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National Survey of Health Attitudes, [United States], 2023 (ICPSR 39205)

Released/updated on: 2024-12-05
Geographic coverage: United States
Time period: 2023-11-27--2023-12-19

Since 2013, the Robert Wood Johnson Foundation (RWJF) has led the development of a pioneering national action framework to advance a "culture that enables all in our diverse society to lead healthier lives now and for generations to come." Accomplishing these principles requires a national paradigm shift from a traditionally disease and health care-centric view of health toward one that focuses on well-being. Recognizing that paradigm shifts require intentional actions, RWJF worked with RAND researchers to design an actionable path to fulfill the Culture of Health (CoH) vision. A central piece of this work is the development of measures to assess constructs underlying a CoH.

The National Survey of Health Attitudes (NSHA) is a survey that RWJF and RAND analysts developed and conducted as part of the foundation's CoH strategic framework. The foundation undertook this survey to measure key constructs that could not be measured in other data sources. Thus, the survey was not meant to capture the full action framework that informs CoH, but rather just selected measure areas. The questions in this survey primarily addressed the action area: making health a shared value. The survey covers a variety of topics, including views regarding what factors influence health, such as the notion of health interdependence (peer, family, neighborhood, and workplace drivers of health), values related to national and community investment for health and well-being; behaviors around health and well-being, including civic engagement on behalf of health, and the role of community engagement and sense of community in relation to health attitudes and values.

This study includes the results from the 2023 RWJF National Survey of Health Attitudes. The 2023 survey is the third wave of the NSHA. The first wave was conducted in 2015 (ICPSR 37405) and the second wave in 2018 (ICPSR 37633). The 2023 report complements the overview of the 2015 survey described in the RAND report Development of the Robert Wood Johnson Foundation National Survey of Health Attitudes (Carman et al., 2016), and its subsequent topline 2018 Survey of National Health Attitudes: Description and Top-Line Summary (Carman et al., 2019) and is organized similarly for consistency. A companion set of longitudinal surveys during the COVID-19 pandemic was fielded between 2020 and 2021 and is further described in four top-line reports, COVID-19 and the Experiences of Populations at Greater Risk (Carman et al., 2020-2021).

The questions in the 2023 survey uniquely capture aspects of American mindset about health, health equity, structural racism, and wellbeing in ways that are not present in other surveys. This version of the NSHA can be viewed in three main sections: (1) individual health experiences, perspectives, and knowledge (making health a shared value); (2) health equity perspectives; and (3) community wellbeing, including climate views and barriers to community engagement. Insights from the surveys referenced above, including this one, have established a baseline and set of cross-sectional pulse checks on where the American public is regarding their recognition of social determinants of health, their understanding of health inequities including structural racism, their willingness to address those inequities and their indication of who in society should be responsible for solving health inequities.

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National Comorbidity Survey: Reinterview (NCS-2), 2001-2002 [Restricted-Use] (ICPSR 30921)

Released/updated on: 2024-03-04
Geographic coverage: United States
Time period: 2001-01-01--2002-12-31

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains four major sections: the main survey, demographic data, diagnostic data, and state, county, and tract FIPS data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The second part contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The third part focuses on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

The fourth part contains respondents' state, county, and tract FIPS data.

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Six-State Survey of Elderly Dual Enrollees in Medicare and Medicaid, 1999 (ICPSR 3240)

