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Aligning Forces for Quality Evaluation: Consumer Survey Round 2, 2011-2012 (ICPSR 37220)

Released/updated on: 2019-10-14
Geographic coverage: United States
Time period: 2011-01-01--2012-01-01
This survey was conducted as part of the evaluation of the Aligning Forces for Quality (AF4Q) initiative, which is the Robert Wood Johnson Foundation's effort to lift the overall quality of health care in 17 targeted communities, reduce racial and ethnic disparities, and provide models of national reform. The survey was administered to adults with one or more of five chronic illnesses, diabetes, hypertension, heart disease, asthma and depression, in the AF4Q communities and a national sample residing in non-AF4Q communities to provide a basis for comparison between the AF4Q communities and the rest of the United States. Survey questions focused on patient activation; consumer knowledge of publicly available performance reports that highlight quality differences among physicians, hospitals, and health plans; the ability to be an effective consumer in the context of a physician visit; patient knowledge about her/his illness; skills and willingness to self-manage one's illness; the impact of insurance and payment models; and the relationship between out-of-pocket costs and health care utilization. In 2011 the AF4Q evaluation team contracted with RTI International (RTI) to conduct the Aligning Forces for Quality Consumer Survey 2.0 (AF4Q 2.0).
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Associated Press Poll on the Health Care Overhaul, by Stanford University With the Robert Wood Johnson Foundation, October-November 2009 [United States] (ICPSR 30421)

Released/updated on: 2024-02-14
Geographic coverage: United States
This poll was intended to measure public opinion about the proposed health care overhaul that was being considered by the United States Congress while the survey was in the field. It measured support and opposition to certain general goals for the overhaul, as well as support and opposition to specific policy proposals. Other topics investigated by the survey include health status, health insurance status, health care system experience, general perceptions of the health care system, political ideology, and approval/disapproval of the Obama Administration's performance. Demographic characteristics covered by the survey include marital status, employment status, year of birth, home tenure, religion, religiosity, race, Hispanic origin, and income.
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ASTHO Forces of Change Survey, United States, 2017 (ICPSR 37223)

Released/updated on: 2019-07-30
Geographic coverage: District of Columbia, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Micronesia (Federated States)

The Forces of Change Survey is an annual survey completed by the state and territorial health agencies that comprise the membership of the Association of State and Territorial Health Officials (ASTHO). ASTHO is the national nonprofit organization representing public health agencies in the United States, the U.S. territories and freely associated states, and the District of Columbia, and the over 100,000 public health professionals these agencies employ. The Forces of Change Survey primarily focuses on emergent and rapidly changing trends. The data collected sought to determine the current climate at state and territorial health agencies as it related to budget, workforce, accreditation, and special interest topics. The 2017 Forces of Change Survey examined the following topics:

  • Health agency resources
  • Activities related to the Zika virus
  • Opioid epidemic response
  • Communicating the value of public health
  • Efforts to advance health equity

The web-based survey, fielded by ASTHO in May of 2017, was administered to state and territorial health agencies through their senior deputies. A total of 52 health agencies responded (from 46 states, Washington, D.C., and five territories and freely associated states). Data included as part of this collection includes one dataset with 122 variables for 52 cases.

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ASTHO Profile Survey of State and Territorial Public Health, United States, 2012 (ICPSR 37823)

Released/updated on: 2022-06-08
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Palau, Micronesia (Federated States)
Time period: 2012-10-01--2013-05-01

The 2012 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The survey aims to define the scope of state and territorial public health services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The 121-question instrument was disseminated electronically in October 2012 and completed by senior deputies at each S/THA. The survey closed in May 2013; the response rate was 96 percent among the 50 states and D.C., and 92 percent among all states, territories, and freely associated states.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

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Communities in Charge Survey, 2001-2003 [Alameda County, California, Austin, Texas, and Southern Maine] (ICPSR 4638)

Released/updated on: 2007-03-01
Geographic coverage: Texas, Maine, California, Austin
Time period: 2001-01-01--2003-01-01
This three-wave survey was conducted as part of an evaluation of the Communities in Charge (CIC) initiative, a competitive grants program funded by the Robert Wood Johnson Foundation (RWJF). CIC provided funding and technical assistance to help communities design and implement new or expand existing approaches for supplying health care to the uninsured. Three of the 14 CIC sites funded by RWJF in 2001 were selected for the survey: Alameda County, California, Austin, Texas, and southern Maine. With CIC grant support, all three created programs that provided fairly comprehensive health benefits to low-income, uninsured participants, who were interviewed by the survey within three months of enrollment (Wave 1) and again at about six months and 12 months after enrollment (Waves 2 and 3). Conducted in English in southern Maine, English and Spanish in Austin, and English, Spanish, and Cantonese in Alameda County, the survey collected information on demographic and socioeconomic characteristics, health status, health insurance coverage, access to health services, and health services utilization. Additional topics covered by the survey include out-of-pocket spending on health care, unmet health care needs, and satisfaction with and opinions about health care. There are two data files for each wave, one with the data from the Cantonese interviews and one with the data from the English and Spanish interviews.
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Community Hospital Program (CHP) Access Impact Evaluation Surveys, 1978-1979, 1981 (ICPSR 8245)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1978-01-01--1979-01-01
This data collection evaluates group medical practices and the ways in which they affect both access to and use of medical services. Group practices, sponsored by the Robert Wood Johnson Foundation Community Hospital Program (CHP), were selected for use in this assessment. The data were collected by the Center for Health Administration Studies at the University of Chicago, with the assistance of Chilton Research Services. Two surveys were conducted for the study: a baseline survey in 1978-1979 and a follow-up in 1981. Community residents and CHP patients in 12 communities were interviewed. Demographic and medical care data were collected for selected individuals and families in the survey areas. Data on regular sources of medical care for individuals include the type of organization used, type of practice, accessibility, frequency of visits, types of health care professionals seen, cost, and satisfaction. Also in the collection are data on perceived health, episodes of illness (including symptoms, duration, disability days, and doctors consulted), use of preventive health care services, and insurance coverage. Demographic data for individuals and families include age, sex, race, educational attainment, employment, and income. Of the 198 files in this collection, 88 are "raw" data files and 110 are frequencies. The data files consist of four types. The first type are Sample Person files. These contain the responses of group practice patients and community members. The second type are Doctor Episode files, which record doctors and episodes of illness. Family files make up the third type of file, and consist of family members' responses to the survey. Analysis files, linking patient and doctor data, are the fourth type of file. The SPSS frequency files correspond to the data files: two per file for the Sample Person files, and one per file for the remaining three types of files.
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Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults, 2008 [United States] (ICPSR 27181)

