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Curated

Creating a Patient Registry to Facilitate Data Sharing and Encourage Patient-Centered Approaches to Improving Health and Lowering Costs, 2013 (ICPSR 35570)

Released/updated on: 2016-10-05
Geographic coverage: United States, Cincinnati, Ohio
Time period: 2013-09-01--2013-12-01

This interventional pilot study was conducted in a primary care clinic to determine if patients would become more engaged in their own health and ask more questions of their physicians if they were provided data about patients similar to themselves. The study was conducted with 150 patients with a diagnosis of hypertension who had scheduled appointments with one of three participating physicians in the clinic. When they arrived at the clinic for their appointment, the patients were shown de-identified clinical data about similar patients with hypertension on a computer screen, given a printout of this information, and then proceeded to visit their physician. After the physician visit the patients completed a short survey. Their answers to the survey questions are recorded in the data file together with additional information about them, such as age, gender, race, smoking status and comorbidities.

The three participating physicians completed a short survey at the end of the study. The results of that survey are summarized in a table provided with the technical documentation.

Curated

Project HealthDesign: Chronology.MD - Personal Health Record Applications for Patients With Crohn's Disease, 2011-2012 (ICPSR 36028)

Released/updated on: 2024-02-14
Geographic coverage: San Francisco, California
Time period: 2011-01-01--2012-01-01
More than 600,000 people in the United States live with Crohn's disease, a chronic and progressive disorder of the digestive system which is most prevalent in young adults ages 18-35. The Chronology.MD team developed two mobile applications to help patients who have Crohn's disease create visually aided narratives of their condition and responses to treatment. Crohn's patients used the Chronology app to enter observations of daily living (e.g., levels of abdominal pain, energy, and stress); enter clinical data (levels of B-12, C-Reactive Protein, HTC and iron in the blood); automatically upload weight data using Withings scales; and automatically uploaded sleep and exercise data from Fitbit body monitors. The Crohnograph app enabled patients to view time trends for tracked ODLs and other data, explore possible associations among them, and show the data visualizations to their health care provider. The providers could document information from the visualization and conversations in clinical notes. This data collection comprises the data collected using the Chronology app from the patients who participated in the Chronology.MD study.
Curated

Evaluation of Better Jobs, Better Care: Frontline Supervisor Survey, 2005-2007 [Iowa, North Carolina, Oregon, Pennsylvania, Vermont] (ICPSR 23000)

Released/updated on: 2008-09-26
Geographic coverage: North Carolina, Oregon, Vermont, Iowa, United States, Pennsylvania
Time period: 2005-01-01--2007-01-01

In long-term care, frontline supervisors play a central role in direct care workers' (DCW) job quality and turnover and are critical to the implementation of management changes. To better understand supervisors' perceptions of management practices, the quality of supervision, and the effect on DCW turnover and job quality, the Office of the Assistant Secretary for Planning and Evaluation in the United States Department of Health and Human Services contracted with Pennsylvania State University to conduct this survey of supervisors participating in the Better Jobs, Better Care (BJBC) demonstration. Funded by the Robert Wood Johnson Foundation and The Atlantic Philanthropies, the BJBC demonstration -- which took place in Iowa, North Carolina, Oregon, Pennsylvania, and Vermont -- tested innovative policy and practice models designed to improve the quality of DCW jobs in an effort to improve recruitment and retention of these workers and strengthen capacity to meet future demand for long-term care.

Frontline supervisors were interviewed from the four types of facilities and agencies that participated in the demonstration: skilled nursing facilities, assisted living facilities, home care agencies, and adult day service providers. The survey explored the supervisors' job responsibilities, formal training, job satisfaction, and thoughts about quitting. It investigated the culture of the organizations in which the supervisors worked, probed for problems with the supervisors' jobs, assessed how rewarding the supervisors felt their jobs were, inquired as to whether the supervisors felt respected by their clients, DCWs, and managers, gauged the supervisors' assessments of the overall competency level of the DCWs in their organizations, and explored the supervisors' beliefs about managerial support for the BJBC project, how well the BJBC programs were executed, and whether the overall impact of the project was positive.

In addition, the respondents were queried about management practices (e.g., rotation of assignments to different services or units, mechanisms to handle employee concerns, and approaches used to handle poor performance or negative behaviors among employees). They were also asked about DCW training, mentoring, and career ladder programs, DCW participation in patient/resident/client care plans, and communication among DCWs and between DCWs and their supervisors. Respondents were also asked what was the most important thing that their employer could do both to improve the jobs of DCWs and to improve their own ability to do their jobs as supervisors of DCWs. Additional information collected by the survey includes the supervisors' age, sex, race, Hispanic origin, educational attainment, nursing degree or license (LPN, RN, Diploma RN, BSN, MSN, or Advanced Practice Nurse), wages, and health insurance coverage.

This collection comprises three data files: (1) Supervisor Identification Instrument Data, (2) Supervisor Survey Data, and (3) Clinical Managers Who Are Also Supervisors Data. The first file contains information collected by the Supervisor Identification Instrument that was submitted to the clinical manager at each BJBC provider organization. This instrument instructed clinical managers to name all of the supervisors in their organization and to indicate which supervisory responsibilities each one performed. The second data file contains the responses to the Supervisor Survey questionnaire.The third data file contains the responses of clinical managers who also functioned as supervisors in their organization. These clinical managers responded to the same questions in the Supervisor Survey questionnaire, except for ten questions that were worded somewhat differently.

Curated

Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988 (ICPSR 9795)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1985-01-01--1988-01-01
The Infant Health and Development Program was a collaborative, randomized, longitudinal, multisite clinical trial designed to evaluate the efficacy of comprehensive early intervention in reducing the developmental and health problems of low birth weight, premature infants. An intensive intervention extending from hospital discharge to 36 months corrected age was administered between 1985 and 1988 at eight different sites. The study sample of infants was stratified by birth weight (2,000 grams or less, 2,001-2,500 grams) and randomized to the Intervention Group or the Follow-Up Group. The Intervention Group received home visits, attendance at a special child development center, and pediatric follow-up. The Follow-Up Group received only the pediatric follow-up component of the program. Measures of cognitive development, behavioral status, health status, and other variables were collected from both groups at predetermined time points. Cognitive development was assessed by the Stanford-Binet Intelligence Scale, the Bayley Mental and Motor Scales, the Peabody Picture Vocabulary Test--Revised, and the Beery-Buktenica Developmental Test of Visual Motor Integration. Behavior problems were measured using the Richman-Graham Behavior Checklist and Achenbach's Child Behavior Checklist. Health status was evaluated through the dimensions of morbidity (defined as the presence or absence of health conditions), functional status (defined by limitations in activities of daily living due to health problems), changes in physical growth, and maternal perception of the child's health. The many other variables and indices in the data collection include site, pregnancy complications, child's birth weight and gestation age, birth order, child's gender, household composition, day care arrangements, source of health care, quality of the home environment, parents' race and ethnicity, and maternal age, education, IQ, and employment.
Curated

Culturally Focused Psychiatric Consultation Service For Massachusetts General Hospital's Asian American and Latino American Primary Care Patients with Depression, 2009-2011 (ICPSR 34495)

Released/updated on: 2024-02-14
Geographic coverage: United States, Massachusetts
Time period: 2009-12-16--2011-08-17

This randomized controlled trial evaluated a culturally appropriate intervention to improve the recognition and treatment of depression among Asian and Latino American primary care patients at Massachusetts General Hospital (MGH), using a culturally focused psychiatric (CFP) consultation with a team of mental health providers who were bilingual/bicultural, trained in culturally competent techniques, and familiar with the cultures and languages of the patients served. Targeted minority patients who screened positive for clinical depression were eligible to participate in the trial. The intervention patients were offered the CFP consultation at baseline and, if eligible, received the CFP patient toolkit as part of their treatment. The toolkit provided psychoeducation and tools for managing depression as well as information on community resources. The usual care patients were offered standard referrals to MGH mental health resources.