Released/updated on: 2024-02-14
Geographic coverage: Iowa, United States, Massachusetts, Georgia, New Jersey, Wisconsin, Washington
Time period: 1999-01-01--1999-12-31
This survey, conducted in Georgia, Iowa, Massachusetts, New Jersey, Washington, and Wisconsin, examined access to health care among elderly dual enrollees in Medicare and Medicaid. Respondents provided information about their health status, unmet needs for care, care availability, care utilization, quality of care, and difficulty in activities related to personal care and independent living. Additionally, the survey questioned respondents about private health insurance coverage, out-of-pocket expenses for prescribed medicines and medical bills as a whole, delays in getting health care caused by money problems, and concerns with neighborhood crime and violence at home. Background variables include sex, age (two age groups), race, Hispanic origin, education, home ownership, income, and work status at age 65.
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Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988 (ICPSR 9795)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1985-01-01--1988-12-31
The Infant Health and Development Program was a collaborative, randomized, longitudinal, multisite clinical trial designed to evaluate the efficacy of comprehensive early intervention in reducing the developmental and health problems of low birth weight, premature infants. An intensive intervention extending from hospital discharge to 36 months corrected age was administered between 1985 and 1988 at eight different sites. The study sample of infants was stratified by birth weight (2,000 grams or less, 2,001-2,500 grams) and randomized to the Intervention Group or the Follow-Up Group. The Intervention Group received home visits, attendance at a special child development center, and pediatric follow-up. The Follow-Up Group received only the pediatric follow-up component of the program. Measures of cognitive development, behavioral status, health status, and other variables were collected from both groups at predetermined time points. Cognitive development was assessed by the Stanford-Binet Intelligence Scale, the Bayley Mental and Motor Scales, the Peabody Picture Vocabulary Test--Revised, and the Beery-Buktenica Developmental Test of Visual Motor Integration. Behavior problems were measured using the Richman-Graham Behavior Checklist and Achenbach's Child Behavior Checklist. Health status was evaluated through the dimensions of morbidity (defined as the presence or absence of health conditions), functional status (defined by limitations in activities of daily living due to health problems), changes in physical growth, and maternal perception of the child's health. The many other variables and indices in the data collection include site, pregnancy complications, child's birth weight and gestation age, birth order, child's gender, household composition, day care arrangements, source of health care, quality of the home environment, parents' race and ethnicity, and maternal age, education, IQ, and employment.
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National Comorbidity Survey: Baseline (NCS-1), 1990-1992 (Restricted Version) (ICPSR 25381)

Released/updated on: 2023-11-06
Geographic coverage: United States
Time period: 1990-01-01--1992-12-31
The National Comorbidity Survey: Baseline (NCS-1) is a collaborative epidemiologic investigation designed to study the prevalence and patterns of disorders in the third and revised edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM III-R) as well as correlates of service utilization for these disorders. The NCS-1 was the first survey to administer a structured psychiatric interview to a nationally representative sample and was carried out in the early 1990s with a household sample of over 8,000 respondents. Diagnoses were based on a modified version of the Composite International Diagnostic Interview (the UM-CIDI), which was developed at the University of Michigan for the NCS-1. This restricted-use data collection contains the following geographic variables that can be linked to the public-use version of the data using the CASEID variable: Census State FIPS codes, Census County FIPS codes, Census 5-Digit County-State FIPS codes, and Census 11-Digit State-County-Tract FIPS codes. However, in order to help preserve the confidentiality of the data the frequency tables in the codebook have been suppressed.
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National Survey of Health Attitudes, [United States], 2018 (ICPSR 37633)

Released/updated on: 2021-12-16
Geographic coverage: United States
Time period: 2018-07-11--2018-08-30

Since 2013, the Robert Wood Johnson Foundation (RWJF) has led the development of a pioneering national action framework to advance a "culture that enables all in our diverse society to lead healthier lives now and for generations to come." Accomplishing these principles requires a national paradigm shift from a traditionally disease and health care-centric view of health toward one that focuses on well-being. Recognizing that paradigm shifts require intentional actions, RWJF worked with RAND researchers to design an actionable path to fulfill the Culture of Health (CoH) vision. A central piece of this work is the development of measures to assess constructs underlying a CoH.

The National Survey of Health Attitudes is a survey that RWJF and RAND analysts developed and conducted as part of the foundation's CoH strategic framework. The foundation undertook this survey to measure key constructs that could not be measured in other data sources. Thus, the survey was not meant to capture the full action framework that informs CoH, but rather just selected measure areas. The questions in this survey primarily addressed the action area: making health a shared value. The survey covers a variety of topics, including views regarding what factors influence health, such as the notion of health interdependence (peer, family, neighborhood, and workplace drivers of health), values related to national and community investment for health and well-being; behaviors around health and well-being, including civic engagement on behalf of health, and the role of community engagement and sense of community in relation to health attitudes and values.