Released/updated on: 2024-02-14
Geographic coverage: United States, Texas, Massachusetts, Hawaii, California, Georgia, New York (state), Wisconsin
Time period: 2008-01-01--2009-01-01

This is the second round of the Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults. Like the first round, which was fielded in 2002 and released as ICPSR 4301 (Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002), the second round was conducted as part of the evaluation of the CPFOA Program, an initiative of the Robert Wood Johnson Foundation (RWJF) aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private partnerships. The 2002 survey was conducted in the 13 communities in which partnerships received development grants from RWJF, and, in 2008, the survey was repeated in the eight of them in which partnerships received implementation grants from the Foundation. The goal of the survey was to improve understanding of the characteristics of older adults, their knowledge and perceptions about issues related to long-term care, and their use of long-term care services and support. In addition, the data collected by the survey enabled the communities to target the partnership's activities in the most effective way.

The second round was based on the 2002 survey instrument. Changes to the instrument were minimized so that the data from the 2002 and 2008 rounds would be comparable. The instrument was modified to delete questions that had low item response in 2002, to add questions requested by the partnerships, to add questions for decision-makers, or to modify questions that were outdated. As in 2002, the 2008 survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.

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Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002 [United States] (ICPSR 4301)

Released/updated on: 2024-02-14
Geographic coverage: Vermont, United States, Hawaii, California, New York (state), Maui, Arkansas, Michigan, Texas, Massachusetts, Georgia, Wisconsin, Boston
This survey is one component of the evaluation of the Community Partnerships for Older Adults (CPOA) Program, an initiative of the Robert Wood Johnson Foundation aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private community partnerships. The survey interviewed a representative sample of older adults aged 50 and over in 13 communities that were awarded development grants by the program. Designed to obtain baseline data about each community's population and to provide information to target the CPOA's activities in the most effective way, the survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.
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Community Tracking Study Household Survey, 1996-1997, and Followback Survey, 1997-1998: [United States] (ICPSR 2524)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-07-01--1997-07-01, 1997-10-01--1998-08-01
This data collection comprises two components of the Community Tracking Study (CTS), the Household Survey and the Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. At the beginning of each interview, a household informant was identified and queried about the composition of the household. With this information, individuals in the household were grouped into family insurance units (FIU). An FIU reflects family groupings typically used by insurance carriers. It includes an adult household member, his or her spouse, if any, and any dependent children 0-17 years of age (or 18-22 years of age if a full-time student). Family informants, selected from each FIU in the household, provided information on health insurance coverage, health care use, usual source of care, and the general health of all persons in the FIU. These informants also provided information on family income and out-of-pocket expenses for health care, as well as employment, race, and Hispanic origin for all adult FIU members. Each adult in the household, including the FIU informants, responded through a self-response module to questions regarding unmet health care needs, patient trust, satisfaction with physician choice, limitations in daily activities, smoking behaviors, and last doctor visit. In FIUs with more than one child under 18, only one child was randomly selected for inclusion in the survey. The family informant responded on behalf of the child regarding unmet needs and satisfaction with physician choice. The adult family member who took this child to his or her last doctor visit responded to questions about the visit. The Followback Survey was designed to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to health plans and other organizations that offered or administered the comprehensive private health insurance policies covering Household Survey respondents in the 60 CTS sites. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--2000-01-01
This collection comprises the second round of the Community Tracking Study (CTS) Household Survey and the second round of the CTS Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] (ICPSR 2524)), the second round of the Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. The purpose of the Followback Survey was to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to the health plans and other organizations (managed care organizations, third-party administrators, employer or union plans, and employers) that offered or administered the respondents' comprehensive private health insurance policies. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This collection comprises the third round of the Community Tracking Study (CTS) Household Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and the effects of those changes on people. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the Household Survey (ICPSR 2524 and 3199), the third round was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. A new set of sample design variables was added to the third round data for variance estimation by statistical software packages other than SUDAAN.
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Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)

Released/updated on: 2007-12-03
Geographic coverage: United States
Time period: 2003-01-01--2004-01-01
This collection contains data and documentation for the fourth round of the Community Tracking Study (CTS) Household Survey. Sponsored by the Robert Wood Johnson Foundation, the CTS is a national study designed to track changes in the United States' health care system and their effects. The fourth round was administered to households in the 60 CTS sites: 51 metropolitan areas and nine nonmetropolitan areas which were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The first round of the CTS Household Survey was conducted in 1996-1997 (ICPSR 2524), the second round in 1998-1999 (ICPSR 3199), and the third in 2000-2001 (ICPSR 3764). Respondents to the fourth round provided information about health insurance coverage, use of health services, unmet needs for health care, children's special health care needs, out-of-pocket medical costs, patient trust in physicians, sources of health information, attitudes about medical care, and satisfaction with health care and health plans. Health status, chronic conditions, and risk attitudes and smoking behavior were additional topics covered by the fourth round questionnaire. The data include variables on height and weight, employment, income, ethnicity, race, United States citizenship, household composition, and demographic characteristics.
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Community Tracking Study Physician Survey, 1996-1997: [United States] (ICPSR 2597)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-08-01--1997-08-01
Sponsored by the Robert Wood Johnson Foundation, this survey is one component of the Community Tracking Study (CTS), a national study designed to track changes in the health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Physician Survey was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. Information gathered by the survey instrument includes physician supply and specialty distribution, practice arrangements and physician ownership of practices, sources of practice revenue, level and determinants of physician compensation, effects of care management strategies, and physicians' allocation of time, provision of charity care, career satisfaction, and perceptions of their ability to deliver care. For primary care physicians, the survey instrument also provided vignettes of various clinical presentations for which there was no prescribed method of treatment. These physicians were asked to indicate the percentage of patients for whom they would recommend the course of action specified in each particular vignette. Part 3, the Site and County Crosswalk Data File, describes which counties constitute each site. Part 4, the Physician Survey Summary File, contains site-level averages and percentages and standard errors of these estimates for selected attributes, e.g., the percentage of physicians who were foreign medical school graduates, average age of physicians, average percentage of patient care practice revenue from Medicaid, etc.
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Community Tracking Study Physician Survey, 1998-1999: [United States] (ICPSR 3267)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--1999-01-01

