Aligning Forces for Quality Evaluation: Consumer Survey Round 1, 2007-2008 and 2010 (ICPSR 35259)
Aligning Forces for Quality Evaluation: Consumer Survey Round 2, 2011-2012 (ICPSR 37220)
American Health Values Survey (AHVS): Sentinel Communities Segmentation, 5 American communities, 2016-2017 (ICPSR 37910)
The American Health Values Survey (AHVS) was conducted by the National Opinion Research Center (NORC) at the University of Chicago in order to develop a typology of Americans based on their health values and beliefs. The survey, of more than 10,000 adults from five individual communities, examined values and beliefs related to health at both the individual as well as societal levels. The community surveys sought to compare differences between the local typologies, but also to investigate any similarities with national typology groups. The survey assessed the importance of health in:
- day-to-day personal life (i.e. the amount of effort spent on disease prevention as well as appropriate seeking of medical care);
- equity, the value placed on the opportunity to succeed generally in life as well as on health equity;
- social solidarity, the importance of taking into account the needs of others as well as personal needs;
- health care disparities, views about how easy/hard it is for African Americans, Latinos and low-income Americans to get quality health care;
- and, the importance of the social determinants of health.
In addition, the survey also explored views about how active government should be in health; collective efficacy, the ease of affecting positive community change by working with others; and health-related civic engagement e.g. the support of health charities and organizations working on health issues.
There are public-use and restricted-use versions of the data provided for each of the five sentinel communities participating in this study. Although each site differs on the number of respondents as listed below, each data file contains the same 143 variables for each site and version of the data. The only difference between the public-use versus restricted-use versions of the data is the variable ZIP, which was MASKED in the public-use version.
- DS1 and DS2 - Baltimore, Maryland: 2,139
- DS3 and DS4 - Maricopa County, Arizona: 2,247
- DS5 and DS6 - Stockton, California: 2,127
- DS7 and DS8 - Mobile, Alabama: 1,821
- DS9 and DS10 - North Central counties in Nebraska: 2,846
American Health Values Survey II, [United States], 2019-2020 (ICPSR 38818)
The Robert Wood Johnson Foundation (RWJF) has a vision to build a Culture of Health (CoH) by making health a shared national priority, one valued and advanced by multiple stakeholders across all sectors of society. This vision embraces a very broadly integrated and comprehensive approach to health, one where well-being lies at the center of every aspect of American life. In 2014, the RWJF commissioned NORC at the University of Chicago to plan and conduct the first American Health Values Survey (AHVS) to understand the extent to which United States adults held views consistent with this vision. The idea was to explore which types of United States adults were more supportive and less supportive of the goal and what the differences were between the more and less supportive groups. To aid in the understanding of these differences, NORC developed a typology of United States adults based on their values and beliefs related to the CoH vision.
Using a large-scale national survey fielded in late 2015 and early 2016, NORC identified six major segments of the population of adults in the United States based on their differing health values and beliefs and developed detailed profiles of each segment that described their pattern of values and beliefs as well as their demographic, political and other characteristics. NORC subsequently replicated the typology development work in five RWJF Sentinel Communities across the nation and also developed a typology of rural America. The same segments, or similar ones, were common across various geographic areas of the United States. Four years have since passed, in which changes occurred in the country. RWJF in 2019 commissioned NORC to conduct a second national, cross-sectional survey (AHVS II) in late 2019 and early 2020.
Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)
The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).
Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.
ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.
Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.
Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)
Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults, 2008 [United States] (ICPSR 27181)
This is the second round of the Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults. Like the first round, which was fielded in 2002 and released as ICPSR 4301 (Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002), the second round was conducted as part of the evaluation of the CPFOA Program, an initiative of the Robert Wood Johnson Foundation (RWJF) aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private partnerships. The 2002 survey was conducted in the 13 communities in which partnerships received development grants from RWJF, and, in 2008, the survey was repeated in the eight of them in which partnerships received implementation grants from the Foundation. The goal of the survey was to improve understanding of the characteristics of older adults, their knowledge and perceptions about issues related to long-term care, and their use of long-term care services and support. In addition, the data collected by the survey enabled the communities to target the partnership's activities in the most effective way.