Questionnaires were administered to the patients at screening, baseline, two-week follow-up, and six month follow-up. The screening questionnaires included the two-item Public Health Questionnaire (PHQ-2) and demographic questions. Assessment measures administered to the intervention patients at baseline included the Mini International Neuropsychiatric Interview (MINI), Quick Inventory of Depressive Symptomatology-Self Rated Scale (QIDS-SR 16), Global Assessment of Functioning (GAF), Schwartz Outcome Scale (SOS-10), and a demographic questionnaire and resource utilization questionnaire. At six month follow-up, the intervention arm was administered a resource utilization questionnaire, patient satisfaction questionnaire (Treatment Satisfaction Scale), qualitative interview, and the QIDS-SR 16 and SOS-10. The SOS-10 was also administered to the intervention patients at two-week follow-up. In the usual care arm, the QIDS-SR 16 and resource utilization questionnaire was administered at baseline and six months, the qualitative interview at six months, and the demographic questionnaire at baseline or six-months. There was no two-week assessment for the usual care patients. Electronic medical record review was used for both arms at baseline and six months, as needed. In addition, qualitative interviews were conducted with project and practice staff at the end of the study.

The data file includes the responses to the questionnaires and variables describing the CFP consultation assessment (DSM-IV Axis I, II, III, IV, and V diagnoses), treatment recommendations made to the patients' primary care physicians (PCPs) after the CFP consultation, and study staff contacts with the patients' PCPs and mental health providers. ICPSR did not receive the data from the qualitative interviews or electronic medical record reviews.

Curated

Evaluation of the Adolescent Portable Therapy (APT) Program [New York City], 2001-2004 (ICPSR 4299)

Released/updated on: 2005-11-04
Geographic coverage: New York City, United States, New York (state)
Time period: 2001-01-01--2004-01-01
This study contains data collected for an evaluation of the Adolescent Portable Therapy (APT) Program, which provided family-based drug treatment services to adolescents involved with the New York City juvenile justice system on charges of Persons In Need of Supervision (PINS) or delinquency. The program aimed to improve five core areas of the young peoples' lives: substance use, mental health, schooling, family functioning, and recidivism. Recruitment for the study occurred at juvenile detention facilities in New York City. Intake staff conducted screening interviews with the detainees. Those who reported using substances at least 30 times in the previous 30 days, or who met Diagnostic and Statistical Manual of Mental Disorders - Fourth Edition (DSM IV) criteria for substance abuse or dependence were eligible for selection. After the respondents and their families consented to participate, the respondents were randomly assigned to treatment and control groups. The treatment group went on to receive services from APT, while control group subjects received no APT services but had access to all other standard facilities and community based services. The evaluation participants were interviewed at four time points: at intake into the study in the juvenile detention facilities (baseline), three months after release from detention (T1), nine months after release from detention (T2), and 15 months after release from detention (T3). Whenever subjects were interviewed outside of a detention facility for T1, T2, and T3, study staff attempted to collect urine samples which were tested for marijuana, cocaine, amphetamines, phencyclidine (PCP), and opiates. Topics covered by the interviews included substance use and treatment, physical health, risk behaviors and disease prevention, mental and emotional health, living situation and environment, crime and legal issues, school, work, income, and demographic characteristics.
Curated

National Preventive Dentistry Demonstration Program, 1977-1981 (ICPSR 8494)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1977-01-01--1981-01-01
Data in this collection document the National Preventive Dentistry Demonstration Program. The program provided dental examinations and preventive treatment of school children. Information such as sex, age, race, grade, and program site are given for each child, as well as data on the specific treatment regimen for the child. Data on dental habits and condition are provided by a survey of parents (which also includes demographic data on participants and non-participants), radiographic examinations, and clinical examinations. Also included are data on the costs, personnel resources, and materiel required by the program, plus results from periodic surveys of participating school principals and teachers.
Curated

Evaluation of CASAWORKS for Families -- Phase I, 1999-2001 [United States] (ICPSR 21681)

Released/updated on: 2009-12-16
Geographic coverage: United States
Time period: 1999-01-01--2001-01-01

These data were collected to evaluate the effectiveness of CASAWORKS for Families (CWF), a multiservice intervention designed to move substance abusing women on welfare to sobriety and self-sufficiency by addressing their substance abuse, domestic violence, employment, and basic needs. Conducted at 11 sites across the country, the evaluation was designed as a repeated measures, pre-during-post field evaluation with no pre-specified control or comparison groups. The results of this evaluation were primarily intended to guide a proposed second-stage experimental study of the effectiveness of an enhanced and refined CWF model.

When the potential participant presented herself at the CWF site, a research technician administered a specially modified version of the Addiction Severity Index (ASI), referred to as the Welfare to Work ASI (WTW-ASI). This version retained the ASI 5th edition as the core instrument but added questions in an addendum. The baseline WTW-ASI measured the severity of problems in nine areas: employment, medical status, alcohol use, drug use, legal status, family and social relationships, children and child care, basic needs, and psychiatric symptoms. In addition, the four-item Center for Epidemiologic Studies Depression Scale (CES-D), the Parenting Dimensions Inventory (PDI), and the Posttraumatic Stress Diagnostic Scale (PDS) were used to assess depression, parenting style, and posttraumatic stress disorder, respectively. The PDI, CES-D, and a follow-up version of WTW-ASI were also administered 6 and 12 months after intake.

Two instruments were used at baseline and at 1, 3, 6, and 12 months postbaseline to record the services provided by CWF: Welfare to Work version of the Treatment Services Review (TSR-WTW) and Case Management Review (CMR). The former mostly collected data on the number of treatment services received, such as doctor visits, therapy sessions, and days of inpatient treatment in the prior 30 days, while the latter collected data on the activities of the case management sessions and topics covered with the case managers. Activities recorded by the CMR included working on self-sufficiency plans, arrangement of follow-up services, skills development, crisis response, and advocating for the client. Topics covered included employment, substance abuse, mental health, domestic violence, parenting and child care, basic needs, life skills, and social support.

In order to compare the characteristics of the CWF clients with the general population of women who received Temporary Assistance for Needy Families (TANF), the study also collected WTW-ASI data from women in the general TANF population in the CWF locales regardless of their substance-use status.

Curated

Evaluation of the Health Link Program [New York City]: The Community Reintegration Model to Reduce Substance Abuse Among Jail Inmates, 1997-2002 (ICPSR 3978)

Released/updated on: 2004-08-20
Geographic coverage: New York City, United States, New York (state)
Time period: 1997-01-01--2002-01-01
This evaluation study, funded by The Robert Wood Johnson Foundation, was designed to provide a rigorous assessment of the effects of making Health Link's community-based services available to former inmates of New York City's jail system at Rikers Island. The goal of the Health Link Project was to promote healthy reintegration of persons leaving Rikers into their communities by (1) providing direct services to incarcerated and formerly incarcerated clients, (2) assisting community organizations that served this population, (3) establishing linkages between organizations, and (4) strengthening linkages between them and public agencies. The signature component of Health Link was case management in the community. Meeting with clients after their release from jail, caseworkers provided a support structure, made referrals to services, offered crisis intervention and counseling, and served as advocates for clients. Only adult females and adolescent males were included in the study. Eligible inmates who volunteered for the evaluation study were assigned to one of two groups: the Jail-and-Community Services group (JC group) or the Jail Services Only group (J group). JC group members were eligible for Health Link's intensive discharge planning and community case management services, while J group members were eligible for less intensive discharge planning services and ineligible for Health Link's community case management services. Evaluation subjects initially completed an intake questionnaire, which collected information on age, race, Hispanic origin, ethnicity, place and type of residence, family relations, criminal background, employment and education, substance abuse, health and medical history, sexual at-risk behavior and reproductive health, and history of trauma. Follow-up interviews were conducted, on average, about 15 months after release from jail, a sufficient time to observe the 12-month period for which clients were eligible for community-based services. Topics covered in the follow-up 12 Month Questionnaire included involvement in the criminal justice system, criminal activity, substance abuse, participation in substance abuse treatment programs, education and employment outcomes, health status, access to and utilization of health care services, sexual activity and HIV risk, housing, and involvement with family and community. Subjects who were not incarcerated at the time of their follow-up interview were asked to voluntarily provide hair samples, which were tested for metabolites of cocaine, opiates, PCP, methamphetamine, and marijuana.
Curated
Partially restricted

Minimal Hearing Loss in Children, 1991-1994: [Davidson County, Tennessee] (ICPSR 6573)

