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Showing 1 – 18 of 18 results.

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Community Hospital Program (CHP) Access Impact Evaluation Surveys, 1978-1979, 1981 (ICPSR 8245)

Released/updated on: 2006-01-12

Geographic coverage: United States

Time period: 1978-01-01--1979-01-01

This data collection evaluates group medical practices and the ways in which they affect both access to and use of medical services. Group practices, sponsored by the Robert Wood Johnson Foundation Community Hospital Program (CHP), were selected for use in this assessment. The data were collected by the Center for Health Administration Studies at the University of Chicago, with the assistance of Chilton Research Services. Two surveys were conducted for the study: a baseline survey in 1978-1979 and a follow-up in 1981. Community residents and CHP patients in 12 communities were interviewed. Demographic and medical care data were collected for selected individuals and families in the survey areas. Data on regular sources of medical care for individuals include the type of organization used, type of practice, accessibility, frequency of visits, types of health care professionals seen, cost, and satisfaction. Also in the collection are data on perceived health, episodes of illness (including symptoms, duration, disability days, and doctors consulted), use of preventive health care services, and insurance coverage. Demographic data for individuals and families include age, sex, race, educational attainment, employment, and income. Of the 198 files in this collection, 88 are "raw" data files and 110 are frequencies. The data files consist of four types. The first type are Sample Person files. These contain the responses of group practice patients and community members. The second type are Doctor Episode files, which record doctors and episodes of illness. Family files make up the third type of file, and consist of family members' responses to the survey. Analysis files, linking patient and doctor data, are the fourth type of file. The SPSS frequency files correspond to the data files: two per file for the Sample Person files, and one per file for the remaining three types of files.

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Community Tracking Study Physician Survey, 1996-1997: [United States] (ICPSR 2597)

Released/updated on: 2024-02-14

Geographic coverage: United States

Time period: 1996-08-01--1997-08-01

Sponsored by the Robert Wood Johnson Foundation, this survey is one component of the Community Tracking Study (CTS), a national study designed to track changes in the health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Physician Survey was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. Information gathered by the survey instrument includes physician supply and specialty distribution, practice arrangements and physician ownership of practices, sources of practice revenue, level and determinants of physician compensation, effects of care management strategies, and physicians' allocation of time, provision of charity care, career satisfaction, and perceptions of their ability to deliver care. For primary care physicians, the survey instrument also provided vignettes of various clinical presentations for which there was no prescribed method of treatment. These physicians were asked to indicate the percentage of patients for whom they would recommend the course of action specified in each particular vignette. Part 3, the Site and County Crosswalk Data File, describes which counties constitute each site. Part 4, the Physician Survey Summary File, contains site-level averages and percentages and standard errors of these estimates for selected attributes, e.g., the percentage of physicians who were foreign medical school graduates, average age of physicians, average percentage of patient care practice revenue from Medicaid, etc.

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Community Tracking Study Physician Survey, 1998-1999: [United States] (ICPSR 3267)

Released/updated on: 2024-02-14

Geographic coverage: United States

Time period: 1998-01-01--1999-01-01

This study comprises the second round of the physician survey component of the Community Tracking Study (CTS) sponsored by the Robert Wood Johnson Foundation. The CTS is a national study designed to track changes in the American health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the physician survey (COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597)), the second round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, views on care management strategies, and various other aspects of physicians' practice of medicine. In addition, primary care physicians (PCPs) were asked to recommend courses of action in response to some vignettes of clinical presentations for which there was no prescribed method of treatment.

Dataset 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site.

Dataset 4, the Physician Survey Summary File, contains site-level estimates and standard errors of the estimates for selected physician characteristics, e.g., the percentage of physicians who were foreign medical school graduates, the mean age of physicians, and the mean percentage of patient care practice revenue from Medicaid.

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Community Tracking Study Physician Survey, 2000-2001: [United States] (ICPSR 3820)

Released/updated on: 2024-02-14

Geographic coverage: United States

Time period: 2000-01-01--2001-01-01

This study comprises the third round of the physician survey component of the Community Tracking Study (CTS). Sponsored by the Robert Wood Johnson Foundation, the CTS is a large-scale investigation of changes in the health care system and their effects on people. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the physician survey, COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597) and COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1998-1999: [UNITED STATES] (ICPSR 3267), the third round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, effects of care management strategies, and various other aspects of physicians' practice of medicine. Part 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site. Part 4, Physician Survey Summary File, contains site-level estimates and standard errors for selected physician characteristics, e.g., the average age of physicians, the percentage of physicians who were either very or somewhat dissatisfied with their overall career in medicine, and the average percentage of patients with prescription coverage that included the use of a formulary.

