Creating a Patient Registry to Facilitate Data Sharing and Encourage Patient-Centered Approaches to Improving Health and Lowering Costs, 2013 (ICPSR 35570)
This interventional pilot study was conducted in a primary care clinic to determine if patients would become more engaged in their own health and ask more questions of their physicians if they were provided data about patients similar to themselves. The study was conducted with 150 patients with a diagnosis of hypertension who had scheduled appointments with one of three participating physicians in the clinic. When they arrived at the clinic for their appointment, the patients were shown de-identified clinical data about similar patients with hypertension on a computer screen, given a printout of this information, and then proceeded to visit their physician. After the physician visit the patients completed a short survey. Their answers to the survey questions are recorded in the data file together with additional information about them, such as age, gender, race, smoking status and comorbidities.
The three participating physicians completed a short survey at the end of the study. The results of that survey are summarized in a table provided with the technical documentation.
Project HealthDesign: Chronology.MD - Personal Health Record Applications for Patients With Crohn's Disease, 2011-2012 (ICPSR 36028)
Evaluation of Better Jobs, Better Care: Frontline Supervisor Survey, 2005-2007 [Iowa, North Carolina, Oregon, Pennsylvania, Vermont] (ICPSR 23000)
In long-term care, frontline supervisors play a central role in direct care workers' (DCW) job quality and turnover and are critical to the implementation of management changes. To better understand supervisors' perceptions of management practices, the quality of supervision, and the effect on DCW turnover and job quality, the Office of the Assistant Secretary for Planning and Evaluation in the United States Department of Health and Human Services contracted with Pennsylvania State University to conduct this survey of supervisors participating in the Better Jobs, Better Care (BJBC) demonstration. Funded by the Robert Wood Johnson Foundation and The Atlantic Philanthropies, the BJBC demonstration -- which took place in Iowa, North Carolina, Oregon, Pennsylvania, and Vermont -- tested innovative policy and practice models designed to improve the quality of DCW jobs in an effort to improve recruitment and retention of these workers and strengthen capacity to meet future demand for long-term care.
Frontline supervisors were interviewed from the four types of facilities and agencies that participated in the demonstration: skilled nursing facilities, assisted living facilities, home care agencies, and adult day service providers. The survey explored the supervisors' job responsibilities, formal training, job satisfaction, and thoughts about quitting. It investigated the culture of the organizations in which the supervisors worked, probed for problems with the supervisors' jobs, assessed how rewarding the supervisors felt their jobs were, inquired as to whether the supervisors felt respected by their clients, DCWs, and managers, gauged the supervisors' assessments of the overall competency level of the DCWs in their organizations, and explored the supervisors' beliefs about managerial support for the BJBC project, how well the BJBC programs were executed, and whether the overall impact of the project was positive.
In addition, the respondents were queried about management practices (e.g., rotation of assignments to different services or units, mechanisms to handle employee concerns, and approaches used to handle poor performance or negative behaviors among employees). They were also asked about DCW training, mentoring, and career ladder programs, DCW participation in patient/resident/client care plans, and communication among DCWs and between DCWs and their supervisors. Respondents were also asked what was the most important thing that their employer could do both to improve the jobs of DCWs and to improve their own ability to do their jobs as supervisors of DCWs. Additional information collected by the survey includes the supervisors' age, sex, race, Hispanic origin, educational attainment, nursing degree or license (LPN, RN, Diploma RN, BSN, MSN, or Advanced Practice Nurse), wages, and health insurance coverage.
This collection comprises three data files: (1) Supervisor Identification Instrument Data, (2) Supervisor Survey Data, and (3) Clinical Managers Who Are Also Supervisors Data. The first file contains information collected by the Supervisor Identification Instrument that was submitted to the clinical manager at each BJBC provider organization. This instrument instructed clinical managers to name all of the supervisors in their organization and to indicate which supervisory responsibilities each one performed. The second data file contains the responses to the Supervisor Survey questionnaire.The third data file contains the responses of clinical managers who also functioned as supervisors in their organization. These clinical managers responded to the same questions in the Supervisor Survey questionnaire, except for ten questions that were worded somewhat differently.
Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988 (ICPSR 9795)
Culturally Focused Psychiatric Consultation Service For Massachusetts General Hospital's Asian American and Latino American Primary Care Patients with Depression, 2009-2011 (ICPSR 34495)
This randomized controlled trial evaluated a culturally appropriate intervention to improve the recognition and treatment of depression among Asian and Latino American primary care patients at Massachusetts General Hospital (MGH), using a culturally focused psychiatric (CFP) consultation with a team of mental health providers who were bilingual/bicultural, trained in culturally competent techniques, and familiar with the cultures and languages of the patients served. Targeted minority patients who screened positive for clinical depression were eligible to participate in the trial. The intervention patients were offered the CFP consultation at baseline and, if eligible, received the CFP patient toolkit as part of their treatment. The toolkit provided psychoeducation and tools for managing depression as well as information on community resources. The usual care patients were offered standard referrals to MGH mental health resources.
Questionnaires were administered to the patients at screening, baseline, two-week follow-up, and six month follow-up. The screening questionnaires included the two-item Public Health Questionnaire (PHQ-2) and demographic questions. Assessment measures administered to the intervention patients at baseline included the Mini International Neuropsychiatric Interview (MINI), Quick Inventory of Depressive Symptomatology-Self Rated Scale (QIDS-SR 16), Global Assessment of Functioning (GAF), Schwartz Outcome Scale (SOS-10), and a demographic questionnaire and resource utilization questionnaire. At six month follow-up, the intervention arm was administered a resource utilization questionnaire, patient satisfaction questionnaire (Treatment Satisfaction Scale), qualitative interview, and the QIDS-SR 16 and SOS-10. The SOS-10 was also administered to the intervention patients at two-week follow-up. In the usual care arm, the QIDS-SR 16 and resource utilization questionnaire was administered at baseline and six months, the qualitative interview at six months, and the demographic questionnaire at baseline or six-months. There was no two-week assessment for the usual care patients. Electronic medical record review was used for both arms at baseline and six months, as needed. In addition, qualitative interviews were conducted with project and practice staff at the end of the study.
The data file includes the responses to the questionnaires and variables describing the CFP consultation assessment (DSM-IV Axis I, II, III, IV, and V diagnoses), treatment recommendations made to the patients' primary care physicians (PCPs) after the CFP consultation, and study staff contacts with the patients' PCPs and mental health providers. ICPSR did not receive the data from the qualitative interviews or electronic medical record reviews.
Evaluation of the Adolescent Portable Therapy (APT) Program [New York City], 2001-2004 (ICPSR 4299)
National Preventive Dentistry Demonstration Program, 1977-1981 (ICPSR 8494)
Evaluation of CASAWORKS for Families -- Phase I, 1999-2001 [United States] (ICPSR 21681)
These data were collected to evaluate the effectiveness of CASAWORKS for Families (CWF), a multiservice intervention designed to move substance abusing women on welfare to sobriety and self-sufficiency by addressing their substance abuse, domestic violence, employment, and basic needs. Conducted at 11 sites across the country, the evaluation was designed as a repeated measures, pre-during-post field evaluation with no pre-specified control or comparison groups. The results of this evaluation were primarily intended to guide a proposed second-stage experimental study of the effectiveness of an enhanced and refined CWF model.
When the potential participant presented herself at the CWF site, a research technician administered a specially modified version of the Addiction Severity Index (ASI), referred to as the Welfare to Work ASI (WTW-ASI). This version retained the ASI 5th edition as the core instrument but added questions in an addendum. The baseline WTW-ASI measured the severity of problems in nine areas: employment, medical status, alcohol use, drug use, legal status, family and social relationships, children and child care, basic needs, and psychiatric symptoms. In addition, the four-item Center for Epidemiologic Studies Depression Scale (CES-D), the Parenting Dimensions Inventory (PDI), and the Posttraumatic Stress Diagnostic Scale (PDS) were used to assess depression, parenting style, and posttraumatic stress disorder, respectively. The PDI, CES-D, and a follow-up version of WTW-ASI were also administered 6 and 12 months after intake.