This study comprises the second round of the physician survey component of the Community Tracking Study (CTS) sponsored by the Robert Wood Johnson Foundation. The CTS is a national study designed to track changes in the American health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the physician survey (COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597)), the second round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, views on care management strategies, and various other aspects of physicians' practice of medicine. In addition, primary care physicians (PCPs) were asked to recommend courses of action in response to some vignettes of clinical presentations for which there was no prescribed method of treatment.

Dataset 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site.

Dataset 4, the Physician Survey Summary File, contains site-level estimates and standard errors of the estimates for selected physician characteristics, e.g., the percentage of physicians who were foreign medical school graduates, the mean age of physicians, and the mean percentage of patient care practice revenue from Medicaid.

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Community Tracking Study Physician Survey, 2000-2001: [United States] (ICPSR 3820)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This study comprises the third round of the physician survey component of the Community Tracking Study (CTS). Sponsored by the Robert Wood Johnson Foundation, the CTS is a large-scale investigation of changes in the health care system and their effects on people. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the physician survey, COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597) and COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1998-1999: [UNITED STATES] (ICPSR 3267), the third round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, effects of care management strategies, and various other aspects of physicians' practice of medicine. Part 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site. Part 4, Physician Survey Summary File, contains site-level estimates and standard errors for selected physician characteristics, e.g., the average age of physicians, the percentage of physicians who were either very or somewhat dissatisfied with their overall career in medicine, and the average percentage of patients with prescription coverage that included the use of a formulary.
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Community Tracking Study Physician Survey, 2004-2005: [United States] (ICPSR 4584)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2004-01-01--2005-01-01
This is the fourth round of the physician survey component of the Community Tracking Study (CTS). The first round was conducted in 1996-1997 (ICPSR 2597), the second round in 1998-1999 (ICPSR 3267), and the third in 2000-2001 (ICPSR 3820). Sponsored by the Robert Wood Johnson Foundation, the CTS is a large-scale investigation of changes in the American health care system and their effects on people. As in the previous rounds, physicians were sampled in the 60 CTS sites: 51 metropolitan and 9 nonmetropolitan areas that were randomly selected to form the core of the CTS and to be representative of the nation as a whole. However, the fourth round lacks an independent supplemental national sample of physicians, which augmented the CTS site sample in the previous rounds. Information collected by the survey includes net income from the practice of medicine, year of birth, sex, race, Hispanic origin, year of graduation from medical school, specialty, board certification status, compensation model, patient mix (e.g., race/Hispanic origin of patients and percent with chronic conditions), career satisfaction, practice type, size, and ownership, percent of practice revenue from Medicare, Medicaid, or managed care, acceptance of new Medicaid and Medicare patients and, if applicable, reasons for not accepting them, use of information technology for care management, number of patient visits and hours worked in medically related activities during the last complete week of work, and the number of hours spent providing charity care in the last month. In addition, the survey elicited views on a number of issues such as patient-physician interactions, competition among practices, the influence of financial incentives on the quantity of services provided to patients, trends in the amount and quality of nursing support, one's ability to provide quality care and obtain needed services for patients, and the importance of various factors that may limit the quality of care. Part 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site. Part 4, Physician Survey Summary File, contains site-level estimates and standard errors for selected physician characteristics, e.g., the average age of physicians, the average percentage of patients with a formulary, and the percentage of physicians who said medical errors in hospitals are a minor problem.
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Effects of Preferred Provider Organizations on Health Care Use and Costs: Pooled Cross-Sectional Time Series, First Quarter 1988 Through First Quarter 1990 (ICPSR 6373)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1988-01-01--1990-03-31
This research project studied the effects of Preferred Provider Organizations (PPOs) on health care use and costs in comparison with indemnity health care plans and indemnity plans with utilization review (UR). The data cover nine quarters of a single insurer's claims experience with these types of health care plans. The unit of observation is the employer group covered by a given plan. Variables describing claims experience include number of claims, reimbursed costs after copayments and deductibles, hospital expenditures, number of hospital admissions, percent of claims in different diagnostic categories (surgery, tumors, births, and mental health), and number of tonsillectomy/adenoidectomy and colonoscopy cases. Reported characteristics of these groups include coinsurance rates, plan type, industry of employer, group mean age, percent of covered lives with dental or prescription drug coverage, and percent of covered lives that were women or dependents. In addition, the data contain variables describing the market in which each group was located, such as number of hospital beds in the city or county, number of hospitals and health maintenance organizations in the metropolitan statistical area, median rental cost for housing units in the city or county, percent of county or city that was Black or age 65 or older, number of nonfederal physicians in the county, and number of PPOs in the state.
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Extending Health Insurance to the Working Poor: An Assessment of Health Status and Health Care Utilization Effects Among New York City Home Health Attendants, February 1990-June 1991 (ICPSR 9774)

