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Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)

Released/updated on: 2024-12-12
Geographic coverage: United States
Time period: 1986-01-01--2021-01-01

The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

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ASTHO Profile Survey of State and Territorial Public Health, United States, 2012 (ICPSR 37823)

Released/updated on: 2022-06-08
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Palau, Micronesia (Federated States)
Time period: 2012-10-01--2013-05-01

The 2012 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The survey aims to define the scope of state and territorial public health services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The 121-question instrument was disseminated electronically in October 2012 and completed by senior deputies at each S/THA. The survey closed in May 2013; the response rate was 96 percent among the 50 states and D.C., and 92 percent among all states, territories, and freely associated states.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

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ASTHO Profile Survey of State and Territorial Public Health, United States, 2016 (ICPSR 37216)

Released/updated on: 2021-05-17
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Palau, Micronesia (Federated States)

The 2016 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The survey aims to define the scope of state and territorial public health services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The 129-question instrument was disseminated electronically in April 2016 and completed by senior deputies at each S/THA. The survey closed in September 2016; the response rate was 98 percent among the 50 states and D.C., and 97 percent among all states, territories, and freely associated states.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

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ASTHO Profile Survey of State and Territorial Public Health, United States, 2019 (ICPSR 37996)

Released/updated on: 2022-07-21
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Palau, Micronesia (Federated States)
Time period: 2019-04-09--2020-01-31

The 2019 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The survey aims to define the scope of state and territorial public health services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The instrument was disseminated electronically in April 2019 and completed by state and territorial health agency staff at each S/THA including senior deputies, chief financial officers, and human resource directors. The survey closed in January 2020; the response rate was 100% percent among the 50 states and D.C., and 98% percent among all states, territories, and freely associated states.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

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ASTHO Profile Survey of State and Territorial Public Health, United States, 2020 (ICPSR 38139)

Released/updated on: 2021-10-07
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Palau, Micronesia (Federated States)
Time period: 2020-12-01--2021-03-01

The 2020 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The survey aims to define the scope of state and territorial public health services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The instrument was significantly shortened for this data collection and separated into three separate surveys. The surveys were administered in December 2020 and completed by state and territorial health agency staff at each S/THA including senior deputies, chief financial officers, and human resource directors. The survey closed in March 2021; 80% of states and DC responded to at least one survey, of which 40% of states and DC responded to all three surveys; 38% of territories responded to at least one survey, of which 11% responded to all three surveys.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

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ASTHO Profile Survey of State and Territorial Public Health, United States, 2022 (ICPSR 39285)

Released/updated on: 2025-06-16
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, American Samoa, Northern Mariana Islands, Palau, Micronesia (Federated States)

The 2022 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The Profile aims to define the scope of S/THA services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The Profile began in 2007 and was fielded on average every three years between 2007 and 2022. The data collected through the Profile represent the breadth of work overseen by health agencies and shows how the public health field has shifted in response to societal changes and emergent needs. Data also reflect the structural nuances and limitations in which agencies conduct their work.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

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Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)

Released/updated on: 2024-02-28
Geographic coverage: United States
Time period: 2001-01-01--2003-01-01
The Collaborative Psychiatric Epidemiology Surveys (CPES) were initiated in recognition of the need for contemporary, comprehensive epidemiological data regarding the distributions, correlates and risk factors of mental disorders among the general population with special emphasis on minority groups. The primary objective of the CPES was to collect data about the prevalence of mental disorders, impairments associated with these disorders, and their treatment patterns from representative samples of majority and minority adult populations in the United States. Secondary goals were to obtain information about language use and ethnic disparities, support systems, discrimination and assimilation, in order to examine whether and how closely various mental health disorders are linked to social and cultural issues. To this end, CPES joins together three nationally representative surveys: the NATIONAL COMORBIDITY SURVEY REPLICATION (NCS-R), the NATIONAL SURVEY OF AMERICAN LIFE (NSAL), and the NATIONAL LATINO AND ASIAN AMERICAN STUDY (NLAAS). These surveys collectively provide the first national data with sufficient power to investigate cultural and ethnic influences on mental disorders. In this manner, CPES permits analysts to approach analysis of the combined dataset as though it were a single, nationally representative survey. Each of the CPES surveys has been documented in a comprehensive and flexible manner that promotes cross-survey linking of key data and scientific constructs.
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Communities in Charge Survey, 2001-2003 [Alameda County, California, Austin, Texas, and Southern Maine] (ICPSR 4638)

Released/updated on: 2007-03-01
Geographic coverage: Texas, Maine, California, Austin
Time period: 2001-01-01--2003-01-01
This three-wave survey was conducted as part of an evaluation of the Communities in Charge (CIC) initiative, a competitive grants program funded by the Robert Wood Johnson Foundation (RWJF). CIC provided funding and technical assistance to help communities design and implement new or expand existing approaches for supplying health care to the uninsured. Three of the 14 CIC sites funded by RWJF in 2001 were selected for the survey: Alameda County, California, Austin, Texas, and southern Maine. With CIC grant support, all three created programs that provided fairly comprehensive health benefits to low-income, uninsured participants, who were interviewed by the survey within three months of enrollment (Wave 1) and again at about six months and 12 months after enrollment (Waves 2 and 3). Conducted in English in southern Maine, English and Spanish in Austin, and English, Spanish, and Cantonese in Alameda County, the survey collected information on demographic and socioeconomic characteristics, health status, health insurance coverage, access to health services, and health services utilization. Additional topics covered by the survey include out-of-pocket spending on health care, unmet health care needs, and satisfaction with and opinions about health care. There are two data files for each wave, one with the data from the Cantonese interviews and one with the data from the English and Spanish interviews.
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Community Hospital Program (CHP) Access Impact Evaluation Surveys, 1978-1979, 1981 (ICPSR 8245)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1978-01-01--1979-01-01
This data collection evaluates group medical practices and the ways in which they affect both access to and use of medical services. Group practices, sponsored by the Robert Wood Johnson Foundation Community Hospital Program (CHP), were selected for use in this assessment. The data were collected by the Center for Health Administration Studies at the University of Chicago, with the assistance of Chilton Research Services. Two surveys were conducted for the study: a baseline survey in 1978-1979 and a follow-up in 1981. Community residents and CHP patients in 12 communities were interviewed. Demographic and medical care data were collected for selected individuals and families in the survey areas. Data on regular sources of medical care for individuals include the type of organization used, type of practice, accessibility, frequency of visits, types of health care professionals seen, cost, and satisfaction. Also in the collection are data on perceived health, episodes of illness (including symptoms, duration, disability days, and doctors consulted), use of preventive health care services, and insurance coverage. Demographic data for individuals and families include age, sex, race, educational attainment, employment, and income. Of the 198 files in this collection, 88 are "raw" data files and 110 are frequencies. The data files consist of four types. The first type are Sample Person files. These contain the responses of group practice patients and community members. The second type are Doctor Episode files, which record doctors and episodes of illness. Family files make up the third type of file, and consist of family members' responses to the survey. Analysis files, linking patient and doctor data, are the fourth type of file. The SPSS frequency files correspond to the data files: two per file for the Sample Person files, and one per file for the remaining three types of files.
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Community Tracking Study Household Survey, 1996-1997, and Followback Survey, 1997-1998: [United States] (ICPSR 2524)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-07-01--1997-07-01, 1997-10-01--1998-08-01
This data collection comprises two components of the Community Tracking Study (CTS), the Household Survey and the Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. At the beginning of each interview, a household informant was identified and queried about the composition of the household. With this information, individuals in the household were grouped into family insurance units (FIU). An FIU reflects family groupings typically used by insurance carriers. It includes an adult household member, his or her spouse, if any, and any dependent children 0-17 years of age (or 18-22 years of age if a full-time student). Family informants, selected from each FIU in the household, provided information on health insurance coverage, health care use, usual source of care, and the general health of all persons in the FIU. These informants also provided information on family income and out-of-pocket expenses for health care, as well as employment, race, and Hispanic origin for all adult FIU members. Each adult in the household, including the FIU informants, responded through a self-response module to questions regarding unmet health care needs, patient trust, satisfaction with physician choice, limitations in daily activities, smoking behaviors, and last doctor visit. In FIUs with more than one child under 18, only one child was randomly selected for inclusion in the survey. The family informant responded on behalf of the child regarding unmet needs and satisfaction with physician choice. The adult family member who took this child to his or her last doctor visit responded to questions about the visit. The Followback Survey was designed to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to health plans and other organizations that offered or administered the comprehensive private health insurance policies covering Household Survey respondents in the 60 CTS sites. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--2000-01-01
This collection comprises the second round of the Community Tracking Study (CTS) Household Survey and the second round of the CTS Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] (ICPSR 2524)), the second round of the Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. The purpose of the Followback Survey was to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to the health plans and other organizations (managed care organizations, third-party administrators, employer or union plans, and employers) that offered or administered the respondents' comprehensive private health insurance policies. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This collection comprises the third round of the Community Tracking Study (CTS) Household Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and the effects of those changes on people. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the Household Survey (ICPSR 2524 and 3199), the third round was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. A new set of sample design variables was added to the third round data for variance estimation by statistical software packages other than SUDAAN.
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Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)