Two instruments were used at baseline and at 1, 3, 6, and 12 months postbaseline to record the services provided by CWF: Welfare to Work version of the Treatment Services Review (TSR-WTW) and Case Management Review (CMR). The former mostly collected data on the number of treatment services received, such as doctor visits, therapy sessions, and days of inpatient treatment in the prior 30 days, while the latter collected data on the activities of the case management sessions and topics covered with the case managers. Activities recorded by the CMR included working on self-sufficiency plans, arrangement of follow-up services, skills development, crisis response, and advocating for the client. Topics covered included employment, substance abuse, mental health, domestic violence, parenting and child care, basic needs, life skills, and social support.
In order to compare the characteristics of the CWF clients with the general population of women who received Temporary Assistance for Needy Families (TANF), the study also collected WTW-ASI data from women in the general TANF population in the CWF locales regardless of their substance-use status.
Evaluation of the Health Link Program [New York City]: The Community Reintegration Model to Reduce Substance Abuse Among Jail Inmates, 1997-2002 (ICPSR 3978)
Minimal Hearing Loss in Children, 1991-1994: [Davidson County, Tennessee] (ICPSR 6573)
"Your Child's Teeth" Project, 1991-1993: [New York City] (ICPSR 6578)
Infant Health and Development Program, Phase IV, 2001-2004 [United States] (ICPSR 23580)
The Infant Health and Development Program (IHDP) was a multisite, randomized, controlled trial of an educational intervention until three years of age for low birth weight preterm infants born in 1984-1985. There were three components to the intervention: (1) an educational program delivered through home visits (weekly during the first year and every other week during the second and third years of life), (2) a daily center-based program beginning at 12 months corrected for duration of gestation, and (3) parent support groups coinciding with the start of the center-based program. Previously, the subjects were assessed at baseline up to age 3 (Phase I), age 5 (Phase II), and age 8 (Phase III). Phase IV assessed them at age 18.
This data collection contains selected variables from all four phases that were used in analyses reported in two articles by the principal investigators and others:
- McCormick, Marie C., Jeanne Brooks-Gunn, Stephen L. Buka, Julie Goldman, Jennifer Yu, Mikhail Salganik, David T. Scott, Forrest C. Bennett, Libby L. Kay, Judy C. Bernbaum, Charles R. Bauer, Camilia Martin, Elizabeth R. Woods, Anne Martin, and Patrick H. Casey. "Early Intervention in Low Birth Weight Premature Infants: Results at 18 Years of Age for the Infant Health and Development Program." Pediatrics 117.3 (2006): 771-780.
- Martin, Anne, Jeanne Brooks-Gunn, Pamela Klebanov, Stephen L. Buka, and Marie C. McCormick. "Long-term maternal effects of early childhood intervention: Findings from the Infant Health and Development Program (IHDP)." Journal of Applied Developmental Psychology 29 (2008): 101-117.
As such, the collection comprises only some of the variables that were collected for Phase IV and the other phases.
The collection contains information about the children and their mothers/caregivers. Data on the children include treatment group, sex, birth weight group, and an index of neonatal health, plus indices of receptive vocabulary, intelligence, and adult-child activities at age 5, indices of intelligence, receptive vocabulary, reading ability, math ability, and behavioural problems and competencies at ages 8 and 18, and indices of risk behaviors, physical health, future expectations, and engagement towards school at age 18. Information about the mothers/caregivers includes maternal age and mother's race, as well as educational achievement at baseline and ages 5, 8, and 18; smoking at ages 5 and 18; measures of employment, physical health, and mental health at ages 5, 8, and 18; indices of parenting style, educational aspirations for the child, and yelling frequency at the child at ages 8 and 18; and indices of connectedness to the community and involvement with the child's school at age 18. Other variables include measures of home literacy and the presence of televisions in the household at age 5, and indices of family cohesion and conflict at ages 8 and 18.
Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997 (ICPSR 2957)
Project HealthDesign: Estrellita - An Application for Tracking Observations of Daily Living Related to Preterm Infants, 2011-2012 (ICPSR 36029)
Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2006-QUALITY: Quality of Care, United States, 2006 (ICPSR 38362)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Poll # 2006-QUALITY: Quality of Care, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:
- Information that would tell the quality of a doctor/medical practice/clinic in comparison to others
- Choice of doctors
- Receipt of information rating doctors/clinics in the community
- Use of information received about ratings of doctors/clinics in making decisions about where to get care
- Use of ratings of doctors/clinic from sources
- Personal health
- Health insurance coverage
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092316]. Frequencies and summary statistics for the 125 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Pathways to Adulthood: A Three-Generation Urban Study, 1960-1994: [Baltimore, Maryland] (ICPSR 2420)
Memphis New Mothers Study, 1990-1994 (ICPSR 6782)
Healthy Schools Program Evaluation, 2006-2014 (ICPSR 33541)
These data were collected as part of the evaluation of the Healthy School Program (HSP), a program that provides support to elementary, middle, and high schools in the United States as they work to create healthy school environments that promote physical activity and healthy eating for students and staff. HSP was created in 2006 by the Alliance for a Healthier Generation with funding from the Robert Wood Johnson Foundation. The HSP evaluation addressed both process and impact outcomes:
Is the HSP technical assistance and training model effective in increasing the implementation of policies and programs that promote and provide access to healthier foods and more physical activity before, during and after school?
Are there distinctive or common school-level characteristics that hasten or hinder school-level implementation of policies and programs that promote and provide access to healthy foods and physical activity in the school setting in HSP schools?
Does participation in HSP contribute to an increase in healthy eating behaviors and physical activity participation among students? Does participation in HSP contribute to a decrease in body mass index (BMI) among students?
The evaluation used a mixed-method design incorporating both quantitative and qualitative components. The quantitative component of the evaluation was a longitudinal design that measured student changes in eating and physical activity behaviors and BMI and schools' implementation of policies and practices promoted by HSP. For the qualitative component the evaluation team conducted site visits in a sample of HSP schools.
Nine data files constitute this data collection:
HSP Participation and Inventory Data File, 2006-2011 (originally called the Inventory Data File)
Pilot Student Survey Data File
Pilot Student Height and Weight Measurements Data File
Survey of Students in Boston and Miami-Dade Public Schools Data File
HSP Participation and Inventory Data File, 2006-2014
Arizona, Prince George's County and Nevada Healthy Schools Youth Survey Data File
Arizona and Prince George's County Youth Height and Weight Measurements Data File
Arizona Academic Achievement Data File
Prince George's County School Wellness Coordinator Survey Data File
Dataset 1 contains data on school characteristics, HSP engagement indicators, baseline and follow-up responses to the Healthy Schools Inventory, and indices derived from the Inventory for all HSP schools as of August 2011. The Inventory collected information about each school's adherence to the Healthy Schools Program Framework, a set of best practice guidelines that promote physical activity and healthy eating among students and staff.
Datasets 2, 4 and 6 contain data from baseline and follow-up administrations of the Healthy Schools Youth Survey questionnaire in three samples of HSP schools: students in grades 5-12 in the initial pilot cohort of HSP schools; students in grades 5, 8 and 10 in the 2007-2008 cohort of HSP schools in Boston, Massachusetts and Miami-Dade County, Florida; and students in grades 5, 8 and 10 or 11 in HSP schools in Arizona, Nevada and Prince George's County, Maryland. Topics covered by the Healthy Schools Youth Survey questionnaire include eating and physical activity habits, attitudes about healthy eating and physical activity, health knowledge, and school food environments.
Datasets 3 and 7 contain baseline and follow-up height and weight measurements and derived BMIs, the former for students in grades 4-12 in schools sampled by the Pilot Student Survey and the latter for students in grades 5, 8, and 10 in Arizona and grades 1-12 in Prince George's County in schools sampled by the Arizona, Prince George's County and Nevada Healthy Schools Youth Survey.
Dataset 5 is an update to Dataset 1. Like Dataset 1 it contains data on HSP participation and engagement and school characteristics. Dataset 5 covers 8,500 schools that participated in HSP through fall 2014. It includes 4,028 of the 4,542 schools in Dataset 1.
Dataset 8 contains average math, reading and language scores for grades in HSP and comparable non-HSP schools in Arizona. Every record in the data file represents a grade (one or more of the grades 2-9) within a school (150 schools) for a given school year (up to seven years 2007-2008 to 2013-2014).
