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This study is maintained and distributed by the National Archive of Computerized Data on Aging (NACDA), the aging program within ICPSR. NACDA is sponsored by the National Institute on Aging (NIA) at the National Institutes of Heath (NIH).

Resources for Enhancing Alzheimer's Caregiver Health (REACH II), 2001-2004 (ICPSR 4354) RSS

Alternate Title:  REACH II, 2001-2004

Principal Investigator(s):

Summary:

Built upon the findings of RESOURCES FOR ENHANCING ALZHEIMER'S CAREGIVER HEALTH, 1996-2001, BASELINE AND FOLLOW-UP DATA [ICPSR 3678], REACH II designed and tested a single multi-component intervention among family caregivers of persons with Alzheimer's disease or related disorders. The overall objectives were (1) to identify and reduce modifiable risk factors among diverse family caregivers of patients with Alzheimer's Disease or a related disorder, (2) to enhance the quality of care provided to the care recipients, and (3) to enhance the well-being of the caregivers. REACH II is the first project to simultaneously test a comprehensive caregiver intervention in three distinct racial/ethnic groups: Hispanic/Latino, Black/African-American, and White/Caucasian. The intervention was based on a risk-appraisal approach in which five areas of risk--depression, burden, self-care, social support, and patient problem behaviors--that are central to caregiver well-being and quality of life were matched to corresponding intervention components. These components included education, skills to manage troublesome care-recipient behaviors, social support, cognitive strategies for reframing negative emotional responses, and strategies for enhancing healthy behaviors and managing stress. Consistent with this approach, the primary outcome was a multivariate quality of life indicator that assessed caregiver depression, burden, self-care, social support, and patient problem behaviors. Two hallmarks of caregiver intervention studies--caregiver clinical depression and patient institutionalization--were assessed as secondary outcomes. The dataset names listed in this collection include the shortened name of the form administered.

Access Notes

  • These data are freely available.

Dataset(s)

WARNING: Because this study has many datasets, the download all files option has been suppressed, and you will need to download one dataset at a time.

DS0:  Study-Level Files
DS1:  AE: Caregiver/Care Recipient Acute Baseline Alerts/Adverse Events Forms Guidebook - Download All Files (1.8 MB)
DS2:  AF: Acute Baseline Alerts/Adverse Events Follow-Up Report Guidebook - Download All Files (1.6 MB)
DS3:  BA: Baseline Battery Guidebook - Download All Files (29.8 MB)
DS4:  BR: Bereavement Battery Guidebook - Download All Files (10.4 MB)
DS5:  DA: Intervention Delivery Assessment - Download All Files (9.9 MB)
DS6:  DC: Discontinued Battery - Download All Files (1.9 MB)
DS8:  IC: Interventionist Characteristics - Download All Files (1.6 MB)
DS10:  PL: Placement Battery - Download All Files (10.3 MB)
DS11:  RF: Randomization Form - Download All Files (1.8 MB)
DS12:  RT: Care Recipient Tracking Form - Download All Files (1.6 MB)
DS14:  SP: Short Portable Mental Status Questionnaire (SPMSQ) - Download All Files (1.6 MB)

Study Description

Citation

Schulz, Richard, Louis Burgio, Alan B. Stevens, Robert Burns, Sara Czaja, Dolores Gallagher Thompson, Laura N. Gitlin, Steven Belle, and Linda Nichols. RESOURCES FOR ENHANCING ALZHEIMER'S CAREGIVER HEALTH (REACH II), 2001-2004. ICPSR04354-v1. Pittsburgh, PA: Richard Schulz, Steven Belle, University of Pittsburgh/Tuscaloosa, AL: Louis Burgio, University of Alabama/College Station, TX: Alan B. Stevens, Texas A&M University/Memphis, TN: Robert Burns, Linda Nichols, Memphis Veterans Affairs Medical Center/Miami, FL: Sara Czaja, University of Miami/Stanford, CA: Dolores Gallagher Thompson, Stanford University/Philadelphia, PA: Laura N. Gitlin, Thomas Jefferson University [producers], 2004. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2006-10-27. http://doi.org/10.3886/ICPSR04354.v1

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Funding

This study was funded by:

  • United States Department of Health and Human Services. National Institutes of Health. National Institute on Aging (AG13265)

Scope of Study

Subject Terms:   Alzheimers disease, caregiver burden, caregivers, dementia, emotional states, families, health services utilization, health status, home health care, intervention, mental disorders, mental health, minorities, older adults, outreach programs, psychological wellbeing, stress

Geographic Coverage:   Alabama, Birmingham, California, Florida, Memphis, Miami, Palo Alto, Pennsylvania, Philadelphia, Tennessee, United States

Time Period:  

  • 2001--2004

Date of Collection:  

  • 2001--2004

Unit of Observation:   caregiver, care-recipient, caregiver/care-recipient dyad

Universe:   Family caregivers of people with Alzheimer's disease or a related dementia who reside in noninstitutional settings.

Data Types:   survey data

Data Collection Notes:

All datasets can be linked using the variable: ID. Dataset 1 (AE: Caregiver/Care Recipient Acute Baseline Alerts/Adverse Events) can be linked to Dataset 2 (AF: Acute Baseline Alerts/Adverse Events Follow-Up Report) using variables: ID, EVENT, and EVEDAT.

Methodology

Sample:   Convenience sample

Mode of Data Collection:   personal interview

Extent of Processing:  ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:

  • Created online analysis version with question text.

Version(s)

Original ICPSR Release:  

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