This study includes the results from the 2018 RWJF National Survey of Health Attitudes. This 2018 survey is considered the second wave, the first wave of the survey was conducted in 2015 (ICPSR 37405). In 2018, the study team fielded an updated version that included many of the same questions but added some new constructs that were of interest as part of the larger Culture of Health effort. This study complements the overview of the 2015 survey described in the RAND report Development of the Robert Wood Johnson Foundation National Survey of Health Attitudes (Carman et al., 2016).

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National Survey of Health Attitudes, [United States], 2015 (ICPSR 37405)

Released/updated on: 2021-12-14
Geographic coverage: United States
Time period: 2015-03-13--2015-04-14

Since 2013, the Robert Wood Johnson Foundation (RWJF) has led the development of a pioneering national action framework to advance a "culture that enables all in our diverse society to lead healthier lives now and for generations to come." Accomplishing these principles requires a national paradigm shift from a traditionally disease and health care-centric view of health toward one that focuses on well-being. Recognizing that paradigm shifts require intentional actions, RWJF worked with RAND researchers to design an actionable path to fulfill the Culture of Health (CoH) vision. A central piece of this work is the development of measures to assess constructs underlying a CoH.

The National Survey of Health Attitudes is a survey that RWJF and RAND analysts developed and conducted as part of the foundation's CoH strategic framework. The foundation undertook this survey to measure key constructs that could not be measured in other data sources. Thus, the survey was not meant to capture the full action framework that informs CoH, but rather just selected measure areas. The questions in this survey primarily addressed the action area: making health a shared value. The survey covers a variety of topics, including views regarding what factors influence health, such as the notion of health interdependence (peer, family, neighborhood, and workplace drivers of health), values related to national and community investment for health and well-being; behaviors around health and well-being, including civic engagement on behalf of health, and the role of community engagement and sense of community in relation to health attitudes and values.

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Harvard School of Public Health College Alcohol Study, 1997 (ICPSR 3163)

Released/updated on: 2020-01-30
Geographic coverage: United States
Time period: 1997-01-01--1997-12-31
This study resurveyed colleges that participated in the HARVARD SCHOOL OF PUBLIC HEALTH COLLEGE ALCOHOL STUDY, 1993 (ICPSR 6577). As in the 1993 survey, this survey focused on alcohol use and alcohol problems among undergraduate college students. The survey collected information on students' use of alcohol, tobacco, and illicit drugs, views on campus alcohol policies and student alcohol use, reasons for drinking alcohol and reasons for not drinking or limiting drinking, and personal difficulties caused by drinking problems (e.g., missed classes, injury, and trouble with police). Additional topics covered by the survey include overall health status, daily activities, satisfaction with education being received, grade-point average, living arrangements, social life, sexual activity, use of condoms during sexual intercourse, date rape, drunk driving, and attendance in meetings of Alcoholics Anonymous, Alanon, Adult Children of Alcoholics, and Narcotics Anonymous. Background variables include age, sex, marital status, religion, mother's and father's drinking habits, race, and Hispanic origin.
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Harvard School of Public Health College Alcohol Study, 1999 (ICPSR 3818)

Released/updated on: 2020-01-30
Geographic coverage: United States
Time period: 1999-01-01--1999-12-31
This survey interviewed students at colleges that participated in the first two rounds of the HARVARD SCHOOL OF PUBLIC HEALTH COLLEGE ALCOHOL STUDY, which were conducted in 1993 and 1997 (ICPSR 6577 and 3163). As in the previous surveys, the 1999 survey focused on alcohol use and alcohol problems among undergraduate college students. The survey collected information on students' use of alcohol, tobacco, and illicit drugs, views on campus alcohol policies and student alcohol use, reasons for drinking alcohol and reasons for not drinking or limiting drinking, and personal difficulties caused by drinking problems (e.g., missed classes, trouble with police, and health problems). Additional topics covered by the survey include overall health status, daily activities, satisfaction with education being received, grade-point average, living arrangements, social life, sexual activity (heterosexual, homosexual, and bisexual), use of condoms during sexual intercourse, date rape, drunk driving, and attendance in meetings of Alcoholics Anonymous. Background variables include age, height, weight, sex, marital status, religion, mother's and father's education, mother's and father's drinking habits, race, and Hispanic origin.
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Harvard School of Public Health College Alcohol Study, 1993 (ICPSR 6577)