Dataset 9 contains data from a survey of HSP school coordinators in Prince Georges County. The coordinators were interviewed about the implementation of HSP in their schools.
ICPSR did not receive the site visit data.
National School Health Services Program Evaluation, 1981-1982 (ICPSR 8302)
Evaluation of Regionalized Networks of High-Risk Pregnancy Care, 1970-1979 (ICPSR 8469)
Process Evaluation of an In-person Versus Webinar Human Papillomavirus (HPV) Vaccination Quality Improvement Program (Illinois, Michigan and Washington State), 2015-2016 (ICPSR 36757)
These data were collected as part of an assessment of in-person and webinar AFIX consultations on best practices for adolescent HPV immunization. AFIX (which stands for Assessment, Feedback, Incentives, and eXchange) is a program of the Center for Disease Control and Prevention aimed at increasing vaccination of children and adolescents by reducing missed opportunities to vaccinate and improving immunization delivery practices at the provider level.
High-volume primary care clinics serving over 370,000 patients ages 11-17 in three states were randomly assigned to receive no consultation or an in-person or webinar AFIX consultation focused on improving adolescent HPV immunization. Immunization specialists from participating state health departments delivered the consultations. Physicians, nurses and other clinic staff in the in-person and webinar arms who participated in the consultation sessions completed web-based surveys pre-consultation (pre-visit survey), post-consultation (post-visit survey) and at six-month follow up (follow-up survey). Topics covered by the surveys include participation in and satisfaction with the assigned consultation delivery mode; strategies for improving HPV vaccination coverage used by the respondents' clinics; opinions about the level of HPV vaccination coverage in the respondents' clinics; and the respondents' self-efficacy for improving HPV vaccination coverage.
Evaluating the Dental Pipeline Program: Recruiting Minorities and Promoting Community-Based Dental Education, 2003-2007 [United States] (ICPSR 25581)
The Pipeline, Profession, and Practice: Community-Based Dental Education (Dental Pipeline) program was a national initiative created by the Robert Wood Johnson Foundation (RWJF) in 2001 to address the critical shortage of oral health care for underserved and disadvantaged populations in the United States. By 2003, RWJF selected 11 dental schools to receive Dental Pipeline funding for 5 years through a competitive application process, and The California Endowment (TCE) joined the program in July 2003, funding 4 additional dental schools in California. The initiative focused on recruitment and retention of underrepresented minority dental students, curriculum revisions to stress community-based dental education (CBDE), and increased extramural clinical rotations for students in the community, with the expectation that these changes in dental education would lead to improved access for underserved populations. The Dental Pipeline program sought not only to increase underrepresented minority recruitment but also to build cultural competence for all dental students so that they are better prepared to treat a diverse group of patients. Based in the Department of Health Services at the UCLA School of Public Health, the National Evaluation Team (NET) was chosen by the foundations to be the national evaluator of the Pipeline program. The NET employed a multidisciplinary team using qualitative and quantitative methods and multiple data sources to conduct a comprehensive 5-year evaluation. This ICPSR study contains data from five of the evaluation's data collection efforts: two faculty surveys, a survey of deans, curriculum checklists, clinical information system, and site-visit interviews.
Conducted at two time points during the Pipeline program implementation, the faculty surveys interviewed faculty members in the Dental Pipeline schools about their perceptions of extramural clinical rotations; competence of senior students; support for and effectiveness of recruitment programs intended to increase the number of underrepresented minority and low-income (URM/LI) dental students; impact of diversity on education experience; barriers to sustainability of the extramural programs, cultural competency dental education curricula, and URM/LI recruitment; and barriers for graduating seniors to practice in settings that provide care to underserved populations.
The survey of deans from Pipeline schools inquired about the importance of public policy issues related to dental education and expanding access to oral health care, level of activity and effectiveness of efforts to influence goals, and factors that facilitate or serve as barriers to influencing policy development.
The purpose of the curriculum checklists was to document the Pipeline schools' efforts to develop/revise their CBDE curricula and to characterize the key parameters of all their CBDE courses.
The clinical information system collected information about the Pipeline schools' predoctoral clinical rotations for each of the five academic years covered by the evaluation: total number of days in core community rotations, number of days in extramural rotations by type of extramural site (e.g., urban/rural, Federally Qualified Health Center, community health center, Veterans Administration hospital/clinic, Indian Health Service, and public/parochial school), and average distance of extramural facilities from school.
