home tenure, religion, religiosity, race, Hispanic origin, and income.
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ASTHO Forces of Change Survey, United States, 2017 (ICPSR 37223)

Released/updated on: 2019-07-30
Geographic coverage: District of Columbia, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Micronesia (Federated States)

The Forces of Change Survey is an annual survey completed by the state and territorial health agencies that comprise the membership of the Association of State and Territorial Health Officials (ASTHO). ASTHO is the national nonprofit organization representing public health agencies in the United States, the U.S. territories and freely associated states, and the District of Columbia, and the over 100,000 public health professionals these agencies employ. The Forces of Change Survey primarily focuses on emergent and rapidly changing trends. The data collected sought to determine the current climate at state and territorial health agencies as it related to budget, workforce, accreditation, and special interest topics. The 2017 Forces of Change Survey examined the following topics:

  • Health agency resources
  • Activities related to the Zika virus
  • Opioid epidemic response
  • Communicating the value of public health
  • Efforts to advance health equity

The web-based survey, fielded by ASTHO in May of 2017, was administered to state and territorial health agencies through their senior deputies. A total of 52 health agencies responded (from 46 states, Washington, D.C., and five territories and freely associated states). Data included as part of this collection includes one dataset with 122 variables for 52 cases.

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ASTHO Profile Survey of State and Territorial Public Health, United States, 2012 (ICPSR 37823)

Released/updated on: 2022-06-08
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Palau, Micronesia (Federated States)
Time period: 2012-10-01--2013-05-01

The 2012 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The survey aims to define the scope of state and territorial public health services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The 121-question instrument was disseminated electronically in October 2012 and completed by senior deputies at each S/THA. The survey closed in May 2013; the response rate was 96 percent among the 50 states and D.C., and 92 percent among all states, territories, and freely associated states.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

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ASTHO Profile Survey of State and Territorial Public Health, United States, 2016 (ICPSR 37216)

Released/updated on: 2021-05-17
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Palau, Micronesia (Federated States)

The 2016 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The survey aims to define the scope of state and territorial public health services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The 129-question instrument was disseminated electronically in April 2016 and completed by senior deputies at each S/THA. The survey closed in September 2016; the response rate was 98 percent among the 50 states and D.C., and 97 percent among all states, territories, and freely associated states.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

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ASTHO Profile Survey of State and Territorial Public Health, United States, 2019 (ICPSR 37996)

Released/updated on: 2022-07-21
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Palau, Micronesia (Federated States)
Time period: 2019-04-09--2020-01-31

The 2019 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The survey aims to define the scope of state and territorial public health services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The instrument was disseminated electronically in April 2019 and completed by state and territorial health agency staff at each S/THA including senior deputies, chief financial officers, and human resource directors. The survey closed in January 2020; the response rate was 100% percent among the 50 states and D.C., and 98% percent among all states, territories, and freely associated states.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

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ASTHO Profile Survey of State and Territorial Public Health, United States, 2020 (ICPSR 38139)

Released/updated on: 2021-10-07
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Palau, Micronesia (Federated States)
Time period: 2020-12-01--2021-03-01

The 2020 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The survey aims to define the scope of state and territorial public health services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The instrument was significantly shortened for this data collection and separated into three separate surveys. The surveys were administered in December 2020 and completed by state and territorial health agency staff at each S/THA including senior deputies, chief financial officers, and human resource directors. The survey closed in March 2021; 80% of states and DC responded to at least one survey, of which 40% of states and DC responded to all three surveys; 38% of territories responded to at least one survey, of which 11% responded to all three surveys.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

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ASTHO Profile Survey of State and Territorial Public Health, United States, 2022 (ICPSR 39285)

Released/updated on: 2025-06-16
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, American Samoa, Northern Mariana Islands, Palau, Micronesia (Federated States)

The 2022 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The Profile aims to define the scope of S/THA services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The Profile began in 2007 and was fielded on average every three years between 2007 and 2022. The data collected through the Profile represent the breadth of work overseen by health agencies and shows how the public health field has shifted in response to societal changes and emergent needs. Data also reflect the structural nuances and limitations in which agencies conduct their work.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

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Bay Area Health Task Force Small Employers' Health Insurance Helpline Database, 1989-1992 (ICPSR 6112)