Released/updated on: 2020-01-30
Geographic coverage: United States
Time period: 1993-01-01--1993-12-31
This survey focused on alcohol use and alcohol problems among undergraduate college students. The survey collected information on students' use of alcohol, tobacco, and illicit drugs, views on campus alcohol policies and student alcohol use, reasons for drinking alcohol and reasons for not drinking or limiting drinking, and personal difficulties caused by drinking problems (e.g., missed classes, injury, and trouble with police). Additional topics covered by the survey include overall health status, daily activities, satisfaction with education being received, grade-point average, living arrangements, social life, sexual activity, use of condoms during sexual intercourse, date rape, drunk driving, and attendance in meetings of Alcoholics Anonymous, Alanon, Adult Children of Alcoholics, and Narcotics Anonymous. Background variables include age, height, weight, sex, marital status, religion, mother's and father's education, mother's and father's drinking habits, race, and Hispanic origin.
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National Comorbidity Survey: Reinterview (NCS-2), 2001-2002 (ICPSR 35067)

Released/updated on: 2015-03-31
Geographic coverage: United States
Time period: 2001-01-01--2002-12-31

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains three major sections: the main survey, demographic data, and diagnostic data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The middle section contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The last section of the collection focused on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

Curated

National Comorbidity Survey: Baseline (NCS-1), 1990-1992 (ICPSR 6693)

Released/updated on: 2008-09-12
Geographic coverage: United States
Time period: 1990-01-01--1992-12-31
The National Comorbidity Survey: Baseline (NCS-1) was a collaborative epidemiologic investigation designed to study the prevalence and correlates of DSM III-R disorders and patterns and correlates of service utilization for these disorders. The NCS-1 was the first survey to administer a structured psychiatric interview to a nationally representative sample. The survey was carried out in the early 1990s with a household sample of over 8,000 respondents. Subsamples of the original respondents completed the NCS-1 Part II survey and Tobacco Use Supplement. Diagnoses were based on a modified version of the Composite International Diagnostic Interview (the UM-CIDI), which was developed at the University of Michigan for the NCS-1. Drugs covered by this survey include alcohol, tobacco, sedatives, stimulants, tranquilizers, analgesics, inhalants, marijuana/hashish, cocaine, hallucinogens, heroin, nonmedical use of prescription drugs, and polysubstance use. Other items include demographic characteristics, personal and family history of substance use and abuse, substance abuse treatment, data on drug use including recency, frequency, and age at first use, problems resulting from the use of drugs, personal and family history of psychiatric problems, mental health treatment, symptoms of psychiatric disorders, mental health status, HIV risk behaviors, and physical health status.
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Harvard School of Public Health College Alcohol Study, 2001 (ICPSR 4291)

Released/updated on: 2008-02-05
Geographic coverage: United States
Time period: 2001-01-01--2001-12-31
The Harvard School of Public Health College Alcohol Study (CAS), a multi-round survey that interviewed students in four-year colleges, examined key issues in alcohol abuse and other high risk behaviors among college students, including the relationship of state alcohol control measures and college policies to alcohol use and the role of fraternities and sororities, easy access to alcohol, and low alcohol prices. As in the previous rounds of CAS, which were conducted in 1993 (ICPSR 6577), 1997 (ICPSR 3163), and 1999 (ICPSR 3818), this round collected information on students' use of alcohol, tobacco, and illicit drugs, views on campus alcohol policies and student alcohol use, reasons for drinking alcohol and reasons for not drinking or limiting drinking, and personal difficulties caused by drinking problems (e.g., missed classes and trouble with police). Additional topics covered by the survey include overall health status, daily activities, satisfaction with education being received, grade-point average, living arrangements, social life, sexual activity (heterosexual, homosexual, and bisexual), use of condoms during sexual intercourse, rape, and drunk driving. Background variables include age, height, weight, sex, marital status, religion, mother's and father's education, mother's and father's drinking habits, race, and Hispanic origin.
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Southern Rural Access Program (SRAP) Survey of Access to Outpatient Medical Services in the Rural Southeast, 2002-2003 (ICPSR 4724)