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Community Tracking Study Physician Survey, 2004-2005: [United States] (ICPSR 4584)

Released/updated on: 2024-02-14

Geographic coverage: United States

Time period: 2004-01-01--2005-01-01

This is the fourth round of the physician survey component of the Community Tracking Study (CTS). The first round was conducted in 1996-1997 (ICPSR 2597), the second round in 1998-1999 (ICPSR 3267), and the third in 2000-2001 (ICPSR 3820). Sponsored by the Robert Wood Johnson Foundation, the CTS is a large-scale investigation of changes in the American health care system and their effects on people. As in the previous rounds, physicians were sampled in the 60 CTS sites: 51 metropolitan and 9 nonmetropolitan areas that were randomly selected to form the core of the CTS and to be representative of the nation as a whole. However, the fourth round lacks an independent supplemental national sample of physicians, which augmented the CTS site sample in the previous rounds. Information collected by the survey includes net income from the practice of medicine, year of birth, sex, race, Hispanic origin, year of graduation from medical school, specialty, board certification status, compensation model, patient mix (e.g., race/Hispanic origin of patients and percent with chronic conditions), career satisfaction, practice type, size, and ownership, percent of practice revenue from Medicare, Medicaid, or managed care, acceptance of new Medicaid and Medicare patients and, if applicable, reasons for not accepting them, use of information technology for care management, number of patient visits and hours worked in medically related activities during the last complete week of work, and the number of hours spent providing charity care in the last month. In addition, the survey elicited views on a number of issues such as patient-physician interactions, competition among practices, the influence of financial incentives on the quantity of services provided to patients, trends in the amount and quality of nursing support, one's ability to provide quality care and obtain needed services for patients, and the importance of various factors that may limit the quality of care. Part 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site. Part 4, Physician Survey Summary File, contains site-level estimates and standard errors for selected physician characteristics, e.g., the average age of physicians, the average percentage of patients with a formulary, and the percentage of physicians who said medical errors in hospitals are a minor problem.

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Creating a Patient Registry to Facilitate Data Sharing and Encourage Patient-Centered Approaches to Improving Health and Lowering Costs, 2013 (ICPSR 35570)

Released/updated on: 2016-10-05

Geographic coverage: United States, Cincinnati, Ohio

Time period: 2013-09-01--2013-12-01

This interventional pilot study was conducted in a primary care clinic to determine if patients would become more engaged in their own health and ask more questions of their physicians if they were provided data about patients similar to themselves. The study was conducted with 150 patients with a diagnosis of hypertension who had scheduled appointments with one of three participating physicians in the clinic. When they arrived at the clinic for their appointment, the patients were shown de-identified clinical data about similar patients with hypertension on a computer screen, given a printout of this information, and then proceeded to visit their physician. After the physician visit the patients completed a short survey. Their answers to the survey questions are recorded in the data file together with additional information about them, such as age, gender, race, smoking status and comorbidities.

The three participating physicians completed a short survey at the end of the study. The results of that survey are summarized in a table provided with the technical documentation.

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Health Tracking Physician Survey, 2008 [United States] (ICPSR 27202)

Released/updated on: 2010-08-17

Geographic coverage: United States

The 2008 Health Tracking Physician Survey (HTPS) is the successor to the Community Tracking Study (CTS) Physician Surveys which were conducted in 1996-1997 (ICPSR 2597), 1998-1999 (ICPSR 3267), 2000-2001 (ICPSR 3820), and 2004-2005 (ICPSR 4584). Unlike the previous surveys, HTPS does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTPS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Administered to a nationally representative sample of United States physicians providing direct patient care, HTPS collected information on physician characteristics and specialty distribution; career satisfaction; practice arrangements and ownership; financial interest in medical equipment and hospitals; and physician time allocation, including hours worked, number of office visits, time spent communicating with patients via e-mail and telephone, and provision of charity care. The survey also collected information about the racial and Hispanic-origin composition of patients; percent of patients with chronic conditions; percent of patients with a language barrier; use of interpreter services; sources of practice revenue; level and determinants of physician compensation; use of health information technology; physicians' perception of their ability to deliver care; effects of disease management programs and formal practice guidelines; extent of care coordination; malpractice concerns; and various other aspects of physicians' practice of medicine.