Released/updated on: 2008-06-02
Geographic coverage: San Francisco, United States, California
Time period: 1989-01-01--1992-01-01
The mission of the Bay Area Health Task Force (BAHTF) was to address the issues and problems of the growing number of people who were uninsured for health care. With the support of the Robert Wood Johnson Foundation, BAHTF established the Health Insurance Helpline, which provided health insurance information and referrals for small businesses. This data collection was produced in order to evaluate this Helpline. The data collection consists of four sets of data, one from each year that the Helpline service was offered (1989 through 1992). The unit of analysis is calls received by the Helpline, which were categorized by the type of caller (business, individual, other) and type of service received (broker referral, guidebook only, other). Callers were generally categorized as insured businesses, uninsured businesses, insured individuals, or uninsured individuals. (The category "other" was left for callers who could not be clearly classified as business or individual callers.) A follow-up was conducted for over a quarter of the callers to obtain feedback about the program. Callers provided information concerning their reason for calling, the number of employees they had working full-time, the nature of their business firm, whether the business firm offered health insurance, and which plan they offered.
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Bridging the Gap, Elementary School Data (Food and Fitness Survey) (ICPSR 36356)

Released/updated on: 2018-01-15
Geographic coverage: United States
Time period: 2006-01-01--2013-01-01
The Food and Fitness Survey is part of the larger Bridging the Gap (BTG) research program, which is a research initiative funded by the Robert Wood Johnson Foundation. The primary goals of the Food and Fitness survey project were to obtain nationally representative information on school practices, and to obtain information about the association between district-level wellness policies and practices in those schools. Food and Fitness involved annual surveys of school-level respondents at elementary schools from the 2006-07 to the 2012-13 school years. This study contains data from these surveys for public and private elementary schools from the 2006-07 to the 2012-13 school years. Topics of the surveys include school characteristics, school meal options and prices, food advertisements in schools, food practices in classrooms and school functions, meal times during the day, physical education facilities and curriculum, methods of transportation to and from school, school wellness policies, school beverage guidelines, the "Nutritional Guidelines for Competitive Foods", school vending machines, and a la carte as well as school store food and beverage offerings.
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Bridging the Gap/National Wellness Policy Study District Wellness Policy-Related Dataset, School Years 2006-2007 through 2013-2014 (ICPSR 36528)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2006-01-01--2014-01-01
Beginning with the school year 2006-07, the Child Nutrition and WIC Reauthorization Act of 2004 required school districts participating in the National School Lunch Program or other child nutrition programs to adopt and implement a wellness policy. The Healthy, Hunger-Free Kids Act of 2010 continued and strengthened this requirement. This study was intended to provide detailed insight into the contents of the congressionally-mandated district wellness policies for school years 2006-07 (first year of the mandate) through 2013-14 (last year of funding-supported data collection). The data file contains coded information about the required wellness policy components, along with other components that are known to contribute to student health and wellness: nutrition education; standards for USDA child nutrition programs and school meals; nutrition standards for competitive and other foods and beverages; physical education; physical activity; staff wellness and modelling; stakeholder involvement; messaging, marketing and promotion; evaluation; and reporting. There is a separate record in the data file for each district, grade level (elementary, middle and high school) and school year combination.
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Bridging the Gap/National Wellness Policy Study State Wellness Policy-Related Dataset, School Years 2006-2007 through 2013-2014 (ICPSR 36527)

Released/updated on: 2017-03-17
Geographic coverage: United States
Time period: 2006-01-01--2014-01-01
This data set contains Bridging the Gap (BTG) (school years 2006-2007 through 2012-2013) and National Wellness Policy Study (2013-2014) coded data for all state laws (statutory and administrative) that relate to areas included in the congressionally-mandated school district wellness policies. Topics include nutrition education, school meals, competitive foods, physical activity, and implementation/evaluation, as well as other topics of relevance related to physical education, communications and marketing, staff wellness, and marketing and promotion. Although the states were not required to develop laws on this topic, many do have them and many districts embed these state laws by reference in their district policies. This study was intended to provide detailed insight into the contents of state laws that overlay the congressionally-mandated district wellness policies. There is a separate record in the data file for each state, grade level (elementary, middle and high school) and school year combination.
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Business Leaders' Views on American Health Care, 1990 (ICPSR 6032)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1990-07-05--1990-12-17
This survey interviewed business leaders from Fortune 500 companies (chief executive officers, presidents, and chairmen of the board) on health care issues. Its purpose was to assess their views on the need for change in the health care system, the directions that such changes should take, and the role that business should play in the health care system. In addition, respondents were asked if their companies self-insured for insurance benefits or purchased coverage from a health insurance company, if there was an executive-level effort at their companies to decide where they stood on national health policy issues, and if they believed their companies would be able to bring their health costs under control over the next year or two. For each company, the data include information on the number of employees, the percentage of total payroll used for health care benefits, the percentage of sales in health-related business, and the company type (financial services and insurance, sales and diversified services, utilities and transportation, durable goods, nondurable goods, and forestry/mining/petroleum).
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Chronic Illness and Caregiving, 2000: [United States] (ICPSR 3402)

