Aligning Forces for Quality Evaluation: Consumer Survey Round 1, 2007-2008 and 2010 (ICPSR 35259)
American Health Values Survey (AHVS): Sentinel Communities Segmentation, 5 American communities, 2016-2017 (ICPSR 37910)
The American Health Values Survey (AHVS) was conducted by the National Opinion Research Center (NORC) at the University of Chicago in order to develop a typology of Americans based on their health values and beliefs. The survey, of more than 10,000 adults from five individual communities, examined values and beliefs related to health at both the individual as well as societal levels. The community surveys sought to compare differences between the local typologies, but also to investigate any similarities with national typology groups. The survey assessed the importance of health in:
- day-to-day personal life (i.e. the amount of effort spent on disease prevention as well as appropriate seeking of medical care);
- equity, the value placed on the opportunity to succeed generally in life as well as on health equity;
- social solidarity, the importance of taking into account the needs of others as well as personal needs;
- health care disparities, views about how easy/hard it is for African Americans, Latinos and low-income Americans to get quality health care;
- and, the importance of the social determinants of health.
In addition, the survey also explored views about how active government should be in health; collective efficacy, the ease of affecting positive community change by working with others; and health-related civic engagement e.g. the support of health charities and organizations working on health issues.
There are public-use and restricted-use versions of the data provided for each of the five sentinel communities participating in this study. Although each site differs on the number of respondents as listed below, each data file contains the same 143 variables for each site and version of the data. The only difference between the public-use versus restricted-use versions of the data is the variable ZIP, which was MASKED in the public-use version.
- DS1 and DS2 - Baltimore, Maryland: 2,139
- DS3 and DS4 - Maricopa County, Arizona: 2,247
- DS5 and DS6 - Stockton, California: 2,127
- DS7 and DS8 - Mobile, Alabama: 1,821
- DS9 and DS10 - North Central counties in Nebraska: 2,846
American Health Values Survey II, [United States], 2019-2020 (ICPSR 38818)
The Robert Wood Johnson Foundation (RWJF) has a vision to build a Culture of Health (CoH) by making health a shared national priority, one valued and advanced by multiple stakeholders across all sectors of society. This vision embraces a very broadly integrated and comprehensive approach to health, one where well-being lies at the center of every aspect of American life. In 2014, the RWJF commissioned NORC at the University of Chicago to plan and conduct the first American Health Values Survey (AHVS) to understand the extent to which United States adults held views consistent with this vision. The idea was to explore which types of United States adults were more supportive and less supportive of the goal and what the differences were between the more and less supportive groups. To aid in the understanding of these differences, NORC developed a typology of United States adults based on their values and beliefs related to the CoH vision.
Using a large-scale national survey fielded in late 2015 and early 2016, NORC identified six major segments of the population of adults in the United States based on their differing health values and beliefs and developed detailed profiles of each segment that described their pattern of values and beliefs as well as their demographic, political and other characteristics. NORC subsequently replicated the typology development work in five RWJF Sentinel Communities across the nation and also developed a typology of rural America. The same segments, or similar ones, were common across various geographic areas of the United States. Four years have since passed, in which changes occurred in the country. RWJF in 2019 commissioned NORC to conduct a second national, cross-sectional survey (AHVS II) in late 2019 and early 2020.
Assessment of a Program of Public Information on Health Care Reform, 1992-1993: [Wichita, Kansas, and Des Moines, Iowa] (ICPSR 6066)
Associated Press Health Care Reform Survey, by Stanford University with the Robert Wood Johnson Foundation, August-September 2010 [United States] (ICPSR 30422)
Associated Press Poll on the Health Care Overhaul, by Stanford University With the Robert Wood Johnson Foundation, October-November 2009 [United States] (ICPSR 30421)
Communities in Charge Survey, 2001-2003 [Alameda County, California, Austin, Texas, and Southern Maine] (ICPSR 4638)
Community Hospital Program (CHP) Access Impact Evaluation Surveys, 1978-1979, 1981 (ICPSR 8245)
Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)
Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)
Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)
Consumer Healthcare Experience State Surveys, United States, 2022 (ICPSR 38596)
Altarum's Consumer Healthcare Experience State Survey (CHESS) and Medical Debt Survey are designed to elicit respondents' unbiased views on a wide range of health system issues, including confidence in using the health system, financial burden, medical debt, and views on fixes that might be needed. The surveys use a web panel from Dynata with a demographically balanced sample of approximately 1,500 respondents who live in a targeted state. The surveys were conducted in English or Spanish and restricted to adults ages 18 and older. Respondents who finished the surveys in less than half the median time were excluded from the final sample.