Multiple rounds of qualitative site visit interview data were collected from different stakeholder groups at the Pipeline schools: faculty, administrators, community representatives, first year students, and fourth year students. The site visit interviews, which were taped and transcribed, were conducted for several reasons: to describe Pipeline program components including baseline status, program structures, and implementation processes; to validate and clarify information gathered from other data sources; to collect information not available from other data sources; and to identify evidence-based best practices in the schools. Altogether, there are 522 discrete transcripts which ICPSR bundled in a single ZIP archive.
National Study of Physician Organizations and the Management of Chronic Illness (NSPO), 2000-2001 (ICPSR 4455)
National Study of Physician Organizations and the Management of Chronic Illness II (NSPO2), 2006-2007 (ICPSR 29801)
The National Study of Physician Organizations and the Management of Chronic Illness (NSPO) was designed to improve understanding of evidence-based care management processes (CMPs) as they relate to physician organizations (POs), that is, independent practice associations (IPAs) and medical groups. Since the first NSPO survey of physician organizations in 2000-2001 (NSPO1, archived as ICPSR 4455), considerable investments have been made by a number of different sources, including the Robert Wood Johnson Foundation, the California Healthcare Foundation, and The Commonwealth Fund, to bring about improved care for the chronically ill. This survey, the second NSPO survey of IPAs and medical groups (NSPO2), examined the extent to which the investments in quality improvement were translated into action. NSPO2 assessed the status of CMPs and preventive services use as well as their key drivers in 2006-2007 and the extent to which these factors have changed over time. As in the first NSPO survey, NSPO2 focused on the treatment of four chronic diseases: asthma, congestive heart failure (CHF), depression, and diabetes. Topics covered by the survey include practice type, size, age, ownership, and number of locations; clinical information systems; care management and clinical practice; activities of health insurance plans in chronic illness care; performance incentives; preventative care and health promotion; and organizational culture.
This collection has two data files. The first file contains the NSPO2 survey data, while the second contains a crosswalk between the NSPO1 and NSPO2 case identification numbers which can be used to link the data of the POs that responded to both surveys. Altogether, 369 of the 1,104 POs that responded to NSPO1 also responded to NSPO2.
Project HealthDesign: BreathEasy - A Personal Health Record Application For Adults With Asthma, 2011-2012 (ICPSR 36027)
United States Hospital AIDS/HIV and Pediatric AIDS/HIV Care Survey, 1988, 1989, AND 1991 (ICPSR 6455)
Physician Responses to Medicare Payment Reductions: Impacts on the Public and Private Sectors, 1988-1991 (ICPSR 6563)
New York Medicaid Expenditures for People with Developmental Disabilities, 1987-1991 (ICPSR 6350)
Community Tracking Study Physician Survey, 1998-1999: [United States] (ICPSR 3267)
This study comprises the second round of the physician survey component of the Community Tracking Study (CTS) sponsored by the Robert Wood Johnson Foundation. The CTS is a national study designed to track changes in the American health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the physician survey (COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597)), the second round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, views on care management strategies, and various other aspects of physicians' practice of medicine. In addition, primary care physicians (PCPs) were asked to recommend courses of action in response to some vignettes of clinical presentations for which there was no prescribed method of treatment.
Dataset 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site.
Dataset 4, the Physician Survey Summary File, contains site-level estimates and standard errors of the estimates for selected physician characteristics, e.g., the percentage of physicians who were foreign medical school graduates, the mean age of physicians, and the mean percentage of patient care practice revenue from Medicaid.
