National Home and Hospice Care Survey, 2000 (ICPSR 3791)

Published: Jun 22, 2006

Principal Investigator(s):
United States Department of Health and Human Services. National Center for Health Statistics


Version V3

The National Home and Hospice Care Survey (NHHCS) for 2000 examines home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.

United States Department of Health and Human Services. National Center for Health Statistics. National Home and Hospice Care Survey, 2000. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2006-06-22.

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In preparing the data files for this collection, the National Center for Health Statistics (NCHS) has removed direct identifiers and characteristics that might lead to identification of data subjects. As an additional precaution NCHS requires, under Section 308(d) of the Public Health Service Act (42 U.S.C. 242m), that data collected by NCHS not be used for any purpose other than statistical analysis and reporting. NCHS further requires that analysts not use the data to learn the identity of any persons or establishments and that the director of NCHS be notified if any identities are inadvertently discovered. ICPSR member institutions and other users of data from ICPSR are expected to adhere to these restrictions.


2000-08 -- 2000-12

Per agreement with the National Center for Health Statistics (NCHS), ICPSR distributes the data files and text of the technical documentation for this collection as prepared by NCHS.

Only agencies providing home health or hospice care services to patients at the time of the survey were eligible to participate in the 2000 NHHCS. Of the 1,800 agencies in the sample, 1,478 (82 percent) were considered in-scope of the survey. Of the 322 out-of-scope agencies, 286 were not providing home health or hospice care services to patients at the time of the survey and 36 were duplicates of, or had merged with, other sampled agencies. Of the in-scope agencies, 1,425 (96 percent) agreed to participate.

The sampling frame for the NATIONAL HOME AND HOSPICE CARE SURVEY, 2000 consisted of 15,451 agencies classified as agencies providing home health and hospice care. The universe of home health agencies and hospices was obtained from various national organizations and other sources.

personal interviews and administrative records

survey data



2006-06-22 The Stata dictionary and system data files for dataset 2 was corrected to set the storage type as double for numeric variables with more than nine significant digits.

2006-03-17 The data have been reformatted.

2005-01-27 ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:

  • Created online analysis version with question text.


  • The public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.

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This study is maintained and distributed by the National Archive of Computerized Data on Aging (NACDA), the aging program within ICPSR. NACDA is sponsored by the National Institute on Aging (NIA) at the National Institutes of Heath (NIH).