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Showing 1 – 36 of 36 results.
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Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)

Released/updated on: 2024-12-12
Geographic coverage: United States
Time period: 1986-01-01--2021-01-01

The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

Curated
Partially restricted

Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)

Released/updated on: 2024-02-28
Geographic coverage: United States
Time period: 2001-01-01--2003-01-01
The Collaborative Psychiatric Epidemiology Surveys (CPES) were initiated in recognition of the need for contemporary, comprehensive epidemiological data regarding the distributions, correlates and risk factors of mental disorders among the general population with special emphasis on minority groups. The primary objective of the CPES was to collect data about the prevalence of mental disorders, impairments associated with these disorders, and their treatment patterns from representative samples of majority and minority adult populations in the United States. Secondary goals were to obtain information about language use and ethnic disparities, support systems, discrimination and assimilation, in order to examine whether and how closely various mental health disorders are linked to social and cultural issues. To this end, CPES joins together three nationally representative surveys: the NATIONAL COMORBIDITY SURVEY REPLICATION (NCS-R), the NATIONAL SURVEY OF AMERICAN LIFE (NSAL), and the NATIONAL LATINO AND ASIAN AMERICAN STUDY (NLAAS). These surveys collectively provide the first national data with sufficient power to investigate cultural and ethnic influences on mental disorders. In this manner, CPES permits analysts to approach analysis of the combined dataset as though it were a single, nationally representative survey. Each of the CPES surveys has been documented in a comprehensive and flexible manner that promotes cross-survey linking of key data and scientific constructs.
Curated
Simple Crosstabs

The Future of Families and Child Wellbeing Study (FFCWS), Public Use, United States, 1998-2024 (ICPSR 31622)

Released/updated on: 2026-04-06
Geographic coverage: United States
Time period: 1998-01-01--2024-01-01

The Future of Families and Child Wellbeing Study (FFCWS, formerly known as the Fragile Families and Child Wellbeing Study) follows a cohort of nearly 5,000 children born in large, U.S. cities between 1998 and 2000. The study oversampled births to unmarried couples; and, when weighted, the data are representative of births in large U.S. cities at the turn of the century. The FFCWS was originally designed to address four questions of great interest to researchers and policy makers:

  1. What are the conditions and capabilities of unmarried parents, especially fathers?
  2. What is the nature of the relationships between unmarried parents?
  3. How do children born into these families fare?
  4. How do policies and environmental conditions affect families and children?

The FFCWS consists of interviews with mothers, fathers, and/or primary caregivers at birth and again when children are ages 1, 3, 5, 9, 15, and 22. The parent interviews collected information on attitudes, relationships, parenting behavior, demographic characteristics, health (mental and physical), economic and employment status, neighborhood characteristics, and program participation. Beginning at age 9, children were interviewed directly (either during the home visit or on the telephone). The direct child interviews collected data on family relationships, home routines, schools, peers, and physical and mental health, as well as health behaviors.

A collaborative study of the FFCWS, the In-Home Longitudinal Study of Pre-School Aged Children (In-Home Study) collected data from a subset of the FFCWS Core respondents at the Year 3 and 5 follow-ups to ask how parental resources in the form of parental presence or absence, time, and money influence children under the age of 5. The In-Home Study collected information on a variety of domains of the child's environment, including: the physical environment (quality of housing, nutrition and food security, health care, adequacy of clothing and supervision) and parenting (parental discipline, parental attachment, and cognitive stimulation). In addition, the In-Home Study also collected information on several important child outcomes, including anthropometrics, child behaviors, and cognitive ability. This information was collected through interviews with the child's primary caregiver, and direct observation of the child's home environment and the child's interactions with his or her caregiver.

Similar activities were conducted during the Year 9 follow-up. At the Year 15 follow-up, a condensed set of home visit activities were conducted with a subsample of approximately 1,000 teens. Teens who participated in the In-Home Study were also invited to participate in a Sleep Study and were asked to wear an accelerometer on their non-dominant wrist for seven consecutive days to track their sleep (Sleep Actigraphy Data) and that day's behaviors and mood (Daily Sleep Actigraphy and Diary Survey Data).

An additional collaborative study collected data from the child care provider (Year 3) and teacher (Years 9 and 15) through mail-based surveys. Saliva samples were collected at Year 9 and 15 (Biomarker file and Polygenic Scores). The Study of Adolescent Neural Development (SAND) COVID Study began data collection in May 2020 following the onset of the COVID-19 pandemic. It included online surveys with the young adult and their primary caregiver.

The FFCWS began its seventh wave of data collection in October 2020, around the focal child's 22nd birthday. Data collection and interviews continued through January 2024. The Year 22 wave included a young adult (YA) survey with the original focal child and a primary caregiver (PCG) survey. Data were also collected on the children of the original focal child (referred to as Generation 3, or G3).

In 2017, the FFCWS team announced the Fragile Families (FF) Challenge, a collaborative effort in which participants were tasked with using machine learning methods and FFCWS data (Baseline to Year 9) to build a model that would predict six key outcomes at Year 15. Materials used in the FF Challenge have been archived in this collection.

Documentation for these files is available on the FFCWS website under Data and Documentation. For details of updates made to the FFCWS data files, please see the project's Data Alerts page.

Data collection for the Future of Families and Child Wellbeing Study was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) of the National Institutes of Health under award numbers R01HD36916, R01HD39135, and R01HD40421, as well as a consortium of private foundations.

Below is the citation for use of the FFCWS data accessed through ICPSR. For information on additional citation requirements when using FFCWS in publications, please refer to this FAQ on the FFCWS project site.

Curated

Harvard School of Public Health/Robert Wood Johnson Foundation/National Public Radio Poll: What Shapes Health, United States, 2014 (ICPSR 38384)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of the 2014 poll What Shapes Health, a survey from National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Concerned about own health
  • Meaning of health
  • Control over own health
  • Effort into maintaining health
  • Frequency of healthy activities
  • Description of personal health
  • Types of healthy habits
  • On diet to lose weight
  • Ways to improve health
  • Things that cause health problems
  • Childhood problems causing future health issues
  • Participation in community organizations
  • Volunteering improving health
  • Being told to improve health
  • Family/friend behavior influencing health
  • Health habits of family/friends
  • Problems experienced in adulthood
  • Problems experience in childhood
  • Receiving health care
  • Difficulty accessing health care
  • Parents' health
  • Recent serious illnesses
  • Diagnosed with health conditions
  • Frequency of exercising
  • Personal weight
  • Smoking habits
  • Health insurance

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092363]. Frequencies and summary statistics for the 244 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated

Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2006-HEALTH: Public Health, United States, 2006 (ICPSR 38359)

