Developing the PROMIS-Preference Score for Monitoring Population Health Outcomes, United States, 2017 (ICPSR 37516)
This is a United States nationally representative survey of 4142 respondents age 18 and older from the National Opinion Research Center Amerispeak panel. The study survey includes self rated health, 4 summary measures of health, questions about chronic conditions, and questions about social determinants of health. Basic demographic information is included in this study regarding age, education, race/ethnicity, gender, household size, housing type, household income, marital status, and employment status.
The National Opinion Research Center also provided the latitude and longitude of the participant's household which were used to get census tract level information and scores from walkscore.com (walkability, transportation, and opportunity scores).
The Future of Families and Child Wellbeing Study (FFCWS), Public Use, United States, 1998-2024 (ICPSR 31622)
The Future of Families and Child Wellbeing Study (FFCWS, formerly known as the Fragile Families and Child Wellbeing Study) follows a cohort of nearly 5,000 children born in large, U.S. cities between 1998 and 2000. The study oversampled births to unmarried couples; and, when weighted, the data are representative of births in large U.S. cities at the turn of the century. The FFCWS was originally designed to address four questions of great interest to researchers and policy makers:
- What are the conditions and capabilities of unmarried parents, especially fathers?
- What is the nature of the relationships between unmarried parents?
- How do children born into these families fare?
- How do policies and environmental conditions affect families and children?
The FFCWS consists of interviews with mothers, fathers, and/or primary caregivers at birth and again when children are ages 1, 3, 5, 9, 15, and 22. The parent interviews collected information on attitudes, relationships, parenting behavior, demographic characteristics, health (mental and physical), economic and employment status, neighborhood characteristics, and program participation. Beginning at age 9, children were interviewed directly (either during the home visit or on the telephone). The direct child interviews collected data on family relationships, home routines, schools, peers, and physical and mental health, as well as health behaviors.
A collaborative study of the FFCWS, the In-Home Longitudinal Study of Pre-School Aged Children (In-Home Study) collected data from a subset of the FFCWS Core respondents at the Year 3 and 5 follow-ups to ask how parental resources in the form of parental presence or absence, time, and money influence children under the age of 5. The In-Home Study collected information on a variety of domains of the child's environment, including: the physical environment (quality of housing, nutrition and food security, health care, adequacy of clothing and supervision) and parenting (parental discipline, parental attachment, and cognitive stimulation). In addition, the In-Home Study also collected information on several important child outcomes, including anthropometrics, child behaviors, and cognitive ability. This information was collected through interviews with the child's primary caregiver, and direct observation of the child's home environment and the child's interactions with his or her caregiver.
Similar activities were conducted during the Year 9 follow-up. At the Year 15 follow-up, a condensed set of home visit activities were conducted with a subsample of approximately 1,000 teens. Teens who participated in the In-Home Study were also invited to participate in a Sleep Study and were asked to wear an accelerometer on their non-dominant wrist for seven consecutive days to track their sleep (Sleep Actigraphy Data) and that day's behaviors and mood (Daily Sleep Actigraphy and Diary Survey Data).
An additional collaborative study collected data from the child care provider (Year 3) and teacher (Years 9 and 15) through mail-based surveys. Saliva samples were collected at Year 9 and 15 (Biomarker file and Polygenic Scores). The Study of Adolescent Neural Development (SAND) COVID Study began data collection in May 2020 following the onset of the COVID-19 pandemic. It included online surveys with the young adult and their primary caregiver.
The FFCWS began its seventh wave of data collection in October 2020, around the focal child's 22nd birthday. Data collection and interviews continued through January 2024. The Year 22 wave included a young adult (YA) survey with the original focal child and a primary caregiver (PCG) survey. Data were also collected on the children of the original focal child (referred to as Generation 3, or G3).
In 2017, the FFCWS team announced the Fragile Families (FF) Challenge, a collaborative effort in which participants were tasked with using machine learning methods and FFCWS data (Baseline to Year 9) to build a model that would predict six key outcomes at Year 15. Materials used in the FF Challenge have been archived in this collection.