Released/updated on: 2024-02-14
Geographic coverage: United States
The objective of this survey, which interviewed individuals from the general public, chronically ill persons, and informal caregivers, was threefold: (1) to assess public awareness of chronic care issues and the level of support for chronic care policy initiatives, (2) to examine experiences and needs of chronically ill Americans concerning health care and other assistance, and (3) to evaluate experiences and needs of informal caregivers. Questions to the general public addressed awareness of the availability of supportive and housing services for the chronically ill, knowledge about coverage for long-term care, concerns about the future of the chronic care delivery system, support for policy initiatives such as tax credits for the chronically ill and caregivers, and support for a policy that would ensure pharmaceutical coverage in Medicare. Chronically ill interviewees responded to questions about access to and experience with chronic care and other health care services, experiences with and needs for clinical services coordination, experiences with and needs for social supports and interventions, and adjustment skills and knowledge (e.g., what were their needs for learning how to live with chronic conditions). Questions for informal caregivers focused on experiences with caregiving (e.g., for whom they provided care, how many hours they devoted to caregiving per week, and living arrangements), balance between caregiving and other areas of their lives, experiences with and needs for respite care, and availability of social supports for caregivers.
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Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)

Released/updated on: 2024-02-28
Geographic coverage: United States
Time period: 2001-01-01--2003-01-01
The Collaborative Psychiatric Epidemiology Surveys (CPES) were initiated in recognition of the need for contemporary, comprehensive epidemiological data regarding the distributions, correlates and risk factors of mental disorders among the general population with special emphasis on minority groups. The primary objective of the CPES was to collect data about the prevalence of mental disorders, impairments associated with these disorders, and their treatment patterns from representative samples of majority and minority adult populations in the United States. Secondary goals were to obtain information about language use and ethnic disparities, support systems, discrimination and assimilation, in order to examine whether and how closely various mental health disorders are linked to social and cultural issues. To this end, CPES joins together three nationally representative surveys: the NATIONAL COMORBIDITY SURVEY REPLICATION (NCS-R), the NATIONAL SURVEY OF AMERICAN LIFE (NSAL), and the NATIONAL LATINO AND ASIAN AMERICAN STUDY (NLAAS). These surveys collectively provide the first national data with sufficient power to investigate cultural and ethnic influences on mental disorders. In this manner, CPES permits analysts to approach analysis of the combined dataset as though it were a single, nationally representative survey. Each of the CPES surveys has been documented in a comprehensive and flexible manner that promotes cross-survey linking of key data and scientific constructs.
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Communities in Charge Survey, 2001-2003 [Alameda County, California, Austin, Texas, and Southern Maine] (ICPSR 4638)

Released/updated on: 2007-03-01
Geographic coverage: Texas, Maine, California, Austin
Time period: 2001-01-01--2003-01-01
This three-wave survey was conducted as part of an evaluation of the Communities in Charge (CIC) initiative, a competitive grants program funded by the Robert Wood Johnson Foundation (RWJF). CIC provided funding and technical assistance to help communities design and implement new or expand existing approaches for supplying health care to the uninsured. Three of the 14 CIC sites funded by RWJF in 2001 were selected for the survey: Alameda County, California, Austin, Texas, and southern Maine. With CIC grant support, all three created programs that provided fairly comprehensive health benefits to low-income, uninsured participants, who were interviewed by the survey within three months of enrollment (Wave 1) and again at about six months and 12 months after enrollment (Waves 2 and 3). Conducted in English in southern Maine, English and Spanish in Austin, and English, Spanish, and Cantonese in Alameda County, the survey collected information on demographic and socioeconomic characteristics, health status, health insurance coverage, access to health services, and health services utilization. Additional topics covered by the survey include out-of-pocket spending on health care, unmet health care needs, and satisfaction with and opinions about health care. There are two data files for each wave, one with the data from the Cantonese interviews and one with the data from the English and Spanish interviews.
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Community Connections in Board and Care Homes Serving Chronically Ill Adults in Ten States, 1993-1994 (ICPSR 6783)

