National Archive of Computerized Data on Aging
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Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001 (ICPSR 3253) RSS

Principal Investigator(s):

Summary:

Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Data were collected through randomized clinical trials at six sites: University of Alabama--Birmingham, the Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee--Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions studied included psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services. Although interventions varied by site, all sites collected the same data at the same time intervals. The impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization was assessed. Parts 1 through 5 contain screening data and a short mental status questionnaire. Parts 6 through 24 contain baseline data and cover activities of daily living, anxiety, and caregiver health and behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 25 and 26 contain tracking data and also include an examination of interventions.

Access Notes

  • These data are freely available.

Dataset(s)

WARNING: Because this study has many datasets, the download all files option has been suppressed, and you will need to download one dataset at a time.

DS0:  Study-Level Files
Documentation:
DS1:  Screening Log Sheet - Download All Files (4,257 KB)
Data:
DS2:  Screening - Download All Files (5,101 KB)
Data:
DS3:  Rescreen - Download All Files (4,183 KB)
Data:
DS4:  Repeat Screen - Download All Files (4,235 KB)
Data:
DS5:  Short Portable Mental Status Questionnaire - Download All Files (4,145 KB)
Data:
DS6:  ADL/IADL - Download All Files (4,392 KB)
Data:
DS7:  Anxiety Inventory - Download All Files (4,183 KB)
Data:
DS8:  Caregiver Health and Health Behaviors - Download All Files (4,207 KB)
Data:
DS9:  Core Quality Form - Download All Files (4,605 KB)
Data:
DS10:  Formal Care and Services - Download All Files (4,276 KB)
Data:
DS11:  Caregiver Medications - Download All Files (4,933 KB)
Data:
DS12:  Caregiver Sociodemographic Information - Download All Files (4,476 KB)
Data:
DS13:  Identification Number - Download All Files (4,207 KB)
DS14:  Interview Time - Download All Files (4,252 KB)
Data:
DS15:  Revised Memory and Behavior Checklist - Download All Files (4,411 KB)
Data:
DS16:  Mini Mental State Examination - Download All Files (4,265 KB)
Data:
DS17:  Positive Aspects of Caregiving - Download All Files (4,188 KB)
Data:
DS18:  Religiosity - Download All Files (4,255 KB)
Data:
DS19:  Care Recipient Medications - Download All Files (4,963 KB)
Data:
DS20:  Care Recipient Sociodemographic Information - Download All Files (4,303 KB)
Data:
DS21:  Social Activities - Download All Files (4,179 KB)
Data:
DS22:  Center for Epidemiologic Studies-Depression - Download All Files (4,212 KB)
Data:
DS23:  Social Support - Download All Files (4,228 KB)
Data:
DS24:  Vigilance - Download All Files (4,194 KB)
Data:
DS25:  Intervention Assignment - Download All Files (4,177 KB)
Data:
DS26:  Off-Protocol - Download All Files (4,199 KB)
Data:

Study Description

Citation

Schulz, Richard, et al. Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001. ICPSR03253-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2001. doi:10.3886/ICPSR03253.v1

Persistent URL:

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Funding

This study was funded by:

  • United States Department of Health and Human Services. National Institutes of Health. National Institute on Aging

Scope of Study

Subject Terms:   Alzheimers disease, caregiver burden, caregivers, emotional states, families, health services utilization, health status, intervention, minorities, older adults, outreach programs, psychological wellbeing, stress

Geographic Coverage:   Alabama, Birmingham, Boston, California, Florida, Massachusetts, Memphis, Miami, Palo Alto, Pennsylvania, Philadelphia, Tennessee, United States

Time Period:  

  • 1996-09--2001-02

Date of Collection:  

  • 1996-09--2001-02

Universe:   Family caregivers living with persons with dementia for at least six months in Birmingham, AL, Boston, MA, Memphis, TN, Miami, FL, Palo Alto, CA, and Philadelphia, PA.

Data Types:   survey data

Methodology

Sample:   Convenience sample with recruitment strategies varying at each site.

Data Source:

personal interviews

Version(s)

Original ICPSR Release:  

Version History:

  • 2006-03-30 File CB3253.ALL.PDF was removed from any previous datasets and flagged as a study-level file, so that it will accompany all downloads.
  • 2005-11-04 On 2005-03-14 new files were added to one or more datasets. These files included additional setup files as well as one or more of the following: SAS program, SAS transport, SPSS portable, and Stata system files. The metadata record was revised 2005-11-04 to reflect these additions.

Related Publications

Variables

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Metadata Exports

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