Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988 (ICPSR 9795)

Published: Oct 3, 1993

Principal Investigator(s):
Ruth T., et al. Gross

Version V1

The Infant Health and Development Program was a collaborative, randomized, longitudinal, multisite clinical trial designed to evaluate the efficacy of comprehensive early intervention in reducing the developmental and health problems of low birth weight, premature infants. An intensive intervention extending from hospital discharge to 36 months corrected age was administered between 1985 and 1988 at eight different sites. The study sample of infants was stratified by birth weight (2,000 grams or less, 2,001-2,500 grams) and randomized to the Intervention Group or the Follow-Up Group. The Intervention Group received home visits, attendance at a special child development center, and pediatric follow-up. The Follow-Up Group received only the pediatric follow-up component of the program. Measures of cognitive development, behavioral status, health status, and other variables were collected from both groups at predetermined time points. Cognitive development was assessed by the Stanford-Binet Intelligence Scale, the Bayley Mental and Motor Scales, the Peabody Picture Vocabulary Test--Revised, and the Beery-Buktenica Developmental Test of Visual Motor Integration. Behavior problems were measured using the Richman-Graham Behavior Checklist and Achenbach's Child Behavior Checklist. Health status was evaluated through the dimensions of morbidity (defined as the presence or absence of health conditions), functional status (defined by limitations in activities of daily living due to health problems), changes in physical growth, and maternal perception of the child's health. The many other variables and indices in the data collection include site, pregnancy complications, child's birth weight and gestation age, birth order, child's gender, household composition, day care arrangements, source of health care, quality of the home environment, parents' race and ethnicity, and maternal age, education, IQ, and employment.

Gross, Ruth T. Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 1993-10-03.

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Robert Wood Johnson Foundation (Robert Wood Johnson Foundation: 7887, 9013, 9407, 10207, 11146, 12257, 13218, 9367, 10887, 11078, 12255, 9528, 11125, 9532, 11124, 9524, 11126, 9526, 11128, 9523, 11127, 9531, 11129, 9525, 11130,9527, and 11131. )

Pew Charitable Trusts (Pew Charitable Trusts: 84-01587)

United States Department of Health and Human Services. Health Resources and Services Administration. Maternal and Child Health Bureau (MCJ060515)

United States Department of Health and Human Services. National Institutes of Health. Eunice Kennedy Shriver National Institute of Child Health and Human Development

1985 -- 1988

1985 -- 1988

The data is grouped in two parts: 59 Evaluation files (odd-numbered parts, 1-117) and 11 Implementation files (odd-numbered parts, 119-139).

After all eligibility criteria were applied during the screening procedure, 1302 of the 4551 infants born at the eight sites during the recruitment period were determined eligible. After consent and acceptance of assignment to study group were considered, 1,090 were enrolled in the study. This number included a total of 103 twin pairs and 2 cousin pairs.

All low birth weight (2,500 grams or less), premature (37 weeks gestational age or less) infants born at eight sites (University of Arkansas for Medical Sciences, Albert Einstein College of Medicine, Harvard Medical School, University of Miami School of Medicine, University of Pennsylvania School of Medicine, University of Texas Health Science Center at Dallas, University of Washington School of Medicine, and Yale University School of Medicine) between November 1984 and August 1985. All study infants reached 40 weeks post-conceptual age between January 7, 1985, and October 9, 1985.

Medical exams by physicians and nurse practitioners in clinics, personal interviews by social workers and nurse practitioners in clinics, development assessments by "blinded" assessors in clinics, home visit reports by "blinded" assessors, and reports by teachers in child development centers

clinical data




  • The public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.

  • The citation of this study may have changed due to the new version control system that has been implemented.
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This study is maintained and distributed by the Health and Medical Care Archive (HMCA). HMCA is the official data archive of the Robert Wood Johnson Foundation.