Released/updated on: 2024-02-14
Geographic coverage: United States, Tennessee
Time period: 1991-03-01--1994-03-01
The purpose of this survey and follow-up case-control study was to estimate the prevalence of minimal hearing loss in school-age children and to determine whether children with minimal hearing loss experienced any psychoeducational or functional complications. Third-, sixth-, ninth-, and eleventh-grade children were evaluated for hearing threshold levels and type of hearing loss, as well as middle ear function and associated abnormalities. The data include results from acoustic otoscope, diagnostic immittance, and GSI-37 auto tymp tests. The case-control data contain scores from the Comprehensive Tests of Basic Skills, scores from the Revised Behavior Problem Checklist, and other variables.
Curated

"Your Child's Teeth" Project, 1991-1993: [New York City] (ICPSR 6578)

Released/updated on: 2024-02-14
Geographic coverage: New York City, United States, New York (state)
Time period: 1991-03-01--1993-06-30
The purpose of this study was to assess the effectiveness of an educational program called "Your Child's Teeth", which was designed to modify mothers' care of their young children's teeth. These data, gathered at three consecutive weekly sessions with mothers, children, and dental health counselors in New York City, provide information on the oral health of the children and the extent of the mothers' knowledge of dental care for infants. Information on the oral health of the children includes scores of caries and abscesses in the maxillary teeth, and indices of maxillary and mandibular plaque and gingivitis. Mothers were queried on how to clean infants' teeth and gums, how to prevent use of a baby's bottle from causing cavities, and other behaviors and practices related to dental hygiene. Demographics include mother's age, race, and education, as well as child's age and gender.
Curated
Partially restricted

Infant Health and Development Program, Phase IV, 2001-2004 [United States] (ICPSR 23580)

Released/updated on: 2013-02-15
Geographic coverage: United States
Time period: 1984-01-01--2004-01-01

The Infant Health and Development Program (IHDP) was a multisite, randomized, controlled trial of an educational intervention until three years of age for low birth weight preterm infants born in 1984-1985. There were three components to the intervention: (1) an educational program delivered through home visits (weekly during the first year and every other week during the second and third years of life), (2) a daily center-based program beginning at 12 months corrected for duration of gestation, and (3) parent support groups coinciding with the start of the center-based program. Previously, the subjects were assessed at baseline up to age 3 (Phase I), age 5 (Phase II), and age 8 (Phase III). Phase IV assessed them at age 18.

This data collection contains selected variables from all four phases that were used in analyses reported in two articles by the principal investigators and others:

  • McCormick, Marie C., Jeanne Brooks-Gunn, Stephen L. Buka, Julie Goldman, Jennifer Yu, Mikhail Salganik, David T. Scott, Forrest C. Bennett, Libby L. Kay, Judy C. Bernbaum, Charles R. Bauer, Camilia Martin, Elizabeth R. Woods, Anne Martin, and Patrick H. Casey. "Early Intervention in Low Birth Weight Premature Infants: Results at 18 Years of Age for the Infant Health and Development Program." Pediatrics 117.3 (2006): 771-780.
  • Martin, Anne, Jeanne Brooks-Gunn, Pamela Klebanov, Stephen L. Buka, and Marie C. McCormick. "Long-term maternal effects of early childhood intervention: Findings from the Infant Health and Development Program (IHDP)." Journal of Applied Developmental Psychology 29 (2008): 101-117.

As such, the collection comprises only some of the variables that were collected for Phase IV and the other phases.

The collection contains information about the children and their mothers/caregivers. Data on the children include treatment group, sex, birth weight group, and an index of neonatal health, plus indices of receptive vocabulary, intelligence, and adult-child activities at age 5, indices of intelligence, receptive vocabulary, reading ability, math ability, and behavioural problems and competencies at ages 8 and 18, and indices of risk behaviors, physical health, future expectations, and engagement towards school at age 18. Information about the mothers/caregivers includes maternal age and mother's race, as well as educational achievement at baseline and ages 5, 8, and 18; smoking at ages 5 and 18; measures of employment, physical health, and mental health at ages 5, 8, and 18; indices of parenting style, educational aspirations for the child, and yelling frequency at the child at ages 8 and 18; and indices of connectedness to the community and involvement with the child's school at age 18. Other variables include measures of home literacy and the presence of televisions in the household at age 5, and indices of family cohesion and conflict at ages 8 and 18.

Curated
Partially restricted

Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997 (ICPSR 2957)

Released/updated on: 2020-02-20
Geographic coverage: United States
Time period: 1989-01-01--1997-01-01
The objective of the SUPPORT and HELP projects was to improve decision-making in order to address the growing national concern over the loss of control that patients have near the end of life and to reduce the frequency of a mechanical, painful, and prolonged process of dying. SUPPORT comprised a two-year prospective observational study (Phase I) followed by a two-year controlled clinical trial (Phase II). Phase I of SUPPORT collected data from patients accessioned during 1989-1991 to characterize the care, treatment preferences, and patterns of decision-making among critically ill patients. It also served as a preliminary step for devising an intervention strategy for improving critically-ill patients' care and for the construction of statistical models for predicting patient prognosis and functional status. An intervention was implemented in Phase II of SUPPORT, which accessioned patients during 1992-1994. The Phase II intervention provided physicians with accurate predictive information on future functional ability, survival probability to six months, and patients' preferences for end-of-life care. Additionally, a skilled nurse was provided as part of the intervention to elicit patient preferences, provide prognoses, enhance understanding, enable palliative care, and facilitate advance planning. The intervention was expected to increase communication, resulting in earlier decisions to have orders against resuscitation, decrease time that patients spent in undesirable states (e.g., in the Intensive Care Unit, on a ventilator, and in a coma), increase physician understanding of patients' preferences for care, decrease patient pain, and decrease hospital resource use. Data collection in both phases of SUPPORT consisted of questionnaires administered to patients, their surrogates, and physicians, plus chart reviews for abstracting clinical, treatment, and decision information. Phase II also collected information regarding the implementation of the intervention, such as patient-specific logs maintained by nurses assigned to patients as part of the intervention. SUPPORT patients were followed for six months after inclusion in the study. Those who did not die within six months or were lost to follow-up were matched against the National Death Index to identify deaths through 1997. The HELP study was conducted in 1993 concomitantly with Phase II of SUPPORT and collected data to characterize the care, treatment preferences, and patterns of decision-making among hospitalized patients who were at least 80 years old. HELP data were also intended for use in adapting existing mortality and functional status models of elderly hospitalized patients. Data collection methods of HELP were essentially the same as those of SUPPORT. HELP patients were followed for 12 months after inclusion in the study. Patients who did not die within one year or were lost to follow-up were matched against the National Death Index to identify deaths through 1997.
Curated

Project HealthDesign: Estrellita - An Application for Tracking Observations of Daily Living Related to Preterm Infants, 2011-2012 (ICPSR 36029)

Released/updated on: 2024-02-14
Geographic coverage: Orange County, California
Time period: 2011-01-01--2012-01-01
More than 12 percent of all United States births each year are preterm. To improve the care of these infants, which have an increased risk of serious developmental and chronic health problems, the Estrellita team created a mobile phone application to monitor premature infants and their caregivers. This app allows caregivers to better understand the infant care process and to more easily interact with clinicians about themselves and the care of their infants. Caregivers used the Estrellita app to record their own stress levels and mood and their infants' observations of daily living (ODL) such as baby fussiness, diapering, weight, and bonding activities with the babies. In addition, the app allowed the caregivers to track clinical appointments, review the ODL data, and send and receive text messages from clinicians.
Curated

Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2006-QUALITY: Quality of Care, United States, 2006 (ICPSR 38362)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Poll # 2006-QUALITY: Quality of Care, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Information that would tell the quality of a doctor/medical practice/clinic in comparison to others
  • Choice of doctors
  • Receipt of information rating doctors/clinics in the community
  • Use of information received about ratings of doctors/clinics in making decisions about where to get care
  • Use of ratings of doctors/clinic from sources
  • Personal health
  • Health insurance coverage

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092316]. Frequencies and summary statistics for the 125 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated
Partially restricted