Released/updated on: 2006-01-12
Geographic coverage: New York City
Time period: 1990-02-01--1991-06-01
Using a pre- and post-program design, this survey studied newly-hired home health attendants and their families, most of whom were without medical insurance until they became eligible for health benefits through their union. To assess changes in health status and health services utilization, the attendants were interviewed at the point of union enrollment, and again nine months later. The interview taken prior to enrollment in the benefits program elicited information about concern over health, recent injuries, and self-assessed health status, e.g., the presence or absence of specific health conditions such as diabetes, ulcers, arthritis, stomach trouble, high blood pressure, allergies, asthma, and back problems. Respondents were also queried about the extent and type of previous health coverage (including Medicare and disability insurance), limitations of daily functioning due to poor health, and recent health care utilization, including hospitalization, emergency room usage, and routine ambulatory care. The latter included questions about out-of-pocket expenses and the type of health services received, such as X-rays, CAT scans, sonograms, laboratory tests, electrocardiograms, stress tests, surgery, and setting of bones. Other questions addressed utilization issues of particular relevance to the New York City area, e.g., the use of city hospital clinics. The post-enrollment survey included parallel follow-up questions, as well as questions regarding the respondent's employment status and current benefits. Additional variables in the data collection include respondent's race, Hispanic origin, place of birth, past work experience, date of birth, and sex, plus the sex and dates of birth of family members.
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Forces of Change Survey, United States, 2014, Restricted-Use Level 1 Data (ICPSR 36153)

Released/updated on: 2018-11-20
Geographic coverage: United States
Time period: 2014-01-23--2014-02-28

The National Association of County and City Health Officials' (NACCHO) Forces of Change Survey is an evolution of NACCHO's Job Losses and Program Cuts Surveys (also known as the Economic Surveillance Surveys) which measured the impact of the economic recession on local health departments' (LHD) budgets, staff, and programs. The Forces of Change Survey continues to measure changes in LHD budgets, staff, and programs and assess more broadly the impact of forces affecting change in LHDs, such as health reform and accreditation. More specifically, the survey collected information about LHD staffing levels, workforce reductions, and changes in budget sizes; provided services or functions; changes in the level of service delivery; billing for clinical services; efforts to help people enroll in health insurance from exchanges under the Affordable Care Act; awareness of and involvement in the State Innovation Models Initiative; participation in the Public Health Accreditation Board's national accreditation program for LHDs; and whether LHDs are part of a combined health and human services agency.

The collection is comprised of the public-use version (Restricted-Use Level 1) of the Forces of Change 2014 dataset, and includes 133 variables for 648 cases, with demographic variables related to LHD budgets, governance type, and number of employees.

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Forces of Change Survey, United States, 2014, Restricted-Use Level 2 Data (ICPSR 37139)

Released/updated on: 2018-11-20
Geographic coverage: United States
Time period: 2014-01-23--2014-02-28

The National Association of County and City Health Officials' (NACCHO) Forces of Change Survey is an evolution of NACCHO's Job Losses and Program Cuts Surveys (also known as the Economic Surveillance Surveys) which measured the impact of the economic recession on local health departments' (LHD) budgets, staff, and programs. The Forces of Change Survey continues to measure changes in LHD budgets, staff, and programs and assess more broadly the impact of forces affecting change in LHDs, such as health reform and accreditation. More specifically, the survey collected information about LHD staffing levels, workforce reductions, and changes in budget sizes; provided services or functions; changes in the level of service delivery; billing for clinical services; efforts to help people enroll in health insurance from exchanges under the Affordable Care Act; awareness of and involvement in the State Innovation Models Initiative; participation in the Public Health Accreditation Board's national accreditation program for LHDs; and whether LHDs are part of a combined health and human services agency.

The collection is comprised of the restricted-use version (Restricted-Use Level 2) of the Forces of Change 2014 dataset, and includes 140 variables for 648 cases, with demographic variables related to LHD budgets, governance type, and number of employees.

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Forces of Change Survey, United States, 2015, Restricted-Use Level 1 Data (ICPSR 37069)

Released/updated on: 2018-09-05
Geographic coverage: United States
Time period: 2014-01-01--2014-12-31

The National Association of County and City Health Officials' (NACCHO) Forces of Change Survey is an evolution of NACCHO's Job Losses and Program Cuts Surveys (also known as the Economic Surveillance Surveys) which measured the impact of the economic recession on local health departments' budgets, staff, and programs. The Forces of Change Survey continues to measure changes in Local Health Department (LHD) budgets, staff, and programs and assess more broadly the impact of forces affecting change in LHDs, such as health reform and accreditation. More specifically, the survey collected information about LHD staffing levels, workforce reductions, and changes in budget sizes; provided services or functions; changes in the level of service delivery; billing for clinical services; efforts to help people enroll in health insurance from exchanges under the Affordable Care Act; awareness of and involvement in the State Innovation Models Initiative; participation in the Public Health Accreditation Board's national accreditation program for LHDs; and whether LHDs were part of a combined health and human services agency.

The collection is comprised of the public-use version (Restricted-Use Level 1) of the Forces of Change 2015 dataset, and includes 101 variables for 690 cases, with demographic variables related to LHD budgets.

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Forces of Change Survey, United States, 2015, Restricted-Use Level 2 Data (ICPSR 37140)

Released/updated on: 2018-09-05
Geographic coverage: United States
Time period: 2014-01-01--2014-12-31

The National Association of County and City Health Officials' (NACCHO) Forces of Change Survey is an evolution of NACCHO's Job Losses and Program Cuts Surveys (also known as the Economic Surveillance Surveys) which measured the impact of the economic recession on local health departments' budgets, staff, and programs. The Forces of Change Survey continues to measure changes in Local Health Department (LHD) budgets, staff, and programs and assess more broadly the impact of forces affecting change in LHDs, such as health reform and accreditation. More specifically, the survey collected information about LHD staffing levels, workforce reductions, and changes in budget sizes; provided services or functions; changes in the level of service delivery; billing for clinical services; efforts to help people enroll in health insurance from exchanges under the Affordable Care Act; awareness of and involvement in the State Innovation Models Initiative; participation in the Public Health Accreditation Board's national accreditation program for LHDs; and whether LHDs were part of a combined health and human services agency.

The collection is comprised of the restricted-use version (Restricted-Use Level 2) of the Forces of Change 2015 dataset, which includes 103 variables for 690 cases and demographic variables related to the size of population served and LHD budgets.

