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The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

In the context of COVID-19, RAND and the Robert Wood Johnson Foundation have partnered to build from the National Survey of Health Attitudes to implement a longitudinal survey to understand how health views and values have been affected by the experience of the pandemic, with particular focus on populations deemed vulnerable or underserved, including people of color and those from low-to moderate-income backgrounds.

In the context of COVID-19, RAND and the Robert Wood Johnson Foundation partnered again to build from the National Survey of Health Attitudes to implement a longitudinal survey to understand how health views and values have been affected by the experience of the pandemic, with particular focus on populations deemed vulnerable or underserved, including people of color and those from low- to moderate-income backgrounds.

The study is a longitudinal study, collecting data in four waves. The study also included 2 populations: A sample of populations at greater risk, and a general population sample. This study includes the results for Wave 2 for populations at greater risk.

One previous wave and two future waves were conducted. The questions in the surveys were largely similar across all four waves. All respondents who participated in Wave 1 were invited to participate in the future waves.

Demographic info includes sex, marital status, household size, race and ethnicity, family income, employment status, age, and census region.

This is a United States nationally representative survey of 4142 respondents age 18 and older from the National Opinion Research Center Amerispeak panel. The study survey includes self rated health, 4 summary measures of health, questions about chronic conditions, and questions about social determinants of health. Basic demographic information is included in this study regarding age, education, race/ethnicity, gender, household size, housing type, household income, marital status, and employment status.

The National Opinion Research Center also provided the latitude and longitude of the participant's household which were used to get census tract level information and scores from walkscore.com (walkability, transportation, and opportunity scores).

These data were collected to evaluate the effectiveness of CASAWORKS for Families (CWF), a multiservice intervention designed to move substance abusing women on welfare to sobriety and self-sufficiency by addressing their substance abuse, domestic violence, employment, and basic needs. Conducted at 11 sites across the country, the evaluation was designed as a repeated measures, pre-during-post field evaluation with no pre-specified control or comparison groups. The results of this evaluation were primarily intended to guide a proposed second-stage experimental study of the effectiveness of an enhanced and refined CWF model.

When the potential participant presented herself at the CWF site, a research technician administered a specially modified version of the Addiction Severity Index (ASI), referred to as the Welfare to Work ASI (WTW-ASI). This version retained the ASI 5th edition as the core instrument but added questions in an addendum. The baseline WTW-ASI measured the severity of problems in nine areas: employment, medical status, alcohol use, drug use, legal status, family and social relationships, children and child care, basic needs, and psychiatric symptoms. In addition, the four-item Center for Epidemiologic Studies Depression Scale (CES-D), the Parenting Dimensions Inventory (PDI), and the Posttraumatic Stress Diagnostic Scale (PDS) were used to assess depression, parenting style, and posttraumatic stress disorder, respectively. The PDI, CES-D, and a follow-up version of WTW-ASI were also administered 6 and 12 months after intake.

Two instruments were used at baseline and at 1, 3, 6, and 12 months postbaseline to record the services provided by CWF: Welfare to Work version of the Treatment Services Review (TSR-WTW) and Case Management Review (CMR). The former mostly collected data on the number of treatment services received, such as doctor visits, therapy sessions, and days of inpatient treatment in the prior 30 days, while the latter collected data on the activities of the case management sessions and topics covered with the case managers. Activities recorded by the CMR included working on self-sufficiency plans, arrangement of follow-up services, skills development, crisis response, and advocating for the client. Topics covered included employment, substance abuse, mental health, domestic violence, parenting and child care, basic needs, life skills, and social support.

In order to compare the characteristics of the CWF clients with the general population of women who received Temporary Assistance for Needy Families (TANF), the study also collected WTW-ASI data from women in the general TANF population in the CWF locales regardless of their substance-use status.

The Future of Families and Child Wellbeing Study (FFCWS, formerly known as the Fragile Families and Child Wellbeing Study) follows a cohort of nearly 5,000 children born in large, U.S. cities between 1998 and 2000. The study oversampled births to unmarried couples; and, when weighted, the data are representative of births in large U.S. cities at the turn of the century. The FFCWS was originally designed to address four questions of great interest to researchers and policy makers:

1. What are the conditions and capabilities of unmarried parents, especially fathers?
2. What is the nature of the relationships between unmarried parents?
3. How do children born into these families fare?
4. How do policies and environmental conditions affect families and children?

The FFCWS consists of interviews with mothers, fathers, and/or primary caregivers at birth and again when children are ages 1, 3, 5, 9, 15, and 22. The parent interviews collected information on attitudes, relationships, parenting behavior, demographic characteristics, health (mental and physical), economic and employment status, neighborhood characteristics, and program participation. Beginning at age 9, children were interviewed directly (either during the home visit or on the telephone). The direct child interviews collected data on family relationships, home routines, schools, peers, and physical and mental health, as well as health behaviors.

