This study is maintained and distributed by the National Archive of Computerized Data on Aging (NACDA), the aging program within ICPSR. NACDA is sponsored by the National Institute on Aging (NIA) at the National Institutes of Heath (NIH).

National Home and Hospice Care Survey, 1998 (ICPSR 3763)

Principal Investigator(s):


The National Home and Hospice Care Survey (NHHCS) for 1998 examines home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.

Series: National Home and Hospice Care Survey Series

Access Notes

  • These data are freely available.


DS0:  Study-Level Files
DS2:  Current Patient Data - Download All Files (10.7 MB)
DS3:  Discharged Patient Data - Download All Files (12.6 MB)

Study Description


U.S. Dept. of Health and Human Services, National Center for Health Statistics. NATIONAL HOME AND HOSPICE CARE SURVEY, 1998. ICPSR03763-v1. Hyattsville, MD: U.S. Dept. of Health and Human Services, National Center for Health Statistics [producer], 1999. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2005-03-25.

Persistent URL:

Export Citation:

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Scope of Study

Subject Terms:   assisted living, health care facilities, home care, home care agencies, home care workers, hospices, long term care, patient care, patients, service providers

Geographic Coverage:   United States

Time Period:  

  • 1998

Date of Collection:  

  • 1998-08--1998-12

Universe:   The sampling frame for the 1998 National Home and Hospice Care Survey (NHHCS) consisted of 16,500 agencies classified as agencies providing home health and hospice care. The universe of home health agencies and hospices was obtained from various national organizations and other sources.

Data Types:   survey data

Data Collection Notes:

Per agreement with the National Center for Health Statistics (NCHS), ICPSR distributes the data files and text of the technical documentation for this collection as prepared by NCHS.


Sample:   Only agencies providing home health or hospice care services to patients at the time of the survey were eligible to participate in the 1998 NHHCS. Of the 1,350 agencies in the sample, 1,158 (86 percent) were considered in-scope of the survey. Of the 192 out-of-scope agencies, 174 were not providing home health or hospice care services to patients at the time of the survey and 18 were duplicates of, or had merged with, other sampled agencies. Of the in-scope agencies, 1,088 (94 percent) agreed to participate.

Data Source:

personal interviews and administrative records


Original ICPSR Release:  

Version History:

  • 2006-01-18 File DOC3763.ALL.PDF was removed from any previous datasets and flagged as a study-level file, so that it will accompany all downloads.

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