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Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)

Released/updated on: 2024-02-28
Geographic coverage: United States
Time period: 2001-01-01--2003-01-01
The Collaborative Psychiatric Epidemiology Surveys (CPES) were initiated in recognition of the need for contemporary, comprehensive epidemiological data regarding the distributions, correlates and risk factors of mental disorders among the general population with special emphasis on minority groups. The primary objective of the CPES was to collect data about the prevalence of mental disorders, impairments associated with these disorders, and their treatment patterns from representative samples of majority and minority adult populations in the United States. Secondary goals were to obtain information about language use and ethnic disparities, support systems, discrimination and assimilation, in order to examine whether and how closely various mental health disorders are linked to social and cultural issues. To this end, CPES joins together three nationally representative surveys: the NATIONAL COMORBIDITY SURVEY REPLICATION (NCS-R), the NATIONAL SURVEY OF AMERICAN LIFE (NSAL), and the NATIONAL LATINO AND ASIAN AMERICAN STUDY (NLAAS). These surveys collectively provide the first national data with sufficient power to investigate cultural and ethnic influences on mental disorders. In this manner, CPES permits analysts to approach analysis of the combined dataset as though it were a single, nationally representative survey. Each of the CPES surveys has been documented in a comprehensive and flexible manner that promotes cross-survey linking of key data and scientific constructs.
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Community Tracking Study Household Survey, 1996-1997, and Followback Survey, 1997-1998: [United States] (ICPSR 2524)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-07-01--1997-07-01, 1997-10-01--1998-08-01
This data collection comprises two components of the Community Tracking Study (CTS), the Household Survey and the Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. At the beginning of each interview, a household informant was identified and queried about the composition of the household. With this information, individuals in the household were grouped into family insurance units (FIU). An FIU reflects family groupings typically used by insurance carriers. It includes an adult household member, his or her spouse, if any, and any dependent children 0-17 years of age (or 18-22 years of age if a full-time student). Family informants, selected from each FIU in the household, provided information on health insurance coverage, health care use, usual source of care, and the general health of all persons in the FIU. These informants also provided information on family income and out-of-pocket expenses for health care, as well as employment, race, and Hispanic origin for all adult FIU members. Each adult in the household, including the FIU informants, responded through a self-response module to questions regarding unmet health care needs, patient trust, satisfaction with physician choice, limitations in daily activities, smoking behaviors, and last doctor visit. In FIUs with more than one child under 18, only one child was randomly selected for inclusion in the survey. The family informant responded on behalf of the child regarding unmet needs and satisfaction with physician choice. The adult family member who took this child to his or her last doctor visit responded to questions about the visit. The Followback Survey was designed to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to health plans and other organizations that offered or administered the comprehensive private health insurance policies covering Household Survey respondents in the 60 CTS sites. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--2000-01-01
This collection comprises the second round of the Community Tracking Study (CTS) Household Survey and the second round of the CTS Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] (ICPSR 2524)), the second round of the Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. The purpose of the Followback Survey was to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to the health plans and other organizations (managed care organizations, third-party administrators, employer or union plans, and employers) that offered or administered the respondents' comprehensive private health insurance policies. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This collection comprises the third round of the Community Tracking Study (CTS) Household Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and the effects of those changes on people. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the Household Survey (ICPSR 2524 and 3199), the third round was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. A new set of sample design variables was added to the third round data for variance estimation by statistical software packages other than SUDAAN.
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Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)

Released/updated on: 2007-12-03
Geographic coverage: United States
Time period: 2003-01-01--2004-01-01
This collection contains data and documentation for the fourth round of the Community Tracking Study (CTS) Household Survey. Sponsored by the Robert Wood Johnson Foundation, the CTS is a national study designed to track changes in the United States' health care system and their effects. The fourth round was administered to households in the 60 CTS sites: 51 metropolitan areas and nine nonmetropolitan areas which were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The first round of the CTS Household Survey was conducted in 1996-1997 (ICPSR 2524), the second round in 1998-1999 (ICPSR 3199), and the third in 2000-2001 (ICPSR 3764). Respondents to the fourth round provided information about health insurance coverage, use of health services, unmet needs for health care, children's special health care needs, out-of-pocket medical costs, patient trust in physicians, sources of health information, attitudes about medical care, and satisfaction with health care and health plans. Health status, chronic conditions, and risk attitudes and smoking behavior were additional topics covered by the fourth round questionnaire. The data include variables on height and weight, employment, income, ethnicity, race, United States citizenship, household composition, and demographic characteristics.
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Costing Study of the Clients of the Mobile Community Treatment Program [1987-1988: Madison, Wisconsin] (ICPSR 9843)