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National Hospice Study: Patient and Facility Data, [1980-1983] (ICPSR 8466)

Released/updated on: 2006-01-12

Geographic coverage: United States

Time period: 1980-01-01--1983-01-01

The purpose of the National Hospice Study was to examine the impact of hospice care on the quality of life of patients and their families and the health care cost incurred by patients. The National Hospice Study consists of two distinct, but interrelated, primary data collection components. The first relates to patient level studies of the costs incurred by patients and their families during the final phases of terminal cancer as well as the quality of life that they experienced during this period. The second component of the study relates to comparisons of the hospices that had received special demonstration funding from the Health Care Financing Adminstration for reimbursement of costs incurred by Medicare patients and those that had not. To address the issue of the desirability of reimbursing for hospice under Medicare, data from a large number of hospice and nonhospice patients were gathered. Patients were identified via the sites of care serving them, both hospice and nonhospice. Three types of data were collected: (1) facility level characteristics for a sample of all hospices nationwide, (2) census of intake and discharge characteristics for all patients served by those hospices during the study period, and (3) an extensive interview schedule regarding the quality of care and adequacy of Medicare reimbursement programs was conducted in both hospice and nonhospice settings with a sample of those patients fulfilling certain selection criteria (as well as their primary care person and family).

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National Study of Internal Medicine, Physician Practice Study, Phase III, 1981 (ICPSR 8301)

Released/updated on: 2006-01-12

Geographic coverage: United States

This data collection contains information on the practices of young internists in order to understand the determinants of different practice styles, especially the relationship between training and practice, and to compare the practices of four groups of physicians: (1) general internists with traditional residencies, (2) general internists who received their residency training in special primary care tracks, (3) family physicians, and (4) subspecialty internists. The study queried a national sample of residents and fellows who were in training during 1976-1977 about their current positions, activities, patients, physician-patient relationships, family backgrounds, and educational training histories. Patients of these doctors were also surveyed. Demographic characteristics, such as age, sex, race, educational level, work status, marital status, and income, were recorded for the patient respondents. Background information on physicians includes family, educational history, and income.

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Simple Crosstabs

National Study of Physician Organizations (NSPO3), United States, 2012-2013 (ICPSR 38587)

Released/updated on: 2023-01-31

Geographic coverage: United States

Time period: 2012-01-01--2013-11-30

The National Study of Physician Organizations was designed to improve understanding of evidence-based care management processes (CMPs) as they relate to physician organizations (POs), that is, independent practice associations (IPAs) and medical groups. This survey, the third NSPO survey of IPAs and medical groups (NSPO2), examined over 2000 physician organizations of all sizes. As in prior surveys, NSPO3 collected demographic information about the following practices and assesses: (1) use of clinical information technology; (2) use of care management processes to improve the quality of care for four chronic conditions (asthma, congestive heart failure, depression, and diabetes); (3) provision of clinical preventive services and health promotion; (4) exposure to external performance incentives such as pay for performance and public reporting; (5) payer mix, forms of compensation from health plans, and forms of compensation paid by the practice to its physicians; (6) organizational culture. In addition, NSPO3 asked about participation or intended participation in Accountable Care Organizations (ACOs).

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Simple Crosstabs

Newly Licensed Registered Nurse Quality Improvement Survey 1, 2008 (ICPSR 36817)

Released/updated on: 2021-01-27

Geographic coverage: United States

The purpose of this study was to describe what newly licensed registered nurses (NLRN) working in hospitals learned about quality improvement in their education programs and workplaces. The survey was administered to nurses working in a hospital who participated in the second wave (ICPSR 36812) of the Newly Licensed Registered Nurse Survey series. This was part of a ten year panel survey. Quality improvement topics covered by the survey include:

patient-centered care
evidence-based practice
standardized practices for restrain and seclusion, infection control and pain management
use of information technology or strategies to reduce reliance on memory
participation in analyzing errors and designing system improvements
use of national patient safety resources, initiatives or regulations
use of specific quality improvement models

