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Communities in Charge Survey, 2001-2003 [Alameda County, California, Austin, Texas, and Southern Maine] (ICPSR 4638)

Released/updated on: 2007-03-01
Geographic coverage: Texas, Maine, California, Austin
Time period: 2001-01-01--2003-01-01
This three-wave survey was conducted as part of an evaluation of the Communities in Charge (CIC) initiative, a competitive grants program funded by the Robert Wood Johnson Foundation (RWJF). CIC provided funding and technical assistance to help communities design and implement new or expand existing approaches for supplying health care to the uninsured. Three of the 14 CIC sites funded by RWJF in 2001 were selected for the survey: Alameda County, California, Austin, Texas, and southern Maine. With CIC grant support, all three created programs that provided fairly comprehensive health benefits to low-income, uninsured participants, who were interviewed by the survey within three months of enrollment (Wave 1) and again at about six months and 12 months after enrollment (Waves 2 and 3). Conducted in English in southern Maine, English and Spanish in Austin, and English, Spanish, and Cantonese in Alameda County, the survey collected information on demographic and socioeconomic characteristics, health status, health insurance coverage, access to health services, and health services utilization. Additional topics covered by the survey include out-of-pocket spending on health care, unmet health care needs, and satisfaction with and opinions about health care. There are two data files for each wave, one with the data from the Cantonese interviews and one with the data from the English and Spanish interviews.
Curated
Simple Crosstabs

The Future of Families and Child Wellbeing Study (FFCWS), Public Use, United States, 1998-2024 (ICPSR 31622)

Released/updated on: 2026-04-06
Geographic coverage: United States
Time period: 1998-01-01--2024-01-01

The Future of Families and Child Wellbeing Study (FFCWS, formerly known as the Fragile Families and Child Wellbeing Study) follows a cohort of nearly 5,000 children born in large, U.S. cities between 1998 and 2000. The study oversampled births to unmarried couples; and, when weighted, the data are representative of births in large U.S. cities at the turn of the century. The FFCWS was originally designed to address four questions of great interest to researchers and policy makers:

  1. What are the conditions and capabilities of unmarried parents, especially fathers?
  2. What is the nature of the relationships between unmarried parents?
  3. How do children born into these families fare?
  4. How do policies and environmental conditions affect families and children?

The FFCWS consists of interviews with mothers, fathers, and/or primary caregivers at birth and again when children are ages 1, 3, 5, 9, 15, and 22. The parent interviews collected information on attitudes, relationships, parenting behavior, demographic characteristics, health (mental and physical), economic and employment status, neighborhood characteristics, and program participation. Beginning at age 9, children were interviewed directly (either during the home visit or on the telephone). The direct child interviews collected data on family relationships, home routines, schools, peers, and physical and mental health, as well as health behaviors.

A collaborative study of the FFCWS, the In-Home Longitudinal Study of Pre-School Aged Children (In-Home Study) collected data from a subset of the FFCWS Core respondents at the Year 3 and 5 follow-ups to ask how parental resources in the form of parental presence or absence, time, and money influence children under the age of 5. The In-Home Study collected information on a variety of domains of the child's environment, including: the physical environment (quality of housing, nutrition and food security, health care, adequacy of clothing and supervision) and parenting (parental discipline, parental attachment, and cognitive stimulation). In addition, the In-Home Study also collected information on several important child outcomes, including anthropometrics, child behaviors, and cognitive ability. This information was collected through interviews with the child's primary caregiver, and direct observation of the child's home environment and the child's interactions with his or her caregiver.

Similar activities were conducted during the Year 9 follow-up. At the Year 15 follow-up, a condensed set of home visit activities were conducted with a subsample of approximately 1,000 teens. Teens who participated in the In-Home Study were also invited to participate in a Sleep Study and were asked to wear an accelerometer on their non-dominant wrist for seven consecutive days to track their sleep (Sleep Actigraphy Data) and that day's behaviors and mood (Daily Sleep Actigraphy and Diary Survey Data).

An additional collaborative study collected data from the child care provider (Year 3) and teacher (Years 9 and 15) through mail-based surveys. Saliva samples were collected at Year 9 and 15 (Biomarker file and Polygenic Scores). The Study of Adolescent Neural Development (SAND) COVID Study began data collection in May 2020 following the onset of the COVID-19 pandemic. It included online surveys with the young adult and their primary caregiver.

The FFCWS began its seventh wave of data collection in October 2020, around the focal child's 22nd birthday. Data collection and interviews continued through January 2024. The Year 22 wave included a young adult (YA) survey with the original focal child and a primary caregiver (PCG) survey. Data were also collected on the children of the original focal child (referred to as Generation 3, or G3).