The second round was based on the 2002 survey instrument. Changes to the instrument were minimized so that the data from the 2002 and 2008 rounds would be comparable. The instrument was modified to delete questions that had low item response in 2002, to add questions requested by the partnerships, to add questions for decision-makers, or to modify questions that were outdated. As in 2002, the 2008 survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.
Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002 [United States] (ICPSR 4301)
Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)
Community Tracking Study Physician Survey, 1998-1999: [United States] (ICPSR 3267)
This study comprises the second round of the physician survey component of the Community Tracking Study (CTS) sponsored by the Robert Wood Johnson Foundation. The CTS is a national study designed to track changes in the American health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the physician survey (COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597)), the second round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, views on care management strategies, and various other aspects of physicians' practice of medicine. In addition, primary care physicians (PCPs) were asked to recommend courses of action in response to some vignettes of clinical presentations for which there was no prescribed method of treatment.
Dataset 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site.
Dataset 4, the Physician Survey Summary File, contains site-level estimates and standard errors of the estimates for selected physician characteristics, e.g., the percentage of physicians who were foreign medical school graduates, the mean age of physicians, and the mean percentage of patient care practice revenue from Medicaid.
Community Tracking Study Physician Survey, 2004-2005: [United States] (ICPSR 4584)
Developing the PROMIS-Preference Score for Monitoring Population Health Outcomes, United States, 2017 (ICPSR 37516)
This is a United States nationally representative survey of 4142 respondents age 18 and older from the National Opinion Research Center Amerispeak panel. The study survey includes self rated health, 4 summary measures of health, questions about chronic conditions, and questions about social determinants of health. Basic demographic information is included in this study regarding age, education, race/ethnicity, gender, household size, housing type, household income, marital status, and employment status.
The National Opinion Research Center also provided the latitude and longitude of the participant's household which were used to get census tract level information and scores from walkscore.com (walkability, transportation, and opportunity scores).
Employer Perspectives on the Health Insurance Market: A Survey of Businesses in the United States, 2014 (ICPSR 36175)
Evaluation of Children's Futures: Improving Health and Development Outcomes for Children in Trenton, New Jersey: Second Community Survey, 2008 and Third Community Survey, 2010 (ICPSR 34161)
The Children's Futures initiative was designed to enhance the health and well-being of children from birth to age three in Trenton, New Jersey through three major strategies: (1) Improving access to prenatal care and strengthening effective parenting; (2) Improving the quality of child care; and (3) Strengthening and sustaining positive involvement of fathers in their children's lives. As part of the initiative, data were simultaneously collected to assess the effectiveness of the initiative.
The data collection efforts included a baseline survey of the Trenton community conducted in 2002 and surveys of Trenton child care providers conducted in 2003, 2004, and 2005. In addition, births records for Trenton, Camden, and Newark were obtained from the New Jersey State Department of Health. These survey and birth records data were released as ICPSR 21640: Evaluation of Children's Futures: Improving Health and Development Outcomes for Children in Trenton, New Jersey, 2001-2005. The data from the 2002 community survey represents a baseline picture of the primary caregivers of children ages 0-5 in Trenton on a set of outcomes, among them parenting behaviors and strategies that the initiative hoped to influence.
This data collection contains the data from two follow-up community surveys. Like the baseline community survey, the follow-up surveys interviewed the primary caregivers of children aged 0-5 in Trenton households about child and parental health, parenting practices, fathers' involvement in their children's lives, health insurance and health care utilization, attendance at parenting groups or classes, and utilization of child care. In addition, the surveys collected information on country of birth, year of immigration, race, Hispanic origin, education, employment status, alcohol use, earnings, and household income.
The community surveys followed a repeated cross-sectional design. That is, individual community residents were not followed over time; rather, at each wave of data collection, a new sample of respondents were interviewed.
