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Partially restricted

Creating a Patient Registry to Facilitate Data Sharing and Encourage Patient-Centered Approaches to Improving Health and Lowering Costs, 2013 (ICPSR 35570)

Released/updated on: 2016-10-05
Geographic coverage: United States, Cincinnati, Ohio
Time period: 2013-09-01--2013-12-01

This interventional pilot study was conducted in a primary care clinic to determine if patients would become more engaged in their own health and ask more questions of their physicians if they were provided data about patients similar to themselves. The study was conducted with 150 patients with a diagnosis of hypertension who had scheduled appointments with one of three participating physicians in the clinic. When they arrived at the clinic for their appointment, the patients were shown de-identified clinical data about similar patients with hypertension on a computer screen, given a printout of this information, and then proceeded to visit their physician. After the physician visit the patients completed a short survey. Their answers to the survey questions are recorded in the data file together with additional information about them, such as age, gender, race, smoking status and comorbidities.

The three participating physicians completed a short survey at the end of the study. The results of that survey are summarized in a table provided with the technical documentation.

Curated
Partially restricted

Evaluating the Impact and Effectiveness of New Connections: Increasing Diversity of Robert Wood Johnson Foundation Programming, June 2011 - February 2012 (ICPSR 34311)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2011-06-01--2012-02-01

The Robert Wood Johnson Foundation (RWJF) began its New Connections Program in 2005, motivated by the belief that high-quality research and evaluation that addresses the nation's health demands diverse perspectives. As of December 2011, New Connections has supported the career development of 100 grantees: junior researchers and mid-career professionals from historically disadvantaged and underrepresented communities. In addition, the program has provided overall support to a larger network of over 1,200 scholars from these same communities. This study comprises data from three surveys that were conducted as part of the evaluation of New Connections: the Grantee Process Survey, Grantee Network Survey, and Larger Network Survey.

The Grantee Process Survey interviewed New Connections grantees about their accomplishments and participation in professional activities, confidence in various abilities before and after they became grantees, satisfaction with support from New Connections, the extent to which New Connections improved their knowledge and skills, and the extent to which they agreed or disagreed that the program affected their ability to obtain their current position or made them more influential in their work settings.

The Grantee Network Survey questioned New Connections grantees about the persons from whom they would seek support, guidance, or information; expertise; work with; or communicate with about what they needed to be successful in their current positions and to advance in their careers (e.g., to get tenure, a promotion, or a leadership position).

The Larger Network Survey interviewed members of the larger network about their participation in New Connections activities, their interactions with New Connections grantees and the larger network, the extent to which the program improved their knowledge and skills, the extent to which they agreed or disagreed that New Connections affected their ability to obtain their current position, and their satisfaction with the program.

There is a separate data file for each survey. Together with the survey responses, all three files include information from the program's administrative records, such as the highest degree earned, institution type, field of work, race and Hispanic ethnicity, first generation college student status, and low income status. In addition, the Grantee Process Survey data file contains variables derived from the respondents' curriculum vitae that show the number of grantee presentations and publications before, during, and after the New Connection grants.

Curated
Partially restricted

Evaluation of the Texas State Public School Nutrition Policy Change on Student Food Selection and Sales, School Years 2003-2004 and 2004-2005 (ICPSR 20966)

