Project HealthDesign: BreathEasy - A Personal Health Record Application For Adults With Asthma, 2011-2012 (ICPSR 36027)
Project HealthDesign: Chronology.MD - Personal Health Record Applications for Patients With Crohn's Disease, 2011-2012 (ICPSR 36028)
Culturally Focused Psychiatric Consultation Service For Massachusetts General Hospital's Asian American and Latino American Primary Care Patients with Depression, 2009-2011 (ICPSR 34495)
This randomized controlled trial evaluated a culturally appropriate intervention to improve the recognition and treatment of depression among Asian and Latino American primary care patients at Massachusetts General Hospital (MGH), using a culturally focused psychiatric (CFP) consultation with a team of mental health providers who were bilingual/bicultural, trained in culturally competent techniques, and familiar with the cultures and languages of the patients served. Targeted minority patients who screened positive for clinical depression were eligible to participate in the trial. The intervention patients were offered the CFP consultation at baseline and, if eligible, received the CFP patient toolkit as part of their treatment. The toolkit provided psychoeducation and tools for managing depression as well as information on community resources. The usual care patients were offered standard referrals to MGH mental health resources.
Questionnaires were administered to the patients at screening, baseline, two-week follow-up, and six month follow-up. The screening questionnaires included the two-item Public Health Questionnaire (PHQ-2) and demographic questions. Assessment measures administered to the intervention patients at baseline included the Mini International Neuropsychiatric Interview (MINI), Quick Inventory of Depressive Symptomatology-Self Rated Scale (QIDS-SR 16), Global Assessment of Functioning (GAF), Schwartz Outcome Scale (SOS-10), and a demographic questionnaire and resource utilization questionnaire. At six month follow-up, the intervention arm was administered a resource utilization questionnaire, patient satisfaction questionnaire (Treatment Satisfaction Scale), qualitative interview, and the QIDS-SR 16 and SOS-10. The SOS-10 was also administered to the intervention patients at two-week follow-up. In the usual care arm, the QIDS-SR 16 and resource utilization questionnaire was administered at baseline and six months, the qualitative interview at six months, and the demographic questionnaire at baseline or six-months. There was no two-week assessment for the usual care patients. Electronic medical record review was used for both arms at baseline and six months, as needed. In addition, qualitative interviews were conducted with project and practice staff at the end of the study.
The data file includes the responses to the questionnaires and variables describing the CFP consultation assessment (DSM-IV Axis I, II, III, IV, and V diagnoses), treatment recommendations made to the patients' primary care physicians (PCPs) after the CFP consultation, and study staff contacts with the patients' PCPs and mental health providers. ICPSR did not receive the data from the qualitative interviews or electronic medical record reviews.
Oregon Health Insurance Experiment, 2007-2010 (ICPSR 34314)
In 2008, a group of uninsured low-income adults in Oregon was selected by lottery to be given the chance to apply for Medicaid. This lottery provides an opportunity to gauge the effects of expanding access to public health insurance on the health care use, financial strain, and health of low-income adults using a randomized controlled design. The Oregon Health Insurance Experiment follows and compares those selected in the lottery (treatment group) with those not selected (control group). The data collected and provided here include data from in-person interviews, three mail surveys, emergency department records, and administrative records on Medicaid enrollment, the initial lottery sign-up list, welfare benefits, and mortality.
This data collection has seven data files:
Dataset 1 contains administrative data on the lottery from the state of Oregon. These data include demographic characteristics that were recorded when individuals signed up for the lottery, date of lottery draw, and information on who was selected for the lottery, applied for the lotteried Medicaid plan if selected, and whose application for the lotteried plan was approved. Also included are Oregon mortality data for 2008 and 2009.
Dataset 2 contains information from the state of Oregon on the individuals' participation in Medicaid, Supplemental Nutrition Assistance Program (SNAP), and Temporary Assistance to Needy Families (TANF).
Datasets 3-5 contain the data from the initial, six month, and 12 month mail surveys, respectively. Topics covered by the surveys include demographic characteristics; health insurance, access to health care and health care utilization; health care needs, experiences, and costs; overall health status and changes in health; and depression and medical conditions and use of medications to treat them.
Dataset 6 contains an analysis subset of the variables from the in-person interviews. Topics covered by the survey questionnaire include overall health, health insurance coverage, health care access, health care utilization, conditions and treatments, health behaviors, medical and dental costs, and demographic characteristics. The interviewers also obtained blood pressure and anthropometric measurements and collected dried blood spots to measure levels of cholesterol, glycated hemoglobin and C-reactive protein.
