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This study is maintained and distributed by the National Archive of Computerized Data on Aging (NACDA), the aging program within ICPSR. NACDA is sponsored by the National Institute on Aging (NIA) at the National Institutes of Heath (NIH).

National Home and Hospice Care Survey, 1996 (ICPSR 2707) RSS

Principal Investigator(s):

Summary:

The National Home and Hospice Care Survey (NHHCS) for 1996 is the fourth survey of home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff personnel, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.

Series: National Home and Hospice Care Survey Series

Access Notes

  • These data are freely available.

Dataset(s)

DS0:  Study-Level Files
Documentation:
DS1:  Facility Questionnaire - Download All Files (0.3 MB)
Data:
DS2:  Current Patient Questionnaire - Download All Files (4 MB)
Data:
DS3:  Discharged Patient Questionnaire - Download All Files (3.7 MB)
Data:

Study Description

Citation

U.S. Dept. of Health and Human Services, National Center for Health Statistics. NATIONAL HOME AND HOSPICE CARE SURVEY, 1996. ICPSR version. Hyattsville, MD: U.S. Dept. of Health and Human Services, National Center for Health Statistics [producer], 1999. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 1999. http://doi.org/10.3886/ICPSR02707.v1

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Scope of Study

Subject Terms:   assisted living, facilities, home care, home care agencies, hospices, long term care, patients, personnel, service providers

Geographic Coverage:   United States

Time Period:  

  • 1996

Date of Collection:  

  • 1996-08--1996-12

Universe:   All home health care agencies and hospices identified in the 1991 National Health Provider Inventory (NHPI) and all agencies open for business between June 30, 1992, and December 31, 1993, as identified through the Agency Reporting System.

Data Types:   survey data

Data Collection Notes:

(1) Per agreement with NCHS, ICPSR distributes the data files and text of the technical documentation for this collection as prepared by NCHS. (2) The codebook and data collection instruments are provided as a Portable Documentation Format (PDF) file. The PDF file format was developed by Adobe Systems Incorporated and can be accessed using the Adobe Acrobat Reader. Information on how to obtain a copy of the Acrobat Reader is provided through the ICPSR Website on the Internet.

Methodology

Sample:   The sample design for the 1996 NHHCS was a stratified three-stage probability design. Primary sampling units (PSUs) were selected at the first stage, agencies at the second stage, and current residents and discharges at the third stage.

Data Source:

personal interviews, and administrative records

Version(s)

Original ICPSR Release:  

Version History:

  • 2006-01-18 File CB2707.ALL.PDF was removed from any previous datasets and flagged as a study-level file, so that it will accompany all downloads.

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