Released/updated on: 2007-11-19
Geographic coverage: United States, Texas
Time period: 2003-01-01--2005-01-01
In August 2004, Texas implemented the Texas Public School Nutrition Policy in order to promote healthier nutrition in its schools. The new policy restricted high fat and high sugar foods, reduced portion sizes, and phased out "deep-fat fried" foods in school food service environments. This study evaluated the impact of that policy by comparing National School Lunch Program (NSLP) production records and school snack bar/a la carte line sales data before and after the policy was implemented. Data from a number of Texas elementary, middle, and high schools for the prepolicy 2003-2004 school year were compared with their data for the postpolicy 2004-2005 school year. Daily NSLP production records list the number of servings of fresh fruit, canned fruit, regular vegetables, high fat vegetables (french fries), legumes, orange juice, apple juice, grape juice, whole milk, fat free milk, chocolate milk, strawberry milk, variety milk, yogurt, low fat/fat free cheese, string cheese, and cube cheese served to students. The snack bar/a la carte line data report annual sales of candy, baked chips, regular chips, deserts, sweetened drinks, ice cream, and water. Demographic information about the schools' school districts include socioeconomic status (less than half of the students eligible for free or reduced price lunches under NSLP/half or more eligible), district size (less than 10,000 students/10,000 or more students), and percentages of Hispanic, Black, and White students. Demographic information about the schools, themselves, includes number of registered students, average number of students and adults served per day, and percent of students eligible for free or reduced price lunches.
Curated
Partially restricted

Helping Young Smokers Quit: Identifying Best Practices for Tobacco Cessation, Phase II National Program Evaluation, 2003-2006 (ICPSR 33161)

Released/updated on: 2024-02-14
Geographic coverage: Oregon, New York, United States, Kentucky, Minnesota, California, Utah, Washington, Michigan, Iowa, Illinois, Texas, Colorado, Missouri, Louisiana, Ohio, Maryland, Wisconsin, Nevada
Time period: 2003-01-01--2006-01-01

The Helping Young Smokers Quit (HYSQ) initiative was a multi-phase project that addressed the critical need to disseminate effective, developmentally appropriate cessation programs for young smokers. Phase I identified and described tobacco treatment programs available for youth in the United States, Phase II evaluated smoking secession programs tailored for youth to help understand what works, and Phase III identified factors associated with program sustainability. Phase II collected data from five sources: (1) program participants, (2) program providers, (3) program curricula, (4) organizational leaders, and (5) community leaders and community ordinances.

Program participants were interviewed at baseline, end-of program, 6-month follow-up, and 12-month follow-up. Topics covered by the interviews include age, gender, race, Hispanic origin, language spoken at home, employment, income, religiosity, school enrollment, education level, school grades, height, weight, extracurricular activities, recreation, sports, exercise, aspirations after high school, psychological well-being, alcohol consumption, cigarette use and use of other tobacco products, attitudes about smoking, plans to stop/continue smoking, attempts to quit smoking, reasons for participating in the program, topics/issues covered by the program, opinions about the program, and smoking experience since the beginning of the program. In addition, for each follow-up survey, the participants provided a breath sample for carbon monoxide analysis to validate self-reported quit status.

After the last session of each program delivery, the program providers, such as program leaders and cessation counselors, were interviewed about the content and delivery of the program and the reactions of the participants and themselves to the program as delivered. The program providers also kept attendance records.

Curriculum content was abstracted from program manuals and other materials used in each program.

Organizational leaders of the organizations that offered the programs were surveyed about various aspects of each organization, including the organization's smoking cessation program and the organization's mission, general operations, and smoking-related policies and practices.

Community-level information was collected in two ways: (1) interviews of community leaders representing local health departments, school boards, and juvenile justice offices, and (2) archival research of public ordinances relevant to tobacco and control policies.

Nine data files/datasets constitute the data. Datasets 1-4 contain the participant questionnaire data, carbon monoxide measurement data, and program attendance data. Dataset 5 comprises information about each program and its curriculum, some information about the community in which the program was located, and summary data about enforcement of tobacco-related ordinances. Dataset 6 contains information about about the program providers and each program delivery, including recruitment, logistics, content, and the reactions of providers and participants. Dataset 7 covers administrative aspects of the smoking cessation programs and each offering organization's mission, general operations, and smoking-related policies and norms. Dataset 8 contains information about local and state-level tobacco-related ordinances for every state and local jurisdiction where each program was located, and Dataset 9 condenses the information in Dataset 8 into one summary record for each community. The unit of observation for Datasets 1-4 is the participant, for Datasets 5 and 7 the smoking cessation program/offering organization, for Dataset 6 the program delivery/program cohort, for Dataset 8 the ordinance, and for Dataset 9 the community.