Dataset 7 contains an analysis subset of the variables the study obtained for all emergency department (ED) visits to twelve hospitals in the Portland area during 2007-2009. These variables capture total hospital costs, ED costs, and the number of ED visits categorized by time of the visit (daytime weekday or nighttime and weekends), necessity of the visit (emergent, ED care needed, non-preventable; emergent, ED care needed, preventable; emergent, primary care treatable), ambulatory case sensitive status, whether or not the patient was hospitalized, and the reason for the visit (e.g., injury, abdominal pain, chest pain, headache, and mental disorders).
The collection also includes a ZIP archive (Dataset 8) with Stata programs that replicate analyses reported in three articles by the principal investigators and others:
Finkelstein, Amy et al "The Oregon Health Insurance Experiment: Evidence from the First Year". The Quarterly Journal of Economics. August 2012. Vol 127(3).
Baicker, Katherine et al "The Oregon Experiment - Effects of Medicaid on Clinical Outcomes". New England Journal of Medicine. 2 May 2013. Vol 368(18).
Taubman, Sarah et al "Medicaid Increases Emergency Department Use: Evidence from Oregon's Health Insurance Experiment". Science. 2 Jan 2014.
Medicare+Choice Survey, 2000: [United States] (ICPSR 3406)
Creating a Patient Registry to Facilitate Data Sharing and Encourage Patient-Centered Approaches to Improving Health and Lowering Costs, 2013 (ICPSR 35570)
This interventional pilot study was conducted in a primary care clinic to determine if patients would become more engaged in their own health and ask more questions of their physicians if they were provided data about patients similar to themselves. The study was conducted with 150 patients with a diagnosis of hypertension who had scheduled appointments with one of three participating physicians in the clinic. When they arrived at the clinic for their appointment, the patients were shown de-identified clinical data about similar patients with hypertension on a computer screen, given a printout of this information, and then proceeded to visit their physician. After the physician visit the patients completed a short survey. Their answers to the survey questions are recorded in the data file together with additional information about them, such as age, gender, race, smoking status and comorbidities.
The three participating physicians completed a short survey at the end of the study. The results of that survey are summarized in a table provided with the technical documentation.
Prescription for Health Evaluation: Practice Information Form Data, 2005-2007 [United States] (ICPSR 27041)
Prescription for Health was an initiative funded by the Robert Wood Johnson Foundation in collaboration with the Agency for Healthcare Research and Quality. Under this initiative, primary care practice-based research networks (PBRNs) -- groups of ambulatory practices devoted principally to the primary care of patients -- developed, tested, and evaluated innovative strategies to improve the delivery and effectiveness of health behavior change services in primary care practice. The strategies targeted four health risk behaviors: tobacco use, unhealthy diet, lack of physical activity, and risky alcohol use. Prescription for Health was conducted in two rounds. Round one awarded grants to 17 PBRNs to test the feasibility of implementing the strategies, while round two awarded grants to ten PBRNs to measure the strategies' effectiveness and the expenses associated with them. More than a 100 primary care practices from the ten PBRNs participated in the evaluation.
This data collection comprises the data from one of the data collection efforts carried out by the second round: the responses to the Practice Information Form (PIF), a Web-based instrument which captured key organizational attributes of the participating practices. The PIF data were collected at two time points. Baseline data were collected from each practice before the intervention was implemented and follow-up data were collected approximately one year after the start of the intervention.
Information about the practices collected by the PIF include practice type and ownership; characteristics of each clinician and non-clinician staff person; number of vacancies for clinicians and non clinicians; number of exam rooms and volume of office visits; average number of new patients per month; percentages of patients in various age, race, Hispanic origin, and payer categories; and the predominant type of payment arrangement with health plans. In addition, the PIF asked whether a specific health plan controlled over half of the practice's total business; whether the practice had a pay-for-performance program; whether any payers or organizations publicly reported practice level performance information, such as patient satisfaction, chronic care/disease management, and/or preventive service delivery; and whether practices had a formal process for routinely measuring satisfaction among patients, clinicians, and other staff. The PIF also investigated how practices motivated their clinicians and staff; the level of competition among practices in local markets; the use of computers, electronic medical record systems, and patient registries; major changes that affected each practice's ability to make improvements in patient care; factors that prevented practices from translating the results of research into changes in medical practice; and the use of health risk assessment protocols or questionnaires to identify patients who may benefit from counseling or interventions. Questions about the four Prescription for Health behaviors -- physical activity, healthy eating, smoking cessation, and addressing risky drinking -- asked how practices linked patients to outside resources for each of the four behaviors; how practices used evidence-based guidelines and informed patients about recommendations for the behaviors; and which approaches practices used to support patients ready to engage in a behavior change for each of the behaviors.