Released/updated on: 2022-03-08
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Poll # 2006-HEALTH: Public Health, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Concern about immediate family members becoming ill soon
  • Seasonal influenza shot/vaccine
  • Prescription drugs
  • Currently have items in home
  • Avian/Bird Flu
  • Preparedness of groups to provide needed services in the event of a worldwide flu epidemic
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092312]. Frequencies and summary statistics for the 102 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Curated

Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2006-PRIOR1: Priorities 1--Public Health, United States, 2006 (ICPSR 38360)

Released/updated on: 2022-03-08
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Poll # 2006-PRIOR1: Priorities 1--Public Health, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Rating of nation's system for protecting the public from health threats/preventing illness
  • Diseases/health conditions posing the greatest threat to the public
  • Most important diseases/health conditions for the government to address
  • Quality of life in community
  • Rating of aspects of life in community
  • Community problems
  • Health conditions in community
  • Importance of action to improve nation's health
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092314]. Frequencies and summary statistics for the 112 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Curated

Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2006-VIEWS: Americans' Views on Public Health, United States, 2006 (ICPSR 38365)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Poll # 2006-VIEWS: Americans' Views on Public Health, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Public health of America
  • Government addressing public health
  • Quality of life
  • Problems in the community
  • Health conditions in the community

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092320]. Frequencies and summary statistics for the 111 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated

Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2007-PRIOR1: Priorities 1--Public Health, United States, 2007 (ICPSR 38368)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Poll # 2007-PRIOR1: Priorities 1--Public Health, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Rating of nation's system for protecting the public from health threats/preventing illness
  • Diseases/health conditions posing the greatest threat to the public
  • Most important diseases/health conditions for the government to address
  • Community quality of life
  • Rating of aspects of life in community
  • Community problems
  • Community health conditions
  • Importance of suggested actions to improve nation's health

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092326]. Frequencies and summary statistics for the 113 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated

Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2007-PRIOR2: Priorities 2--Medical Care, United States, 2007 (ICPSR 38369)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Poll # 2007-PRIOR2: Priorities 2--Medical Care, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Rating of nation's system for providing medical care
  • Problems with the nation's medical care system
  • Top problems with the nation's medical care system for the government address
  • Favor/oppose national health insurance financed by tax money
  • Medical care received
  • Problems paying medical bills
  • Unsought medical care
  • Access to most modern medical technologies/treatments
  • Availability of high quality medical care in community
  • Access to high quality medical care
  • Health insurance coverage
  • Cost of health insurance

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092327]. Frequencies and summary statistics for the 100 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated

Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2008-PRIOR1: Health Priorities 1--Americans' Views of the Medical Care System, United States, 2008 (ICPSR 38370)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Poll # 2008-PRIOR1: Health Priorities 1--Americans' Views of the Medical Care System, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Nation's system to protect against health threats
  • United States health care system
  • National health insurance
  • Respondent's personal medical care
  • Ability to afford medical bills
  • Local institutions
  • Personal information regarding respondent
  • Other codes

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092332]. Frequencies and summary statistics for the 131 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated

Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2008-PRIOR2: Health Priorities 2--Americans' Views on Public Health, United States, 2008 (ICPSR 38371)

Released/updated on: 2022-03-09
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Health Priorities 2--Americans' Views on Public Health, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by International Communications Research (ICR). Topics covered in this survey include:

  • National systems to protect against health threats
  • Greatest threats to the public
  • Problems facing families
  • Local communities and problems facing them
  • Suggestions to improve the country's health
  • Respondent's personal and demographic information
  • Other codes

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092333]. Frequencies and summary statistics for the 148 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated

Harvard School of Public Health/Robert Wood Johnson Foundation Poll: Health Priorities Survey 1--The Medical System and The Uninsured, United States, 2009 (ICPSR 38372)

Released/updated on: 2022-03-09
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Health Priorities Survey 1--The Medical System and The Uninsured, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by International Communications Research (ICR). Topics covered in this survey include:

  • Quality of medical care
  • Health care system problem severity
  • Problems paying medical bills
  • Health insurance
  • Personal health

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092335]. Frequencies and summary statistics for the 82 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated

Harvard School of Public Health/Robert Wood Johnson Foundation -- Subethnicities Survey, United States, 2006 (ICPSR 38358)

Released/updated on: 2022-03-08
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of the Subethnicities Survey, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Family heritage
  • Country born
  • Healthcare system in U.S.
  • Healthcare experiences
  • Public health in the U.S.
  • Avian or Bird Flu
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092311]. Frequencies and summary statistics for the 55 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Curated

Harvard School of Public Health/Robert Wood Johnson Foundation -- Subethnicities Survey, United States, 2007 (ICPSR 38367)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of the Subethnicities Survey, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:

  • Family heritage
  • Country born
  • Childhood obesity
  • Quality of healthcare system in the United States
  • Visit of emergency room
  • Prescription

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092323]. Frequencies and summary statistics for the 172 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated

Harvard University's School of Public Health/Robert Wood Johnson Foundation: Health and Health Care Priorities Survey, United States, 2001 (ICPSR 38337)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Health and Health Care Priorities, a survey by Harvard School of Public Health/Robert Wood Johnson Foundation conducted by ICR Survey Research Group. Topics covered in this survey include:

  • Important health problems
  • Satisfaction with state of nation
  • Severity of health issues
  • Organizations that improve health care
  • Important laws to pass
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092255]. Frequencies and summary statistics for the 92 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Curated

Health Insurance Coverage Survey, United States, 2001 (ICPSR 38338)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Health Insurance Coverage Survey, a survey by Harvard School of Public Health/Robert Wood Johnson Foundation conducted by ICR Survey Research Group. Topics covered in this survey include:

  • Important Health Problems
  • Satisfaction
  • Important Health Issues
  • Uninsured
  • Health Plans
  • Financial Consequences
  • News and Consequences
  • News
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092256]. Frequencies and summary statistics for the 190 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Curated

Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988 (ICPSR 9795)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1985-01-01--1988-01-01
The Infant Health and Development Program was a collaborative, randomized, longitudinal, multisite clinical trial designed to evaluate the efficacy of comprehensive early intervention in reducing the developmental and health problems of low birth weight, premature infants. An intensive intervention extending from hospital discharge to 36 months corrected age was administered between 1985 and 1988 at eight different sites. The study sample of infants was stratified by birth weight (2,000 grams or less, 2,001-2,500 grams) and randomized to the Intervention Group or the Follow-Up Group. The Intervention Group received home visits, attendance at a special child development center, and pediatric follow-up. The Follow-Up Group received only the pediatric follow-up component of the program. Measures of cognitive development, behavioral status, health status, and other variables were collected from both groups at predetermined time points. Cognitive development was assessed by the Stanford-Binet Intelligence Scale, the Bayley Mental and Motor Scales, the Peabody Picture Vocabulary Test--Revised, and the Beery-Buktenica Developmental Test of Visual Motor Integration. Behavior problems were measured using the Richman-Graham Behavior Checklist and Achenbach's Child Behavior Checklist. Health status was evaluated through the dimensions of morbidity (defined as the presence or absence of health conditions), functional status (defined by limitations in activities of daily living due to health problems), changes in physical growth, and maternal perception of the child's health. The many other variables and indices in the data collection include site, pregnancy complications, child's birth weight and gestation age, birth order, child's gender, household composition, day care arrangements, source of health care, quality of the home environment, parents' race and ethnicity, and maternal age, education, IQ, and employment.
Curated
Partially restricted
Simple Crosstabs

Massachusetts Health Reform Survey, 2018 (ICPSR 37411)

Released/updated on: 2019-10-24
Geographic coverage: Massachusetts
Time period: 2018-02-05--2018-05-03
In April 2006, Massachusetts passed a comprehensive health care reform bill entitled An Act Providing Access To Affordable, Quality, Accountable Health Care (Chapter 58 of the Acts of 2006), that sought to move the state to near universal coverage. In order to track the impacts of Chapter 58, the Blue Cross Blue Shield of Massachusetts Foundation began funding an annual telephone survey of nonelderly adults in the Commonwealth in fall 2006, just prior to the implementation of key elements of the law. That survey, called the Massachusetts Health Reform Survey (MHRS), was fielded in the fall of 2006-2010, 2012, 2013, 2015, and 2018. This data collection comprises data from the 2018 round of the Massachusetts Health Reform Survey (MHRS). Topics covered by the survey include health insurance status; specific types of health insurance coverage held by the survey respondents; insurance premiums and covered services for those with insurance; access to and use of health care; out-of-pocket health care costs and medical debt; health and disability status; mental health and substance use disorders. Demographic variables include income, race, and employment status.
Curated

National Comorbidity Survey: Adolescent Supplement (NCS-A), [United States], 2001-2004 (ICPSR 28581)

Released/updated on: 2023-11-16
Geographic coverage: United States
Time period: 2001-02-01--2004-01-01

The National Comorbidity Survey Replication Adolescent Supplement (NCS-A) was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders in the child and adolescent years of life among adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders.

The core NCS-A interview schedule was an adaptation of the World Health Organization Composite International Diagnostic Interview (CIDI). NCS-A also administered the non-verbal subtest (Matrices subtest) of the Kaufman Brief Intelligence Test (K-BIT).

In addition to interviewing adolescents, information was collected from a parent or a parent surrogate to obtain an additional perspective on the adolescent's mental health and its correlates. Information from parents focused on the five adolescent disorders for which previous methodological research has most consistently shown that parental reports are important for making diagnoses: attention-deficit/hyperactivity disorder, conduct disorder, oppositional defiant disorder, major depressive episode, and dysthymic disorder.

Demographic information collected by NCS-A includes age, citizenship status, country of birth, criminal history, ethnicity, grandparents' country of birth, language(s) spoken in the home, parents' country of birth, race, religion, and sex.

The data collection contains six data files: (1) data for the adolescent household and school respondents; (2) data for the parents who responded to the long self-administered questionnaire; (3) data for the parents who responded to both the long self-administered questionnaire and short telephone interview; (4) diagnostic variables derived from the data collected from the adolescents and parents; (5) K-BIT scores normed to the NCS-A adolescent sample; and (6) raw K-BIT data.

Curated

National Comorbidity Survey: Baseline (NCS-1), 1990-1992 (ICPSR 6693)

Released/updated on: 2008-09-12
Geographic coverage: United States
Time period: 1990-01-01--1992-01-01
The National Comorbidity Survey: Baseline (NCS-1) was a collaborative epidemiologic investigation designed to study the prevalence and correlates of DSM III-R disorders and patterns and correlates of service utilization for these disorders. The NCS-1 was the first survey to administer a structured psychiatric interview to a nationally representative sample. The survey was carried out in the early 1990s with a household sample of over 8,000 respondents. Subsamples of the original respondents completed the NCS-1 Part II survey and Tobacco Use Supplement. Diagnoses were based on a modified version of the Composite International Diagnostic Interview (the UM-CIDI), which was developed at the University of Michigan for the NCS-1. Drugs covered by this survey include alcohol, tobacco, sedatives, stimulants, tranquilizers, analgesics, inhalants, marijuana/hashish, cocaine, hallucinogens, heroin, nonmedical use of prescription drugs, and polysubstance use. Other items include demographic characteristics, personal and family history of substance use and abuse, substance abuse treatment, data on drug use including recency, frequency, and age at first use, problems resulting from the use of drugs, personal and family history of psychiatric problems, mental health treatment, symptoms of psychiatric disorders, mental health status, HIV risk behaviors, and physical health status.
Curated

National Comorbidity Survey: Baseline (NCS-1), 1990-1992 (Restricted Version) (ICPSR 25381)

Released/updated on: 2023-11-06
Geographic coverage: United States
Time period: 1990-01-01--1992-01-01
The National Comorbidity Survey: Baseline (NCS-1) is a collaborative epidemiologic investigation designed to study the prevalence and patterns of disorders in the third and revised edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM III-R) as well as correlates of service utilization for these disorders. The NCS-1 was the first survey to administer a structured psychiatric interview to a nationally representative sample and was carried out in the early 1990s with a household sample of over 8,000 respondents. Diagnoses were based on a modified version of the Composite International Diagnostic Interview (the UM-CIDI), which was developed at the University of Michigan for the NCS-1. This restricted-use data collection contains the following geographic variables that can be linked to the public-use version of the data using the CASEID variable: Census State FIPS codes, Census County FIPS codes, Census 5-Digit County-State FIPS codes, and Census 11-Digit State-County-Tract FIPS codes. However, in order to help preserve the confidentiality of the data the frequency tables in the codebook have been suppressed.
Curated
Simple Crosstabs

National Comorbidity Survey: Reinterview (NCS-2), 2001-2002 (ICPSR 35067)

Released/updated on: 2015-03-31
Geographic coverage: United States
Time period: 2001-01-01--2002-01-01

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains three major sections: the main survey, demographic data, and diagnostic data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The middle section contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The last section of the collection focused on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

Curated

National Comorbidity Survey: Reinterview (NCS-2), 2001-2002 [Restricted-Use] (ICPSR 30921)

Released/updated on: 2024-03-04
Geographic coverage: United States
Time period: 2001-01-01--2002-01-01

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains four major sections: the main survey, demographic data, diagnostic data, and state, county, and tract FIPS data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The second part contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The third part focuses on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

The fourth part contains respondents' state, county, and tract FIPS data.