Released/updated on: 2007-12-03
Geographic coverage: United States
Time period: 2003-01-01--2004-01-01
This collection contains data and documentation for the fourth round of the Community Tracking Study (CTS) Household Survey. Sponsored by the Robert Wood Johnson Foundation, the CTS is a national study designed to track changes in the United States' health care system and their effects. The fourth round was administered to households in the 60 CTS sites: 51 metropolitan areas and nine nonmetropolitan areas which were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The first round of the CTS Household Survey was conducted in 1996-1997 (ICPSR 2524), the second round in 1998-1999 (ICPSR 3199), and the third in 2000-2001 (ICPSR 3764). Respondents to the fourth round provided information about health insurance coverage, use of health services, unmet needs for health care, children's special health care needs, out-of-pocket medical costs, patient trust in physicians, sources of health information, attitudes about medical care, and satisfaction with health care and health plans. Health status, chronic conditions, and risk attitudes and smoking behavior were additional topics covered by the fourth round questionnaire. The data include variables on height and weight, employment, income, ethnicity, race, United States citizenship, household composition, and demographic characteristics.
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Effects of Preferred Provider Organizations on Health Care Use and Costs: Pooled Cross-Sectional Time Series, First Quarter 1988 Through First Quarter 1990 (ICPSR 6373)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1988-01-01--1990-03-31
This research project studied the effects of Preferred Provider Organizations (PPOs) on health care use and costs in comparison with indemnity health care plans and indemnity plans with utilization review (UR). The data cover nine quarters of a single insurer's claims experience with these types of health care plans. The unit of observation is the employer group covered by a given plan. Variables describing claims experience include number of claims, reimbursed costs after copayments and deductibles, hospital expenditures, number of hospital admissions, percent of claims in different diagnostic categories (surgery, tumors, births, and mental health), and number of tonsillectomy/adenoidectomy and colonoscopy cases. Reported characteristics of these groups include coinsurance rates, plan type, industry of employer, group mean age, percent of covered lives with dental or prescription drug coverage, and percent of covered lives that were women or dependents. In addition, the data contain variables describing the market in which each group was located, such as number of hospital beds in the city or county, number of hospitals and health maintenance organizations in the metropolitan statistical area, median rental cost for housing units in the city or county, percent of county or city that was Black or age 65 or older, number of nonfederal physicians in the county, and number of PPOs in the state.
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Extending Health Insurance to the Working Poor: An Assessment of Health Status and Health Care Utilization Effects Among New York City Home Health Attendants, February 1990-June 1991 (ICPSR 9774)

Released/updated on: 2006-01-12
Geographic coverage: New York City
Time period: 1990-02-01--1991-06-01
Using a pre- and post-program design, this survey studied newly-hired home health attendants and their families, most of whom were without medical insurance until they became eligible for health benefits through their union. To assess changes in health status and health services utilization, the attendants were interviewed at the point of union enrollment, and again nine months later. The interview taken prior to enrollment in the benefits program elicited information about concern over health, recent injuries, and self-assessed health status, e.g., the presence or absence of specific health conditions such as diabetes, ulcers, arthritis, stomach trouble, high blood pressure, allergies, asthma, and back problems. Respondents were also queried about the extent and type of previous health coverage (including Medicare and disability insurance), limitations of daily functioning due to poor health, and recent health care utilization, including hospitalization, emergency room usage, and routine ambulatory care. The latter included questions about out-of-pocket expenses and the type of health services received, such as X-rays, CAT scans, sonograms, laboratory tests, electrocardiograms, stress tests, surgery, and setting of bones. Other questions addressed utilization issues of particular relevance to the New York City area, e.g., the use of city hospital clinics. The post-enrollment survey included parallel follow-up questions, as well as questions regarding the respondent's employment status and current benefits. Additional variables in the data collection include respondent's race, Hispanic origin, place of birth, past work experience, date of birth, and sex, plus the sex and dates of birth of family members.
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Health Tracking Household Survey, 2007 [United States] (ICPSR 26001)

Released/updated on: 2011-04-15
Geographic coverage: United States

The 2007 Health Tracking Household Survey (HTHS) is the successor to the Community Tracking Study (CTS) Household Surveys which were conducted in 1996-1997 (ICPSR 2524), 1998-1999 (ICPSR 3199), 2000-2001 (ICPSR 3764), and 2003 (ICPSR 4216). Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Like the CTS Household Surveys, HTHS collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, adult chronic conditions, height and weight, and smoking behavior. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care.

At the beginning of the interview, a household informant provided information about the composition of the household which was used to group the household members into family insurance units (FIU). Each FIU comprised an adult household member, his or her spouse or domestic partner (same sex and other unmarried partners), if any, and any dependent children 0-17 years of age or 18-22 years of age if a full-time student (even if living outside the household). In each FIU in the household, a FIU informant provided information on insurance coverage, health care use, usual source of care, and general health status of all FIU members. This informant also provided information on family income as well as employment, earnings, employer-offered insurance plans, and race/ethnicity for all adult FIU members. Moreover, every adult in each FIU (including the FIU informant) responded through a self-response module to questions that could not be answered reliably by proxy respondents, such as questions about unmet needs, assessments of the quality of care, consumer engagement, satisfaction with physician choice, use of health information, health care shopping, and detailed health questions. The FIU informants responded on behalf of children regarding unmet needs, satisfaction with physician choice, and use of health care information.