Hospitalized Older Persons Evaluation (HOPE) Study, 1991-1993: [California] (ICPSR 6560)
Community Tracking Study Physician Survey, 1996-1997: [United States] (ICPSR 2597)
Extending Health Insurance to the Working Poor: An Assessment of Health Status and Health Care Utilization Effects Among New York City Home Health Attendants, February 1990-June 1991 (ICPSR 9774)
National Survey of Small and Medium-Sized Physician Practices (NSSMPP), 2007-2009 (ICPSR 36113)
Funded by the Robert Wood Johnson Foundation, the National Study of Small and Medium-sized Physician Practices (NSSMPP) was designed to provide information about physician practices with 1-19 physicians. The survey focused on the use of information technology and care management processes for four major chronic illnesses: asthma, congestive heart failure, depression, and diabetes. Other topics covered by the survey include practice type, size, ownership and the breakdown of patients by race and Hispanic origin; clinical preventative services and health promotion; health insurance plan activities in preventative care and care for patients with chronic illness; performance reporting and incentives; revenue sources and compensation methods; and organizational culture.
NSSMPP was also designed to assist the RWJF-funded Aligning Forces for Quality (AF4Q) project by providing baseline data about small and medium sized practices in the AF4Q sites. AF4Q was a national program that aimed to lift the quality of health care in 16 targeted communities, reduce racial and ethnic disparities in those communities and provide models for national reform.
NSSMPP built on two previous studies -- the National Study of Physician Organizations and the Management of Chronic Illness (NSPO), 2000-2001 (ICPSR 4455) and the National Study of Physician Organizations and the Management of Chronic Illness II (NSPO2), 2006-2007 (ICPSR 29801) -- which collected information about medical groups and independent practice associations (IPAs) with 20 or more physicians.
National Collaborative Project on Speech and Hearing, 1985-1987 (ICPSR 9177)
National Survey of Surgeons on Trauma Care Issues, March-July 1993 (ICPSR 6265)
Oregon Health Insurance Experiment, 2007-2010 (ICPSR 34314)
In 2008, a group of uninsured low-income adults in Oregon was selected by lottery to be given the chance to apply for Medicaid. This lottery provides an opportunity to gauge the effects of expanding access to public health insurance on the health care use, financial strain, and health of low-income adults using a randomized controlled design. The Oregon Health Insurance Experiment follows and compares those selected in the lottery (treatment group) with those not selected (control group). The data collected and provided here include data from in-person interviews, three mail surveys, emergency department records, and administrative records on Medicaid enrollment, the initial lottery sign-up list, welfare benefits, and mortality.
This data collection has seven data files:
Dataset 1 contains administrative data on the lottery from the state of Oregon. These data include demographic characteristics that were recorded when individuals signed up for the lottery, date of lottery draw, and information on who was selected for the lottery, applied for the lotteried Medicaid plan if selected, and whose application for the lotteried plan was approved. Also included are Oregon mortality data for 2008 and 2009.
Dataset 2 contains information from the state of Oregon on the individuals' participation in Medicaid, Supplemental Nutrition Assistance Program (SNAP), and Temporary Assistance to Needy Families (TANF).
Datasets 3-5 contain the data from the initial, six month, and 12 month mail surveys, respectively. Topics covered by the surveys include demographic characteristics; health insurance, access to health care and health care utilization; health care needs, experiences, and costs; overall health status and changes in health; and depression and medical conditions and use of medications to treat them.
Dataset 6 contains an analysis subset of the variables from the in-person interviews. Topics covered by the survey questionnaire include overall health, health insurance coverage, health care access, health care utilization, conditions and treatments, health behaviors, medical and dental costs, and demographic characteristics. The interviewers also obtained blood pressure and anthropometric measurements and collected dried blood spots to measure levels of cholesterol, glycated hemoglobin and C-reactive protein.
Dataset 7 contains an analysis subset of the variables the study obtained for all emergency department (ED) visits to twelve hospitals in the Portland area during 2007-2009. These variables capture total hospital costs, ED costs, and the number of ED visits categorized by time of the visit (daytime weekday or nighttime and weekends), necessity of the visit (emergent, ED care needed, non-preventable; emergent, ED care needed, preventable; emergent, primary care treatable), ambulatory case sensitive status, whether or not the patient was hospitalized, and the reason for the visit (e.g., injury, abdominal pain, chest pain, headache, and mental disorders).
The collection also includes a ZIP archive (Dataset 8) with Stata programs that replicate analyses reported in three articles by the principal investigators and others:
Finkelstein, Amy et al "The Oregon Health Insurance Experiment: Evidence from the First Year". The Quarterly Journal of Economics. August 2012. Vol 127(3).