Pathways to Adulthood: A Three-Generation Urban Study, 1960-1994: [Baltimore, Maryland] (ICPSR 2420)

Released/updated on: 2019-11-26
Geographic coverage: Baltimore, United States, Maryland
Time period: 1960-01-01--1994-01-01
This collection incorporates both prospective and retrospective data on three generations of families initially living in inner-city Baltimore, Maryland. The prospective data were selected from data collected as part of the Johns Hopkins Collaborative Perinatal Study (JHCPS), a survey of pregnant women seeking prenatal care and delivery at Johns Hopkins Hospital during 1960-1964. JHCPS studied these women (the first-generation mothers, abbreviated as G1) and the children born to them during 1960-1965 (the second-generation children, abbreviated as G2) until the children were 8 years old. The retrospective data come from a follow-up study, conducted in 1992-1994, of G1, G2, and the children born to G2 (the third-generation children, abbreviated as G3). Data from JHCPS on G1 include obstetrical and reproductive history at registration for prenatal care, sociological/family history variables at or around delivery of G2, observations of mother with child when G2 was 4 months old and 8 months old, and family history, demographic, and sociological variables when G2 was age 7. For G2, the data from JHCPS include delivery room observations at birth, pediatric examination data at age 4 months, developmental evaluation data at age 8 months, pediatric-neurological examination data at age 12 months, language, hearing, and speech evaluation summary data at age 36 months, psychological, behavior profile, physical growth, and other tests at age 48 months, psychological, motor, behavior, neurological, vision, physical, and other tests at age 7-1/2 years, and language, hearing, and speech evaluations, physical growth, interval medical history, and other tests at age 8 years. Retrospective data from the follow-up study on G1 include variables on education, employment, family composition, health and health care usage, housing conditions, income and income sources, marital status, partnerships and changes, neighborhood characteristics at registration to JHCPS and current, and reproductive history. For G2, data from the follow-up include information on aspirations, education, schooling, employment, family composition, health and health care usage, housing conditions, income and income sources, legal problems, living arrangements, marriage, partnership and changes, neighborhood characteristics at birth, at ages 11/12 and 16/17, and current, reproductive history, social relationships, smoking, and substance abuse. Data for the assessed third-generation children, i.e., G3s who were 7-8 years old during the follow-up period, include information on cognitive development, academic achievement and behavior, prenatal care, health, day care, and parental aspirations.
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Partially restricted

Memphis New Mothers Study, 1990-1994 (ICPSR 6782)

Released/updated on: 2024-02-14
Geographic coverage: United States, Tennessee, Memphis
Time period: 1990-06-01--1994-04-30
This study was a randomized trial that tested the effectiveness of home visitation by nurses as a means of enhancing the health and well-being of socially disadvantaged women and their first-born children. Low-income, pregnant women bearing first babies were randomly assigned to four treatment groups: (1) subjects that received free transportation to prenatal care, (2) subjects that received transportation to prenatal care and developmental screening for the children, (3) subjects that received transportation to prenatal care and developmental screening, plus prenatal home visits by nurses, and (4) subjects that received transportation to prenatal care, developmental screening, prenatal home visits, and postnatal home visits by nurses. Assessments of the women covered health-related behaviors, mother's care-giving environment, child's health and development, levels of social support, mother's psychological resources, personal life-course development, and costs of health care. Variables measuring health-related behaviors included the use of cigarettes and illegal drugs and the presence of sexually-transmitted diseases. The mother's care-giving environment and the child's health and development were evaluated by the Bavolek adult-adolescent parenting interview score, the Caldwell home observation scale, the Bayley mental development index, the Achenbach child behavioral problems inventory, and other indices. Levels of social support were evaluated by the amount of support expected to be received from a boyfriend or husband and the mother's mother. Assessments of maternal psychological resources included the Pearlin mastery scale, the Shipley IQ score, and the Bandura self-efficacy score. Personal life-course development was assessed by the respondents' educational and occupational achievements, and the numbers of subsequent pregnancies and children. Variables measuring the effect of the program on the cost of health care include number of hospital emergency room visits, number of hospitalizations, total length of stay, number of well-child and ill-child doctor visits, and use of community social services. Other variables provide information on age at birth, pre-pregnancy weight, birth weight and gender, race, employment status, income, housing density, and education.
Curated
Partially restricted

Healthy Schools Program Evaluation, 2006-2014 (ICPSR 33541)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2006-01-01--2014-01-01

These data were collected as part of the evaluation of the Healthy School Program (HSP), a program that provides support to elementary, middle, and high schools in the United States as they work to create healthy school environments that promote physical activity and healthy eating for students and staff. HSP was created in 2006 by the Alliance for a Healthier Generation with funding from the Robert Wood Johnson Foundation. The HSP evaluation addressed both process and impact outcomes:

  1. Is the HSP technical assistance and training model effective in increasing the implementation of policies and programs that promote and provide access to healthier foods and more physical activity before, during and after school?

  2. Are there distinctive or common school-level characteristics that hasten or hinder school-level implementation of policies and programs that promote and provide access to healthy foods and physical activity in the school setting in HSP schools?

  3. Does participation in HSP contribute to an increase in healthy eating behaviors and physical activity participation among students? Does participation in HSP contribute to a decrease in body mass index (BMI) among students?

The evaluation used a mixed-method design incorporating both quantitative and qualitative components. The quantitative component of the evaluation was a longitudinal design that measured student changes in eating and physical activity behaviors and BMI and schools' implementation of policies and practices promoted by HSP. For the qualitative component the evaluation team conducted site visits in a sample of HSP schools.

Nine data files constitute this data collection:

  1. HSP Participation and Inventory Data File, 2006-2011 (originally called the Inventory Data File)

  2. Pilot Student Survey Data File

  3. Pilot Student Height and Weight Measurements Data File

  4. Survey of Students in Boston and Miami-Dade Public Schools Data File

  5. HSP Participation and Inventory Data File, 2006-2014

  6. Arizona, Prince George's County and Nevada Healthy Schools Youth Survey Data File

  7. Arizona and Prince George's County Youth Height and Weight Measurements Data File

  8. Arizona Academic Achievement Data File

  9. Prince George's County School Wellness Coordinator Survey Data File

Dataset 1 contains data on school characteristics, HSP engagement indicators, baseline and follow-up responses to the Healthy Schools Inventory, and indices derived from the Inventory for all HSP schools as of August 2011. The Inventory collected information about each school's adherence to the Healthy Schools Program Framework, a set of best practice guidelines that promote physical activity and healthy eating among students and staff.

Datasets 2, 4 and 6 contain data from baseline and follow-up administrations of the Healthy Schools Youth Survey questionnaire in three samples of HSP schools: students in grades 5-12 in the initial pilot cohort of HSP schools; students in grades 5, 8 and 10 in the 2007-2008 cohort of HSP schools in Boston, Massachusetts and Miami-Dade County, Florida; and students in grades 5, 8 and 10 or 11 in HSP schools in Arizona, Nevada and Prince George's County, Maryland. Topics covered by the Healthy Schools Youth Survey questionnaire include eating and physical activity habits, attitudes about healthy eating and physical activity, health knowledge, and school food environments.

Datasets 3 and 7 contain baseline and follow-up height and weight measurements and derived BMIs, the former for students in grades 4-12 in schools sampled by the Pilot Student Survey and the latter for students in grades 5, 8, and 10 in Arizona and grades 1-12 in Prince George's County in schools sampled by the Arizona, Prince George's County and Nevada Healthy Schools Youth Survey.

Dataset 5 is an update to Dataset 1. Like Dataset 1 it contains data on HSP participation and engagement and school characteristics. Dataset 5 covers 8,500 schools that participated in HSP through fall 2014. It includes 4,028 of the 4,542 schools in Dataset 1.

Dataset 8 contains average math, reading and language scores for grades in HSP and comparable non-HSP schools in Arizona. Every record in the data file represents a grade (one or more of the grades 2-9) within a school (150 schools) for a given school year (up to seven years 2007-2008 to 2013-2014).

Dataset 9 contains data from a survey of HSP school coordinators in Prince Georges County. The coordinators were interviewed about the implementation of HSP in their schools.

ICPSR did not receive the site visit data.