Finding Quality Doctors: How Americans Evaluate Provider Quality in the United States, 2014 (ICPSR 36055)
The Future of Families and Child Wellbeing Study (FFCWS), Public Use, United States, 1998-2024 (ICPSR 31622)
The Future of Families and Child Wellbeing Study (FFCWS, formerly known as the Fragile Families and Child Wellbeing Study) follows a cohort of nearly 5,000 children born in large, U.S. cities between 1998 and 2000. The study oversampled births to unmarried couples; and, when weighted, the data are representative of births in large U.S. cities at the turn of the century. The FFCWS was originally designed to address four questions of great interest to researchers and policy makers:
- What are the conditions and capabilities of unmarried parents, especially fathers?
- What is the nature of the relationships between unmarried parents?
- How do children born into these families fare?
- How do policies and environmental conditions affect families and children?
The FFCWS consists of interviews with mothers, fathers, and/or primary caregivers at birth and again when children are ages 1, 3, 5, 9, 15, and 22. The parent interviews collected information on attitudes, relationships, parenting behavior, demographic characteristics, health (mental and physical), economic and employment status, neighborhood characteristics, and program participation. Beginning at age 9, children were interviewed directly (either during the home visit or on the telephone). The direct child interviews collected data on family relationships, home routines, schools, peers, and physical and mental health, as well as health behaviors.
A collaborative study of the FFCWS, the In-Home Longitudinal Study of Pre-School Aged Children (In-Home Study) collected data from a subset of the FFCWS Core respondents at the Year 3 and 5 follow-ups to ask how parental resources in the form of parental presence or absence, time, and money influence children under the age of 5. The In-Home Study collected information on a variety of domains of the child's environment, including: the physical environment (quality of housing, nutrition and food security, health care, adequacy of clothing and supervision) and parenting (parental discipline, parental attachment, and cognitive stimulation). In addition, the In-Home Study also collected information on several important child outcomes, including anthropometrics, child behaviors, and cognitive ability. This information was collected through interviews with the child's primary caregiver, and direct observation of the child's home environment and the child's interactions with his or her caregiver.
Similar activities were conducted during the Year 9 follow-up. At the Year 15 follow-up, a condensed set of home visit activities were conducted with a subsample of approximately 1,000 teens. Teens who participated in the In-Home Study were also invited to participate in a Sleep Study and were asked to wear an accelerometer on their non-dominant wrist for seven consecutive days to track their sleep (Sleep Actigraphy Data) and that day's behaviors and mood (Daily Sleep Actigraphy and Diary Survey Data).
An additional collaborative study collected data from the child care provider (Year 3) and teacher (Years 9 and 15) through mail-based surveys. Saliva samples were collected at Year 9 and 15 (Biomarker file and Polygenic Scores). The Study of Adolescent Neural Development (SAND) COVID Study began data collection in May 2020 following the onset of the COVID-19 pandemic. It included online surveys with the young adult and their primary caregiver.
The FFCWS began its seventh wave of data collection in October 2020, around the focal child's 22nd birthday. Data collection and interviews continued through January 2024. The Year 22 wave included a young adult (YA) survey with the original focal child and a primary caregiver (PCG) survey. Data were also collected on the children of the original focal child (referred to as Generation 3, or G3).
In 2017, the FFCWS team announced the Fragile Families (FF) Challenge, a collaborative effort in which participants were tasked with using machine learning methods and FFCWS data (Baseline to Year 9) to build a model that would predict six key outcomes at Year 15. Materials used in the FF Challenge have been archived in this collection.
Documentation for these files is available on the FFCWS website under Data and Documentation. For details of updates made to the FFCWS data files, please see the project's Data Alerts page.
Data collection for the Future of Families and Child Wellbeing Study was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) of the National Institutes of Health under award numbers R01HD36916, R01HD39135, and R01HD40421, as well as a consortium of private foundations.