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Forces of Change Survey, United States, 2017, Restricted-Use Level 1 Data (ICPSR 37103)

Released/updated on: 2018-11-07
Geographic coverage: United States
Time period: 2017-02-21--2017-04-21

The National Association of County and City Health Officials' (NACCHO) Forces of Change Survey is an evolution of NACCHO's Job Losses and Program Cuts Surveys (also known as the Economic Surveillance Surveys) which measured the impact of the economic recession on local health departments' (LHD) budgets, staff, and programs. The Forces of Change Survey continues to measure changes in LHD budgets, staff, and programs and assess more broadly the impact of forces affecting change in local health departments, such as health reform and accreditation. This current iteration of the survey collected information about Zika response; local health departments involvement in multi-sectoral partnerships; and workforce recruitment.

The collection is comprised of the public-use version (Restricted-Use Level 1) of the Forces of Change 2017 dataset, and includes 192 variables for 948 cases, with demographic variables related to LHD budgets.

Curated

Forces of Change Survey, United States, 2017, Restricted-Use Level 2 Data (ICPSR 37141)

Released/updated on: 2018-11-07
Geographic coverage: United States
Time period: 2017-02-21--2017-04-21

The National Association of County and City Health Officials' (NACCHO) Forces of Change Survey is an evolution of NACCHO's Job Losses and Program Cuts Surveys (also known as the Economic Surveillance Surveys) which measured the impact of the economic recession on local health departments' (LHD) budgets, staff, and programs. The Forces of Change Survey continues to measure changes in LHD budgets, staff, and programs and assess more broadly the impact of forces affecting change in LHDs, such as health reform and accreditation. This current iteration of the survey collected information about Zika response; LHDs involvement in multi-sectoral partnerships; and workforce recruitment.

The collection is comprised of the restricted-use version (Restricted-Use Level 2) of the Forces of Change 2017 dataset, and includes 195 variables for 948 cases, with demographic variables related to LHD budgets.

Curated

Harvard School of Public Health/WBUR/Blue Cross Blue Shield of Massachusetts Foundation/Robert Wood Johnson Foundation Poll: Sick in Massachusetts, 2012 (ICPSR 38377)

Released/updated on: 2022-03-09
Geographic coverage: United States, Massachusetts

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Sick in Massachusetts, a survey from the Harvard School of Public Health, WBUR Boston National Public Radio, the Blue Cross Blue Shield Foundation of Massachusetts, and the Robert Wood Johnson Foundation, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Quality of health care
  • Health insurance, insurance status, and care costs
  • Reasons for health care quality problems
  • Focus of doctor visits
  • Reasons for rising health care costs
  • Health care as good value
  • Agreement with doctor statements
  • Amount of doctors
  • Attending routine check-ups
  • Overnight stays in hospitals
  • Satisfaction with hospital care
  • Medical costs as reasonable
  • Description of hospital stay
  • Recent serious illness
  • Satisfaction with medical care
  • Interactions with health care professionals
  • Impact of medical costs on family
  • Receiving care every time it's needed
  • Being turned away for health care
  • Insurance premiums as financial problem
  • Out-of-pocket medical costs
  • Negotiating lower charges
  • Problems paying for insurance
  • Changing regular doctor
  • Personal financial situation

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092353]. Frequencies and summary statistics for the 162 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

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Health Reform Monitoring Survey, United States, April 2021 (ICPSR 38526)

Released/updated on: 2023-04-12
Geographic coverage: United States
Time period: 2021-04-01--2021-04-30
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the 20th round of the survey (April 2021) include self-reported health status, health insurance coverage, access to health care, awareness of Marketplace and Medicaid coverage options, use of public benefits, telehealth, COVID-19 vaccine attitudes, forgone care because of the COVID-19 pandemic, and unfair treatment in health care settings. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race and ethnicity, United States citizenship, housing type, home ownership, internet access, income, and employment status.
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Health Reform Monitoring Survey, United States, First Quarter 2013 (ICPSR 35624)

Released/updated on: 2019-05-16
Geographic coverage: United States
Time period: 2013-01-31--2013-02-11, 2013-02-26--2013-03-11
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a quarterly survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the first round of the survey (first quarter 2013) include self-reported health status, type of and satisfaction with current health insurance coverage, access to and use of health care, and health care affordability. Additional information collected by the survey includes age, education, race, Hispanic origin, gender, income, household size, housing type, marital status, employment status, United States citizenship, smoking, internet access, home ownership, body mass index, sexual orientation, and whether the respondent reported an ambulatory care sensitive condition or a mental or behavioral condition.
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Health Reform Monitoring Survey, United States, First Quarter 2014 (ICPSR 35614)

Released/updated on: 2019-08-19
Geographic coverage: United States
Time period: 2014-02-28--2014-03-20
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a quarterly survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the fifth round of the survey (first quarter 2014) include self-reported health status, type of and satisfaction with current health insurance coverage, access to and use of health care, health care affordability, awareness of key provisions of the ACA, sources of information about the health plans in the new ACA health insurance exchanges (healthcare.gov), the importance of various criteria in choosing health insurance plans, and whether the respondent enrolled in health insurance through healthcare.gov. Additional information collected by the survey includes age, education, race, Hispanic origin, gender, income, household size, housing type, marital status, employment status, United States citizenship, smoking, internet access, home ownership, body mass index, sexual orientation, and whether the respondent reported an ambulatory care sensitive condition or a mental or behavioral condition.
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Health Reform Monitoring Survey, United States, First Quarter 2015 (ICPSR 36364)