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Health Tracking Household Survey, 2010 [United States] (ICPSR 34141)

Released/updated on: 2012-08-09
Geographic coverage: United States
Time period: 2010-04-01--2011-03-01

This is the second survey in the Health Tracking Household Survey (HTHS) series, the successor to the Community Tracking Study (CTS) Household Surveys. The CTS Household Surveys were conducted in 1996-1997 (ICPSR 2524), 1998-1999 (ICPSR 3199), 2000-2001 (ICPSR 3764), and 2003 (ICPSR 4216), and the first HTHS survey was conducted in 2007 (ICPSR 26001). Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Like the previous surveys, this survey collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, and adult chronic conditions. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care.

At the beginning of the interview, a household informant provided information about the composition of the household which was used to group the household members into family insurance units (FIU). Each FIU comprised an adult household member, his or her spouse or domestic partner (same sex and other unmarried partners), if any, and any dependent children 0-17 years of age or 18-22 years of age if a full-time student (even if living outside the household). In each FIU in the household, a FIU informant provided information on insurance coverage, health care use, usual source of care, and general health status of all FIU members. This informant also provided information on family income as well as employment, earnings, employer-offered insurance plans, and race/ethnicity for all adult FIU members. Moreover, every adult in each FIU (including the FIU informant) responded through a self-response module to questions that could not be answered reliably by proxy respondents, such as questions about unmet needs, usual source of care, assessments of the quality of care, consumer engagement, satisfaction with physician choice, use of health information, health care shopping, and detailed health questions. The FIU informants responded on behalf of children regarding unmet needs, satisfaction with physician choice, and use of health care information.

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Hospitalized Older Persons Evaluation (HOPE) Study, 1991-1993: [California] (ICPSR 6560)

Released/updated on: 2006-01-12
Geographic coverage: United States, California
Time period: 1991-03-01--1993-05-31
The HOPE study was a multi-center randomized clinical trial mounted to determine the effects of hospital inpatient consultative comprehensive geriatric assessment (CGA) under typical practice conditions on selected patient health and health services utilization outcomes. The main outcome measures were functional status, health status, mortality, rehospitalization, and total use of health care services for hospital patients 65 years of age and older. Functional status was evaluated by questions about limitations in patients' activities of daily living due to health problems. Also included were items covering living arrangements (with whom and where), ethnicity, education, and marital status. Health status questions covered patients' perceptions of mental health and current physical health. The functional and health status of patients was measured prior to CGA treatment and randomization, again at 3 months post-randomization, and at 12 months post-randomization. Functional and health status data are included in Parts 3-8. Health services utilization data (Parts 9-15) cover patient use of medical services such as urgent care, emergency room, radiology, durable medical equipment, and medications (prescribed and over the counter). Mortality information (Part 17) includes date of lost contact or death, and data source of survival status. Hospitalization measures (Part 18) include date of admission and discharge, admittance source diagnoses and procedures, and inpatient/outpatient status.
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Impact of the Internet and Advertising on Patients and Physicians, 2000-2001: [United States] (ICPSR 3994)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This study investigated public reactions and physicians' views on the effects of direct-to-consumer advertising (DTCA) of prescription medications and health information on the Internet. To this end, separate surveys of the general public (Part 1) and physicians (Part 2) were conducted. The Survey of the Public collected data on demographics, health status, health insurance coverage, perceived quality of medical care, sources of medical information, and attitudes toward and experience with DTCAs and health information on the Internet. Respondents who had seen a DTCA or health information on the Internet in the past 12 months, perceived it as personally relevant, and discussed it with their physician were asked about the last time they had done this, e.g., whether they scheduled the doctor visit specifically because they wanted to discuss information they got from the Internet, whether, during or after the visit, the doctor diagnosed them with the disease or medical condition that a DTCA related to, and whether or not their physician ordered a test, changed their medication or treatment, or referred them to a specialist when they talked about a DCTA during the visit. Similarly, the Survey of Physicians explored the most recent occasion when physicians talked to a patient about information the patient found on the Internet or obtained from a DTCA. Physicians expressed their views on the impact of this information on health outcomes, health service utilization, and the physician-patient relationship. Additional topics covered by the Survey of Physicians included the role physicians played in their patients' health care decisions and role they would like to play in these decisions, physicians' use of the Internet for purposes related to the practice of medicine, and physicians' practice profiles, income, age, race, and Hispanic origin. The data from the Survey of Physicians include variables from the American Medical Association's (AMA) master files such as sex, type of medical specialty, and year of graduation from medical school.
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Massachusetts Health Reform Survey, 2006 (ICPSR 35026)

Released/updated on: 2020-03-24
Geographic coverage: Massachusetts
Time period: 2006-10-16--2007-01-07
This data collection comprises data from the first round of the Massachusetts Health Reform Survey (MHRS), a survey designed to track the impact of Massachusetts health care reform legislation passed in late 2006. Interviews were conducted with non-elderly adults in Massachusetts beginning in fall 2006, just prior to the implementation of the major components of the legislation. The survey collected information on health insurance status; specific types of health insurance coverage held by the survey respondents; insurance premiums and covered services for those with insurance; access to and use of health care; out-of-pocket health care costs and medical debt; health and disability status; and demographic and socioeconomic characteristics. Respondents were also asked about their impressions of the health care system in Massachusetts and whether they supported or opposed the new Massachusetts universal health insurance law.
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Massachusetts Health Reform Survey, 2007 (ICPSR 35027)

Released/updated on: 2020-03-31
Geographic coverage: United States, Massachusetts
Time period: 2007-10-01--2007-12-23
This data collection comprises data from the second round of the Massachusetts Health Reform Survey (MHRS), a survey designed to track the impact of Massachusetts health care reform legislation passed in late 2006. Topics covered by the survey include health insurance status; specific types of health insurance coverage held by the survey respondents; insurance premiums and covered services for those with insurance; access to and use of health care; out-of-pocket health care costs and medical debt; health and disability status; and demographic and socioeconomic characteristics. The survey also gauged support for the legislation and awareness of its individual mandate.
Curated
Partially restricted

Massachusetts Health Reform Survey, 2008 (ICPSR 35028)

Released/updated on: 2020-03-31
Geographic coverage: Massachusetts
Time period: 2008-10-01--2009-01-27
This data collection comprises data from the third round of the Massachusetts Health Reform Survey (MHRS), a survey designed to track the impact of Massachusetts health care reform legislation passed in late 2006. Topics covered by the survey include health insurance status; specific types of health insurance coverage held by the survey respondents; insurance premiums and covered services for those with insurance; access to and use of health care; out-of-pocket health care costs and medical debt; health and disability status; and demographic and socioeconomic characteristics. The survey also gauged support for the legislation; awareness of the individual mandate and its impact on coverage decisions; and how easy or difficult it was to obtain information on the different health insurance plans available through the Commonwealth Health Insurance Connector Authority, a state agency established by the legislation.
Curated
Partially restricted

