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Showing 1 – 37 of 37 results.
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Project HealthDesign: BreathEasy - A Personal Health Record Application For Adults With Asthma, 2011-2012 (ICPSR 36027)

Released/updated on: 2024-02-14
Geographic coverage: Virginia, Richmond
Time period: 2011-01-01--2012-01-01
Asthma is a chronic illness that affects more than 23 million adults in the United States. In addition to respiratory symptoms associated with the disease, individuals with asthma are also more likely to experience depression and anxiety. The BreathEasy team designed a mobile application built on the latest clinical guidelines for treatment and self-monitoring for patients with asthma. Patients with asthma used the application on smartphones to capture and report observations of daily living (ODLs) such as use of controller and rescue medications, asthma symptoms (including peak flow rates), depression and anxiety symptoms, encounters with asthma triggers, physical activity levels (including accelerometer based data), sleeping problems, and smoking. Clinicians used a web based dashboard with simple analysis and visualization tools that allowed them to quickly view the patients' data, evaluate their health statuses, and communicate changes in treatment or monitoring. This data collection contains the ODL data recorded by the patients.
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Project HealthDesign: Chronology.MD - Personal Health Record Applications for Patients With Crohn's Disease, 2011-2012 (ICPSR 36028)

Released/updated on: 2024-02-14
Geographic coverage: San Francisco, California
Time period: 2011-01-01--2012-01-01
More than 600,000 people in the United States live with Crohn's disease, a chronic and progressive disorder of the digestive system which is most prevalent in young adults ages 18-35. The Chronology.MD team developed two mobile applications to help patients who have Crohn's disease create visually aided narratives of their condition and responses to treatment. Crohn's patients used the Chronology app to enter observations of daily living (e.g., levels of abdominal pain, energy, and stress); enter clinical data (levels of B-12, C-Reactive Protein, HTC and iron in the blood); automatically upload weight data using Withings scales; and automatically uploaded sleep and exercise data from Fitbit body monitors. The Crohnograph app enabled patients to view time trends for tracked ODLs and other data, explore possible associations among them, and show the data visualizations to their health care provider. The providers could document information from the visualization and conversations in clinical notes. This data collection comprises the data collected using the Chronology app from the patients who participated in the Chronology.MD study.
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Culturally Focused Psychiatric Consultation Service For Massachusetts General Hospital's Asian American and Latino American Primary Care Patients with Depression, 2009-2011 (ICPSR 34495)

Released/updated on: 2024-02-14
Geographic coverage: United States, Massachusetts
Time period: 2009-12-16--2011-08-17

This randomized controlled trial evaluated a culturally appropriate intervention to improve the recognition and treatment of depression among Asian and Latino American primary care patients at Massachusetts General Hospital (MGH), using a culturally focused psychiatric (CFP) consultation with a team of mental health providers who were bilingual/bicultural, trained in culturally competent techniques, and familiar with the cultures and languages of the patients served. Targeted minority patients who screened positive for clinical depression were eligible to participate in the trial. The intervention patients were offered the CFP consultation at baseline and, if eligible, received the CFP patient toolkit as part of their treatment. The toolkit provided psychoeducation and tools for managing depression as well as information on community resources. The usual care patients were offered standard referrals to MGH mental health resources.

Questionnaires were administered to the patients at screening, baseline, two-week follow-up, and six month follow-up. The screening questionnaires included the two-item Public Health Questionnaire (PHQ-2) and demographic questions. Assessment measures administered to the intervention patients at baseline included the Mini International Neuropsychiatric Interview (MINI), Quick Inventory of Depressive Symptomatology-Self Rated Scale (QIDS-SR 16), Global Assessment of Functioning (GAF), Schwartz Outcome Scale (SOS-10), and a demographic questionnaire and resource utilization questionnaire. At six month follow-up, the intervention arm was administered a resource utilization questionnaire, patient satisfaction questionnaire (Treatment Satisfaction Scale), qualitative interview, and the QIDS-SR 16 and SOS-10. The SOS-10 was also administered to the intervention patients at two-week follow-up. In the usual care arm, the QIDS-SR 16 and resource utilization questionnaire was administered at baseline and six months, the qualitative interview at six months, and the demographic questionnaire at baseline or six-months. There was no two-week assessment for the usual care patients. Electronic medical record review was used for both arms at baseline and six months, as needed. In addition, qualitative interviews were conducted with project and practice staff at the end of the study.

The data file includes the responses to the questionnaires and variables describing the CFP consultation assessment (DSM-IV Axis I, II, III, IV, and V diagnoses), treatment recommendations made to the patients' primary care physicians (PCPs) after the CFP consultation, and study staff contacts with the patients' PCPs and mental health providers. ICPSR did not receive the data from the qualitative interviews or electronic medical record reviews.

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Oregon Health Insurance Experiment, 2007-2010 (ICPSR 34314)

Released/updated on: 2014-05-02
Geographic coverage: Oregon
Time period: 2007-01-01--2010-01-01

In 2008, a group of uninsured low-income adults in Oregon was selected by lottery to be given the chance to apply for Medicaid. This lottery provides an opportunity to gauge the effects of expanding access to public health insurance on the health care use, financial strain, and health of low-income adults using a randomized controlled design. The Oregon Health Insurance Experiment follows and compares those selected in the lottery (treatment group) with those not selected (control group). The data collected and provided here include data from in-person interviews, three mail surveys, emergency department records, and administrative records on Medicaid enrollment, the initial lottery sign-up list, welfare benefits, and mortality.

This data collection has seven data files:

Dataset 1 contains administrative data on the lottery from the state of Oregon. These data include demographic characteristics that were recorded when individuals signed up for the lottery, date of lottery draw, and information on who was selected for the lottery, applied for the lotteried Medicaid plan if selected, and whose application for the lotteried plan was approved. Also included are Oregon mortality data for 2008 and 2009.

Dataset 2 contains information from the state of Oregon on the individuals' participation in Medicaid, Supplemental Nutrition Assistance Program (SNAP), and Temporary Assistance to Needy Families (TANF).

Datasets 3-5 contain the data from the initial, six month, and 12 month mail surveys, respectively. Topics covered by the surveys include demographic characteristics; health insurance, access to health care and health care utilization; health care needs, experiences, and costs; overall health status and changes in health; and depression and medical conditions and use of medications to treat them.

Dataset 6 contains an analysis subset of the variables from the in-person interviews. Topics covered by the survey questionnaire include overall health, health insurance coverage, health care access, health care utilization, conditions and treatments, health behaviors, medical and dental costs, and demographic characteristics. The interviewers also obtained blood pressure and anthropometric measurements and collected dried blood spots to measure levels of cholesterol, glycated hemoglobin and C-reactive protein.

Dataset 7 contains an analysis subset of the variables the study obtained for all emergency department (ED) visits to twelve hospitals in the Portland area during 2007-2009. These variables capture total hospital costs, ED costs, and the number of ED visits categorized by time of the visit (daytime weekday or nighttime and weekends), necessity of the visit (emergent, ED care needed, non-preventable; emergent, ED care needed, preventable; emergent, primary care treatable), ambulatory case sensitive status, whether or not the patient was hospitalized, and the reason for the visit (e.g., injury, abdominal pain, chest pain, headache, and mental disorders).