Released/updated on: 2019-08-22
Geographic coverage: United States
Time period: 2015-03-04--2015-03-22
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a quarterly survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the first quarter 2015 survey (the ninth round of the HRMS) include self-reported health status, awareness of key provisions of the ACA, sources of information about the health plans offered in the ACA marketplace, whether health insurance was purchased through the ACA marketplace, difficulties with access to health care and paying for medical bills and housing costs, out-of-pocket health care costs, type of health insurance coverage if any, and reasons for not having health insurance. Respondents who enrolled in a health insurance plan through the ACA marketplace in 2014 were asked if and why they renewed or changed their plan in 2015. Additional information collected by the survey includes age, gender, sexual orientation, marital status, family size, education, race, Hispanic origin, United States citizenship, housing type, home ownership, internet access, income, employment status, and employer size. The data file also records whether the respondent reported an ambulatory care sensitive condition or a mental or behavioral health condition and whether the respondent or a family member received Social Security, Supplemental Security Income, unemployment insurance benefits or benefits though the Supplement Nutrition Assistance Program, Earned Income Tax Credit, Temporary Assistance for Needy Families, or child care services or child care assistance from a local welfare agency or case manager.
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Health Reform Monitoring Survey, United States, First Quarter 2016 (ICPSR 36744)

Released/updated on: 2019-08-22
Geographic coverage: United States
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the 11th round of the survey (first quarter 2016) include self-reported health status, type of health insurance coverage, access to and use of health care, out-of-pocket health care costs, health care affordability, health insurance literacy, feelings of unfair treatment by doctors and other health care providers, experience with health insurance marketplaces, awareness of ACA provisions, and rating of neighborhood characteristics. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race, Hispanic origin, United States citizenship, housing type, home ownership, internet access, income, employment status, employer size, body mass index, and whether the respondent reported an ambulatory care sensitive condition or a mental or behavioral condition.
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Health Reform Monitoring Survey, United States, First Quarter 2017 (ICPSR 37031)

Released/updated on: 2019-07-01
Geographic coverage: United States
Time period: 2017-01-01--2017-03-01
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the 13th round of the survey (first quarter 2017) include self-reported health status, health insurance coverage, access to and use of health care, out-of-pocket health care costs, health care affordability, health insurance literacy, dental care, opinions of the ACA, and rating of neighborhood characteristics. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race, Hispanic origin, United States citizenship, housing type, home ownership, internet access, income, employment status, and employer size.
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Simple Crosstabs

Health Reform Monitoring Survey, United States, First Quarter 2018 (ICPSR 37304)

Released/updated on: 2019-06-10
Geographic coverage: United States
Time period: 2018-01-01--2018-03-01
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the 15th round of the survey (first quarter 2018) include self-reported health status, health insurance coverage, access to and use of health care, out-of-pocket health care costs, health care affordability, work experience, consumer experiences with health insurance marketplaces, the individual mandate, attitudes toward health plans that are not ACA-compliant, attitudes toward Medicaid work requirements, trust in health care providers, and plan quality ratings. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race, Hispanic origin, United States citizenship, housing type, home ownership, internet access, income, employment status, and employer size.
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Health Reform Monitoring Survey, United States, First Quarter 2019 (ICPSR 37630)

Released/updated on: 2020-07-14
Geographic coverage: United States
Time period: 2019-01-01--2019-03-01
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the 17th round of the survey (first quarter 2019) include self-reported health status, health insurance coverage, access to and use of health care, out-of-pocket health care costs, health care affordability, work experience, awareness of Medicaid work requirements, attitudes toward proposals to expand health insurance coverage, and short-term health plans. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race, Hispanic origin, United States citizenship, housing type, home ownership, internet access, income, employment status, and employer size.
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Health Reform Monitoring Survey, United States, First Quarter 2020 (ICPSR 38110)

Released/updated on: 2022-02-10
Geographic coverage: United States
Time period: 2020-03-01--2020-04-30
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the 19th round of the survey (first quarter 2020) include self-reported health status, health insurance coverage, access to health care, trust in the health care system, use of public benefits, material hardship, and the COVID-19 pandemic. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race and ethnicity, United States citizenship, housing type, home ownership, internet access, income, and employment status.
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Health Reform Monitoring Survey, United States, Fourth Quarter 2013 (ICPSR 35621)

Released/updated on: 2019-08-07
Geographic coverage: United States
Time period: 2013-12-06--2013-12-23
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a quarterly survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the fourth round of the survey (fourth quarter 2013) include self-reported health status, type of and satisfaction with current health insurance coverage, access to and use of health care, health care affordability, use of information about the health insurance plans offered through the health insurance exchanges created by the ACA, enrollment in health plans or Medicaid through the ACA exchanges, the importance of various criteria in choosing health insurance plans, whether the respondent received notice that his/her current insurance policy was cancelled or would no longer be offered after 2013, worries about future health insurance coverage, and expectations about one's health insurance coverage in 2014. Additional information collected by the survey includes age, education, race, Hispanic origin, gender, income, household size, housing type, marital status, employment status, United States citizenship, smoking, internet access, home ownership, body mass index, sexual orientation, and whether the respondent reported an ambulatory care sensitive condition or a mental or behavioral condition.
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Simple Crosstabs

Health Reform Monitoring Survey, United States, Fourth Quarter 2014 (ICPSR 36287)

Released/updated on: 2019-08-19
Geographic coverage: United States
Time period: 2014-12-02--2014-12-29
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a quarterly survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the eight round of the survey (fourth quarter 2014) include self-reported health status, type of and satisfaction with health insurance coverage, access to and use of health care, out-of-pocket health care costs, health care affordability, and awareness of various provisions of the ACA. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race, Hispanic origin, United States citizenship, housing type, home ownership, internet access, income, receipt of government benefits, employment status, and employer size.
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Health Reform Monitoring Survey, United States, June 2022 (ICPSR 38774)

Released/updated on: 2024-08-08
Geographic coverage: United States
Time period: 2022-06-01--2022-07-31
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the 21st round of the survey (June 2022) include self-reported health status, health insurance coverage, access to health care, disability, COVID-19, awareness of the Medicaid continuous coverage requirement, past-due medical debt, unfair treatment in health care settings, food security, and access to transportation. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race and ethnicity, United States citizenship, housing type, home ownership, internet access, income, and employment status.
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Simple Crosstabs

Health Reform Monitoring Survey, United States, Second Quarter 2013 (ICPSR 35623)