Released/updated on: 2024-02-14
Geographic coverage: Oregon, United States, Illinois, Oklahoma, Texas, Kentucky, California, Georgia, Florida, Arkansas, New Jersey
Time period: 1993-01-01--1994-01-01
This study examined the implementation of regulations for board and care homes, and investigated formal and informal connections between these facilities and community health and social service agencies. To this end, board and care home inspectors were interviewed about their inspection practices. Inspectors were queried about the types and numbers of board and care homes inspected, frequency of inspections, consistency of regulations across types of board and care homes, proportion of time spent for initial inspections and inspections of homes already licensed, percent of time spent in specific inspection activities, areas used to determine compliance, frequently reported problems, which deficiencies inspectors consider serious, the use of inspection teams, participation of other agencies or specialists, who sees the inspection reports (e.g., agencies, departments, individuals, the public), number of license renewals and revocations, percent of last 50 homes in total compliance, number of complaint investigations in the last three months, percent of complaint reports substantiated, number of unlicensed homes in the area and type of action taken, and number of homes with social service or community-based health agency arrangements. Other variables include inspector's age, gender, education, occupation, and salary range for the current position.
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Community Hospital Program (CHP) Access Impact Evaluation Surveys, 1978-1979, 1981 (ICPSR 8245)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1978-01-01--1979-01-01
This data collection evaluates group medical practices and the ways in which they affect both access to and use of medical services. Group practices, sponsored by the Robert Wood Johnson Foundation Community Hospital Program (CHP), were selected for use in this assessment. The data were collected by the Center for Health Administration Studies at the University of Chicago, with the assistance of Chilton Research Services. Two surveys were conducted for the study: a baseline survey in 1978-1979 and a follow-up in 1981. Community residents and CHP patients in 12 communities were interviewed. Demographic and medical care data were collected for selected individuals and families in the survey areas. Data on regular sources of medical care for individuals include the type of organization used, type of practice, accessibility, frequency of visits, types of health care professionals seen, cost, and satisfaction. Also in the collection are data on perceived health, episodes of illness (including symptoms, duration, disability days, and doctors consulted), use of preventive health care services, and insurance coverage. Demographic data for individuals and families include age, sex, race, educational attainment, employment, and income. Of the 198 files in this collection, 88 are "raw" data files and 110 are frequencies. The data files consist of four types. The first type are Sample Person files. These contain the responses of group practice patients and community members. The second type are Doctor Episode files, which record doctors and episodes of illness. Family files make up the third type of file, and consist of family members' responses to the survey. Analysis files, linking patient and doctor data, are the fourth type of file. The SPSS frequency files correspond to the data files: two per file for the Sample Person files, and one per file for the remaining three types of files.
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Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults, 2008 [United States] (ICPSR 27181)

Released/updated on: 2024-02-14
Geographic coverage: United States, Texas, Massachusetts, Hawaii, California, Georgia, New York (state), Wisconsin
Time period: 2008-01-01--2009-01-01

This is the second round of the Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults. Like the first round, which was fielded in 2002 and released as ICPSR 4301 (Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002), the second round was conducted as part of the evaluation of the CPFOA Program, an initiative of the Robert Wood Johnson Foundation (RWJF) aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private partnerships. The 2002 survey was conducted in the 13 communities in which partnerships received development grants from RWJF, and, in 2008, the survey was repeated in the eight of them in which partnerships received implementation grants from the Foundation. The goal of the survey was to improve understanding of the characteristics of older adults, their knowledge and perceptions about issues related to long-term care, and their use of long-term care services and support. In addition, the data collected by the survey enabled the communities to target the partnership's activities in the most effective way.

The second round was based on the 2002 survey instrument. Changes to the instrument were minimized so that the data from the 2002 and 2008 rounds would be comparable. The instrument was modified to delete questions that had low item response in 2002, to add questions requested by the partnerships, to add questions for decision-makers, or to modify questions that were outdated. As in 2002, the 2008 survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.