The collection also includes a ZIP archive (Dataset 8) with Stata programs that replicate analyses reported in three articles by the principal investigators and others:

Finkelstein, Amy et al "The Oregon Health Insurance Experiment: Evidence from the First Year". The Quarterly Journal of Economics. August 2012. Vol 127(3).

Baicker, Katherine et al "The Oregon Experiment - Effects of Medicaid on Clinical Outcomes". New England Journal of Medicine. 2 May 2013. Vol 368(18).

Taubman, Sarah et al "Medicaid Increases Emergency Department Use: Evidence from Oregon's Health Insurance Experiment". Science. 2 Jan 2014.

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Medicare+Choice Survey, 2000: [United States] (ICPSR 3406)

Released/updated on: 2002-05-14
Geographic coverage: United States
This survey is one component of the Monitoring Medicare+Choice Project, a national study designed to provide information on health insurance decisions made by Medicare beneficiaries. Funded by the Robert Wood Johnson Foundation, the project examined how Medicare beneficiaries responded to the implementation of the Medicare+Choice provisions of the Balanced Budget Act of 1997. Among their multiple objectives, the Medicare+Choice provisions sought to expand substantially the types of coverage choices available to Medicare beneficiaries and to encourage beneficiaries to think more actively about these choices. The Medicare+Choice Survey interviewed a sample of Medicare beneficiaries about their basic knowledge of Medicare, current Medicare coverage options, sources of supplemental insurance coverage, satisfaction with current coverage, reasons for the most recent change in Medicare coverage or lack of change since September 15, 1999, sources of information used to make their coverage choices, and salience of the choice and its most relevant considerations. Additional information collected by the survey included the respondent's health and functional status, age, sex, marital status, race, Hispanic origin, education, reading ability, household income and the number of people supported by that income, and language spoken at home.
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Creating a Patient Registry to Facilitate Data Sharing and Encourage Patient-Centered Approaches to Improving Health and Lowering Costs, 2013 (ICPSR 35570)

Released/updated on: 2016-10-05
Geographic coverage: United States, Cincinnati, Ohio
Time period: 2013-09-01--2013-12-01

This interventional pilot study was conducted in a primary care clinic to determine if patients would become more engaged in their own health and ask more questions of their physicians if they were provided data about patients similar to themselves. The study was conducted with 150 patients with a diagnosis of hypertension who had scheduled appointments with one of three participating physicians in the clinic. When they arrived at the clinic for their appointment, the patients were shown de-identified clinical data about similar patients with hypertension on a computer screen, given a printout of this information, and then proceeded to visit their physician. After the physician visit the patients completed a short survey. Their answers to the survey questions are recorded in the data file together with additional information about them, such as age, gender, race, smoking status and comorbidities.

The three participating physicians completed a short survey at the end of the study. The results of that survey are summarized in a table provided with the technical documentation.

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Prescription for Health Evaluation: Practice Information Form Data, 2005-2007 [United States] (ICPSR 27041)

Released/updated on: 2010-06-23
Geographic coverage: United States
Time period: 2005-01-01--2007-01-01

Prescription for Health was an initiative funded by the Robert Wood Johnson Foundation in collaboration with the Agency for Healthcare Research and Quality. Under this initiative, primary care practice-based research networks (PBRNs) -- groups of ambulatory practices devoted principally to the primary care of patients -- developed, tested, and evaluated innovative strategies to improve the delivery and effectiveness of health behavior change services in primary care practice. The strategies targeted four health risk behaviors: tobacco use, unhealthy diet, lack of physical activity, and risky alcohol use. Prescription for Health was conducted in two rounds. Round one awarded grants to 17 PBRNs to test the feasibility of implementing the strategies, while round two awarded grants to ten PBRNs to measure the strategies' effectiveness and the expenses associated with them. More than a 100 primary care practices from the ten PBRNs participated in the evaluation.

This data collection comprises the data from one of the data collection efforts carried out by the second round: the responses to the Practice Information Form (PIF), a Web-based instrument which captured key organizational attributes of the participating practices. The PIF data were collected at two time points. Baseline data were collected from each practice before the intervention was implemented and follow-up data were collected approximately one year after the start of the intervention.

Information about the practices collected by the PIF include practice type and ownership; characteristics of each clinician and non-clinician staff person; number of vacancies for clinicians and non clinicians; number of exam rooms and volume of office visits; average number of new patients per month; percentages of patients in various age, race, Hispanic origin, and payer categories; and the predominant type of payment arrangement with health plans. In addition, the PIF asked whether a specific health plan controlled over half of the practice's total business; whether the practice had a pay-for-performance program; whether any payers or organizations publicly reported practice level performance information, such as patient satisfaction, chronic care/disease management, and/or preventive service delivery; and whether practices had a formal process for routinely measuring satisfaction among patients, clinicians, and other staff. The PIF also investigated how practices motivated their clinicians and staff; the level of competition among practices in local markets; the use of computers, electronic medical record systems, and patient registries; major changes that affected each practice's ability to make improvements in patient care; factors that prevented practices from translating the results of research into changes in medical practice; and the use of health risk assessment protocols or questionnaires to identify patients who may benefit from counseling or interventions. Questions about the four Prescription for Health behaviors -- physical activity, healthy eating, smoking cessation, and addressing risky drinking -- asked how practices linked patients to outside resources for each of the four behaviors; how practices used evidence-based guidelines and informed patients about recommendations for the behaviors; and which approaches practices used to support patients ready to engage in a behavior change for each of the behaviors.

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Community Hospital Program (CHP) Access Impact Evaluation Surveys, 1978-1979, 1981 (ICPSR 8245)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1978-01-01--1979-01-01
This data collection evaluates group medical practices and the ways in which they affect both access to and use of medical services. Group practices, sponsored by the Robert Wood Johnson Foundation Community Hospital Program (CHP), were selected for use in this assessment. The data were collected by the Center for Health Administration Studies at the University of Chicago, with the assistance of Chilton Research Services. Two surveys were conducted for the study: a baseline survey in 1978-1979 and a follow-up in 1981. Community residents and CHP patients in 12 communities were interviewed. Demographic and medical care data were collected for selected individuals and families in the survey areas. Data on regular sources of medical care for individuals include the type of organization used, type of practice, accessibility, frequency of visits, types of health care professionals seen, cost, and satisfaction. Also in the collection are data on perceived health, episodes of illness (including symptoms, duration, disability days, and doctors consulted), use of preventive health care services, and insurance coverage. Demographic data for individuals and families include age, sex, race, educational attainment, employment, and income. Of the 198 files in this collection, 88 are "raw" data files and 110 are frequencies. The data files consist of four types. The first type are Sample Person files. These contain the responses of group practice patients and community members. The second type are Doctor Episode files, which record doctors and episodes of illness. Family files make up the third type of file, and consist of family members' responses to the survey. Analysis files, linking patient and doctor data, are the fourth type of file. The SPSS frequency files correspond to the data files: two per file for the Sample Person files, and one per file for the remaining three types of files.
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Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2006-PRIOR2: Priorities 2--Medical Care, United States, 2006 (ICPSR 38361)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Poll # 2006-PRIOR2: Priorities 2--Medical Care, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Rating of nation's system for providing health care
  • Problems with the nation's medical care system
  • Problems with the nation's medical care system that government should address
  • Recent receipt of medical care
  • Rating of recent medical care received
  • Problems paying medical bills
  • Need for medical care but not seeking it
  • Access to the most modern medical technologies/treatments
  • Availability of high quality medical services in community
  • Health insurance coverage