Released/updated on: 2024-02-14
Geographic coverage: Madison, United States, Wisconsin
Time period: 1987-01-01--1988-12-01
The University of Wisconsin's Department of Preventive Medicine, in cooperation with the Department of Psychiatry and the Mental Health Center of Dane County, Wisconsin, conducted a comprehensive costing study of the clients of a community-based program for treating the mentally ill, the Mobile Community Treatment program (MCT), in Madison, Wisconsin. MCT provided assertive outreach and case management for individuals with major psychiatric disorders. The aim of this study was to determine the costs for clients of MCT to live in the community, including the costs of their medical, residential, employment, law enforcement, and maintenance needs. Clients of MCT were queried about their use of services provided by medical, human service, and law enforcement agencies, as well as their receipt of in-kind and cash benefits from public and private agencies. Service and cost data on survey respondents were also obtained from the records of local agencies, such as the Dane County Sheriff's Department, Dane County Circuit Court, Dane County Department of Public Health, homeless shelters, Adult Protective Services, and vocational training programs.
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Culturally Focused Psychiatric Consultation Service For Massachusetts General Hospital's Asian American and Latino American Primary Care Patients with Depression, 2009-2011 (ICPSR 34495)

Released/updated on: 2024-02-14
Geographic coverage: United States, Massachusetts
Time period: 2009-12-16--2011-08-17

This randomized controlled trial evaluated a culturally appropriate intervention to improve the recognition and treatment of depression among Asian and Latino American primary care patients at Massachusetts General Hospital (MGH), using a culturally focused psychiatric (CFP) consultation with a team of mental health providers who were bilingual/bicultural, trained in culturally competent techniques, and familiar with the cultures and languages of the patients served. Targeted minority patients who screened positive for clinical depression were eligible to participate in the trial. The intervention patients were offered the CFP consultation at baseline and, if eligible, received the CFP patient toolkit as part of their treatment. The toolkit provided psychoeducation and tools for managing depression as well as information on community resources. The usual care patients were offered standard referrals to MGH mental health resources.

Questionnaires were administered to the patients at screening, baseline, two-week follow-up, and six month follow-up. The screening questionnaires included the two-item Public Health Questionnaire (PHQ-2) and demographic questions. Assessment measures administered to the intervention patients at baseline included the Mini International Neuropsychiatric Interview (MINI), Quick Inventory of Depressive Symptomatology-Self Rated Scale (QIDS-SR 16), Global Assessment of Functioning (GAF), Schwartz Outcome Scale (SOS-10), and a demographic questionnaire and resource utilization questionnaire. At six month follow-up, the intervention arm was administered a resource utilization questionnaire, patient satisfaction questionnaire (Treatment Satisfaction Scale), qualitative interview, and the QIDS-SR 16 and SOS-10. The SOS-10 was also administered to the intervention patients at two-week follow-up. In the usual care arm, the QIDS-SR 16 and resource utilization questionnaire was administered at baseline and six months, the qualitative interview at six months, and the demographic questionnaire at baseline or six-months. There was no two-week assessment for the usual care patients. Electronic medical record review was used for both arms at baseline and six months, as needed. In addition, qualitative interviews were conducted with project and practice staff at the end of the study.

The data file includes the responses to the questionnaires and variables describing the CFP consultation assessment (DSM-IV Axis I, II, III, IV, and V diagnoses), treatment recommendations made to the patients' primary care physicians (PCPs) after the CFP consultation, and study staff contacts with the patients' PCPs and mental health providers. ICPSR did not receive the data from the qualitative interviews or electronic medical record reviews.

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Health Tracking Household Survey, 2007 [United States] (ICPSR 26001)

Released/updated on: 2011-04-15
Geographic coverage: United States

The 2007 Health Tracking Household Survey (HTHS) is the successor to the Community Tracking Study (CTS) Household Surveys which were conducted in 1996-1997 (ICPSR 2524), 1998-1999 (ICPSR 3199), 2000-2001 (ICPSR 3764), and 2003 (ICPSR 4216). Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Like the CTS Household Surveys, HTHS collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, adult chronic conditions, height and weight, and smoking behavior. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care.

