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Curated

Chronic Illness and Caregiving, 2000: [United States] (ICPSR 3402)

Released/updated on: 2024-02-14
Geographic coverage: United States
The objective of this survey, which interviewed individuals from the general public, chronically ill persons, and informal caregivers, was threefold: (1) to assess public awareness of chronic care issues and the level of support for chronic care policy initiatives, (2) to examine experiences and needs of chronically ill Americans concerning health care and other assistance, and (3) to evaluate experiences and needs of informal caregivers. Questions to the general public addressed awareness of the availability of supportive and housing services for the chronically ill, knowledge about coverage for long-term care, concerns about the future of the chronic care delivery system, support for policy initiatives such as tax credits for the chronically ill and caregivers, and support for a policy that would ensure pharmaceutical coverage in Medicare. Chronically ill interviewees responded to questions about access to and experience with chronic care and other health care services, experiences with and needs for clinical services coordination, experiences with and needs for social supports and interventions, and adjustment skills and knowledge (e.g., what were their needs for learning how to live with chronic conditions). Questions for informal caregivers focused on experiences with caregiving (e.g., for whom they provided care, how many hours they devoted to caregiving per week, and living arrangements), balance between caregiving and other areas of their lives, experiences with and needs for respite care, and availability of social supports for caregivers.
Curated
Simple Crosstabs

Randomized Controlled Trial of a Novel Mindset Intervention for Depression and Immune Dysregulation, United States, 2022-2023 (ICPSR 39316)

Released/updated on: 2026-01-15
Geographic coverage: United States
People who live through large-scale societal catastrophes such as the COVID-19 pandemic are at a heightened risk of mental illness in the years afterward, but can also experience positive changes in their sense of meaning, personal relationships, and self-esteem, among other domains. The researchers propose that differences in these mental health trajectories may be partially influenced by individuals' mindsets about the long-term effects of living through catastrophes. To test this possibility, the researchers conducted a randomized controlled trial of a brief, psychologically-wise intervention designed to promote the mindset that "catastrophes can be opportunities in the long-term." A sample of 548 adults were randomized to either the mindset intervention condition or a control task.