Massachusetts Health Reform Survey, 2009 (ICPSR 35029)

Released/updated on: 2020-03-31
Geographic coverage: Massachusetts
Time period: 2009-10-01--2010-01-06
This data collection comprises data from the fourth round of the Massachusetts Health Reform Survey (MHRS), a survey designed to track the impact of Massachusetts health care reform legislation passed in 2006. Topics covered by the survey include health and disability; access to and use of health care; health insurance status and specific types of health insurance coverage held by the survey respondents; health insurance premiums, out-of-pocket health care costs, and medical debt; and demographic and socioeconomic characteristics. The survey also gauged support for the legislation; awareness of the individual mandate and its impact on coverage decisions; and how easy or difficult it was to obtain information on the different health insurance plans available through the Commonwealth Health Insurance Connector Authority, a state agency established by the legislation.
Curated
Partially restricted

Massachusetts Health Reform Survey, 2010 (ICPSR 35030)

Released/updated on: 2020-03-31
Geographic coverage: Massachusetts
Time period: 2010-10-04--2011-01-06
This study contains data from the fifth round of the Massachusetts Health Reform Survey (MHRS), a survey designed to track the impact of Massachusetts health care reform legislation passed in 2006. Topics covered by the survey include health status and work limitation; access to and use of health care; health insurance status and specific types of health insurance coverage held by the survey respondents; health insurance premiums, out-of-pocket health care costs and medical debt; and demographic and socioeconomic characteristics. The survey also gauged support for the legislation, the impact of the individual mandate on health insurance coverage, and how confident individuals felt they would be able to keep their current health insurance coverage in the coming year.
Curated
Partially restricted

Massachusetts Health Reform Survey, 2012 (ICPSR 35061)

Released/updated on: 2020-03-24
Geographic coverage: Massachusetts
Time period: 2012-09-27--2013-01-31
This study contains data from the sixth round of the Massachusetts Health Reform Survey (MHRS), a survey designed to track the impact of Massachusetts health care reform legislation passed in 2006. Topics covered by the survey include health status, access to health care, health care utilization, health insurance coverage, health insurance premiums, out-of-pocket health care costs, medical debt, and demographic and socioeconomic characteristics. The survey also questioned the respondents about the burden of their health care spending, asked them to rate various aspects of their health insurance coverage, and asked how confident they felt they would be able to keep their current coverage in the coming year.
Curated
Partially restricted

Massachusetts Health Reform Survey, 2013 (ICPSR 36037)

Released/updated on: 2020-03-24
Geographic coverage: Massachusetts
Time period: 2013-09-01--2013-12-01
This data collection comprises data from the seventh round of the Massachusetts Health Reform Survey (MHRS), a survey which has been conducted since 2006 to monitor and understand the state's health care system. Topics covered by the survey include health insurance status; specific types of health insurance coverage held by the survey respondents; insurance premiums and covered services for those with insurance; access to and use of health care; out-of-pocket health care costs and medical debt; health and disability status; and demographic and socioeconomic characteristics.
Curated
Partially restricted

Massachusetts Health Reform Survey, 2015 (ICPSR 36419)

Released/updated on: 2020-03-24
Geographic coverage: Massachusetts
Time period: 2015-09-08--2015-11-08
This data collection comprises data from the 2015 round of the Massachusetts Health Reform Survey (MHRS), a survey which has been conducted in most years since 2006 to monitor and understand the state's health care system. Topics covered by the survey include health insurance status; specific types of health insurance coverage held by the survey respondents; insurance premiums and covered services for those with insurance; access to and use of health care; out-of-pocket health care costs and medical debt; health and disability status; and demographic and socioeconomic characteristics.
Curated
Partially restricted

National Comorbidity Survey: Adolescent Supplement (NCS-A), [United States], 2001-2004 (ICPSR 28581)

Released/updated on: 2023-11-16
Geographic coverage: United States
Time period: 2001-02-01--2004-01-01

The National Comorbidity Survey Replication Adolescent Supplement (NCS-A) was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders in the child and adolescent years of life among adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders.

The core NCS-A interview schedule was an adaptation of the World Health Organization Composite International Diagnostic Interview (CIDI). NCS-A also administered the non-verbal subtest (Matrices subtest) of the Kaufman Brief Intelligence Test (K-BIT).

In addition to interviewing adolescents, information was collected from a parent or a parent surrogate to obtain an additional perspective on the adolescent's mental health and its correlates. Information from parents focused on the five adolescent disorders for which previous methodological research has most consistently shown that parental reports are important for making diagnoses: attention-deficit/hyperactivity disorder, conduct disorder, oppositional defiant disorder, major depressive episode, and dysthymic disorder.

Demographic information collected by NCS-A includes age, citizenship status, country of birth, criminal history, ethnicity, grandparents' country of birth, language(s) spoken in the home, parents' country of birth, race, religion, and sex.

The data collection contains six data files: (1) data for the adolescent household and school respondents; (2) data for the parents who responded to the long self-administered questionnaire; (3) data for the parents who responded to both the long self-administered questionnaire and short telephone interview; (4) diagnostic variables derived from the data collected from the adolescents and parents; (5) K-BIT scores normed to the NCS-A adolescent sample; and (6) raw K-BIT data.

Curated
Restricted

National Evaluation Database for the Partnership for Long-Term Care (PLTC) [California, Connecticut, and Indiana], 1992-1998 (ICPSR 2844)

Released/updated on: 2024-02-14
Geographic coverage: Indiana, United States, Connecticut, California
Time period: 1992-01-01--1998-01-01
These data were collected to evaluate the Partnership for Long-Term Care (PLTC), a project in which the Robert Wood Johnson Foundation awarded grants to four states -- California, Connecticut, Indiana, and New York -- to work with private insurers to create long-term care insurance policies that were more affordable and provided better protection against impoverishment than those generally available. PLTC policies combine private long-term care insurance with special Medicaid eligibility standards that protect assets of the insured once private insurance benefits are exhausted. This collection was extracted from a database compiled from data submitted by three of the PLTC states: California, Connecticut, and Indiana (New York refused participation). It comprises seven parts, which can be linked together using common identifying variables. Part 1, Insured, describes the characteristics of each issued policy and includes variables covering the effective policy date, policy type, elimination periods, maximum benefits, inflation protection mode, and annualized premium, as well as the year of birth, sex, marital status, and state of residence of the insured. Each insured person is represented by one or more records: one record for the initial PLTC policy, plus a separate record for each change to the policy, if any. Part 2, Changes, consists of policy change records used to update the policies in Part 1. Assessments for benefits are recorded in Part 3. This file includes variables on the assessment date, whether the insured met policy criteria at the time of the assessment, disability date, deficiencies in activities of daily living, and MSQ and Folstein test scores. Parts 4-6 describe service payments and utilization: reporting period (quarter), type of service received by the insured, service amount billed, days of service rendered, and amount of remaining benefits (dollars and days). Part 7 contains information on persons denied application to PLTC policies, including date of denial, type and amount of coverage sought, reason for denial, and the sex, year of birth, and marital status of the applicant.
Curated
Partially restricted
Simple Crosstabs

National Profile of Local Health Departments, [United States], 2022 (ICPSR 39351)