Documentation for these files is available on the FFCWS website under Data and Documentation. For details of updates made to the FFCWS data files, please see the project's Data Alerts page.
Data collection for the Future of Families and Child Wellbeing Study was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) of the National Institutes of Health under award numbers R01HD36916, R01HD39135, and R01HD40421, as well as a consortium of private foundations.
Below is the citation for use of the FFCWS data accessed through ICPSR. For information on additional citation requirements when using FFCWS in publications, please refer to this FAQ on the FFCWS project site.
Harvard School of Public Health/Robert Wood Johnson Foundation/National Public Radio Poll: What Shapes Health, United States, 2014 (ICPSR 38384)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of the 2014 poll What Shapes Health, a survey from National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Concerned about own health
- Meaning of health
- Control over own health
- Effort into maintaining health
- Frequency of healthy activities
- Description of personal health
- Types of healthy habits
- On diet to lose weight
- Ways to improve health
- Things that cause health problems
- Childhood problems causing future health issues
- Participation in community organizations
- Volunteering improving health
- Being told to improve health
- Family/friend behavior influencing health
- Health habits of family/friends
- Problems experienced in adulthood
- Problems experience in childhood
- Receiving health care
- Difficulty accessing health care
- Parents' health
- Recent serious illnesses
- Diagnosed with health conditions
- Frequency of exercising
- Personal weight
- Smoking habits
- Health insurance
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092363]. Frequencies and summary statistics for the 244 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2006-PRIOR1: Priorities 1--Public Health, United States, 2006 (ICPSR 38360)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Poll # 2006-PRIOR1: Priorities 1--Public Health, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:
- Rating of nation's system for protecting the public from health threats/preventing illness
- Diseases/health conditions posing the greatest threat to the public
- Most important diseases/health conditions for the government to address
- Quality of life in community
- Rating of aspects of life in community
- Community problems
- Health conditions in community
- Importance of action to improve nation's health
Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2006-VUL: Vulnerable Populations, United States, 2006 (ICPSR 38366)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Poll # 2006-VUL: Vulnerable Populations, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:
- Knowledge of maximum yearly income for family of 4 to be considered to be living in poverty
- Knowledge of proportion of United States children who do not complete high school
- Proportion of children living in poverty who do not complete high school
- Government aid to children of legal immigrants
- Favor/oppose continuing government support for children in foster care until age 25
- Most important services for government to spend more money on for children in foster care
- Responsibility for paying for long-term care for older adults
- Preferred place to be if elderly and ill/disabled
- Long-term care insurance
- Seriousness of gun/domestic violence in the community
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092321]. Frequencies and summary statistics for the 108 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Harvard School of Public Health/Robert Wood Johnson Foundation Poll # 2008-PRIOR1: Health Priorities 1--Americans' Views of the Medical Care System, United States, 2008 (ICPSR 38370)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Poll # 2008-PRIOR1: Health Priorities 1--Americans' Views of the Medical Care System, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:
- Nation's system to protect against health threats
- United States health care system
- National health insurance
- Respondent's personal medical care
- Ability to afford medical bills
- Local institutions
- Personal information regarding respondent
- Other codes
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092332]. Frequencies and summary statistics for the 131 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Harvard School of Public Health/Robert Wood Johnson Foundation Poll: Health Priorities Survey 2--Public Health Priorities, the Nation's Public Health System, and State Health Departments, United States, 2009 (ICPSR 38373)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Health Priorities Survey 2--Public Health Priorities, the Nation's Public Health System, and State Health Departments, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by International Communications Research (ICR). Topics covered in this survey include:
- Rating public illness prevention systems
- Government health agency job performance
- Rating specific illness preventative measures
- Greatest threats to public health
- State government agency job performance
- Familiarity with state health agencies
- Contact with state health agencies
- Following state health news
- State health department importance
- Rating state health department
- Overall state health
- Health insurance coverage
- Rating personal health