Community Hospital Program (CHP) Access Impact Evaluation Surveys, 1978-1979, 1981 (ICPSR 8245)
Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2006-PRIOR2: Priorities 2--Medical Care, United States, 2006 (ICPSR 38361)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Poll # 2006-PRIOR2: Priorities 2--Medical Care, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:
- Rating of nation's system for providing health care
- Problems with the nation's medical care system
- Problems with the nation's medical care system that government should address
- Recent receipt of medical care
- Rating of recent medical care received
- Problems paying medical bills
- Need for medical care but not seeking it
- Access to the most modern medical technologies/treatments
- Availability of high quality medical services in community
- Health insurance coverage
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092315]. Frequencies and summary statistics for the 96 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2007-PRIOR2: Priorities 2--Medical Care, United States, 2007 (ICPSR 38369)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Poll # 2007-PRIOR2: Priorities 2--Medical Care, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:
- Rating of nation's system for providing medical care
- Problems with the nation's medical care system
- Top problems with the nation's medical care system for the government address
- Favor/oppose national health insurance financed by tax money
- Medical care received
- Problems paying medical bills
- Unsought medical care
- Access to most modern medical technologies/treatments
- Availability of high quality medical care in community
- Access to high quality medical care
- Health insurance coverage
- Cost of health insurance
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092327]. Frequencies and summary statistics for the 100 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Harvard School of Public Health/Robert Wood Johnson Foundation Poll: Health Priorities Survey 1--The Medical System and The Uninsured, United States, 2009 (ICPSR 38372)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Health Priorities Survey 1--The Medical System and The Uninsured, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by International Communications Research (ICR). Topics covered in this survey include:
- Quality of medical care
- Health care system problem severity
- Problems paying medical bills
- Health insurance
- Personal health
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092335]. Frequencies and summary statistics for the 82 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
National School Health Services Program Evaluation, 1981-1982 (ICPSR 8302)
Use of Radiology and Laboratory Tests Among Selected Inpatients in Canadian and United States Hospitals, 1990-1991 (ICPSR 6539)
Costing Study of the Clients of the Mobile Community Treatment Program [1987-1988: Madison, Wisconsin] (ICPSR 9843)
Memphis New Mothers Study, 1990-1994 (ICPSR 6782)
Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2008-PRIOR1: Health Priorities 1--Americans' Views of the Medical Care System, United States, 2008 (ICPSR 38370)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Poll # 2008-PRIOR1: Health Priorities 1--Americans' Views of the Medical Care System, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:
- Nation's system to protect against health threats
- United States health care system
- National health insurance
- Respondent's personal medical care
- Ability to afford medical bills
- Local institutions
- Personal information regarding respondent
- Other codes
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092332]. Frequencies and summary statistics for the 131 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Evaluation of Regionalized Networks of High-Risk Pregnancy Care, 1970-1979 (ICPSR 8469)
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Sick in America, United States, 2012 (ICPSR 38378)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Sick in America, a survey from National Public Radio, the Robert Wood Johnson Foundation, and the Harvard School of Public Health, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Quality of health care
- Health care costs as problem
- Reasons for health care quality problems
- Focus of doctor visits
- Reasons for rising health care costs
- Health care as good value
- Agreement with doctor statements
- Amount of doctors
- Doctor visits for check-up
- Personal insurance coverage
- Uninsured
- Overnight hospital stays
- Satisfaction with hospital medical care
- Medical care costs as reasonable
- Description of hospital stays
- Serious illness
- Interactions with medical professionals
- Impact of medical care costs on family
- Receiving care every time it's needed
- Being turned away for health care
- Insurance premiums as financial problem
- Out of pocket medical costs
- Negotiating lower charges
- Problems paying for insurance
- Changing regular doctor
- Personal financial situation
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092354]. Frequencies and summary statistics for the 159 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Harvard School of Public Health/WBUR/Blue Cross Blue Shield of Massachusetts Foundation/Robert Wood Johnson Foundation Poll: Sick in Massachusetts, 2012 (ICPSR 38377)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Sick in Massachusetts, a survey from the Harvard School of Public Health, WBUR Boston National Public Radio, the Blue Cross Blue Shield Foundation of Massachusetts, and the Robert Wood Johnson Foundation, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Quality of health care
- Health insurance, insurance status, and care costs
- Reasons for health care quality problems
- Focus of doctor visits
- Reasons for rising health care costs
- Health care as good value
- Agreement with doctor statements
- Amount of doctors
- Attending routine check-ups
- Overnight stays in hospitals
- Satisfaction with hospital care
- Medical costs as reasonable
- Description of hospital stay
- Recent serious illness
- Satisfaction with medical care
- Interactions with health care professionals
- Impact of medical costs on family
- Receiving care every time it's needed
- Being turned away for health care
- Insurance premiums as financial problem
- Out-of-pocket medical costs
- Negotiating lower charges
- Problems paying for insurance
- Changing regular doctor
- Personal financial situation
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092353]. Frequencies and summary statistics for the 162 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
National Study of Physician Organizations (NSPO3), United States, 2012-2013 (ICPSR 38587)
Practice Patterns of Young Physicians, 1987: [United States] (ICPSR 9277)
This study investigated the factors that influenced the career decisions of young physicians and the characteristics of their practices. The collection has five datasets: Public-Use Version of the Young Physicians Survey (Dataset 1), Socioeconomic Monitoring System Study (Dataset 2), ZIP Code Data (Dataset 3), Verbatim Responses to the Open-Ended Questions (Dataset 4), and Restricted-Use Version of the Young Physicians Survey (Dataset 5).