Curated
Partially restricted

National Evaluation of the Fighting Back Program: General Population Surveys, 1995-1999 (ICPSR 3801)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1995-01-01--1999-01-01
This study was designed as part of a multi-method assessment of Fighting Back, a community-based drug abuse prevention program funded by the Robert Wood Johnson Foundation. Fighting Back was implemented in 14 medium-sized, primarily urban communities in 12 states. To assess whether the Fighting Back program led to changes in alcohol and other drug (AOD) patterns and attitudes, the evaluation conducted general population surveys of residents aged 16-44 in 12 Fighting Back program communities and 29 comparison communities. Conducted in three waves -- 1995, 1997, and 1999 -- these surveys constitute the Community Survey (Part 1). To provide comparative national trend data, the National Survey (Part 2) was administered, concurrently with the second and third waves, to a national sample of the non-rural general population aged 16-44 using the same survey instrument as the Community Survey. The strategy for question design was to replicate previously validated questions from national surveys of substance use and dependency, including the National Household Survey of Drug Abuse, the National Comorbidity Study, and the Monitoring the Future study of American youth. Respondents reported their AOD use, their friends' AOD use, their attitudes about AOD use, how their friends felt about AOD use, and their perceptions of drug sales, crime, and other aspects of their neighborhood. In addition, the surveys collected information on volunteerism, crime victimization, health and mental health, knowledge and utilization of AOD treatment services, attendance in drug education courses or lectures in school, and opinions on marijuana legalization. Background variables include sex, race, Hispanic origin, household composition, marital/cohabitation status, education status and achievement, employment status, occupation, religious preference, religiosity, and income.
Curated

National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: African Americans' Lives Today, United States, 2013 (ICPSR 38379)

Released/updated on: 2022-03-09
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of African Americans' Lives Today, a survey from National Public Radio, the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Satisfaction with life and environment
  • Life improvements
  • Satisfaction with living area
  • Living area improvements
  • Most important local issue
  • Other black people in area
  • Amount of black friends
  • Economic class
  • Rating various public institutions
  • Rating quality of various resources
  • Amount of discrimination
  • Reason for discrimination
  • Personal financial situation
  • Economic class growing up
  • Achieving American dream
  • Better off than parents
  • Importance of religion
  • Making decisions about children
  • Child schooling
  • Rating child's school
  • Black children in school
  • Desired level of child's education
  • Seeking long-term relationship
  • Desire to marry
  • Satisfaction with dating opportunities
  • Race of romantic dates
  • Looking for work
  • Career success
  • Unemployment concerns
  • Health insurance and healthcare
  • Access to care
  • Medical expenses
  • Quality of doctors
  • Health and wellness
  • Social and family life

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092356]. Frequencies and summary statistics for the 204 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated

National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Latinos' Lives and Health Today, United States, 2013 (ICPSR 38380)

Released/updated on: 2022-03-09
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Latinos' Lives and Health Today, a survey from National Public Radio, the Harvard School of Public Health, and the Robert Wood Johnson Foundation, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Satisfaction with life
  • Satisfaction with living area
  • Most important local issue
  • Other Hispanic people in living area
  • Rating aspects of life
  • Personal discrimination in past twelve months
  • Personal finances
  • Achieving American dream
  • Economic class
  • Better off than parents
  • Opportunities for children
  • Language spoken at home
  • Looking for job
  • Concerns about unemployment
  • Biggest health problem in family
  • Description of weight
  • Trying to lose weight
  • Medical care in past twelve months
  • Problems with medical care access
  • Confidence in ability to pay for major illness
  • Health care facility used
  • Health care professionals speaking Spanish
  • Receiving poor medical care
  • Health insurance coverage
  • Personal health rating
  • Frequency of exercise
  • Country born in
  • Age came to United States
  • Parents' birth country
  • Reasons for coming to US
  • Comparing birth country to US
  • Diet as more or less healthy in US.
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092358]. Frequencies and summary statistics for the 184 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Curated

National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Sick in America, United States, 2012 (ICPSR 38378)

Released/updated on: 2022-03-09
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Sick in America, a survey from National Public Radio, the Robert Wood Johnson Foundation, and the Harvard School of Public Health, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Quality of health care
  • Health care costs as problem
  • Reasons for health care quality problems
  • Focus of doctor visits
  • Reasons for rising health care costs
  • Health care as good value
  • Agreement with doctor statements
  • Amount of doctors
  • Doctor visits for check-up
  • Personal insurance coverage
  • Uninsured
  • Overnight hospital stays
  • Satisfaction with hospital medical care
  • Medical care costs as reasonable
  • Description of hospital stays
  • Serious illness
  • Interactions with medical professionals
  • Impact of medical care costs on family
  • Receiving care every time it's needed
  • Being turned away for health care
  • Insurance premiums as financial problem
  • Out of pocket medical costs
  • Negotiating lower charges
  • Problems paying for insurance
  • Changing regular doctor
  • Personal financial situation

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092354]. Frequencies and summary statistics for the 159 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated

National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Sports and Health in America, United States, 2015 (ICPSR 38385)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of the 2015 poll Sports and Health in America, a survey from National Public Radio/Robert Wood Johnson Foundation/Harvard T.H. Chan School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Sports participation in past year
  • Exercise in the past year
  • Importance of sport/exercise
  • Effects of sport/exercise
  • Future sport/exercise participation
  • Reasons for not participating in sport/exercise
  • Sports participation in school
  • Desire for child sports participation
  • Desire to be professional athlete
  • Stopped playing sports
  • Reasons for current sports participation
  • Child health
  • Child sports participation
  • Sports participation with child
  • Effects of child sports participation
  • Hope for child to be professional athlete
  • Child exercise
  • Obstacles to child sports participation
  • Personal health
  • Sport/exercise injuries
  • Hours of TV

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31095185]. Frequencies and summary statistics for the 191 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated

National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: The Burden of Stress in America, United States, 2014 (ICPSR 38383)

Released/updated on: 2022-03-10
Geographic coverage: United States

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of the 2014 poll The Burden of Stress in America, a survey from National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Stress experienced in past month
  • Impact of stress on life aspects
  • Stress affecting health
  • Stress affecting family and household
  • Stress affecting friendships
  • Stress affecting work
  • Stress affecting community involvement
  • Responses to stress
  • Time to relax in past month
  • Causes of stress
  • Concern about various problems
  • Daily events contributing to stress
  • Reasons for not experiencing stress
  • Stress experienced in past year
  • Most stressful event in past year
  • Things done to reduce stress
  • People advising stress reduction methods
  • Stress level changes in last few years
  • Stress contributing to major life problems
  • Stress contributing to future problems
  • Stress having positive effect
  • Control over stress
  • Effect of stress on other people

