JoAnne McFarland O'RourkeJoAnne McFarland O'Rourke

Human Research Protections Officer
Inter-university Consortium for Political and Social Research
Institute for Social Research
University of Michigan

Brief Biography

At ICPSR, Ms. O'Rourke is responsible for developing tools and processes to ensure human subjects protection, developing new archival and distribution projects, and developing and conducting training both internally and nationally. She composed and led ICPSR's first disclosure review board (DRB), and she led the development of two systems for providing access to restricted-use data: online analysis of data behind an analytic interface that conducts on-the-fly disclosure assessment, and a system for providing secure access to microdata via a Web portal

Ms. O'Rourke's research interests are in the areas of disclosure risk assessment and methods of securely providing data access to broad audiences. In 2009, she developed and began advancing the concept of moving disclosure risk assessment to the beginning of the survey process to facilitate rapid data release and the most robust data products possible.

Ms. O'Rourke is also a clinician and provides counseling and neurofeedback training for issues affecting couples, individuals, and families. She holds a Master of Social Work degree from the University of Michigan and a Bachelor of Science degree, Magna cum Laude, in psychology from Western Michigan University.

Publications & Presentations

Book Chapter

Pienta, A, O'Rourke, JM, and Franks, M (2010). Getting Started: An Introduction to Working with Archival Data Sets. In K.H Trzesniewski, M.B. Donnellan, and R.E. Lucas (Eds.) Secondary Data Analysis: An Introduction For Psychologists (pp 13-25). Washington, DC: APA Press.

Papers and Reports

O'Rourke, J.M. The Value of Early Disclosure Risk Decisions, Journal of Empirical Research on Human Research Ethics (forthcoming, draft available at http://deepblue.lib.umich.edu/handle/2027.42/90426, November 2011).

Zidar, K, O'Rourke, JM, Heeringa, SH, Birdsall, WC, Roehrig, S, Reed, BG, and Metcalf, D. Drug Abuse Warning Network Disclosure Analysis. Submitted to the Substance Abuse and Mental Health Services Administration, May, 2011.

O'Rourke, J. and Metcalf, D., Initial Disclosure Analysis, Drug Abuse Warning Network (DAWN). Submitted to the Substance Abuse and Mental Data Archive (SAMHDA) Disclosure Review Board (DRB), October, 2010.

SAMHDA Disclosure Review Board, Treatment Episode Data Set (TEDS) Discharge File, Disclosure Analysis (co-author with David Metcalf). Submitted to the Office of Applied Studies, Substance Abuse and Mental Health Services Administration, February 2009.

O'Rourke, JM, Metcalf, D., and Choate, R., Inventory of Mental Health Organizations (IMHO), Client/Patient Sample Survey (CPSS), and National Survey of Mental Health Treatment Facilities (NSMHTF), Initial Disclosure Review and Analysis. Submitted to the SAMHDA Disclosure Review Board and the Office of Applied Studies, Substance Abuse and Mental Health Services Administration, October 2009.

Workshops, Training, and Presentations

O'Rourke, J.M., Assessing and Mitigating Disclosure Risk: Essentials for Social Science (July 30-August 3, 2012). ICPSR Summer Program in Quantitative Methods of Social Research.

Brenner, P. and Lepkowski, J. Military Nursing Research: Fundamentals of Survey Methodology (July 23-27, 2012), organizer. ICPSR Summer Program in Quantitative Methods of Social Research.

O'Rourke, J.M. The Practice of Disclosure Analysis, session presentation for Applied Data Science: Managing Research Data for Reuse (July 25, 2012), Vardigan, M., Carlson, J., Fear, K., and Lyle, J. (organizers). ICPSR Summer Program in Quantitative Methods of Social Science.

O'Rourke, J.M., Heeringa. S.G., Metcalf, D., Hoelter, L., Witkowski, K. (2012, January). ICPSR Disclosure Risk Review Training (redesigned), Ann Arbor, Michigan.

O'Rourke, J.M., and Hoelter, L. (2012, January). Everything You Ever Wanted to Know About Secondary Data! Invited Session, Society for Social Work and Research (SSWR) Annual Conference, Washington, DC.

Choate, Robert and O'Rourke, JoAnne McFarland (November 2010). SAMHDA: The Data You Need And the Tools To Analyze Them, Exhibitor Theater workshop, American Public Health Association (APHA) Annual Meeting, Denver, Colorado.

O'Rourke, JM (2010, August). Opening Access to Restricted-Use Data Using Online Data Analysis. Survey Data and Online Analysis in the Classroom, Joint Statistical Meetings, Vancouver, British Columbia, Canada, August 5, 2010.

Hoelter, L. and O'Rourke, J.M. (2010, August). Using Survey Data in Teaching. Survey Data and Online Analysis in the Classroom, Joint Statistical Meetings, Vancouver, British Columbia, Canada, August 5, 2010.

O'Rourke, J.M. (2010, August). Data Access Tools from ICPSR. Data Access Tools from the Department of Health and Human Services (HHS) and the Inter-university Consortium for Political and Social Research (ICPSR). Tammy Stewart-Prather, chair. National Conference on Health Statistics, Washington, DC.

O'Rourke, J.M. (April 2010). Using Publicly Available Data Sources to Inform Addiction Treatment. American Society of Addiction Medicine (ASAM) 41st Annual Medical-Scientific Conference, San Francisco, California.

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