The Traumatic Brain Injury Model Systems National Data and Statistical Center (ICPSR 36589)

Principal Investigator(s):
Traumatic Brain Injury Model Systems National Data and Statistical Center, Craig Hospital Research Department

This is an external resource to which ICPSR links as a courtesy. These data are not available from ICPSR. Users should consult the data owners (via The Traumatic Brain Injury Model Systems National Data and Statistical Center) directly for details on obtaining these resources.

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Summary

The Traumatic Brain Injury Model Systems National Data and Statistical Center (TBINDSC) located at Craig Hospital in Englewood, Colorado, is a central resource for researchers and data collectors within the Traumatic Brain Injury Model Systems (TBIMS) program. The primary purpose of the TBINDSC is to advance medical rehabilitation by increasing the rigor and efficiency of scientific efforts to longitudinally assess the experience of individuals with traumatic brain injury (TBI). The TBINDSC provides technical assistance, training, and methodological consultation to 16 TBIMS centers as they collect and analyze longitudinal data from people with TBI in their communities, and as they conduct research toward evidence-based TBI rehabilitation interventions.

Funding

United States Department of Health and Human Services. Administration for Community Living. National Institute on Disability, Independent Living and Rehabilitation Research

Subject Terms

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Data Collection Notes

  1. The National Data and Statistical Center has standard operating procedures (SOPs) for obtaining a copy of the dataset. All researchers interested in getting a copy of the dataset should familiarize themselves with the content of the database. Information about the individual variables that are currently in the database can be found on the Syllabus page. Additional information regarding the inclusion and exclusion criteria for whose information is included in the database can be found in the following SOP. For more information on requesting access to the data, visit the For Researchers page.
  2. As of October 2016 funded Traumatic Brain Injury Model System Centers included:
    • The Virginia Commonwealth TBI Model System
    • The Institute for Rehabilitation and Research (TIRR Memorial Hermann)
    • The Ohio Regional TBI Model System
    • Moss TBI Model System
    • University of Alabama at Birmingham Traumatic Brain Injury Care System
    • Rocky Mountain Regional Brain Injury System
    • Spaulding-Harvard Traumatic Brain Injury Model System
    • Mayo Clinic Traumatic Brain Injury Model System
    • Northern New Jersey Traumatic Brain Injury System (NNJTBIS)
    • University of Washington Traumatic Brain Injury Model System
    • University of Pittsburgh Medical Center Traumatic Brain Injury Model System
    • North Texas Traumatic Brain Injury Model System
    • New York Traumatic Brain Injury Model System
    • Rusk Rehabilitation TBIMS at NYU
    • Indiana University / Rehabilitation Hospital of Indiana
    • South Florida TBI Model System
    The following centers conduct longitudinal follow-up:
    • Southeastern Michigan Traumatic Brain Injury System (SEMTBIS)
    • Northern California TBI Model System
    • Carolinas Traumatic Brain Injury Rehabilitation and Research System
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