Released/updated on: 2007-10-17
Geographic coverage: West Virginia, Mississippi, United States, Texas, Louisiana, Georgia, Alabama, Arkansas, South Carolina
Time period: 2002-11-01--2003-07-31
This survey was conducted to obtain baseline data as part of an evaluation of the Southern Rural Access Program (SRAP), a Robert Wood Johnson Foundation initiative to improve access to health care services in select rural areas of eight states: Alabama, Arkansas, Georgia, Louisiana, Mississippi, South Carolina, West Virginia, and eastern Texas. Within these states, 150 nonmetropolitan counties were selected for SRAP participation based on perceived local health needs, willingness of local organizations and providers to partner with the program's efforts, and prospects for long-term program viability. The SRAP counties demonstrated greater socioeconomic need than other nonmetropolitan counties in the eight states: approximately 50 percent higher poverty rates, 30 percent higher unemployment, and 40 percent greater minority proportions. Topics covered by the survey include health status, health insurance coverage, health care access challenges, confidence in and satisfaction with health care, and utilization of outpatient services including specific disease prevention services. Personal demographic characteristics collected by the survey include age, sex, race, Hispanic origin, primary language spoken at home, marital status, educational achievement, work status, income, number of children at home, and the state, county, town, and ZIP code of residence. The data file also contains county-level and Primary Care Service Area (PCSA)-level contextual variables from external sources, such as population size, population composition by race, number of hospital beds, and variables indicating the presence of short term hospitals and Federally Qualified Health Centers.
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Communities in Charge Survey, 2001-2003 [Alameda County, California, Austin, Texas, and Southern Maine] (ICPSR 4638)

Released/updated on: 2007-03-01
Geographic coverage: Texas, Maine, California, Austin
Time period: 2001-01-01--2003-12-31
This three-wave survey was conducted as part of an evaluation of the Communities in Charge (CIC) initiative, a competitive grants program funded by the Robert Wood Johnson Foundation (RWJF). CIC provided funding and technical assistance to help communities design and implement new or expand existing approaches for supplying health care to the uninsured. Three of the 14 CIC sites funded by RWJF in 2001 were selected for the survey: Alameda County, California, Austin, Texas, and southern Maine. With CIC grant support, all three created programs that provided fairly comprehensive health benefits to low-income, uninsured participants, who were interviewed by the survey within three months of enrollment (Wave 1) and again at about six months and 12 months after enrollment (Waves 2 and 3). Conducted in English in southern Maine, English and Spanish in Austin, and English, Spanish, and Cantonese in Alameda County, the survey collected information on demographic and socioeconomic characteristics, health status, health insurance coverage, access to health services, and health services utilization. Additional topics covered by the survey include out-of-pocket spending on health care, unmet health care needs, and satisfaction with and opinions about health care. There are two data files for each wave, one with the data from the Cantonese interviews and one with the data from the English and Spanish interviews.
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Robert Wood Johnson Foundation Supportive Services Program in Senior Housing, Tenant Characteristics and Service Use, 1990-1991: [United States] (ICPSR 6013)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1990-05-01--1991-10-31
These data describe tenants of subsidized elderly housing who used services provided by the Robert Wood Johnson Foundation Supportive Services Program in Senior Housing (RWJF SSPSH), and document use of these services. Services provided by the RWJF SSPSH program included housekeeping, transportation, meals, running errands, assistance with forms, personal care, and home health care. Three types of data comprise this collection: (1) participant information taken at first service delivery (Part 1), (2) administrative logs describing services delivered to each client (Parts 2-7), and (3) information on each site participating in the program (Part 8). Information about the participants includes age, gender, living arrangements, monthly income, health status, ability to do light and heavy tasks, and ability to do personal tasks. Information on service delivery includes the type and amount of each service delivered, whether the tenant paid for the service, how the service was funded, and the quarter in which the service was delivered. Site information includes subsidy type, building start date, type of location (urban, suburban, or rural), and whether the site had a full- or part-time service coordinator.
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Community Hospital Program (CHP) Access Impact Evaluation Surveys, 1978-1979, 1981 (ICPSR 8245)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1978-01-01--1979-12-31, 1981-01-01--1981-12-31
This data collection evaluates group medical practices and the ways in which they affect both access to and use of medical services. Group practices, sponsored by the Robert Wood Johnson Foundation Community Hospital Program (CHP), were selected for use in this assessment. The data were collected by the Center for Health Administration Studies at the University of Chicago, with the assistance of Chilton Research Services. Two surveys were conducted for the study: a baseline survey in 1978-1979 and a follow-up in 1981. Community residents and CHP patients in 12 communities were interviewed. Demographic and medical care data were collected for selected individuals and families in the survey areas. Data on regular sources of medical care for individuals include the type of organization used, type of practice, accessibility, frequency of visits, types of health care professionals seen, cost, and satisfaction. Also in the collection are data on perceived health, episodes of illness (including symptoms, duration, disability days, and doctors consulted), use of preventive health care services, and insurance coverage. Demographic data for individuals and families include age, sex, race, educational attainment, employment, and income. Of the 198 files in this collection, 88 are "raw" data files and 110 are frequencies. The data files consist of four types. The first type are Sample Person files. These contain the responses of group practice patients and community members. The second type are Doctor Episode files, which record doctors and episodes of illness. Family files make up the third type of file, and consist of family members' responses to the survey. Analysis files, linking patient and doctor data, are the fourth type of file. The SPSS frequency files correspond to the data files: two per file for the Sample Person files, and one per file for the remaining three types of files.
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Hospitalized Older Persons Evaluation (HOPE) Study, 1991-1993: [California] (ICPSR 6560)