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Practice Patterns of Young Physicians, 1987: [United States] (ICPSR 9277)

Released/updated on: 2012-01-11

Geographic coverage: United States

Time period: 1987-04-09--1987-11-21

This study investigated the factors that influenced the career decisions of young physicians and the characteristics of their practices. The collection has five datasets: Public-Use Version of the Young Physicians Survey (Dataset 1), Socioeconomic Monitoring System Study (Dataset 2), ZIP Code Data (Dataset 3), Verbatim Responses to the Open-Ended Questions (Dataset 4), and Restricted-Use Version of the Young Physicians Survey (Dataset 5).

The Public-Use Version of the Young Physicians Survey comprises responses from the Young Physicians Survey (YPS), plus merged data from the American Medical Association (AMA) Masterfile and the Association of American Medical Colleges' Student and Applicant Information Management System (SAIMS) database. The YPS interviewed physicians below 40 years of age who recently completed graduate medical training and were in their early years of practice. These physicians were queried about their graduate medical training, perceptions of the medical profession, current practice arrangements, career decisions, family background, patient care activities, and current income and expenses. To obtain information on current practice arrangements, respondents were questioned about the practices they worked in, including who owned the practices, the number of physicians in each practice, specialties or subspecialties practiced, usual fees for selected services, percentages of revenues from HMOs, PPOs, and IPAs, and percentages of patients who were Medicare patients, had no health insurance coverage, or were poor, Black, Hispanic, severely physically disabled, or chronically mentally ill. Questions on career decisions asked respondents about factors that influenced their career choices, such as reasons for working in multiple practices, reasons for leaving past practices, and reasons for deciding in favor of or against self-employment. Information on family background elicited by the survey includes the respondent's race, marital status, and educational debt, parents' income class and education, number of children living in the respondent's home, and whether the respondent's spouse or parents were physicians. Questions on patient care activities included questions on the number of hours spent providing uncompensated health care to the poor, and the number of hours spent with patients in a variety of settings, such as the office, emergency rooms, hospital outpatient clinics, and operating rooms. Information from the AMA Masterfile and the SAIMS database includes board certification status, AMA membership, school and year of graduation, Medical College Admission Test scores, primary undergraduate institution, most recent grade point averages, place of birth, number of acceptances to United States medical schools, parents' occupations, preferred medical specialty, and preferred practice setting.

Dataset 2 comprises responses from the AMA's Socioeconomic Monitoring System (SMS), a semiannual survey of nonfederal physicians that collected data on topics similar to those in the YPS, such as practice ownership, hours spent seeing patients in various settings, income, expenses, and opinions on practice procedures. The SMS data can be used for comparative analyses of young, prime, and senior physicians.

The ZIP Code Data contain estimates for the composition of the population residing in the ZIP code areas of the YPS respondents' main practices. This includes estimates of the size of each ZIP code area population, as well as its components with respect to gender, age, race, Hispanic ethnicity, and income. Also included are estimates of the number of physicians and their composition with respect to age, sex, practice type, and specialty.

Dataset 4 contains verbatim responses to open-ended questions asked in the YPS.

The Restricted-Use Version of the Young Physicians Survey is the same as the Public-Use Version of the Young Physicians Survey, except for some variables that were restricted from general dissemination for reasons of confidentiality. The restricted-use version includes the restricted variables, but the public-use version does not.

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Practice Patterns of Young Physicians, 1997: [75 Largest Metropolitan Statistical Areas in the United States] (ICPSR 2829)

