Parental Trust and Racial Disparities in the Care of Discharged Premature Infants (ICPSR 35940)
Principal Investigator(s): View help for Principal Investigator(s)
Scott A. Lorch, Childrens Hospital of Philadelphia
This is an external resource to which ICPSR links as a courtesy. These data are not available from ICPSR. Users should consult the data owners (via Parental Trust and Racial Disparities in the Care of Discharged Premature Infants) directly for details on obtaining these resources.
Summary View help for Summary
This project examines a large cohort of discharged premature infants receiving care at one of 32 outpatient pediatric sites affiliated with The Children's Hospital of Philadelphia. Families are surveyed three times during the first two years after discharge from the neonatal intensive care unit to determine the relative contribution of parental trust, communication styles, and expectations from the health care system on racial differences in care.
Funding View help for Funding
Subject Terms View help for Subject Terms
Geographic Coverage View help for Geographic Coverage
HideData Collection Notes View help for Data Collection Notes
-
NICHD funded the PRIMARY DATA COLLECTION of this project.
-
DSDR has tried to identify a link which points directly to where the study data reside. In cases where this was not possible a link pointing to the PI's Web site is provided, so users may contact the PI directly regarding access to the data.