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092361]. Frequencies and summary statistics for the 410 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

Curated

National Survey of Access to Health Care, 1986 (ICPSR 8981)

Released/updated on: 1999-02-03
Geographic coverage: United States
This survey, which was sponsored by the Robert Wood Johnson Foundation, assessed Americans' access to health care, use of medical services, and problems encountered in obtaining health care. The data contain variables on the interviewees' personal background, utilization of medical, dental, and mental health services, and experiences in obtaining care.
Curated

National Survey of America's Families (NSAF), 1997 (ICPSR 4581)

Released/updated on: 2007-10-04
Geographic coverage: United States
Time period: 1997-01-01--1997-11-01

The National Survey of America's Families (NSAF) is a household survey that provides a comprehensive look at quantitative measures of the well-being of children, adults, and their families. While the focus of the survey is at the state level, the scope is national -- with a primary emphasis on low-income families. NSAF information was gathered from interviews conducted with the Most Knowledgeable Adult (MKA), the person in the household who was most knowledgeable about the questions being asked about the respondent, their spouse/partner (if applicable) and the focal child (or children). Data were collected from more than 40,000 families in two stages. First, a screener interview was administered to determine whether a household was eligible to complete the second, extended interview.

Two types of extended interviews were administered. Option A interviews were used in households with children under age 18. Option B interviews were used in childless adult households and also with emancipated minors. The extended interview was divided into several sections and is labeled A through P below:

  • A. Student Status. This section contained two questions that asked whether the respondent was a student and whether that household was the respondent's usual residence.

  • B. Health Status and Satisfaction. These questions asked about the respondent's satisfaction with health care, access to health care, the health status of the focal children, and the health status of the respondent.

  • C. Parent/Child/Family Interaction and Education. This series of questions asked about education for focal children. Questions addressed the focal child's current grade (or the last grade completed) and the child's attitudes toward school and schoolwork, skipping school, suspensions, and changing schools. Questions were also asked about children over 11 years old working for pay and attending summer school.

  • D. Household Roster. In this section, the name, age, and sex of all persons living in the household were recorded, and relationships between all household members were investigated.

  • E. Health Care Coverage. Information was gathered about current health insurance coverage for the respondent, the respondent's spouse/partner, and the focal children. Questions were also asked about characteristics of that coverage and of periods in which family members had no insurance coverage.

  • F. Health Care Use and Access. This section gathered information about health status, health care services received, and necessary health care services that were postponed during the preceding 12 months. Questions on routine care, overnight stays in hospitals, dental care, mental health care, women's health care, well-child care, and prescription medicines were also included.

  • G. Child Care. In this section, respondents were queried as to child care arrangements including Head Start, child care centers, before- or after-school care, and babysitters. Questions were asked about the total number of hours per week in each care situation, the typical number of children cared for, the typical number of adult child care providers, and child care costs.

  • H. Nonresidential Parent/Father. These questions determined whether a focal child had a nonresident parent, how often the child saw his/her nonresident parent, whether the nonresident parent provided financial support, and whether nonresident parents were required by child support orders to provide financial support.

  • I. Employment and Earnings. This section contained a series of questions about the employment and earnings of the respondent and the spouse/partnerfor the current and preceding year. Topics included employment status, occupation, industry, employer-provided health insurance, hours worked, and earnings. Some questions were also asked about the earnings of other family members.

  • J. Family Income. Family income also was identified from a wide variety of sources other than earnings from employment. These sources included public assistance (e.g., Aid to Families with Dependent Children [AFDC], General Assistance, Emergency Assistance, or vouchers), Food Stamps, child support, foster care payments, financial assistance from friends or relatives, unemployment compensation, workers' compensation or veterans' payments, Supplemental Security Income, Social Security, pension or annuity income, interest or dividend income, income from rental property, or any other income source.

  • K. Welfare Program Participation. This section gathered detailed information about AFDC and Food Stamp benefits that the respondent might have received within the preceding two years. For both types of assistance, periods in which the respondent's benefits were reduced or eliminated were identified, as were strategies for coping during such times. Current AFDC or Food Stamp recipients were asked about any requirements they had to fulfill (e.g., job search, training, etc.) in order to receive these benefits. Recipients were also asked questions about awareness of time limits and experiences with diversion. For respondents with children, questions were asked about benefits received in the previous year through the supplemental food program for Women, Infants, and Children (WIC) and free or reduced-cost school breakfast and lunch programs.

  • L. Education and Training. This series of questions inquired about the highest grade completed, highest degree earned, participation in job training programs during the previous year, and classes taken for credit during the previous year.

  • M. Housing and Economic Hardship. Questions covered the respondent's living arrangements, the name(s) of the lease- or mortgage- holder(s) in the household, and the amount of rent or mortgage paid monthly. Information was collected about financial contributions by the respondent or his/her spouse or partner to children under 18 years old living outside the household. The effect of economic hardship on the family's food consumption and ability to pay for housing costs was also assessed.

  • N. Issues, Problems, and Social Services. Questions in this section covered the respondent's state of mind, feelings about his or her child (or children), constructive activities the child (or children) might have been involved with, the availability of social services in their community, problems the child (or children) might have had in the preceding year and efforts to obtain help for those problems, and the respondent's involvement in volunteer and religious activities.

  • O. Race, Ethnicity, and Nativity. Race and ethnicity were asked for the respondent, the spouse/partner, and the focal child (or children). For household members who were born outside the United States, country of origin and citizenship questions were asked.

  • P. Closing. At the end of the survey, respondents were asked their opinions about welfare and working and about raising children. Closing questions asked for the respondent's ZIP code and, in households with foreign-born individuals, tracing information for use in a follow-up survey.

The 1997 NSAF data are available in nine parts and are organized into hierarchical, flat household-, family-, person-, adult-, and child-level files. A description of each is provided below:

  1. Focal Child Data. This dataset contains data elements from the extended interview that are specific to focal children (FC1 and FC2). Select data items that were asked only of MKAs are also included. Information in this dataset is primarily from sections N (Issues, Problems, and Social Services) and P (Closing) of the extended interview. The dataset contains one record for each focal child.

  2. Adult Pair Data. Included in this dataset is information collected from the extended interview about both the respondent and the respondent's spouse/partner. There is one observation per respondent and one per spouse (where applicable). Information in this dataset is primarily from sections I (Employment and Earnings) and L (Education and Training) of the extended interview.