Baicker, Katherine et al "The Oregon Experiment - Effects of Medicaid on Clinical Outcomes". New England Journal of Medicine. 2 May 2013. Vol 368(18).
Taubman, Sarah et al "Medicaid Increases Emergency Department Use: Evidence from Oregon's Health Insurance Experiment". Science. 2 Jan 2014.
Network for the Improvement of Addiction Treatment (NIATx), 2003-2007 (ICPSR 34406)
The Network for the Improvement of Addiction Treatment (NIATx) is a program funded by the Robert Wood Johnson Foundation and the Center for Substance Abuse Treatment to help substance abuse treatment facilities improve the effectiveness and efficiency of care offered to clients. A total of 38 facilities from across the country were awarded funding to implement the NIATx program between the years of 2003 to 2007. Data were extracted from administrative records from 82,274 clients. The data file covers the dates of contact and treatment with the facility, the number of follow-up units of care received, the primary substance of abuse, and basic demographic information.
Practice Patterns of Young Physicians, 1987: [United States] (ICPSR 9277)
This study investigated the factors that influenced the career decisions of young physicians and the characteristics of their practices. The collection has five datasets: Public-Use Version of the Young Physicians Survey (Dataset 1), Socioeconomic Monitoring System Study (Dataset 2), ZIP Code Data (Dataset 3), Verbatim Responses to the Open-Ended Questions (Dataset 4), and Restricted-Use Version of the Young Physicians Survey (Dataset 5).
The Public-Use Version of the Young Physicians Survey comprises responses from the Young Physicians Survey (YPS), plus merged data from the American Medical Association (AMA) Masterfile and the Association of American Medical Colleges' Student and Applicant Information Management System (SAIMS) database. The YPS interviewed physicians below 40 years of age who recently completed graduate medical training and were in their early years of practice. These physicians were queried about their graduate medical training, perceptions of the medical profession, current practice arrangements, career decisions, family background, patient care activities, and current income and expenses. To obtain information on current practice arrangements, respondents were questioned about the practices they worked in, including who owned the practices, the number of physicians in each practice, specialties or subspecialties practiced, usual fees for selected services, percentages of revenues from HMOs, PPOs, and IPAs, and percentages of patients who were Medicare patients, had no health insurance coverage, or were poor, Black, Hispanic, severely physically disabled, or chronically mentally ill. Questions on career decisions asked respondents about factors that influenced their career choices, such as reasons for working in multiple practices, reasons for leaving past practices, and reasons for deciding in favor of or against self-employment. Information on family background elicited by the survey includes the respondent's race, marital status, and educational debt, parents' income class and education, number of children living in the respondent's home, and whether the respondent's spouse or parents were physicians. Questions on patient care activities included questions on the number of hours spent providing uncompensated health care to the poor, and the number of hours spent with patients in a variety of settings, such as the office, emergency rooms, hospital outpatient clinics, and operating rooms. Information from the AMA Masterfile and the SAIMS database includes board certification status, AMA membership, school and year of graduation, Medical College Admission Test scores, primary undergraduate institution, most recent grade point averages, place of birth, number of acceptances to United States medical schools, parents' occupations, preferred medical specialty, and preferred practice setting.
Dataset 2 comprises responses from the AMA's Socioeconomic Monitoring System (SMS), a semiannual survey of nonfederal physicians that collected data on topics similar to those in the YPS, such as practice ownership, hours spent seeing patients in various settings, income, expenses, and opinions on practice procedures. The SMS data can be used for comparative analyses of young, prime, and senior physicians.
The ZIP Code Data contain estimates for the composition of the population residing in the ZIP code areas of the YPS respondents' main practices. This includes estimates of the size of each ZIP code area population, as well as its components with respect to gender, age, race, Hispanic ethnicity, and income. Also included are estimates of the number of physicians and their composition with respect to age, sex, practice type, and specialty.
Dataset 4 contains verbatim responses to open-ended questions asked in the YPS.
The Restricted-Use Version of the Young Physicians Survey is the same as the Public-Use Version of the Young Physicians Survey, except for some variables that were restricted from general dissemination for reasons of confidentiality. The restricted-use version includes the restricted variables, but the public-use version does not.