At the beginning of the interview, a household informant provided information about the composition of the household which was used to group the household members into family insurance units (FIU). Each FIU comprised an adult household member, his or her spouse or domestic partner (same sex and other unmarried partners), if any, and any dependent children 0-17 years of age or 18-22 years of age if a full-time student (even if living outside the household). In each FIU in the household, a FIU informant provided information on insurance coverage, health care use, usual source of care, and general health status of all FIU members. This informant also provided information on family income as well as employment, earnings, employer-offered insurance plans, and race/ethnicity for all adult FIU members. Moreover, every adult in each FIU (including the FIU informant) responded through a self-response module to questions that could not be answered reliably by proxy respondents, such as questions about unmet needs, assessments of the quality of care, consumer engagement, satisfaction with physician choice, use of health information, health care shopping, and detailed health questions. The FIU informants responded on behalf of children regarding unmet needs, satisfaction with physician choice, and use of health care information.

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National Comorbidity Survey: Adolescent Supplement (NCS-A), [United States], 2001-2004 (ICPSR 28581)

Released/updated on: 2023-11-16
Geographic coverage: United States
Time period: 2001-02-01--2004-01-01

The National Comorbidity Survey Replication Adolescent Supplement (NCS-A) was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders in the child and adolescent years of life among adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders.

The core NCS-A interview schedule was an adaptation of the World Health Organization Composite International Diagnostic Interview (CIDI). NCS-A also administered the non-verbal subtest (Matrices subtest) of the Kaufman Brief Intelligence Test (K-BIT).

In addition to interviewing adolescents, information was collected from a parent or a parent surrogate to obtain an additional perspective on the adolescent's mental health and its correlates. Information from parents focused on the five adolescent disorders for which previous methodological research has most consistently shown that parental reports are important for making diagnoses: attention-deficit/hyperactivity disorder, conduct disorder, oppositional defiant disorder, major depressive episode, and dysthymic disorder.

Demographic information collected by NCS-A includes age, citizenship status, country of birth, criminal history, ethnicity, grandparents' country of birth, language(s) spoken in the home, parents' country of birth, race, religion, and sex.

The data collection contains six data files: (1) data for the adolescent household and school respondents; (2) data for the parents who responded to the long self-administered questionnaire; (3) data for the parents who responded to both the long self-administered questionnaire and short telephone interview; (4) diagnostic variables derived from the data collected from the adolescents and parents; (5) K-BIT scores normed to the NCS-A adolescent sample; and (6) raw K-BIT data.

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National Comorbidity Survey: Baseline (NCS-1), 1990-1992 (ICPSR 6693)

Released/updated on: 2008-09-12
Geographic coverage: United States
Time period: 1990-01-01--1992-01-01
The National Comorbidity Survey: Baseline (NCS-1) was a collaborative epidemiologic investigation designed to study the prevalence and correlates of DSM III-R disorders and patterns and correlates of service utilization for these disorders. The NCS-1 was the first survey to administer a structured psychiatric interview to a nationally representative sample. The survey was carried out in the early 1990s with a household sample of over 8,000 respondents. Subsamples of the original respondents completed the NCS-1 Part II survey and Tobacco Use Supplement. Diagnoses were based on a modified version of the Composite International Diagnostic Interview (the UM-CIDI), which was developed at the University of Michigan for the NCS-1. Drugs covered by this survey include alcohol, tobacco, sedatives, stimulants, tranquilizers, analgesics, inhalants, marijuana/hashish, cocaine, hallucinogens, heroin, nonmedical use of prescription drugs, and polysubstance use. Other items include demographic characteristics, personal and family history of substance use and abuse, substance abuse treatment, data on drug use including recency, frequency, and age at first use, problems resulting from the use of drugs, personal and family history of psychiatric problems, mental health treatment, symptoms of psychiatric disorders, mental health status, HIV risk behaviors, and physical health status.
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National Comorbidity Survey: Baseline (NCS-1), 1990-1992 (Restricted Version) (ICPSR 25381)