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National School Health Services Program Evaluation, 1981-1982 (ICPSR 8302)

Released/updated on: 2008-06-03
Geographic coverage: United States
Time period: 1981-01-01--1982-01-01
The National School Health Services Program Evaluation documents the nature and scope of a wide range of health services provided to school-age children by by nurse practitioners, school health nurses, physicians, and health aides. The information provided by this collection includes: (1) records of communications between educators, health professionals, and parents, (2) the type, severity, and disposition of problems treated at schools (plus referral sources and the types of health care professionals involved), (3) nurse practitioners' findings from medical histories and physical examinations of students, and (4) data on individual health care episodes at the schools, including unresolved problems. Information supplied by a survey of parents of children in participating schools includes data on health care sources and expenses for the child, plus data on specific medical problems and treatment. Basic demographic characteristics such as the sex and race of the child, parents' educational background, and family income are also provided.
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Evaluation of Regionalized Networks of High-Risk Pregnancy Care, 1970-1979 (ICPSR 8469)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1970-01-01--1979-01-01
Data provided in this collection were gathered to evaluate the effectiveness of a five-year program demonstrating regionalization of perinatal health care for mothers and infants. There are three distinct types of data in the collection. The first consists of records of live births in eight program regions and eight comparison regions. Included in these records are data on the size and type of institution of birth, birthweight, number of previous births and pregnancies, gestational age, and method of delivery. Also provided are demographic data such as age, race, educational level, and marital status of the mother. The unit of analysis is the live birth. The second type of data in the collection consists of matched birth and death data for infants, using the same geographical coverage as the live birth data. Each record contains the data provided in the live birth data, plus information such as the place of death, age at death, and cause of death. The unit of analysis is infant deaths for which birth data are available. The third type of data are derived from a survey of infant health at one year of age. Included in this are data on employment, education, and previous pregnancies of the mother, plus information on pre- and post-natal hospitalization, medical care, and infant health. Additional data are provided for a test, administered to each infant, of adaptive, gross and fine motor, and receptive language development.
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Process Evaluation of an In-person Versus Webinar Human Papillomavirus (HPV) Vaccination Quality Improvement Program (Illinois, Michigan and Washington State), 2015-2016 (ICPSR 36757)

Released/updated on: 2017-09-28
Geographic coverage: United States
Time period: 2015-01-01--2016-01-01

These data were collected as part of an assessment of in-person and webinar AFIX consultations on best practices for adolescent HPV immunization. AFIX (which stands for Assessment, Feedback, Incentives, and eXchange) is a program of the Center for Disease Control and Prevention aimed at increasing vaccination of children and adolescents by reducing missed opportunities to vaccinate and improving immunization delivery practices at the provider level.

High-volume primary care clinics serving over 370,000 patients ages 11-17 in three states were randomly assigned to receive no consultation or an in-person or webinar AFIX consultation focused on improving adolescent HPV immunization. Immunization specialists from participating state health departments delivered the consultations. Physicians, nurses and other clinic staff in the in-person and webinar arms who participated in the consultation sessions completed web-based surveys pre-consultation (pre-visit survey), post-consultation (post-visit survey) and at six-month follow up (follow-up survey). Topics covered by the surveys include participation in and satisfaction with the assigned consultation delivery mode; strategies for improving HPV vaccination coverage used by the respondents' clinics; opinions about the level of HPV vaccination coverage in the respondents' clinics; and the respondents' self-efficacy for improving HPV vaccination coverage.

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Evaluating the Dental Pipeline Program: Recruiting Minorities and Promoting Community-Based Dental Education, 2003-2007 [United States] (ICPSR 25581)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2002-01-01--2007-01-01

The Pipeline, Profession, and Practice: Community-Based Dental Education (Dental Pipeline) program was a national initiative created by the Robert Wood Johnson Foundation (RWJF) in 2001 to address the critical shortage of oral health care for underserved and disadvantaged populations in the United States. By 2003, RWJF selected 11 dental schools to receive Dental Pipeline funding for 5 years through a competitive application process, and The California Endowment (TCE) joined the program in July 2003, funding 4 additional dental schools in California. The initiative focused on recruitment and retention of underrepresented minority dental students, curriculum revisions to stress community-based dental education (CBDE), and increased extramural clinical rotations for students in the community, with the expectation that these changes in dental education would lead to improved access for underserved populations. The Dental Pipeline program sought not only to increase underrepresented minority recruitment but also to build cultural competence for all dental students so that they are better prepared to treat a diverse group of patients. Based in the Department of Health Services at the UCLA School of Public Health, the National Evaluation Team (NET) was chosen by the foundations to be the national evaluator of the Pipeline program. The NET employed a multidisciplinary team using qualitative and quantitative methods and multiple data sources to conduct a comprehensive 5-year evaluation. This ICPSR study contains data from five of the evaluation's data collection efforts: two faculty surveys, a survey of deans, curriculum checklists, clinical information system, and site-visit interviews.

Conducted at two time points during the Pipeline program implementation, the faculty surveys interviewed faculty members in the Dental Pipeline schools about their perceptions of extramural clinical rotations; competence of senior students; support for and effectiveness of recruitment programs intended to increase the number of underrepresented minority and low-income (URM/LI) dental students; impact of diversity on education experience; barriers to sustainability of the extramural programs, cultural competency dental education curricula, and URM/LI recruitment; and barriers for graduating seniors to practice in settings that provide care to underserved populations.

The survey of deans from Pipeline schools inquired about the importance of public policy issues related to dental education and expanding access to oral health care, level of activity and effectiveness of efforts to influence goals, and factors that facilitate or serve as barriers to influencing policy development.

The purpose of the curriculum checklists was to document the Pipeline schools' efforts to develop/revise their CBDE curricula and to characterize the key parameters of all their CBDE courses.

The clinical information system collected information about the Pipeline schools' predoctoral clinical rotations for each of the five academic years covered by the evaluation: total number of days in core community rotations, number of days in extramural rotations by type of extramural site (e.g., urban/rural, Federally Qualified Health Center, community health center, Veterans Administration hospital/clinic, Indian Health Service, and public/parochial school), and average distance of extramural facilities from school.

Multiple rounds of qualitative site visit interview data were collected from different stakeholder groups at the Pipeline schools: faculty, administrators, community representatives, first year students, and fourth year students. The site visit interviews, which were taped and transcribed, were conducted for several reasons: to describe Pipeline program components including baseline status, program structures, and implementation processes; to validate and clarify information gathered from other data sources; to collect information not available from other data sources; and to identify evidence-based best practices in the schools. Altogether, there are 522 discrete transcripts which ICPSR bundled in a single ZIP archive.

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National Study of Physician Organizations and the Management of Chronic Illness (NSPO), 2000-2001 (ICPSR 4455)

Released/updated on: 2006-05-30
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
The National Study of Physician Organizations and the Management of Chronic Illness (NSPO) examined relationships among physician organization characteristics and the implementation of care management processes (CMP) aimed at improving outcomes and reducing costs for the treatment of four chronic diseases: asthma, congestive heart failure (CHF), depression, and diabetes. To that end, NSPO conducted this national survey of medical groups and independent practice associations (IPA) with 20 or more physicians. An IPA is defined as an organization through which physicians contract with managed care plans. Examples of CMPs include evidence-based clinical practice guidelines, protocols and pathways, case and care management systems, and disease management, demand management, and health promotion programs. Interviews were conducted with the medical director, president, or chief executive officer of each surveyed physician organization. The survey collected data on (1) practice type, size, age, location, and ownership, (2) governance, management, and use of computerized data systems, (3) revenue and overall financial position, (4) physician compensation models, (5) relationships with health plans and degree of risk assumption, and (6) care management and clinical practice -- particularly in regard to asthma, CHF, depression, and diabetes.
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National Study of Physician Organizations and the Management of Chronic Illness II (NSPO2), 2006-2007 (ICPSR 29801)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2006-01-01--2007-01-01

The National Study of Physician Organizations and the Management of Chronic Illness (NSPO) was designed to improve understanding of evidence-based care management processes (CMPs) as they relate to physician organizations (POs), that is, independent practice associations (IPAs) and medical groups. Since the first NSPO survey of physician organizations in 2000-2001 (NSPO1, archived as ICPSR 4455), considerable investments have been made by a number of different sources, including the Robert Wood Johnson Foundation, the California Healthcare Foundation, and The Commonwealth Fund, to bring about improved care for the chronically ill. This survey, the second NSPO survey of IPAs and medical groups (NSPO2), examined the extent to which the investments in quality improvement were translated into action. NSPO2 assessed the status of CMPs and preventive services use as well as their key drivers in 2006-2007 and the extent to which these factors have changed over time. As in the first NSPO survey, NSPO2 focused on the treatment of four chronic diseases: asthma, congestive heart failure (CHF), depression, and diabetes. Topics covered by the survey include practice type, size, age, ownership, and number of locations; clinical information systems; care management and clinical practice; activities of health insurance plans in chronic illness care; performance incentives; preventative care and health promotion; and organizational culture.