Released/updated on: 2006-01-12
Geographic coverage: United States, California
Time period: 1991-03-01--1993-05-31
The HOPE study was a multi-center randomized clinical trial mounted to determine the effects of hospital inpatient consultative comprehensive geriatric assessment (CGA) under typical practice conditions on selected patient health and health services utilization outcomes. The main outcome measures were functional status, health status, mortality, rehospitalization, and total use of health care services for hospital patients 65 years of age and older. Functional status was evaluated by questions about limitations in patients' activities of daily living due to health problems. Also included were items covering living arrangements (with whom and where), ethnicity, education, and marital status. Health status questions covered patients' perceptions of mental health and current physical health. The functional and health status of patients was measured prior to CGA treatment and randomization, again at 3 months post-randomization, and at 12 months post-randomization. Functional and health status data are included in Parts 3-8. Health services utilization data (Parts 9-15) cover patient use of medical services such as urgent care, emergency room, radiology, durable medical equipment, and medications (prescribed and over the counter). Mortality information (Part 17) includes date of lost contact or death, and data source of survival status. Hospitalization measures (Part 18) include date of admission and discharge, admittance source diagnoses and procedures, and inpatient/outpatient status.
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Extending Health Insurance to the Working Poor: An Assessment of Health Status and Health Care Utilization Effects Among New York City Home Health Attendants, February 1990-June 1991 (ICPSR 9774)

Released/updated on: 2006-01-12
Geographic coverage: New York City
Time period: 1990-02-01--1991-06-30
Using a pre- and post-program design, this survey studied newly-hired home health attendants and their families, most of whom were without medical insurance until they became eligible for health benefits through their union. To assess changes in health status and health services utilization, the attendants were interviewed at the point of union enrollment, and again nine months later. The interview taken prior to enrollment in the benefits program elicited information about concern over health, recent injuries, and self-assessed health status, e.g., the presence or absence of specific health conditions such as diabetes, ulcers, arthritis, stomach trouble, high blood pressure, allergies, asthma, and back problems. Respondents were also queried about the extent and type of previous health coverage (including Medicare and disability insurance), limitations of daily functioning due to poor health, and recent health care utilization, including hospitalization, emergency room usage, and routine ambulatory care. The latter included questions about out-of-pocket expenses and the type of health services received, such as X-rays, CAT scans, sonograms, laboratory tests, electrocardiograms, stress tests, surgery, and setting of bones. Other questions addressed utilization issues of particular relevance to the New York City area, e.g., the use of city hospital clinics. The post-enrollment survey included parallel follow-up questions, as well as questions regarding the respondent's employment status and current benefits. Additional variables in the data collection include respondent's race, Hispanic origin, place of birth, past work experience, date of birth, and sex, plus the sex and dates of birth of family members.
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