Requests for Assistance with Adaptive Switches from Individuals with Severe Communication Impairments, 2007 to 2012 [California, Kansas, and Washington] (ICPSR 36515)

Version Date: Oct 25, 2016

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Principal Investigator(s):
Nancy Brady, University of Kansas

https://doi.org/10.3886/ICPSR36515.v1

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Summary

The Requests for Assistance with Adaptive Switches from Individuals with Severe Communication Impairments study is one of the three projects in the Communication of People with MR, 2006 to 2012 Series, which focuses on identifying participant variables that predict success in increasing communication skills of individual with intellectual disabilities. The study data were collected to show how children and adults with profound multiple impairments can learn to request assistance with adaptive switches and to on examine the change from pre-intentional to intentional symbolic communication.

The study examined 77 respondents, ages 2 through 71, by administering three assessments: the Communication Complexity Scale (CCS), the Mullen Scales of Early Learning and a functional vision assessment. The CCS was administered to 68 respondents on up to three occasions. The first occasion of administration was to participants who were pre-intentional communicators. The CCS was administered on a second occasion to participants when they were identified as being on the cusp between pre-intentional and intentional communication. The third and final occasion of administration occurred when participants were identified as "learners" and could express preferences using switches and other means.

The Mullen Scales were administered to 22 of the participants. Of the 77 participants initially selected for the study, 7 did not complete either scale. Vision impairment was identified in 68 respondents, 28 who had no functional use and 41 who had some functional use of their vision.

Citation

Brady, Nancy. Requests for Assistance with Adaptive Switches from Individuals with Severe Communication Impairments, 2007 to 2012 [California, Kansas, and Washington]. Inter-university Consortium for Political and Social Research [distributor], 2016-10-25. https://doi.org/10.3886/ICPSR36515.v1

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Funding

United States Department of Health and Human Services. National Institutes of Health. Eunice Kennedy Shriver National Institute of Child Health and Human Development (5P01HD018955-25)

Subject Terms

Geographic Coverage

Restrictions

Users of the data must agree to the Terms of Use presented on the ADDEP Web site and available through the link in each codebook.

Public- and restricted-use versions of the data are included in this collection. For the public-use version of the data, certain identifying information in the downloadable version have been masked or edited to protect respondent privacy. For more information about the differences between the public- and the restricted-use versions of the data collection, please refer to the Codebook Notes section of the PDF Codebook. Users interested in obtaining the restricted-use version of the collection will need to complete a Restricted Data Use Agreement before they can obtain these data. Users can apply online for access to these data through the ICPSR restricted data contract portal. Please go to the "apply online for access to the data" link above to begin.

Distributor(s)

Inter-university Consortium for Political and Social Research
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Time Period(s)

2007 -- 2012

Date of Collection

2007-12-14 -- 2012-07-27

Data Collection Notes

  1. Respondents in the public-use version have been de-identified by ICPSR staff. For details on the confidentiality measures taken to de-identify respondents, please see the codebook notes at the beginning of the codebook. To obtain the original demographic information data users may request access to the restricted-use data.

  2. This study is one of the three projects in the Communication of People with MR, 2006 to 2012 Series. The other two studies in this series are:

    • Language Development of Non-verbal Children Age 3 Years through 7 Years, 2007 to 2012 [Kansas City Metro Area] (ICPSR 36472)
    • Young Children with Physical Disabilities, 2007 to 2012 [Seattle, Washington] (ICPSR 36516)

  3. This study used two scales. The Communication Complexity Scale, which was developed for the Communication of People with MR 2006 to 2012 series, and the Mullen Scales of Early Learning. For more information on the Communication Complexity Scale, see the following publication:

    Brady, N., Fleming, K., Thiemann-Bourque, K., Olswang, L., Dowden, P., Saunders, M., and Marquis, J. (2012). Development of the Communication Complexity Scale. American Journal of Speech-Language Pathology, 21(1), 16-28.

    Link to source: https://lsidata.ku.edu/ccs/index.php

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Study Purpose

This study was focused on examining the change from pre-intentional to intentional symbolic communication.

Study Design

The Communication Complexity Scale (CCS) was administered on up to three occasions to study participants. The first occasion of administration was to participants who were pre-intentional communicators. The CCS was administered on a second occasion to participants when they were identified as being on the cusp between pre-intentional and intentional communication. The third occasion of administration occurred when participants were identified as "learners" and could express preferences using switches and other means.

Sample

Respondents were convenience sampled through their participation in a requesting-via adaptive-switch intervention. Respondents were selected from the group participating in the intervention because of their severe and multiple disabilities and suspected vision impairments. Respondents were between ages 2 to 71 years.

Time Method

Longitudinal: Panel

Universe

children and adults with profound multiple intellectual and developmental disabilities

Unit(s) of Observation

individual

Data Type(s)

Mode of Data Collection

Presence of Common Scales

  • Complexity of Communication Scale
  • Mullen Scales of Early Learning

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Original Release Date

2016-10-25

Version History

2018-02-15 The citation of this study may have changed due to the new version control system that has been implemented. The previous citation was:
  • Brady, Nancy. Requests for Assistance with Adaptive Switches from Individuals with Severe Communication Impairments, 2007 to 2012 [California, Kansas, and Washington]. ICPSR36515-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2016-10-25. http://doi.org/10.3886/ICPSR36515.v1

2016-10-25 ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:

  • Standardized missing values.
  • Checked for undocumented or out-of-range codes.
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Notes

  • The public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.

  • One or more files in this data collection have special restrictions. Restricted data files are not available for direct download from the website; click on the Restricted Data button to learn more.

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