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Curated
Partially restricted

Community Connections in Board and Care Homes Serving Chronically Ill Adults in Ten States, 1993-1994 (ICPSR 6783)

Released/updated on: 2024-02-14
Geographic coverage: Oregon, United States, Illinois, Oklahoma, Texas, Kentucky, California, Georgia, Florida, Arkansas, New Jersey
Time period: 1993-01-01--1994-01-01
This study examined the implementation of regulations for board and care homes, and investigated formal and informal connections between these facilities and community health and social service agencies. To this end, board and care home inspectors were interviewed about their inspection practices. Inspectors were queried about the types and numbers of board and care homes inspected, frequency of inspections, consistency of regulations across types of board and care homes, proportion of time spent for initial inspections and inspections of homes already licensed, percent of time spent in specific inspection activities, areas used to determine compliance, frequently reported problems, which deficiencies inspectors consider serious, the use of inspection teams, participation of other agencies or specialists, who sees the inspection reports (e.g., agencies, departments, individuals, the public), number of license renewals and revocations, percent of last 50 homes in total compliance, number of complaint investigations in the last three months, percent of complaint reports substantiated, number of unlicensed homes in the area and type of action taken, and number of homes with social service or community-based health agency arrangements. Other variables include inspector's age, gender, education, occupation, and salary range for the current position.
Curated

National Hospice Study: Patient and Facility Data, [1980-1983] (ICPSR 8466)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1980-01-01--1983-01-01
The purpose of the National Hospice Study was to examine the impact of hospice care on the quality of life of patients and their families and the health care cost incurred by patients. The National Hospice Study consists of two distinct, but interrelated, primary data collection components. The first relates to patient level studies of the costs incurred by patients and their families during the final phases of terminal cancer as well as the quality of life that they experienced during this period. The second component of the study relates to comparisons of the hospices that had received special demonstration funding from the Health Care Financing Adminstration for reimbursement of costs incurred by Medicare patients and those that had not. To address the issue of the desirability of reimbursing for hospice under Medicare, data from a large number of hospice and nonhospice patients were gathered. Patients were identified via the sites of care serving them, both hospice and nonhospice. Three types of data were collected: (1) facility level characteristics for a sample of all hospices nationwide, (2) census of intake and discharge characteristics for all patients served by those hospices during the study period, and (3) an extensive interview schedule regarding the quality of care and adequacy of Medicare reimbursement programs was conducted in both hospice and nonhospice settings with a sample of those patients fulfilling certain selection criteria (as well as their primary care person and family).
Curated
Partially restricted

Springfield [Massachusetts] Study of Populations with Disabilities, 1993-1997 (ICPSR 2623)

Released/updated on: 2024-02-14
Geographic coverage: United States, Massachusetts, Springfield
This two-wave longitudinal survey of persons with disabilities in Springfield, Massachusetts, had four research objectives: (1) to determine levels of formal and informal service use among people with disabilities in Springfield, (2) to determine the prevalence and consequences of unmet needs for assistance with activities of daily living (ADLs) and instrumental activities of daily living (IADLs), (3) to test the hypothesis that residents reporting unmet needs for assistance with daily living activities at baseline would have higher levels of emergency room use and hospitalization over the follow-up period than respondents not reporting such needs, and (4) to assess respondents' satisfaction with access to and quality of their health care and health care providers. Conducted in 1993-1994 and 1996-1997, the survey gathered information on health, health service utilization, satisfaction with health services, assistance with ADLs (eating, dressing, bathing, toileting, transferring in and out of bed/chair, and moving around indoors) and IADLs (preparing meals, shopping for groceries and household supplies, housekeeping, transportation, and financial management), social and physical activity, social support, health care coverage, and sociodemographic characteristics such as income, year of birth, marital status, race, Hispanic origin, religion, education, and employment.
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