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Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002 [United States] (ICPSR 4301)

Released/updated on: 2024-02-14
Geographic coverage: Vermont, United States, Hawaii, California, New York (state), Maui, Arkansas, Michigan, Texas, Massachusetts, Georgia, Wisconsin, Boston
This survey is one component of the evaluation of the Community Partnerships for Older Adults (CPOA) Program, an initiative of the Robert Wood Johnson Foundation aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private community partnerships. The survey interviewed a representative sample of older adults aged 50 and over in 13 communities that were awarded development grants by the program. Designed to obtain baseline data about each community's population and to provide information to target the CPOA's activities in the most effective way, the survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.
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Community Tracking Study Household Survey, 1996-1997, and Followback Survey, 1997-1998: [United States] (ICPSR 2524)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-07-01--1997-07-01, 1997-10-01--1998-08-01
This data collection comprises two components of the Community Tracking Study (CTS), the Household Survey and the Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. At the beginning of each interview, a household informant was identified and queried about the composition of the household. With this information, individuals in the household were grouped into family insurance units (FIU). An FIU reflects family groupings typically used by insurance carriers. It includes an adult household member, his or her spouse, if any, and any dependent children 0-17 years of age (or 18-22 years of age if a full-time student). Family informants, selected from each FIU in the household, provided information on health insurance coverage, health care use, usual source of care, and the general health of all persons in the FIU. These informants also provided information on family income and out-of-pocket expenses for health care, as well as employment, race, and Hispanic origin for all adult FIU members. Each adult in the household, including the FIU informants, responded through a self-response module to questions regarding unmet health care needs, patient trust, satisfaction with physician choice, limitations in daily activities, smoking behaviors, and last doctor visit. In FIUs with more than one child under 18, only one child was randomly selected for inclusion in the survey. The family informant responded on behalf of the child regarding unmet needs and satisfaction with physician choice. The adult family member who took this child to his or her last doctor visit responded to questions about the visit. The Followback Survey was designed to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to health plans and other organizations that offered or administered the comprehensive private health insurance policies covering Household Survey respondents in the 60 CTS sites. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--2000-01-01
This collection comprises the second round of the Community Tracking Study (CTS) Household Survey and the second round of the CTS Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] (ICPSR 2524)), the second round of the Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. The purpose of the Followback Survey was to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to the health plans and other organizations (managed care organizations, third-party administrators, employer or union plans, and employers) that offered or administered the respondents' comprehensive private health insurance policies. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This collection comprises the third round of the Community Tracking Study (CTS) Household Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and the effects of those changes on people. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the Household Survey (ICPSR 2524 and 3199), the third round was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. A new set of sample design variables was added to the third round data for variance estimation by statistical software packages other than SUDAAN.
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Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)

Released/updated on: 2007-12-03
Geographic coverage: United States
Time period: 2003-01-01--2004-01-01
This collection contains data and documentation for the fourth round of the Community Tracking Study (CTS) Household Survey. Sponsored by the Robert Wood Johnson Foundation, the CTS is a national study designed to track changes in the United States' health care system and their effects. The fourth round was administered to households in the 60 CTS sites: 51 metropolitan areas and nine nonmetropolitan areas which were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The first round of the CTS Household Survey was conducted in 1996-1997 (ICPSR 2524), the second round in 1998-1999 (ICPSR 3199), and the third in 2000-2001 (ICPSR 3764). Respondents to the fourth round provided information about health insurance coverage, use of health services, unmet needs for health care, children's special health care needs, out-of-pocket medical costs, patient trust in physicians, sources of health information, attitudes about medical care, and satisfaction with health care and health plans. Health status, chronic conditions, and risk attitudes and smoking behavior were additional topics covered by the fourth round questionnaire. The data include variables on height and weight, employment, income, ethnicity, race, United States citizenship, household composition, and demographic characteristics.
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Community Tracking Study Physician Survey, 1996-1997: [United States] (ICPSR 2597)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-08-01--1997-08-01
Sponsored by the Robert Wood Johnson Foundation, this survey is one component of the Community Tracking Study (CTS), a national study designed to track changes in the health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Physician Survey was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. Information gathered by the survey instrument includes physician supply and specialty distribution, practice arrangements and physician ownership of practices, sources of practice revenue, level and determinants of physician compensation, effects of care management strategies, and physicians' allocation of time, provision of charity care, career satisfaction, and perceptions of their ability to deliver care. For primary care physicians, the survey instrument also provided vignettes of various clinical presentations for which there was no prescribed method of treatment. These physicians were asked to indicate the percentage of patients for whom they would recommend the course of action specified in each particular vignette. Part 3, the Site and County Crosswalk Data File, describes which counties constitute each site. Part 4, the Physician Survey Summary File, contains site-level averages and percentages and standard errors of these estimates for selected attributes, e.g., the percentage of physicians who were foreign medical school graduates, average age of physicians, average percentage of patient care practice revenue from Medicaid, etc.
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Community Tracking Study Physician Survey, 1998-1999: [United States] (ICPSR 3267)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--1999-01-01