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092315]. Frequencies and summary statistics for the 96 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

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Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2007-PRIOR2: Priorities 2--Medical Care, United States, 2007 (ICPSR 38369)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Poll # 2007-PRIOR2: Priorities 2--Medical Care, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Rating of nation's system for providing medical care
  • Problems with the nation's medical care system
  • Top problems with the nation's medical care system for the government address
  • Favor/oppose national health insurance financed by tax money
  • Medical care received
  • Problems paying medical bills
  • Unsought medical care
  • Access to most modern medical technologies/treatments
  • Availability of high quality medical care in community
  • Access to high quality medical care
  • Health insurance coverage
  • Cost of health insurance

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092327]. Frequencies and summary statistics for the 100 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

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Harvard School of Public Health/Robert Wood Johnson Foundation Poll: Health Priorities Survey 1--The Medical System and The Uninsured, United States, 2009 (ICPSR 38372)

Released/updated on: 2022-03-09
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Health Priorities Survey 1--The Medical System and The Uninsured, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by International Communications Research (ICR). Topics covered in this survey include:

  • Quality of medical care
  • Health care system problem severity
  • Problems paying medical bills
  • Health insurance
  • Personal health

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092335]. Frequencies and summary statistics for the 82 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

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National School Health Services Program Evaluation, 1981-1982 (ICPSR 8302)

Released/updated on: 2008-06-03
Geographic coverage: United States
Time period: 1981-01-01--1982-01-01
The National School Health Services Program Evaluation documents the nature and scope of a wide range of health services provided to school-age children by by nurse practitioners, school health nurses, physicians, and health aides. The information provided by this collection includes: (1) records of communications between educators, health professionals, and parents, (2) the type, severity, and disposition of problems treated at schools (plus referral sources and the types of health care professionals involved), (3) nurse practitioners' findings from medical histories and physical examinations of students, and (4) data on individual health care episodes at the schools, including unresolved problems. Information supplied by a survey of parents of children in participating schools includes data on health care sources and expenses for the child, plus data on specific medical problems and treatment. Basic demographic characteristics such as the sex and race of the child, parents' educational background, and family income are also provided.
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Use of Radiology and Laboratory Tests Among Selected Inpatients in Canadian and United States Hospitals, 1990-1991 (ICPSR 6539)

Released/updated on: 1998-06-12
Geographic coverage: Canada, United States, Global
Time period: 1990-01-01--1991-01-01
The purpose of this study was to compare the use of radiology and laboratory tests provided to inpatients admitted with specific medical and surgical Diagnosis-Related Groups (DRGs) to four hospitals in the United States and four hospitals in Canada. These DRGs covered specific cerebral vascular accidents (except transient ischemic attack), simple pneumonia and pleurisy with complications and comorbidities (CC), acute myocardial infarction with CC, acute myocardial infarction without CC, appendectomy with CC, major joint or limb reattachment procedures, hip and femur procedures with major joint procedure, uterine/adnexa procedures for nonmalignancy with CC, and uterine/adnexa procedures for nonmalignancy without CC. Patient admissions are the units of observation. For each patient admission, relative value units are given for radiology and laboratory tests that were administered, including biochemistry tests, hematology/coagulation tests, vascular radiology tests, nuclear medicine tests, ultrasound tests, and X-rays. Additional data cover patient age, gender, length of hospital stay, and principal discharge diagnosis.
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Costing Study of the Clients of the Mobile Community Treatment Program [1987-1988: Madison, Wisconsin] (ICPSR 9843)

Released/updated on: 2024-02-14
Geographic coverage: Madison, United States, Wisconsin
Time period: 1987-01-01--1988-12-01
The University of Wisconsin's Department of Preventive Medicine, in cooperation with the Department of Psychiatry and the Mental Health Center of Dane County, Wisconsin, conducted a comprehensive costing study of the clients of a community-based program for treating the mentally ill, the Mobile Community Treatment program (MCT), in Madison, Wisconsin. MCT provided assertive outreach and case management for individuals with major psychiatric disorders. The aim of this study was to determine the costs for clients of MCT to live in the community, including the costs of their medical, residential, employment, law enforcement, and maintenance needs. Clients of MCT were queried about their use of services provided by medical, human service, and law enforcement agencies, as well as their receipt of in-kind and cash benefits from public and private agencies. Service and cost data on survey respondents were also obtained from the records of local agencies, such as the Dane County Sheriff's Department, Dane County Circuit Court, Dane County Department of Public Health, homeless shelters, Adult Protective Services, and vocational training programs.
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Memphis New Mothers Study, 1990-1994 (ICPSR 6782)

Released/updated on: 2024-02-14
Geographic coverage: United States, Tennessee, Memphis
Time period: 1990-06-01--1994-04-30
This study was a randomized trial that tested the effectiveness of home visitation by nurses as a means of enhancing the health and well-being of socially disadvantaged women and their first-born children. Low-income, pregnant women bearing first babies were randomly assigned to four treatment groups: (1) subjects that received free transportation to prenatal care, (2) subjects that received transportation to prenatal care and developmental screening for the children, (3) subjects that received transportation to prenatal care and developmental screening, plus prenatal home visits by nurses, and (4) subjects that received transportation to prenatal care, developmental screening, prenatal home visits, and postnatal home visits by nurses. Assessments of the women covered health-related behaviors, mother's care-giving environment, child's health and development, levels of social support, mother's psychological resources, personal life-course development, and costs of health care. Variables measuring health-related behaviors included the use of cigarettes and illegal drugs and the presence of sexually-transmitted diseases. The mother's care-giving environment and the child's health and development were evaluated by the Bavolek adult-adolescent parenting interview score, the Caldwell home observation scale, the Bayley mental development index, the Achenbach child behavioral problems inventory, and other indices. Levels of social support were evaluated by the amount of support expected to be received from a boyfriend or husband and the mother's mother. Assessments of maternal psychological resources included the Pearlin mastery scale, the Shipley IQ score, and the Bandura self-efficacy score. Personal life-course development was assessed by the respondents' educational and occupational achievements, and the numbers of subsequent pregnancies and children. Variables measuring the effect of the program on the cost of health care include number of hospital emergency room visits, number of hospitalizations, total length of stay, number of well-child and ill-child doctor visits, and use of community social services. Other variables provide information on age at birth, pre-pregnancy weight, birth weight and gender, race, employment status, income, housing density, and education.
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Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2008-PRIOR1: Health Priorities 1--Americans' Views of the Medical Care System, United States, 2008 (ICPSR 38370)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Poll # 2008-PRIOR1: Health Priorities 1--Americans' Views of the Medical Care System, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Nation's system to protect against health threats
  • United States health care system
  • National health insurance
  • Respondent's personal medical care
  • Ability to afford medical bills
  • Local institutions
  • Personal information regarding respondent
  • Other codes

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092332]. Frequencies and summary statistics for the 131 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