Curated

Institutional Pathways: Dynamics and Characteristics of System Service Use by Serious Adolescent Offenders, Arizona and Pennsylvania, 2000-2010 (ICPSR 36860)

Released/updated on: 2022-10-13
Geographic coverage: United States, Phoenix, Arizona, Philadelphia, Pennsylvania
Time period: 2000-01-01--2010-01-01

These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigators if further information is needed.

This study is a secondary analysis (syntax only, no data) of Research on Pathways to Desistance [Maricopa County, AZ and Philadelphia County, PA]: Subject Measures, 2000-2010 (ICPSR 29961) and Research on Pathways to Desistance [Maricopa County, AZ and Philadelphia County, PA]: Calendar Data, 2000-2010 [Restricted] (ICPSR 32282).

The purpose of this study was to further existing knowledge of juvenile justice intervention and how juvenile justice intervention is related to positive outcomes during the transition to adulthood. This study examines three main aims using data from the Pathways to Desistance study, which followed a sample of serious adolescent offenders for seven years to examine the desistance process. First, trajectories of secure institutional placement for serious offenders during the study period were identified. Second, trajectories of gainful activities for serious adolescent offenders during the study period were identified. Gainful activities were defined as working or attending school. Third, factors associated with turning points in the gainful activities trajectories were explored. In the course of estimating the gainful activities trajectories, there appeared to be a key moment, around year 3, where multiple trajectories with moderate levels of engagement in gainful activities diverged. Together, these three aims will inform how juvenile justice intervention is related to positive outcomes during the transition to adulthood and identify factors that may be related to positive outcomes and critical turning points in the trajectories of serious adolescent offenders.

Group differences were examined by testing bivariate differences in a broad range of variables: demographic variables (gender, age, and race/ethnicity); study site and year of interview; characteristics of prior service receipt at baseline (location and orientation); school, family and neighborhood characteristics; characteristics of the offense and offense history; individual factors (mental health and substance use symptoms); and risk scores.

Curated

Network for the Improvement of Addiction Treatment (NIATx), 2003-2007 (ICPSR 34406)

Released/updated on: 2012-10-17
Geographic coverage: United States
Time period: 2003-01-01--2007-01-01

The Network for the Improvement of Addiction Treatment (NIATx) is a program funded by the Robert Wood Johnson Foundation and the Center for Substance Abuse Treatment to help substance abuse treatment facilities improve the effectiveness and efficiency of care offered to clients. A total of 38 facilities from across the country were awarded funding to implement the NIATx program between the years of 2003 to 2007. Data were extracted from administrative records from 82,274 clients. The data file covers the dates of contact and treatment with the facility, the number of follow-up units of care received, the primary substance of abuse, and basic demographic information.

Curated
Partially restricted

Oregon Health Insurance Experiment, 2007-2010 (ICPSR 34314)

Released/updated on: 2014-05-02
Geographic coverage: Oregon
Time period: 2007-01-01--2010-01-01

In 2008, a group of uninsured low-income adults in Oregon was selected by lottery to be given the chance to apply for Medicaid. This lottery provides an opportunity to gauge the effects of expanding access to public health insurance on the health care use, financial strain, and health of low-income adults using a randomized controlled design. The Oregon Health Insurance Experiment follows and compares those selected in the lottery (treatment group) with those not selected (control group). The data collected and provided here include data from in-person interviews, three mail surveys, emergency department records, and administrative records on Medicaid enrollment, the initial lottery sign-up list, welfare benefits, and mortality.

This data collection has seven data files:

Dataset 1 contains administrative data on the lottery from the state of Oregon. These data include demographic characteristics that were recorded when individuals signed up for the lottery, date of lottery draw, and information on who was selected for the lottery, applied for the lotteried Medicaid plan if selected, and whose application for the lotteried plan was approved. Also included are Oregon mortality data for 2008 and 2009.