This study comprises the second round of the physician survey component of the Community Tracking Study (CTS) sponsored by the Robert Wood Johnson Foundation. The CTS is a national study designed to track changes in the American health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the physician survey (COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597)), the second round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, views on care management strategies, and various other aspects of physicians' practice of medicine. In addition, primary care physicians (PCPs) were asked to recommend courses of action in response to some vignettes of clinical presentations for which there was no prescribed method of treatment.

Dataset 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site.

Dataset 4, the Physician Survey Summary File, contains site-level estimates and standard errors of the estimates for selected physician characteristics, e.g., the percentage of physicians who were foreign medical school graduates, the mean age of physicians, and the mean percentage of patient care practice revenue from Medicaid.

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Community Tracking Study Physician Survey, 2000-2001: [United States] (ICPSR 3820)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This study comprises the third round of the physician survey component of the Community Tracking Study (CTS). Sponsored by the Robert Wood Johnson Foundation, the CTS is a large-scale investigation of changes in the health care system and their effects on people. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the physician survey, COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597) and COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1998-1999: [UNITED STATES] (ICPSR 3267), the third round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, effects of care management strategies, and various other aspects of physicians' practice of medicine. Part 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site. Part 4, Physician Survey Summary File, contains site-level estimates and standard errors for selected physician characteristics, e.g., the average age of physicians, the percentage of physicians who were either very or somewhat dissatisfied with their overall career in medicine, and the average percentage of patients with prescription coverage that included the use of a formulary.
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Community Tracking Study Physician Survey, 2004-2005: [United States] (ICPSR 4584)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2004-01-01--2005-01-01
This is the fourth round of the physician survey component of the Community Tracking Study (CTS). The first round was conducted in 1996-1997 (ICPSR 2597), the second round in 1998-1999 (ICPSR 3267), and the third in 2000-2001 (ICPSR 3820). Sponsored by the Robert Wood Johnson Foundation, the CTS is a large-scale investigation of changes in the American health care system and their effects on people. As in the previous rounds, physicians were sampled in the 60 CTS sites: 51 metropolitan and 9 nonmetropolitan areas that were randomly selected to form the core of the CTS and to be representative of the nation as a whole. However, the fourth round lacks an independent supplemental national sample of physicians, which augmented the CTS site sample in the previous rounds. Information collected by the survey includes net income from the practice of medicine, year of birth, sex, race, Hispanic origin, year of graduation from medical school, specialty, board certification status, compensation model, patient mix (e.g., race/Hispanic origin of patients and percent with chronic conditions), career satisfaction, practice type, size, and ownership, percent of practice revenue from Medicare, Medicaid, or managed care, acceptance of new Medicaid and Medicare patients and, if applicable, reasons for not accepting them, use of information technology for care management, number of patient visits and hours worked in medically related activities during the last complete week of work, and the number of hours spent providing charity care in the last month. In addition, the survey elicited views on a number of issues such as patient-physician interactions, competition among practices, the influence of financial incentives on the quantity of services provided to patients, trends in the amount and quality of nursing support, one's ability to provide quality care and obtain needed services for patients, and the importance of various factors that may limit the quality of care. Part 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site. Part 4, Physician Survey Summary File, contains site-level estimates and standard errors for selected physician characteristics, e.g., the average age of physicians, the average percentage of patients with a formulary, and the percentage of physicians who said medical errors in hospitals are a minor problem.
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Comparative Analysis of Small and Large Group Health Care Utilization and Costs, 1988-1990: [Western Pennsylvania] (ICPSR 6859)