The Public-Use Version of the Young Physicians Survey comprises responses from the Young Physicians Survey (YPS), plus merged data from the American Medical Association (AMA) Masterfile and the Association of American Medical Colleges' Student and Applicant Information Management System (SAIMS) database. The YPS interviewed physicians below 40 years of age who recently completed graduate medical training and were in their early years of practice. These physicians were queried about their graduate medical training, perceptions of the medical profession, current practice arrangements, career decisions, family background, patient care activities, and current income and expenses. To obtain information on current practice arrangements, respondents were questioned about the practices they worked in, including who owned the practices, the number of physicians in each practice, specialties or subspecialties practiced, usual fees for selected services, percentages of revenues from HMOs, PPOs, and IPAs, and percentages of patients who were Medicare patients, had no health insurance coverage, or were poor, Black, Hispanic, severely physically disabled, or chronically mentally ill. Questions on career decisions asked respondents about factors that influenced their career choices, such as reasons for working in multiple practices, reasons for leaving past practices, and reasons for deciding in favor of or against self-employment. Information on family background elicited by the survey includes the respondent's race, marital status, and educational debt, parents' income class and education, number of children living in the respondent's home, and whether the respondent's spouse or parents were physicians. Questions on patient care activities included questions on the number of hours spent providing uncompensated health care to the poor, and the number of hours spent with patients in a variety of settings, such as the office, emergency rooms, hospital outpatient clinics, and operating rooms. Information from the AMA Masterfile and the SAIMS database includes board certification status, AMA membership, school and year of graduation, Medical College Admission Test scores, primary undergraduate institution, most recent grade point averages, place of birth, number of acceptances to United States medical schools, parents' occupations, preferred medical specialty, and preferred practice setting.
Dataset 2 comprises responses from the AMA's Socioeconomic Monitoring System (SMS), a semiannual survey of nonfederal physicians that collected data on topics similar to those in the YPS, such as practice ownership, hours spent seeing patients in various settings, income, expenses, and opinions on practice procedures. The SMS data can be used for comparative analyses of young, prime, and senior physicians.
The ZIP Code Data contain estimates for the composition of the population residing in the ZIP code areas of the YPS respondents' main practices. This includes estimates of the size of each ZIP code area population, as well as its components with respect to gender, age, race, Hispanic ethnicity, and income. Also included are estimates of the number of physicians and their composition with respect to age, sex, practice type, and specialty.
Dataset 4 contains verbatim responses to open-ended questions asked in the YPS.
The Restricted-Use Version of the Young Physicians Survey is the same as the Public-Use Version of the Young Physicians Survey, except for some variables that were restricted from general dissemination for reasons of confidentiality. The restricted-use version includes the restricted variables, but the public-use version does not.
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Latinos' Lives and Health Today, United States, 2013 (ICPSR 38380)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Latinos' Lives and Health Today, a survey from National Public Radio, the Harvard School of Public Health, and the Robert Wood Johnson Foundation, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Satisfaction with life
- Satisfaction with living area
- Most important local issue
- Other Hispanic people in living area
- Rating aspects of life
- Personal discrimination in past twelve months
- Personal finances
- Achieving American dream
- Economic class
- Better off than parents
- Opportunities for children
- Language spoken at home
- Looking for job
- Concerns about unemployment
- Biggest health problem in family
- Description of weight
- Trying to lose weight
- Medical care in past twelve months
- Problems with medical care access
- Confidence in ability to pay for major illness
- Health care facility used
- Health care professionals speaking Spanish
- Receiving poor medical care
- Health insurance coverage
- Personal health rating
- Frequency of exercise
- Country born in
- Age came to United States
- Parents' birth country
- Reasons for coming to US
- Comparing birth country to US
- Diet as more or less healthy in US.
Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2005-DIS: Disparities, United States, 2005 (ICPSR 38348)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Poll # 2005-DIS: Disparities, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:
- Receipt of poor quality medical care
- Problems receiving quality health care due to race/ethnicity
- Action to ensure racial/ethnic minorities have the same chance to get good quality health care as whites
- Expectation of doctor to understand personal and cultural background's effects on quality of care
Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2006-QUALITY: Quality of Care, United States, 2006 (ICPSR 38362)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Poll # 2006-QUALITY: Quality of Care, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:
- Information that would tell the quality of a doctor/medical practice/clinic in comparison to others
- Choice of doctors
- Receipt of information rating doctors/clinics in the community
- Use of information received about ratings of doctors/clinics in making decisions about where to get care
- Use of ratings of doctors/clinic from sources
- Personal health
- Health insurance coverage
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092316]. Frequencies and summary statistics for the 125 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997 (ICPSR 2957)
Practice Patterns of Young Physicians, 1991: [United States] (ICPSR 6145)
The purpose of this survey was to obtain information on the characteristics and practice patterns of early career physicians in order to analyze trends in physicians' activities and the supply of physicians. To that end, the survey interviewed early career physicians and re-interviewed physicians who participated in the previous survey of early career physicians PRACTICE PATTERNS OF YOUNG PHYSICIANS, 1987 (ICPSR 9277). With separate samples drawn for allopathic and osteopathic physicians, the respondents were interviewed about their medical training, medical education financing, career choices and satisfaction, practice arrangements and compensation, and patient care activities. They were also questioned about medical care management in their practice(s), perceptions of their freedom to deliver care, medical malpractice claims, and the composition of their patients, such as the percent who were poor, black, Hispanic, uninsured, covered by Medicaid or Medicare, or had severe physical disabilities, chronic mental illness, or problems with substance abuse. Demographic characteristics covered by the survey include race, Hispanic origin, year of birth, marital status, number and ages of children, and parents' education.
In addition to the variables collected by survey, the allopath sample data also comprise variables obtained from the American Medical Association (AMA) and the Student and Applicant Information Management System (SAIMS) of the Association of American Medical Colleges (AAMC). The AMA variables include gender, name of medical school, board certification status, physician's specialty, and AMA membership, while the SAIMS variables include dates of application to medical school, graduation dates, Medical College Admission Test (MCAT) scores, undergraduate grade-point averages, religious preference, career preference, preferred practice setting, educational debt, scholarship information, and participation in courses/clerkships in different subject areas.
The study comprises five data files. Dataset 1 contains the public-use version of the data for the allopath sample and Dataset 2 the public-use version of the data data for the osteopath sample. Both of these files were generated by ICPSR from the original restricted-use allopath and osteopath data files provided by the principal investigator, which are stored as Datasets 3 and 4 respectively. As noted in the ICPSR Processing Note in the codebook, Dataset 5 contains 26 restricted variables which the principal investigator omitted from the original allopath data (Dataset 3) for reasons of confidentiality. ICPSR received the omitted variables in 2009, 14 years after its initial release of the data.
Health Reform Monitoring Survey, United States, First Quarter 2015 (ICPSR 36364)
Evaluation of CASAWORKS for Families -- Phase I, 1999-2001 [United States] (ICPSR 21681)
These data were collected to evaluate the effectiveness of CASAWORKS for Families (CWF), a multiservice intervention designed to move substance abusing women on welfare to sobriety and self-sufficiency by addressing their substance abuse, domestic violence, employment, and basic needs. Conducted at 11 sites across the country, the evaluation was designed as a repeated measures, pre-during-post field evaluation with no pre-specified control or comparison groups. The results of this evaluation were primarily intended to guide a proposed second-stage experimental study of the effectiveness of an enhanced and refined CWF model.
When the potential participant presented herself at the CWF site, a research technician administered a specially modified version of the Addiction Severity Index (ASI), referred to as the Welfare to Work ASI (WTW-ASI). This version retained the ASI 5th edition as the core instrument but added questions in an addendum. The baseline WTW-ASI measured the severity of problems in nine areas: employment, medical status, alcohol use, drug use, legal status, family and social relationships, children and child care, basic needs, and psychiatric symptoms. In addition, the four-item Center for Epidemiologic Studies Depression Scale (CES-D), the Parenting Dimensions Inventory (PDI), and the Posttraumatic Stress Diagnostic Scale (PDS) were used to assess depression, parenting style, and posttraumatic stress disorder, respectively. The PDI, CES-D, and a follow-up version of WTW-ASI were also administered 6 and 12 months after intake.
Two instruments were used at baseline and at 1, 3, 6, and 12 months postbaseline to record the services provided by CWF: Welfare to Work version of the Treatment Services Review (TSR-WTW) and Case Management Review (CMR). The former mostly collected data on the number of treatment services received, such as doctor visits, therapy sessions, and days of inpatient treatment in the prior 30 days, while the latter collected data on the activities of the case management sessions and topics covered with the case managers. Activities recorded by the CMR included working on self-sufficiency plans, arrangement of follow-up services, skills development, crisis response, and advocating for the client. Topics covered included employment, substance abuse, mental health, domestic violence, parenting and child care, basic needs, life skills, and social support.