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092336]. Frequencies and summary statistics for the 96 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Harvard School of Public Health/Robert Wood Johnson Foundation Poll: Health Priorities Survey 3--Measures to Improve the Public's Health, United States, 2009 (ICPSR 38374)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Health Priorities Survey 3--Measures to Improve the Public's Health, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:
- Rating public illness prevention systems
- Government health agency job performance
- Rating specific illness preventative measures
- Greatest threats to public health
- State government agency job performance
- Familiarity with state health agencies
- Contact with state health agencies
- Following state health news
- State health department importance
- Rating state health department
- Overall state health
- Health insurance coverage
- Personal health rating
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092337]. Frequencies and summary statistics for the 45 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Harvard School of Public Health/Robert Wood Johnson Foundation Poll: Quality of Health Care, United States, 2011 (ICPSR 38375)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Quality of Health Care, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Grading aspects of health care
- Value of health care versus cost
- Quality of care among local hospitals
- Familiar hospital versus higher-quality hospital
- Familiar surgeon versus higher-rated surgeon
- African Americans and health care quality
- Latinos and health care quality
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092346]. Frequencies and summary statistics for the 64 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Harvard T.H. Chan School of Public Health/National Public Radio/Robert Wood Johnson Foundation: Discrimination in the United States Survey, 2017 (ICPSR 38387)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of the 2017 Discrimination in the United States Survey, a survey from Harvard T.H. Chan School of Public Health/Robert Wood Johnson Foundation/National Public Radio conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Belief in discrimination against racial/ethnic minorities
- Discrimination against men/women
- Discrimination against lesbian/gay/bisexual people
- Discrimination against transgender people
- Biggest problem with discrimination against lesbian/gay/bisexual/transgender/queer (LGBTQ) people
- Live on tribal lands
- Local/tribal government
- Discrimination based on race
- Discrimination based on gender
- Discrimination based on being part of the LGBTQ community
- Reasons for avoiding seeking health care
- Experiences with discrimination
- Discrimination resulting in fewer employment opportunities
- Discrimination resulting in unequal pay
- Discrimination resulting in fewer chances for quality education
- Encouraged to/discouraged from applying to college
- Predominant groups living in respondent's area
- Not feeling/being welcomed in neighborhood due to race
- Not feeling/being welcomed in neighborhood due to being part of LGBTQ community
- Considered moving to another area because of discrimination
- Comparing respondent's area to others
- Police using unnecessary force based on race/ethnicity
- Avoiding activities to avoid discrimination from police
- Experiences caused by racial discrimination
- Experiences caused by gender discrimination
- Experiences caused by discrimination against LGBTQ community
- Local police force does/does not reflect racial/ethnic background of community
- Contacted by political representatives about voting/supporting cause
- Registered to vote
- Vote in 2016 presidential election
- Physical health status
- Mental health status
- Disability
- Chronic illness
- Veterans Administration
- Indian Health Services
- Seeking health care
- Insurance coverage
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31114655]. Frequencies and summary statistics for the 235 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: African Americans' Lives Today, United States, 2013 (ICPSR 38379)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of African Americans' Lives Today, a survey from National Public Radio, the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Satisfaction with life and environment
- Life improvements
- Satisfaction with living area
- Living area improvements
- Most important local issue
- Other black people in area
- Amount of black friends
- Economic class
- Rating various public institutions
- Rating quality of various resources
- Amount of discrimination
- Reason for discrimination
- Personal financial situation
- Economic class growing up
- Achieving American dream
- Better off than parents
- Importance of religion
- Making decisions about children
- Child schooling
- Rating child's school
- Black children in school
- Desired level of child's education
- Seeking long-term relationship
- Desire to marry
- Satisfaction with dating opportunities
- Race of romantic dates
- Looking for work
- Career success
- Unemployment concerns
- Health insurance and healthcare
- Access to care
- Medical expenses
- Quality of doctors
- Health and wellness
- Social and family life
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092356]. Frequencies and summary statistics for the 204 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Health Education Survey, United States, 2013 (ICPSR 38381)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of the 2013 poll Health Education Survey, a survey from National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Grade child enrolled in