Below is the citation for use of the FFCWS data accessed through ICPSR. For information on additional citation requirements when using FFCWS in publications, please refer to this FAQ on the FFCWS project site.
Harvard School of Public Health/Robert Wood Johnson Foundation/National Public Radio Poll: What Shapes Health, United States, 2014 (ICPSR 38384)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of the 2014 poll What Shapes Health, a survey from National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Concerned about own health
- Meaning of health
- Control over own health
- Effort into maintaining health
- Frequency of healthy activities
- Description of personal health
- Types of healthy habits
- On diet to lose weight
- Ways to improve health
- Things that cause health problems
- Childhood problems causing future health issues
- Participation in community organizations
- Volunteering improving health
- Being told to improve health
- Family/friend behavior influencing health
- Health habits of family/friends
- Problems experienced in adulthood
- Problems experience in childhood
- Receiving health care
- Difficulty accessing health care
- Parents' health
- Recent serious illnesses
- Diagnosed with health conditions
- Frequency of exercising
- Personal weight
- Smoking habits
- Health insurance
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092363]. Frequencies and summary statistics for the 244 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Harvard School of Public Health/Robert Wood Johnson Foundation -- Subethnicities Survey, United States, 2007 (ICPSR 38367)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of the Subethnicities Survey, a survey from the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by ICR-International Communications Research. Topics covered in this survey include:
- Family heritage
- Country born
- Childhood obesity
- Quality of healthcare system in the United States
- Visit of emergency room
- Prescription
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092323]. Frequencies and summary statistics for the 172 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Harvard School of Public Health/WBUR/Blue Cross Blue Shield of Massachusetts Foundation/Robert Wood Johnson Foundation Poll: Sick in Massachusetts, 2012 (ICPSR 38377)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Sick in Massachusetts, a survey from the Harvard School of Public Health, WBUR Boston National Public Radio, the Blue Cross Blue Shield Foundation of Massachusetts, and the Robert Wood Johnson Foundation, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Quality of health care
- Health insurance, insurance status, and care costs
- Reasons for health care quality problems
- Focus of doctor visits
- Reasons for rising health care costs
- Health care as good value
- Agreement with doctor statements
- Amount of doctors
- Attending routine check-ups
- Overnight stays in hospitals
- Satisfaction with hospital care
- Medical costs as reasonable
- Description of hospital stay
- Recent serious illness
- Satisfaction with medical care
- Interactions with health care professionals
- Impact of medical costs on family
- Receiving care every time it's needed
- Being turned away for health care
- Insurance premiums as financial problem
- Out-of-pocket medical costs
- Negotiating lower charges
- Problems paying for insurance
- Changing regular doctor
- Personal financial situation
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092353]. Frequencies and summary statistics for the 162 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Harvard T.H. Chan School of Public Health/National Public Radio/Robert Wood Johnson Foundation: Discrimination in the United States Survey, 2017 (ICPSR 38387)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of the 2017 Discrimination in the United States Survey, a survey from Harvard T.H. Chan School of Public Health/Robert Wood Johnson Foundation/National Public Radio conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Belief in discrimination against racial/ethnic minorities
- Discrimination against men/women
- Discrimination against lesbian/gay/bisexual people
- Discrimination against transgender people
- Biggest problem with discrimination against lesbian/gay/bisexual/transgender/queer (LGBTQ) people
- Live on tribal lands
- Local/tribal government
- Discrimination based on race
- Discrimination based on gender
- Discrimination based on being part of the LGBTQ community
- Reasons for avoiding seeking health care
- Experiences with discrimination
- Discrimination resulting in fewer employment opportunities
- Discrimination resulting in unequal pay
- Discrimination resulting in fewer chances for quality education
- Encouraged to/discouraged from applying to college
- Predominant groups living in respondent's area
- Not feeling/being welcomed in neighborhood due to race
- Not feeling/being welcomed in neighborhood due to being part of LGBTQ community
- Considered moving to another area because of discrimination
- Comparing respondent's area to others
- Police using unnecessary force based on race/ethnicity
- Avoiding activities to avoid discrimination from police
- Experiences caused by racial discrimination
- Experiences caused by gender discrimination
- Experiences caused by discrimination against LGBTQ community
- Local police force does/does not reflect racial/ethnic background of community
- Contacted by political representatives about voting/supporting cause
- Registered to vote
- Vote in 2016 presidential election
- Physical health status
- Mental health status
- Disability
- Chronic illness
- Veterans Administration
- Indian Health Services
- Seeking health care
- Insurance coverage
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31114655]. Frequencies and summary statistics for the 235 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Health Tracking Household Survey, 2007 [United States] (ICPSR 26001)
The 2007 Health Tracking Household Survey (HTHS) is the successor to the Community Tracking Study (CTS) Household Surveys which were conducted in 1996-1997 (ICPSR 2524), 1998-1999 (ICPSR 3199), 2000-2001 (ICPSR 3764), and 2003 (ICPSR 4216). Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Like the CTS Household Surveys, HTHS collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, adult chronic conditions, height and weight, and smoking behavior. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care.