  3. Random Adult Data. Information in this person-level dataset is specific to a randomly selected adult, either the respondent or the spouse/partner. This situation occurs only in sections E (Health Insurance Coverage) and F (Health Care Access and Utilization) of the extended interview.

  4. Childless Adult Data. This dataset contains data elements from the extended interview that are asked only of the respondent in Option B interviews. Variables in this dataset come mainly from section N (Issue, Problems, and Social Services) and P (Closing). There is one record per Option B interview in the dataset.

  5. Family-Respondent Data. Information in this dataset centers around information about the family's use of health care and social services. This family-level dataset contains one observation per respondent. Because there could be more than one respondent per family, family-respondent level variables may have different values within a single family.

  6. Household Data. This household-level dataset contains general information about the household such as the demographic characteristics of its members. Also contained in this dataset are administrative and process data such as housing subsidies, public housing, the number of bedrooms in the house, whether the home was owned or rented, and information pertaining to screeners and the completion of interviews.

  7. Person Data. This dataset contains one observation for each person living in the household. Included in this dataset is demographic information as well as information on current health insurance status and income.

  8. Social Family Data. Included in this dataset are items asked about the social family and variables aggregated at the social family level. The social family includes not only married partners and their children, but also unmarried partners, all of their children, and members of the extended family (anyone related by blood to the MKA, the spouse/partner, or their children). Among the survey items included are those variables indicating whether anyone in the social family had a particular type of income and health insurance. Also included are variables summarizing information across all members of a social family, such as the number of family members. There is one record for each social family.

  9. CPS Family Data. Since the social family definition was used in fielding the NSAF, this dataset includes only variables created using the Current Population Survey (CPS) definition of family. A CPS family includes the householder, spouse of family householder, children in the family, and other relatives of the family household respondent. There is one record for each CPS family in this dataset.

Curated

National Survey of America's Families (NSAF), 1999 (ICPSR 3927)

Released/updated on: 2007-10-03
Geographic coverage: United States
Time period: 1999-02-01--1999-10-01

The National Survey of America's Families (NSAF) is a household survey that provides a comprehensive look at quantitative measures of the well-being of children, adults, and their families. While the focus of the survey is at the state level, the scope is national -- with a primary emphasis on low-income families. NSAF information was gathered from interviews conducted with the Most Knowledgeable Adult (MKA), the person in the household who was most knowledgeable about the questions being asked about the respondent, their spouse/partner (if applicable) and the focal child (or children). Data were collected from more than 40,000 families in two stages. First, a screener interview was administered to determine whether a household was eligible to complete the second, extended interview.

Two types of extended interviews were administered. Option A interviews were used in households with children under age 18. Option B interviews were used in childless adult households and also with emancipated minors. The extended interview was divided into several sections and is labeled A through P below:

  • A. Student Status. This section contained two questions that asked whether the respondent was a student and whether that household was the respondent's usual residence.

  • B. Health Status and Satisfaction. These questions asked about the respondent's satisfaction with health care, access to health care, the health status of the focal children, and the health status of the respondent. It also covered questions about the respondent's awareness of specific insurance programs such as Medicaid, and those associated with the Children's Health Insurance Program (CHIP).

  • C. Parent/Child/Family Interaction and Education. This series of questions asked about education for focal children. Questions addressed the focal child's current grade (or the last grade completed) and the child's attitudes toward school and schoolwork, skipping school, suspensions, and changing schools. Questions were also asked about children over 11 years old working for pay and attending summer school.

  • D. Household Roster. In this section, the name, age, and sex of all persons living in the household were recorded, and relationships between all household members were investigated.

  • E. Health Care Coverage. Information was gathered about current health insurance coverage for the respondent, the respondent's spouse/partner, and the focal children. Questions were also asked about characteristics of that coverage and of periods in which family members had no insurance coverage.

  • F. Health Care Use and Access. This section gathered information about health status, health care services received, and necessary health care services that were postponed during the preceding 12 months. Questions on routine care, overnight stays in hospitals, dental care, mental health care, women's health care, well-child care, and prescription medicines were also included.

  • G. Child Care. In this section, respondents were queried as to child care arrangements including Head Start, child care centers, before- or after-school care, and babysitters. Questions were asked about the total number of hours per week in each care situation, the typical number of children cared for, the typical number of adult child care providers, and child care costs.

  • H. Nonresidential Parent/Father. These questions determined whether a focal child had a nonresident parent, how often the child saw his/her nonresident parent, whether the nonresident parent provided financial support, and whether nonresident parents were required by child support orders to provide financial support.

  • I. Employment and Earnings. This section contained a series of questions about the employment and earnings of the respondent and the spouse/partner for the current and preceding year. Topics included employment status, occupation, industry, employer-provided health insurance, hours worked, and earnings. Some questions were also asked about the earnings of other family members.

  • J. Family Income. Family income also was identified from a wide variety of sources other than earnings from employment. These sources included public assistance (e.g., Temporary Assistance for Needy Families [TANF], General Assistance, Emergency Assistance, vouchers), Food Stamps, child support, foster care payments, financial assistance from friends or relatives, unemployment compensation, workers' compensation or veterans' payments, Supplemental Security Income, Social Security, pension or annuity income, interest or dividend income, income from rental property, or any other income source.

  • K. Welfare Program Participation. This section gathered detailed information about TANF and Food Stamp benefits that the respondent might have received within the preceding two years. For both types of assistance, periods in which the respondent's benefits were reduced or eliminated were identified, as were strategies for coping during such times. Current TANF or Food Stamp recipients were asked about any requirements they had to fulfill (e.g., job search, training, etc.) in order to receive these benefits. Recipients were also asked questions about awareness of time limits and experiences with diversion. For respondents with children, questions were asked about benefits received in the previous year through the supplemental food program for Women, Infants, and Children (WIC) and free or reduced-cost school breakfast and lunch programs. Additional questions were asked about respondent experiences in obtaining government assistance for child care and health insurance through Medicaid and CHIP, and receipt and/or the use of the Earned Income Tax Credit (EITC) in 1998.

  • L. Education and Training. This series of questions inquired about the highest grade completed, highest degree earned, participation in job training programs during the previous year, and classes taken for credit during the previous year.

  • M. Housing and Economic Hardship. Questions covered the respondent's living arrangements, the name(s) of the lease- or mortgage- holder(s) in the household, and the amount of rent or mortgage paid monthly. Information was collected about financial contributions by the respondent or his/her spouse or partner to children under 18 years old living outside the household. The effect of economic hardship on the family's food consumption and ability to pay for housing costs was also assessed.

  • N. Issues, Problems, and Social Services. Questions in this section covered the respondent's state of mind, feelings about his or her child (or children), constructive activities the child (or children) might have been involved with, the availability of social services in their community, problems the child (or children) might have had in the preceding year and efforts to obtain help for those problems, and the respondent's involvement in volunteer and religious activities.