- Location of child's school
- Enrollment total
- Giving grade to child's school
- Biggest problem at school
- Emphasis on various subjects
- School teaching same values as home values
- School obligations interfering with family time
- Knowledge about common core
- Common core improving education
- Method of learning about common core
- Success of common core
- School preparing students for careers
- Attending technical
- Vocational classes
- Preparing students for college
- Preparing students for job market
- Student plans after high school
- College or career planning services
- Healthiness of school lunches
- Foods available at school
- Length of school lunch
- Time of lunch period
- Vending machines at school
- Fast-food chains at school
- Physical education as mandatory
- Frequency of PE classes
- Length of PE classes
- PE classes for other purposes
- Rating PE school offerings
- Playgrounds available after school
- Recess as structured or free time
- School safety
- Security precautions at school
- Ways of preventing violence at school
- Increasing security after Newtown shooting
- Method of transport to school
- Time to get home from school
- Safety of travelling to school
- School related stress
- School counseling for stressed students
- Time of school day
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092359]. Frequencies and summary statistics for the 148 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Latinos' Lives and Health Today, United States, 2013 (ICPSR 38380)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Latinos' Lives and Health Today, a survey from National Public Radio, the Harvard School of Public Health, and the Robert Wood Johnson Foundation, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Satisfaction with life
- Satisfaction with living area
- Most important local issue
- Other Hispanic people in living area
- Rating aspects of life
- Personal discrimination in past twelve months
- Personal finances
- Achieving American dream
- Economic class
- Better off than parents
- Opportunities for children
- Language spoken at home
- Looking for job
- Concerns about unemployment
- Biggest health problem in family
- Description of weight
- Trying to lose weight
- Medical care in past twelve months
- Problems with medical care access
- Confidence in ability to pay for major illness
- Health care facility used
- Health care professionals speaking Spanish
- Receiving poor medical care
- Health insurance coverage
- Personal health rating
- Frequency of exercise
- Country born in
- Age came to United States
- Parents' birth country
- Reasons for coming to US
- Comparing birth country to US
- Diet as more or less healthy in US.
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Sick in America, United States, 2012 (ICPSR 38378)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Sick in America, a survey from National Public Radio, the Robert Wood Johnson Foundation, and the Harvard School of Public Health, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Quality of health care
- Health care costs as problem
- Reasons for health care quality problems
- Focus of doctor visits
- Reasons for rising health care costs
- Health care as good value
- Agreement with doctor statements
- Amount of doctors
- Doctor visits for check-up
- Personal insurance coverage
- Uninsured
- Overnight hospital stays
- Satisfaction with hospital medical care
- Medical care costs as reasonable
- Description of hospital stays
- Serious illness
- Interactions with medical professionals
- Impact of medical care costs on family
- Receiving care every time it's needed
- Being turned away for health care
- Insurance premiums as financial problem
- Out of pocket medical costs
- Negotiating lower charges
- Problems paying for insurance
- Changing regular doctor
- Personal financial situation
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092354]. Frequencies and summary statistics for the 159 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Robert Wood Johnson Foundation/Harvard School of Public Health Poll: America's Health Agenda, United States, 2011 (ICPSR 38376)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of America's Health Agenda, a survey from the Robert Wood Johnson Foundation and the Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Rating local community's healthiness
- Most threatening disease or health condition
- Most important medical care system problems
- Rating government illness prevention
- Rating government health care systems
- Preferred government size
- Federal government health care priorities
- Rating federal government health care performance
- Contact with federal government health agencies
- Overall national health changes
- State government health priorities
- Rating state government health care performance
- Contact with state government health agencies
- Overall state health changes
- Local government health care priorities
- Rating local government health care performance
- Contact with local health agencies
- Overall local health changes
- Personal problems in past year
- Spending money to save in the long run
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092347]. Frequencies and summary statistics for the 421 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.