Released/updated on: 2006-01-18
Time period: 1988-01-01--1990-01-01
To investigate whether the use of health care services is a function of firm size, this project assembled longitudinal data on private health insurance claims for firms located in western Pennsylvania. Parts 1-3 are person-level files for health insurance claims and include variables such as contract relationship (contract holder/employee, spouse/dependent), gender, age (less than or equal to 14 years, 14+), utilization type (hospital inpatient, hospital outpatient, professional, major medical), quarter and year of discharge for hospital inpatient utilization, quarter and year of service for hospital outpatient and professional services utilization, length of stay (high, medium, low), type of professional claim (inpatient, outpatient, office, other), and total and average charges (high, medium, low). Firm-level variables in Parts 4-6 include average age, percent of enrollees under age 14, and firm size as measured by the number of contracts or the average number of employed plan participants in three categories (1-50, 51-500, and 500+). Additional firm-level variables are measured as three-tier indices (high, medium, and low): proportions of enrollees with inpatient, outpatient, professional, and major medical utilization, average charge per day and average length of stay for inpatient utilization, average charge per claim for outpatient utilization and for professional services, and average charges per admission and services for major medical utilization.
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Consumer Healthcare Experience State Surveys, United States, 2022 (ICPSR 38596)

Released/updated on: 2023-05-03
Geographic coverage: United States, Illinois, Missouri, Maryland, New Jersey

Altarum's Consumer Healthcare Experience State Survey (CHESS) and Medical Debt Survey are designed to elicit respondents' unbiased views on a wide range of health system issues, including confidence in using the health system, financial burden, medical debt, and views on fixes that might be needed. The surveys use a web panel from Dynata with a demographically balanced sample of approximately 1,500 respondents who live in a targeted state. The surveys were conducted in English or Spanish and restricted to adults ages 18 and older. Respondents who finished the surveys in less than half the median time were excluded from the final sample.

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Simple Crosstabs

Consumer Healthcare Experience State Surveys, United States, 2023 (ICPSR 39031)

Released/updated on: 2026-04-16
Geographic coverage: Mississippi, United States, Louisiana, Florida, Utah
Altarum's Consumer Healthcare Experience State Survey (CHESS) is designed to elicit respondents' unbiased views on a wide range of health system issues, including confidence in using the health system, financial burden, and views on fixes that might be needed. The survey uses a web panel from Dynata with a demographically balanced sample of approximately 1500 respondents who live in a targeted state. The survey was conducted in English or Spanish and restricted to adults ages 18 and older. Respondents who finished the survey in less than half the median time were excluded from the final sample.
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Core Competencies for Public Health Professionals Integrated into the TrainingFinder Real-time Affiliate Integrated Network (TRAIN), 2003-2011: TRAIN Database Dictionary and Three Tailored Datasets (ICPSR 32781)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2003-01-01--2011-01-01

This data collection contains the TrainingFinder Real-time Affiliate Integrated Network (TRAIN) database dictionary and three data files derived from the TRAIN database. A project of the Public Health Foundation, TRAIN (www.train.org) is a comprehensive learning resource for public health professionals, such as epidemiologists, public health officials, health educators, environmental health professionals, social workers, nurses, physicians, emergency responders, and mental health providers. Learners can use TRAIN to search for on-site and distance learning courses, register on-line for courses, provide and view feedback about courses, and create a personal training record of competency-based training and continuing education requirements. Course providers can use TRAIN to publicize courses, manage online registration and student rosters, collect feedback from learners, and post course materials and discussion topics.

Core Competencies for Public Health Professionals is a set of skills, knowledge, and attitudes necessary for the broad practice of public health. Adopted by the Council on Linkages Between Academia and Public Health Practice, this list of competencies was incorporated into TRAIN.

Comprising a small subset of the information in the TRAIN database, the three data files were tailored to facilitate public health systems and services research. The first data file contains demographic information about every registered TRAIN learner: street address, county, city, state, ZIP code, country, education level, gender, race, Hispanic origin, birth date, primary language, and secondary language. The second data file is a tabulation which shows the core competencies covered by each course offered through TRAIN, together with the course titles, expiration dates, and the organizations offering the courses. The last data file is a tabulation which shows the number of TRAIN courses and learners by core competency and professional role.

The TRAIN database dictionary describes all of the variables in the TRAIN database, including those not provided with this data collection.