  • O. Race, Ethnicity, and Nativity. Race and ethnicity were asked for the respondent, the spouse/partner, and the focal children. For household members who were born outside the United States, country of origin and citizenship questions were asked.

  • P. Closing. At the end of the survey, respondent's were asked their opinions about welfare and working and about raising children.The respondent's ZIP code and address were requested and tracing information was asked of households with families receiving welfare at any time since January 1997, for possible use in a follow-up survey.

The 1999 NSAF data are available in nine parts and are organized into hierarchical, flat household-, family-, person-, adult-, and child-level files. A description of each is provided below:

  1. Focal Child Data. This dataset contains data elements from the extended interview that are specific to focal children (FC1 and FC2). Select data items that were asked only of MKAs are also included. Information in this dataset is primarily from sections N (Issues, Problems, and Social Services) and P (Closing) of the extended interview. The dataset contains one record for each focal child.

  2. Adult Pair Data. Included in this dataset is information collected from the extended interview about both the respondent and the respondent's spouse/partner. There is one observation per respondent and one per spouse (where applicable). Information in this dataset is primarily from sections I (Employment and Earnings) and L (Education and Training) of the extended interview.

  3. Random Adult Data. Information in this person-level dataset is specific to a randomly selected adult, either the respondent or the spouse/partner. This situation occurs only in sections E (Health Insurance Coverage) and F (Health Care Access and Utilization) of the extended interview.

  4. Childless Adult Data. This dataset contains data elements from the extended interview that are asked only of the respondent in Option B interviews. Variables in this dataset come mainly from section N (Issue, Problems, and Social Services) and P (Closing). There is one record per Option B interview in the dataset.

  5. Family-Respondent Data. Information in this dataset centers around information about the family's use of health care and social services. This family-level dataset contains one observation per respondent. Because there could be more than one respondent per family, family-respondent level variables may have different values within a single family.

  6. Household Data. This household-level dataset contains general information about the household such as the demographic characteristics of its members. Also contained in this dataset is administrative and process data such as housing subsidies, public housing, the number of bedrooms in the house, if the home was owned or rented, and information pertaining to screeners and the completion of interviews.

  7. Person Data. This dataset contains one observation for each person living in the household. Included in this dataset is demographic information as well as information on current health insurance status and income.

  8. Social Family Data. Included in this dataset are items asked about the social family and variables aggregated at the social family level. The social family includes not only married partners and their children, but also unmarried partners, all of their children, and members of the extended family (anyone related by blood to the MKA, the spouse/partner, or their children). Among the survey items included are those variables indicating whether anyone in the social family had a particular type of income and health insurance. Also included are variables summarizing information across all members of a social family, such as the number of family members. There is one record for each social family.

  9. CPS Family Data. Since the social family definition was used in fielding the NSAF, this dataset includes only variables created using the Current Population Survey (CPS) definition of family. A CPS family includes the householder, spouse of family householder,children in the family, and other relatives of the family household respondent. There is one record for each CPS family in this dataset.

Curated

National Survey of America's Families (NSAF), 2002 (ICPSR 4582)

Released/updated on: 2007-10-03
Geographic coverage: United States
Time period: 2002-02-01--2002-10-01

The National Survey of America's Families (NSAF) is a household survey that provides a comprehensive look at quantitative measures of the well-being of children, adults, and their families. While the focus of the survey is at the state level, the scope is national -- with a primary emphasis on low-income families. NSAF information was gathered from interviews conducted with the Most Knowledgeable Adult (MKA), the person in the household who was most knowledgeable about the questions being asked about the respondent, their spouse/partner (if applicable) and the focal child (or children). Data were collected from more than 40,000 families in two stages. First, a screener interview was administered to determine whether a household was eligible to complete the second, extended interview.

Two types of extended interviews were administered. Option A interviews were used in households with children under age 18. Option B interviews were used in childless adult households and also with emancipated minors. The extended interview was divided into several sections and is labeled A through P below:

  • A. Student Status. This section contained two questions that asked whether the respondent was a student and whether that household was the respondent's usual residence.

  • B. Health Status and Satisfaction. These questions asked about the respondent's satisfaction with health care, access to health care, the health status of the focal children, and the health status of the respondent. It also covered questions about the respondent's awareness of specific insurance programs such as Medicaid, and those associated with the Children's Health Insurance Program (CHIP).

  • C. Parent/Child/Family Interaction and Education. This series of questions asked about education for focal children. Questions addressed the focal child's current grade (or the last grade completed) and the child's attitudes toward school and schoolwork, skipping school, suspensions, and changing schools. Questions were also asked about children over 11 years old working for pay and attending summer school.

  • D. Household Roster. In this section, the name, age, and sex of all persons living in the household were recorded, and relationships between all household members were investigated.

  • E. Health Care Coverage. Information was gathered about current health insurance coverage for the respondent, the respondent's spouse/partner, and the focal children. Questions were also asked about characteristics of that coverage and of periods in which family members had no insurance coverage.

  • F. Health Care Use and Access. This section gathered information about health status, health care services received, and necessary health care services that were postponed during the preceding 12 months. Questions on routine care, overnight stays in hospitals, dental care, mental health care, women's health care, well-child care, and prescription medicines were also included.

  • G. Child Care. In this section, respondents were queried as to child care arrangements including Head Start, child care centers, before- or after-school care, and babysitters. Questions were asked about the total number of hours per week in each care situation, the typical number of children cared for, the typical number of adult child care providers, and child care costs.

  • H. Nonresidential Parent/Father. These questions determined whether a focal child had a nonresident parent, how often the child saw his/her nonresident parent, whether the nonresident parent provided financial support, and whether nonresident parents were required by child support orders to provide financial support.

  • I. Employment and Earnings. This section contained a series of questions about the employment and earnings of the respondent and the spouse/partner for the current and preceding year. Topics included employment status, occupation, industry, employer-provided health insurance, hours worked, and earnings. Some questions were also asked about the earnings of other family members.

  • J. Family Income. Family income was also identified from a wide variety of sources other than earnings from employment. These sources included public assistance (e.g., Temporary Assistance for Needy Families [TANF], General Assistance, Emergency Assistance, or vouchers), Food Stamps, child support, foster care payments, financial assistance from friends or relatives, unemployment compensation, workers' compensation or veterans' payments, Supplemental Security Income, Social Security, pension or annuity income, interest or dividend income, income from rental property, or any other income source.