At the beginning of the interview, a household informant provided information about the composition of the household which was used to group the household members into family insurance units (FIU). Each FIU comprised an adult household member, his or her spouse or domestic partner (same sex and other unmarried partners), if any, and any dependent children 0-17 years of age or 18-22 years of age if a full-time student (even if living outside the household). In each FIU in the household, a FIU informant provided information on insurance coverage, health care use, usual source of care, and general health status of all FIU members. This informant also provided information on family income as well as employment, earnings, employer-offered insurance plans, and race/ethnicity for all adult FIU members. Moreover, every adult in each FIU (including the FIU informant) responded through a self-response module to questions that could not be answered reliably by proxy respondents, such as questions about unmet needs, assessments of the quality of care, consumer engagement, satisfaction with physician choice, use of health information, health care shopping, and detailed health questions. The FIU informants responded on behalf of children regarding unmet needs, satisfaction with physician choice, and use of health care information.
Health Tracking Household Survey, 2010 [United States] (ICPSR 34141)
This is the second survey in the Health Tracking Household Survey (HTHS) series, the successor to the Community Tracking Study (CTS) Household Surveys. The CTS Household Surveys were conducted in 1996-1997 (ICPSR 2524), 1998-1999 (ICPSR 3199), 2000-2001 (ICPSR 3764), and 2003 (ICPSR 4216), and the first HTHS survey was conducted in 2007 (ICPSR 26001). Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Like the previous surveys, this survey collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, and adult chronic conditions. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care.
At the beginning of the interview, a household informant provided information about the composition of the household which was used to group the household members into family insurance units (FIU). Each FIU comprised an adult household member, his or her spouse or domestic partner (same sex and other unmarried partners), if any, and any dependent children 0-17 years of age or 18-22 years of age if a full-time student (even if living outside the household). In each FIU in the household, a FIU informant provided information on insurance coverage, health care use, usual source of care, and general health status of all FIU members. This informant also provided information on family income as well as employment, earnings, employer-offered insurance plans, and race/ethnicity for all adult FIU members. Moreover, every adult in each FIU (including the FIU informant) responded through a self-response module to questions that could not be answered reliably by proxy respondents, such as questions about unmet needs, usual source of care, assessments of the quality of care, consumer engagement, satisfaction with physician choice, use of health information, health care shopping, and detailed health questions. The FIU informants responded on behalf of children regarding unmet needs, satisfaction with physician choice, and use of health care information.