Released/updated on: 2025-10-01
Geographic coverage: United States
The National Association of County and City Health Officials (NACCHO) conducts the National Profile of Local Health Departments, commonly referred to as the Profile study, every three years as a census of local health departments (LHDs). This study describes the funding, staffing, governance, and activities of LHDs across the United States, developing a description of LHD infrastructure and practice. In the three decades since, NACCHO has conducted an additional nine Profile studies, including in 2022.
Curated

National Survey of Access to Medical Care, 1982 (ICPSR 8244)

Released/updated on: 2005-11-04
Geographic coverage: United States
The purpose of this study, which served to update information available from previous Center for Health Administration Studies/National Opinion Research Center surveys in 1953, 1958, 1963, 1970, and 1976, was to provide current data on the accessibility of medical care for the United States population. The survey collected information on usual sources of medical care, sources of medical care utilized, problems associated with access to sources of care, satisfaction with medical services received, utilization of medical diagnostic procedures, health insurance coverage, episodes of illness, and other health-related issues. Additional information collected by the survey includes household composition, age, sex, income, race, education, employment status, and occupation.
Curated

National Survey of America's Families (NSAF), 1997 (ICPSR 4581)

Released/updated on: 2007-10-04
Geographic coverage: United States
Time period: 1997-01-01--1997-11-01

The National Survey of America's Families (NSAF) is a household survey that provides a comprehensive look at quantitative measures of the well-being of children, adults, and their families. While the focus of the survey is at the state level, the scope is national -- with a primary emphasis on low-income families. NSAF information was gathered from interviews conducted with the Most Knowledgeable Adult (MKA), the person in the household who was most knowledgeable about the questions being asked about the respondent, their spouse/partner (if applicable) and the focal child (or children). Data were collected from more than 40,000 families in two stages. First, a screener interview was administered to determine whether a household was eligible to complete the second, extended interview.

Two types of extended interviews were administered. Option A interviews were used in households with children under age 18. Option B interviews were used in childless adult households and also with emancipated minors. The extended interview was divided into several sections and is labeled A through P below:

  • A. Student Status. This section contained two questions that asked whether the respondent was a student and whether that household was the respondent's usual residence.

  • B. Health Status and Satisfaction. These questions asked about the respondent's satisfaction with health care, access to health care, the health status of the focal children, and the health status of the respondent.

  • C. Parent/Child/Family Interaction and Education. This series of questions asked about education for focal children. Questions addressed the focal child's current grade (or the last grade completed) and the child's attitudes toward school and schoolwork, skipping school, suspensions, and changing schools. Questions were also asked about children over 11 years old working for pay and attending summer school.

  • D. Household Roster. In this section, the name, age, and sex of all persons living in the household were recorded, and relationships between all household members were investigated.

  • E. Health Care Coverage. Information was gathered about current health insurance coverage for the respondent, the respondent's spouse/partner, and the focal children. Questions were also asked about characteristics of that coverage and of periods in which family members had no insurance coverage.

  • F. Health Care Use and Access. This section gathered information about health status, health care services received, and necessary health care services that were postponed during the preceding 12 months. Questions on routine care, overnight stays in hospitals, dental care, mental health care, women's health care, well-child care, and prescription medicines were also included.

  • G. Child Care. In this section, respondents were queried as to child care arrangements including Head Start, child care centers, before- or after-school care, and babysitters. Questions were asked about the total number of hours per week in each care situation, the typical number of children cared for, the typical number of adult child care providers, and child care costs.

  • H. Nonresidential Parent/Father. These questions determined whether a focal child had a nonresident parent, how often the child saw his/her nonresident parent, whether the nonresident parent provided financial support, and whether nonresident parents were required by child support orders to provide financial support.

  • I. Employment and Earnings. This section contained a series of questions about the employment and earnings of the respondent and the spouse/partnerfor the current and preceding year. Topics included employment status, occupation, industry, employer-provided health insurance, hours worked, and earnings. Some questions were also asked about the earnings of other family members.

  • J. Family Income. Family income also was identified from a wide variety of sources other than earnings from employment. These sources included public assistance (e.g., Aid to Families with Dependent Children [AFDC], General Assistance, Emergency Assistance, or vouchers), Food Stamps, child support, foster care payments, financial assistance from friends or relatives, unemployment compensation, workers' compensation or veterans' payments, Supplemental Security Income, Social Security, pension or annuity income, interest or dividend income, income from rental property, or any other income source.

  • K. Welfare Program Participation. This section gathered detailed information about AFDC and Food Stamp benefits that the respondent might have received within the preceding two years. For both types of assistance, periods in which the respondent's benefits were reduced or eliminated were identified, as were strategies for coping during such times. Current AFDC or Food Stamp recipients were asked about any requirements they had to fulfill (e.g., job search, training, etc.) in order to receive these benefits. Recipients were also asked questions about awareness of time limits and experiences with diversion. For respondents with children, questions were asked about benefits received in the previous year through the supplemental food program for Women, Infants, and Children (WIC) and free or reduced-cost school breakfast and lunch programs.

  • L. Education and Training. This series of questions inquired about the highest grade completed, highest degree earned, participation in job training programs during the previous year, and classes taken for credit during the previous year.

  • M. Housing and Economic Hardship. Questions covered the respondent's living arrangements, the name(s) of the lease- or mortgage- holder(s) in the household, and the amount of rent or mortgage paid monthly. Information was collected about financial contributions by the respondent or his/her spouse or partner to children under 18 years old living outside the household. The effect of economic hardship on the family's food consumption and ability to pay for housing costs was also assessed.

  • N. Issues, Problems, and Social Services. Questions in this section covered the respondent's state of mind, feelings about his or her child (or children), constructive activities the child (or children) might have been involved with, the availability of social services in their community, problems the child (or children) might have had in the preceding year and efforts to obtain help for those problems, and the respondent's involvement in volunteer and religious activities.

  • O. Race, Ethnicity, and Nativity. Race and ethnicity were asked for the respondent, the spouse/partner, and the focal child (or children). For household members who were born outside the United States, country of origin and citizenship questions were asked.

  • P. Closing. At the end of the survey, respondents were asked their opinions about welfare and working and about raising children. Closing questions asked for the respondent's ZIP code and, in households with foreign-born individuals, tracing information for use in a follow-up survey.

The 1997 NSAF data are available in nine parts and are organized into hierarchical, flat household-, family-, person-, adult-, and child-level files. A description of each is provided below:

  1. Focal Child Data. This dataset contains data elements from the extended interview that are specific to focal children (FC1 and FC2). Select data items that were asked only of MKAs are also included. Information in this dataset is primarily from sections N (Issues, Problems, and Social Services) and P (Closing) of the extended interview. The dataset contains one record for each focal child.

  2. Adult Pair Data. Included in this dataset is information collected from the extended interview about both the respondent and the respondent's spouse/partner. There is one observation per respondent and one per spouse (where applicable). Information in this dataset is primarily from sections I (Employment and Earnings) and L (Education and Training) of the extended interview.

  3. Random Adult Data. Information in this person-level dataset is specific to a randomly selected adult, either the respondent or the spouse/partner. This situation occurs only in sections E (Health Insurance Coverage) and F (Health Care Access and Utilization) of the extended interview.