In order to compare the characteristics of the CWF clients with the general population of women who received Temporary Assistance for Needy Families (TANF), the study also collected WTW-ASI data from women in the general TANF population in the CWF locales regardless of their substance-use status.
Active for Life: Translation of Physical Activity Programs for Mid-Life and Older Adults, 2003-2007 [United States] (ICPSR 24723)
Sponsored by the Robert Wood Johnson Foundation, the Active for Life (AFL) initiative investigated how two physical activity programs for adults aged 50 and older, Active Choices (AC) and Active Living Every Day (ALED), worked in community settings. Created by researchers at Stanford University, Active Choices used lifestyle counseling and personalized telephone support to encourage older adults to be physically active. In AFL, this was a 6-month program delivered through one face-to-face meeting followed by up to eight one-on-one telephone counseling calls. Active Living Every Day, which was created by the Cooper Institute and Human Kinetics Inc., also provided lifestyle counseling to promote physical activity, but in a classroom and workbook format. During the first three years of the four-year AFL initiative, ALED was delivered as a 20-week program where participants attended weekly small group meetings, but in the last year it was shortened to 12 weekly meetings. Nine organizations received AFL grants to implement the programs during 2003-2006. Four grantees implemented the one-on-one AC model, while five implemented the group-based ALED model.
Data were collected from the AC and ALED sites for both a process and outcomes evaluation. The primary aims of the process evaluation were to (1) monitor the extent to which the grantees demonstrated fidelity to the AC and ALED models in their program implementation, (2) assess staff experiences implementing the programs, and (3) assess participants' impressions of the programs. A quasi-experimental, pre-post study design was used to assess outcomes. Primary aims of the outcomes evaluation were to evaluate the impact of AC and ALED on self-reported physical activity, and to evaluate the impact of the programs on self-reported stress, depressive symptoms, and satisfaction with body function and appearance. Secondary aims of the outcome evaluation were to (1) evaluate the impact of the programs on measures of functional fitness, (2) examine whether changes in self-reported physical activity and functional fitness were moderated by participant characteristics, including age, gender, race, baseline physical activity self-efficacy, and baseline physical activity social support, and (3) examine whether changes in self-reported physical activity were consistent with a mediation model for physical activity self-efficacy and physical activity social support.
The collection has 14 data files (datasets). Datasets 1-7 constitute the process evaluation data, and Datasets 8-14 the outcomes evaluation data:
Dataset 1 (AC Initial Face-to-Face Sessions Data) contains information about the initial face-to-face AC session: the format, date, and length of the session, whether the 8 steps required in the face-to-face session were completed, what was discussed between the health educator and the participant related to physical activity plans, interests, benefits, and barriers, and the health educator's progress notes. The file contains one record for each AC participant.
Dataset 2 (AC Completed Calls Data) comprises information about the completed AC calls, but does not cover the topics discussed on the calls. Recorded information about each call includes the date and length of the call, the health educator's progress notes, and whether the participant was assessed for injury, light activity, moderate activity, exercise goals, or exercise intentions. Each call is represented by a separate record in the data file and, typically, there are multiple records per participant.
Dataset 3 (AC Topics Discussed on Completed Calls ) contains information about the topics discussed on each completed AC call, e.g., exercise barriers/benefits, previous exercise experiences, goal setting, long term goals, injury prevention, rewards/reinforcement, social support, progress tracking, and relapse prevention. Each record in the file represents one topic and there are often multiple records per call for each participant.
Dataset 4 (AC Aggregate Call Data) aggregates the call data across calls for each AC participant. For example, for a given participant, this dataset shows the total number of calls completed, the number of calls where injury/health problems were assessed, etc. The file contains one record per participant.
Dataset 5 (ALED Sessions Data) contains information about each class session for every ALED group, including the session date, start time, and end time, learning activities covered in the session, participant evaluations of the session and the facilitator, facilitator progress notes, the number of participants who were in various stages of readiness for moderate exercise, and the number of participants who tracked physical activity and thoughts about physical activity. This file has one record for each session of every ALED group.
Dataset 6 (ALED Attendance and Tracking Data (Years 2-4)) consists of participant-level attendance and tracking data for every ALED session during the second to fourth years of the evaluation, including the participant's attendance at the session, whether the participant's stage of readiness was assessed, and whether the participant tracked thoughts about physical activity or actual physical activity. There is no participant-level ALED data for the first year. Each participant has a separate record for each session. Thus, the file contains 20 records per participant in the years 2-3, and 12 records per participant in year 4.