Healthy Americas Survey, 2014 (ICPSR 36433)
Massachusetts Health Reform Survey, 2006 (ICPSR 35026)
Massachusetts Health Reform Survey, 2007 (ICPSR 35027)
Massachusetts Health Reform Survey, 2008 (ICPSR 35028)
Massachusetts Health Reform Survey, 2009 (ICPSR 35029)
Massachusetts Health Reform Survey, 2010 (ICPSR 35030)
Massachusetts Health Reform Survey, 2012 (ICPSR 35061)
Massachusetts Health Reform Survey, 2013 (ICPSR 36037)
Massachusetts Health Reform Survey, 2015 (ICPSR 36419)
Massachusetts Health Reform Survey, 2018 (ICPSR 37411)
National Comorbidity Survey: Adolescent Supplement (NCS-A), [United States], 2001-2004 (ICPSR 28581)
The National Comorbidity Survey Replication Adolescent Supplement (NCS-A) was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders in the child and adolescent years of life among adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders.
The core NCS-A interview schedule was an adaptation of the World Health Organization Composite International Diagnostic Interview (CIDI). NCS-A also administered the non-verbal subtest (Matrices subtest) of the Kaufman Brief Intelligence Test (K-BIT).
In addition to interviewing adolescents, information was collected from a parent or a parent surrogate to obtain an additional perspective on the adolescent's mental health and its correlates. Information from parents focused on the five adolescent disorders for which previous methodological research has most consistently shown that parental reports are important for making diagnoses: attention-deficit/hyperactivity disorder, conduct disorder, oppositional defiant disorder, major depressive episode, and dysthymic disorder.
Demographic information collected by NCS-A includes age, citizenship status, country of birth, criminal history, ethnicity, grandparents' country of birth, language(s) spoken in the home, parents' country of birth, race, religion, and sex.
The data collection contains six data files: (1) data for the adolescent household and school respondents; (2) data for the parents who responded to the long self-administered questionnaire; (3) data for the parents who responded to both the long self-administered questionnaire and short telephone interview; (4) diagnostic variables derived from the data collected from the adolescents and parents; (5) K-BIT scores normed to the NCS-A adolescent sample; and (6) raw K-BIT data.
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: African Americans' Lives Today, United States, 2013 (ICPSR 38379)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of African Americans' Lives Today, a survey from National Public Radio, the Harvard School of Public Health and the Robert Wood Johnson Foundation conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Satisfaction with life and environment
- Life improvements
- Satisfaction with living area
- Living area improvements
- Most important local issue
- Other black people in area
- Amount of black friends
- Economic class
- Rating various public institutions
- Rating quality of various resources
- Amount of discrimination
- Reason for discrimination
- Personal financial situation
- Economic class growing up
- Achieving American dream
- Better off than parents
- Importance of religion
- Making decisions about children
- Child schooling
- Rating child's school
- Black children in school
- Desired level of child's education
- Seeking long-term relationship
- Desire to marry
- Satisfaction with dating opportunities
- Race of romantic dates
- Looking for work
- Career success
- Unemployment concerns
- Health insurance and healthcare
- Access to care
- Medical expenses
- Quality of doctors
- Health and wellness
- Social and family life
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092356]. Frequencies and summary statistics for the 204 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Health Education Survey, United States, 2013 (ICPSR 38381)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of the 2013 poll Health Education Survey, a survey from National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Grade child enrolled in
- Location of child's school
- Enrollment total
- Giving grade to child's school
- Biggest problem at school
- Emphasis on various subjects
- School teaching same values as home values
- School obligations interfering with family time
- Knowledge about common core
- Common core improving education
- Method of learning about common core
- Success of common core
- School preparing students for careers
- Attending technical
- Vocational classes
- Preparing students for college
- Preparing students for job market
- Student plans after high school
- College or career planning services
- Healthiness of school lunches
- Foods available at school
- Length of school lunch
- Time of lunch period
- Vending machines at school
- Fast-food chains at school
- Physical education as mandatory
- Frequency of PE classes
- Length of PE classes
- PE classes for other purposes
- Rating PE school offerings
- Playgrounds available after school
- Recess as structured or free time
- School safety
- Security precautions at school
- Ways of preventing violence at school
- Increasing security after Newtown shooting
- Method of transport to school
- Time to get home from school
- Safety of travelling to school
- School related stress
- School counseling for stressed students
- Time of school day
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092359]. Frequencies and summary statistics for the 148 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Latinos' Lives and Health Today, United States, 2013 (ICPSR 38380)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Latinos' Lives and Health Today, a survey from National Public Radio, the Harvard School of Public Health, and the Robert Wood Johnson Foundation, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Satisfaction with life
- Satisfaction with living area
- Most important local issue
- Other Hispanic people in living area
- Rating aspects of life
- Personal discrimination in past twelve months
- Personal finances
- Achieving American dream
- Economic class
- Better off than parents
- Opportunities for children
- Language spoken at home
- Looking for job
- Concerns about unemployment
- Biggest health problem in family
- Description of weight
- Trying to lose weight
- Medical care in past twelve months
- Problems with medical care access
- Confidence in ability to pay for major illness
- Health care facility used
- Health care professionals speaking Spanish
- Receiving poor medical care
- Health insurance coverage
- Personal health rating
- Frequency of exercise
- Country born in
- Age came to United States
- Parents' birth country
- Reasons for coming to US
- Comparing birth country to US
- Diet as more or less healthy in US.