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Evaluation of Regionalized Networks of High-Risk Pregnancy Care, 1970-1979 (ICPSR 8469)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1970-01-01--1979-01-01
Data provided in this collection were gathered to evaluate the effectiveness of a five-year program demonstrating regionalization of perinatal health care for mothers and infants. There are three distinct types of data in the collection. The first consists of records of live births in eight program regions and eight comparison regions. Included in these records are data on the size and type of institution of birth, birthweight, number of previous births and pregnancies, gestational age, and method of delivery. Also provided are demographic data such as age, race, educational level, and marital status of the mother. The unit of analysis is the live birth. The second type of data in the collection consists of matched birth and death data for infants, using the same geographical coverage as the live birth data. Each record contains the data provided in the live birth data, plus information such as the place of death, age at death, and cause of death. The unit of analysis is infant deaths for which birth data are available. The third type of data are derived from a survey of infant health at one year of age. Included in this are data on employment, education, and previous pregnancies of the mother, plus information on pre- and post-natal hospitalization, medical care, and infant health. Additional data are provided for a test, administered to each infant, of adaptive, gross and fine motor, and receptive language development.
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National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Sick in America, United States, 2012 (ICPSR 38378)

Released/updated on: 2022-03-09
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Sick in America, a survey from National Public Radio, the Robert Wood Johnson Foundation, and the Harvard School of Public Health, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Quality of health care
  • Health care costs as problem
  • Reasons for health care quality problems
  • Focus of doctor visits
  • Reasons for rising health care costs
  • Health care as good value
  • Agreement with doctor statements
  • Amount of doctors
  • Doctor visits for check-up
  • Personal insurance coverage
  • Uninsured
  • Overnight hospital stays
  • Satisfaction with hospital medical care
  • Medical care costs as reasonable
  • Description of hospital stays
  • Serious illness
  • Interactions with medical professionals
  • Impact of medical care costs on family
  • Receiving care every time it's needed
  • Being turned away for health care
  • Insurance premiums as financial problem
  • Out of pocket medical costs
  • Negotiating lower charges
  • Problems paying for insurance
  • Changing regular doctor
  • Personal financial situation

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092354]. Frequencies and summary statistics for the 159 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

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Harvard School of Public Health/WBUR/Blue Cross Blue Shield of Massachusetts Foundation/Robert Wood Johnson Foundation Poll: Sick in Massachusetts, 2012 (ICPSR 38377)

Released/updated on: 2022-03-09
Geographic coverage: United States, Massachusetts

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Sick in Massachusetts, a survey from the Harvard School of Public Health, WBUR Boston National Public Radio, the Blue Cross Blue Shield Foundation of Massachusetts, and the Robert Wood Johnson Foundation, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Quality of health care
  • Health insurance, insurance status, and care costs
  • Reasons for health care quality problems
  • Focus of doctor visits
  • Reasons for rising health care costs
  • Health care as good value
  • Agreement with doctor statements
  • Amount of doctors
  • Attending routine check-ups
  • Overnight stays in hospitals
  • Satisfaction with hospital care
  • Medical costs as reasonable
  • Description of hospital stay
  • Recent serious illness
  • Satisfaction with medical care
  • Interactions with health care professionals
  • Impact of medical costs on family
  • Receiving care every time it's needed
  • Being turned away for health care
  • Insurance premiums as financial problem
  • Out-of-pocket medical costs
  • Negotiating lower charges
  • Problems paying for insurance
  • Changing regular doctor
  • Personal financial situation

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092353]. Frequencies and summary statistics for the 162 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

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National Study of Physician Organizations (NSPO3), United States, 2012-2013 (ICPSR 38587)

Released/updated on: 2023-01-31
Geographic coverage: United States
Time period: 2012-01-01--2013-11-30
The National Study of Physician Organizations was designed to improve understanding of evidence-based care management processes (CMPs) as they relate to physician organizations (POs), that is, independent practice associations (IPAs) and medical groups. This survey, the third NSPO survey of IPAs and medical groups (NSPO2), examined over 2000 physician organizations of all sizes. As in prior surveys, NSPO3 collected demographic information about the following practices and assesses: (1) use of clinical information technology; (2) use of care management processes to improve the quality of care for four chronic conditions (asthma, congestive heart failure, depression, and diabetes); (3) provision of clinical preventive services and health promotion; (4) exposure to external performance incentives such as pay for performance and public reporting; (5) payer mix, forms of compensation from health plans, and forms of compensation paid by the practice to its physicians; (6) organizational culture. In addition, NSPO3 asked about participation or intended participation in Accountable Care Organizations (ACOs).
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Practice Patterns of Young Physicians, 1987: [United States] (ICPSR 9277)

Released/updated on: 2012-01-11
Geographic coverage: United States
Time period: 1987-04-09--1987-11-21

This study investigated the factors that influenced the career decisions of young physicians and the characteristics of their practices. The collection has five datasets: Public-Use Version of the Young Physicians Survey (Dataset 1), Socioeconomic Monitoring System Study (Dataset 2), ZIP Code Data (Dataset 3), Verbatim Responses to the Open-Ended Questions (Dataset 4), and Restricted-Use Version of the Young Physicians Survey (Dataset 5).

The Public-Use Version of the Young Physicians Survey comprises responses from the Young Physicians Survey (YPS), plus merged data from the American Medical Association (AMA) Masterfile and the Association of American Medical Colleges' Student and Applicant Information Management System (SAIMS) database. The YPS interviewed physicians below 40 years of age who recently completed graduate medical training and were in their early years of practice. These physicians were queried about their graduate medical training, perceptions of the medical profession, current practice arrangements, career decisions, family background, patient care activities, and current income and expenses. To obtain information on current practice arrangements, respondents were questioned about the practices they worked in, including who owned the practices, the number of physicians in each practice, specialties or subspecialties practiced, usual fees for selected services, percentages of revenues from HMOs, PPOs, and IPAs, and percentages of patients who were Medicare patients, had no health insurance coverage, or were poor, Black, Hispanic, severely physically disabled, or chronically mentally ill. Questions on career decisions asked respondents about factors that influenced their career choices, such as reasons for working in multiple practices, reasons for leaving past practices, and reasons for deciding in favor of or against self-employment. Information on family background elicited by the survey includes the respondent's race, marital status, and educational debt, parents' income class and education, number of children living in the respondent's home, and whether the respondent's spouse or parents were physicians. Questions on patient care activities included questions on the number of hours spent providing uncompensated health care to the poor, and the number of hours spent with patients in a variety of settings, such as the office, emergency rooms, hospital outpatient clinics, and operating rooms. Information from the AMA Masterfile and the SAIMS database includes board certification status, AMA membership, school and year of graduation, Medical College Admission Test scores, primary undergraduate institution, most recent grade point averages, place of birth, number of acceptances to United States medical schools, parents' occupations, preferred medical specialty, and preferred practice setting.

Dataset 2 comprises responses from the AMA's Socioeconomic Monitoring System (SMS), a semiannual survey of nonfederal physicians that collected data on topics similar to those in the YPS, such as practice ownership, hours spent seeing patients in various settings, income, expenses, and opinions on practice procedures. The SMS data can be used for comparative analyses of young, prime, and senior physicians.

The ZIP Code Data contain estimates for the composition of the population residing in the ZIP code areas of the YPS respondents' main practices. This includes estimates of the size of each ZIP code area population, as well as its components with respect to gender, age, race, Hispanic ethnicity, and income. Also included are estimates of the number of physicians and their composition with respect to age, sex, practice type, and specialty.

Dataset 4 contains verbatim responses to open-ended questions asked in the YPS.