Dataset 7 (ALED Aggregate Attendance and Tracking Data (Years 2-4)) contains ALED attendance and tracking data for each participant in years 2-4, aggregated across the sessions. The data file has one record for each participant.
Dataset 8 (Demographics) comprises program information (e.g., program status, start date, end date, site, etc.), demographic information (e.g., age, gender, race, Hispanic origin, employment status, income, and the participant's state and ZIP code of residence), and responses to the Physical Activity Readiness Questionnaire (PAR-Q), a screening tool that was used to assess possible risks of exercising based on answers to specific health history questions. The file contains one record for each AFL participant, except for those with a status of "nonstarter" or "repeater."
Datasets 9 (Pretest Survey Data) and 10 (Posttest Survey Data) contain data from the Pretest and Posttest Surveys. The Pretest Survey was administered at the beginning of the AC and ALED programs, while the Posttest Survey was administered at their end. Topics covered by the surveys include social and recreational activities, activities undertaken for exercise, perceived stress, depressive symptoms, satisfaction with body appearance and function, social support for physical activity, self-efficacy for physical activity, neighborhood environment, health conditions, health-related quality of life, caregiving, and self-reported height and weight. Both surveys included items from the Community Health Activities Model Program for Seniors Physical Activity Questionnaire (CHAMPS), the Center for Epidemiological Studies Depression Questionnaire (CES-D), the Behavioral Risk Factor Surveillance System Questionnaires (BRFSS), and the International Physical Activity Prevalence Study Environmental Module. These data files each have one record for each participant who submitted a questionnaire.
Dataset 11 (ALED Week 12 Survey Data (Year 4)) contains responses to the ALED Week 12 Posttest Survey, which was used to evaluate the 12-week adaptation of ALED in Year 4. (In Year 4, ALED participants completed both a 12- and 20-week posttest survey). There is one record for each participant who returned this survey.
Dataset 12 (Six-Month Posttest Follow-Up Survey Data (Years 3-4)) comprises data from a special 6-month follow-up survey which was administered in years 3-4 in six of the ALED sites and one of the AC sites. Participants were questioned about their current physical activities, weight, health-related quality of life, satisfaction with bodily function, and other topics. As with Datasets 9-11, the data file contains one record for each participant who returned a questionnaire.
Dataset 13 (Functional Fitness Tests Data) contains the results of pretest and posttest functional fitness tests which were administered by one ALED grantee. Four tests were adminstered: (1) the 30-Foot Walk Test, (2) the 30-Second Chair Stand, (3) 8-Foot Up and Go, and (4) the Chair Sit and Reach Test. This participant-level data file also includes pretest height measurements plus pretest and posttest weight measurements.
Dataset 14 (Participants' Impressions of the Programs (Years 1, 3, and 4)) contains data collected by the last sections of the Posttest Survey, ALED Week 12 survey, and 6-Month Follow-up Survey. The topics it covers include the participants' impressions of the programs, participation in physical activities, and changes (compared to before they started the AFL program) in motivation to be physically active, actual level of physical activity, medical and health conditions, overall pain, flexibility/limberness, level of stress, happiness, and enjoyment of life. The file has a separate record for each survey completed by the participants. Thus, there are 1-3 records per participant.
Evaluation of Children's Futures: Improving Health and Development Outcomes for Children in Trenton, New Jersey, 2001-2005 (ICPSR 21640)
These data were collected for the initial phase of the evaluation of the Children's Futures initiative, a comprehensive set of interventions aimed at improving child health and development outcomes from prenatal to age three in Trenton, New Jersey. To that end, the initiative worked to (1) improve access to prenatal care and strengthen effective parenting, (2) improve the quality of child care, and (3) strengthen and sustain positive involvement of fathers in their children's lives. As part of the evaluation, a baseline community survey and surveys of childcare providers were conducted and births records were obtained from the New Jersey State Department of Health.
Extracted from New Jersey vital events public-use data files, Datasets 1-3 contain information on births during 2001-2004 to women in Trenton and, for comparison, two New Jersey cities not covered by the intervention, Camden and Newark. The birth records data include sex, birth order, birth weight, gestational age, one-minute and five-minute APGAR scores, month of pregnancy when prenatal care began, number of prenatal visits, weight gained during pregnancy, medical risk factors for the pregnancy, obstetric procedures performed, delivery complications, congenital anomalies and abnormalities, mother's marital status and number of live births now living, and the parents' age, race, Hispanic origin, state/country of birth, and education.