A collaborative study of the FFCWS, the In-Home Longitudinal Study of Pre-School Aged Children (In-Home Study) collected data from a subset of the FFCWS Core respondents at the Year 3 and 5 follow-ups to ask how parental resources in the form of parental presence or absence, time, and money influence children under the age of 5. The In-Home Study collected information on a variety of domains of the child's environment, including: the physical environment (quality of housing, nutrition and food security, health care, adequacy of clothing and supervision) and parenting (parental discipline, parental attachment, and cognitive stimulation). In addition, the In-Home Study also collected information on several important child outcomes, including anthropometrics, child behaviors, and cognitive ability. This information was collected through interviews with the child's primary caregiver, and direct observation of the child's home environment and the child's interactions with his or her caregiver.

Similar activities were conducted during the Year 9 follow-up. At the Year 15 follow-up, a condensed set of home visit activities were conducted with a subsample of approximately 1,000 teens. Teens who participated in the In-Home Study were also invited to participate in a Sleep Study and were asked to wear an accelerometer on their non-dominant wrist for seven consecutive days to track their sleep (Sleep Actigraphy Data) and that day's behaviors and mood (Daily Sleep Actigraphy and Diary Survey Data).

An additional collaborative study collected data from the child care provider (Year 3) and teacher (Years 9 and 15) through mail-based surveys. Saliva samples were collected at Year 9 and 15 (Biomarker file and Polygenic Scores). The Study of Adolescent Neural Development (SAND) COVID Study began data collection in May 2020 following the onset of the COVID-19 pandemic. It included online surveys with the young adult and their primary caregiver.

The FFCWS began its seventh wave of data collection in October 2020, around the focal child's 22nd birthday. Data collection and interviews continued through January 2024. The Year 22 wave included a young adult (YA) survey with the original focal child and a primary caregiver (PCG) survey. Data were also collected on the children of the original focal child (referred to as Generation 3, or G3).

In 2017, the FFCWS team announced the Fragile Families (FF) Challenge, a collaborative effort in which participants were tasked with using machine learning methods and FFCWS data (Baseline to Year 9) to build a model that would predict six key outcomes at Year 15. Materials used in the FF Challenge have been archived in this collection.

Documentation for these files is available on the FFCWS website under Data and Documentation. For details of updates made to the FFCWS data files, please see the project's Data Alerts page.

Data collection for the Future of Families and Child Wellbeing Study was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) of the National Institutes of Health under award numbers R01HD36916, R01HD39135, and R01HD40421, as well as a consortium of private foundations.

Below is the citation for use of the FFCWS data accessed through ICPSR. For information on additional citation requirements when using FFCWS in publications, please refer to this FAQ on the FFCWS project site.

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of the 2014 poll What Shapes Health, a survey from National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

• Concerned about own health
• Meaning of health
• Control over own health
• Effort into maintaining health
• Frequency of healthy activities
• Description of personal health
• Types of healthy habits
• On diet to lose weight
• Ways to improve health
• Things that cause health problems
• Childhood problems causing future health issues
• Participation in community organizations
• Volunteering improving health
• Being told to improve health
• Family/friend behavior influencing health
• Health habits of family/friends
• Problems experienced in adulthood
• Problems experience in childhood
• Receiving health care
• Difficulty accessing health care
• Parents' health
• Recent serious illnesses
• Diagnosed with health conditions
• Frequency of exercising
• Personal weight
• Smoking habits
• Health insurance

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092363]. Frequencies and summary statistics for the 244 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of the 2017 Discrimination in the United States Survey, a survey from Harvard T.H. Chan School of Public Health/Robert Wood Johnson Foundation/National Public Radio conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

• Belief in discrimination against racial/ethnic minorities
• Discrimination against men/women
• Discrimination against lesbian/gay/bisexual people
• Discrimination against transgender people
• Biggest problem with discrimination against lesbian/gay/bisexual/transgender/queer (LGBTQ) people
• Live on tribal lands
• Local/tribal government
• Discrimination based on race
• Discrimination based on gender
• Discrimination based on being part of the LGBTQ community
• Reasons for avoiding seeking health care
• Experiences with discrimination
• Discrimination resulting in fewer employment opportunities
• Discrimination resulting in unequal pay
• Discrimination resulting in fewer chances for quality education
• Encouraged to/discouraged from applying to college
• Predominant groups living in respondent's area
• Not feeling/being welcomed in neighborhood due to race
• Not feeling/being welcomed in neighborhood due to being part of LGBTQ community
• Considered moving to another area because of discrimination
• Comparing respondent's area to others
• Police using unnecessary force based on race/ethnicity
• Avoiding activities to avoid discrimination from police
• Experiences caused by racial discrimination
• Experiences caused by gender discrimination
• Experiences caused by discrimination against LGBTQ community
• Local police force does/does not reflect racial/ethnic background of community
• Contacted by political representatives about voting/supporting cause
• Registered to vote
• Vote in 2016 presidential election
• Physical health status
• Mental health status
• Disability
• Chronic illness
• Veterans Administration
• Indian Health Services
• Seeking health care
• Insurance coverage