Dataset 2 contains information from the state of Oregon on the individuals' participation in Medicaid, Supplemental Nutrition Assistance Program (SNAP), and Temporary Assistance to Needy Families (TANF).

Datasets 3-5 contain the data from the initial, six month, and 12 month mail surveys, respectively. Topics covered by the surveys include demographic characteristics; health insurance, access to health care and health care utilization; health care needs, experiences, and costs; overall health status and changes in health; and depression and medical conditions and use of medications to treat them.

Dataset 6 contains an analysis subset of the variables from the in-person interviews. Topics covered by the survey questionnaire include overall health, health insurance coverage, health care access, health care utilization, conditions and treatments, health behaviors, medical and dental costs, and demographic characteristics. The interviewers also obtained blood pressure and anthropometric measurements and collected dried blood spots to measure levels of cholesterol, glycated hemoglobin and C-reactive protein.

Dataset 7 contains an analysis subset of the variables the study obtained for all emergency department (ED) visits to twelve hospitals in the Portland area during 2007-2009. These variables capture total hospital costs, ED costs, and the number of ED visits categorized by time of the visit (daytime weekday or nighttime and weekends), necessity of the visit (emergent, ED care needed, non-preventable; emergent, ED care needed, preventable; emergent, primary care treatable), ambulatory case sensitive status, whether or not the patient was hospitalized, and the reason for the visit (e.g., injury, abdominal pain, chest pain, headache, and mental disorders).

The collection also includes a ZIP archive (Dataset 8) with Stata programs that replicate analyses reported in three articles by the principal investigators and others:

Finkelstein, Amy et al "The Oregon Health Insurance Experiment: Evidence from the First Year". The Quarterly Journal of Economics. August 2012. Vol 127(3).

Baicker, Katherine et al "The Oregon Experiment - Effects of Medicaid on Clinical Outcomes". New England Journal of Medicine. 2 May 2013. Vol 368(18).

Taubman, Sarah et al "Medicaid Increases Emergency Department Use: Evidence from Oregon's Health Insurance Experiment". Science. 2 Jan 2014.

Curated
Partially restricted

Research on Pathways to Desistance [Maricopa County, AZ and Philadelphia County, PA]: Calendar Data, 2000-2010 [Restricted] (ICPSR 32282)

Released/updated on: 2017-03-27
Geographic coverage: United States, Phoenix, Arizona, Philadelphia, Pennsylvania
Time period: 2000-01-01--2010-01-01

The Calendar data files are comprised of 47 total parts spread across 13 distinct topical domains.

  • Academic Achievement
  • Antisocial Activity
  • Community-Based Services
  • Contact With the Justice System
  • Court Monitoring
  • Gainful Activity
  • Head Injury
  • Living Situation
  • Making and Spending Money
  • Medication
  • Out of Community Placement
  • Romance
  • School

Each topical domain contains multiple reference periods for looking at the topic across the entire data collection period of the study.

Users who request these restricted data should first review the documentation available from NAHDAP (user guide and frequency codebooks) and from the Pathways Website (domain content codebooks). This review will help determine which specific datasets will be needed for your project. The "Research Description" in ICPSR's Data Access Request System (IDARS) must include a specific explanation of why you need each topic domain selected on the "Data Selection" page in IDARS. Most projects should only require one reference period per topic domain being requested. Data requests for all reference periods within a given domain will not be approved without a satisfactory explanation of why all of the reference periods are required for your project. Since the Calendar data collection is very extensive and Restricted Data Use Agreements are only for 2 years, data requests are not expected to need the entire Calendar data collection.

The Pathways to Desistance study was a multi-site study that followed 1,354 serious juvenile offenders from adolescence to young adulthood in two locales between the years 2000 and 2010. Enrolled into the study were adjudicated youths from the juvenile and adult court systems in Maricopa County (Phoenix), Arizona (N=654) and Philadelphia County, Pennsylvania (N=700).