Dataset 4 contains data from the baseline community survey, which in 2002 interviewed the primary caregivers of children aged 0-5 in Trenton households. The survey collected information about child and parental health, parenting practices, fathers' involvement in their children's lives, health insurance and health care utilization, attendance at parenting groups or classes, and utilization of child care. Additional information collected by the baseline survey includes United States nativity, year of immigration, race, Hispanic origin, education, employment status, alcohol use, illicit drug use, earnings, and household income.
Datasets 5-7 contain data from the childcare provider surveys conducted in 2003, 2004, and 2005, which collected information about the teachers and childcare providers in the Trenton childcare centers that were participating in Children's Futures. Respondents were questioned about their work experience, age, race, place of residence (ZIP code), education, credentials, position held and hours worked, languages spoken, salary/hourly rate for the job at the center, childcare training and practices, opinions about center staffing levels, and beliefs about how to help infants and toddlers learn and grow. In addition, the respondents were asked how prepared they were to work with infants or toddlers with certain conditions such as emotional disturbances, attention deficit disorder or attention deficit hyperactivity disorder (ADD/ADHD), fetal alcohol syndrome, asthma, severe allergies, and developmental delays.
Comparative Analysis of Small and Large Group Health Care Utilization and Costs, 1988-1990: [Western Pennsylvania] (ICPSR 6859)
Hospitalized Older Persons Evaluation (HOPE) Study, 1991-1993: [California] (ICPSR 6560)
Robert Wood Johnson Foundation/Harvard School of Public Health Poll: America's Health Agenda, United States, 2011 (ICPSR 38376)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of America's Health Agenda, a survey from the Robert Wood Johnson Foundation and the Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Rating local community's healthiness
- Most threatening disease or health condition
- Most important medical care system problems
- Rating government illness prevention
- Rating government health care systems
- Preferred government size
- Federal government health care priorities
- Rating federal government health care performance
- Contact with federal government health agencies
- Overall national health changes
- State government health priorities
- Rating state government health care performance
- Contact with state government health agencies
- Overall state health changes
- Local government health care priorities
- Rating local government health care performance
- Contact with local health agencies
- Overall local health changes
- Personal problems in past year
- Spending money to save in the long run
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092347]. Frequencies and summary statistics for the 421 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
National Studies of Physicians from Twenty-four Medical and Surgical Specialties, 1976-1978 (ICPSR 7782)
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: African Americans' Lives Today, United States, 2013 (ICPSR 38379)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of African Americans' Lives Today, a survey from National Public Radio, the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Satisfaction with life and environment
- Life improvements
- Satisfaction with living area
- Living area improvements
- Most important local issue
- Other black people in area
- Amount of black friends
- Economic class
- Rating various public institutions
- Rating quality of various resources
- Amount of discrimination
- Reason for discrimination
- Personal financial situation
- Economic class growing up
- Achieving American dream
- Better off than parents
- Importance of religion
- Making decisions about children
- Child schooling
- Rating child's school
- Black children in school
- Desired level of child's education
- Seeking long-term relationship
- Desire to marry
- Satisfaction with dating opportunities
- Race of romantic dates
- Looking for work
- Career success
- Unemployment concerns
- Health insurance and healthcare
- Access to care
- Medical expenses
- Quality of doctors
- Health and wellness
- Social and family life
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092356]. Frequencies and summary statistics for the 204 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
National Survey of Primary Care Physicians and Nurse Practitioners, 2012 (ICPSR 36050)
National Comorbidity Survey: Adolescent Supplement (NCS-A), [United States], 2001-2004 (ICPSR 28581)
The National Comorbidity Survey Replication Adolescent Supplement (NCS-A) was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders in the child and adolescent years of life among adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders.
The core NCS-A interview schedule was an adaptation of the World Health Organization Composite International Diagnostic Interview (CIDI). NCS-A also administered the non-verbal subtest (Matrices subtest) of the Kaufman Brief Intelligence Test (K-BIT).
In addition to interviewing adolescents, information was collected from a parent or a parent surrogate to obtain an additional perspective on the adolescent's mental health and its correlates. Information from parents focused on the five adolescent disorders for which previous methodological research has most consistently shown that parental reports are important for making diagnoses: attention-deficit/hyperactivity disorder, conduct disorder, oppositional defiant disorder, major depressive episode, and dysthymic disorder.
Demographic information collected by NCS-A includes age, citizenship status, country of birth, criminal history, ethnicity, grandparents' country of birth, language(s) spoken in the home, parents' country of birth, race, religion, and sex.
The data collection contains six data files: (1) data for the adolescent household and school respondents; (2) data for the parents who responded to the long self-administered questionnaire; (3) data for the parents who responded to both the long self-administered questionnaire and short telephone interview; (4) diagnostic variables derived from the data collected from the adolescents and parents; (5) K-BIT scores normed to the NCS-A adolescent sample; and (6) raw K-BIT data.