In 2017, the FFCWS team announced the Fragile Families (FF) Challenge, a collaborative effort in which participants were tasked with using machine learning methods and FFCWS data (Baseline to Year 9) to build a model that would predict six key outcomes at Year 15. Materials used in the FF Challenge have been archived in this collection.

Documentation for these files is available on the FFCWS website under Data and Documentation. For details of updates made to the FFCWS data files, please see the project's Data Alerts page.

Data collection for the Future of Families and Child Wellbeing Study was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) of the National Institutes of Health under award numbers R01HD36916, R01HD39135, and R01HD40421, as well as a consortium of private foundations.

Below is the citation for use of the FFCWS data accessed through ICPSR. For information on additional citation requirements when using FFCWS in publications, please refer to this FAQ on the FFCWS project site.

Curated
Partially restricted
Simple Crosstabs

Well-Being and Basic Needs Survey, United States, 2020 (ICPSR 38388)

Released/updated on: 2022-10-19
Geographic coverage: United States
Time period: 2020-01-01--2020-12-30
In December 2017, the Urban Institute launched the Well-Being and Basic Needs Survey (WBNS), a nationally representative, internet-based survey of non-elderly adults designed to monitor changes in individual and family well-being during a time when policymakers are considering significant changes to federal safety net programs serving low-income families. The 2020 round of the survey collects information on a broad array of topics related to health, material hardship, and the safety net, including health insurance, housing, food security, employment, family income, program participation, family financial security, disability, school enrollment, child care, COVID-19 vaccine attitudes, the impact of the COVID-19 pandemic on family employment, and immigration issues.
Curated
Partially restricted
Simple Crosstabs

Well-Being and Basic Needs Survey, United States, 2021 (ICPSR 38759)

Released/updated on: 2023-12-12
Geographic coverage: United States
Time period: 2021-01-01--2021-12-29
In December 2017, the Urban Institute launched the Well-Being and Basic Needs Survey (WBNS), a nationally representative, internet-based survey of non-elderly adults designed to monitor changes in individual and family well-being during a time when policymakers are considering significant changes to federal safety net programs serving low-income families. The 2021 round of the survey collects information on a broad array of topics related to health, material hardship, and the safety net, including health insurance, housing, food security, employment, family income, program participation, family financial security, disability, effects of COVID-19 on school attendance, experiences of discrimination, the child tax credit, and immigration issues.
Curated
Partially restricted
Simple Crosstabs

Well-Being and Basic Needs Survey, United States, 2022 (ICPSR 38975)

Released/updated on: 2024-11-14
Geographic coverage: United States
In December 2017, the Urban Institute launched the Well-Being and Basic Needs Survey (WBNS), a nationally representative, internet-based survey of non-elderly adults designed to monitor changes in individual and family well-being during a time when policymakers are considering significant changes to federal safety net programs serving low-income families. The 2022 round of the survey collects information on a broad array of topics related to health, material hardship, and the safety net, including health insurance, housing, food security, employment, family income, program participation, family financial security, disability, COVID-19 and Long COVID, unmet medical needs, effects of price inflation, student loans, experiences of discrimination, and immigration issues.
Curated
Partially restricted
Simple Crosstabs

Well-Being and Basic Needs Survey, United States, 2023 (ICPSR 39462)

Released/updated on: 2026-02-04
Geographic coverage: United States
In December 2017, the Urban Institute launched the Well-Being and Basic Needs Survey (WBNS), a nationally representative, internet-based survey of non-elderly adults designed to monitor changes in individual and family well-being during a time when policymakers are considering significant changes to federal safety net programs serving low-income families. The 2023 round of the survey collects information on a broad array of topics related to health, material hardship, and the safety net, including health insurance, housing, food security, employment, family income, program participation, family financial security, disability, Long COVID, experiences of discrimination, exposure to extreme heat at work, renewal of Medicaid coverage, use of buy now pay later options and other forms of credit to pay for groceries, impact of criminal legal fines and fees, exposure to environmental disasters and extreme weather events, and immigration issues.
Curated
Simple Crosstabs

Well-Being and Basic Needs Survey, United States, 2024 (ICPSR 39691)

Released/updated on: 2026-06-04
Geographic coverage: United States
In December 2017, the Urban Institute launched the Well-Being and Basic Needs Survey (WBNS), a nationally representative, internet-based survey of non-elderly adults designed to monitor changes in individual and family well-being during a time when policymakers were considering significant changes to federal safety net programs serving low-income families. The 2024 round of the survey collected information on a broad array of topics related to health, material hardship, and the safety net, including health insurance, housing, food security, employment, family income, charitable food, program participation, family financial security, disability, experiences with health care providers, attitudes toward discussing social needs in health care settings, experiences of discrimination, tax filing, experiences with SNAP, awareness of and interest in Food is Medicine programs, impact of criminal legal fines and fees, and immigration.
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