Released/updated on: 2023-11-06
Geographic coverage: United States
Time period: 1990-01-01--1992-01-01
The National Comorbidity Survey: Baseline (NCS-1) is a collaborative epidemiologic investigation designed to study the prevalence and patterns of disorders in the third and revised edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM III-R) as well as correlates of service utilization for these disorders. The NCS-1 was the first survey to administer a structured psychiatric interview to a nationally representative sample and was carried out in the early 1990s with a household sample of over 8,000 respondents. Diagnoses were based on a modified version of the Composite International Diagnostic Interview (the UM-CIDI), which was developed at the University of Michigan for the NCS-1. This restricted-use data collection contains the following geographic variables that can be linked to the public-use version of the data using the CASEID variable: Census State FIPS codes, Census County FIPS codes, Census 5-Digit County-State FIPS codes, and Census 11-Digit State-County-Tract FIPS codes. However, in order to help preserve the confidentiality of the data the frequency tables in the codebook have been suppressed.
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National Comorbidity Survey: Reinterview (NCS-2), 2001-2002 (ICPSR 35067)

Released/updated on: 2015-03-31
Geographic coverage: United States
Time period: 2001-01-01--2002-01-01

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains three major sections: the main survey, demographic data, and diagnostic data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The middle section contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The last section of the collection focused on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

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National Comorbidity Survey: Reinterview (NCS-2), 2001-2002 [Restricted-Use] (ICPSR 30921)

Released/updated on: 2024-03-04
Geographic coverage: United States
Time period: 2001-01-01--2002-01-01

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains four major sections: the main survey, demographic data, diagnostic data, and state, county, and tract FIPS data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The second part contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The third part focuses on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

The fourth part contains respondents' state, county, and tract FIPS data.

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National Survey of Alcohol, Drug, and Mental Health Problems [Healthcare for Communities], 1997-1998 (ICPSR 3025)

Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1997-01-01--1998-01-01
This survey is a component of the Robert Wood Johnson Foundation's Health Tracking Initiative, a program designed to monitor changes within the health care system and their effects on people. Focusing on care and treatment for alcohol, drug, and mental health conditions, the survey reinterviewed respondents to the 1996-1997 CTS Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] [ICPSR 2524]). Topics covered by the questionnaire include (1) demographics, (2) health and daily activities, (3) mental health, (4) alcohol and illicit drug use, (5) use of medications, (6) health insurance coverage including coverage for mental health, (7) access, utilization, and quality of behavioral health care, (8) work, income, and wealth, and (9) life difficulties. Five imputed versions of the data are included in the collection for analysis with multiple imputation techniques.
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National Survey of Alcohol, Drug, and Mental Health Problems [Healthcare for Communities], 2000-2001 (ICPSR 4165)

Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This survey (HCC2) is a component of the Robert Wood Johnson Foundation's Health Tracking Initiative, an initiative designed to track changes in the the American health care system and their effects. HCC2 reinterviewed respondents to the first National Survey of Alcohol, Drug, and Mental Health Problems (HCC1) and a cross-section of adult respondents from the second Community Tracking Study (CTS) Household Survey (CTS2). Previously, HCC1 reinterviewed a cross-section of adult respondents from the first CTS Household Survey (CTS1). HCC1 is available as the NATIONAL SURVEY OF ALCOHOL, DRUG, AND MENTAL HEALTH PROBLEMS [HEALTHCARE FOR COMMUNITIES], 1997-1998 (ICPSR 3025), CTS1 as the COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998 (ICPSR 2524), and CTS2 as the COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1998-1999, AND FOLLOWBACK SURVEY, 1998-2000 (ICPSR 3199). Central to the design of the CTS Household Surveys, from which all HCC1 and HCC2 respondents originated, is its community focus. Sixty sites (51 metropolitan and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS surveys and to be representative of the nation as a whole. The CTS Household Surveys were administered to households in the 60 CTS sites (known as the site sample) and to a supplemental national sample of households. Both HCC1 and HCC2 focused on the care and treatment for alcohol, drug, and mental health conditions. Like HCC1, the HCC2 questionnaire collected information on (1) demographics, (2) health and daily activities, (3) mental health, (4) alcohol and illicit drug use, (5) use of medications, (6) general health insurance and insurance coverage for mental health, substance abuse, and prescription medications, (7) access, utilization, and quality of behavioral health care, (8) labor market status, income, and wealth, and (9) life difficulties. Three sets of a data files are supplied with this collection: a set containing the interviews completed with the follow-up sample of persons who responded to HCC1, a set containing the interviews completed with the cross-sectional sample of subjects who responded to CTS2, and a set named the "complete sample" which contains all of the completed interviews. Five imputed versions of the data are included with each set for analysis with multiple imputation techniques.