The Restricted-Use Version of the Young Physicians Survey is the same as the Public-Use Version of the Young Physicians Survey, except for some variables that were restricted from general dissemination for reasons of confidentiality. The restricted-use version includes the restricted variables, but the public-use version does not.

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National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Latinos' Lives and Health Today, United States, 2013 (ICPSR 38380)

Released/updated on: 2022-03-09
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Latinos' Lives and Health Today, a survey from National Public Radio, the Harvard School of Public Health, and the Robert Wood Johnson Foundation, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Satisfaction with life
  • Satisfaction with living area
  • Most important local issue
  • Other Hispanic people in living area
  • Rating aspects of life
  • Personal discrimination in past twelve months
  • Personal finances
  • Achieving American dream
  • Economic class
  • Better off than parents
  • Opportunities for children
  • Language spoken at home
  • Looking for job
  • Concerns about unemployment
  • Biggest health problem in family
  • Description of weight
  • Trying to lose weight
  • Medical care in past twelve months
  • Problems with medical care access
  • Confidence in ability to pay for major illness
  • Health care facility used
  • Health care professionals speaking Spanish
  • Receiving poor medical care
  • Health insurance coverage
  • Personal health rating
  • Frequency of exercise
  • Country born in
  • Age came to United States
  • Parents' birth country
  • Reasons for coming to US
  • Comparing birth country to US
  • Diet as more or less healthy in US.
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092358]. Frequencies and summary statistics for the 184 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
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Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2005-DIS: Disparities, United States, 2005 (ICPSR 38348)

Released/updated on: 2022-03-08
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Poll # 2005-DIS: Disparities, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Receipt of poor quality medical care
  • Problems receiving quality health care due to race/ethnicity
  • Action to ensure racial/ethnic minorities have the same chance to get good quality health care as whites
  • Expectation of doctor to understand personal and cultural background's effects on quality of care
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092298]. Frequencies and summary statistics for the 100 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
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Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2006-QUALITY: Quality of Care, United States, 2006 (ICPSR 38362)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Poll # 2006-QUALITY: Quality of Care, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Information that would tell the quality of a doctor/medical practice/clinic in comparison to others
  • Choice of doctors
  • Receipt of information rating doctors/clinics in the community
  • Use of information received about ratings of doctors/clinics in making decisions about where to get care
  • Use of ratings of doctors/clinic from sources
  • Personal health
  • Health insurance coverage

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092316]. Frequencies and summary statistics for the 125 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

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Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997 (ICPSR 2957)

Released/updated on: 2020-02-20
Geographic coverage: United States
Time period: 1989-01-01--1997-01-01
The objective of the SUPPORT and HELP projects was to improve decision-making in order to address the growing national concern over the loss of control that patients have near the end of life and to reduce the frequency of a mechanical, painful, and prolonged process of dying. SUPPORT comprised a two-year prospective observational study (Phase I) followed by a two-year controlled clinical trial (Phase II). Phase I of SUPPORT collected data from patients accessioned during 1989-1991 to characterize the care, treatment preferences, and patterns of decision-making among critically ill patients. It also served as a preliminary step for devising an intervention strategy for improving critically-ill patients' care and for the construction of statistical models for predicting patient prognosis and functional status. An intervention was implemented in Phase II of SUPPORT, which accessioned patients during 1992-1994. The Phase II intervention provided physicians with accurate predictive information on future functional ability, survival probability to six months, and patients' preferences for end-of-life care. Additionally, a skilled nurse was provided as part of the intervention to elicit patient preferences, provide prognoses, enhance understanding, enable palliative care, and facilitate advance planning. The intervention was expected to increase communication, resulting in earlier decisions to have orders against resuscitation, decrease time that patients spent in undesirable states (e.g., in the Intensive Care Unit, on a ventilator, and in a coma), increase physician understanding of patients' preferences for care, decrease patient pain, and decrease hospital resource use. Data collection in both phases of SUPPORT consisted of questionnaires administered to patients, their surrogates, and physicians, plus chart reviews for abstracting clinical, treatment, and decision information. Phase II also collected information regarding the implementation of the intervention, such as patient-specific logs maintained by nurses assigned to patients as part of the intervention. SUPPORT patients were followed for six months after inclusion in the study. Those who did not die within six months or were lost to follow-up were matched against the National Death Index to identify deaths through 1997. The HELP study was conducted in 1993 concomitantly with Phase II of SUPPORT and collected data to characterize the care, treatment preferences, and patterns of decision-making among hospitalized patients who were at least 80 years old. HELP data were also intended for use in adapting existing mortality and functional status models of elderly hospitalized patients. Data collection methods of HELP were essentially the same as those of SUPPORT. HELP patients were followed for 12 months after inclusion in the study. Patients who did not die within one year or were lost to follow-up were matched against the National Death Index to identify deaths through 1997.
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Practice Patterns of Young Physicians, 1991: [United States] (ICPSR 6145)

Released/updated on: 2009-09-15
Geographic coverage: United States

The purpose of this survey was to obtain information on the characteristics and practice patterns of early career physicians in order to analyze trends in physicians' activities and the supply of physicians. To that end, the survey interviewed early career physicians and re-interviewed physicians who participated in the previous survey of early career physicians PRACTICE PATTERNS OF YOUNG PHYSICIANS, 1987 (ICPSR 9277). With separate samples drawn for allopathic and osteopathic physicians, the respondents were interviewed about their medical training, medical education financing, career choices and satisfaction, practice arrangements and compensation, and patient care activities. They were also questioned about medical care management in their practice(s), perceptions of their freedom to deliver care, medical malpractice claims, and the composition of their patients, such as the percent who were poor, black, Hispanic, uninsured, covered by Medicaid or Medicare, or had severe physical disabilities, chronic mental illness, or problems with substance abuse. Demographic characteristics covered by the survey include race, Hispanic origin, year of birth, marital status, number and ages of children, and parents' education.

In addition to the variables collected by survey, the allopath sample data also comprise variables obtained from the American Medical Association (AMA) and the Student and Applicant Information Management System (SAIMS) of the Association of American Medical Colleges (AAMC). The AMA variables include gender, name of medical school, board certification status, physician's specialty, and AMA membership, while the SAIMS variables include dates of application to medical school, graduation dates, Medical College Admission Test (MCAT) scores, undergraduate grade-point averages, religious preference, career preference, preferred practice setting, educational debt, scholarship information, and participation in courses/clerkships in different subject areas.

The study comprises five data files. Dataset 1 contains the public-use version of the data for the allopath sample and Dataset 2 the public-use version of the data data for the osteopath sample. Both of these files were generated by ICPSR from the original restricted-use allopath and osteopath data files provided by the principal investigator, which are stored as Datasets 3 and 4 respectively. As noted in the ICPSR Processing Note in the codebook, Dataset 5 contains 26 restricted variables which the principal investigator omitted from the original allopath data (Dataset 3) for reasons of confidentiality. ICPSR received the omitted variables in 2009, 14 years after its initial release of the data.