  4. Childless Adult Data. This dataset contains data elements from the extended interview that are asked only of the respondent in Option B interviews. Variables in this dataset come mainly from section N (Issue, Problems, and Social Services) and P (Closing). There is one record per Option B interview in the dataset.

  5. Family-Respondent Data. Information in this dataset centers around information about the family's use of health care and social services. This family-level dataset contains one observation per respondent. Because there could be more than one respondent per family, family-respondent level variables may have different values within a single family.

  6. Household Data. This household-level dataset contains general information about the household such as the demographic characteristics of its members. Also contained in this dataset are administrative and process data such as housing subsidies, public housing, the number of bedrooms in the house, whether the home was owned or rented, and information pertaining to screeners and the completion of interviews.

  7. Person Data. This dataset contains one observation for each person living in the household. Included in this dataset is demographic information as well as information on current health insurance status and income.

  8. Social Family Data. Included in this dataset are items asked about the social family and variables aggregated at the social family level. The social family includes not only married partners and their children, but also unmarried partners, all of their children, and members of the extended family (anyone related by blood to the MKA, the spouse/partner, or their children). Among the survey items included are those variables indicating whether anyone in the social family had a particular type of income and health insurance. Also included are variables summarizing information across all members of a social family, such as the number of family members. There is one record for each social family.

  9. CPS Family Data. Since the social family definition was used in fielding the NSAF, this dataset includes only variables created using the Current Population Survey (CPS) definition of family. A CPS family includes the householder, spouse of family householder, children in the family, and other relatives of the family household respondent. There is one record for each CPS family in this dataset.

Curated

National Survey of America's Families (NSAF), 1999 (ICPSR 3927)

Released/updated on: 2007-10-03
Geographic coverage: United States
Time period: 1999-02-01--1999-10-01

The National Survey of America's Families (NSAF) is a household survey that provides a comprehensive look at quantitative measures of the well-being of children, adults, and their families. While the focus of the survey is at the state level, the scope is national -- with a primary emphasis on low-income families. NSAF information was gathered from interviews conducted with the Most Knowledgeable Adult (MKA), the person in the household who was most knowledgeable about the questions being asked about the respondent, their spouse/partner (if applicable) and the focal child (or children). Data were collected from more than 40,000 families in two stages. First, a screener interview was administered to determine whether a household was eligible to complete the second, extended interview.

Two types of extended interviews were administered. Option A interviews were used in households with children under age 18. Option B interviews were used in childless adult households and also with emancipated minors. The extended interview was divided into several sections and is labeled A through P below:

  • A. Student Status. This section contained two questions that asked whether the respondent was a student and whether that household was the respondent's usual residence.

  • B. Health Status and Satisfaction. These questions asked about the respondent's satisfaction with health care, access to health care, the health status of the focal children, and the health status of the respondent. It also covered questions about the respondent's awareness of specific insurance programs such as Medicaid, and those associated with the Children's Health Insurance Program (CHIP).

  • C. Parent/Child/Family Interaction and Education. This series of questions asked about education for focal children. Questions addressed the focal child's current grade (or the last grade completed) and the child's attitudes toward school and schoolwork, skipping school, suspensions, and changing schools. Questions were also asked about children over 11 years old working for pay and attending summer school.

  • D. Household Roster. In this section, the name, age, and sex of all persons living in the household were recorded, and relationships between all household members were investigated.

  • E. Health Care Coverage. Information was gathered about current health insurance coverage for the respondent, the respondent's spouse/partner, and the focal children. Questions were also asked about characteristics of that coverage and of periods in which family members had no insurance coverage.

  • F. Health Care Use and Access. This section gathered information about health status, health care services received, and necessary health care services that were postponed during the preceding 12 months. Questions on routine care, overnight stays in hospitals, dental care, mental health care, women's health care, well-child care, and prescription medicines were also included.

  • G. Child Care. In this section, respondents were queried as to child care arrangements including Head Start, child care centers, before- or after-school care, and babysitters. Questions were asked about the total number of hours per week in each care situation, the typical number of children cared for, the typical number of adult child care providers, and child care costs.

  • H. Nonresidential Parent/Father. These questions determined whether a focal child had a nonresident parent, how often the child saw his/her nonresident parent, whether the nonresident parent provided financial support, and whether nonresident parents were required by child support orders to provide financial support.

  • I. Employment and Earnings. This section contained a series of questions about the employment and earnings of the respondent and the spouse/partner for the current and preceding year. Topics included employment status, occupation, industry, employer-provided health insurance, hours worked, and earnings. Some questions were also asked about the earnings of other family members.

  • J. Family Income. Family income also was identified from a wide variety of sources other than earnings from employment. These sources included public assistance (e.g., Temporary Assistance for Needy Families [TANF], General Assistance, Emergency Assistance, vouchers), Food Stamps, child support, foster care payments, financial assistance from friends or relatives, unemployment compensation, workers' compensation or veterans' payments, Supplemental Security Income, Social Security, pension or annuity income, interest or dividend income, income from rental property, or any other income source.

  • K. Welfare Program Participation. This section gathered detailed information about TANF and Food Stamp benefits that the respondent might have received within the preceding two years. For both types of assistance, periods in which the respondent's benefits were reduced or eliminated were identified, as were strategies for coping during such times. Current TANF or Food Stamp recipients were asked about any requirements they had to fulfill (e.g., job search, training, etc.) in order to receive these benefits. Recipients were also asked questions about awareness of time limits and experiences with diversion. For respondents with children, questions were asked about benefits received in the previous year through the supplemental food program for Women, Infants, and Children (WIC) and free or reduced-cost school breakfast and lunch programs. Additional questions were asked about respondent experiences in obtaining government assistance for child care and health insurance through Medicaid and CHIP, and receipt and/or the use of the Earned Income Tax Credit (EITC) in 1998.

  • L. Education and Training. This series of questions inquired about the highest grade completed, highest degree earned, participation in job training programs during the previous year, and classes taken for credit during the previous year.

  • M. Housing and Economic Hardship. Questions covered the respondent's living arrangements, the name(s) of the lease- or mortgage- holder(s) in the household, and the amount of rent or mortgage paid monthly. Information was collected about financial contributions by the respondent or his/her spouse or partner to children under 18 years old living outside the household. The effect of economic hardship on the family's food consumption and ability to pay for housing costs was also assessed.

  • N. Issues, Problems, and Social Services. Questions in this section covered the respondent's state of mind, feelings about his or her child (or children), constructive activities the child (or children) might have been involved with, the availability of social services in their community, problems the child (or children) might have had in the preceding year and efforts to obtain help for those problems, and the respondent's involvement in volunteer and religious activities.

  • O. Race, Ethnicity, and Nativity. Race and ethnicity were asked for the respondent, the spouse/partner, and the focal children. For household members who were born outside the United States, country of origin and citizenship questions were asked.

  • P. Closing. At the end of the survey, respondent's were asked their opinions about welfare and working and about raising children.The respondent's ZIP code and address were requested and tracing information was asked of households with families receiving welfare at any time since January 1997, for possible use in a follow-up survey.