COVID-19 and the Experiences of Populations at Greater Risk: Wave 1 General Population, United States, 2020-2021 (ICPSR 38736)
In the context of COVID-19, RAND and the Robert Wood Johnson Foundation have partnered to build from the National Survey of Health Attitudes to implement a longitudinal survey to understand how health views and values have been affected by the experience of the pandemic, with particular focus on populations deemed vulnerable or underserved, including people of color and those from low-to moderate-income backgrounds.
Questions in this COVID-19 survey focused specifically on experiences related to the pandemic (e.g., financial, physical, emotional), how respondents viewed the disproportionate impacts of the pandemic, whether and how respondents' views and priorities regarding health actions and investments are changing (including the roles of government and the private sector), and how general values about such issues as freedom and racism may be related to pandemic views and response expectations.
This study includes the results for Wave 1 for the general population.
Demographic information includes sex, marital status, household size, race and ethnicity, family income, employment status, age, and census region.
COVID-19 and the Experiences of Populations at Greater Risk: Wave 1, United States, 2020-2021 (ICPSR 38732)
In the context of COVID-19, RAND and the Robert Wood Johnson Foundation have partnered to build from the National Survey of Health Attitudes to implement a longitudinal survey to understand how health views and values have been affected by the experience of the pandemic, with particular focus on populations deemed vulnerable or underserved, including people of color and those from low-to moderate-income backgrounds.
This is the first of a four-wave survey intended for individuals and organizations interested in learning more about public attitudes about a Culture of Health and how COVID-19 specifically may influence views about health, health investments, and how different populations are affected. This a longitudinal study, collecting data in four waves. The study also included 2 populations: A sample of populations at greater risk, and a general population sample. This study includes the results for Wave 1 for populations at greater risk. Demographic info includes sex, marital status, household size, race and ethnicity, family income, employment status, age, and census region.COVID-19 and the Experiences of Populations at Greater Risk: Wave 2, United States, 2020-2021 (ICPSR 38733)
In the context of COVID-19, RAND and the Robert Wood Johnson Foundation partnered again to build from the National Survey of Health Attitudes to implement a longitudinal survey to understand how health views and values have been affected by the experience of the pandemic, with particular focus on populations deemed vulnerable or underserved, including people of color and those from low- to moderate-income backgrounds.
The study is a longitudinal study, collecting data in four waves. The study also included 2 populations: A sample of populations at greater risk, and a general population sample. This study includes the results for Wave 2 for populations at greater risk.
One previous wave and two future waves were conducted. The questions in the surveys were largely similar across all four waves. All respondents who participated in Wave 1 were invited to participate in the future waves.
Demographic info includes sex, marital status, household size, race and ethnicity, family income, employment status, age, and census region.
Developing the PROMIS-Preference Score for Monitoring Population Health Outcomes, United States, 2017 (ICPSR 37516)
This is a United States nationally representative survey of 4142 respondents age 18 and older from the National Opinion Research Center Amerispeak panel. The study survey includes self rated health, 4 summary measures of health, questions about chronic conditions, and questions about social determinants of health. Basic demographic information is included in this study regarding age, education, race/ethnicity, gender, household size, housing type, household income, marital status, and employment status.
The National Opinion Research Center also provided the latitude and longitude of the participant's household which were used to get census tract level information and scores from walkscore.com (walkability, transportation, and opportunity scores).
Extending Health Insurance to the Working Poor: An Assessment of Health Status and Health Care Utilization Effects Among New York City Home Health Attendants, February 1990-June 1991 (ICPSR 9774)
Finding Quality Doctors: How Americans Evaluate Provider Quality in the United States, 2014 (ICPSR 36055)
Harvard School of Public Health/WBUR/Blue Cross Blue Shield of Massachusetts Foundation/Robert Wood Johnson Foundation Poll: Sick in Massachusetts, 2012 (ICPSR 38377)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Sick in Massachusetts, a survey from the Harvard School of Public Health, WBUR Boston National Public Radio, the Blue Cross Blue Shield Foundation of Massachusetts, and the Robert Wood Johnson Foundation, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Quality of health care
- Health insurance, insurance status, and care costs
- Reasons for health care quality problems
- Focus of doctor visits
- Reasons for rising health care costs
- Health care as good value
- Agreement with doctor statements
- Amount of doctors
- Attending routine check-ups
- Overnight stays in hospitals
- Satisfaction with hospital care
- Medical costs as reasonable
- Description of hospital stay
- Recent serious illness
- Satisfaction with medical care
- Interactions with health care professionals
- Impact of medical costs on family
- Receiving care every time it's needed
- Being turned away for health care
- Insurance premiums as financial problem