Released/updated on: 2019-07-10
Geographic coverage: United States
Time period: 2013-06-27--2013-07-24
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a quarterly survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the second round of the survey (second quarter 2013) include self-reported health status, type of and satisfaction with current health insurance coverage, access to and use of health care, health care affordability, whether the respondent considered purchasing or tried to purchase health insurance coverage directly from an insurance company, whether the respondent considered obtaining coverage through Medicaid or other government sponsored assistance plan based on income or disability, sources of information about health insurance, and the importance of various criteria in choosing a health insurance plan. Additional information collected by the survey includes age, education, race, Hispanic origin, gender, income, household size, housing type, marital status, employment status, number of employees at place of work, United States citizenship, smoking, internet access, home ownership, body mass index, sexual orientation, and whether the respondent reported an ambulatory care sensitive condition or a mental or behavioral condition.
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Simple Crosstabs

Health Reform Monitoring Survey, United States, Second Quarter 2014 (ICPSR 36045)

Released/updated on: 2019-08-07
Geographic coverage: United States
Time period: 2014-06-03--2014-06-20
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a quarterly survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the sixth round of the survey (second quarter 2014) include self-reported health status, type of and satisfaction with current health insurance coverage, access to and use of health care, health care affordability, awareness of key provisions of the ACA, opinions about the ACA, sources of information about the health plans in the ACA health insurance exchanges (healthcare.gov), the importance of various criteria in choosing health insurance plans, whether the respondent enrolled in health insurance through healthcare.gov, and how easy or hard it was to use healthcare.gov. Additional information collected by the survey includes income, employment status, age, education, race, gender, housing type, marital status, home ownership, internet access, ability to read and work with numbers, and sexual orientation. The data file also records whether the respondent reported an ambulatory care sensitive condition or reported a mental or behavioral health condition, and whether the respondent or a family member received unemployment insurance benefits or benefits though the Supplement Nutrition Assistance Program, Earned Income Tax Credit, Temporary Assistance for Needy Families, or child care services or child care assistance from a local welfare agency or case manager.
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Health Reform Monitoring Survey, United States, Third Quarter 2013 (ICPSR 35622)

Released/updated on: 2019-05-14
Geographic coverage: United States
Time period: 2013-09-11--2013-09-30
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a quarterly survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the third round of the survey (third quarter 2013) include self-reported health status, type of and satisfaction with current health insurance coverage, access to and use of health care, health care affordability, opinions about the ACA, awareness of key provisions of the ACA, expected health insurance coverage in 2014, and whether the respondent or respondent's family were affected by provisions of the ACA. Additional information collected by the survey includes age, education, race, Hispanic origin, gender, income, household size, housing type, marital status, employment status, United States citizenship, smoking, internet access, home ownership, body mass index, sexual orientation, and whether the respondent reported an ambulatory care sensitive condition or a mental or behavioral condition.
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Health Reform Monitoring Survey, United States, Third Quarter 2014 (ICPSR 36208)

Released/updated on: 2019-08-29
Geographic coverage: United States
Time period: 2014-09-11--2014-09-30
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a quarterly survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the seventh round of the survey (third quarter 2014) include self-reported health status, health insurance coverage, access to and use of health care, health care affordability, and awareness of various provisions of the ACA. Additional information collected by the survey includes income, employment status, age, education, race, Hispanic origin, United States citizenship, gender, housing type, marital status, home ownership, internet access, and sexual orientation.
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Health Reform Monitoring Survey, United States, Third Quarter 2015 (ICPSR 36743)

Released/updated on: 2019-09-05
Geographic coverage: United States
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the third quarter 2015 survey (the tenth round of the HRMS) include self-reported health status, type of and satisfaction with health insurance coverage, access to and use of health care, out-of-pocket health care costs, health care affordability, health insurance literacy, feelings of unfair treatment by doctors and other health care providers, and rating of neighborhood characteristics. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race, Hispanic origin, United States citizenship, housing type, home ownership, internet access, income, employment status, employer size, body mass index, and whether the respondent reported an ambulatory care sensitive condition or a mental or behavioral condition.
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Health Reform Monitoring Survey, United States, Third Quarter 2016 (ICPSR 36842)

Released/updated on: 2019-06-27
Geographic coverage: United States
Time period: 2016-09-01--2016-11-01
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the 12th round of the survey (third quarter 2016) include self-reported health status, type of health insurance coverage, access to and use of health care, out-of-pocket health care costs, health care affordability, health insurance literacy, feelings of unfair treatment by doctors and other health care providers, experience with health insurance marketplaces, awareness of ACA provisions, and rating of neighborhood characteristics. Demographic information collected by the survey includes age, gender, sexual orientation, marital status, education, race, Hispanic origin, United States citizenship, housing type, home ownership, internet access, income, employment status, employer size, body mass index, and whether the respondent reported an ambulatory care sensitive condition or a mental or behavioral condition.
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Health Reform Monitoring Survey, United States, Third Quarter 2018 (ICPSR 37487)

Released/updated on: 2020-02-25
Geographic coverage: United States
Time period: 2018-07-01--2018-09-30
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the 16th round of the survey (third quarter 2018) include self-reported health status, health insurance coverage, access to and use of health care, out-of-pocket health care costs, health care affordability, work experience, awareness of Medicaid work requirements, experiences with health care and social service providers, and health plan choice. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race, Hispanic origin, United States citizenship, housing type, home ownership, internet access, income, employment status, and employer size.
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Health Reform Monitoring Survey, United States, Third Quarter 2019 (ICPSR 37922)

Released/updated on: 2021-01-21
Geographic coverage: United States
Time period: 2019-07-01--2019-09-01
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the 18th round of the survey (third quarter 2019) include self-reported health status, health insurance coverage, access to and use of health care, out-of-pocket health care costs, health care affordability, awareness of and attitudes toward Medicaid work requirements, health savings accounts, flexible spending accounts, access to behavioral health care and dental care, and attitudes toward proposals to expand health insurance coverage. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race, Hispanic origin, United States citizenship, housing type, home ownership, internet access, income, employment status, and employer size.
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Hospitalized Older Persons Evaluation (HOPE) Study, 1991-1993: [California] (ICPSR 6560)