The 1999 NSAF data are available in nine parts and are organized into hierarchical, flat household-, family-, person-, adult-, and child-level files. A description of each is provided below:

  1. Focal Child Data. This dataset contains data elements from the extended interview that are specific to focal children (FC1 and FC2). Select data items that were asked only of MKAs are also included. Information in this dataset is primarily from sections N (Issues, Problems, and Social Services) and P (Closing) of the extended interview. The dataset contains one record for each focal child.

  2. Adult Pair Data. Included in this dataset is information collected from the extended interview about both the respondent and the respondent's spouse/partner. There is one observation per respondent and one per spouse (where applicable). Information in this dataset is primarily from sections I (Employment and Earnings) and L (Education and Training) of the extended interview.

  3. Random Adult Data. Information in this person-level dataset is specific to a randomly selected adult, either the respondent or the spouse/partner. This situation occurs only in sections E (Health Insurance Coverage) and F (Health Care Access and Utilization) of the extended interview.

  4. Childless Adult Data. This dataset contains data elements from the extended interview that are asked only of the respondent in Option B interviews. Variables in this dataset come mainly from section N (Issue, Problems, and Social Services) and P (Closing). There is one record per Option B interview in the dataset.

  5. Family-Respondent Data. Information in this dataset centers around information about the family's use of health care and social services. This family-level dataset contains one observation per respondent. Because there could be more than one respondent per family, family-respondent level variables may have different values within a single family.

  6. Household Data. This household-level dataset contains general information about the household such as the demographic characteristics of its members. Also contained in this dataset is administrative and process data such as housing subsidies, public housing, the number of bedrooms in the house, if the home was owned or rented, and information pertaining to screeners and the completion of interviews.

  7. Person Data. This dataset contains one observation for each person living in the household. Included in this dataset is demographic information as well as information on current health insurance status and income.

  8. Social Family Data. Included in this dataset are items asked about the social family and variables aggregated at the social family level. The social family includes not only married partners and their children, but also unmarried partners, all of their children, and members of the extended family (anyone related by blood to the MKA, the spouse/partner, or their children). Among the survey items included are those variables indicating whether anyone in the social family had a particular type of income and health insurance. Also included are variables summarizing information across all members of a social family, such as the number of family members. There is one record for each social family.

  9. CPS Family Data. Since the social family definition was used in fielding the NSAF, this dataset includes only variables created using the Current Population Survey (CPS) definition of family. A CPS family includes the householder, spouse of family householder,children in the family, and other relatives of the family household respondent. There is one record for each CPS family in this dataset.

Curated

National Survey of America's Families (NSAF), 2002 (ICPSR 4582)

Released/updated on: 2007-10-03
Geographic coverage: United States
Time period: 2002-02-01--2002-10-01

The National Survey of America's Families (NSAF) is a household survey that provides a comprehensive look at quantitative measures of the well-being of children, adults, and their families. While the focus of the survey is at the state level, the scope is national -- with a primary emphasis on low-income families. NSAF information was gathered from interviews conducted with the Most Knowledgeable Adult (MKA), the person in the household who was most knowledgeable about the questions being asked about the respondent, their spouse/partner (if applicable) and the focal child (or children). Data were collected from more than 40,000 families in two stages. First, a screener interview was administered to determine whether a household was eligible to complete the second, extended interview.

Two types of extended interviews were administered. Option A interviews were used in households with children under age 18. Option B interviews were used in childless adult households and also with emancipated minors. The extended interview was divided into several sections and is labeled A through P below:

  • A. Student Status. This section contained two questions that asked whether the respondent was a student and whether that household was the respondent's usual residence.

  • B. Health Status and Satisfaction. These questions asked about the respondent's satisfaction with health care, access to health care, the health status of the focal children, and the health status of the respondent. It also covered questions about the respondent's awareness of specific insurance programs such as Medicaid, and those associated with the Children's Health Insurance Program (CHIP).

  • C. Parent/Child/Family Interaction and Education. This series of questions asked about education for focal children. Questions addressed the focal child's current grade (or the last grade completed) and the child's attitudes toward school and schoolwork, skipping school, suspensions, and changing schools. Questions were also asked about children over 11 years old working for pay and attending summer school.

  • D. Household Roster. In this section, the name, age, and sex of all persons living in the household were recorded, and relationships between all household members were investigated.

  • E. Health Care Coverage. Information was gathered about current health insurance coverage for the respondent, the respondent's spouse/partner, and the focal children. Questions were also asked about characteristics of that coverage and of periods in which family members had no insurance coverage.

  • F. Health Care Use and Access. This section gathered information about health status, health care services received, and necessary health care services that were postponed during the preceding 12 months. Questions on routine care, overnight stays in hospitals, dental care, mental health care, women's health care, well-child care, and prescription medicines were also included.

  • G. Child Care. In this section, respondents were queried as to child care arrangements including Head Start, child care centers, before- or after-school care, and babysitters. Questions were asked about the total number of hours per week in each care situation, the typical number of children cared for, the typical number of adult child care providers, and child care costs.

  • H. Nonresidential Parent/Father. These questions determined whether a focal child had a nonresident parent, how often the child saw his/her nonresident parent, whether the nonresident parent provided financial support, and whether nonresident parents were required by child support orders to provide financial support.

  • I. Employment and Earnings. This section contained a series of questions about the employment and earnings of the respondent and the spouse/partner for the current and preceding year. Topics included employment status, occupation, industry, employer-provided health insurance, hours worked, and earnings. Some questions were also asked about the earnings of other family members.

  • J. Family Income. Family income was also identified from a wide variety of sources other than earnings from employment. These sources included public assistance (e.g., Temporary Assistance for Needy Families [TANF], General Assistance, Emergency Assistance, or vouchers), Food Stamps, child support, foster care payments, financial assistance from friends or relatives, unemployment compensation, workers' compensation or veterans' payments, Supplemental Security Income, Social Security, pension or annuity income, interest or dividend income, income from rental property, or any other income source.

  • K. Welfare Program Participation. This section gathered detailed information about TANF and Food Stamp benefits that the respondent might have received within the preceding two years. For both types of assistance, periods in which the respondent's benefits were reduced or eliminated were identified, as were strategies for coping during such times. Current TANF or Food Stamp recipients were asked about any requirements they had to fulfill (e.g., job search, training, etc.) in order to receive these benefits. Recipients were also asked questions about awareness of time limits and experiences with diversion. For respondents with children, questions were asked about benefits received in the previous year through the supplemental food program for Women, Infants, and Children (WIC) and free or reduced-cost school breakfast and lunch programs. Additional questions were asked about respondent experiences in obtaining government assistance for child care and health insurance through Medicaid and CHIP, and receipt and/or the use of the Earned Income Tax Credit (EITC) in any year between 1999 and 2002.

  • L. Education and Training. This series of questions inquired about the highest grade completed, highest degree earned, participation in job training programs during the previous year, and classes taken for credit during the previous year.

  • M. Housing and Economic Hardship. Questions covered the respondent's living arrangements, the name(s) of the lease- or mortgage- holder(s) in the household, and the amount of rent or mortgage paid monthly. Information was collected about financial contributions by the respondent or his/her spouse or partner to children under 18 years old living outside the household. The effect of economic hardship on the family's food consumption and ability to pay for housing costs was also assessed.

