NACJD takes extensive precautions to avoid conditions that might lead to violation of confidentiality of respondent and subject data. Nonetheless, some datasets are not available for public-access download from the NAJCD or ICPSR websites because some risk of research participants' identity disclosure remains (e.g., variables used in conjunction with one another or linking to other data files). These data are placed into the Restricted Access Data Archive. See restricted data details.
How to Determine if Data are Restricted Access
Restricted-access studies (or parts of studies) are indicated on the study home page under the Access Notes:
Acquiring Restricted-Access Data
Researchers can request access to restricted data by submitting a completed Restricted Data Use Agreement (RDUA) through ICPSR's online Data Access Request System (IDARS). The RDUA certifies the data will be used for research or statistical purposes only, and that the confidentiality of respondents or subjects will be protected. Instructions for requesting restricted data
Receiving and Handling Restricted Data
When a request for restricted data has been approved, the Investigator will receive a temporary URL from which the password-protected files can be downloaded. After the files have been downloaded, they must be moved in accordance with the Data Protection Plan. The temporary URLs are valid for 3-5 days. Applicants should ensure that the email address provided in the application is correctly entered and that it is used regularly because it is where passwords will be sent and serves as the primary source of contact between the Data Investigator and NACJD.
- Researchers from outside the U.S.
- University students
- Co-Investigators at different institutions