Released/updated on: 2024-02-14

Geographic coverage: United States

This survey reinterviewed a subsample of physicians who responded to the survey PRACTICE PATTERNS OF YOUNG PHYSICIANS, 1991: [UNITED STATES] (ICPSR 6145). Respondents answered questions about their practice arrangements, such as the number of different medical practices that they worked in during the past month, the number of hours spent providing patient care, and the number of patients seen in the past week. They also described the characteristics of their main practice in terms of type of practice setting, practice ownership, number of physicians, percentage of revenues from patients covered by Medicaid and Medicare, share of Medicaid and Medicare revenues from managed care organizations, percentage of patients with no health insurance coverage, and percentage of Black and Hispanic patients. Other information covered whether the practice had a formal mechanism for reviewing clinical practice decisions, whether it had contracted to provide care through a Preferred Provider Organization (PPO), Health Maintenance Organization (HMO), or Independent Practice Arrangement (IPA), whether it was joined with one or more physician practices or was purchased by an insurance company in the past two years, percentage of revenues from PPO, HMO, and IPA arrangements, and whether there were personal financial incentives that favored reducing or expanding services to patients. Additionally, respondents were asked whether contracts or other communications received from insurance plans implied that continued participation in the plans depended upon costs associated with their clinical decisions, or implied that they should not tell patients about restrictions on coverage for medically accepted testing, treatment, or referral options. Other questions probed respondents' career satisfaction, ethical beliefs regarding the practice of medicine, and freedom to practice medicine as they saw fit. The survey also gathered information on determinants of physician compensation, medical specialty, income, marital status, spouse's occupation, and the number of children living with the respondent.

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Project HealthDesign: BreathEasy - A Personal Health Record Application For Adults With Asthma, 2011-2012 (ICPSR 36027)

Released/updated on: 2024-02-14

Geographic coverage: Virginia, Richmond

Time period: 2011-01-01--2012-01-01

Asthma is a chronic illness that affects more than 23 million adults in the United States. In addition to respiratory symptoms associated with the disease, individuals with asthma are also more likely to experience depression and anxiety. The BreathEasy team designed a mobile application built on the latest clinical guidelines for treatment and self-monitoring for patients with asthma. Patients with asthma used the application on smartphones to capture and report observations of daily living (ODLs) such as use of controller and rescue medications, asthma symptoms (including peak flow rates), depression and anxiety symptoms, encounters with asthma triggers, physical activity levels (including accelerometer based data), sleeping problems, and smoking. Clinicians used a web based dashboard with simple analysis and visualization tools that allowed them to quickly view the patients' data, evaluate their health statuses, and communicate changes in treatment or monitoring. This data collection contains the ODL data recorded by the patients.

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Project HealthDesign: Chronology.MD - Personal Health Record Applications for Patients With Crohn's Disease, 2011-2012 (ICPSR 36028)

Released/updated on: 2024-02-14

Geographic coverage: San Francisco, California

Time period: 2011-01-01--2012-01-01

More than 600,000 people in the United States live with Crohn's disease, a chronic and progressive disorder of the digestive system which is most prevalent in young adults ages 18-35. The Chronology.MD team developed two mobile applications to help patients who have Crohn's disease create visually aided narratives of their condition and responses to treatment. Crohn's patients used the Chronology app to enter observations of daily living (e.g., levels of abdominal pain, energy, and stress); enter clinical data (levels of B-12, C-Reactive Protein, HTC and iron in the blood); automatically upload weight data using Withings scales; and automatically uploaded sleep and exercise data from Fitbit body monitors. The Crohnograph app enabled patients to view time trends for tracked ODLs and other data, explore possible associations among them, and show the data visualizations to their health care provider. The providers could document information from the visualization and conversations in clinical notes. This data collection comprises the data collected using the Chronology app from the patients who participated in the Chronology.MD study.

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Southern Rural Access Program (SRAP) Survey of Access to Outpatient Medical Services in the Rural Southeast, 2002-2003 (ICPSR 4724)

Released/updated on: 2007-10-17

Geographic coverage: West Virginia, Mississippi, United States, Texas, Louisiana, Georgia, Alabama, Arkansas, South Carolina

Time period: 2002-11-01--2003-07-01

This survey was conducted to obtain baseline data as part of an evaluation of the Southern Rural Access Program (SRAP), a Robert Wood Johnson Foundation initiative to improve access to health care services in select rural areas of eight states: Alabama, Arkansas, Georgia, Louisiana, Mississippi, South Carolina, West Virginia, and eastern Texas. Within these states, 150 nonmetropolitan counties were selected for SRAP participation based on perceived local health needs, willingness of local organizations and providers to partner with the program's efforts, and prospects for long-term program viability. The SRAP counties demonstrated greater socioeconomic need than other nonmetropolitan counties in the eight states: approximately 50 percent higher poverty rates, 30 percent higher unemployment, and 40 percent greater minority proportions. Topics covered by the survey include health status, health insurance coverage, health care access challenges, confidence in and satisfaction with health care, and utilization of outpatient services including specific disease prevention services. Personal demographic characteristics collected by the survey include age, sex, race, Hispanic origin, primary language spoken at home, marital status, educational achievement, work status, income, number of children at home, and the state, county, town, and ZIP code of residence. The data file also contains county-level and Primary Care Service Area (PCSA)-level contextual variables from external sources, such as population size, population composition by race, number of hospital beds, and variables indicating the presence of short term hospitals and Federally Qualified Health Centers.