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Health Reform Monitoring Survey, United States, First Quarter 2015 (ICPSR 36364)

Released/updated on: 2019-08-22
Geographic coverage: United States
Time period: 2015-03-04--2015-03-22
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a quarterly survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the first quarter 2015 survey (the ninth round of the HRMS) include self-reported health status, awareness of key provisions of the ACA, sources of information about the health plans offered in the ACA marketplace, whether health insurance was purchased through the ACA marketplace, difficulties with access to health care and paying for medical bills and housing costs, out-of-pocket health care costs, type of health insurance coverage if any, and reasons for not having health insurance. Respondents who enrolled in a health insurance plan through the ACA marketplace in 2014 were asked if and why they renewed or changed their plan in 2015. Additional information collected by the survey includes age, gender, sexual orientation, marital status, family size, education, race, Hispanic origin, United States citizenship, housing type, home ownership, internet access, income, employment status, and employer size. The data file also records whether the respondent reported an ambulatory care sensitive condition or a mental or behavioral health condition and whether the respondent or a family member received Social Security, Supplemental Security Income, unemployment insurance benefits or benefits though the Supplement Nutrition Assistance Program, Earned Income Tax Credit, Temporary Assistance for Needy Families, or child care services or child care assistance from a local welfare agency or case manager.
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Evaluation of CASAWORKS for Families -- Phase I, 1999-2001 [United States] (ICPSR 21681)

Released/updated on: 2009-12-16
Geographic coverage: United States
Time period: 1999-01-01--2001-01-01

These data were collected to evaluate the effectiveness of CASAWORKS for Families (CWF), a multiservice intervention designed to move substance abusing women on welfare to sobriety and self-sufficiency by addressing their substance abuse, domestic violence, employment, and basic needs. Conducted at 11 sites across the country, the evaluation was designed as a repeated measures, pre-during-post field evaluation with no pre-specified control or comparison groups. The results of this evaluation were primarily intended to guide a proposed second-stage experimental study of the effectiveness of an enhanced and refined CWF model.

When the potential participant presented herself at the CWF site, a research technician administered a specially modified version of the Addiction Severity Index (ASI), referred to as the Welfare to Work ASI (WTW-ASI). This version retained the ASI 5th edition as the core instrument but added questions in an addendum. The baseline WTW-ASI measured the severity of problems in nine areas: employment, medical status, alcohol use, drug use, legal status, family and social relationships, children and child care, basic needs, and psychiatric symptoms. In addition, the four-item Center for Epidemiologic Studies Depression Scale (CES-D), the Parenting Dimensions Inventory (PDI), and the Posttraumatic Stress Diagnostic Scale (PDS) were used to assess depression, parenting style, and posttraumatic stress disorder, respectively. The PDI, CES-D, and a follow-up version of WTW-ASI were also administered 6 and 12 months after intake.

Two instruments were used at baseline and at 1, 3, 6, and 12 months postbaseline to record the services provided by CWF: Welfare to Work version of the Treatment Services Review (TSR-WTW) and Case Management Review (CMR). The former mostly collected data on the number of treatment services received, such as doctor visits, therapy sessions, and days of inpatient treatment in the prior 30 days, while the latter collected data on the activities of the case management sessions and topics covered with the case managers. Activities recorded by the CMR included working on self-sufficiency plans, arrangement of follow-up services, skills development, crisis response, and advocating for the client. Topics covered included employment, substance abuse, mental health, domestic violence, parenting and child care, basic needs, life skills, and social support.

In order to compare the characteristics of the CWF clients with the general population of women who received Temporary Assistance for Needy Families (TANF), the study also collected WTW-ASI data from women in the general TANF population in the CWF locales regardless of their substance-use status.

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Active for Life: Translation of Physical Activity Programs for Mid-Life and Older Adults, 2003-2007 [United States] (ICPSR 24723)

Released/updated on: 2024-02-14
Geographic coverage: North Carolina, District of Columbia, United States, Tennessee, California, Michigan, Pennsylvania, Illinois, Texas, Missouri, Ohio, Virginia, Maryland
Time period: 2003-01-01--2007-01-01

Sponsored by the Robert Wood Johnson Foundation, the Active for Life (AFL) initiative investigated how two physical activity programs for adults aged 50 and older, Active Choices (AC) and Active Living Every Day (ALED), worked in community settings. Created by researchers at Stanford University, Active Choices used lifestyle counseling and personalized telephone support to encourage older adults to be physically active. In AFL, this was a 6-month program delivered through one face-to-face meeting followed by up to eight one-on-one telephone counseling calls. Active Living Every Day, which was created by the Cooper Institute and Human Kinetics Inc., also provided lifestyle counseling to promote physical activity, but in a classroom and workbook format. During the first three years of the four-year AFL initiative, ALED was delivered as a 20-week program where participants attended weekly small group meetings, but in the last year it was shortened to 12 weekly meetings. Nine organizations received AFL grants to implement the programs during 2003-2006. Four grantees implemented the one-on-one AC model, while five implemented the group-based ALED model.

Data were collected from the AC and ALED sites for both a process and outcomes evaluation. The primary aims of the process evaluation were to (1) monitor the extent to which the grantees demonstrated fidelity to the AC and ALED models in their program implementation, (2) assess staff experiences implementing the programs, and (3) assess participants' impressions of the programs. A quasi-experimental, pre-post study design was used to assess outcomes. Primary aims of the outcomes evaluation were to evaluate the impact of AC and ALED on self-reported physical activity, and to evaluate the impact of the programs on self-reported stress, depressive symptoms, and satisfaction with body function and appearance. Secondary aims of the outcome evaluation were to (1) evaluate the impact of the programs on measures of functional fitness, (2) examine whether changes in self-reported physical activity and functional fitness were moderated by participant characteristics, including age, gender, race, baseline physical activity self-efficacy, and baseline physical activity social support, and (3) examine whether changes in self-reported physical activity were consistent with a mediation model for physical activity self-efficacy and physical activity social support.

The collection has 14 data files (datasets). Datasets 1-7 constitute the process evaluation data, and Datasets 8-14 the outcomes evaluation data:

Dataset 1 (AC Initial Face-to-Face Sessions Data) contains information about the initial face-to-face AC session: the format, date, and length of the session, whether the 8 steps required in the face-to-face session were completed, what was discussed between the health educator and the participant related to physical activity plans, interests, benefits, and barriers, and the health educator's progress notes. The file contains one record for each AC participant.

Dataset 2 (AC Completed Calls Data) comprises information about the completed AC calls, but does not cover the topics discussed on the calls. Recorded information about each call includes the date and length of the call, the health educator's progress notes, and whether the participant was assessed for injury, light activity, moderate activity, exercise goals, or exercise intentions. Each call is represented by a separate record in the data file and, typically, there are multiple records per participant.

Dataset 3 (AC Topics Discussed on Completed Calls ) contains information about the topics discussed on each completed AC call, e.g., exercise barriers/benefits, previous exercise experiences, goal setting, long term goals, injury prevention, rewards/reinforcement, social support, progress tracking, and relapse prevention. Each record in the file represents one topic and there are often multiple records per call for each participant.

Dataset 4 (AC Aggregate Call Data) aggregates the call data across calls for each AC participant. For example, for a given participant, this dataset shows the total number of calls completed, the number of calls where injury/health problems were assessed, etc. The file contains one record per participant.

Dataset 5 (ALED Sessions Data) contains information about each class session for every ALED group, including the session date, start time, and end time, learning activities covered in the session, participant evaluations of the session and the facilitator, facilitator progress notes, the number of participants who were in various stages of readiness for moderate exercise, and the number of participants who tracked physical activity and thoughts about physical activity. This file has one record for each session of every ALED group.