  • N. Issues, Problems, and Social Services. Questions in this section covered the respondent's state of mind, feelings about his or her child (or children), constructive activities the child (or children) might have been involved with, the availability of social services in their community, problems the child (or children) might have had in the preceding year and efforts to obtain help for those problems, and the respondent's involvement in volunteer and religious activities.

  • O. Race, Ethnicity, and Nativity. Race and ethnicity were asked for the respondent, the spouse/partner, and the focal child (or children). For household members who were born outside the United States, country of origin and citizenship questions were asked.

  • P. Closing. At the end of the survey, respondents were asked their opinions about welfare and working and about raising children. Respondents' ZIP code and address were also requested.

  • The 2002 NSAF data are available in nine parts and are organized into hierarchical, flat household-, family-, person-, adult-, and child-level files. A description of each is provided below:

    1. Focal Child Data. This dataset contains data elements from the extended interview that are specific to focal children (FC1 and FC2). Select data items that were asked only of MKAs are also included. Information in this dataset is primarily from sections N (Issues, Problems, and Social Services) and P (Closing) of the extended interview. The dataset contains one record for each focal child.

    2. Adult Pair Data. Included in this dataset is information collected from the extended interview about both the respondent and the respondent's spouse/partner. There is one observation per respondent and one per spouse (where applicable). Information in this dataset is primarily from sections I (Employment and Earnings) and L (Education and Training) of the extended interview.

    3. Random Adult Data. Information in this person-level dataset is specific to a randomly selected adult, either the respondent or the spouse/partner. This situation occurs only in sections E (Health Insurance Coverage) and F (Health Care Access and Utilization) of the extended interview.

    4. Childless Adult Data. This dataset contains data elements from the extended interview that are asked only of the respondent in Option B interviews. Variables in this dataset come mainly from section N (Issue, Problems, and Social Services) and P (Closing). There is one record per Option B interview in the dataset.

    5. Family-Respondent Data. Information in this dataset centers around information about the family's use of health care and social services. This family-level dataset contains one observation per respondent. Because there could be more than one respondent per family, family-respondent level variables may have different values within a single family.

    6. Household Data. This household-level dataset contains general information about the household such as the demographic characteristics of its members. Also contained in this dataset are administrative and process data such as housing subsidies, public housing, the number of bedrooms in the house, whether the home is owned or rented, and information pertaining to screeners and the completion of interviews.

    7. Person Data. This dataset contains one observation for each person living in the household. Included in this dataset is demographic information as well as information on current health insurance status and income.

    8. Social Family Data. Included in this dataset are items asked about the social family and variables aggregated at the social family level. The social family includes not only married partners and their children, but also unmarried partners, all of their children, and members of the extended family (anyone related by blood to the MKA, the spouse/partner, or their children). Among the survey items included are those variables indicating whether anyone in the social family had a particular type of income and health insurance. Also included are variables summarizing information across all members of a social family, such as the number of family members. There is one record for each social family.

    9. CPS Family Data. Since the social family definition was used in fielding the NSAF, this dataset includes only variables created using the Current Population Survey (CPS) definition of family. A CPS family includes the householder, spouse of family householder, children in the family, and other relatives of the family household respondent. There is one record for each CPS family in this dataset.

Curated

Privately Insured in America: Opinions on Health Care Costs and Coverage, 2014 (ICPSR 36176)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2014-07-22--2014-09-03
This survey interviewed adults ages 18-64 with private health insurance - health insurance received through an employer or union or purchased directly from an insurance company or through a state or federal marketplace or exchange -- about the characteristics of their health care insurance coverage, their health care utilization and their views on the price of health care, how health costs impact their health care utilization decisions and the extent to which other aspects of their lives are affected by health care costs. Other topics covered by the survey include satisfaction with one's current health insurance plan, problems experienced with health care under the current plan and the importance of various plan attributes in choosing a health plan. The survey also collected information on overall health status and socio-demographic characteristics, such age, sex, marital status, education, employment status, income, race and Hispanic origin.
Curated
Partially restricted

Robert Wood Johnson Foundation Family Health Insurance Survey, 1993 (ICPSR 6894)

Released/updated on: 2005-06-22
Geographic coverage: Oregon, Vermont, New York, United States, New Mexico, Oklahoma, Colorado, Minnesota, Florida, North Dakota, Washington
Time period: 1993-01-01--1994-01-01
This survey investigated health insurance coverage, as well as access to and use of health services, in each of ten states. With the goal of remedying the previous lack of state-level data, the survey was conducted to aid in defining problems of insurance coverage and to analyze the impacts of states' policy options. The main unit of observation is the health insurance family, which includes the head, spouse, and their children up to age 18, or to age 23 if they were in school. Variables on health insurance coverage include the types of coverage respondents carried (Medicare, Medicaid, additional state or federal programs, and private policies), sources of private policy coverage, premiums paid for private policies, and number of months uninsured during the last year. Access to health care is measured by variables such as the type of usual health care provider, the amount of time it usually took to get to the doctor's office, and whether needed medical care was not received during the previous year. Variables on the utilization of health care include the number of overnight hospital stays, the number of visits to doctors, age at first DPT (diphtheria, whooping cough, and tetanus) shot, age at first oral polio immunization, and the number of months since the most recent breast exam and Pap smear. The survey also elicited self-reported health status and opinions on the health care system, gauged satisfaction/dissatisfaction with health services received, and gathered information on employment, income, education, migration, age, sex, marital status, race, Hispanic origin, and citizenship.
Curated
Partially restricted

Southern Rural Access Program (SRAP) Survey of Access to Outpatient Medical Services in the Rural Southeast, 2002-2003 (ICPSR 4724)

Released/updated on: 2007-10-17
Geographic coverage: West Virginia, Mississippi, United States, Texas, Louisiana, Georgia, Alabama, Arkansas, South Carolina
Time period: 2002-11-01--2003-07-01
This survey was conducted to obtain baseline data as part of an evaluation of the Southern Rural Access Program (SRAP), a Robert Wood Johnson Foundation initiative to improve access to health care services in select rural areas of eight states: Alabama, Arkansas, Georgia, Louisiana, Mississippi, South Carolina, West Virginia, and eastern Texas. Within these states, 150 nonmetropolitan counties were selected for SRAP participation based on perceived local health needs, willingness of local organizations and providers to partner with the program's efforts, and prospects for long-term program viability. The SRAP counties demonstrated greater socioeconomic need than other nonmetropolitan counties in the eight states: approximately 50 percent higher poverty rates, 30 percent higher unemployment, and 40 percent greater minority proportions. Topics covered by the survey include health status, health insurance coverage, health care access challenges, confidence in and satisfaction with health care, and utilization of outpatient services including specific disease prevention services. Personal demographic characteristics collected by the survey include age, sex, race, Hispanic origin, primary language spoken at home, marital status, educational achievement, work status, income, number of children at home, and the state, county, town, and ZIP code of residence. The data file also contains county-level and Primary Care Service Area (PCSA)-level contextual variables from external sources, such as population size, population composition by race, number of hospital beds, and variables indicating the presence of short term hospitals and Federally Qualified Health Centers.