Pediatric Home Care: Results of a National Evaluation of Programs for Ventilator-Assisted Children, 1974-1983 (ICPSR 8948)
Principal Investigator(s): Aday, Lu Ann; Andersen, Ronald
Summary: This collection examines three programs designed to facilitate the discharge of ventilator-assisted children to the home or a homelike alternative. Program personnel, advisory board members, and the primary caregivers of the children were interviewed as part of the evaluation. This study is the first comprehensive and systematic effort of its kind to develop a conceptual and methodological approach to gathering data on this new population of technology-assisted children. The ultima... (more info)
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Study Description
Citation
Aday, Lu Ann, and Ronald Andersen. Pediatric Home Care: Results of a National Evaluation of Programs for Ventilator-Assisted Children, 1974-1983. ICPSR08948-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 1988. doi:10.3886/ICPSR08948.v1
Persistent URL: http://dx.doi.org/10.3886/ICPSR08948.v1
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Funding
This survey was funded by:
- United States Department of Health and Human Services. Health Resources and Services Administration. Maternal and Child Health Bureau (MCJ PHS 173363-03-3, and MCJ 113806-0)
- Georgetown University. Center for Child and Human Development
Scope of Study
Summary: This collection examines three programs designed to facilitate the discharge of ventilator-assisted children to the home or a homelike alternative. Program personnel, advisory board members, and the primary caregivers of the children were interviewed as part of the evaluation. This study is the first comprehensive and systematic effort of its kind to develop a conceptual and methodological approach to gathering data on this new population of technology-assisted children. The ultimate outcomes examined were the ventilator-assisted child's quality of life, the stress and adaptation experienced by the care- giver(s) and family unit, and the cost-effectiveness of the alternative home care arrangements relative to traditional inpatient care.
Subject Terms: assisted living, children, home health care, program evaluation, quality of life
Geographic Coverage: United States
Time Period:
- 1974--1983
Date of Collection:
- 1974--1983
Universe: Ventilator-assisted children in the United States.
Data Collection Notes:
This data collection includes frequencies, record layouts, or maps for each data file. In addition to the primary data collected in the survey, analytic variables generated through combining categories or sets of variables in the Caregiver Questionnaire are also included.
Methodology
Data Source:
personal and telephone interviews, and American Hospital Association Guide to the Health Care Field, 1984 edition
Version(s)
Original ICPSR Release: 1989-03-03
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