Dataset 6 (ALED Attendance and Tracking Data (Years 2-4)) consists of participant-level attendance and tracking data for every ALED session during the second to fourth years of the evaluation, including the participant's attendance at the session, whether the participant's stage of readiness was assessed, and whether the participant tracked thoughts about physical activity or actual physical activity. There is no participant-level ALED data for the first year. Each participant has a separate record for each session. Thus, the file contains 20 records per participant in the years 2-3, and 12 records per participant in year 4.

Dataset 7 (ALED Aggregate Attendance and Tracking Data (Years 2-4)) contains ALED attendance and tracking data for each participant in years 2-4, aggregated across the sessions. The data file has one record for each participant.

Dataset 8 (Demographics) comprises program information (e.g., program status, start date, end date, site, etc.), demographic information (e.g., age, gender, race, Hispanic origin, employment status, income, and the participant's state and ZIP code of residence), and responses to the Physical Activity Readiness Questionnaire (PAR-Q), a screening tool that was used to assess possible risks of exercising based on answers to specific health history questions. The file contains one record for each AFL participant, except for those with a status of "nonstarter" or "repeater."

Datasets 9 (Pretest Survey Data) and 10 (Posttest Survey Data) contain data from the Pretest and Posttest Surveys. The Pretest Survey was administered at the beginning of the AC and ALED programs, while the Posttest Survey was administered at their end. Topics covered by the surveys include social and recreational activities, activities undertaken for exercise, perceived stress, depressive symptoms, satisfaction with body appearance and function, social support for physical activity, self-efficacy for physical activity, neighborhood environment, health conditions, health-related quality of life, caregiving, and self-reported height and weight. Both surveys included items from the Community Health Activities Model Program for Seniors Physical Activity Questionnaire (CHAMPS), the Center for Epidemiological Studies Depression Questionnaire (CES-D), the Behavioral Risk Factor Surveillance System Questionnaires (BRFSS), and the International Physical Activity Prevalence Study Environmental Module. These data files each have one record for each participant who submitted a questionnaire.

Dataset 11 (ALED Week 12 Survey Data (Year 4)) contains responses to the ALED Week 12 Posttest Survey, which was used to evaluate the 12-week adaptation of ALED in Year 4. (In Year 4, ALED participants completed both a 12- and 20-week posttest survey). There is one record for each participant who returned this survey.

Dataset 12 (Six-Month Posttest Follow-Up Survey Data (Years 3-4)) comprises data from a special 6-month follow-up survey which was administered in years 3-4 in six of the ALED sites and one of the AC sites. Participants were questioned about their current physical activities, weight, health-related quality of life, satisfaction with bodily function, and other topics. As with Datasets 9-11, the data file contains one record for each participant who returned a questionnaire.

Dataset 13 (Functional Fitness Tests Data) contains the results of pretest and posttest functional fitness tests which were administered by one ALED grantee. Four tests were adminstered: (1) the 30-Foot Walk Test, (2) the 30-Second Chair Stand, (3) 8-Foot Up and Go, and (4) the Chair Sit and Reach Test. This participant-level data file also includes pretest height measurements plus pretest and posttest weight measurements.

Dataset 14 (Participants' Impressions of the Programs (Years 1, 3, and 4)) contains data collected by the last sections of the Posttest Survey, ALED Week 12 survey, and 6-Month Follow-up Survey. The topics it covers include the participants' impressions of the programs, participation in physical activities, and changes (compared to before they started the AFL program) in motivation to be physically active, actual level of physical activity, medical and health conditions, overall pain, flexibility/limberness, level of stress, happiness, and enjoyment of life. The file has a separate record for each survey completed by the participants. Thus, there are 1-3 records per participant.

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Evaluation of Children's Futures: Improving Health and Development Outcomes for Children in Trenton, New Jersey, 2001-2005 (ICPSR 21640)

Released/updated on: 2008-04-03
Geographic coverage: Camden, United States, Newark, Trenton, New Jersey
Time period: 2001-01-01--2005-01-01

These data were collected for the initial phase of the evaluation of the Children's Futures initiative, a comprehensive set of interventions aimed at improving child health and development outcomes from prenatal to age three in Trenton, New Jersey. To that end, the initiative worked to (1) improve access to prenatal care and strengthen effective parenting, (2) improve the quality of child care, and (3) strengthen and sustain positive involvement of fathers in their children's lives. As part of the evaluation, a baseline community survey and surveys of childcare providers were conducted and births records were obtained from the New Jersey State Department of Health.

Extracted from New Jersey vital events public-use data files, Datasets 1-3 contain information on births during 2001-2004 to women in Trenton and, for comparison, two New Jersey cities not covered by the intervention, Camden and Newark. The birth records data include sex, birth order, birth weight, gestational age, one-minute and five-minute APGAR scores, month of pregnancy when prenatal care began, number of prenatal visits, weight gained during pregnancy, medical risk factors for the pregnancy, obstetric procedures performed, delivery complications, congenital anomalies and abnormalities, mother's marital status and number of live births now living, and the parents' age, race, Hispanic origin, state/country of birth, and education.

Dataset 4 contains data from the baseline community survey, which in 2002 interviewed the primary caregivers of children aged 0-5 in Trenton households. The survey collected information about child and parental health, parenting practices, fathers' involvement in their children's lives, health insurance and health care utilization, attendance at parenting groups or classes, and utilization of child care. Additional information collected by the baseline survey includes United States nativity, year of immigration, race, Hispanic origin, education, employment status, alcohol use, illicit drug use, earnings, and household income.

Datasets 5-7 contain data from the childcare provider surveys conducted in 2003, 2004, and 2005, which collected information about the teachers and childcare providers in the Trenton childcare centers that were participating in Children's Futures. Respondents were questioned about their work experience, age, race, place of residence (ZIP code), education, credentials, position held and hours worked, languages spoken, salary/hourly rate for the job at the center, childcare training and practices, opinions about center staffing levels, and beliefs about how to help infants and toddlers learn and grow. In addition, the respondents were asked how prepared they were to work with infants or toddlers with certain conditions such as emotional disturbances, attention deficit disorder or attention deficit hyperactivity disorder (ADD/ADHD), fetal alcohol syndrome, asthma, severe allergies, and developmental delays.

