Survey of Long-Term Care Awareness and Planning, 2014 [United States] (ICPSR 36969)

Version Date: Dec 21, 2017 View help for published

Principal Investigator(s): View help for Principal Investigator(s)
Joshua M. Wiener, RTI International

Version V1

The Survey of Long-Term Care Awareness and Planning was designed to measure the attitudes of Americans ages 40-70 towards long-term care (LTC), retirement planning, and insurance policy preferences. Few people have private LTC insurance, and Medicare does not cover LTC. Many older adults pay for LTC out of their income and personal savings until they are poor enough to qualify for Medicaid. Others, to avoid exhausting their financial resources and relying on Medicaid, depend on unpaid family support or go without needed services. The Survey of Long-Term Care Awareness and Planning collected data on LTC in order to help inform federal policy in this area.

The survey collected respondents' current health information, willingness to take risks, plans for disability care, retirement preparation, and insurance coverage. Part of the survey was a discrete choice experiment (DCE) or conjoint analysis designed to elicit respondent preferences on specific features of LTC insurance. This section included choices on daily benefit, benefit period, deductible period, health requirements, type of insurer, monthly premium, and voluntary or universal. Respondents were also asked about the types of investments they had, where they received health information, opinions on the US healthcare system, whether they had been diagnosed with specific health conditions, willingness to make lifestyle changes due to a disability, concerns about long-term disability care, and opinions on who should be responsible for the costs of LTC. Demographic information collected includes age, education, household size, race, gender, income, marital status, and region.

Wiener, Joshua M. Survey of Long-Term Care Awareness and Planning, 2014 [United States]. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2017-12-21.

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United States Department of Health and Human Services


Inter-university Consortium for Political and Social Research
2014-08-08 -- 2014-09-21

To help inform federal policy on Long Term Care (LTC) financing and service delivery by collecting data on Americans' awareness and attitudes towards LTC. Specifically, to understand consumer attitudes, knowledge, and experiences with LTC, how people plan for the risk of needing LTC, and people's preferences among public policies on LTC financing. Additionally, to examine consumer preferences for specific features of individual LTC insurance policies.

The data collection instrument was developed by drawing on questions from earlier surveys, including the Health and Retirement Study, America's Health Insurance Plan's Buyer/Non-Buyer Survey, MetLife's Long Term Care IQ Survey, Lake Research Partners and American Viewpoint's survey of California voters, the Own Your Future survey, and the Hawaii Long-Term Care Commission survey of Hawaii residents. The survey was designed by RTI in collaboration with ASPE, was programmed and fielded by GfK, Inc. Internet panel members received a notification e-mail letting them know there was a new survey available for them to take. This e-mail notification contained a link that connected them to the survey questionnaire. After 3 days, automatic e-mail reminders were sent to non-responding panel members in the sample. Respondents self-administered the questionnaire in the privacy of their own home or location of their choice. After data collection was complete, the final data file was generated at GfK, reviewed by multiple supervisors, and randomly checked on a case level to ensure proper merging and formatting. GfK de-identified and encrypted the data before final delivery to RTI.

The sample for the survey consisted of 24,878 non-institutionalized adults aged 40 to 70, which was a census of all people in this age category who participated in KnowledgePanel, an Internet panel maintained by GfK Custom Research. A total of 15,298 persons responded to the survey, yielding a 61.5% cooperation rate. Thirty cases were excluded because they answered fewer than one-third of the substantive survey questions.

KnowledgePanel, developed and maintained by GfK Custom Research, is a probability-recruited online research panel. Panel members are recruited using residential addresses that cover approximately 97% of U.S. households; individuals are not allowed to simply volunteer for the panel, they must be randomly recruited to participate. KnowledgePanel consists of about 55,000 adult members (ages 18 and older) and includes persons living in cell phone-only households. The Hispanic population is also represented in KnowledgePanel with members recruited in both English and Spanish.


Non-institutionalized adults age 40 to 70 living in the U.S.




2018-02-15 The citation of this study may have changed due to the new version control system that has been implemented. The previous citation was:
  • Wiener, Joshua M. Survey of Long-Term Care Awareness and Planning, 2014 [United States]. ICPSR36969-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2017-12-21.

The data are not weighted, however, this collection contains the variable WEIGHT which must be used in any analysis. For more information on weights please refer to the User Guide.


  • The public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.