This collection has two data files. The first file contains the NSPO2 survey data, while the second contains a crosswalk between the NSPO1 and NSPO2 case identification numbers which can be used to link the data of the POs that responded to both surveys. Altogether, 369 of the 1,104 POs that responded to NSPO1 also responded to NSPO2.

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Project HealthDesign: BreathEasy - A Personal Health Record Application For Adults With Asthma, 2011-2012 (ICPSR 36027)

Released/updated on: 2024-02-14
Geographic coverage: Virginia, Richmond
Time period: 2011-01-01--2012-01-01
Asthma is a chronic illness that affects more than 23 million adults in the United States. In addition to respiratory symptoms associated with the disease, individuals with asthma are also more likely to experience depression and anxiety. The BreathEasy team designed a mobile application built on the latest clinical guidelines for treatment and self-monitoring for patients with asthma. Patients with asthma used the application on smartphones to capture and report observations of daily living (ODLs) such as use of controller and rescue medications, asthma symptoms (including peak flow rates), depression and anxiety symptoms, encounters with asthma triggers, physical activity levels (including accelerometer based data), sleeping problems, and smoking. Clinicians used a web based dashboard with simple analysis and visualization tools that allowed them to quickly view the patients' data, evaluate their health statuses, and communicate changes in treatment or monitoring. This data collection contains the ODL data recorded by the patients.
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United States Hospital AIDS/HIV and Pediatric AIDS/HIV Care Survey, 1988, 1989, AND 1991 (ICPSR 6455)

Released/updated on: 2006-01-12
Geographic coverage: United States
The purpose of this study was to obtain information on hospital-based treatment of persons with Acquired Immune Deficiency Syndrome (AIDS) and other Human Immunodeficiency Virus (HIV)-related illnesses. Aggregate data were obtained from each surveyed hospital, with the hospital as the unit of observation. Topics covered included patient demographics, service volume and structure, sources of payment, and types of services and treatments rendered. Information was also solicited on inpatient and outpatient AIDS/HIV hospital utilization, patient discharge disposition and likely mode of exposure, hospital community AIDS/HIV education programs, and policies for the treatment of AIDS/HIV patients, for employees with AIDS/HIV, and for the confidentiality of AIDS/HIV patients. Additionally, hospital administrators were queried about monitoring and tracking of outpatient services and the existence of special hospital-operated AIDS/HIV outpatient clinics. Financial characteristics covered included net revenues, costs, and charges for inpatient and outpatient AIDS/HIV services, payer source, and methods used to determine costs. In 1989 and 1991, separate data were obtained for pediatric AIDS/HIV patients.
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Physician Responses to Medicare Payment Reductions: Impacts on the Public and Private Sectors, 1988-1991 (ICPSR 6563)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1988-04-01--1991-12-01
The purpose of this study was to investigate the effects on physician behavior of decreases in Medicare payment rates for surgical procedures. The study examined the volume of services provided, billed charges, and the selection of diagnostic or therapeutic alternative procedures, or clinically unrelated procedures, for Medicare and privately-insured patients. Also studied were the proportion of physician income derived from Medicare and the profitability of procedures as they related to the volume of services provided. This data collection comprises observations for 21 surgical procedure groups in the specialty areas of general surgery, gastroenterology, orthopedic surgery, ophthalmology, urology, gynecological surgery, thoracic surgery, and cardiology, from up to 187 hospitals and for up to 15 quarters. Efforts were made to include high volume and expensive procedures. Excluded were radiology, pathology, or other lab procedures, and procedures that had experienced erratic changes in volume due to changes in technology or changes in national standards. Also included in this collection are hospital characteristics and county-level data pertaining to number of hospital beds, per capita income, licensed practical nurse and registered nurse wages, doctors per 1000 population, and health maintenance organization enrollees per 1000 population.
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New York Medicaid Expenditures for People with Developmental Disabilities, 1987-1991 (ICPSR 6350)

Released/updated on: 2024-02-14
Geographic coverage: United States, New York (state)
Time period: 1987-01-01--1991-01-01
This study provides information on Medicaid expenditures for adults with developmental disabilities in New York State. The data were derived from two sources: the New York Office of Mental Retardation and Developmental Disabilities' Developmental Disabilities Profile (OMRDD-DDP) and the New York State Medicaid Management Information System (MMIS). Variables from OMRDD-DDP include client's age, sex, race, Hispanic origin, spoken language, level of intellectual functioning, living arrangement, type of developmental disability (mental retardation, cerebral palsy, autism, epilepsy, learning disability, neurological impairment), whether the client was on medication, and whether he or she had been institutionalized for five years or more. MMIS variables include expenditures for medications and expenditures from Medicaid claims submitted by hospital outpatient departments and clinics. Additional MMIS variables include expenditures from Medicare claims submitted by providers of day treatment, home health care, and medical supplies, as well as providers of physician, nursing, dental, vision, psychological, and laboratory services.
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Community Tracking Study Physician Survey, 1998-1999: [United States] (ICPSR 3267)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--1999-01-01

This study comprises the second round of the physician survey component of the Community Tracking Study (CTS) sponsored by the Robert Wood Johnson Foundation. The CTS is a national study designed to track changes in the American health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the physician survey (COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597)), the second round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, views on care management strategies, and various other aspects of physicians' practice of medicine. In addition, primary care physicians (PCPs) were asked to recommend courses of action in response to some vignettes of clinical presentations for which there was no prescribed method of treatment.

Dataset 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site.

Dataset 4, the Physician Survey Summary File, contains site-level estimates and standard errors of the estimates for selected physician characteristics, e.g., the percentage of physicians who were foreign medical school graduates, the mean age of physicians, and the mean percentage of patient care practice revenue from Medicaid.

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Hospitalized Older Persons Evaluation (HOPE) Study, 1991-1993: [California] (ICPSR 6560)

Released/updated on: 2006-01-12
Geographic coverage: United States, California
Time period: 1991-03-01--1993-05-31
The HOPE study was a multi-center randomized clinical trial mounted to determine the effects of hospital inpatient consultative comprehensive geriatric assessment (CGA) under typical practice conditions on selected patient health and health services utilization outcomes. The main outcome measures were functional status, health status, mortality, rehospitalization, and total use of health care services for hospital patients 65 years of age and older. Functional status was evaluated by questions about limitations in patients' activities of daily living due to health problems. Also included were items covering living arrangements (with whom and where), ethnicity, education, and marital status. Health status questions covered patients' perceptions of mental health and current physical health. The functional and health status of patients was measured prior to CGA treatment and randomization, again at 3 months post-randomization, and at 12 months post-randomization. Functional and health status data are included in Parts 3-8. Health services utilization data (Parts 9-15) cover patient use of medical services such as urgent care, emergency room, radiology, durable medical equipment, and medications (prescribed and over the counter). Mortality information (Part 17) includes date of lost contact or death, and data source of survival status. Hospitalization measures (Part 18) include date of admission and discharge, admittance source diagnoses and procedures, and inpatient/outpatient status.
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Community Tracking Study Physician Survey, 1996-1997: [United States] (ICPSR 2597)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-08-01--1997-08-01
Sponsored by the Robert Wood Johnson Foundation, this survey is one component of the Community Tracking Study (CTS), a national study designed to track changes in the health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Physician Survey was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. Information gathered by the survey instrument includes physician supply and specialty distribution, practice arrangements and physician ownership of practices, sources of practice revenue, level and determinants of physician compensation, effects of care management strategies, and physicians' allocation of time, provision of charity care, career satisfaction, and perceptions of their ability to deliver care. For primary care physicians, the survey instrument also provided vignettes of various clinical presentations for which there was no prescribed method of treatment. These physicians were asked to indicate the percentage of patients for whom they would recommend the course of action specified in each particular vignette. Part 3, the Site and County Crosswalk Data File, describes which counties constitute each site. Part 4, the Physician Survey Summary File, contains site-level averages and percentages and standard errors of these estimates for selected attributes, e.g., the percentage of physicians who were foreign medical school graduates, average age of physicians, average percentage of patient care practice revenue from Medicaid, etc.
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Extending Health Insurance to the Working Poor: An Assessment of Health Status and Health Care Utilization Effects Among New York City Home Health Attendants, February 1990-June 1991 (ICPSR 9774)

