Risk Factors for AIDS Among Intravenous Drug Users Study, New York City, 1991-1995 [Restricted] (ICPSR 35078)

Principal Investigator(s): Des Jarlais, Don, Beth Israel Medical Center

Summary:

The Risk Factors for AIDS among Intravenous Drug Users study is an ongoing series of cross-sectional studies that recruits participants from a storefront research site and from one of New York City's largest detoxification facilities. The goal of the study was to assess the potential effectiveness of HIV interventions by examining participants' drug use, risk behavior, and AIDS prevention knowledge and activities.

The dataset combines survey responses taken from interviews conducted at the Bellevue Methadone Maintenance Treatment Program, the Beth Israel Medical Center and from a high drug use area in Lower East Side of Manhattan. All participants were at least 18 years of age or older. Participants from the Beth Israel Medical Center and the Lower East Side were given face-to-face interviews based on a World Health Organization Multi-Centre questionnaire. Data from the Bellevue Methadone Maintenance Treatment Program were extracted from patients' clinical files. Minimal demographic and HIV risk behavior were included in the methadone patient responses in these data to protect their anonymity. Blood samples were taken from participants to test for HIV.

These data also contain information on topics including participant demographics, alcohol use, drug use, substance abuse treatment, needle sharing habits, sexual behavior, social networks, HIV testing services, as well as mental and physical health. Drugs use explored in this study includes heroin, cocaine, crack, methadone, amphetamines, ice, tranquilizers, barbiturates and other drugs.

There are 2,907 respondents and 906 variables in the dataset.

Access Notes

  • One or more files in this data collection have special restrictions ; consult the restrictions note to learn more. You can apply online for access to the restricted-use data. A login is required to apply.

    Users are reminded that these data are to be used solely for statistical analysis and reporting of aggregated information, and not for the investigation of specific individuals or organizations. Access to this data is restricted. Users interested in obtaining these data must complete a Restricted Data Use Agreement, specify the reasons for the request, and obtain IRB approval or notice of exemption for their research. Apply for access to these data through the ICPSR data access request system portal. See the ICPSR data access request system portal for information and instructions. These data are only available through the ICPSR virtual data enclave.

    Any public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.

Dataset(s)

Dataset
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Study Description

Citation

Des Jarlais, Don. Risk Factors for AIDS Among Intravenous Drug Users Study, New York City, 1991-1995 [Restricted]. ICPSR35078-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2015-02-24. https://doi.org/10.3886/ICPSR35078.v1

Persistent URL: https://doi.org/10.3886/ICPSR35078.v1

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Funding

This study was funded by:

  • United States Department of Health and Human Services. National Institutes of Health. National Institute on Drug Abuse (R01 DA 003574)

Scope of Study

Subject Terms:    AIDS, cocaine, drug treatment, drug use, health behavior, health education, heroin, HIV, intravenous drug use, prostitution, sexual behavior, sexually transmitted disease, social behavior, social networks

Geographic Coverage:    New York City, United States

Time Period:   

  • 1991--1995

Unit of Observation:    Individual

Universe:    Intravenous drug users age 18 years and older in New York City.

Data Type(s):    clinical data, survey data

Data Collection Notes:

This dataset contains waves 3 and 4 of the survey. However, question text is only available for wave 4. The wave 3 questionnaires were destroyed in an accident. The variable order follows the questionnaire for wave 4. ICPSR staff added wave 3 variables in a pattern that follows the wave 4 questionnaire.

The Principal Investigator computed variables to reflect the number of times the respondent did certain activities. These variables have the same variable names and labels as the originals except the letter "K" is added to the end of the variable names and "(Converted to number of times)" is added to the end of the variable labels.

The Principal Investigator computed variables to reflect the percentage of the time the respondent did certain activities. These variables have the same variable names and labels as the originals except the letter "F" is added to the end of the variable names and "(Converted to Percentage)" is added to the end of the variable labels.

At the end of the dataset there are 16 variables that are listed in the codebook under the bookmark "Test Results". These variables relate to HIV testing results; however, these variables have no labels at this time. The frequencies for these variables have been suppressed in the codebook due to confidentiality concerns.

Dr. Des Jarlais is willing to discuss potential analyses if needed. He can be reached at DDesjarlais@chpnet.org.

Methodology

Sample:    The respondents were convenience sampled from the Bellevue Methadone Maintenance Treatment Program, the Beth Israel Medical Center and from a high drug use area in the Lower East of Manhattan.

Time Method:    Longitudinal: Trend / Repeated Cross-section

Weight:    There are no weight variables associated with this study.

Mode of Data Collection:    face-to-face interview, on-site questionnaire

Response Rates:    90 percent

Extent of Processing:   ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:

  • Standardized missing values.
  • Created online analysis version with question text.
  • Checked for undocumented or out-of-range codes.

Version(s)

Original ICPSR Release:   2015-02-24

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