Showing 1 – 3 of 3 results.
Curated
Partially restricted
United States Public Knowledge and Attitudes About Genetic Testing, 2000 (ICPSR 3904)
Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2000-12-31
The primary goal of this national survey was to assess knowledge, attitudes, and behavior regarding genetic testing in humans. The survey gauged respondents' knowledge of which genetic defects can be detected by the prenatal testing of a fetus, whether genetic testing can predict heart attacks or detect a tendency to develop depression and certain types of cancer, and whether gene therapy can be used to correct many of the defects discovered through gene testing. Attitudes toward prenatal genetic testing were examined, including preferences for abortion in case of fetal defect, as well as attitudes toward genetic testing of adults, genetic testing in the workplace, and other aspects of genetic testing. Respondents reported whether they or their partner ever had a prenatal genetic test or received counseling for a prenatal test, their reasons for deciding to have or not have a test, and whether anything happened to the pregnancy as result of a test, e.g., abortion. In addition, respondents were asked if they ever had themselves tested for a genetic disease or received counseling for such tests, for which conditions they were tested, whether they tested positive or negative, with whom they shared the test results, and whether they lost a job, lost health or life insurance, or had their insurance premiums increased as a result of being tested. Sources of information for news about science or health, trust in doctors to keep medical information private, and confidence in the people running the government and corporations that make and sell genetic tests constitute some of the other topics covered by the survey. Background variables include sex, age, race, Hispanic origin, employment status, union membership, religious preference, religiosity, disability status and type of disability, health insurance coverage, state and geographic region of residence, income, and education.
Curated
Partially restricted
Memphis New Mothers Study, 1990-1994 (ICPSR 6782)
Released/updated on: 2024-02-14
Geographic coverage: United States, Tennessee, Memphis
Time period: 1990-06-01--1994-04-30
This study was a randomized trial that tested the effectiveness of home visitation by nurses as a means of enhancing the health and well-being of socially disadvantaged women and their first-born children. Low-income, pregnant women bearing first babies were randomly assigned to four treatment groups: (1) subjects that received free transportation to prenatal care, (2) subjects that received transportation to prenatal care and developmental screening for the children, (3) subjects that received transportation to prenatal care and developmental screening, plus prenatal home visits by nurses, and (4) subjects that received transportation to prenatal care, developmental screening, prenatal home visits, and postnatal home visits by nurses. Assessments of the women covered health-related behaviors, mother's care-giving environment, child's health and development, levels of social support, mother's psychological resources, personal life-course development, and costs of health care. Variables measuring health-related behaviors included the use of cigarettes and illegal drugs and the presence of sexually-transmitted diseases. The mother's care-giving environment and the child's health and development were evaluated by the Bavolek adult-adolescent parenting interview score, the Caldwell home observation scale, the Bayley mental development index, the Achenbach child behavioral problems inventory, and other indices. Levels of social support were evaluated by the amount of support expected to be received from a boyfriend or husband and the mother's mother. Assessments of maternal psychological resources included the Pearlin mastery scale, the Shipley IQ score, and the Bandura self-efficacy score. Personal life-course development was assessed by the respondents' educational and occupational achievements, and the numbers of subsequent pregnancies and children. Variables measuring the effect of the program on the cost of health care include number of hospital emergency room visits, number of hospitalizations, total length of stay, number of well-child and ill-child doctor visits, and use of community social services. Other variables provide information on age at birth, pre-pregnancy weight, birth weight and gender, race, employment status, income, housing density, and education.
Curated
Partially restricted
Pathways to Adulthood: A Three-Generation Urban Study, 1960-1994: [Baltimore, Maryland] (ICPSR 2420)
Released/updated on: 2019-11-26
Geographic coverage: Baltimore, United States, Maryland
Time period: 1960-01-01--1994-12-31
This collection incorporates both prospective and retrospective data on three generations of families initially living in inner-city Baltimore, Maryland. The prospective data were selected from data collected as part of the Johns Hopkins Collaborative Perinatal Study (JHCPS), a survey of pregnant women seeking prenatal care and delivery at Johns Hopkins Hospital during 1960-1964. JHCPS studied these women (the first-generation mothers, abbreviated as G1) and the children born to them during 1960-1965 (the second-generation children, abbreviated as G2) until the children were 8 years old. The retrospective data come from a follow-up study, conducted in 1992-1994, of G1, G2, and the children born to G2 (the third-generation children, abbreviated as G3). Data from JHCPS on G1 include obstetrical and reproductive history at registration for prenatal care, sociological/family history variables at or around delivery of G2, observations of mother with child when G2 was 4 months old and 8 months old, and family history, demographic, and sociological variables when G2 was age 7. For G2, the data from JHCPS include delivery room observations at birth, pediatric examination data at age 4 months, developmental evaluation data at age 8 months, pediatric-neurological examination data at age 12 months, language, hearing, and speech evaluation summary data at age 36 months, psychological, behavior profile, physical growth, and other tests at age 48 months, psychological, motor, behavior, neurological, vision, physical, and other tests at age 7-1/2 years, and language, hearing, and speech evaluations, physical growth, interval medical history, and other tests at age 8 years. Retrospective data from the follow-up study on G1 include variables on education, employment, family composition, health and health care usage, housing conditions, income and income sources, marital status, partnerships and changes, neighborhood characteristics at registration to JHCPS and current, and reproductive history. For G2, data from the follow-up include information on aspirations, education, schooling, employment, family composition, health and health care usage, housing conditions, income and income sources, legal problems, living arrangements, marriage, partnership and changes, neighborhood characteristics at birth, at ages 11/12 and 16/17, and current, reproductive history, social relationships, smoking, and substance abuse. Data for the assessed third-generation children, i.e., G3s who were 7-8 years old during the follow-up period, include information on cognitive development, academic achievement and behavior, prenatal care, health, day care, and parental aspirations.