Released/updated on: 2006-01-12
Geographic coverage: New York City
Time period: 1990-02-01--1991-06-01
Using a pre- and post-program design, this survey studied newly-hired home health attendants and their families, most of whom were without medical insurance until they became eligible for health benefits through their union. To assess changes in health status and health services utilization, the attendants were interviewed at the point of union enrollment, and again nine months later. The interview taken prior to enrollment in the benefits program elicited information about concern over health, recent injuries, and self-assessed health status, e.g., the presence or absence of specific health conditions such as diabetes, ulcers, arthritis, stomach trouble, high blood pressure, allergies, asthma, and back problems. Respondents were also queried about the extent and type of previous health coverage (including Medicare and disability insurance), limitations of daily functioning due to poor health, and recent health care utilization, including hospitalization, emergency room usage, and routine ambulatory care. The latter included questions about out-of-pocket expenses and the type of health services received, such as X-rays, CAT scans, sonograms, laboratory tests, electrocardiograms, stress tests, surgery, and setting of bones. Other questions addressed utilization issues of particular relevance to the New York City area, e.g., the use of city hospital clinics. The post-enrollment survey included parallel follow-up questions, as well as questions regarding the respondent's employment status and current benefits. Additional variables in the data collection include respondent's race, Hispanic origin, place of birth, past work experience, date of birth, and sex, plus the sex and dates of birth of family members.
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National Survey of Small and Medium-Sized Physician Practices (NSSMPP), 2007-2009 (ICPSR 36113)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2007-01-01--2009-01-01

Funded by the Robert Wood Johnson Foundation, the National Study of Small and Medium-sized Physician Practices (NSSMPP) was designed to provide information about physician practices with 1-19 physicians. The survey focused on the use of information technology and care management processes for four major chronic illnesses: asthma, congestive heart failure, depression, and diabetes. Other topics covered by the survey include practice type, size, ownership and the breakdown of patients by race and Hispanic origin; clinical preventative services and health promotion; health insurance plan activities in preventative care and care for patients with chronic illness; performance reporting and incentives; revenue sources and compensation methods; and organizational culture.

NSSMPP was also designed to assist the RWJF-funded Aligning Forces for Quality (AF4Q) project by providing baseline data about small and medium sized practices in the AF4Q sites. AF4Q was a national program that aimed to lift the quality of health care in 16 targeted communities, reduce racial and ethnic disparities in those communities and provide models for national reform.

NSSMPP built on two previous studies -- the National Study of Physician Organizations and the Management of Chronic Illness (NSPO), 2000-2001 (ICPSR 4455) and the National Study of Physician Organizations and the Management of Chronic Illness II (NSPO2), 2006-2007 (ICPSR 29801) -- which collected information about medical groups and independent practice associations (IPAs) with 20 or more physicians.

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National Collaborative Project on Speech and Hearing, 1985-1987 (ICPSR 9177)

Released/updated on: 2008-06-02
Geographic coverage: Iowa, United States, Tennessee, Colorado, Florida, New Jersey
Time period: 1985-01-01--1987-01-01
The goal of this study was to explore the relationship between speech and hearing disorders in children, and to isolate risk factors predisposing children for speech or hearing problems. The survey, a component of a larger project designed to raise the consciousness of pediatricians regarding the relationship between speech and hearing disorders, includes information on the age, sex, number of siblings at home, and position of the child in the families. Also available is information on parents' ages, occupations, and education, as well as data on pregnancy and delivery history, health history, and results of the current physical examination of the child.
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National Survey of Surgeons on Trauma Care Issues, March-July 1993 (ICPSR 6265)

Released/updated on: 1998-04-28
Geographic coverage: United States
Time period: 1993-03-02--1993-07-01
This study investigated surgeons' practice patterns, experience and training in trauma care, and preferences and opinions about caring for trauma patients. Practice pattern variables include surgical specialty, type of surgical practice arrangement, type of appointment with a medical school or university, membership in the American Academy of Orthopedic Surgeons, the American College of Surgeons, or the American Association of Neurological Surgeons, and whether the respondents' patients paid their bills through private insurance, Medicaid, Medicare, or an HMO. In addition, respondents were queried about their primary hospital, including number of beds, types of physicians employed in the trauma or emergency department, whether the hospital was officially recognized as a trauma center, whether it had a separate clinical trauma service with oversight and responsibility for the care of trauma patients, whether surgical patients were covered 24 hours a day by a resident or in-house physician, and whether there was 24-hour coverage by a resident or in-house physician in the hospital's Intensive Care Unit. To assess experience and training in trauma care, respondents were asked how often they were inappropriately called to evaluate and treat trauma patients, if they had taken trauma call at any hospital during the last 12 months, how many trauma patients they treated during the last 12 months and for what percent of them they received compensation, whether they had taken the Advanced Trauma Life Support (ATLS) Course in the last four years, how much they had learned about trauma from residency training, post-residency fellowship, combat duty in the Armed Forces, journal articles, and colleagues, how confident they were in their ability to provide resuscitation, diagnosis, operative care, and critical care, if they had ever been named in a malpractice suit in a trauma case, non-trauma emergency case, or non-emergency case in certain disease categories, and whether this litigation made them reluctant to take on these types of cases. Preferences and opinions on the care of trauma patients were investigated through questions that asked respondents if they preferred to treat adult or pediatric trauma patients, if they preferred to treat blunt or penetrating trauma, and how taking care of trauma patients affected their image with their peers and community. Respondents were also queried about incentives and disincentives for treating trauma patients, reasons for not providing trauma care, opinions on how trauma cases compared with other emergency cases, and opinions on how various aspects of trauma care in their community were deficient. The data also include information on the age, gender, and geographic location (census region) of the respondents.
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Oregon Health Insurance Experiment, 2007-2010 (ICPSR 34314)

Released/updated on: 2014-05-02
Geographic coverage: Oregon
Time period: 2007-01-01--2010-01-01

In 2008, a group of uninsured low-income adults in Oregon was selected by lottery to be given the chance to apply for Medicaid. This lottery provides an opportunity to gauge the effects of expanding access to public health insurance on the health care use, financial strain, and health of low-income adults using a randomized controlled design. The Oregon Health Insurance Experiment follows and compares those selected in the lottery (treatment group) with those not selected (control group). The data collected and provided here include data from in-person interviews, three mail surveys, emergency department records, and administrative records on Medicaid enrollment, the initial lottery sign-up list, welfare benefits, and mortality.

This data collection has seven data files:

Dataset 1 contains administrative data on the lottery from the state of Oregon. These data include demographic characteristics that were recorded when individuals signed up for the lottery, date of lottery draw, and information on who was selected for the lottery, applied for the lotteried Medicaid plan if selected, and whose application for the lotteried plan was approved. Also included are Oregon mortality data for 2008 and 2009.

Dataset 2 contains information from the state of Oregon on the individuals' participation in Medicaid, Supplemental Nutrition Assistance Program (SNAP), and Temporary Assistance to Needy Families (TANF).

Datasets 3-5 contain the data from the initial, six month, and 12 month mail surveys, respectively. Topics covered by the surveys include demographic characteristics; health insurance, access to health care and health care utilization; health care needs, experiences, and costs; overall health status and changes in health; and depression and medical conditions and use of medications to treat them.