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31114655]. Frequencies and summary statistics for the 235 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains three major sections: the main survey, demographic data, and diagnostic data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The middle section contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The last section of the collection focused on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains four major sections: the main survey, demographic data, diagnostic data, and state, county, and tract FIPS data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The second part contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The third part focuses on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

The fourth part contains respondents' state, county, and tract FIPS data.

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of the 2016 poll Workplace and Health, a survey from National Public Radio/Robert Wood Johnson Foundation/Harvard T.H. Chan School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

• Employment status
• Hours worked in a week
• Work locations
• Workplace and health
• Benefits available to workers
• Paid vacation days
• Paid sick days
• Job satisfaction
• Physical health and safety conditions at workplace
• Violence at workplace
• Stress experienced at work
• Working outside of regular work hours
• Working from home
• Working when caring for a sick family member
• Paid leave to care for family member
• Support for health in the workplace
• Personal health in the workplace
• Smoke-free work environment
• Workplace wellness programs
• Method of payment
• Job security
• Personal finances
• Health insurance coverage
• Political party preference

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31099576]. Frequencies and summary statistics for the 188 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

The purpose of this study was to describe what newly licensed registered nurses (NLRN) working in hospitals learned about quality improvement in their education programs and workplaces. The survey was administered to nurses working in a hospital who participated in the second wave (ICPSR 36812) of the Newly Licensed Registered Nurse Survey series. This was part of a ten year panel survey. Quality improvement topics covered by the survey include:

• patient-centered care
• evidence-based practice
• standardized practices for restrain and seclusion, infection control and pain management
• use of information technology or strategies to reduce reliance on memory
• participation in analyzing errors and designing system improvements
• use of national patient safety resources, initiatives or regulations
• use of specific quality improvement models

The Calendar data files are comprised of 47 total parts spread across 13 distinct topical domains.

• Academic Achievement
• Antisocial Activity
• Community-Based Services
• Contact With the Justice System
• Court Monitoring
• Gainful Activity
• Head Injury
• Living Situation
• Making and Spending Money
• Medication
• Out of Community Placement
• Romance
• School

Each topical domain contains multiple reference periods for looking at the topic across the entire data collection period of the study.

Users who request these restricted data should first review the documentation available from NAHDAP (user guide and frequency codebooks) and from the Pathways Website (domain content codebooks). This review will help determine which specific datasets will be needed for your project. The "Research Description" in ICPSR's Data Access Request System (IDARS) must include a specific explanation of why you need each topic domain selected on the "Data Selection" page in IDARS. Most projects should only require one reference period per topic domain being requested. Data requests for all reference periods within a given domain will not be approved without a satisfactory explanation of why all of the reference periods are required for your project. Since the Calendar data collection is very extensive and Restricted Data Use Agreements are only for 2 years, data requests are not expected to need the entire Calendar data collection.

The Pathways to Desistance study was a multi-site study that followed 1,354 serious juvenile offenders from adolescence to young adulthood in two locales between the years 2000 and 2010. Enrolled into the study were adjudicated youths from the juvenile and adult court systems in Maricopa County (Phoenix), Arizona (N=654) and Philadelphia County, Pennsylvania (N=700).

Respondents were enrolled and baseline interviews conducted from November 2000 to January 2003. Follow-up interviews were then scheduled with the respondents at 6, 12, 18, 24, 30, 36, 48, 60, 72 and 84 months past their baseline interview.

The enrolled youth were at least 14 years old and under 18 years old at the time of their committing offense and were found guilty of a serious offense (predominantly felonies, with a few exceptions for some misdemeanor property offenses, sexual assault, or weapons offenses).

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of America's Health Agenda, a survey from the Robert Wood Johnson Foundation and the Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

• Rating local community's healthiness
• Most threatening disease or health condition
• Most important medical care system problems
• Rating government illness prevention
• Rating government health care systems
• Preferred government size
• Federal government health care priorities
• Rating federal government health care performance
• Contact with federal government health agencies
• Overall national health changes
• State government health priorities
• Rating state government health care performance
• Contact with state government health agencies
• Overall state health changes
• Local government health care priorities
• Rating local government health care performance
• Contact with local health agencies
• Overall local health changes
• Personal problems in past year
• Spending money to save in the long run

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092347]. Frequencies and summary statistics for the 421 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.