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Costing Study of the Clients of the Mobile Community Treatment Program [1987-1988: Madison, Wisconsin] (ICPSR 9843)

Released/updated on: 2024-02-14
Geographic coverage: Madison, United States, Wisconsin
Time period: 1987-01-01--1988-12-01
The University of Wisconsin's Department of Preventive Medicine, in cooperation with the Department of Psychiatry and the Mental Health Center of Dane County, Wisconsin, conducted a comprehensive costing study of the clients of a community-based program for treating the mentally ill, the Mobile Community Treatment program (MCT), in Madison, Wisconsin. MCT provided assertive outreach and case management for individuals with major psychiatric disorders. The aim of this study was to determine the costs for clients of MCT to live in the community, including the costs of their medical, residential, employment, law enforcement, and maintenance needs. Clients of MCT were queried about their use of services provided by medical, human service, and law enforcement agencies, as well as their receipt of in-kind and cash benefits from public and private agencies. Service and cost data on survey respondents were also obtained from the records of local agencies, such as the Dane County Sheriff's Department, Dane County Circuit Court, Dane County Department of Public Health, homeless shelters, Adult Protective Services, and vocational training programs.
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Simple Crosstabs

COVID-19 and the Experiences of Populations at Greater Risk: Wave 1 General Population, United States, 2020-2021 (ICPSR 38736)

Released/updated on: 2023-09-25
Geographic coverage: United States
Time period: 2020-06-29--2020-07-22

In the context of COVID-19, RAND and the Robert Wood Johnson Foundation have partnered to build from the National Survey of Health Attitudes to implement a longitudinal survey to understand how health views and values have been affected by the experience of the pandemic, with particular focus on populations deemed vulnerable or underserved, including people of color and those from low-to moderate-income backgrounds.

Questions in this COVID-19 survey focused specifically on experiences related to the pandemic (e.g., financial, physical, emotional), how respondents viewed the disproportionate impacts of the pandemic, whether and how respondents' views and priorities regarding health actions and investments are changing (including the roles of government and the private sector), and how general values about such issues as freedom and racism may be related to pandemic views and response expectations.

This study includes the results for Wave 1 for the general population.

Demographic information includes sex, marital status, household size, race and ethnicity, family income, employment status, age, and census region.

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Simple Crosstabs

COVID-19 and the Experiences of Populations at Greater Risk: Wave 1, United States, 2020-2021 (ICPSR 38732)

Released/updated on: 2023-07-13
Geographic coverage: United States
Time period: 2020-06-29--2020-07-22

In the context of COVID-19, RAND and the Robert Wood Johnson Foundation have partnered to build from the National Survey of Health Attitudes to implement a longitudinal survey to understand how health views and values have been affected by the experience of the pandemic, with particular focus on populations deemed vulnerable or underserved, including people of color and those from low-to moderate-income backgrounds.

This is the first of a four-wave survey intended for individuals and organizations interested in learning more about public attitudes about a Culture of Health and how COVID-19 specifically may influence views about health, health investments, and how different populations are affected. This a longitudinal study, collecting data in four waves. The study also included 2 populations: A sample of populations at greater risk, and a general population sample. This study includes the results for Wave 1 for populations at greater risk.

Demographic info includes sex, marital status, household size, race and ethnicity, family income, employment status, age, and census region.
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COVID-19 and the Experiences of Populations at Greater Risk: Wave 2, United States, 2020-2021 (ICPSR 38733)

Released/updated on: 2023-07-12
Geographic coverage: United States
Time period: 2020-10-09--2020-11-02

In the context of COVID-19, RAND and the Robert Wood Johnson Foundation partnered again to build from the National Survey of Health Attitudes to implement a longitudinal survey to understand how health views and values have been affected by the experience of the pandemic, with particular focus on populations deemed vulnerable or underserved, including people of color and those from low- to moderate-income backgrounds.

The study is a longitudinal study, collecting data in four waves. The study also included 2 populations: A sample of populations at greater risk, and a general population sample. This study includes the results for Wave 2 for populations at greater risk.

One previous wave and two future waves were conducted. The questions in the surveys were largely similar across all four waves. All respondents who participated in Wave 1 were invited to participate in the future waves.

Demographic info includes sex, marital status, household size, race and ethnicity, family income, employment status, age, and census region.