  • K. Welfare Program Participation. This section gathered detailed information about TANF and Food Stamp benefits that the respondent might have received within the preceding two years. For both types of assistance, periods in which the respondent's benefits were reduced or eliminated were identified, as were strategies for coping during such times. Current TANF or Food Stamp recipients were asked about any requirements they had to fulfill (e.g., job search, training, etc.) in order to receive these benefits. Recipients were also asked questions about awareness of time limits and experiences with diversion. For respondents with children, questions were asked about benefits received in the previous year through the supplemental food program for Women, Infants, and Children (WIC) and free or reduced-cost school breakfast and lunch programs. Additional questions were asked about respondent experiences in obtaining government assistance for child care and health insurance through Medicaid and CHIP, and receipt and/or the use of the Earned Income Tax Credit (EITC) in any year between 1999 and 2002.

  • L. Education and Training. This series of questions inquired about the highest grade completed, highest degree earned, participation in job training programs during the previous year, and classes taken for credit during the previous year.

  • M. Housing and Economic Hardship. Questions covered the respondent's living arrangements, the name(s) of the lease- or mortgage- holder(s) in the household, and the amount of rent or mortgage paid monthly. Information was collected about financial contributions by the respondent or his/her spouse or partner to children under 18 years old living outside the household. The effect of economic hardship on the family's food consumption and ability to pay for housing costs was also assessed.

  • N. Issues, Problems, and Social Services. Questions in this section covered the respondent's state of mind, feelings about his or her child (or children), constructive activities the child (or children) might have been involved with, the availability of social services in their community, problems the child (or children) might have had in the preceding year and efforts to obtain help for those problems, and the respondent's involvement in volunteer and religious activities.

  • O. Race, Ethnicity, and Nativity. Race and ethnicity were asked for the respondent, the spouse/partner, and the focal child (or children). For household members who were born outside the United States, country of origin and citizenship questions were asked.

  • P. Closing. At the end of the survey, respondents were asked their opinions about welfare and working and about raising children. Respondents' ZIP code and address were also requested.

  • The 2002 NSAF data are available in nine parts and are organized into hierarchical, flat household-, family-, person-, adult-, and child-level files. A description of each is provided below:

    1. Focal Child Data. This dataset contains data elements from the extended interview that are specific to focal children (FC1 and FC2). Select data items that were asked only of MKAs are also included. Information in this dataset is primarily from sections N (Issues, Problems, and Social Services) and P (Closing) of the extended interview. The dataset contains one record for each focal child.

    2. Adult Pair Data. Included in this dataset is information collected from the extended interview about both the respondent and the respondent's spouse/partner. There is one observation per respondent and one per spouse (where applicable). Information in this dataset is primarily from sections I (Employment and Earnings) and L (Education and Training) of the extended interview.

    3. Random Adult Data. Information in this person-level dataset is specific to a randomly selected adult, either the respondent or the spouse/partner. This situation occurs only in sections E (Health Insurance Coverage) and F (Health Care Access and Utilization) of the extended interview.

    4. Childless Adult Data. This dataset contains data elements from the extended interview that are asked only of the respondent in Option B interviews. Variables in this dataset come mainly from section N (Issue, Problems, and Social Services) and P (Closing). There is one record per Option B interview in the dataset.

    5. Family-Respondent Data. Information in this dataset centers around information about the family's use of health care and social services. This family-level dataset contains one observation per respondent. Because there could be more than one respondent per family, family-respondent level variables may have different values within a single family.

    6. Household Data. This household-level dataset contains general information about the household such as the demographic characteristics of its members. Also contained in this dataset are administrative and process data such as housing subsidies, public housing, the number of bedrooms in the house, whether the home is owned or rented, and information pertaining to screeners and the completion of interviews.

    7. Person Data. This dataset contains one observation for each person living in the household. Included in this dataset is demographic information as well as information on current health insurance status and income.

    8. Social Family Data. Included in this dataset are items asked about the social family and variables aggregated at the social family level. The social family includes not only married partners and their children, but also unmarried partners, all of their children, and members of the extended family (anyone related by blood to the MKA, the spouse/partner, or their children). Among the survey items included are those variables indicating whether anyone in the social family had a particular type of income and health insurance. Also included are variables summarizing information across all members of a social family, such as the number of family members. There is one record for each social family.

    9. CPS Family Data. Since the social family definition was used in fielding the NSAF, this dataset includes only variables created using the Current Population Survey (CPS) definition of family. A CPS family includes the householder, spouse of family householder, children in the family, and other relatives of the family household respondent. There is one record for each CPS family in this dataset.

Curated

National Survey of Children: Wave I, 1976, Wave II, 1981, and Wave III, 1987 (ICPSR 8670)

Released/updated on: 1992-02-16
Geographic coverage: United States
The purpose of this study was to assess the physical, social, and psychological well-being of American children, to develop a national profile of the way children in the United States live, to permit analysis of the relationships between the conditions of children's lives and measures of child development, and to examine the effects of marital disruption on the development of children and on the operation of single and multi-parent families. Information is provided on the child's well-being, family, experiences with family disruption, behavior, physical health, and mental health.
Curated
Simple Crosstabs

Randomized Controlled Trial of a Novel Mindset Intervention for Depression and Immune Dysregulation, United States, 2022-2023 (ICPSR 39316)

Released/updated on: 2026-01-15
Geographic coverage: United States
People who live through large-scale societal catastrophes such as the COVID-19 pandemic are at a heightened risk of mental illness in the years afterward, but can also experience positive changes in their sense of meaning, personal relationships, and self-esteem, among other domains. The researchers propose that differences in these mental health trajectories may be partially influenced by individuals' mindsets about the long-term effects of living through catastrophes. To test this possibility, the researchers conducted a randomized controlled trial of a brief, psychologically-wise intervention designed to promote the mindset that "catastrophes can be opportunities in the long-term." A sample of 548 adults were randomized to either the mindset intervention condition or a control task.
Curated

Seattle Social Development Project, Waves 8-10, 1993-1999 (ICPSR 39043)

Released/updated on: 2024-04-09
Geographic coverage: Seattle, United States, Washington
Time period: 1993-01-01--1999-12-31
The Social Development Project (SSDP) is a prospective longitudinal study that has been in the field for over thirty years. Beginning in 1985, SSDP has followed a cohort of 808 individuals from childhood through adulthood. Within the cohort is nested a subset, who, in first grade, received an intervention that aimed to use the principals of the Social Development Model to develop pro-social behavior. Intervention effects into the thirties confirm that the original intervention has had positive effects on development and long-term health outcomes. The archived data are from waves 8, 9, and 10 of data collection, and were collected in years 1993, 1996, and 1999 respectively. In these years the cohort had an average age of 18, 21, and 24. Items included are measures of substance misuse, dependence, and addiction. Data for waves 9 and 10 are outcome and addiction variables only.
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