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Pediatric Home Care: Results of a National Evaluation of Programs for Ventilator-Assisted Children, 1974-1983 (ICPSR 8948)

Principal Investigator(s):

Summary:

This collection examines three programs designed to facilitate the discharge of ventilator-assisted children to the home or a homelike alternative. Program personnel, advisory board members, and the primary caregivers of the children were interviewed as part of the evaluation. This study is the first comprehensive and systematic effort of its kind to develop a conceptual and methodological approach to gathering data on this new population of technology-assisted children. The ultimate outcomes examined were the ventilator-assisted child's quality of life, the stress and adaptation experienced by the care- giver(s) and family unit, and the cost-effectiveness of the alternative home care arrangements relative to traditional inpatient care.

Access Notes

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Dataset(s)

WARNING: Because this study has many datasets, the download all files option has been suppressed, and you will need to download one dataset at a time.

DS1:  Main Questionnaire - Key Informant Interview - Download All Files (0.3 MB)
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DS2:  Main Questionnaire - Key Informant Interview Record Layout
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DS3:  Main Questionnaire - Key Informant Interview Frequencies
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DS4:  Main Questionnaire - Patient (Caregiver Interview) File - Download All Files (1.6 MB)
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DS5:  Main Questionnaire - Patient (Caregiver Interview) File Record Layout
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DS6:  Main Questionnaire - Patient (Caregiver Interview) File Frequencies
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DS7:  Specialty Coding - Open Ended Questions - Download All Files (0.2 MB)
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DS8:  Specialty Coding - Open Ended Questions Record Layout
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DS9:  Specialty Coding - Open Ended Questions Frequencies
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DS10:  Additional Conditions of the Child - Download All Files (0.1 MB)
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DS11:  Additional Conditions of the Child Record Layout
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DS12:  Additional Conditions of the Child Frequencies
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DS13:  Hospital Stay - Download All Files (0.4 MB)
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DS14:  Hospital Stay Record Layout
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DS15:  Hospital Stay Frequencies
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DS16:  Patient Level - Constructed Variables - Download All Files (0.4 MB)
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DS17:  Patient Level - Constructed Variables Record Layout
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DS18:  Patient Level - Constructed Variables Frequencies
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DS19:  Hospital Level - Constructed Variables - Download All Files (0.2 MB)
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DS20:  Hospital Level - Constructed Variables Record Layout
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DS21:  Hospital Level - Constructed Variables Frequencies
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DS22:  Caregivers In-Home - Constructed Variables - Download All Files (0 MB)
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DS23:  Caregivers In-Home - Constructed Variables Record Layout
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DS24:  Caregivers In-Home - Constructed Variables Frequencies
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DS25:  Caregivers Outside-Home - Constructed Variables - Download All Files (0 MB)
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DS26:  Caregivers Outside-Home - Constructed Variables Record Layout
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DS27:  Caregivers Outside-Home - Constructed Variables Frequencies
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DS28:  Cost Analysis - Subset of 36 Children - Download All Files (0 MB)
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DS29:  Cost Analysis - Subset of 36 Children Record Layout
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DS30:  Cost Analysis - Subset of 36 Children Frequencies
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DS31:  AHA Hospital Characteristics - Download All Files (0 MB)
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DS32:  AHA Hospital Characteristics Record Layout
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DS33:  AHA Hospital Characteristics Frequencies
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Study Description

Citation

Aday, Lu Ann, and Ronald M. Andersen. Pediatric Home Care: Results of a National Evaluation of Programs for Ventilator-Assisted Children, 1974-1983. ICPSR08948-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 1988. http://doi.org/10.3886/ICPSR08948.v1

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Funding

This study was funded by:

  • Georgetown University. Center for Child and Human Development
  • United States Department of Health and Human Services. Health Resources and Services Administration. Maternal and Child Health Bureau (MCJ PHS 173363-03-3, and MCJ 113806-0)

Scope of Study

Subject Terms:   assisted living, children, home health care, program evaluation, quality of life

Geographic Coverage:   United States

Time Period:  

  • 1974--1983

Date of Collection:  

  • 1974--1983

Universe:   Ventilator-assisted children in the United States.

Data Collection Notes:

This data collection includes frequencies, record layouts, or maps for each data file. In addition to the primary data collected in the survey, analytic variables generated through combining categories or sets of variables in the Caregiver Questionnaire are also included.

Methodology

Data Source:

personal and telephone interviews, and American Hospital Association Guide to the Health Care Field, 1984 edition

Version(s)

Original ICPSR Release:  

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