AHRQ Multiple Chronic Conditions Research Network

This study is provided by the AHRQ Multiple Chronic Conditions Research Network.

Clinical Database to Support Comparative Effectiveness Studies of Complex Patients, 2005-2010 [United States] (ICPSR 34644) RSS

Principal Investigator(s):

Summary:

Overview: The goal of the project was to develop a unique database linking chronic disease clinical data from an electronic medical record (EMR) of a large academic healthcare system to multi-payer claims data. The longitudinal relational database can be used to study clinical effectiveness of many diagnostic and treatment interventions. The population of patients used consisted of those patients who were attributed to the University of Michigan Health System (UMHS) as continuing care patients, who are also in adjudicated and validated chronic disease registries.

Data Access: These data are not available from ICPSR. The data are restricted to use by the principal investigator and cannot be shared.

Access Notes

  • One or more files in this study are not available for download due to special restrictions; consult the restrictions note to learn more.

    These data are not available from ICPSR. The data are restricted to use by the principal investigator only and cannot be shared.

Dataset(s)

Dataset
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No downloadable data files available.

Study Description

Citation

Blaum, Caroline. Clinical Database to Support Comparative Effectiveness Studies of Complex Patients, 2005-2010 [United States]. ICPSR34644-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2013-09-08. http://doi.org/10.3886/ICPSR34644.v1

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Funding

This study was funded by:

  • United States Department of Health and Human Services. Agency for Healthcare Research and Quality (R24 HS019459)

Scope of Study

Subject Terms:   cardiovascular disease, chronic illnesses, databases, diabetes, disease, health care, health care delivery, medical records, Medicare, patients

Geographic Coverage:   United States

Time Period:  

  • 2005--2010

Date of Collection:  

  • 2010-09-01--2012-08-31

Unit of Observation:   individual

Universe:   This project concerned AHRQ priority populations, including low income and uninsured patients, older adult patients, and patients with diabetes. The population of patients used consisted of those patients who were attributed to the UMHS as continuing care patients, who were also in adjudicated and validated chronic disease registries. These registries organize EMR diagnostic and management information for patients with physician adjudicated chronic disease diagnoses. Complete claims are available for most of the relevant patient population.

Data Types:   administrative records data, clinical data, medical records

Methodology

Data Source:

The database was created using three data sources: (1) clinical data using physician-adjudicated clinical information (chronic disease registries, including a diabetes registry) programmed from the electronic medical record (EMR) of a large healthcare system; (2) health system administrative data; and (3) complete Medicare claims for those diabetes patients with Medicare. Complete claims were available for most of the relevant patient population. The database is dynamic, with most information available for at least two years (2009-2010) and some for up to five years (2005-2010).

Version(s)

Original ICPSR Release:  

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