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Sick in America, United States, 2012 (ICPSR 38378)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of Sick in America, a survey from National Public Radio, the Robert Wood Johnson Foundation, and the Harvard School of Public Health, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Quality of health care
- Health care costs as problem
- Reasons for health care quality problems
- Focus of doctor visits
- Reasons for rising health care costs
- Health care as good value
- Agreement with doctor statements
- Amount of doctors
- Doctor visits for check-up
- Personal insurance coverage
- Uninsured
- Overnight hospital stays
- Satisfaction with hospital medical care
- Medical care costs as reasonable
- Description of hospital stays
- Serious illness
- Interactions with medical professionals
- Impact of medical care costs on family
- Receiving care every time it's needed
- Being turned away for health care
- Insurance premiums as financial problem
- Out of pocket medical costs
- Negotiating lower charges
- Problems paying for insurance
- Changing regular doctor
- Personal financial situation
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092354]. Frequencies and summary statistics for the 159 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: Sports and Health in America, United States, 2015 (ICPSR 38385)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of the 2015 poll Sports and Health in America, a survey from National Public Radio/Robert Wood Johnson Foundation/Harvard T.H. Chan School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Sports participation in past year
- Exercise in the past year
- Importance of sport/exercise
- Effects of sport/exercise
- Future sport/exercise participation
- Reasons for not participating in sport/exercise
- Sports participation in school
- Desire for child sports participation
- Desire to be professional athlete
- Stopped playing sports
- Reasons for current sports participation
- Child health
- Child sports participation
- Sports participation with child
- Effects of child sports participation
- Hope for child to be professional athlete
- Child exercise
- Obstacles to child sports participation
- Personal health
- Sport/exercise injuries
- Hours of TV
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31095185]. Frequencies and summary statistics for the 191 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health Poll: The Burden of Stress in America, United States, 2014 (ICPSR 38383)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of the 2014 poll The Burden of Stress in America, a survey from National Public Radio/Robert Wood Johnson Foundation/Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Stress experienced in past month
- Impact of stress on life aspects
- Stress affecting health
- Stress affecting family and household
- Stress affecting friendships
- Stress affecting work
- Stress affecting community involvement
- Responses to stress
- Time to relax in past month
- Causes of stress
- Concern about various problems
- Daily events contributing to stress
- Reasons for not experiencing stress
- Stress experienced in past year
- Most stressful event in past year
- Things done to reduce stress
- People advising stress reduction methods
- Stress level changes in last few years
- Stress contributing to major life problems
- Stress contributing to future problems
- Stress having positive effect
- Control over stress
- Effect of stress on other people
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092361]. Frequencies and summary statistics for the 410 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
National Study of Physician Organizations and the Management of Chronic Illness II (NSPO2), 2006-2007 (ICPSR 29801)
The National Study of Physician Organizations and the Management of Chronic Illness (NSPO) was designed to improve understanding of evidence-based care management processes (CMPs) as they relate to physician organizations (POs), that is, independent practice associations (IPAs) and medical groups. Since the first NSPO survey of physician organizations in 2000-2001 (NSPO1, archived as ICPSR 4455), considerable investments have been made by a number of different sources, including the Robert Wood Johnson Foundation, the California Healthcare Foundation, and The Commonwealth Fund, to bring about improved care for the chronically ill. This survey, the second NSPO survey of IPAs and medical groups (NSPO2), examined the extent to which the investments in quality improvement were translated into action. NSPO2 assessed the status of CMPs and preventive services use as well as their key drivers in 2006-2007 and the extent to which these factors have changed over time. As in the first NSPO survey, NSPO2 focused on the treatment of four chronic diseases: asthma, congestive heart failure (CHF), depression, and diabetes. Topics covered by the survey include practice type, size, age, ownership, and number of locations; clinical information systems; care management and clinical practice; activities of health insurance plans in chronic illness care; performance incentives; preventative care and health promotion; and organizational culture.