- Out-of-pocket medical costs
- Negotiating lower charges
- Problems paying for insurance
- Changing regular doctor
- Personal financial situation
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092353]. Frequencies and summary statistics for the 162 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Health Reform Monitoring Survey, United States, April 2021 (ICPSR 38526)
Health Reform Monitoring Survey, United States, First Quarter 2013 (ICPSR 35624)
Health Reform Monitoring Survey, United States, First Quarter 2014 (ICPSR 35614)
Health Reform Monitoring Survey, United States, First Quarter 2015 (ICPSR 36364)
Health Reform Monitoring Survey, United States, First Quarter 2016 (ICPSR 36744)
Health Reform Monitoring Survey, United States, First Quarter 2017 (ICPSR 37031)
Health Reform Monitoring Survey, United States, First Quarter 2018 (ICPSR 37304)
Health Reform Monitoring Survey, United States, First Quarter 2019 (ICPSR 37630)
Health Reform Monitoring Survey, United States, First Quarter 2020 (ICPSR 38110)
Health Reform Monitoring Survey, United States, Fourth Quarter 2013 (ICPSR 35621)
Health Reform Monitoring Survey, United States, Fourth Quarter 2014 (ICPSR 36287)
Health Reform Monitoring Survey, United States, June 2022 (ICPSR 38774)
Health Reform Monitoring Survey, United States, Second Quarter 2013 (ICPSR 35623)
Health Reform Monitoring Survey, United States, Second Quarter 2014 (ICPSR 36045)
Health Reform Monitoring Survey, United States, Third Quarter 2013 (ICPSR 35622)
Health Reform Monitoring Survey, United States, Third Quarter 2014 (ICPSR 36208)
Health Reform Monitoring Survey, United States, Third Quarter 2015 (ICPSR 36743)
Health Reform Monitoring Survey, United States, Third Quarter 2016 (ICPSR 36842)
Health Reform Monitoring Survey, United States, Third Quarter 2017 (ICPSR 37298)
Health Reform Monitoring Survey, United States, Third Quarter 2018 (ICPSR 37487)
Health Reform Monitoring Survey, United States, Third Quarter 2019 (ICPSR 37922)
Health Tracking Household Survey, 2007 [United States] (ICPSR 26001)
The 2007 Health Tracking Household Survey (HTHS) is the successor to the Community Tracking Study (CTS) Household Surveys which were conducted in 1996-1997 (ICPSR 2524), 1998-1999 (ICPSR 3199), 2000-2001 (ICPSR 3764), and 2003 (ICPSR 4216). Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Like the CTS Household Surveys, HTHS collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, adult chronic conditions, height and weight, and smoking behavior. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care.
At the beginning of the interview, a household informant provided information about the composition of the household which was used to group the household members into family insurance units (FIU). Each FIU comprised an adult household member, his or her spouse or domestic partner (same sex and other unmarried partners), if any, and any dependent children 0-17 years of age or 18-22 years of age if a full-time student (even if living outside the household). In each FIU in the household, a FIU informant provided information on insurance coverage, health care use, usual source of care, and general health status of all FIU members. This informant also provided information on family income as well as employment, earnings, employer-offered insurance plans, and race/ethnicity for all adult FIU members. Moreover, every adult in each FIU (including the FIU informant) responded through a self-response module to questions that could not be answered reliably by proxy respondents, such as questions about unmet needs, assessments of the quality of care, consumer engagement, satisfaction with physician choice, use of health information, health care shopping, and detailed health questions. The FIU informants responded on behalf of children regarding unmet needs, satisfaction with physician choice, and use of health care information.
Health Tracking Household Survey, 2010 [United States] (ICPSR 34141)
This is the second survey in the Health Tracking Household Survey (HTHS) series, the successor to the Community Tracking Study (CTS) Household Surveys. The CTS Household Surveys were conducted in 1996-1997 (ICPSR 2524), 1998-1999 (ICPSR 3199), 2000-2001 (ICPSR 3764), and 2003 (ICPSR 4216), and the first HTHS survey was conducted in 2007 (ICPSR 26001). Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Like the previous surveys, this survey collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, and adult chronic conditions. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care.
At the beginning of the interview, a household informant provided information about the composition of the household which was used to group the household members into family insurance units (FIU). Each FIU comprised an adult household member, his or her spouse or domestic partner (same sex and other unmarried partners), if any, and any dependent children 0-17 years of age or 18-22 years of age if a full-time student (even if living outside the household). In each FIU in the household, a FIU informant provided information on insurance coverage, health care use, usual source of care, and general health status of all FIU members. This informant also provided information on family income as well as employment, earnings, employer-offered insurance plans, and race/ethnicity for all adult FIU members. Moreover, every adult in each FIU (including the FIU informant) responded through a self-response module to questions that could not be answered reliably by proxy respondents, such as questions about unmet needs, usual source of care, assessments of the quality of care, consumer engagement, satisfaction with physician choice, use of health information, health care shopping, and detailed health questions. The FIU informants responded on behalf of children regarding unmet needs, satisfaction with physician choice, and use of health care information.