Respondents were enrolled and baseline interviews conducted from November 2000 to January 2003. Follow-up interviews were then scheduled with the respondents at 6, 12, 18, 24, 30, 36, 48, 60, 72 and 84 months past their baseline interview.

The enrolled youth were at least 14 years old and under 18 years old at the time of their committing offense and were found guilty of a serious offense (predominantly felonies, with a few exceptions for some misdemeanor property offenses, sexual assault, or weapons offenses).

Curated
Partially restricted

Research on Pathways to Desistance [Maricopa County, AZ and Philadelphia County, PA]: Official Arrest Records, 2000-2010 [Restricted] (ICPSR 34605)

Released/updated on: 2014-07-24
Geographic coverage: United States, Phoenix, Arizona, Philadelphia, Pennsylvania
Time period: 2000-01-01--2010-01-01

The Pathways to Desistance study was a multi-site study that followed 1,354 serious juvenile offenders from adolescence to young adulthood in two locales between the years 2000 and 2010. Enrolled into the study were adjudicated youths from the juvenile and adult court systems in Maricopa County (Phoenix), Arizona (N=654), and Philadelphia County, Pennsylvania (N=700).

The official arrests records of all 1,354 youth were obtained from multiple sources. For arrest/petitions under the age of 18, this information is based on petitions appearing in the juvenile and adult court records in each site. In Philadelphia, this information was gathered based on a hand review of juvenile and adult court documents; in Phoenix, the information is based on reports from two computerized court tracking systems (JOLTS--Juvenile On-Line Tracking System for juvenile court information, ICIS--Maricopa County Superior Court database for adult court information). For arrests/petitions over 18, FBI arrest records are the source of information. There is no self-reported information contained in this set of data.

Information from these different data sources is consolidated into the following categories:

  1. Information regarding petitions with a date that falls prior to the baseline interview date ("prior petitions").
  2. Information regarding the study index petition (also called the "initial referring petition"; this is the adjudication that prompted study enrollment). Information regarding the study index petition can be found by accessing the "type" variable associated with the prior petitions (specific variable name: Official Record Prior PetitionXX: Petition type). Depending on the investigator's needs, this petition can remain combined with the "priors" or be used as a stand-alone petition.
  3. Information regarding arrests and court petitions with a date which falls after the baseline interview date in the Pathways study ("rearrests").
Curated
Restricted

Robert Wood Johnson Foundation Employer Health Insurance Survey [Community Tracking Study and State Initiatives in Health Care Reform Program], 1997 (ICPSR 2935)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-01-01--1997-01-01
The objectives of this study were to describe and understand employers' and employees' behavior with respect to employment-based health insurance, to track trends in health insurance provided by employers, and to evaluate selected policies to regulate or expand employment-based health insurance coverage. Sampling was designed to permit estimates for selected communities that are part of the Robert Wood Johnson Foundation (RWJF) Community Tracking Study (CTS) and for selected states of interest to the RWJF State Initiatives in Health Care Reform Program. Data were collected on employers' offers of health insurance coverage, employees' eligibility and enrollment in health plans, and, for each plan offered, the plan type (HMO, POS, PPO, conventional), premiums (employer and employee contributions), benefits, cost-sharing, and employer self-insurance status. The study also collected information on the characteristics of employers and workers, including the number of employees at the establishment, the number of employees statewide and nationwide, and the distribution of workers by hours worked, age, sex, and earnings.
Curated
Simple Crosstabs

Selected State Substantive and Preemptive Laws 2009-2018, United States (ICPSR 38306)

Released/updated on: 2023-04-19
Geographic coverage: United States
Time period: 2009-01-01--2018-01-01
The Selected State Preemptive Laws Dataset (SSPLD) was developed to study trends in preemption laws across states from 2009-2018. Researchers selected four domains where states and localities had enacted substantive and preemptive laws: (1) Paid sick days, (2) food, (3) tobacco, and (4) firearms. For three of these domains (sick days, food, and tobacco), state substantive laws are also included in this dataset for each of the policy topics included in the domain.