Principal Investigator(s): Allen, Susan M., Brown University. Center for Gerontology and Health Care Research; Mor, Vincent, Brown University. Center for Gerontology and Health Care Research
This two-wave longitudinal survey of persons with disabilities in Springfield, Massachusetts, had four research objectives: (1) to determine levels of formal and informal service use among people with disabilities in Springfield, (2) to determine the prevalence and consequences of unmet needs for assistance with activities of daily living (ADLs) and instrumental activities of daily living (IADLs), (3) to test the hypothesis that residents reporting unmet needs for assistance with daily living activities at baseline would have higher levels of emergency room use and hospitalization over the follow-up period than respondents not reporting such needs, and (4) to assess respondents' satisfaction with access to and quality of their health care and health care providers. Conducted in 1993-1994 and 1996-1997, the survey gathered information on health, health service utilization, satisfaction with health services, assistance with ADLs (eating, dressing, bathing, toileting, transferring in and out of bed/chair, and moving around indoors) and IADLs (preparing meals, shopping for groceries and household supplies, housekeeping, transportation, and financial management), social and physical activity, social support, health care coverage, and sociodemographic characteristics such as income, year of birth, marital status, race, Hispanic origin, religion, education, and employment.
As explained in the ICPSR Processing Notes in the codebooks, some variables are restricted from general dissemination for reasons of confidentiality. Users interested in obtaining these data must complete an Agreement for the Use of Confidential Data, specify the reasons for the request, and obtain IRB approval or notice of exemption for their research. Apply for access to these data through the ICPSR restricted data contract portal, which can be accessed via the study home page.
Allen, Susan M., and Vincent Mor. Springfield [Massachusetts] Study of Populations with Disabilities, 1993-1997. ICPSR02623-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2000. doi:10.3886/ICPSR02623.v1
Persistent URL: http://doi.org/10.3886/ICPSR02623.v1
This study was funded by:
- Robert Wood Johnson Foundation (028141)
Scope of Study
Subject Terms: activities of daily living, assisted living, assistive devices, disabilities, disabled persons, emergency services, health care access, health care services, hospitalization, needs assessment
Universe: Persons with disabilities 18 years of age and older residing in Springfield, Massachusetts, in 1993-1994.
Data Types: survey data
Sample: Respondents to the baseline survey conducted in 1993-1994 were selected through random-digit dialing and network sampling. The sample was stratified by age with approximately half of the respondents aged 18-64 and the remaining half aged 65 and older. Of the 632 respondents interviewed for the baseline survey, 592 gave permission to be recontacted for the follow-up survey in 1996-1997. However, the follow-up survey obtained only 424 interviews, of which 101 were conducted with proxies of baseline participants who had died or were living in nursing homes at the time of the follow-up. Sixty-three baseline respondents who gave permission to be recontacted (or their proxies) refused to participate in the follow-up survey, and 105 cases were lost to follow-up despite aggressive efforts to find them in the field.
telephone and personal interviews
Original ICPSR Release: 2000-02-21
- 2006-03-30 File CB2623AP.ALL.PDF was removed from any previous datasets and flagged as a study-level file, so that it will accompany all downloads.
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