Released/updated on: 2006-01-12
Geographic coverage: United States, California
Time period: 1991-03-01--1993-05-31
The HOPE study was a multi-center randomized clinical trial mounted to determine the effects of hospital inpatient consultative comprehensive geriatric assessment (CGA) under typical practice conditions on selected patient health and health services utilization outcomes. The main outcome measures were functional status, health status, mortality, rehospitalization, and total use of health care services for hospital patients 65 years of age and older. Functional status was evaluated by questions about limitations in patients' activities of daily living due to health problems. Also included were items covering living arrangements (with whom and where), ethnicity, education, and marital status. Health status questions covered patients' perceptions of mental health and current physical health. The functional and health status of patients was measured prior to CGA treatment and randomization, again at 3 months post-randomization, and at 12 months post-randomization. Functional and health status data are included in Parts 3-8. Health services utilization data (Parts 9-15) cover patient use of medical services such as urgent care, emergency room, radiology, durable medical equipment, and medications (prescribed and over the counter). Mortality information (Part 17) includes date of lost contact or death, and data source of survival status. Hospitalization measures (Part 18) include date of admission and discharge, admittance source diagnoses and procedures, and inpatient/outpatient status.
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Integrated Public Health Surveys, 2010-2011 (ICPSR 33822)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2010-01-01--2011-01-01

This collection comprises a single data file which was produced as part of the data harmonization efforts of the Robert Wood Johnson Foundation and the United States Centers for Disease Control and Prevention. The file contains merged data from five sources:

  1. 2010 National Profile of Local Health Departments, a survey of local health departments conducted by the National Association of County and City Health Officials (NACCHO).

  2. 2011 National Profile Survey of Local Boards of Health, a survey of local boards of health conducted by the National Association of Local Boards of Health (NALBOH).

  3. 2010 State and Territorial Public Health Survey, a survey of state and United States territory health departments conducted by the Association of State and Territorial Health Officials (ASTHO).

  4. 2011 County Health Rankings, a compilation of county-level health measures and within-state county health rankings produced by the University of Wisconsin Population Health Institute.

  5. 2010 Census Demographic Profile Summary File, a series of tables with housing and population data from the 2010 Census.

Produced by matching data from the last four sources to the NACCHO data, the data file contains one case for each of the 2,107 local health departments (LHD) that responded to the NACCHO survey. Each LHD's record in the file includes the ASTHO data for its state health department and the NALBOH data for its local board of health (LBH), if it had a LBH and the LBH responded to the NALBOH survey. (If a LHD had multiple LBHs, then the first one in the NALBOH data was matched to the LHD). In addition, county (or county equivalent)-level data from the County Health Rankings and Census Demographic Profile Summary File were matched to the records of the 1,535 LHDs represented in the data file with a jurisdiction covering a single county or county equivalent.

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Local Health Department Infrastructure Study, 1999-2000: [United States] (ICPSR 3185)

Released/updated on: 2024-02-14
Time period: 1999-01-01--2000-01-01
The purpose of this survey was to address the paucity of current data on the United States' local public health infrastructure and to advance understanding of the many ways local public health agencies contribute to keeping the nation's population and environment healthy. The survey collected information on local health department (LHD) characteristics (e.g., type of jurisdiction served, office to which the LHD reported directly, total expenditures, and sources of the LHD's total budget), priority program areas, and public health services provided directly or through contracts with others. Additional data cover LHD workforce composition, staffing needs, workforce training, and partnerships and collaborations with other groups and organizations, such as state or federal agencies, hospitals, HMOs, community health centers, universities, community-based organizations, professional associations, faith communities/churches, and business/private corporations. LHDs also reported on completion of community health assessments and development of community health improvement plans.
Curated
Partially restricted

Memphis New Mothers Study, 1990-1994 (ICPSR 6782)

Released/updated on: 2024-02-14
Geographic coverage: United States, Tennessee, Memphis
Time period: 1990-06-01--1994-04-30
This study was a randomized trial that tested the effectiveness of home visitation by nurses as a means of enhancing the health and well-being of socially disadvantaged women and their first-born children. Low-income, pregnant women bearing first babies were randomly assigned to four treatment groups: (1) subjects that received free transportation to prenatal care, (2) subjects that received transportation to prenatal care and developmental screening for the children, (3) subjects that received transportation to prenatal care and developmental screening, plus prenatal home visits by nurses, and (4) subjects that received transportation to prenatal care, developmental screening, prenatal home visits, and postnatal home visits by nurses. Assessments of the women covered health-related behaviors, mother's care-giving environment, child's health and development, levels of social support, mother's psychological resources, personal life-course development, and costs of health care. Variables measuring health-related behaviors included the use of cigarettes and illegal drugs and the presence of sexually-transmitted diseases. The mother's care-giving environment and the child's health and development were evaluated by the Bavolek adult-adolescent parenting interview score, the Caldwell home observation scale, the Bayley mental development index, the Achenbach child behavioral problems inventory, and other indices. Levels of social support were evaluated by the amount of support expected to be received from a boyfriend or husband and the mother's mother. Assessments of maternal psychological resources included the Pearlin mastery scale, the Shipley IQ score, and the Bandura self-efficacy score. Personal life-course development was assessed by the respondents' educational and occupational achievements, and the numbers of subsequent pregnancies and children. Variables measuring the effect of the program on the cost of health care include number of hospital emergency room visits, number of hospitalizations, total length of stay, number of well-child and ill-child doctor visits, and use of community social services. Other variables provide information on age at birth, pre-pregnancy weight, birth weight and gender, race, employment status, income, housing density, and education.
Curated

National Evaluation of Rural Primary Health Care Programs, 1979-1982 (ICPSR 8534)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1979-01-01--1982-01-01
This data collection effort was undertaken in order to determine what kinds of program development strategies prove most effective for health care programs in different communities, specifically those defined as rural. Effectiveness of these programs was measured in terms of patient access to medical care, stability of the health care programs, and the impact of the programs on those they serve. General areas investigated in the surveys include program developmental methods, administrative structure, community setting, provider characteristics, financial policy, range of services offered, and consumer satisfaction.