Dataset 6 contains an analysis subset of the variables from the in-person interviews. Topics covered by the survey questionnaire include overall health, health insurance coverage, health care access, health care utilization, conditions and treatments, health behaviors, medical and dental costs, and demographic characteristics. The interviewers also obtained blood pressure and anthropometric measurements and collected dried blood spots to measure levels of cholesterol, glycated hemoglobin and C-reactive protein.

Dataset 7 contains an analysis subset of the variables the study obtained for all emergency department (ED) visits to twelve hospitals in the Portland area during 2007-2009. These variables capture total hospital costs, ED costs, and the number of ED visits categorized by time of the visit (daytime weekday or nighttime and weekends), necessity of the visit (emergent, ED care needed, non-preventable; emergent, ED care needed, preventable; emergent, primary care treatable), ambulatory case sensitive status, whether or not the patient was hospitalized, and the reason for the visit (e.g., injury, abdominal pain, chest pain, headache, and mental disorders).

The collection also includes a ZIP archive (Dataset 8) with Stata programs that replicate analyses reported in three articles by the principal investigators and others:

Finkelstein, Amy et al "The Oregon Health Insurance Experiment: Evidence from the First Year". The Quarterly Journal of Economics. August 2012. Vol 127(3).

Baicker, Katherine et al "The Oregon Experiment - Effects of Medicaid on Clinical Outcomes". New England Journal of Medicine. 2 May 2013. Vol 368(18).

Taubman, Sarah et al "Medicaid Increases Emergency Department Use: Evidence from Oregon's Health Insurance Experiment". Science. 2 Jan 2014.

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Network for the Improvement of Addiction Treatment (NIATx), 2003-2007 (ICPSR 34406)

Released/updated on: 2012-10-17
Geographic coverage: United States
Time period: 2003-01-01--2007-01-01

The Network for the Improvement of Addiction Treatment (NIATx) is a program funded by the Robert Wood Johnson Foundation and the Center for Substance Abuse Treatment to help substance abuse treatment facilities improve the effectiveness and efficiency of care offered to clients. A total of 38 facilities from across the country were awarded funding to implement the NIATx program between the years of 2003 to 2007. Data were extracted from administrative records from 82,274 clients. The data file covers the dates of contact and treatment with the facility, the number of follow-up units of care received, the primary substance of abuse, and basic demographic information.

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Practice Patterns of Young Physicians, 1987: [United States] (ICPSR 9277)

Released/updated on: 2012-01-11
Geographic coverage: United States
Time period: 1987-04-09--1987-11-21

This study investigated the factors that influenced the career decisions of young physicians and the characteristics of their practices. The collection has five datasets: Public-Use Version of the Young Physicians Survey (Dataset 1), Socioeconomic Monitoring System Study (Dataset 2), ZIP Code Data (Dataset 3), Verbatim Responses to the Open-Ended Questions (Dataset 4), and Restricted-Use Version of the Young Physicians Survey (Dataset 5).

The Public-Use Version of the Young Physicians Survey comprises responses from the Young Physicians Survey (YPS), plus merged data from the American Medical Association (AMA) Masterfile and the Association of American Medical Colleges' Student and Applicant Information Management System (SAIMS) database. The YPS interviewed physicians below 40 years of age who recently completed graduate medical training and were in their early years of practice. These physicians were queried about their graduate medical training, perceptions of the medical profession, current practice arrangements, career decisions, family background, patient care activities, and current income and expenses. To obtain information on current practice arrangements, respondents were questioned about the practices they worked in, including who owned the practices, the number of physicians in each practice, specialties or subspecialties practiced, usual fees for selected services, percentages of revenues from HMOs, PPOs, and IPAs, and percentages of patients who were Medicare patients, had no health insurance coverage, or were poor, Black, Hispanic, severely physically disabled, or chronically mentally ill. Questions on career decisions asked respondents about factors that influenced their career choices, such as reasons for working in multiple practices, reasons for leaving past practices, and reasons for deciding in favor of or against self-employment. Information on family background elicited by the survey includes the respondent's race, marital status, and educational debt, parents' income class and education, number of children living in the respondent's home, and whether the respondent's spouse or parents were physicians. Questions on patient care activities included questions on the number of hours spent providing uncompensated health care to the poor, and the number of hours spent with patients in a variety of settings, such as the office, emergency rooms, hospital outpatient clinics, and operating rooms. Information from the AMA Masterfile and the SAIMS database includes board certification status, AMA membership, school and year of graduation, Medical College Admission Test scores, primary undergraduate institution, most recent grade point averages, place of birth, number of acceptances to United States medical schools, parents' occupations, preferred medical specialty, and preferred practice setting.

Dataset 2 comprises responses from the AMA's Socioeconomic Monitoring System (SMS), a semiannual survey of nonfederal physicians that collected data on topics similar to those in the YPS, such as practice ownership, hours spent seeing patients in various settings, income, expenses, and opinions on practice procedures. The SMS data can be used for comparative analyses of young, prime, and senior physicians.

The ZIP Code Data contain estimates for the composition of the population residing in the ZIP code areas of the YPS respondents' main practices. This includes estimates of the size of each ZIP code area population, as well as its components with respect to gender, age, race, Hispanic ethnicity, and income. Also included are estimates of the number of physicians and their composition with respect to age, sex, practice type, and specialty.

Dataset 4 contains verbatim responses to open-ended questions asked in the YPS.

The Restricted-Use Version of the Young Physicians Survey is the same as the Public-Use Version of the Young Physicians Survey, except for some variables that were restricted from general dissemination for reasons of confidentiality. The restricted-use version includes the restricted variables, but the public-use version does not.

Curated
Partially restricted

National Survey of Attitudes and Choices in Medical Education and Training (ACMET) II, 1997 (ICPSR 3317)

Released/updated on: 2024-02-14
Geographic coverage: United States
The purpose of this study was threefold: (1) to assess the effects of the Robert Wood Johnson Foundation Generalist Physician Initiative (GPI) on attitudes toward primary care among a national cross-sectional sample of medical students, residents, faculty, residency training directors (RTDs), chairpersons, and medical school deans\; (2) to conduct a longitudinal study of medical student, resident, and faculty participants from ACMET I (1994) and ACMET II (1997) to measure changes over time in attitudes and beliefs about primary care and primary care career choice\; and (3) to survey a nationally representative sample of medical students, residents, faculty, RTDs, chairpersons, and medical school deans about their attitudes toward managed care. The GPI challenged schools of medicine, in collaboration with state governments, private insurers, HMOs, hospitals, and community health centers, to increase the supply of generalist physicians (general internal medicine, general pediatrics, family practice, and general practice). ACMET II gauged views on primary care and specialist medical careers, factors affecting residency choice, faculty influences on medical students and residents, and time spent in various settings (inpatient, outpatient, emergency ward, managed care, and long-term care settings) during electives, clerkships, internships, and residency. Background information collected by the survey includes age, sex, marital status, race, medical school debt, and medical specialty.
The following results may be significantly less relevant compared to results above.
Curated
Partially restricted

Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)

Released/updated on: 2024-02-28
Geographic coverage: United States
Time period: 2001-01-01--2003-01-01
The Collaborative Psychiatric Epidemiology Surveys (CPES) were initiated in recognition of the need for contemporary, comprehensive epidemiological data regarding the distributions, correlates and risk factors of mental disorders among the general population with special emphasis on minority groups. The primary objective of the CPES was to collect data about the prevalence of mental disorders, impairments associated with these disorders, and their treatment patterns from representative samples of majority and minority adult populations in the United States. Secondary goals were to obtain information about language use and ethnic disparities, support systems, discrimination and assimilation, in order to examine whether and how closely various mental health disorders are linked to social and cultural issues. To this end, CPES joins together three nationally representative surveys: the NATIONAL COMORBIDITY SURVEY REPLICATION (NCS-R), the NATIONAL SURVEY OF AMERICAN LIFE (NSAL), and the NATIONAL LATINO AND ASIAN AMERICAN STUDY (NLAAS). These surveys collectively provide the first national data with sufficient power to investigate cultural and ethnic influences on mental disorders. In this manner, CPES permits analysts to approach analysis of the combined dataset as though it were a single, nationally representative survey. Each of the CPES surveys has been documented in a comprehensive and flexible manner that promotes cross-survey linking of key data and scientific constructs.