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Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997 (ICPSR 2957)

Released/updated on: 2020-02-20

Geographic coverage: United States

Time period: 1989-01-01--1997-01-01

The objective of the SUPPORT and HELP projects was to improve decision-making in order to address the growing national concern over the loss of control that patients have near the end of life and to reduce the frequency of a mechanical, painful, and prolonged process of dying. SUPPORT comprised a two-year prospective observational study (Phase I) followed by a two-year controlled clinical trial (Phase II). Phase I of SUPPORT collected data from patients accessioned during 1989-1991 to characterize the care, treatment preferences, and patterns of decision-making among critically ill patients. It also served as a preliminary step for devising an intervention strategy for improving critically-ill patients' care and for the construction of statistical models for predicting patient prognosis and functional status. An intervention was implemented in Phase II of SUPPORT, which accessioned patients during 1992-1994. The Phase II intervention provided physicians with accurate predictive information on future functional ability, survival probability to six months, and patients' preferences for end-of-life care. Additionally, a skilled nurse was provided as part of the intervention to elicit patient preferences, provide prognoses, enhance understanding, enable palliative care, and facilitate advance planning. The intervention was expected to increase communication, resulting in earlier decisions to have orders against resuscitation, decrease time that patients spent in undesirable states (e.g., in the Intensive Care Unit, on a ventilator, and in a coma), increase physician understanding of patients' preferences for care, decrease patient pain, and decrease hospital resource use. Data collection in both phases of SUPPORT consisted of questionnaires administered to patients, their surrogates, and physicians, plus chart reviews for abstracting clinical, treatment, and decision information. Phase II also collected information regarding the implementation of the intervention, such as patient-specific logs maintained by nurses assigned to patients as part of the intervention. SUPPORT patients were followed for six months after inclusion in the study. Those who did not die within six months or were lost to follow-up were matched against the National Death Index to identify deaths through 1997. The HELP study was conducted in 1993 concomitantly with Phase II of SUPPORT and collected data to characterize the care, treatment preferences, and patterns of decision-making among hospitalized patients who were at least 80 years old. HELP data were also intended for use in adapting existing mortality and functional status models of elderly hospitalized patients. Data collection methods of HELP were essentially the same as those of SUPPORT. HELP patients were followed for 12 months after inclusion in the study. Patients who did not die within one year or were lost to follow-up were matched against the National Death Index to identify deaths through 1997.

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United States Hospital AIDS/HIV and Pediatric AIDS/HIV Care Survey, 1988, 1989, AND 1991 (ICPSR 6455)

Released/updated on: 2006-01-12

Geographic coverage: United States

The purpose of this study was to obtain information on hospital-based treatment of persons with Acquired Immune Deficiency Syndrome (AIDS) and other Human Immunodeficiency Virus (HIV)-related illnesses. Aggregate data were obtained from each surveyed hospital, with the hospital as the unit of observation. Topics covered included patient demographics, service volume and structure, sources of payment, and types of services and treatments rendered. Information was also solicited on inpatient and outpatient AIDS/HIV hospital utilization, patient discharge disposition and likely mode of exposure, hospital community AIDS/HIV education programs, and policies for the treatment of AIDS/HIV patients, for employees with AIDS/HIV, and for the confidentiality of AIDS/HIV patients. Additionally, hospital administrators were queried about monitoring and tracking of outpatient services and the existence of special hospital-operated AIDS/HIV outpatient clinics. Financial characteristics covered included net revenues, costs, and charges for inpatient and outpatient AIDS/HIV services, payer source, and methods used to determine costs. In 1989 and 1991, separate data were obtained for pediatric AIDS/HIV patients.