The Archive of Data on Disability to Enable Policy and research (ADDEP) is a new initiative to build a repository of data on disability and rehabilitation. The mission of ADDEP is to improve and enable research among researchers, policymakers, and practitioners by providing access to disability and rehabilitation data. ADDEP data can be used to better understand and inform the implementation of the Americans with Disabilities Act and other disability policies with the goal of improving the lives and conditions of people with disabilities. In addition to providing access to data for research and analysis, ADDEP strives to offer user support and community outreach to enable data to be optimally used by the widest audience.
ADDEP provides access to data including a wide range of topics related to disability, such as the following: disability status, health care, rehabilitation services and medicine, disability employment, income, education, disability policies, and many more.
The Primary Aims of ADDEP include:
- Provide access to disability and rehabilitation data
- Provide technical assistance for data users
- Build a connection between research data, community outreach, and activism
ADDEP is hosted by Inter-university Consortium for Political and Social Research (ICPSR), the largest social science data archive in the world and part of the University of Michigan's Institute for Social Research. The Center for Large Data Research and Data Sharing in Rehabilitation (CLDR) has joined with ICPSR to build the ADDEP repository of data to support disability and rehabilitation research. ADDEP will include existing disability data resources already available at ICPSR and newly acquired data from rehabilitation medicine and related areas through this new partnership with CLDR.
The CLDR involves a consortium of investigators from the University of Texas Medical Branch, Cornell University, ICPSR and the University of Michigan Health System Department of Physical Medicine and Rehabilitation. The consortium partners have a mission to provide education, training, and learning experiences using in-person and online platforms designed to promote collaborative research opportunities through rehabilitation medicine. Resources include workshops, webinars, written guidelines, data directory, cross-dataset variable catalog, the ADDEP data repository, pilot project funding, and a visiting scholars program. The CLDR is housed at UTMB.
The CLDR is funded by NIH - National Institute of Child Health and Human Development, through the National Center for Medical Rehabilitation Research, the National Institute for Neurological Disorders and Stroke, and the National Institute of Biomedical Imaging and Bioengineering.
Definition of Disability as Provided by Americans with Disabilities Act
An individual with a disability is defined by the ADA as a person who has a physical or mental impairment that substantially limits one or more major life activities, a person who has a history or record of such an impairment, or a person who is perceived by others as having such an impairment. The ADA does not specifically name all of the impairments that are covered. For further information about the ADA definition of disability, please refer to ADA.gov.