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Comparative Analysis of Small and Large Group Health Care Utilization and Costs, 1988-1990: [Western Pennsylvania] (ICPSR 6859)

Released/updated on: 2006-01-18
Time period: 1988-01-01--1990-01-01
To investigate whether the use of health care services is a function of firm size, this project assembled longitudinal data on private health insurance claims for firms located in western Pennsylvania. Parts 1-3 are person-level files for health insurance claims and include variables such as contract relationship (contract holder/employee, spouse/dependent), gender, age (less than or equal to 14 years, 14+), utilization type (hospital inpatient, hospital outpatient, professional, major medical), quarter and year of discharge for hospital inpatient utilization, quarter and year of service for hospital outpatient and professional services utilization, length of stay (high, medium, low), type of professional claim (inpatient, outpatient, office, other), and total and average charges (high, medium, low). Firm-level variables in Parts 4-6 include average age, percent of enrollees under age 14, and firm size as measured by the number of contracts or the average number of employed plan participants in three categories (1-50, 51-500, and 500+). Additional firm-level variables are measured as three-tier indices (high, medium, and low): proportions of enrollees with inpatient, outpatient, professional, and major medical utilization, average charge per day and average length of stay for inpatient utilization, average charge per claim for outpatient utilization and for professional services, and average charges per admission and services for major medical utilization.
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Hospitalized Older Persons Evaluation (HOPE) Study, 1991-1993: [California] (ICPSR 6560)

Released/updated on: 2006-01-12
Geographic coverage: United States, California
Time period: 1991-03-01--1993-05-31
The HOPE study was a multi-center randomized clinical trial mounted to determine the effects of hospital inpatient consultative comprehensive geriatric assessment (CGA) under typical practice conditions on selected patient health and health services utilization outcomes. The main outcome measures were functional status, health status, mortality, rehospitalization, and total use of health care services for hospital patients 65 years of age and older. Functional status was evaluated by questions about limitations in patients' activities of daily living due to health problems. Also included were items covering living arrangements (with whom and where), ethnicity, education, and marital status. Health status questions covered patients' perceptions of mental health and current physical health. The functional and health status of patients was measured prior to CGA treatment and randomization, again at 3 months post-randomization, and at 12 months post-randomization. Functional and health status data are included in Parts 3-8. Health services utilization data (Parts 9-15) cover patient use of medical services such as urgent care, emergency room, radiology, durable medical equipment, and medications (prescribed and over the counter). Mortality information (Part 17) includes date of lost contact or death, and data source of survival status. Hospitalization measures (Part 18) include date of admission and discharge, admittance source diagnoses and procedures, and inpatient/outpatient status.
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Robert Wood Johnson Foundation/Harvard School of Public Health Poll: America's Health Agenda, United States, 2011 (ICPSR 38376)

Released/updated on: 2022-03-09
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of America's Health Agenda, a survey from the Robert Wood Johnson Foundation and the Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Rating local community's healthiness
  • Most threatening disease or health condition
  • Most important medical care system problems
  • Rating government illness prevention
  • Rating government health care systems
  • Preferred government size
  • Federal government health care priorities
  • Rating federal government health care performance
  • Contact with federal government health agencies
  • Overall national health changes
  • State government health priorities
  • Rating state government health care performance
  • Contact with state government health agencies
  • Overall state health changes
  • Local government health care priorities
  • Rating local government health care performance
  • Contact with local health agencies
  • Overall local health changes
  • Personal problems in past year
  • Spending money to save in the long run

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092347]. Frequencies and summary statistics for the 421 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

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National Studies of Physicians from Twenty-four Medical and Surgical Specialties, 1976-1978 (ICPSR 7782)

Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1976-01-01--1978-01-01
This study was conducted in order to gather detailed specialty-specific data for most of the physician population of the United States. Each member of sample groups of physicians in each of 24 specialty areas completed numerically coded "log diaries" (self-enumerated questionnaires) over the course of one week during the survey data gathering period of 1976-1978. With the information obtained from the log diaries, three data files containing detailed information on the activities of the physicians surveyed and on the characteristics of their practices were prepared for each of the 24 specialty areas: allergy, cardiology, dermatology, emergency medicine, endocrinology, family practice, gastroenterology, general practice, general surgery, hematology, infectious diseases, internal medicine, nephrology, neurological surgery, neurology, obstetrics/gynecology, oncology, ophthalmology, orthopaedic surgery, otorhinolaryngology, pediatrics, psychiatry, pulmonary diseases, and rheumatology. As a result, there are 71 discrete datafiles in this dataset (emergency medicine has only two files). Parts 1-24 contain detailed information about each physician's medical or surgical practice, e.g., specialty, major professional activity, board certifications, type of practice, physician's opinion concerning distribution of specialties in the community, number of hours per week worked and in what capacity, and type of employees in physician's practice and number of hours worked. Parts 28-48 contain data on each patient the physician saw in person during the week in which he or she kept the log diary. Parts 49-71 hold the data derived from each encounter the physician had via telephone with a patient during the same period. The data in the latter two groups of files contain patient age, sex, problem focus, role, source, and diagnoses.
Curated

National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: African Americans' Lives Today, United States, 2013 (ICPSR 38379)

Released/updated on: 2022-03-09
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of African Americans' Lives Today, a survey from National Public Radio, the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Satisfaction with life and environment
  • Life improvements
  • Satisfaction with living area
  • Living area improvements
  • Most important local issue
  • Other black people in area
  • Amount of black friends
  • Economic class
  • Rating various public institutions
  • Rating quality of various resources
  • Amount of discrimination
  • Reason for discrimination
  • Personal financial situation
  • Economic class growing up
  • Achieving American dream
  • Better off than parents
  • Importance of religion
  • Making decisions about children
  • Child schooling
  • Rating child's school
  • Black children in school
  • Desired level of child's education
  • Seeking long-term relationship
  • Desire to marry
  • Satisfaction with dating opportunities
  • Race of romantic dates
  • Looking for work
  • Career success
  • Unemployment concerns
  • Health insurance and healthcare
  • Access to care
  • Medical expenses
  • Quality of doctors
  • Health and wellness
  • Social and family life

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092356]. Frequencies and summary statistics for the 204 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated
Restricted

National Survey of Primary Care Physicians and Nurse Practitioners, 2012 (ICPSR 36050)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2011-11-23--2012-04-09
The focus of this survey was the role of nurse practitioners and physicians in primary care and the likely effects on the health care system of expanding the supply of nurse practitioners and their scope of practice. Topics of the survey include satisfaction with career, daily roles and responsibilities, perceived affects of increasing the supply of NPs, attitudes toward NP scope of practice, information on clinical practice services and revenue, and respondent demographics and income.
The following results may be significantly less relevant compared to results above.
Curated
Restricted

National Comorbidity Survey: Adolescent Supplement (NCS-A), [United States], 2001-2004 (ICPSR 28581)

Released/updated on: 2023-11-16
Geographic coverage: United States
Time period: 2001-02-01--2004-01-01

The National Comorbidity Survey Replication Adolescent Supplement (NCS-A) was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders in the child and adolescent years of life among adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders.

The core NCS-A interview schedule was an adaptation of the World Health Organization Composite International Diagnostic Interview (CIDI). NCS-A also administered the non-verbal subtest (Matrices subtest) of the Kaufman Brief Intelligence Test (K-BIT).

In addition to interviewing adolescents, information was collected from a parent or a parent surrogate to obtain an additional perspective on the adolescent's mental health and its correlates. Information from parents focused on the five adolescent disorders for which previous methodological research has most consistently shown that parental reports are important for making diagnoses: attention-deficit/hyperactivity disorder, conduct disorder, oppositional defiant disorder, major depressive episode, and dysthymic disorder.

Demographic information collected by NCS-A includes age, citizenship status, country of birth, criminal history, ethnicity, grandparents' country of birth, language(s) spoken in the home, parents' country of birth, race, religion, and sex.

The data collection contains six data files: (1) data for the adolescent household and school respondents; (2) data for the parents who responded to the long self-administered questionnaire; (3) data for the parents who responded to both the long self-administered questionnaire and short telephone interview; (4) diagnostic variables derived from the data collected from the adolescents and parents; (5) K-BIT scores normed to the NCS-A adolescent sample; and (6) raw K-BIT data.