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Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data (ICPSR 3678)

Principal Investigator(s):

Summary:

Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Baseline data (ICPSR 3253) were collected through randomized clinical trials at six sites: University of Alabama-Birmingham, The Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions such as psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services varied by site. This collection contains baseline data along with follow-up data at 6-, 12-, and 18-month intervals from each site with focus on the impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization. Also included are follow-up batteries, transition batteries (placement, bereavement, discontinued), and data reporting missed visits. Parts 1 through 5 contain screening data and responses to a short mental status questionnaire. Parts 6 through 34 contain baseline data along with follow-up data at 6, 12, and 18-month intervals and cover activities of daily living, anxiety, and caregiver health and health behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 35 through 40 contain tracking data and also include an examination of interventions.

Access Notes

  • These data are freely available.

  • NACDA Logo

    This study is maintained and distributed by the National Archive of Computerized Data on Aging (NACDA), the aging program within ICPSR. NACDA is sponsored by the National Institute on Aging (NIA) at the National Institutes of Heath (NIH).

Dataset(s)

WARNING: This study is over 150MB in size and may take several minutes to download on a typical internet connection.

DS0:  Study-Level Files
Documentation:
DS1:  Screening Log Sheet - Download All Files (3.8 MB)
DS4:  Repeat Screen - Download All Files (3.7 MB)
DS5:  Short Portable Mental Status Questionnaire - Download All Files (2.9 MB)
DS7:  Anxiety Inventory - Download All Files (4.8 MB)
DS8:  Bereavement Form - Download All Files (3.9 MB)
DS9:  Bereavement--Religiosity - Download All Files (3 MB)
DS10:  Bereavement--Sociodemographic - Download All Files (3.1 MB)
DS11:  Caregiver Health and Health Behaviors - Download All Files (5.6 MB)
DS12:  Core Quality Form - Download All Files (9.3 MB)
DS13:  Intervention Delivery Assessment - Download All Files (23.2 MB)
DS14:  Formal Care and Services - Download All Files (7.8 MB)
DS15:  Caregiver Medications - Download All Files (26 MB)
DS16:  Caregiver Sociodemographic Information - Download All Files (5.6 MB)
DS17:  Identification Number - Download All Files (3.2 MB)
DS18:  Interview Time - Download All Files (7.6 MB)
DS19:  Revised Memory and Behavior Checklist - Download All Files (9.2 MB)
DS20:  Mini Mental State Examination - Download All Files (4.9 MB)
DS21:  Positive Aspects of Caregiving - Download All Files (4.6 MB)
DS22:  Placement Form - Download All Files (3.3 MB)
DS23:  Placement--Sociodemographic - Download All Files (3.2 MB)
DS24:  Religiosity - Download All Files (3.7 MB)
DS25:  Care Recipient Medications - Download All Files (22.6 MB)
DS26:  Care Recipient Sociodemographic Information - Download All Files (4.2 MB)
DS27:  Social Activities - Download All Files (4.5 MB)
DS28:  Bereavement--Social Support - Download All Files (3.2 MB)
DS29:  Center for Epidemiologic Studies--Depression - Download All Files (6.1 MB)
DS30:  Social Support - Download All Files (6.1 MB)
DS31:  Follow-Up--Sociodemographic - Download All Files (4.4 MB)
DS32:  Follow-Up--Religiosity - Download All Files (3.7 MB)
DS33:  Transition--Formal Care Services - Download All Files (4 MB)
DS34:  Vigilance - Download All Files (4.1 MB)
DS35:  Care Recipient Tracking - Download All Files (3.7 MB)
DS36:  Discontinued Data - Download All Files (3.2 MB)
DS37:  Intervention Assignment - Download All Files (3.3 MB)
DS38:  Interventionist Characteristics - Download All Files (3.1 MB)
DS39:  Off Protocol - Download All Files (8.3 MB)
DS40:  Project Evaluation - Download All Files (7.6 MB)

Study Description

Citation

Schulz, Richard, et al. Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data . ICPSR03678-v2. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2006-09-26. http://doi.org/10.3886/ICPSR03678.v2

Persistent URL:

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Funding

This study was funded by:

  • United States Department of Health and Human Services. National Institutes of Health. National Institute on Aging

Scope of Study

Subject Terms:   Alzheimers disease, caregiver burden, caregivers, dementia, emotional states, families, health services utilization, health status, home health care, intervention, mental disorders, mental health, minorities, older adults, outreach programs, psychological wellbeing, stress

Geographic Coverage:   Alabama, Birmingham, Boston, California, Florida, Massachusetts, Memphis, Miami, Palo Alto, Pennsylvania, Philadelphia, Tennessee, United States

Time Period:  

  • 1996-09--2001-02

Date of Collection:  

  • 1996-09--2001-02

Universe:   Family caregivers living with persons with dementia for at least six months in Birmingham, AL, Boston, MA, Memphis, TN, Miami, FL, Palo Alto, CA, and Philadelphia, PA.

Data Types:   survey data

Methodology

Sample:   Convenience sample with recruitment strategies varying at each site.

Data Source:

personal interview

Extent of Processing:  ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:

  • Created online analysis version with question text.

Version(s)

Original ICPSR Release:  

Version History:

  • 2006-09-26 Value labels have been added.
  • 2006-03-30 File CB3678.ALL.PDF was removed from any previous datasets and flagged as a study-level file, so that it will accompany all downloads.
  • 2005-11-04 On 2005-03-14 new files were added to one or more datasets. These files included additional setup files as well as one or more of the following: SAS program, SAS transport, SPSS portable, and Stata system files. The metadata record was revised 2005-11-04 to reflect these additions.

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