This collection has two data files. The first file contains the NSPO2 survey data, while the second contains a crosswalk between the NSPO1 and NSPO2 case identification numbers which can be used to link the data of the POs that responded to both surveys. Altogether, 369 of the 1,104 POs that responded to NSPO1 also responded to NSPO2.
National Study of Physician Organizations and the Management of Chronic Illness (NSPO), 2000-2001 (ICPSR 4455)
National Youth Smoking Cessation Survey, 2003-2005 (ICPSR 34275)
New Jersey Childhood Obesity Study, 2009-2010 (ICPSR 34364)
This survey was conducted as part of the New Jersey Childhood Obesity Study, a project designed to provide vital information for planning, implementing, and evaluating interventions aimed at preventing childhood obesity in five New Jersey municipalities: Camden, Newark, New Brunswick, Trenton, and Vineland. Conducted among households with 3-18 year old children in the 5 cities, the survey interviewed the adult who made most of the decisions about food shopping in each household. The survey examined perceptions about food and physical activity environments in the five cities, investigated barriers related to access to healthy food and physical activity facilities, and collected information on the height and weight and food and physical activity behaviors of the cities' 3-18 year old children and the adult respondents. In addition, the survey collected demographic information about the household members.
Four linkable datasets contain the survey data: the Household File, Index Child File, Adult File, and All Child File. The Household File covers household and neighborhood characteristics, while the Index Child File describes the characteristics and behaviors of a randomly selected 3-18 year old child in the household, who is designated the "index child" and is the primary unit of analysis. The Adult File comprises characteristics and behaviors of the adult respondent, and, lastly, the All Child File covers a few characteristics of all children aged 3-18 in the household.
Privately Insured in America: Opinions on Health Care Costs and Coverage, 2014 (ICPSR 36176)
Robert Wood Johnson Foundation Employer Health Insurance Survey, 1993 (ICPSR 6908)
Robert Wood Johnson Foundation Employer Health Insurance Survey [Community Tracking Study and State Initiatives in Health Care Reform Program], 1997 (ICPSR 2935)
Robert Wood Johnson Foundation Family Health Insurance Survey, 1993 (ICPSR 6894)
Robert Wood Johnson Foundation/Harvard School of Public Health Poll: America's Health Agenda, United States, 2011 (ICPSR 38376)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of America's Health Agenda, a survey from the Robert Wood Johnson Foundation and the Harvard School of Public Health conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Rating local community's healthiness
- Most threatening disease or health condition
- Most important medical care system problems
- Rating government illness prevention
- Rating government health care systems
- Preferred government size
- Federal government health care priorities
- Rating federal government health care performance
- Contact with federal government health agencies
- Overall national health changes
- State government health priorities
- Rating state government health care performance
- Contact with state government health agencies
- Overall state health changes
- Local government health care priorities
- Rating local government health care performance
- Contact with local health agencies
- Overall local health changes
- Personal problems in past year
- Spending money to save in the long run
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092347]. Frequencies and summary statistics for the 421 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.