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        <Title>Metadata record for Do Older Adults Know Their Spouses' End-of-Life Treatment Preferences?</Title>
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            <Title>Do Older Adults Know Their Spouses' End-of-Life Treatment Preferences?</Title>
 				
	    	
				<Creator xmlns="ddi:reusable:3_1" affiliation="University of Wisconsin-Madison">Moorman, Sara M.</Creator>
	    	
				<Creator xmlns="ddi:reusable:3_1" affiliation="University of Wisconsin-Madison">Hauser, Robert M.</Creator>
	    	
				<Creator xmlns="ddi:reusable:3_1" affiliation="Rutgers University">Carr, Deborah</Creator>
	    	
	    	<Publisher>Inter-university Consortium for Political and Social Research</Publisher>
  			<Contributor role="distributor">ICPSR</Contributor>
   			<PublicationDate>
    			<SimpleDate>2009-06-23</SimpleDate>
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   			<InternationalIdentifier xmlns="ddi:reusable:3_1" type="ICPSR Number">25701</InternationalIdentifier>
   			<InternationalIdentifier xmlns="ddi:reusable:3_1" type="DOI">doi://10.3886/ICPSR25701.v1</InternationalIdentifier>
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        <Abstract isIdentifiable="true" id="Abstract25701">
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            <div xmlns="http://www.w3.org/1999/xhtml" id="Summary25701">When terminally ill patients become mentally incapacitated, their surrogates
often make treatment decisions in collaboration with health care providers.
The authors examined how surrogates? errors in reporting their spouses? preferences are affected by their gender, status as durable power of attorney for health care (DPAHC), whether they and their spouses discussed end-of-life
preferences, and their spouses? health status. Structural equation models were
applied to data from married couples in their mid-60s from the 2004 wave of
the Wisconsin Longitudinal Study. Surrogates reported their spouses? preferences incorrectly 13 percent and 26 percent of the time in end-of-life scenarios involving cognitive impairment and physical pain, respectively. Surrogates projected their own preferences onto their spouses?. Similar patterns emerged regardless of surrogate gender and status as DPAHC, marital discussions about end-of-life preferences, or spousal health status. Implications for the process of surrogate decision-making and for future research are discussed.</div>
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   							<GrantNumber>T32-AG000129</GrantNumber>
   						
    				
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      		<Subject codeListAgency="ICPSR">ICPSR.XVIII</Subject>
      	
      		<Subject codeListAgency="NACDA">NACDA.V</Subject>
      	
      		<Subject codeListAgency="NACDA">NACDA.VI</Subject>
      	
      		<Subject codeListAgency="DSDR">DSDR.IX</Subject>
      	
      		<Subject codeListAgency="DSDR">DSDR.III</Subject>
      	
		
      		<Keyword>aging</Keyword>
      	
      		<Keyword>caregiver burden</Keyword>
      	
      		<Keyword>caregivers</Keyword>
      	
      		<Keyword>death</Keyword>
      	
      		<Keyword>dying</Keyword>
      	
      		<Keyword>health care</Keyword>
      	
      		<Keyword>health care services</Keyword>
      	
      		<Keyword>health status</Keyword>
      	
      		<Keyword>marital relations</Keyword>
      	
      		<Keyword>marriage</Keyword>
      	
      		<Keyword>medical care</Keyword>
      	
      		<Keyword>patient care</Keyword>
      	
      		<Keyword>patients</Keyword>
      	
      		<Keyword>physician patient relationship</Keyword>
      	
      		<Keyword>power of attorney</Keyword>
      	
      		<Keyword>spouses</Keyword>
      	
      		<Keyword>surrogate</Keyword>
      	
      		<Keyword>terminal care</Keyword>
      	
      		<Keyword>terminal illnesses</Keyword>
      	
      		<Keyword>treatment</Keyword>
      	
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					AVAILABLE.  This study is freely available to the general public.
                
                  
                

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The original collector of the data, ICPSR, and the relevant funding agency bear no 
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   							<OrganizationName xmlns="ddi:archive:3_1">United States Department of Health and Human Services. National Institutes of Health. National Institute on Aging</OrganizationName>
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			A zipped package contains a syntax and system file (both in SPSS format), and documentation (in Word and text formats) needed to replicate the results of the study.
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			These data are part of ICPSR's Publication-Related
Archive and are distributed exactly as they arrived from the data depositor. ICPSR has not checked or processed this material. Users should consult the investigators if further information is desired.
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